| 1. |
- Maasri, Alain, et al.
(författare)
-
A global agenda for advancing freshwater biodiversity research
- 2022
-
Ingår i: Ecology Letters. - : Wiley. - 1461-023X .- 1461-0248. ; 25:2, s. 255-263
-
Tidskriftsartikel (refereegranskat)abstract
- Global freshwater biodiversity is declining dramatically, and meeting the challenges of this crisis requires bold goals and the mobilisation of substantial resources. While the reasons are varied, investments in both research and conservation of freshwater biodiversity lag far behind those in the terrestrial and marine realms. Inspired by a global consultation, we identify 15 pressing priority needs, grouped into five research areas, in an effort to support informed stewardship of freshwater biodiversity. The proposed agenda aims to advance freshwater biodiversity research globally as a critical step in improving coordinated actions towards its sustainable management and conservation.
|
|
| 2. |
- Adesam, Yvonne, 1975-
(författare)
-
The Multilingual Forest : Investigating High-quality Parallel Corpus Development
- 2012
-
Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- This thesis explores the development of parallel treebanks, collections of language data consisting of texts and their translations, with syntactic annotation and alignment, linking words, phrases, and sentences to show translation equivalence. We describe the semi-manual annotation of the SMULTRON parallel treebank, consisting of 1,000 sentences in English, German and Swedish. This description is the starting point for answering the first of two questions in this thesis.What issues need to be considered to achieve a high-quality, consistent,parallel treebank?The units of annotation and the choice of annotation schemes are crucial for quality, and some automated processing is necessary to increase the size. Automatic quality checks and evaluation are essential, but manual quality control is still needed to achieve high quality.Additionally, we explore improving the automatically created annotation for one language, using information available from the annotation of the other languages. This leads us to the second of the two questions in this thesis.Can we improve automatic annotation by projecting information available in the other languages?Experiments with automatic alignment, which is projected from two language pairs, L1–L2 and L1–L3, onto the third pair, L2–L3, show an improvement in precision, in particular if the projected alignment is intersected with the system alignment. We also construct a test collection for experiments on annotation projection to resolve prepositional phrase attachment ambiguities. While majority vote projection improves the annotation, compared to the basic automatic annotation, using linguistic clues to correct the annotation before majority vote projection is even better, although more laborious. However, some structural errors cannot be corrected by projection at all, as different languages have different wording, and thus different structures.
|
|
| 3. |
- Amerstorfer, Eva Elisa, et al.
(författare)
-
What do pediatric surgeons think about sexual issues in dealing with patients with anorectal malformations? The ARM-Net consortium members’ opinion
- 2019
-
Ingår i: Pediatric Surgery International. - : Springer Science and Business Media LLC. - 0179-0358 .- 1437-9813. ; 35:9, s. 935-943
-
Tidskriftsartikel (refereegranskat)abstract
- Purpose: Since pediatric surgeons aim to follow their patients with anorectal malformations (ARM) into adulthood the aim of this study was to investigate how pediatric surgeons deal with sexual issues related to ARM. Methods: In 2018, a questionnaire was developed by the working group “Follow-up and sexuality” of the ARM-Net consortium and sent to all consortium-linked pediatric surgeons from 31 European pediatric surgical centers. Obtained data were statistically analyzed. Results: Twenty-eight of 37 pediatric surgeons (18 males/10 females) answered the questionnaire. The majority of pediatric surgeons (82%) think they should talk about sexual issues with their patient. More than 50% of pediatric surgeons do not feel at all or only moderately confident discussing the topic of sexuality. Most pediatric surgeons require more support (96%) and wish to be trained in sexuality and sexual issues (78%) to feel confident towards their ARM-patients/parents. For optimal care, sexual issues with ARM-patients should be managed by a multidisciplinary team. Conclusions: Pediatric surgeons feel that sexuality is an important issue for their ARM-patients, which they are primarily responsible of but should be managed in concert with a multidisciplinary team. A training in sexuality is wished to feel more confident about this specific issue.
|
|
| 4. |
- Bott, Lukas Thomas, et al.
