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- El-Hussuna, Alaa, et al.
(författare)
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Patient-Reported Outcome Measures in Colorectal Surgery: Construction of Core Measures Using Open-Source Research Method
- 2021
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Ingår i: Surgical Innovation. - : SAGE PUBLICATIONS INC. - 1553-3506 .- 1553-3514. ; 28:5, s. 560-566
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Tidskriftsartikel (refereegranskat)abstract
- Purpose. The primary aim of the study was to review the existing literature about patient-reported outcome measures (PROMs) in colorectal cancer and IBD. The secondary aim was to present a road map to develop a core outcome set via opinion gathering using social media. Method. This study is the first step of a three-step project aimed at constructing simple, applicable PROMs in colorectal surgery. This article was written in a collaborative manner with authors invited both through Twitter via the #OpenSourceResearch hashtag. The 5 most used PROMs were presented and discussed as slides/images on Twitter. Inputs from a wide spectrum of participants including researchers, surgeons, physicians, nurses, patients, and patients organizations were collected and analyzed. The final draft was emailed to all contributors and 6 patients representatives for proofreading and approval. Results. Five PROM sets were identified and discussed: EORTC QLQ-CR29, IBDQ short health questionnaire, EORTC QLQ-C30, ED-Q5-5L, and Short Form-36. There were 315 tweets posted by 50 tweeters with 1458 retweets. Awareness about PROMs was generally limited. The general psycho-physical well-being score (GPP) was suggested and discussed, and then a survey was conducted in which more than 2/3 of voters agreed that GPP covers the most important aspects in PROMs. Conclusion. Despite the limitations of this exploratory study, it offered a new method to conduct clinical research with opportunity to engage patients. The general psycho-physical well-being score suggested as simple, applicable PROMs to be eventually combined procedure-specific, disease-specific, or symptom-specific PROMs if needed.
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2. |
- Maeda, Justin
(författare)
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Brief presentation of the organs of Tanu
- 1969
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Annan publikation (populärvet., debatt m.m.)abstract
- The student organization Verdandi in co-operation with the Scandinavian Institute of African Studies (NAI) organized a special seminar on Tanzania for Verdandi members going to make a study visit in Tanzania in the summer 1969. During the ten meetings of the seminar various aspects of Tanzania's development - political, social, cultural and economic - were studied and discussed in detail. One of the topics discussed in this seminar was Tanzania's political system. In connection with this presentation, a detailed description of the organization and structure of Tanzania's ruling party (TANU) was given by Mr Justin Maeda, the leader of the seminar. We are pleased to present a modified summary of Mr Maeda's presentation which we consider to be of great value to people interested in Tanzania.
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