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- Johansson, Maria, et al.
(författare)
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Family members’ experiences of keeping a diary during a sick relative’s stay in the intensive care unit : A hermeneutic interview study
- 2015
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Ingår i: Intensive & Critical Care Nursing. - : Elsevier. - 0964-3397 .- 1532-4036. ; 31:4, s. 241-249
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Tidskriftsartikel (refereegranskat)abstract
- ObjectiveThe aim of the study was to explore family members’ experiences with keeping a diary during a sick relative's stay in the ICU.DesignA qualitative method with a hermeneutic approach was used. Eleven participants, who recorded nine diaries in total, were interviewed. The collected data were analysed using a hermeneutic approach inspired by Gadamer.ResultsThe analysis revealed a meta-theme: ‘it [writing in the diary] felt like contact’ which was created by a feeling of togetherness and the opportunity to communicate with the patient. Keeping a diary likely meets the needs of family members in several ways because it becomes a way to be present at the patient's bedsides, to provide caregiving, to maintain hope and to relay cogent information. However, concerns regarding negative aspects of diary keeping were also raised; for example, the diary created feelings of stress, guilt and failure and exposed intimate details.ConclusionThe diary symbolised the maintenance of relationships with the patients and was a substitute for the usual opportunities for communication. Furthermore, it was instrumental in meeting the needs of the majority of family members in several ways. Nevertheless, the diary did have negative effects for certain individuals, which highlights the importance of an individualised approach.
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| 2. |
- Johansson, Maria, et al.
(författare)
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Family members' experiences with intensive care unit diaries when the patient does not survive
- 2018
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Ingår i: Scandinavian Journal of Caring Sciences. - : John Wiley & Sons. - 0283-9318 .- 1471-6712. ; 32:1, s. 233-240
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE: The aim of the study was to explore how family members experienced the use of a diary when a relative does not survive the stay in the intensive care unit (ICU).METHOD: A qualitative method with a hermeneutic approach was used. Nine participants who read/wrote eight diaries in total were interviewed. The collected data were analysed using a hermeneutic technique inspired by Geanellos.FINDINGS: The analysis revealed an overall theme 'the diary was experienced as a bridge connecting the past with the future', which was a metaphor referring to the temporal aspect where there was the period with the diary up until the patient's death and then the postbereavement period. The diary contributed to both a rational and emotional understanding of the death of the patient and disclosed glimmers of light that still existed before the illness deteriorated. Further, the diary bridged the space between family members themselves and between family and nursing staff. It helped to maintain a feeling of togetherness and engagement in the care of the patient which family members found comforting.CONCLUSION: Family members of nonsurvivors had a need to have the ICU time explained and expressed. The diary might work as a form of 'survival kit' to gain coherence and understanding; to meet their needs during the hospital stay; and, finally, to act as a bereavement support by processing the death of the patient.
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| 4. |
- Hollman Frisman, Gunilla, 1953-, et al.
(författare)
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Health-promoting conversations : a novel approach to families experiencing critical illness in the ICU environment
- 2018
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Ingår i: Journal of Clinical Nursing. - : John Wiley & Sons. - 0962-1067 .- 1365-2702. ; 27:3-4, s. 631-639
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Tidskriftsartikel (refereegranskat)abstract
- AIMS AND OBJECTIVES: The aim of this study was to identify and describe the outcomes of a nurse-led intervention, "Health-promoting conversations with families," regarding family functioning and well-being in families with a member who was critically ill.BACKGROUND: Families who have a critically ill family member in an intensive care unit face a demanding situation, threatening the normal functioning of the family. Yet, there is a knowledge gap regarding family members' well-being during and after critical illness.DESIGN: The study utilized a qualitative inductive-descriptive design.METHODS: Eight families participated in health-promoting conversations aimed to create a context for change related to the families' identified problems and resources. Fifteen qualitative interviews were conducted with 18 adults who participated in health-promoting conversations about a critical illness in the family. Eight participants were patients (6 men, 2 women) and 10 were family members (2 male partners, 5 female partners, 1 mother, 1 daughter, 1 female grandchild). The interviews were analyzed by conventional content analysis.RESULTS: Family members experienced strengthened togetherness, a caring attitude, and confirmation through health-promoting conversations. The caring and calming conversations were appreciated despite the reappearance of exhausting feelings. Working through the experience and being confirmed promoted family well-being.CONCLUSION: Health-promoting conversations were considered to be healing, as the family members take part in sharing each other's feelings, thoughts, and experiences with the critical illness.RELEVANCE TO CLINICAL PRACTICE: Health-promoting conversations could be a simple and effective nursing intervention for former intensive care patients and their families in any cultural context. This article is protected by copyright. All rights reserved.
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| 7. |
- Johansson, Maria, et al.