(författare)
-
Coulomb dissociation of O-16 into He-4 and C-12
- 2023
-
Ingår i: NUCLEAR PHYSICS IN ASTROPHYSICS - X, NPA-X 2022. - : EDP Sciences. - 2100-014X. ; 279
-
Konferensbidrag (refereegranskat)abstract
- We measured the Coulomb dissociation of O-16 into He-4 and C-12 within the FAIR Phase-0 program at GSI Helmholtzzentrum fur Schwerionenforschung Darmstadt, Germany. From this we will extract the photon dissociation cross section O-16(alpha,gamma)C-12, which is the time reversed reaction to C-12(alpha,gamma)O-16. With this indirect method, we aim to improve on the accuracy of the experimental data at lower energies than measured so far. The expected low cross section for the Coulomb dissociation reaction and close magnetic rigidity of beam and fragments demand a high precision measurement. Hence, new detector systems were built and radical changes to the (RB)-B-3 setup were necessary to cope with the high-intensity O-16 beam. All tracking detectors were designed to let the unreacted O-16 ions pass, while detecting the C-12 and He-4.
|
|
| 5. |
|
|
| 6. |
- Fanjul, María, et al.
(författare)
-
Tethered cord in patients affected by anorectal malformations : a survey from the ARM-Net Consortium
- 2017
-
Ingår i: Pediatric Surgery International. - : Springer Science and Business Media LLC. - 0179-0358 .- 1437-9813. ; 33:8, s. 849-854
-
Tidskriftsartikel (refereegranskat)abstract
- Purpose: The goal of this study was to determine the degree of consensus in the management of spinal cord tethering (TC) in patients with anorectal malformation (ARM) in a large cohort of European pediatric centers. Methods: A survey was sent to pediatric surgeons (one per center) members of the ARM-Net Consortium. Results: Twenty-four (86%) from ten different countries completed the survey. Overall prevalence of TC was: 21% unknown, 46% below 15, and 29% between 15 and 30%. Ninety-six agreed on screening all patients for TC regardless the type of ARM and 79% start screening at birth. Responses varied in TC definition and diagnostic tools. Fifty percent of respondents prefer ultrasound (US), 21% indicate either US or magnetic resonance (MRI) based on a pre-defined risk of presenting TC, and 21% perform both. Discrepancy exists in complementary test: 82% carry out urodynamic studies (UDS) and only 37% perform somatosensory-evoked potentials (SSEP). Prophylactic untethering is performed in only two centers (8%). Conclusions: Survey results support TC screening in all patients with ARM and conservative management of TC. There is discrepancy in the definition of TC, screening tools, and complementary test. Protocols should be developed to avoid such variability in management.
|
|
| 7. |
- Gobel, K., et al.
(författare)
-
Coulomb dissociation of 16O into 4He and 12C
- 2020
-
Ingår i: Journal of Physics: Conference Series. - : IOP Publishing. - 1742-6588 .- 1742-6596. ; 1668:1
-
Konferensbidrag (refereegranskat)abstract
- We measured the Coulomb dissociation of 16O into 4He and 12C at the R3B setup in a first campaign within FAIR Phase 0 at GSI Helmholtzzentrum für Schwerionenforschung, Darmstadt. The goal was to improve the accuracy of the experimental data for the 12C(a,?)16O fusion reaction and to reach lower center-ofmass energies than measured so far. The experiment required beam intensities of 109 16O ions per second at an energy of 500 MeV/nucleon. The rare case of Coulomb breakup into 12C and 4He posed another challenge: The magnetic rigidities of the particles are so close because of the same mass-To-charge-number ratio A/Z = 2 for 16O, 12C and 4He. Hence, radical changes of the R3B setup were necessary. All detectors had slits to allow the passage of the unreacted 16O ions, while 4He and 12C would hit the detectors' active areas depending on the scattering angle and their relative energies. We developed and built detectors based on organic scintillators to track and identify the reaction products with sufficient precision.
|
|
| 8. |
- Graën, Johannes, 1982, et al.
