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- Mallander, Ove, et al.
(författare)
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Between academization and good craftmanship : The physiotherapists' ambition to professionalize in the light of the conductive education challenge
- 2011
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Ingår i: Scandinavian Journal of Disability Research. - : Taylor & Francis. - 1501-7419 .- 1745-3011. ; 13:3, s. 225-238
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Tidskriftsartikel (refereegranskat)abstract
- During the 1990s a debate took place in Sweden concerning Conductive Education. Proponents of this method focused their critique on the role and methods of physiotherapists but this profession was not active in the debate. Instead in the medical profession came out as defenders of habilitations services and methods. Departing from sociology of the professions our objective in this article is to analyse the physiotherapists´ silence in relation to the profession’s position and its relation to the medical profession. The analysis is based on data from interviews with members of habilitation teams, key persons and documents. The relative silence of physiotherapists is found to be related to both interprofessional factors (the subordination under the medical profession paired with a symbiotic relation based on common interests) and intraprofessional ones (the heterogeneity of the physiotherapist profession, their role in teamwork and a change from a specialist to a generalist orientation).
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- Mallander, Ove
(författare)
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De hjälper oss till rätta : normaliseringsarbete, självbestämmande och människor med psykisk utvecklingsstörning
- 1999
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- For people with learning disabilities care in institutions has been replaced by a life in community settings e.g. group homes, where a number of persons (4-5) are living with staff support. My case-studies cover three elderly and three more lately produced such units as well as a ward in a nursing home. Data were gathered through participant observations and semistructured interviews with staff and residents. The purpose was to describe and analyze group homes for people with learning disabilities as a practice of normalization. Special interest was paid to the understanding of how discretion was configured and used by staff and residents i.e. the issues of autonomy and independence in the residents everyday life. All units studied were human service organizations, loosely coupled with their superior levels, where daily activities were carried out by street-level bureaucrats with high auton-omy. Only concerning the basic personal decisions and the framework for col-lective decisions could some restrictions to this autonomy be seen. Two important factors limited the discretion: The wage-labor structure, with its progressive view of time, limited choices. The common uncertainty in hu-man service organizations concerning knowledge about clients and the ef-fects of used methods, resulted in used technologies and activities fol-lowing a process of imitation (mimetic isomorphism) where similar elements developed, e.g. contact days, kitchen weeks, etc. Successful methodologies became rationalized myths assuming the form of ceremonial procedures. A common feature was an organized bureaucratic control, but apart from that the control forms were disparate. In three units control was enforced before and after an activity, and then as a discrete (normative or ideologi-cal) control or as feedback. In the other three units, as well as in the nursing home, the control was more direct, e.g. intrusion, obstruction or avoidance i.e. during ongoing de-cision-making or actual activities. Although the weight of these forms of control must be judged in a particular context, the former tended to allow a larger degree of empowerment and development of adaptive behavior since it requires a form of communicative rationality. The latter run the risk of developing into strategic decision-making and objectifica-tion of the client. The two clus-ters of group homes did not differ in respect to age and sex distribution, nor substantially in the demand for care but markedly in three other respects. First, one cluster of units had fewer hierarchies and more close relations between staff and residents. Second, in the other cluster, medication using psychopharmacological drugs founded routines that strengthened an already existing time structure and created a gap be-tween staff and residents due to higher requests for control. Third, through contagious institutionalizing micro-level processes in the first cluster, the individualized practices of normalization used in one field, such as cleaning or shopping, spread to others such as cook-ing. The ambivalences frequently expressed by staff members had only a small or unclear correlation to how the degree of self-determination and inde-pendence were expressed. Instead they mainly reflected the basic ten-sion between instrumental-rational and everyday life modes of thinking
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- Mallander, Ove
(författare)
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Den problematiske kontaktpersonen
- 2011
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Ingår i: Intra. - : Stiftelsen Utvecklingsstörda i fokus. - 1102-4143. ; 21:4, s. 8-12
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Tidskriftsartikel (populärvet., debatt m.m.)
