| 1. |
- Aass, Lisbeth Kjelsrud, et al.
(författare)
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Family support and quality of community mental health care : Perspectives from families living with mental illness
- 2022
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Ingår i: Journal of Clinical Nursing. - : John Wiley & Sons. - 0962-1067 .- 1365-2702. ; 31:7-8, s. 935-948
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Tidskriftsartikel (refereegranskat)abstract
- Aim and objectives: Describe patients' and family members' perceptions of family support from nurses and other mental healthcare professionals, and quality of care in community mental healthcare service. Further, compare the perceptions of patients and family members.Background: While patients value family involvement, family members feel unprepared and lack the necessary skills to be supportive. Since healthcare professionals predominantly focus on patients, they may fail to understand the complex needs of families. Family perceived support and quality of community mental health care may vary across patients and family members.Design and methods: Cross-sectional study with patients suffering from mental illness and family members in community mental healthcare services in Norway. Altogether 86 participants, of whom 33 patients and 33 family members had a family relationship-paired samples. Participants filled in the translated version of the Iceland Family Perceived Support Questionnaire (FPSQ-N) and Quality in Psychiatric Care-Community Out-Patient (QPC-COP) and Community Out-Patient Next of Kin (QPC-COPNK). STROBE checklist was used.Results: Family members scored family perceived support and quality of community mental health care lower than patients. Family members feel the loss of support. Patient and family members found the Patient-healthcare professionals' relationship to be of high quality, while family members gave low score to being respected and invited to take part in care by nurses and other mental healthcare professionals.Conclusion: Family members' unmet need of support highlights the need for nurses and other community mental healthcare professionals to assess complex family needs and to intervene. Barriers to collaboration exist, and family members need to be respected and invited into community mental health care. Relevance to clinical practice Contributes knowledge of how to meet the family's needs and provides a basis for further care and treatment development in similar contexts nationally and internationally.
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| 2. |
- Aass, Lisbeth Kjelsrud, et al.
(författare)
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It's Not a Race, It's a Marathon! : Families Living with a Young Adult Suffering from Mental Illness
- 2021
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Ingår i: Issues in Mental Health Nursing. - : Taylor & Francis. - 0161-2840 .- 1096-4673. ; 42:1, s. 15-23
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study is to explore families' perceptions of everyday life when living with a young adult suffering from mental illness. Findings include: 1) Families balance between letting go and enabling the young adult to become independent while remaining close to help him/her complete education, work and have a social life. 2) Young adults try to deal with symptoms of mental illness by themselves and not be a burden, although longing for family members to understand them and the situation. 3) Healthcare professionals still hold back information although young adults have consented to giving family members insight.
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| 3. |
- Aass, Lisbeth Kjelsrud, et al.
(författare)
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Young Adults and Their Families Living With Mental Illness : Evaluation of the Usefulness of Family-Centered Support Conversations in Community Mental Health care Settings
- 2020
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Ingår i: Journal of Family Nursing. - : Sage Publications. - 1074-8407 .- 1552-549X. ; 26:4, s. 302-314
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to evaluate the usefulness of Family-Centered Support Conversations (FCSC) offered in community mental health care in Norway to young adults and their families experiencing mental illness. The FCSC is a family nursing intervention based on the Calgary Family Assessment and Intervention Models and the Illness Beliefs Model and is focused on how family members can be supportive to each other, how to identify strengths and resources of the family, and how to share and reflect on the experiences of everyday life together while living with mental illness. Interviews were conducted with young adults and their family members in Norway who had received the FCSC intervention and were analyzed using phenomenography. Two descriptive categories were identified: "Facilitating the sharing of reflections about everyday life" and "Possibility of change in everyday life." The family nursing conversations about family structure and function in the context of mental illness allowed families to find new meanings and possibilities in everyday life. Health care professionals can play an important role in facilitating a safe environment for young adults and their families to talk openly about the experience of living with and managing mental illness.
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| 4. |
- Moen, Øyfrid Larsen, et al.
(författare)
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The Relationships between Health Professionals' Perceived Quality of Care, Family Involvement and Sense of Coherence in Community Mental Health Services
- 2021
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Ingår i: Issues in Mental Health Nursing. - : Taylor & Francis. - 0161-2840 .- 1096-4673. ; 42:6, s. 581-590
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Tidskriftsartikel (refereegranskat)abstract
- Mental health professionals have a responsibility to ensure the best possible quality of care. Family is strongly involved in the patient's everyday life. The aim of this study was to investigate the relationship between health care professionals' perception of the quality of care, attitudes of family involvement and their own sense of coherence. A descriptive quantitative study with fifty-six health professionals, completed "Quality in Psychiatric Care-Community Outpatient Psychiatric Staff", "Families' Importance in Nursing Care-health professionals' attitudes", "The Sense of Coherence Scale-13". The health professionals perceived quality as high and did not perceive the families as a burden.
