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- Brady, Geraldine, et al.
(författare)
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Connecting a sociology of childhood perspective with the study of child health, illness and wellbeing : introduction
- 2015
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Ingår i: Sociology of Health and Illness. - : Wiley. - 0141-9889 .- 1467-9566. ; 37:2, s. 173-183
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Tidskriftsartikel (refereegranskat)abstract
- In the last decades we have seen a growing interest in research into children's own experiences and understandings of health and illness. This development, we would argue, is much stimulated by the sociology of childhood which has drawn our attention to how children as a social group are placed and perceived within the structure of society, and within inter-generational relations, as well as how children are social agents and co-constructors of their social world. Drawing on this tradition, we here address some cross-cutting themes that we think are important to further the study of child health: situating children within health policy, drawing attention to practices around children's health and well-being and a focus on children as health actors. The paper contributes to a critical analysis of child health policy and notions of child health and normality, pointing to theoretical and empirical research potential for the sociology of children's health and illness.
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| 2. |
- Bruno de Sousa, Andréa, 1967-
(författare)
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A parental perspective on child chronic kidney disease : The lived experience of caregiving in Portugal
- 2021
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Paediatric chronic kidney disease (CKD) requires complex care and radically transforms the everyday life of the child’s family. This thesis examines parents’ lived experience of dealing with a child’s CKD; how social and economic circumstances impact on families’ opportunities to manage the care; and how parents view and practise their parenthood. The thesis takes inspiration from the phenomenology of practice, material culture studies and parenting culture studies. The research is based on ethnographic fieldwork in a paediatric hospital in Portugal and in the participating families’ home environments. Thematic analysis was used to analyse the empirical material. The first study addresses the ethnographic methods used in the study and the challenges involved in examining parents’ lived experiences of managing caregiving. It demonstrates that the challenges involved in carrying out fieldwork among families in crisis can function as openings for discovering the multifaceted and complicated realities the families encounter. The second study shows that parents use all the available financial and human resources to manage the technically demanding care and create normality. It also shows that, while parents experience becoming confined and close relationships as strained, the mundane practices and social relations of care bring hope and meaning to the family. The third study demonstrates that good parenthood for the participants means focusing on the child’s survival and well-being, and requires constant vigilance and readjustments, what I term “readiness parenting”. This research contributes to creating knowledge about the complexity of caring for a chronically ill child, the relational and material aspects of caregiving and how norms about responsible parenthood are negotiated. It also demonstrates the need for qualitative research methods to understand parents’ lived experiences and create knowledge about their meaning- making, needs and competencies.
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| 3. |
- Claeson, Lisbeth, 1946-
(författare)
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Tid och existentiellt meningsskapande : Kvinnors berättelser om sitt liv med allvarlig sjukdom
- 2010
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Being affected by a serious or life-threatening illness implies an existentially changed situation that is accompanied by a number of questions about the illness itself, consequences of the illness in an everyday context and implications for the future. The purpose of this dissertation is to examine people’s meaning-making when they are affected by a serious illness and to determine how the illness acquires meaning in the context of their lives. The dissertation thus deals with what can be referred to as existential meaning-making. A hermeneutical approach was adopted, drawing more specifically on Paul Ricoeur’s narrative theory that emphasises the importance of different dimensions of time and memory in the understanding of narratives. An empirical study was carried out of illness narratives collected in research interviews with six women who had been diagnosed with serious illnesses, such as cancer, stroke and heart attack. The analysis reveals that the discovery of the illness and the period following was characterized by chaos and a lack of time perspective, feelings of lack of freedom and thoughts about death, but also feelings of responsibility towards the family. Experiences of the health services were also important in accounts of this early period, particularly wishes for more empathic encounters with the professionals. In the women’s accounts of the long term living with the illness, death continues to emerge as a back drop to their everyday experiences of the illness, but gradually more as confronting the problem of death rather than giving up life. Over time, relationships to significant others and the importance of everyday life also constitute increasingly important themes. In their expectations for the future, the women account for some experiences that have been important in creating a sense of hope and heightened vitality, and thus a new ‘wholeness’, such as being close to nature as well as their religious or spiritual experiences. These results are discussed in terms of how memories of significant events or places play an important role in existential meaning-making, and also how reflections on these memories can be seen as a process of existential ‘learning’.
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| 4. |
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Främlingskap och tolkning : en vänbok till Charles Westin
- 2008
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Samlingsverk (redaktörskap) (övrigt vetenskapligt/konstnärligt)abstract
- Boken är en vänbok till Charles Westin. Bokens syfte är att forskarkolleger presenterar aktuella studier om migration, pedagogik, skrivandets konst, tolkning och främlingskap – områden där Charles själv lämnat viktiga bidrag. Vår förhoppning är att boken ska ge inspiration, kunskap och glädje i den generösa och medmänskliga anda som präglat Charles eget arbete. Bokens titel lyfter fram två begrepp som framstår som särskilt centrala i Charles verk: främlingskap och tolkning. Det sistnämnda knyter an till Charles ursprungliga metodologiska hemvist i den hermeneutiska tolkningstraditionen inom gruppen för Invandrings- och minoritetsforskning på Pedagogiska institutionen vid Stockholms universitet. Begreppet främlingskap syftar på Charles särskilda intresse för människor som faller utanför det bekanta och välkända som vi tenderar att uppfatta som normalt. Det kan gälla immigranter från en annan kultur, människor som är främlingar i sitt eget samhälle därför att de kategoriseras som romer eller samer eller personer som är beredda att tortera andra och därmed framstår som omöjliga att förstå.
