| 1. |
- Margot-Cattin, Isabel, et al.
(författare)
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Development of a Questionnaire to Evaluate Out-of-Home Participation for People With Dementia
- 2019
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Ingår i: American Journal of Occupational Therapy. - : American Occupational Therapy Association. - 0272-9490 .- 1943-7676. ; 73:1, s. 7301205030p1-7301205030p10
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE. We describe the development of a questionnaire, Participation in Activities and Places Outside Home (ACT-OUT). for older adults with cognitive impairment and align it to people with mild- to moderate-stage dementia. METHOD. ACT-OUT was developed in a cross-cultural collaboration in combination with three rounds of cognitive interviews in Switzerland with 26 older adults without cognitive impairment and five older adults with dementia. Qualitative data from the interviews were analyzed using a constant comparison approach. RESULTS. The final ACT-OUT Version 1.0 consists of three parts: (1) questions targeting places older adults visit: (2) questions on aspects influencing participation , such as transportation. familiarity, and risk perception: and (3) questions on perception of self. CONCLUSION. The development of an instrument such as ACT-OUT is more a cyclical than a linear process. This study is a first step toward a more systematic evaluation of out-of-home participation among older adults with and without dementia.
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| 2. |
- Margot-Cattin, Isabel, et al.
(författare)
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Familiarity and participation outside home for persons living with dementia
- 2021
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Ingår i: Dementia. - : Sage Publications. - 1471-3012 .- 1741-2684. ; 20:7, s. 2526-2541
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Tidskriftsartikel (refereegranskat)abstract
- Familiarity is important for persons living with dementia who participate outside home. When familiarity is challenged, such participation may be difficult. This ethnographic study clarifies how familiarity is experienced by persons with dementia in performing activities and visiting places, and how familiarity contributes to maintaining participation outside home. Nine participants were interviewed in their home and while visiting familiar places. Data were content analysed using a constant comparative method. The findings suggest that persons with dementia experience familiarity as continuous and whole, through occurrences that support personal territories. Landmarks and objects enhance the experience of familiarity. Familiarity that is continuously challenged may render participation outside home fragile.
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| 3. |
- Margot-Cattin, Isabel
(författare)
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Participation in everyday occupations and situations outside home for older adults living with and without dementia : places, familiarity and risks
- 2021
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Participation in occupations and places outside the home has been related to health and social benefits as well as offering challenging and risks for older adults living with and without dementia, yet little is known about how this participation is experienced, also considering the places visited and the occupations performed. Places are central in a transactional and occupational perspective to understand how visiting, maintaining and abandoning them affects their participation outside the home. Acknowledging the complexity and interrelatedness properties of participation, with the embodiment of places by the occupation while it is embedded in the place, provides a new way of examining participation. Thus, the overarching aim of the fours studies was to explore and provide new knowledge on participation in places outside the home for older adults with mild-to-moderate dementia as compared with older adults without dementia, as well as developing an understanding of the transactions between the persons and the places, and how places outside home are associated with perceived participation. To attain this aim, the Participation in Activities and Places Outside Home (ACT-OUT) questionnaire was developed in Study I, as no tool existed that combined occupations and places. ACT-OUT was revised and aligned using cognitive interviews with 26 older adults living without dementia and five older adults living with dementia. ACT-OUT was then used in Study II, together with the occupational gap questionnaire OGQ, to evaluate stability and change in places visited outside home, and associations between number of places currently visited and perceived occupational gaps, and in Study III to consider factors, e.g. perceived risks, that potentially affected perceived participation outside the home with 35 older adults living with dementia, in comparison with 35 older adults living without dementia. Study IV used qualitative, mobile interviews to explore familiarity outside home as experienced by nine older adults living with dementia. Findings (Study II) showed that participants living with dementia visited places to a lesser extent than the comparison group. Social and cultural places as well as places for recreation and physical activity tended to be abandoned, in contrast to places for medical care. Overall, they maintained less places and abandoned more places than the group of comparison, and participation in places was associated with occupational gaps for those living without dementia. In Study III, number of places visited, were associated with the perception of participation outside home, but only for the group of persons living without dementia, while risks of falling and for getting lost were associated for those living with dementia. Findings in Study IV showed that familiarity was experienced in a continuous way, as a whole and in repeated occurrences in personal territories that encompassed diverse places and occupations. This thesis contributed new knowledge about how visiting places contributed to our understanding of the conception of participation outside the home of older adults living with and without dementia, including how perceived risks would influence participation. Familiarity was seen as an overarching concept that links place with participation outside the home, as personal territories including places support participation outside the home for older adults living with dementia.
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| 4. |
- Margot-Cattin, Isabel, et al.
