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- Taubner, Helena, 1977-
(författare)
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Afasi och narrativt aktörskap – mediebilder, självberättelser och multimodala litteracitetspraktiker
- 2019
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Afasi är en förvärvad språklig funktionsnedsättning som oftast orsakas av stroke. En person med afasi kan ha svårigheter med både talat och skriftligt språk, och både med produktion och förståelse. Därför medför afasi att individens förmåga och förutsättningar att skapa sin egen självberättelse, d.v.s. hens narrativa aktörskap (Baldwin, 2005), påverkas negativt. I en situation där hens narrativa aktörskap har begränsats behöver hen omförhandla sin identitet. För att göra det speglar hen sina självberättelser i olika sociala strukturer, som bland annat det samtida kommunikationslandskap som präglas av digital teknik men också attityder och normer – vilka till stor del skapas och upprätthålls av olika medier – gentemot personer med språkliga funktionsnedsättningar. Den här avhandlingen bygger på teorier om det ömsesidiga beroendet mellan aktörskap och sociala sturkturer, och syftar till att – genom att studera mediebilder av personer med afasi, självberättelser skapade av personer med afasi samt litteracitetspraktiker inom en grupp av personer med afasi – undersöka narrativt aktörskap hos personer med afasi, för att på så sätt bidra med ny kunskap om och ökad förståelse för hur det är att leva med afasii ett samhälle präglat av textbaserad och digitalt medierad kommunikation.Tre delstudier (A-C), vilka presenteras i fyra artiklar, har genomförts. Delstudie A syftade till att undersöka narrativtyper inom svenska tidningsartiklar om att leva med afasi. En majoritet av tidningsartiklarna innehöll berättelser där personen med afasi hade en låg grad av narrativt aktörskap och pratades omsnarare än med. I de få fall där personen kom till tals själv (eller assisterades av en ställföreträdande röst) präglades mediebilden av framgångssagor. Delstudie B syftade sedan till att undersöka självberättelser hos nio personer med afasi, vilka först intervjuades och sedan observerades i sociala medier. De tillämpade en stor variation av strategier för att kontrollera sitt stigma (Goffman, 1963)och för att hantera identitetsdilemman (Bamberg, 2011). De upplevde ett ökat narrativt aktörskap när de kommunicerade i sociala medier jämfört med i andra sammanhang, på grund av den multimodalitet som den digitala tekniken erbjuder. Slutligen syftade delstudie C till att studera litteracitespraktiker inom en grupp av personer med afasi som gick en afasilinje på en svensk folkhögskola. Gruppen studerades etnografiskt under tre veckor. Gruppens narrativa aktörskap påverkades i hög grad av att digital teknik gav tillgång till multimodala litteracitetspraktiker och av att gruppens medlemmar samskapade litteracitet genom att använda varandras styrkor. För att diskutera det sammanlagda resultatet från de tre delstudierna användes Bourdieus tankeverktyg lingvistiskt kapital, lingvistisk marknad och legitimt språk. Även om afasi innebär en förlust av språkliga förmågor, så kan personen ha kvar vissa lingvistiska kapital. När en lingvistisk marknad innehåller multimodalitet kan en person med afasi välja kommunikationsformer som passar hens kvarvarande förmågor. Alltså ökar hens narrativa aktörskap när hens kvarvarande lingvistiska kapital motsvarar det som anses vara legitimt språk inom en viss lingvistisk marknad. Så var fallet när deltagarna i delstudie B och C deltog i multimodala litteracitetspraktiker. Men när berättelser om personer med afasi publiceras i svenska tidningsartiklar porträtteras personerna med en låg grad av narrativt aktörskap. Mediebilden präglas dessutom av framgångssagor, vilket gör att när en person med afasi omformulerar sin sjävberättelse speglar hen dem i ”större” narrativ om lyckliga slut. Fortsatt forskning föreslås om mediebilder av personer med afasi i andra (mer multimodala) typer av medier, men också om bland annat hur lingvistiskt kapital hos personer med afasi samspelar med andra typer av socialt kapital som genus och klass.
