| 1. |
- Wilhelmsson, Anna-Britta, 1949-, et al.
(författare)
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Everyday life experiences among relatives of persons with mental disabilities
- 2010
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Ingår i: Procedia - Social and Behavioral Sciences. - : Elsevier BV. - 1877-0428. ; 2:2, s. 4896-4900
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Tidskriftsartikel (refereegranskat)abstract
- Mental disability is one of the most significant health problems facing Europe today. For example Statistics reveal that between 20 and 40 percent of the Swedish population suffer from some forms of mental disease, ranging from grave psychoses to less serious anxiety and fear. This study has aimed to illuminate the experiences of relativeś in terms of contacts with persons with mental disabilities. Eighteen tape-recorded interviews were conducted with close relatives of persons suffering from mental disabilities within the health care district of Umeå, Sweden. The results indicate that the daily lives guilt about not providing enough support for their relatives. In addition to feeling physically exhausted and worn out they felt as though they carried a large responsibility and lacked support and back-up in their daily life.
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| 2. |
- Wilhelmsson, Anna-Britta
(författare)
-
Everyday life experiences among relatives of persons with mental disabilities
- 2011
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Licentiatavhandling (övrigt vetenskapligt/konstnärligt)abstract
- This thesis, which consists of two articles and a policy analysis of the document SOU (Swedish Government Official Report), laying the ground for psychiatric reform, deals with everyday life experiences among 18 close relatives of persons with mental disabilities. This study was conducted among relatives of people with mental illness within a health care district in Northern Sweden. Relatives living in the community were recruited through advertisements in daily newspapers. The criterion for participation in the study was that the interviewees should be close relatives of persons with mental illness. This is an explorative, descriptive study using inductive qualitative content analysis of individual interviews with relatives of people with mental disabilities. The interviews focused on experiences of communicating with persons with mental disabilities in daily life situations. Articles I and II were analysed by means of qualitative content analysis. In order to deepen the understanding of the relatives’ situation and the consequences of the psychiatry reform, I put the relatives’ statements in a concluding dialogue in dialogue with an analysis of the policy documents that form the basis of the psychiatry reform. The overall aim was to illuminate and understand what the reform of psychiatric care in Sweden has meant for Swedish relatives of persons with mental disabilities in the light of the content of the Swedish psychiatry reform and its policy documents. Mental disability is one of the most serious health problems facing Europe today. For example, statistics reveal that between 20 and 40 percent of the Swedish population suffer from some forms of mental disease, ranging from grave psychoses to less serious anxiety and fear. The reform of psychiatric care in Sweden has passed much of the rehabilitation and daily care of these people on to their families. The results indicate that they feel guilty about not providing enough support for their relatives, whom they perceive to be in a vulnerable position. Family members wanted to be supportive, but felt that they also needed support in the form of better information, consistency throughout the various levels of care, and professional therapy for themselves as well. The result of this study shows that children of parents with mental disabilities want assistance, opportunities for participation in care, and information about their parents’ illness. Relatives feel that they need a kinder reception from the health care system, which should take better care of the whole family. All relatives could relate positive experiences, through open dialogue and relevant information gained from the staff in the hospital, related to timely care and support from care personnel The result indicates that the reform of psychiatric care in Sweden has put the light on the relatives, but for the relatives there is still no consensus among the different care providers, county municipal, and national social services who are involved in treatment.
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| 3. |
- Wilhelmsson, Anna-Britta, 1949-, et al.