(författare)
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Visiting Out-of-Home Places when Living with Dementia
- 2021
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Ingår i: Canadian Journal of Occupational Therapy / Revue Canadienne d`Ergotèrapie. - : Sage Publications. - 0008-4174. ; 88:2, s. 131-141
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Tidskriftsartikel (refereegranskat)abstract
- Background. Persons living with dementia face a reduction of their life space outside home and disengagement from participation, linked to places visited. Purpose. This study explored stability and change in perceived participation in places visited outside home and its relationship with occupational gaps among older adults. Method. Older adults living with (n = 35) or without (n = 35) dementia were interviewed using the Participation in ACTivities and Places OUTside Home (ACT-OUT) questionnaire and the Occupational Gaps Questionnaire (OGQ). Data analysis used descriptive and inferential statistics. Findings. The group of people living with dementia reported significantly fewer places (p < .001) visited than the comparison group and having abandoned more places visited (p < .001) than the comparison group. The number of occupational gaps was significantly different between groups (p < .001). Implications. Participation outside home is not influenced in a uniform and straightforward way for persons living with dementia; the shrinking world effect appears differently in relation to types of places.
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| 5. |
- Thalén, Liv, et al.
(författare)
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Out-of-home participation among people living with dementia : A study in four countries
- 2022
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Ingår i: Dementia. - : SAGE Publications. - 1471-3012 .- 1741-2684. ; 21:5
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Tidskriftsartikel (refereegranskat)abstract
- Social participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. A cross-sectional design was used to gather self-reported experiences concerning out-of-home participation among people with mild stage dementia living in Canada (n = 29), Sweden (n = 35), Switzerland (n = 35) and the UK (n = 64). Interviews were conducted using the Participation in ACTivities and places OUTside the Home for older adults (ACT-OUT) instrument. Participants still visited 16 (Median) places out of a possible total of 24, and they had abandoned 5 (Median) places. Neighbourhood was the place most participants still visited, whereas 50% of them had stopped going to a Sports facility, with no significant differences between country samples regarding how many participants had abandoned that place (Fisher's exact test, p > 0.01). There were significant differences between country samples in the frequency of present participation and abandonment of the Hospital, Dentist's office, Cemetery, Garden, and Forest (Fisher's exact test, all p < 0.01). Although the participants still visited a variety of places, they had stopped going to places previously visited, which indicates reductions in participation, posing an inherent risk to well-being. The similarities and differences across samples from the four countries suggest that healthcare services and access to public transport may contribute to the complex interactional process of out-of-home participation for people living with dementia. The findings highlight the need for initiatives targeting specific types of places to support continued participation in society, especially places at a higher risk of abandonment such as places for recreation and physical activity.
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| 6. |
- Thalén, Liv, et al.
(författare)
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Out-of-home participation among people living with dementia : A study in four countries
- 2022
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Ingår i: Dementia. - : Sage Publications. - 1471-3012 .- 1741-2684. ; 21:5, s. 1636-1652
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Tidskriftsartikel (refereegranskat)abstract
- Social participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. A cross-sectional design was used to gather self-reported experiences concerning out-of-home participation among people with mild stage dementia living in Canada (n = 29), Sweden (n = 35), Switzerland (n = 35) and the UK (n = 64). Interviews were conducted using the Participation in ACTivities and places OUTside the Home for older adults (ACT-OUT) instrument. Participants still visited 16 (Median) places out of a possible total of 24, and they had abandoned 5 (Median) places. Neighbourhood was the place most participants still visited, whereas 50% of them had stopped going to a Sports facility, with no significant differences between country samples regarding how many participants had abandoned that place (Fisher’s exact test, p > 0.01). There were significant differences between country samples in the frequency of present participation and abandonment of the Hospital, Dentist’s office, Cemetery, Garden, and Forest (Fisher’s exact test, all p < 0.01). Although the participants still visited a variety of places, they had stopped going to places previously visited, which indicates reductions in participation, posing an inherent risk to well-being. The similarities and differences across samples from the four countries suggest that healthcare services and access to public transport may contribute to the complex interactional process of out-of-home participation for people living with dementia. The findings highlight the need for initiatives targeting specific types of places to support continued participation in society, especially places at a higher risk of abandonment such as places for recreation and physical activity.
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| 7. |
- van Biljon, Hester, et al.
(författare)
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The health equity characteristics of research exploring the unmet community mobility needs of older adults : a scoping review
- 2022
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Ingår i: BMC Geriatrics. - : BioMed Central (BMC). - 1471-2318. ; 22:1
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Forskningsöversikt (refereegranskat)abstract
- Background Unmet community mobility needs of older adults, published since the announcement of the UN sustainable development goals was synthesised to describe the health equity characteristics of research identifying unmet community mobility needs of older adults. Methods Searches were conducted in March and April 2020, 2275 articles were screened and 100 identified for data extraction. Results Findings showed underrepresentation of articles considering rural settings [9%] and originating in the global South [14%]. Gender, disability, education, and transport / driving were identified as key health equity characteristics and only 10 articles provided detail on all four of these. External factors inhibiting community mobility included built environments, service availability, and societal attitudes. Internal factors included finances, fear and apprehension, and functional limitations. Conclusions The need for standardised reporting of participant characteristics in the community mobility of older adults was highlighted. These characteristics are required by research consumers to judge equity dimensions, and the extent to which findings represent minority or marginalised groups. 15 after the UN pledge to reduce inequalities, peer reviewed primary research does not reflect a global drive to end discrimination, exclusion and reduce the inequalities and vulnerabilities that leave people behind.
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