| 1. |
- Sverker, Annette, et al.
(författare)
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Participation in work in early rheumatoid arthritis : a qualitative interview study interpreted in terms of the ICF
- 2014
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Ingår i: Disability and Rehabilitation. - : Informa Healthcare. - 0963-8288 .- 1464-5165. ; 36:3, s. 242-249
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To explore what work-related dilemmas are experienced by patients with early rheumatoid arthritis (RA), according to their own descriptions, and to interpret this in terms of participation categories of the International Classification of Functioning, Disability and Health (ICF). Method: In 48 patients with early RA, qualitative interviews were analyzed, followed by linking of concepts to the activity/participation component of the ICF and interpretation of general themes. Results: Work-related dilemmas represented different societal perspectives on work related to acquiring, keeping and terminating a job, self-employment, part-time, full-time and non-remunerative employment. Dilemmas also represented participation priorities in economic self-sufficiency, self-care such as health care, and avoiding social relationships and recreation in favor of work. Leisure time was influenced because efforts of working took energy and time of day-to-day procedures. Embedded actions in work-related dilemmas were carrying out daily routine, mobility including using transportation, self-care, domestic life and social interaction. Conclusion: The general themes societal perspectives, participation priorities and embedded actions, with the included ICF categories that are described in detail according to the experiences of the patients, can support clinical reasoning and research on quantitative relations to disease activity, body functions, ability and contextual factors. Implications for Rehabilitation In early rheumatoid arthritis, keeping a job is complex; patients and practitioners need to know and handle the perspectives of, e.g. employers and social insurance agents. Participation in work is an issue of prioritizing against, e.g. maintaining one's health and social relationships. Rehabilitation practitioners need to analyze what actions are embedded in a work situation.
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| 2. |
- Arvidsson, Patrik, et al.
(författare)
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Important aspects of participation and participation restrictions in people with a mild intellectual disability
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Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
- Purpose This study explored a possibility to assess the concepts of participation and participation restrictions in the International Classification of Functioning, Disability and Health (ICF) by combining self-ratings of the perceived importance with the actual performance of different everyday activities in people with a mild intellectual disability.Method Structured interviews regarding 68 items from the ICF activity/participation domain were conducted (n=69). The items were ranked by perceived importance, performance and by combined measures. Also, the measures were related to a single question about subjective general well-being.Results Rankings of performance highlighted about the same items as ‘important participation’, while rankings of low performance addressed quite different items compared with ‘important participation restriction’. Significant correlations were found between subjective general well-being and: high performance (r=0.56), high performance/high importance (‘important participation’) (r=0.56), low performance (r=-0.56), and low performance/high importance (‘important participation restriction’ (r=-0.55).Conclusions The results support the clinical relevance of the ICF and the studied selection of 68 items. Although performance only may sometimes be a relevant aspect, knowledge about the relationship between the perceived importance and the actual performance is essential for clinical interventions and for research aiming to understand specific needs regarding participation.
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| 3. |
- Arvidsson, Patrik, 1969-, et al.
(författare)
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Important aspects of participation and participation restrictions in people with a mild intellectual disability
- 2014
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Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 36:15, s. 1264-1272
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: This study explored a possibility to assess the concepts of participation and participation restrictions in the International Classification of Functioning, Disability and Health (ICF) by combining self-ratings of the perceived importance with the actual performance of different everyday activities in people with a mild intellectual disability.Method: Structured interviews regarding 68 items from the ICF activity/participation domain were conducted (n = 69). The items were ranked by perceived importance, performance and by combined measures. Furthermore, the measures were related to a single question about subjective general well-being.Results: Rankings of performance highlighted about the same items as "important participation", while rankings of low performance addressed quite different items compared with "important participation restriction". Significant correlations were found between subjective general well-being and high performance (r = 0.56), high performance/high importance (important participation) (r = 0.56), low performance (r = -0.56) and low performance/high importance (important participation restriction; r -0.55).Conclusions: The results support the clinical relevance of the ICF and the studied selection of 68 items. Although performance only may sometimes be a relevant aspect, knowledge about the relationship between the perceived importance and the actual performance is essential for clinical interventions and for research aiming to understand specific needs regarding participation.
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| 4. |
- Arvidsson, Patrik, et al.
(författare)
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International classification of functioning, disability and health categories explored for selfrated participation in swedish adolescents and adults with a mild intellectual disability
- 2012
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Ingår i: Journal of Rehabilitation Medicine. - Uppsala, Sweden : Foundation Rehabilitation Information. - 1650-1977 .- 1651-2081. ; 44:7, s. 562-569
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Tidskriftsartikel (refereegranskat)abstract
- Objective: To explore internal consistency and correlations between perceived ability, performance and perceived importance in a preliminary selection of self-reported items representing the activity/participation component of the International Classification of Functioning, Disability and Health (ICF).Design: Structured interview study. Subjects: Fifty-five Swedish adolescents and adults with a mild intellectual disability.Methods: Questions about perceived ability, performance and perceived importance were asked on the basis of a 3-grade Likert-scale regarding each of 68 items representing the 9 ICF domains of activity/participation.Results: Internal consistency for perceived ability (Cron-bach's alpha for all 68 items): 0.95 (values for each domain varied between 0.57 and 0.85), for performance: 0.86 (between 0.27 and 0.66), for perceived importance: 0.84 (between 0.27 and 0.68). Seventy-two percent of the items showed correlations >0.5 (mean =0.59) for performance vs perceived importance, 41% >0.5 (mean =0.47) for perceived ability vs performance and 12% >0.5 (mean =0.28) for perceived ability vs perceived importance.Conclusion: Measures of performance and perceived importance may have to be based primarily on their estimated clinical relevance for describing aspects of the ICF participation concept. With a clinimetric approach, parts of the studied items and domains may be used to investigate factors related to different patterns and levels of participation, and outcomes of rehabilitation.
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| 7. |
- Sverker, Annette, et al.
(författare)
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Dilemmas of participation in everyday life in early rheumatoid arthritis : a qualitative interview study (The Swedish TIRA Project)
- 2015
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Ingår i: Disability and Rehabilitation. - : INFORMA HEALTHCARE. - 0963-8288 .- 1464-5165. ; 37:14-15, s. 1251-1259
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To explore the experiences of today's patients with early rheumatoid arthritis (RA) with respect to dilemmas of everyday life, especially regarding patterns of participation restrictions in valued life activities. Methods: A total of 48 patients, aged 20-63, three years post-RA diagnosis were interviewed using the Critical Incident Technique. Transcribed interviews were condensed into meaningful units describing actions/situations. These descriptions were linked to ICF participation codes according to the International Classification of Functioning, Disability and Health (ICF) linking rules. Results: Dilemmas in everyday life were experienced in domestic life, interpersonal interactions and relationships, community, social and civic life. Most dilemmas were experienced in domestic life, including participation restrictions in, e.g. gardening, repairing houses, shovelling snow, watering pot plants, sewing or walking the dog. Also many dilemmas were experienced related to recreation and leisure within the domain community, social and civic life. The different dilemmas were often related to each other. For instance, dilemmas related to community life were combined with dilemmas within mobility, such as lifting and carrying objects. Conclusions: Participation restrictions in today's RA patients are complex. Our results underline that the health care needs to be aware of the patients' own preferences and goals to support the early multi-professional interventions in clinical practice.
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