| 1. |
- Korkalainen, Henri, et al.
(författare)
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Review and perspective on sleep-disordered breathing research and translation to clinics
- 2024
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Ingår i: SLEEP MEDICINE REVIEWS. - 1087-0792 .- 1532-2955. ; 73
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Forskningsöversikt (refereegranskat)abstract
- Sleep-disordered breathing, ranging from habitual snoring to severe obstructive sleep apnea, is a prevalent public health issue. Despite rising interest in sleep and awareness of sleep disorders, sleep research and diagnostic practices still rely on outdated metrics and laborious methods reducing the diagnostic capacity and preventing timely diagnosis and treatment. Consequently, a significant portion of individuals affected by sleep-disordered breathing remain undiagnosed or are misdiagnosed. Taking advantage of state-of-the-art scientific, technological, and computational advances could be an effective way to optimize the diagnostic and treatment pathways. We discuss state-of-the-art multidisciplinary research, review the shortcomings in the current practices of SDB diagnosis and management in adult populations, and provide possible future directions. We critically review the opportunities for modern data analysis methods and machine learning to combine multimodal information, provide a perspective on the pitfalls of big data analysis, and discuss approaches for developing analysis strategies that overcome current limitations. We argue that large-scale and multidisciplinary collaborative efforts based on clinical, scientific, and technical knowledge and rigorous clinical validation and implementation of the outcomes in practice are needed to move the research of sleep-disordered breathing forward, thus increasing the quality of diagnostics and treatment.
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| 2. |
- Bednar, Peter, et al.
(författare)
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STPIS’23 Proceeding Preface
- 2023
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Ingår i: CEUR Workshop Proceedings 2023 9th International Conference on Socio-Technical Perspective in Information Systems Development, STPIS 2023. - : CEUR-WS. ; 3598
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)
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| 3. |
- Cerna, Katerina, 1986, et al.
(författare)
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Decision-support System for Cancer Rehabilitation : Designing for Incorporating of Quantified Data into an Existing Practice
- 2018
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Ingår i: Proceedings of the 10th Nordic Conference on Human-Computer Interaction. - New York, NY, USA : ACM Publications. - 9781450364379 ; , s. 747-753
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Recent development in self-monitoring devices indicates that using quantified data in clinical practicesupporting chronic diseases management holds a big potential. However, exploration of this design space also suggests that some unattended challenges still exist, such as a low adoption rate of self-monitoring tools in existing clinical practice. In this text, wetherefore focus on the ways healthcare professionalsuse quantified data in their practice. We draw onempirical data from an ethnographic study of a cancer rehabilitation center. Our preliminary findings suggestthat the self-monitoring tool supported the nurses'work because it became a functional complement totheir work by allowing them to appropriate the deviceto their and the patients' needs.
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| 4. |
- Cerna, Katarina, et al.
(författare)
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Nurses' work practices in design : managing the complexity of pain
- 2020
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Ingår i: Journal of Workplace Learning. - : Emerald Group Publishing Limited. - 1366-5626 .- 1758-7859. ; 32:2, s. 135-146
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: The purpose of this study is to understand the activities in nurses' work practices in relation to the design process of a self-monitoring application. Design/methodology/approach: A design ethnographic approach was applied in this study. Findings: To solve the problem of translating highly qualitative phenomena, such as pain, into the particular abstract features of a self-monitoring application, design participants had to balance these two aspects by managing complexity. In turn, the nurses'€™ work practices have changed because it now involves a new activity based on a different logic than the nurses’ traditional work practices. Originality/value: This study describes a new activity included in nurses’ work practices when the nurses became part of a design process. This study introduces a novel way on how to gain a deeper understanding of existing professional practice through a detailed study of activities taking place in a design process. This study explores the possible implications for nurses’ professional practices when they participate in a self-monitoring application design process. Â2020, Emerald Publishing Limited.
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| 5. |
- Grisot, Miria, et al.
(författare)
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Patient Generated Data And Affordances : Conversation Cues In Clinical Decision Making
- 2018
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Ingår i: Proceedings from the annual NOKOBIT conference held at Svalbard the 18th-20th of September 2018. ; , s. 1-10
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Konferensbidrag (refereegranskat)abstract
- An increasing number of systems support the use of patient-generated data in patient-provider collaboration.However, there is yet limited understanding of how patient-generated data impact the way healthpersonnel work with data in clinical decision-making processes, and whether patient-generated data mightbe able to support clinical processes, for instance by providing evidence for diagnoses, treatment monitoring,or recovery. In this paper, we explore the use of patient-generated data in clinical decisions in twocase studies. In the first case an App is used by patients in cancer rehabilitation to track their pain levels,frequency of specific events, and symptoms. Rather than requiring patients to remember past events at thetime of the visit, patients can use the App to register events as they happen. In the second case an App isused in conjunction with a set of digital medical devices to track a defined set of parameters in remote carefor patients with chronic conditions. Both Apps are designed with the aim to improve data accuracy andensure data quality. Our findings show that beside gaining data quality and accuracy, patient generateddata work as conversational cues in the context of the interaction between patients and health personnel.This finding is relevant as it shows that patient generated data need to be treated not just as facts but ascues or as an affordance for patient-provider dialogue. Based on this understanding, we identify threedesign implications for Apps for patient-generated data to support patient-provider dialogue.
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| 6. |
- Hattinger, Monika, 1969-, et al.
