| 1. |
- Beukes, Eldré W., et al.
(författare)
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Development and technical functionality of an Internet-based intervention for tinnitus in the UK
- 2016
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Ingår i: Internet Interventions. - : Elsevier. - 2214-7829. ; 6, s. 6-15
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Tidskriftsartikel (refereegranskat)abstract
- PurposeCreative approaches to improve access to evidence-based tinnitus treatments are required. The purpose of this study was to develop an Internet-based cognitive behavioural therapy (iCBT) intervention, for those experiencing tinnitus in the United Kingdom (UK). Furthermore, it aimed, through technical functionality testing, to identify specific aspects of the iCBT that require improving.MethodAn innovative iCBT intervention for treating tinnitus in the UK has been developed using a cognitive-behavioural theoretical framework. This iCBT was evaluated by two user groups during this developmental phase. Initially, five expert reviews evaluated the intervention, prior to evaluation by a group of 29 adults experiencing significant levels of tinnitus distress. Both groups evaluated iCBT in an independent measures design, using a specifically designed satisfaction outcome measure.ResultsOverall, similar ratings were given by the expert reviewers and adults with tinnitus, showing a high level of satisfaction regarding the content, suitability, presentation, usability and exercises provided in the intervention. The iCBT intervention has been refined following technical functionality testing.ConclusionsRigorous testing of the developed iCBT intervention has been undertaken. These evaluations provide confidence that further clinical trials can commence in the UK, to assess the feasibility and effectiveness of this iCBT intervention for tinnitus.
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| 2. |
- Beukes, E. W., et al.
(författare)
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Positive experiences related to living with tinnitus : A cross-sectional survey
- 2018
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Ingår i: Clinical Otolaryngology. - : Wiley-Blackwell Publishing Inc.. - 1749-4478 .- 1365-2273. ; 43:2, s. 489-495
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Tidskriftsartikel (refereegranskat)abstract
- ObjectiveThe aim of this study was to gain insights related to positive experiences reported by adults with tinnitus living in the United Kingdom.DesignA cross‐sectional survey design was used in a sample of adults with tinnitus who were interested in undertaking an Internet‐based intervention for tinnitus.SettingThe study was UK wide and data collection was online.ParticipantsParticipants consisted of 240 adults (137 males, 103 females), with an average age of 48.16 years and average tinnitus duration of 11.52 years (SD: 11.88).Main outcome measuresTinnitus severity was measured by means of the Tinnitus Functional Index. To evaluate the secondary effects of tinnitus, the Insomnia Severity Index, the Hearing Handicap Inventory for Adults‐Screening Version and the Cognitive Failures Questionnaires were administered. Positive experiences related to tinnitus were explored using an open‐ended question format.ResultsAround a third of participants (32.5%) reported positive experiences associated with tinnitus. The number of positive responses ranged from one to eight responses per participant, although there were fewer participants with more than one positive response. The predominant themes concerned for (i) coping; (ii) personal development; (iii) support, and to a lesser extent (iv) outlook. Younger participants, those with a lower hearing disability and those with fewer cognitive failures were more likely to report positive experiences associated with having tinnitus.ConclusionsThis study has identified that personal development and a positive outlook are possible despite experiencing tinnitus. Ways to facilitate positive experiences related to tinnitus should be promoted, as these may reduce the negative consequences associated with tinnitus. The most prevalent positive theme was the ability to cope with tinnitus. Positive experiences were also drawn from having clinical and other support networks. This highlights the importance of providing tinnitus interventions that can assist people in coping with tinnitus, particularly to those less likely to relate tinnitus to any positive experiences. Those most likely to be helped include those who are older with greater cognitive difficulties and a greater hearing disability.