(författare)
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Nursing staff's experiences of intensive care unit diaries : a qualitative study
- 2019
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Ingår i: Nursing in Critical Care. - : John Wiley & Sons. - 1362-1017 .- 1478-5153. ; 24:6, s. 407-413
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Diaries as an intervention to aid psychological recovery among intensive care patients have been used for about 20 years, and findings tend to be positive. The provision of a diary directed at the patient may clarify the story of the intensive care unit (ICU) even for the family members and the family members of non-survivors. Members of nursing staff are the primary authors, but how they themselves experience the use of ICU diaries has been minimally explored.AIMS AND OBJECTIVES: This study aimed to explore how nursing staff experienced the use of ICU patient diaries.DESIGN: Qualitative design using focus group interviews.METHODS: A qualitative methodology was used. Six focus group interviews were conducted with 27 nursing staff recruited from one university and two county hospitals. The data were analysed via thematic content analysis.FINDINGS: One overarching theme, 'An effort to do good in words and actions', and four interconnected themes were derived from the analysis. By creating the diary, nursing staff had to deal with a variety of ethical and practical dilemmas, but feedback from patients, family members and ICU follow-up services reinforced the feeling of doing good. This overarching feeling of beneficence encouraged diary authoring and increased motivation and commitment to strive towards excellent patient care. To sustain the use of ICU diaries, collegiate and organizational support was deemed essential.CONCLUSIONS: Nursing staff strived to do good in words and actions for patients and their families when writing the diaries. Positive feedback from patients, family members and ICU follow-up services reinforced feelings of doing good, which served to enhance work satisfaction and a commitment to good-quality nursing care. Experiential-based education was recommended to help sustain ICU diary writing.RELEVANCE TO CLINICAL PRACTICE: Nursing staff requested mentoring and group discussions concerning the format, content and communication channels of the diary.
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| 9. |
- Johansson, Maria, et al.
(författare)
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The use and application of intensive care unit diaries: An instrumental multiple case study
- 2024
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Ingår i: PLOS ONE. - : Public Library of Science. - 1932-6203. ; 19:2
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Tidskriftsartikel (refereegranskat)abstract
- Abstract: Aims and objectives: The study aim was to explore the use of an Intensive Care Unit (ICU) diary within four differentICUs units in Sweden and thereby contribute to practice guidelines regarding the structure,content and use of an ICU diary.Background: ICU diaries are used to aid psychological recovery among critical care patients, but differencesremain in diary writing both within and across countries. Few studies have focused onthe combined views and experiences of ICU patients, family members and nursing staffabout the use of ICU diaries.Design: An instrumental multiple case study design was employed.Methods: Three focus groups interviews were carried out with 8 former patients and their family members(n = 5) from the research settings. Individual interviews were carried out with 2 patients,a family member and a nurse respectively. Observations, field notes, documentary analysisand conversations with nursing staff were also conducted. Consolidated criteria for reportingqualitative research (COREQ) was followed.Results: The qualitative findings firstly consisted of a matrix and descriptive text of the four ICU contextsand current practices. This highlighted that there were similarities regarding the aimsand objectives of the diaries. However, differences existed across the case study sitesabout how the ICU diary was developed and implemented. Namely, the use of photographsand when to commence a diary. Second, a thematic analysis of the qualitative data regardingpatients’ and family members’ use of the ICU diary, resulted in four themes: i) the diary was used to take in and fully understand the situation;ii) the diary was an opportunity to assimilate warm, personalised and human care; iii) the diary was used to manage existential issues; and iv) the diary was a tool in daily activities.Conclusions: Analysis of the instrumental case study data led to the identification of core areas for inclusionin ICU diary practice guidelines.
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| 10. |
- Nielsen, Elinor, et al.
(författare)
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Can pictures of the nature influence anxiety and well-being during elective surgery in local anesthesia?
- 2016
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Konferensbidrag (refereegranskat)abstract
- BackgroudPatients going through surgery in local anesthesia often have a sense of anxiety and stress and thus need support to relax. Different distracting intervention is known to reduce the anxiety and stress. Pictures of the nature, has to our knowledge not been used to support patients comfort during surgery in local anesthesia.PurposeThe aim was to evaluate the effects of looking at pictures of the nature on patients’ experience of anxiety, relaxation, well-being, and pain during elective surgery in local anesthesia.DesignA three-armed randomized intervention was performed at three different hospitals.MethodsAdult patients undergoing surgery in local anesthesia were consecutively randomized into three groups, one group looking at pictures of the nature on an Ipad, one group listening to sedative instrumental music and one control group receiving ordinary care during surgery. State Trait Anxiety Inventory (STAI) short form was filled in before the surgery and just before discharge STAI and VAS-scales on anxiety, relaxation, well-being, and pain were filled in.Preliminary resultsPatients n=240 (54 % women), with a mean age of 58 (± 17) years participated in the study. There was no difference between the three groups related to anxiety after surgery. Younger patients had significantly higher degree of anxiety and lower degree of relaxation and wellbeing (p<0.05), postoperatively. ConclusionLooking at pictures of nature during surgery in local anesthesia is as relaxing as listening to sedative instrumental music. Offering patients to look at nature pictures could be a complement to listening to music.
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