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| 5. |
- Moen, Øyfrid Larsen, et al.
(författare)
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Young adults suffering from mental illness : Evaluation of the family-centred support conversation intervention from the perspective of mental healthcare professionals
- 2021
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Ingår i: Journal of Clinical Nursing. - : John Wiley & Sons. - 0962-1067 .- 1365-2702. ; 30:19-20, s. 2886-2896
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Tidskriftsartikel (refereegranskat)abstract
- AIMS AND OBJECTIVES: To explore how mental healthcare professionals' experience and evaluate the use of Family-Centred Support Conversation Intervention.BACKGROUND: Mental health professionals working in the community mental health service provide treatment, care and support to young adults suffering from mental illness. Young adults suffering from mental illness are dependent on other family members and live close to the family. The Family-Centred Support Conversation promotes healing and alleviates the suffering of the family.DESIGN AND METHODS: A qualitative explorative design was used. Individual interviews with health professionals (n = 13) were conducted in Norway and analysed using a phenomenographic approach. The COREQ checklist was used.RESULTS: Three descriptive categories emerged: A new tool in the toolbox, the family as a conversational partner and Implementing the intervention, with seven conceptions. The mental health professionals had no previous routine for family support. The conversations helped them to structure the involvement of family members. Having the family as a conversational partner together with the patients was considered both somewhat new and rewarding but also challenging. The mental health professionals described a need to adjust the intervention.CONCLUSIONS: The Family-Centred Support Conversation was described as a complement to care, as usual, structuring the involvement of families. The knowledge exchange between the families and the mental health professionals may create a context of changing beliefs, strengths and resources.RELEVANCE TO CLINICAL PRACTICE: Clinical practice is challenged to work on establishing a mindset; whereby, the family is regarded as a resource with important skills and life experience. The family should be offered individualised support and follow-up, and FCSC may be a relevant intervention.
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| 6. |
- Skundberg-Kletthagen, Hege, et al.
(författare)
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Adaption and Cultural Validation of the Quality in Psychiatric Care-Outpatient Staff (QPC-OPS) Instrument to a Norwegian Community Mental Health Context
- 2022
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Ingår i: Journal of Behavioral Health Services & Research. - : Springer. - 1094-3412 .- 1556-3308. ; 49, s. 513-523
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Tidskriftsartikel (refereegranskat)abstract
- The aim was to culturally adapt and validate the Swedish Quality in Psychiatric Care-Outpatient Staff (QPC-OPS) instrument for use in a Norwegian community mental health service context. The translated and culturally adapted instrument was named Quality in Psychiatric Care-Community Outpatient Staff (QPC-COPS). Three expert panels of mental health staff (n = 9) assessed the face and content validity. The internal consistency and test-retest reliability were assessed on a sample of community mental health staff (n = 64). The QCP-COPS had adequate face and content validity, and the full instrument showed excellent internal consistency (alpha = 0.90) and test-retest reliability (ICC = 0.87:0.94). In conclusion, the QPC-COPS is a valid and reliable instrument suitable for measuring staff's perception of the quality of care they deliver in community mental health services.
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| 7. |
- Skundberg Kletthagen, Hege, 1971-, et al.
(författare)
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Burden, Health and Sense of Coherenceamong Relatives of Depressed Inpatients
- 2015
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Ingår i: Open Journal of Nursing. - : Scientific Research Publishing. - 2162-5336 .- 2162-5344. ; :5, s. 163-172
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Tidskriftsartikel (refereegranskat)abstract
- In Europe, there are an increasing number of persons suffering from depression, which also affectsmany relatives. The burden and health when being the relative of an inpatient suffering fromsevere depression has been less examined. The aim of the study was to describe burden, healthand sense of coherence among relatives of inpatients with severe depression. Furthermore, theaim was to investigate relatives’ burden in relation to their health and sense of coherence. Across-sectional design was performed, with a questionnaire consisting of background questionsand three instruments; Burden Assessment Scale, General Health Questionnaire and Sense of Coherencescale. The participants consisted of 68 relatives recruited from a sample of inpatients diagnosedwith depression in the psychiatric specialist health services in one hospital trust in Norway.The Regional Committee for Medical and Health Research Ethics, Norway South East, gaveapproval to the study. The relatives reported burden to a various degree, with some reporting asignificantly greater burden, poorer health and a weaker sense of coherence than others. With regardto subjective burden eight out of ten relatives reported “Worry about future”, and almost sixout of ten were “Upset by change in patient”. Regarding objective burden, more than half the relativesreported having “Less time for friends” and “Reduced leisure time”. In conclusion the relativeswith a high level of burden reported more mental distress, poorer health and weaker senseof coherence than those with lower level of burden. Further research should focus on identificationof factors predicting burden and health of relatives of inpatients with severe depression.
