| 1. |
- Arnardottir, E. S., et al.
(författare)
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The Sleep Revolution project: the concept and objectives
- 2022
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Ingår i: Journal of Sleep Research. - : Wiley. - 0962-1105 .- 1365-2869. ; 31:4
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Tidskriftsartikel (refereegranskat)abstract
- Obstructive sleep apnea is linked to severe health consequences such as hypertension, daytime sleepiness, and cardiovascular disease. Nearly a billion people are estimated to have obstructive sleep apnea with a substantial economic burden. However, the current diagnostic parameter of obstructive sleep apnea, the apnea-hypopnea index, correlates poorly with related comorbidities and symptoms. Obstructive sleep apnea severity is measured by counting respiratory events, while other physiologically relevant consequences are ignored. Furthermore, as the clinical methods for analysing polysomnographic signals are outdated, laborious, and expensive, most patients with obstructive sleep apnea remain undiagnosed. Therefore, more personalised diagnostic approaches are urgently needed. The Sleep Revolution, funded by the European Union's Horizon 2020 Research and Innovation Programme, aims to tackle these shortcomings by developing machine learning tools to better estimate obstructive sleep apnea severity and phenotypes. This allows for improved personalised treatment options, including increased patient participation. Also, implementing these tools will alleviate the costs and increase the availability of sleep studies by decreasing manual scoring labour. Finally, the project aims to design a digital platform that functions as a bridge between researchers, patients, and clinicians, with an electronic sleep diary, objective cognitive tests, and questionnaires in a mobile application. These ambitious goals will be achieved through extensive collaboration between 39 centres, including expertise from sleep medicine, computer science, and industry and by utilising tens of thousands of retrospectively and prospectively collected sleep recordings. With the commitment of the European Sleep Research Society and Assembly of National Sleep Societies, the Sleep Revolution has the unique possibility to create new standardised guidelines for sleep medicine.
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| 2. |
- Cerna, K., et al.
(författare)
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Changing Categorical Work in Healthcare: the Use of Patient-Generated Health Data in Cancer Rehabilitation
- 2020
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Ingår i: Computer Supported Cooperative Work-the Journal of Collaborative Computing and Work Practices. - : Springer Science and Business Media LLC. - 0925-9724. ; 29, s. 563-586
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Tidskriftsartikel (refereegranskat)abstract
- Categorical work in chronic care is increasingly dependent on digital technologies for remote patient care. However, remote care takes many forms and while various types of digital technologies are currently being used, we lack a nuanced understanding of how to design such technologies for specific novel usages. In this paper, we focus on digital technologies for patient-generated health data and how their use changes categorical work in chronic care. Our aim is to understand how categorical work changes, which novel forms of categorical work emerge and what the implications are for the care relation. This paper is based on an ethnographic study of healthcare professionals' work at a pelvic cancer rehabilitation clinic and their interactions with patients. In this setting, supportive talks between patients and nurses are central. To understand the complexities of categorical work in chronic care when patient-generated health data are introduced, we contrast the traditional supportive talks with supportive talks where the nurses had access to the patients' patient-generated health data. We identify and analyze challenges connected to novel forms of categorical work. Specifically, we focus on categorical work and how it can undergo changes. Our empirical findings show how changes occur in the way patients' lived experience of the chronic disease aligns with the categories from chronic care, as well as in the way the nurse works with clinical categories during the talk. These insights help us further understand the implications of patient generated-data use in supportive talks. We contribute to an improved understanding of the use of patient-generated health data in clinical practice and based on this, we identify design implications for how to make categorical work more collaborative.
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| 3. |
- Cerna, Katerina, 1986, et al.
(författare)
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Nurses' work practices in design: managing the complexity of pain
- 2020
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Ingår i: Journal of Workplace Learning. - : Emerald. - 1366-5626. ; 2:2, s. 135-146
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Tidskriftsartikel (refereegranskat)abstract
- Purpose The purpose of this study is to understand the activities in nurses' work practices in relation to the design process of a self-monitoring application. Design/methodology/approach A design ethnographic approach was applied in this study. Findings To solve the problem of translating highly qualitative phenomena, such as pain, into the particular abstract features of a self-monitoring application, design participants had to balance these two aspects by managing complexity. In turn, the nurses' work practices have changed because it now involves a new activity based on a different logic than the nurses' traditional work practices. Originality/value This study describes a new activity included in nurses' work practices when the nurses became part of a design process. This study introduces a novel way on how to gain a deeper understanding of existing professional practice through a detailed study of activities taking place in a design process. This study explores the possible implications for nurses' professional practices when they participate in a self-monitoring application design process.
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| 4. |
- Grisot, M., et al.
(författare)
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Digital infrastructures for patient centered care: Examining two strategies for recombinability
- 2020
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Ingår i: Exploring Digital Ecosystems. Lecture Notes in Information Systems and Organisation, vol 33. Lazazzara A., Ricciardi F., Za S. (eds), pp. 289-300. - Cham : Springer. - 2195-4968. - 9783030236649
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Konferensbidrag (refereegranskat)abstract
- This paper examines recombinability as a quality of digital infrastructures. The recombination of heterogeneous digital capabilities enables and increases the fit between the infrastructure and the practices it supports. However, there is yet limited understanding of how to design for recombinability in digital infrastructures. This issue is critical in the healthcare setting where information and data needs of patients and health personnel vary in scope and time. This study reports from a comparative case study on the design and use of two patient-centered digital infrastructures. We identify two design strategies for recombinability and analyze their rationales and challenges. © 2020, Springer Nature Switzerland AG.