(författare)
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Real-time Analytics through Industrial Internet of Things : Lessons Learned from Data-driven Industry
- 2021
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Ingår i: Digital Innovation and Entrepreneurship (Amcis 2021). - : Association for Information Systems. - 9781733632584
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Konferensbidrag (refereegranskat)abstract
- Industrial Internet of Things (IIoT) and the increasing role of real-time analytics (RTA) data are currently transforming industry and shop floor work. Manufacturing industry needs to adapt accordingly and implement systems solutions for rich data analysis to achieve increased business value. However, a data-driven implementation of RTA applications, often launched as “Plug&Play” solutions, often lacks both insights into shop floor work and the alignment to user perspectives. This paper focuses both on the technical implementation and the deployment of RTA applications from a design-in-use perspective and therefore we argue for congruence between a data-driven and a user-driven approach. The main findings reveal how configuration and implementation of RTA applications interplay with users’ work operations that further extends current IIoT layered models by aligning architectural levels with user and business levels. The main contribution is presented as lessons learned to inform sustainable and innovative implementation for increased business value for data-driven industry.
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| 7. |
- Islind, Anna Sigridur, 1985-, et al.
(författare)
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Balancing Overreliance and Mistrust in Data-Driven Decision Making : A Critical View on the Role of Quantified Self in Diabetes Management
- 2022
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Ingår i: CEUR Workshop Proceedings. - : CEUR-WS. ; , s. 74-84
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- New self-care practices, such as self-management of chronic diseases, have emerged through mobile applications and devices, often designed, developed, and used outside the healthcare context. The development may lead to increased patient empowerment, shared decisionmaking and better communication, which is expected to benefit the care process. However, there are also potentially harmful effects related to safety, reliability, and security, with a corresponding need for understanding underlying algorithms and biases that may affect users. This calls for socio-technical perspectives, which take into consideration both the technological aspects of developing the app, as well as the social aspects of stakeholder involvement and collaborative design. In this paper, we describe the design and development of a mobile app for food nutrition information as part of diabetes self-management and critically discuss its implications for patients and designers. Our findings show that important learning aspects are connected to self-management, but there are also risks involved if too much or too little reliance is placed on the mobile app in the decision-making process. © 2022 Copyright for this paper by its authors.
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| 8. |
- Islind, Anna Sigridur, 1985-, et al.
(författare)
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Becoming a Designer : The value of sensitive design situations for teaching and learning ethical design and design theory
- 2022
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Ingår i: Scandinavian Journal of Information Systems. - : AIS Electronic Library. - 0905-0167 .- 1901-0990. ; :1, s. 1-36
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Tidskriftsartikel (refereegranskat)abstract
- Teaching and learning design theory are challenging tasks. To solely teach design theory through rules or codes of conduct, could be seen as a static way of approaching a complex phenomenon. In this paper, we argue for the importance of engagement in sensitive design situations, an approach that entails a process of de-emphasizing objectivity and promoting subjectivity through real-life sensitive cases to learn from, to foster reflectiveness for the future designers. This study aims to explore how sensitive design situations can be used when teaching and learning design theory. The research approach consists of a case study in a Nordic university, and a course in interaction design in a software engineering program. The sensitive design situation involves designing a digital artifact that can help children that have been diagnosed with cancer, cope with their cancer treatment. The main contribution is a teaching method for cultivating ethical design, which includes the application of sensitive design situations when teaching ethics to students. We illustrate that by forwarding three characteristics that can be used when teaching and learning ethical design through sensitive design situations.
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| 9. |
- Islind, Anna Sigridur, 1985-, et al.
(författare)
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Co-creating a Digital Symptom Tracker : An App as a Boundary Object in the Context of Pediatric Care
- 2022
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Ingår i: IFIP Advances in Information and Communication Technology. - Cham : Springer Science+Business Media B.V.. - 1868-4238. ; 660 IFIP, s. 79-93
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Tidskriftsartikel (refereegranskat)abstract
- The rise of digital health has provided new opportunities for patients to be more actively involved in their health and wellbeing. Despite the increased use of mobile health apps, there is still a lack of research on patient self-monitoring, and few studies have focused on children with chronic diseases and their parents. In this study, we draw from a case of the design of a mobile application – a symptom tracker – to continuously monitor children with periodic fever and the theoretical concept of boundary objects, to understand the role of digital artifacts in current healthcare practice. The research approach is qualitative, building on interview data with parents and experiences from the co-design process involving researchers, physicians, and other key stakeholders. The aim of the paper is to contribute with a better understanding of how an app for tracking children’s fever (a symptom tracker) can support the pediatricians as well as the parents and their children during the treatment process. The research question is: In what ways can a symptom tracker increase stakeholder involvement and how may this affect their relationship boundaries and collaborations? Our findings suggest that the symptom tracker can be seen as a boundary object that binds the children, parents, and pediatricians treating them by connecting the app to the context of both the patients and healthcare practice. We argue that such an object (symptom tracker) can function as external support and, thereby, an essential part of the treatment process.
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| 10. |
- Islind, Anna Sigridur, 1985-, et al.
(författare)
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Co-creation and Fine-Tuning of Boundary Resources in Small-Scale Platformization
- 2016
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Ingår i: Nordic Contributions in IS Research. - Cham : Springer. - 9783319435961 - 9783319435978 ; , s. 149-162
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Konferensbidrag (refereegranskat)abstract
- Most research on platform innovation studies the phenomena from a distance due to lack of access. This paper reports from within an action research case of platform development in a small-scale context. The case is based on a regional business initiative with the goal to establish an arena for mobile commerce and stimulate local industry growth. It was conducted in collaboration between researchers and third-party developers. The article shows how the initial phases of platformization are characterized by socio-technical arrangements, co-creation of boundary resources and intimate knowledge communication. The paper contributes to platform research by acknowledging a small-scale context for platform research. It further develops distributed tuning of boundary resources into an intimate fine-tuning process that we illustrate is valid for a small-scale context.
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