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- Mallander, Ove
(författare)
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Nära Vänskap? En analys av kontaktperson enligt LSS
- 2011
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Bok (övrigt vetenskapligt/konstnärligt)abstract
- Nära vänskap? är en bok om kontaktperson enligt lagen om stöd och service till vissa funktionshindrade (LSS). Den bygger på en riksomfattande undersökning samt närstudier av hur kontaktpersonsinstitutionen gestaltade sig i Malmö i början av 2000-talet. Författaren diskuterar en rad frågor med anknytning till kontaktpersonsinstitutionen, däribland: Kan man skapa vänskap på administrativ väg?
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- Mallander, Ove, et al.
(författare)
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Self-advocacy for people with intellectual disability in Sweden — organizational similarities and differences
- 2018
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Ingår i: Disability Studies Quarterly. - Columbus, OH : Ohio State University Libraries. - 1041-5718 .- 2159-8371. ; 38:1
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Tidskriftsartikel (refereegranskat)abstract
- Self-determination and the ability to express opinions and preferences are fundamental to all people. Self-advocacy (SA) among people with intellectual disability (PWID) presents opportunities for them to develop skills to have a say and influence changes in their local environments. The aim of this article is to explore and understand organizational similarities and differences of SA groups for PWID in Sweden by focusing their structures and activities. Within the theoretical framework of Resource-Dependency and New Institutional Perspectives, data from six Swedish SA groups belonging to two different national organizations, have been analyzed.Factors such as affinity and expectations show limited differences, while power distribution, rules and the role of support persons point to greater diversity. However, good relations within the local organizational field seems to be essential to maintain strong SA for PWID.
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- Mallander, Ove
(författare)
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Young adults with intellectual disabilities in Sweden : power, self-determination and self-organiz´sation in everyday life
- 2015
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Ingår i: Research and practice in intellectual and developmental disabilities. - : Routledge. - 2329-7018 .- 2329-7026. ; 2:2, s. 194-206
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Tidskriftsartikel (refereegranskat)abstract
- Sweden has been one of the countries at the forefront of policymaking for people with intellectual disabilities worldwide. Culminating in the 1994 Swedish LSS Act (Act Concerning Support and Service for Persons with Certain Functional Impairments), the aim of Swedish policy has been to ensure good living conditions and self-determination for people with intellectual disabilities. The primary purpose of this article was to explore Swedish research on the implementation of disability policies, and the extent to which the control that people with intellectual disabilities have over their everyday lives has changed as a result of these forward-looking policies. Swedish research that focuses on self-determination and was published within the last two decades was reviewed. Findings of the study have been drawn from 11 dissertations and 5 articles. As far as the author is aware, this is the first time these findings have been made available to a non-Swedish-speaking audience. Research reviewed included outcomes relating to selfdetermination arising from the process of deinstitutionalisation for residents of group homes and in individualised service planning. Results of the study have highlighted a gap between policy aims and service provision, which is similar to that described by Tideman (2000); and that people with intellectual disabilities have limited influence over the decisions that affect their lives. The final section of the article discusses possibilities for increased self-determination arising from the self-organisation by people with intellectual disabilities, and new directions in self-advocacy that are emerging in Sweden.
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| 10. |
- Mineur, Therése, 1970-, et al.
(författare)
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Self-advocacy in Sweden-an analysis of impact on daily life and identity of self-advocates with intellectual disability
- 2017
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Ingår i: Cogent Social Sciences. - Abingdon : Cogent OA. - 2331-1886. ; 3
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Tidskriftsartikel (refereegranskat)abstract
- Self-determination and the ability to express opinions and preferences are fundamental to all people. Some people with intellectual disability no longer accept a subordinated role as disabled and new self-advocacy groups have evolved. The aim of this study was to analyse the meaning and importance of engagement in a self-advocacy group for self-advocates daily life and identity. An interpretative abductive approach was used to analyse data from interviews with 26 self-advocates from six self-advocacy groups in Sweden in relation to the theoretical concepts; recognition, social capital, culture capital and self-determination. The key finding is that the vast majority of the participants experienced a changed self-perception, as more skilled, social and confident people, depending on group affiliation, their personal engagement and positions within the group. The conclusion is that self-advocacy is important for daily life and identity of people with intellectual disability. The self-organized movements indicate an important change in society and the results are of importance not only for the target group but for shaping future support and treatment from society of people with intellectual disability.
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