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| 3. |
- C. Manchaiah, Vinaya K., 1983-
(författare)
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Evaluating the process of change : Studies on patient journey, hearing disability acceptance and stages-of-change
- 2013
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Person with hearing impairment (PHI) and their Communication partners (CPs) have a range of experiences and milestones before, during and after their audiological assessment and/or rehabilitation sessions. The term ‘patient journey’ refers to understanding the experiences and the processes the patient goes through during the course of the disease and the treatment regime. The aims of the current thesis were: (1) to further develop patient journey models of individuals with gradual-onset hearing impairment and CPs by taking their views into consideration; (2) to develop the patient journey model for PHI of sudden-onset; (3) to develop a self-reported measure of hearing disability acceptance and to study its construct and concurrent validity; (4) to investigate the health behaviour change characteristics of people noticing hearing difficulties using the stages-of-change model. Papers I (n=32) and III (n=9) were aimed at further developing the journey model of PHI and their CPs proposed by the Ida Institute. Both studies employed qualitative methods (i.e., focus groups and interviews for data collection and thematic analysis for data analysis), and defined the models based on the perspectives of PHI and CPs both of which had seven main phases. These data were compared with the professionals’ perspectives of the journey as reported in the Ida Institute model which had six main phases. Our studies highlight new phases (i.e., self-evaluation in PHI journey and adaptation in CP journey) and also various commonalities and differences in the perspectives expressed by professionals and patients.Paper II included a pilot study to explore the patient journey of sudden-onset acquired hearing impairment from both professionals (n=16) and patients (n=4) perspectives. Both identified all the six main phases, which include: awareness; movement; diagnostics; rehabilitation; self-evaluation; and resolution. The pre-awareness phase may hinder the realisation of hearing loss in persons with gradual onset hearing loss, whereas it is far more straightforward in persons with sudden-onset due to its nature of onset.Papers IV and V employed a cross-sectional design (n=90). Paper IV was aimed at developing a Hearing Disability Acceptance Questionnaire (HDAQ), and to study its construct and concurrent validity. Results suggested that the HDAQ has a two factor structure which explains 75.7% of the variance and had good internal consistency (Cronbach’s alpha of 0.86). Also, the scale had good concurrent validity in relation to self-reported hearing disability, self-reported anxiety and depression and readiness to change measures. Paper V was aimed at understanding the stages-of-change in adults with hearing disability using the University of Rhode Island Change Assessment Scale. As predicted a high percentage of participants (over 90%) were in the contemplation and preparation stages, supporting the stages-of-change model.Overall, the papers presented in this thesis may contribute to a better understanding of process of change through hearing impairment in PHI and their CPs.
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| 4. |
- C. Manchaiah, Vinaya K., 1983-
(författare)
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Health behaviour change in hearing healthcare: A discussion paper
- 2012
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Ingår i: Audiology Research. - : Page One Publishing Pte Ltd. - 2039-4330 .- 2039-4349. ; 2:4, s. 12-16
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Tidskriftsartikel (refereegranskat)abstract
- Health behavior change (HBC) refers to facilitating changes to habits and/or behavior related to health. In healthcare practice, it is quite common that the interactions between practitioner and patient involve conversations related to HBC. This could be mainly in relation to the practitioner trying to directly persuade the patients to make some changes in their health behavior. However, the patients may not be motivated to do so as they do not see this change as important. For this reason, direct persuasion may result in a breakdown of communication. In such instances, alternative approaches and means of indirect persuasion, such as empowering the patient and their family members, could be helpful. Furthermore, there are several models and/or theories proposed which explain the health behavior and also provide a structured framework for health behavior change. Many such models/approaches have been proven effective in facilitating HBC and health promotion in areas such as cessation of smoking, weight loss and so on. This paper provides an overview of main models/theories related to HBC and some insights into how these models/approaches could be adapted to facilitate behavior change in hearing healthcare, mainly in relation to: i) hearing help-seeking and hearing-aid uptake; and ii) hearing conservation in relation to music-induced hearing loss (MIHL). In addition, elements of current research related to this area and future directions are highlighted.
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| 5. |
- C. Manchaiah, Vinaya K., 1983-, et al.
(författare)
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Information about the prognosis given to sudden-sensorineural hearing loss patients: Implications to 'patient journey' process
- 2012
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Ingår i: Audiological Medicine. - London, UK : Informa Healthcare. - 1651-386X .- 1651-3835. ; 10:3, s. 109-113
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Tidskriftsartikel (refereegranskat)abstract
- Objective: The aim of this short paper is to highlight the implications of information provision about prognosis given to sudden sensorineural hearing loss (SSNHL) patients. Method: Semi-structured interviews were conducted with four SSNHL patients to develop the patient journey model that is published in our previous paper (12). In this study the implications from general, ethical and legal perspectives about the information provision were considered (i.e. discussion with experts and the use of relevant literature). Results: Three out of four patients interviewed reported that their doctors (both general practitioners and ENT specialists) gave false hopes about prognosis. From the preliminary data it appears that there is considerable variability in the views expressed by patients about preference in information provision. However, this issue needs consideration as the information provided by professionals may have a serious impact on service provision and outcome. Conclusions: It is our view that even though, in some instances, it may appear that false hope provides short-term psychological benefit to patients, providing full and honest information is necessary for general (i.e. to facilitate patient journey process), ethical and legal reasons.