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| 8. |
- Skundberg Kletthagen, Hege, 1971-
(författare)
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Everyday life of relatives of persons suffering from severe depression : Experiences of health, burden, sense of coherence and encounters with psychiatric specialist health services
- 2015
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Aim: The overall aim of this thesis was to investigate and describe everyday life among relatives of inpatients with severe depression and their encounter with the psychiatric specialist health services (PSHS).Methods: A descriptive design with a qualitative and quantitative approach was used. Data was collected by means of a questionnaire responded to by 68 relatives and analysed with descriptive statistics (I, III). Individual interviews with 24 relatives were carried out and analysed with phenomenography (II, IV).Main findings: The everyday life of relatives to persons suffering from severe depression was affected. They reported burden and influence on their own health to a various degree (I). The relatives experienced that they were, “Living on the other person’s terms”. Relatives described ambivalent relationships, as they had to adjust their daily life in attempting to manage the situation (II). When the relatives encountered the PSHS, it may have been a long time of worries and struggles for help. They wanted to be a resource and a participant, and to be confident with the health care (IV). The need for support from the PSHS was greater than what they received. Relatives who reported receiving less information had higher burden scores than the others (III).Conclusions: Everyday life of relatives of persons suffering from severe depression is demanding. To be acknowledged as a resource in the treatment and care for the person suffering from depression is important. The mental health nurses being present at the wards 24 hours a day, are in a unique position to support the relatives.
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| 9. |
- Skundberg Kletthagen, Hege, et al.
(författare)
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Experiences of the psychiatric specialist health services : The perspective of relatives of inpatients with severe depression
- 2015
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Ingår i: Journal of Nursing Education and Practice. - : Sciedu Press. - 1925-4040 .- 1925-4059. ; 5:2, s. 1-7
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe experiences of encountering the psychiatric specialist health services as a relative of an inpatient with severe depression. A qualitative and descriptive design using a phenomenographic approach was chosen. Twentyfour adult relatives, representing different ages, sex, level of education and relationship, were individually interviewed. Approvalwas given by the Regional Committee for Medical and Health Research Ethics, Norway (South East). Three descriptive categoriesemerged: Being in need of help, Being a resource and a participant and Being confident with the health care, with twoconceptions each constituting the relatives’ experiences of the psychiatric specialist health services. When relatives perceive that their next of kin is more severely depressed than the health professionals indicate, they describe it as a battle to obtain help. Relatives have knowledge of – and experience with the depressed person, and wish to share this with the staff. The relatives describe uncertainty as to whether the patient received high-quality care due to varying competence levels among mental health personnel. In conclusion, relatives’ experiences and knowledge about the depressed person were not acknowledged as a matter of course. Thus, psychiatric specialist health services must take relatives’ knowledge into account and initiate collaboration and support.
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| 10. |
- Skundberg-Kletthagen, Hege, et al.
(författare)
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Mental Health Professionals' Experiences with Applying a Family-Centred Care Focus in Their Clinical Work
- 2020
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Ingår i: Issues in Mental Health Nursing. - : Taylor & Francis. - 0161-2840 .- 1096-4673. ; 41:9, s. 815-823
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Tidskriftsartikel (refereegranskat)abstract
- Family members play vital roles in supporting their young adults with mental health challenges, implying that professionals are challenged to apply a Family-Centred Care approach (FCC) in community mental health services. By applying a qualitative phenomengraphic approach, this study aimed to explore and describe professionals' experiences of applying a FCC approach. Based on data from 13 individual interviews, the descriptive categories were: Mutual understanding, Facing dilemmas and Dealing with barriers. Despite the professionals' expressed desires to involve the family, individual treatment and follow-up seemed to characterize their daily clinical practice, often due to the young adults' own wishes.
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