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- Bohm-Starke, Nina, et al.
(författare)
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Development of a core outcome set for treatment studies for provoked vestibulodynia.
- 2024
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Ingår i: Journal of Sexual Medicine. - : Oxford University Press. - 1743-6095 .- 1743-6109.
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: There is an inconsistency in treatment outcomes used in clinical trials for provoked vestibulodynia (PVD), which makes it impossible to compare the effects of different interventions.AIM: In this study, we completed the first step in creating a core outcome set (COS), defining what outcomes should be measured in clinical trials for PVD.METHODS: Identification of outcomes used in studies was done by extracting data from clinical trials in a recently published systematic review and via review of clinical trials for PVD registered on ClinicalTrials.gov. The COS process consisted of 2 rounds of Delphi surveys and a consensus meeting, during which the final COS was decided through a modified nominal group technique.OUTCOMES: Consensus on what outcomes to include in a COS for PVD.RESULTS: Forty scientific articles and 92 study protocols were reviewed for outcomes. Of those, 36 articles and 25 protocols were eligible, resulting in 402 outcomes, which were then categorized into 63 unique outcomes. Participants consisted of patients, relatives/partners of patients, health care professionals, and researchers. Out of 463 who registered for participation, 319 and 213 responded to the first and second surveys, respectively. The consensus meeting consisted of 18 members and resulted in 6 outcomes for the COS to be measured in all treatment trials regardless of intervention: insertional pain (nonsexual), insertional pain (sexual), provoked vulvar pain by pressure/contact, pain-related interference on one's life, pain interference on sexual life, and sexual function.CLINICAL IMPLICATIONS: Critical outcomes to be measured in clinical trials will allow for accurate comparison of outcomes across treatment interventions and provide solid treatment recommendations.STRENGTHS AND LIMITATIONS: The major strengths of the study are the adherence to methodological recommendations and the intentional focus on aspects of diversity of participating stakeholders (eg, status such as patients with lived experience and researchers, inclusiveness with respect to sexual identity), the latter of which will allow for broader application and relevance of the COS. Among the limitations of the study are the low rate of participants outside North America and Europe and the lower response rate (about 50%) for the second Delphi survey.CONCLUSION: In this international project, patients, health care professionals, and researchers have decided what critical outcomes are to be used in future clinical trials for PVD. Before the COS can be fully implemented, there is also a need to decide on how and preferably when the outcomes should be measured.
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| 2. |
- Kempe-Bergman, Matthis
(författare)
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Man talar om jämställd idrott : Om jämställdhetssamtal med manliga idrottsledare och förutsättningar för jämställd idrott
- 2014
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- As a result of a historically anchored relationship between the Swedish state and the sports movement, gender equality has been a prioritized area of interest in Swedish sports since the 1970s. Despite long-term work in this field, research indicates a notable gap between what is said and done at the central level and locally. Research also indicates attitude problems; gender equality is often seen as an insignificant or unnecessary issue.This thesis seeks to relate to and analyze this development. Answers are sought via male sport coaches and leaders. This approach is motivated by the fact that gender equality-related sport research in Sweden seldom focuses on men and masculinities. At the same time men have been overrepresented as power holders and decision makers, and gender equality has consequently been constructed as a women’s issue. By means of a post-structural discourse analysis, the aim is to investigate constructions of gender equality in interviews with 47 leaders selected from seven sports. How is gender equality constructed in terms of meanings of and standpoints in relation to the concept, and which discourses set the frames for these constructions? Which subject positions are articulated?Results show that gender equality is given many different meanings in the interviews and that these meanings are produced in line with three discourses: a women’s rights discourse (semi-essentialism, structural feminism, a quantitative and qualitative support for women’s sport), a gender critical discourse (constructionism, structural feminism, “women can”, deconstructions of femininities) and a liberal discourse (“sport for all”, individualism, gender neutrality). Furthermore, four subject positions are distinguished: the skeptic, the cynic, the women rightist and the norm critic position. When the results are related to the production of gender equality policies four aspects are discussed, 1) relations between discourses (the discourses generate contradictory interpretations of sport, subjectivity, gender and equality), 2) men and gender equality, 3) the relatively substantial lack of interest in gender equality in the interviews and 4) sport and pluralism.One conclusion in the thesis is that the women’s rights discourse dominates and that the liberal discourse is marginalized in the interviews. Further, it is suggested that an elaboration and a more frequent practice of the gender critical discourse could be useful in the development of the gender equality project in Swedish sport.
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