(författare)
-
Binomial adverbs in Germanic and Romance Languages – A corpus-based study
- 2021
-
Ingår i: Corpora in Translation and Contrastive Research in the Digital Age – Recent advances and explorations. Julia Lavid-López, Carmen Maíz-Arévalo, Juan Rafael Zamorano-Mansilla (red.). - Amsterdam : John Benjamins. - 0929-7316. - 9789027209184 ; , s. 326-342
-
Bokkapitel (refereegranskat)abstract
- As a special type of multiword expressions, binomials are a frequent phenomenon in many languages. We focus on binomial adverbs that are coordinations of two adverbial constituents. Their syntactic contribution to a sentence is adverbial as well and their semantic contribution is idiomatic. They have many uses, such as to intensify (first and foremost), express tendency (more and more), frequency (over and over [again]), vagueness (more or less), determination (sooner or later) etc.In this work, we describe our approaches to identify binomial adverbs in a large multiparallel corpus. Alongside the well-known measure of reversibility, we also calculate measures of statistical association and look for single-word translation equivalents in other languages. Combining these features facilitates the identification of binomial adverbs.
|
|
| 9. |
- Graën, Johannes, 1982, et al.
(författare)
-
Modelling large parallel corpora: The Zurich Parallel Corpus Collection
- 2019
-
Ingår i: Proceedings of the Workshop on Challenges in the Management of Large Corpora (CMLC-7) 2019. Cardiff, 22nd July 2019 / Piotr Bański, Adrien Barbaresi, Hanno Biber, Evelyn Breiteneder, Simon Clematide, Marc Kupietz, Harald Lüngen, Caroline Iliadi (eds.). - Mannheim : Leibniz-Institut für Deutsche Sprache.
-
Konferensbidrag (refereegranskat)abstract
- Text corpora come in many different shapes and sizes and carry heterogeneous annotations, depending on their purpose and design. The true benefit of corpora is rooted in their annotation and the method by which this data is encoded is an important factor in their interoperability. We have accumulated a large collection of multilingual and parallel corpora and encoded it in a unified format which is compatible with a broad range of NLP tools and corpus linguistic applications. In this paper, we present our corpus collection and describe a data model and the extensions to the popular CoNLL-U format that enable us to encode it.
|
|
| 10. |
- Hageman, Isabel C., et al.
(författare)
-
A Quality Assessment of the ARM-Net Registry Design and Data Collection
- 2023
-
Ingår i: Journal of Pediatric Surgery. - : Elsevier BV. - 0022-3468. ; 58:10, s. 1921-1928
-
Tidskriftsartikel (refereegranskat)abstract
- Background: Registries are important in rare disease research. The Anorectal Malformation Network (ARM-Net) registry is a well-established European patient registry collecting demographic, clinical, and functional outcome data. We assessed the quality of this registry through review of the structure, data elements, collected data, and user experience. Material and methods: Design and data elements were assessed for completeness, consistency, usefulness, accuracy, validity, and comparability. An intra- and inter-user variability study was conducted through monitoring and re-registration of patients. User experience was assessed via a questionnaire on registration, design of registry, and satisfaction. Results: We evaluated 119 data elements, of which 107 were utilized and comprised 42 string and 65 numeric elements. A minority (37.0%) of the 2278 included records had complete data, though this improved to 83.5% when follow-up elements were excluded. Intra-observer variability demonstrated 11.7% incongruence, while inter-observer variability was 14.7%. Users were predominantly pediatric surgeons and typically registered patients within 11–30 min. Users did not experience any significant difficulties with data entry and were generally satisfied with the registry, but preferred more longitudinal data and patient-reported outcomes. Conclusions: The ARM-Net registry presents one of the largest ARM cohorts. Although its collected data are valuable, they are susceptible to error and user variability. Continuous evaluations are required to maintain relevant and high-quality data and to achieve long-term sustainability. With the recommendations resulting from this study, we call for rare disease patient registries to take example and aim to continuously improve their data quality to enhance the small, but impactful, field of rare disease research. Level of Evidence: V.
|
|
