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- Ehn, Mattias, 1972-, et al.
(författare)
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Health, work, social trust, and financial situation in persons with Usher syndrome type 1
- 2018
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Ingår i: Work. - : IOS Press. - 1051-9815 .- 1875-9270. ; 60:2, s. 209-220
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Research has demonstrated that persons with Usher syndrome type 1 (USH1) have significantly poorer physical and psychological health compared to a reference group.PURPOSE: To explore the relation between work, health, social trust, and financial situation in USH1 compared to a reference group.MATERIAL: Sixty-six persons (18-65 y) from the Swedish Usher database received a questionnaire and 47 were included, 23 working and 24 non-working. The reference group comprised 3,049 working and 198 non-working persons.METHODS: The Swedish Health on Equal Terms questionnaire was used and statistical analysis with multiple logistic regression was conducted.RESULTS: The USH1 non-work group had a higher Odds ratio (95% CI) in poor psychological and physical health, social trust, and financial situation compared to the USH1 work group and reference groups. Age, gender, hearing, and vision impairment did not explain the differences. The relation between the USH1 work and non-work groups showed the same pattern as the reference groups, but the magnitude of problems was significantly higher.CONCLUSIONS: Both disability and unemployment increased the risk of poor health, social trust and financial situation in persons with USH1, but having an employment seemed to counteract the risks related to disability.
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- Ehn, Mattias, 1972-, et al.
(författare)
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Life strategies of people with deafblindness due to Usher syndrome type 2a-a qualitative study
- 2019
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - : Taylor & Francis. - 1748-2623 .- 1748-2631. ; 14:1
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To explore life strategies in people with Usher syndrome type 2a.Background: There are no studies on life strategies in people with Usher syndrome. People with deafblindness are often described in terms of poor health and low quality of life, or as being vulnerable. From a clinical point of view, it is of importance to balance this picture, with an increased knowledge of life strategies.Methods: The study had a qualitative explorative design. Fourteen people aged 20-64 years (4 women, 10 men) with USH2a in Sweden participated in focus group interviews, which were transcribed and analysed by qualitative content analysis.Results: The content analysis resulted in seven categories; remaining active, using devices, using support, sharing knowledge, appreciating the present, maintaining a positive image and alleviating emotional pain. Two sub-themes: resolve or prevent challenges and comforting oneself was abstracted forming a theme "being at the helm".Conclusion: The findings show that people with USH2a have a variety of life strategies that can be interpreted as highlighting different aspects of psychological flexibility in a life adjustment process. The study demonstrates that people with USH2a manage in many ways, and metaphorically, by "taking the helm", they strive to actively navigate towards their own chosen values.
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| 5. |
- Ehn, Mattias, 1972-
(författare)
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Life Strategies, Work and Health in People with Usher Syndrome
- 2020
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Introduction: People with Usher syndrome (USH) have an inherited disorder causing congenital deafness or hearing loss combined with progressive vision loss and, in some cases, balance problems. Previous research has shown that people with USH have poor physical and psychological health. Research has, however, demonstrated that there are in-group health differences that have not yet been explored and that there is a lack of studies on life strategies as well as health in relation to working life.Aim: The aim was to explore the relationship between work and health in people with USH1 and 2 and to explore the experiences of life strategies in people with USH 2.Methods: A quantitative and a qualitative explorative design was employed comprising two cross-sectional studies of the relationship between work and health in people with USH2 (n=67) and USH1 (n=47). The third study, of life strategies, comprised focus group interviews with people with USH2a (n=14) analyzed by content analysis. The fourth study explored the lived experiences of working life by interviewing people with USH2 (n=7) using an interpretative phenomenological approach.Results: Study 1 and 2 demonstrated significant differences in health between working and nonworking people. Nonworking people showed significantly poorer health. In study 3, a variety of strategies to prevent and resolve challenges in life, as well as to comfort oneself was identified. The lived experiences of working life in people with USH2 (study 4) disclosed feelings of satisfaction, striving towards a work life balance. Work also disclosed feelings of limitations and uncertainty about the future.Conclusion: The results, which are discussed in relation to the Meikirsh model of health, demonstrated a complexity. Individual life strategies, psychological flexibility and environmental aspects, such as social determinants have to be considered to receive a comprehensive picture of the relationship between work and health in people with USH. This thesis provides new insights into the health of people with USH.
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- Ehn, Mattias, 1972-, et al.
(författare)
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The lived experiences of work and health of people living with deaf-blindness due to Usher syndrome type 2
- 2020
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - : Co-Action Publishing. - 1748-2623 .- 1748-2631. ; 15:1
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: This study aimed to explore lived experiences with working life from the perspective of people with deafblindness due to Usher syndrome type 2 (USH2).Background: A limited number of studies have explored working life of people with Usher syndrome. One study of individuals with USH2 showed that work active reported significantly better psychological health compared to non-working individuals.Methods: Seven participants aged 38-50 years with USH2 participated in interviews analysed by interpretative phenomenological analysis.Results: The analyses yielded four themes showing that work is a source of satisfaction and a commitment that needs to be balanced. It is also associated with facing limitations and feelings of uncertainty.Conclusion: Based on the psychology of work model we have demonstrated that work is associated with social connectedness, self-determination and a source of improved health outcomes. There are however also potential health hazards in people with USH2, indicating a need for balance between individual needs and resources, and an adapted environment, for maintaining or regaining health for actively working people with USH2.
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- van de Beek, Jaap, et al.
(författare)
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A conceptual study of OFDM-based multiple access schemes : Part 2: Channel estimation in the uplink
- 1996
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- This paper deals with the design of channel estimators in the uplink of an OFDM based multi-user system. First, we propose a user allocation scheme that is based on the aim to use the correlation of the radio channel for channel estimation purposes. Further, we present the linear MMSE channel estimator based on a few pilot tones. We present an error analysis that proves valuable in the evaluation of linear channel estimators under mismatch. Finally, we present some results on the design of linear channel estimators and pilot patterns, showing by means of examplesthe importance of careful pilot positioning.
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- van de Beek, Jaap, et al.
(författare)
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A conceptual study of OFDM-based multiple access schemes : Part 3: Performance evaluation of a coded system
- 1996
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- This paper is part of a conceptual study of a multiuser OFDM system. In previous reports we have examined requirements for the air interface and presented uncoded performance (in terms of bit error rate) for the uplink of such systems. In this report we adopt the user allocation structure from the previous parts of the study and examine the role of channel coding. We present performance simulations that illustrate the effects of a convolutional code exploiting channel diversity, and channel estimator performance exploiting the channel correlation.
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| 9. |
- van de Beek, Jaap, et al.
(författare)
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A conceptual study of OFDM-based multiple access schemes : Part 4: Tracking of time and frequency offset
- 1996
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- This paper is part of a conceptual study of a multiuser OFDM system. In previous reports we have examined requirements for the air interface and presented uncoded performance (in terms of bit error rate) for the uplink of such systems. In this report we adopt the user allocation structure from the previous parts of the study and examine the role of channel coding. We present performance simulations that illustrate the effects of a convolutional code exploiting channel diversity, and channel estimator performance exploiting the channel correlation.
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