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| 2. |
- Taubner, Helena, 1977-
(författare)
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Afasilinjer på folkhögskola [video]
- 2022
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Annan publikation (film/video) (populärvet., debatt m.m.)abstract
- Helena Taubner är lektor i specialpedagogik vid Jönköping University. Här berättar hon om forskning kring personer med afasi som läser på folkhögskolans afasilinjer, både vad vi vet hittills och vad hon skulle vilja ta reda på.
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| 4. |
- Taubner, Helena, 1977-, et al.
(författare)
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Employment Sustainability for People with Intellectual Disability : A Systematic Review
- 2022
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Ingår i: Journal of occupational rehabilitation. - New York : Springer. - 1053-0487 .- 1573-3688. ; 32:3, s. 353-364
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Forskningsöversikt (refereegranskat)abstract
- Purpose: Previous reviews about employment for people with intellectual disability (ID) have left questions about employment sustainability unanswered. Therefore, the aim of this systematic review was to identify and analyse research regarding employment sustainability for people with ID. The research questions were: What research about employment sustainability for people with ID has been published internationally between 2010 and 2020? In the identified studies, how is employment sustainability defined and measured and what are the main findings regarding employment sustainability?Methods: A systematic review was conducted using eight databases from various disciplines including medical, health, and social sciences. After a selection process, 10 articles remained, and a framework matrix was created to analyse them. An employment sustainability definition was used as an analytical tool.Results: Ten articles were identified as being about employment sustainability for people with ID. Five of them used qualitative designs and five used quantitative designs. Only four out of ten contained a definition of employment sustainability, and there was an inconsistency in measurement methods. The reported findings in the studied articles were categorised into three types: proportions of long-term employed individuals within the studied population, facilitators and barriers to long-term employment.Conclusions: There is only a limited amount of research about employment sustainability for people with ID. Nevertheless, a few facilitators and barriers could be identified. There is no consensus about how to define or measure employment sustainability, making comparisons difficult. © The Author(s) 2021
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| 5. |
- Taubner, Helena, 1977-
(författare)
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Increased Agency through Screens and Co-Creation – Literacy Practices within a Group of People with Aphasia at a Swedish Folk High School
- 2019
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Ingår i: Scandinavian Journal of Disability Research. - Stockholm : Stockholm University Press. - 1501-7419 .- 1745-3011. ; 21:1, s. 197-206
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Tidskriftsartikel (refereegranskat)abstract
- This article aims to analyse characteristics of collective and authentic literacy practices within a group of people with aphasia attending an aphasia course at a Swedish folk high school. The group included 12 individuals with aphasia who were studied during a period of 3 weeks. Ethnographic data consists of video and audio recordings, photos and field notes. Two main characteristics of the literacy practices were identified: digital screens dominated and bridged the online/offline boundary, and shared knowledge enabled the participants to co-create literacy. The literacy practices were emancipatory, because they provided ways for the participants to un-mask their inherent competence, increasing their agency. When the use of digital technology transforms a (formerly non-literacy) practice into a multimodal literacy practice, and when an individual with aphasia becomes part of a literacy co-creation practice, the disability (understood as a relation between individual and environmental characteristics) caused by aphasia is reduced.
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| 6. |
- Taubner, Helena, 1977-, et al.
(författare)
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Long-term employment for people with intellectual disability
- 2023
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Konferensbidrag (refereegranskat)abstract
- Maintaining work over time, and not only gaining brief or unstable jobs, is included in the UN Convention on Rights for People with Disabilities and mentioned in the UN Sustainability Development Goals. Still, employment rates among people with intellectual disabilities (ID) are low. We have reviewed previous international research on employment sustainability for people with ID and thereafter conducted a qualitative interview study with Swedish employees with ID and their employers.The systematic review showed that very little research is available about employment sustainability for people with ID, especially regarding societal factors. Ten studies were identified as published internationally between 2010 and 2020, and among them only two reported societal factors – (1) having been in an inclusive school environment or living in an area with a larger population size and (2) living without basic living security assistance or in a household with greater income level. The findings also highlight a lack of a consensus definition of sustainability and an inconsistency in measurements.The interview study focused on identifying what facilitates employment sustainability for people with ID, according to themselves and their employers. Fifteen persons with ID who were long-term employed, and ten representatives from their employers, were interviewed. Five facilitators were identified: (1) having tried various types of work, (2) liking to be at work, (3) balance concerning expectations and adaptations, (4) mutual engagement and flexibility, and (5) wage subsidies. In addition, remaining at a workplace may be the result of lacking alternatives.Employment sustainability needs to be understood at individual as well as environmental and societal levels. In addition, both duration and progress should be considered regarding employment sustainability in this population. We strongly suggest further research in this field, not least qualitative studies in which people with ID are given voice themselves.