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| 5. |
- Islind, A. S., et al.
(författare)
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Learning sustainable work through critical design: a case study of a hackathon to prepare the future workforce
- 2020
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Ingår i: Journal of Workplace Learning. - : Emerald. - 1366-5626. ; 32:8, s. 641-651
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Tidskriftsartikel (refereegranskat)abstract
- Purpose This paper aims to explore the future of work by investigating how work can be practiced to meet global sustainability goals. The authors draw from empirical findings from a case of critical design session with university students. The aim of the design session was, on the one hand, to embed sustainability into education and, on the other hand, to prepare students with necessary conceptual tools to be prepared for future work. The research questions explored are: What do students learn through engagement in critical design, and how can that foster sustainable work? Design/methodology/approach The research approach is a case study, drawing on critical design activities with 45 students at a university course. The data consists of students' reflections on their design efforts and one researcher's field notes from the design session. Findings The findings show that the students engaged in critical design learn different aspects of sustainable work: how to be solution oriented, how to use technology to do good in the world and outside-the-box thinking skills. Originality/value The authors contribute extended insight into what it means to work for sustainable development, hence doing sustainable work, and how sustainable work can be conducted in practice. The authors discuss three dimensions of sustainable work that we argue are essential to understand how professionals can work towards increased sustainability. The three dimensions are: participation-based work, practice-based work and context-based work.
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| 6. |
- Islind, A. S., et al.
(författare)
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Proxy design: a method for involving proxy users to speak on behalf of vulnerable or unreachable users in co-design
- 2023
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Ingår i: Information Technology & People. - 0959-3845.
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Tidskriftsartikel (refereegranskat)abstract
- PurposeDesigning digital artifacts is not a linear, straightforward process. This is particularly true when applying a user-centered design approach, or co-design, with users who are unable to participate in the design process. Although the reduced participation of a particular user group may harm the end result, the literature on solving this issue is sparse. In this article, proxy design is outlined as a method for involving a user group as proxy users to speak on behalf of a group that is difficult to reach. The article investigates the following research question: How can roleplaying be embedded in co-design to engage users as proxies on behalf of those who are unable to represent themselves?Design/methodology/approachThe article presents a design ethnography spanning three years at a cancer rehabilitation clinic, where digital artifacts were designed to be used collaboratively by nurses and patients. The empirical data were analyzed using content analysis and consisted of 20 observation days at the clinic, six proxy design workshops, 21 telephone consultations between patients and nurses, and log data from the digital artifact.FindingsThe article shows that simulated consultations, with nurses roleplaying as proxies for patients ignited and initiated the design process and enabled an efficient in-depth understanding of patients. Moreover, the article reveals how proxy design as a method further expanded the design. The study findings illustrate: (1) proxy design as a method for initiating design, (2) proxy design as an embedded element in co-design and (3) six design guidelines that should be considered when engaging in proxy design.Originality/valueThe main contribution is the conceptualization of proxy design as a method that can ignite and initiate the co-design process when important users are unreachable, vulnerable or unable to represent themselves in the co-design process. More specifically, based on the empirical findings from a design ethnography that involved nurses as proxy users speaking on behalf of patients, the article shows that roleplaying in proxy design is a fitting way of initiating the design process, outlining proxy design as an embedded element of co-design.
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| 7. |
- Korkalainen, Henri, et al.
(författare)
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Review and perspective on sleep-disordered breathing research and translation to clinics
- 2024
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Ingår i: SLEEP MEDICINE REVIEWS. - 1087-0792 .- 1532-2955. ; 73
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Forskningsöversikt (refereegranskat)abstract
- Sleep-disordered breathing, ranging from habitual snoring to severe obstructive sleep apnea, is a prevalent public health issue. Despite rising interest in sleep and awareness of sleep disorders, sleep research and diagnostic practices still rely on outdated metrics and laborious methods reducing the diagnostic capacity and preventing timely diagnosis and treatment. Consequently, a significant portion of individuals affected by sleep-disordered breathing remain undiagnosed or are misdiagnosed. Taking advantage of state-of-the-art scientific, technological, and computational advances could be an effective way to optimize the diagnostic and treatment pathways. We discuss state-of-the-art multidisciplinary research, review the shortcomings in the current practices of SDB diagnosis and management in adult populations, and provide possible future directions. We critically review the opportunities for modern data analysis methods and machine learning to combine multimodal information, provide a perspective on the pitfalls of big data analysis, and discuss approaches for developing analysis strategies that overcome current limitations. We argue that large-scale and multidisciplinary collaborative efforts based on clinical, scientific, and technical knowledge and rigorous clinical validation and implementation of the outcomes in practice are needed to move the research of sleep-disordered breathing forward, thus increasing the quality of diagnostics and treatment.
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