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- Farnel, Sharon, et al.
(författare)
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The decolonization of arctic library and archives metadata (DALAM) thematic network at the University of the Artic
- 2024
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Ingår i: Library and information sciences in arctic and northern studies. - Cham : Springer. - 9783031547140 - 9783031547171 - 9783031547157 ; , s. 25-39
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Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- In 2022, the Polar Libraries Colloquy created a thematic network within the University of the Arctic thematic network’s structure to address the decolonization of metadata. Metadata, including archival description, subject headings, and other descriptive terminology, sometimes includes terms that are offensive to Indigenous peoples, incorrect, or too general to be useful. The purpose of the Decolonization of Arctic Library and Archives Metadata (DALAM) thematic network is to create an alliance of librarians, archivists, and other information professionals working in metadata decolonization. The network, provisionally approved in 2022, focuses on member education and information as well as resource sharing with the goal of improving efficiencies in circumpolar metadata decolonization efforts. This chapter details the creation of DALAM, its purpose, and its future activities.
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| 3. |
- Olsson, Ingrid, 1948, et al.
(författare)
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Medical problems in adolescents with myelomeningocele (MMC): an inventory of the Swedish MMC population born during 1986-1989
- 2007
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Ingår i: Acta Paediatr. - : Wiley. - 0803-5253 .- 1651-2227. ; 96:3, s. 446-9
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Tidskriftsartikel (refereegranskat)abstract
- AIM: To describe the prevalence of myelomeningocele (MMC) and the medical needs of adolescents, 15-18 years, with MMC in Sweden, at a time when they are on the threshold of adulthood, leaving paediatrics. METHODS: In a retrospective study, we identified all adolescents with MMC, born during 1986-1989 and living in Sweden on July 1, 2004. An inventory was agreed upon with questions concerning their medical problems and need for medical care. RESULTS: There were 175 persons 15-18 years of age, born with MMC or lipoMMC (prevalence 3.8 per 10,000). Hydrocephalus was seen in 86%, 31% had been operated because of tethered cord syndrome, and 6% for Chiari malformation symptoms. The majority had motor impairments. Clean intermittent catheterisation for bladder emptying was used by 85%, and 59% used enemas on a regular basis because of the neurogenic bowel dysfunction. Renal dysfunction was seen in 1.7% of the adolescents. CONCLUSION: Lifelong follow-up by many specialists, among others neurologists and neurosurgeons, urotherapists and urologists, orthopaedic surgeons and orthotists, is necessary for individuals with MMC. The complex medical situation, often in combination with cognitive difficulties, makes it necessary to coordinate medical services for this increasing group of adults with multiple impairments.
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