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| 7. |
- Taubner, Helena, 1977-, et al.
(författare)
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Meaningful Occupation for Adults with Intellectual Disability
- 2024
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Ingår i: The Palgrave Encyclopedia of Disability. - Cham : Springer. - 9783031408588 ; , s. 1-11
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Bokkapitel (refereegranskat)abstract
- According to international statutes, such as the UN Convention of Rights for People with Disabilities, all people have the right to be engaged in employment or other occupations on equal terms. However, people with disabilities in general, and people with intellectual disability in particular, are often excluded from the labor market or other occupational settings. Occupation may be defined as everyday activities that people do to occupy time and to bring meaning to life. But the concept of what an occupation is, including its aspect of meaningfulness, varies across contexts and individuals. This chapter aims to discuss meaningful occupation for people with intellectual disability in relation to three types of structured occupations from a Swedish context. The first is employment, for which meaningfulness could be measured as being long-term employed. However, staying for a long period of time at the same workplace may also be a result of lacking alternatives. The second occupation type is disability day programs referred to as daily activity. One key to understanding whether people with intellectual disability find these daily activities meaningful is whether or not they view it as a “real job.” The third type is further (post-secondary) education. The Scandinavian educational setting of Folk High Schools is presented and discussed in terms of meaningfulness. In addition to these three categories, not being involved in any of these activities (referred to as being Not in Employment, Education, or Daily activity—NEED) is also discussed. Being NEED does not necessarily entail a lack of meaningfulness, but it is common for people in this category to express desires to be involved in some kind of structured occupation. Finally, the chapter concludes with a discussion of the ideals of employment in relation to meaningful occupation.
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| 10. |
- Taubner, Helena, 1977-
(författare)
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Online and offline re-negotiation of self when living with post-stroke aphasia
- 2017
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Konferensbidrag (refereegranskat)abstract
- Background: Aphasia, i.e. language disorder caused by brain injury (most commonly stroke), affects some 10.000 people in Sweden every year, 30% of whom are between 18 and 65. Much has been said about neurological or medical aspects of aphasia, but experiences of people affected are much less studied.When living with post-stroke aphasia, the stroke constitutes a boundary between separate phases of life, often evoking an identity crisis and a need of a re-negotiation of self. Considering that 90% of the Swedish working-age population are Internet users, this re-negotiation process will necessarily include online aspects. Nevertheless, research combining aphasia, identity and online communication is scarce. Thus, this study aimed to investigate how working-age Swedish Internet users with post-stroke aphasia re-negotiate their identity, offline and online.Method: Qualitative interviews were conducted with nine individuals (three men and six women) living with post-stroke aphasia (all diagnosed R470). At the time of the interviews, they were between 26 and 61 years old. In addition, a total of 1,581 online posts (e.g. photos, videos, text, emoticons) created by the same participants were analysed.Results: The analyses indicate that the participants, in their re-negotiation of self, frequently position themselves in relation to other disabilities, e.g. by stating “I am not stupid” or “At least, I can walk”. This positioning varied depending on which points in time (i.e. pre-stroke, acute phase, rehabilitation, post-stroke) were taken into account.Conclusion: Whereas some of the participants struggled to maintain a representation of themselves similar to their pre-stroke identity, some proudly embraced aphasia as a new aspect of their identity. Furthermore, they seemed to have better opportunities to control the renegotiation process in online settings than offline.
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