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| 6. |
- C. Manchaiah, Vinaya K., 1983-, et al.
(författare)
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Life consequences and positive experiences reported by communication partners of person with hearing impairment: A pilot study
- 2013
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Ingår i: Speech, Language and Hearing. ; 16:1, s. 1-7
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to obtain insights into the life consequences and positive experiences reported by the communication partners (CPs) of person with hearing impairment (PHI). Open-ended questionnaires and semi-structured interviews were conducted with nine CPs who were recruited through the Swansea hearing impaired support group. Data were analyzed using thematic analysis. The results identified a number of life consequences and positive experiences of CPs and PHIs as reported by the CPs. The main life consequences experienced by both CPs and PHIs were related to communication and psychological aspects. The main positive experiences for the CPs were related to personal development and improved relationships and for PHIs were related to the use of hearing loss for self-advantage. Surprisingly, most of the participants were able to identify at least one positive experience. The study also suggested that open-ended questionnaires were a good way to understand life consequences and positive experiences by CPs and such responses can be further elicited by providing some prompts through a semi-structured interview. The study method and results could be useful in involving CPs in audiological enablement/rehabilitation sessions. These findings add to the growing literature that reported positive experiences canbe used during counseling sessions, to motivate the PHIs and their CPs and to boost their positive morale.
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| 7. |
- C. Manchaiah, Vinaya K., 1983-, et al.
(författare)
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Models to represent communication partners within the social networks of people with hearing impairment
- 2011
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Ingår i: Audiological Medicine. - : Informa UK Limited. - 1651-386X .- 1651-3835. ; 9:3, s. 103-109
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Tidskriftsartikel (refereegranskat)abstract
- Objective: People with hearing impairment have relatively smaller social networks than their normally hearing peers, and may experience more feelings of loneliness. The effects on the person with hearing impairment (PHI) can also impact on their communication partners (CPs). This report discusses the currently available model representing the CPs within the social network context of the PHI and proposes a new model. Study design: The ‘Communication Rings’ proposed and developed by the Ida Institute is discussed. We believe that this model is too simple to represent the complexity and dynamic nature of the CP's role in the life of the PHI and highlights the need for a new model. Results: We suggest that the model ‘Communication World’ based on the analogy of the solar system, may help overcome some of the problems identified. Clinical examples of how to apply this model and its usefulness in rehabilitation are presented. Conclusions: The expanded model could provide novel information, and provision of a visual representation will help CPs understand the problems of the PHI.
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| 8. |
- C. Manchaiah, Vinaya K., 1983-, et al.
(författare)
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Perspectives in defining ‘hearing loss’ and its consequences
- 2013
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Ingår i: Hearing, Balance and Communication.
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Tidskriftsartikel (refereegranskat)abstract
- Objective: This discussion paper aims to highlight factors that may be important in defining hearing loss and its consequences and to present different perspectives based on various models of disability. Method: Relevant literature was reviewed to develop the discussion. Results: Hearing is a complex function that has both cognitive and emotional aspects. A person with hearing loss may have consequences in the physical, mental and social domains. Hearing loss in the context of clinical audiology is currently defined based on type of pathology and severity. However, evidence from both clinical findings and research suggest that this may not cover all the aspects of ‘hearing loss’ as a disability. Conclusion: Defining and describing hearing loss and its consequences with a holistic approach has some clinical value particularly in the context of audiological enablement/rehabilitation.
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| 9. |
- C. Manchaiah, Vinaya K., 1983-, et al.
(författare)
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Stages of change in adults noticing hearing difficulties but not using hearing aids
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Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
- Objective: The aim of the current study was to investigate health behaviour change characteristics based on the transtheoretical stages-of-change model in adults noticing hearing difficulties but not using hearing aids using the University of Rhode Island Change Assessment (URICA) scale.Design: The study employed a cross-sectional design.Study Sample: The study was conducted in United Kingdom and 90 pre-clinical participants completed URICA as well as measures of self-reported hearing disability, self-reported anxiety and depression, self-reported hearing disability acceptance and also provided some demographic details online.Results: As predicted, the results indicate that a high percentage of participants (over 90%) were in the contemplation and preparation stages. This was in contrast to a previous study, which included participants attending audiology clinic, where most participants (about 80%) were in the action stage (Laplante-Lévesque et al., 2013). In addition, statistically significant differences were observed in terms of readiness to change composite and committed action composite between the study samples in the current and the previous study.Conclusions: Study results support the stages-of-change model. In addition, implications of the current study and areas for future research are discussed.
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| 10. |
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