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| 5. |
- Georgsson Öhman, Susanne, et al.
(författare)
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Pregnant women's responses to information about an increased risk of carrying a baby with Down syndrome
- 2006
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Ingår i: Birth. - : Wiley. - 0730-7659 .- 1523-536X. ; 33:1, s. 64-73
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Fetal screening for Down syndrome by an ultrasound examination, including measurement of fetal nuchal translucency, at 12 to14 weeks' gestation is presently being evaluated in a Swedish randomized controlled trial. Women at high risk were offered an amniocentesis to obtain a definite diagnosis. The aim of this study was to explore women's reactions and responses to information about being at high risk after the scan, with a special focus on reactions to a false positive test. METHOD: Interviews were conducted with 24 women within 1 week after the scan, in midpregnancy, and 2 months after the birth. The interviews were analyzed qualitatively. Down syndrome was confirmed in 4 women, who chose to terminate the pregnancy. The remaining 20 women had a false positive test. RESULTS: For the majority, the risk information caused strong reactions of anxiety and worries about the future. A typical way for women to cope was to "withhold" the pregnancy, to take a "timeout," and try to live as if they were not pregnant any longer. Some weeks later, when the women received normal results from the chromosome analysis, they resumed being pregnant. Six women ages more than 35 years who had a risk score lower than their age-related risk did not express similarly strong reactions. Two months after the birth of a healthy baby, most stated they would undergo the same procedure in a subsequent pregnancy. One woman still suffered from the experience when interviewed at 2 months after the birth, and another said she regretted participating in the fetal screening program. CONCLUSIONS: A false positive test of fetal screening for Down syndrome by ultrasound examination may cause strong reactions of anxiety and even rejection of the pregnancy. The prevalence of such reactions and possible long-term effects need further investigation.
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| 8. |
- Löfberg, Cecilia, 1963-
(författare)
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Möjligheternas arena? : Barns och ungas samtal om tjejer, killar, känslor och sexualitet på en virtuell arena
- 2008
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Computer mediated communication (CMC) has created new arenas for social interaction in contemporary society, also for children and young people. This raises questions about how these arenas are used by children and young people. Drawing on the sociology of childhood, this thesis addresses children’s social interaction on a website designed for young people, where issues of masculinity, femininity, emotions and sexuality are discussed. The general aim is to explore the construction of meaning in relation to these issues; more specifically patterns of online interaction and the ways children express and share ideas and values in the “now” of the interpretive communities on the website, and at the same time deal with ideas, norms and values mediated through society at large. In three discussion groups on the website, 143 discussions initiated by virtual children aged 12 to 15 followed by discussions with several virtual persons at the same age and older were collected and analysed. Three patterns of interaction were identified according to the degrees of ‘horizontal’ versus ‘vertical’ communication: ‘Playful interaction’ is characterised by a horizontal communication where curiosity and experiences are shared between virtual children in the same age ‘Corrective interaction’ is characterised by vertical interaction and more explicit advise and instructions from participants in different ages, drawing on arguments from the ‘adult world’. In ‘Orienting interaction’ there are aspects of both horizontal and vertical interaction as older or adult virtual participants express their points of view and experiences as it were to strive for a shared understanding. These patterns of interaction, and the ways they are related to the different topics in the discussion groups, are discussed in terms of the on-going positioning of children as a ‘social group’ and the construction of gender, generation and cultural notions of children as innocent or knowing.
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| 9. |
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Medical Technologies and the Life World : The Social Construction of Normality
- 2007
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Samlingsverk (redaktörskap) (övrigt vetenskapligt/konstnärligt)abstract
- Although the use of new health technologies in healthcare and medicine is generally seen as beneficial, there has been little analysis of the impact of such technologies on people’s lives and understandings of health and illness. This ground-breaking book explores how new technologies not only provide hope for cure and well-being, but also introduce new ethical dilemmas and raise questions about the 'natural' body.Focusing on the ways new health technologies intervene into our lives and affect our ideas about normalcy, the body and identity, Medical Technologies and the Life World explores:how new health technologies are understood by lay people and patientshow the outcomes of these technologies are communicated in various clinical settingshow these technologies can alter our notions of health and illness and create ‘new illness’.Written by authors with differing backgrounds in phenomenology, social psychology, social anthropology, communication studies and the nursing sciences, this sensational text is essential reading for students and academics of medical sociology, health and allied studies, and anyone with an interest in new health technologies.
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