(författare)
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Everyday life experiences among relatives of persons with mental disabilities represented in basic documents governing the Swedish psychiatric reform
- 2012
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Ingår i: US-China Education Review B. - CA, USA : David Publishing Company. - 2161-6248. ; 2:10, s. 849-857
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Tidskriftsartikel (refereegranskat)abstract
- Mental disability is one of the most serious health problems facing Europe today. The reform of psychiatric care inSweden has passed much of the rehabilitation and daily care of these people on to their families/relatives. The aim of this article is to analyze how the psychiatric reform in Sweden has affected everyday life experiences among close relatives of persons with mental disabilities. It is an explorative and descriptive study using inductive qualitative content analysis of 18 individual interviews with close relatives. In order to deepen the understanding of the relatives’ situation and the consequences of the psychiatry reform, the relatives’ statements are put in a dialogue with how problems are represented in documents that form the basis of the psychiatry reform. The results indicate that the reform of psychiatric care in Sweden has put the solution of problems on the relatives, but for the relatives, there is still no consensus among the different care providers, county council, and municipal and national social services that are involved in treatment. The results further indicate that the relatives feel guilty about not providing enough support for the persons with mental disabilities, and they expressed a need for personal support and a need for better information, consistency throughout the caring process and professional therapy for themselves as well. Children of parents with mental disabilities express a need for assistance, opportunities for participation in care, and information about their parents’ illness. Even though there are a lot of bad experiences, all relatives could also relate to positive experiences, i.e., open dialogues, relevant information, timely care, and support given by some hospital staff. We recommend that relatives’ experiences should be taken seriously in further reforms of the psychiatric care and that relatives meet in different kinds of supportive networks.
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| 4. |
- Wilhelmsson, Anna-Britta
(författare)
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Relatives’ experiences of care and caregivers in a psychiatric caring context
- 2011
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Ingår i: Procedia - Social and Behavioral Sciences. - : Elsevier. - 1877-0428. ; 30, s. 2296-2304
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Tidskriftsartikel (refereegranskat)abstract
- Reform of psychiatric care in Sweden, meant to improve support and coordination of care for people with mental illness, has passed much of the rehabilitation and daily care of these people on to their families. This study explores the psychiatric health care system as experienced by family members of people with mental illness. We conducted 18 tape-recorded interviews with close relatives of people with mental illness in the health care district in northem Sweden. The results show that they feel guilty about not providing enough support for their relatives, they are unsure of where to go for support and answers to their questions about their relative‟s diagnosis, prognosis, proposed date of discharge from hospital, and rehabilitation requirements. Most also feel the need of professional therapy for themselves. Serious criticism was levelled against the current reforms to psychiatric care in Sweden, which family members experienced as discontinuous and inconsistent between the different levels of municipal, county, and national health care and social services.
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| 5. |
- Wilhelmsson, Anna-Britta, et al.
(författare)
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Swedish state politics meets experiences among relatives of persons with mental disability
- 2013
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Ingår i: 3rd world conference on psychology, counseling and guidance, WCPCG-2012. - : Elsevier BV. ; , s. 711-718
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Konferensbidrag (refereegranskat)abstract
- Mental disability is one of the most serious health problems facing Europe today. The reform of psychiatric care in Sweden has passed much of the rehabilitation and daily care of these people on to their families/relatives. The aim of this article is to analyze how the psychiatric reform in Sweden affects everyday life experiences among close relatives of persons with mental disabilities. It is an explorative, descriptive study using inductive qualitative content analysis of 18 individual interviews with close relatives. In order to deepen the understanding of the relatives' situation and the consequences of the psychiatry reform, the relatives' statements are put in a dialogue with how problems are represented in documents that form the basis of the psychiatry reform. The result indicates that the reform of psychiatric care in Sweden has put the solution of problems on the relatives, but for the relatives there is still no consensus among the different care providers, county council, municipal and national social services that are involved in treatment. The results further indicate that the relatives feel guilty about not providing enough support for the persons with mental disabilities, and they expressed a need for personal support; a need for better information, consistency throughout the caring process and professional therapy for themselves as well. Children of parents with mental disabilities though there are a lot of bad experiences, all relatives could also relate to positive experiences, i.e. open dialogues, relevant information and timely care and support given by some hospital staff. We recommend that relatives' experiences are taken seriously in further reforms of the psychiatric care and that relatives meet in different kinds of supportive networks.(C) 2013 The Authors. Published by Elsevier Ltd.
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