| 1. |
- Arvidsson, Patrik, et al.
(författare)
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Content validity and usefulness of Picture My Participation for measuring participation in children with and without intellectual disability in South Africa and Sweden
- 2020
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Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa UK Limited. - 1103-8128 .- 1651-2014. ; 27:5, s. 336-348
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Tidskriftsartikel (refereegranskat)abstract
- Background: Participation comprises attendance and involvement in everyday situations. Picture My Participation (PmP) is an instrument intended to measure participation in children with disabilities, particularly in low and middle income countries. Aim: To investigate content validity and usefulness of PmP for measuring participation in children with intellectual disability (ID) in South Africa and Sweden. Methods: A picture supported interview with 149 children, 6-18 years, with and without ID. Twenty everyday activities were provided. The three most important activities were selected by the child. Attendance was rated on all activities. Involvement was rated on the most important. Results: All activities were selected as important by at least one child with ID in both countries. There were similarities in perceived importance between the children with and without ID from South Africa. The children from South Africa with ID were the only subgroup that used all scale points for rating attendance and involvement. Conclusion: The 20 selected activities of PmP were especially relevant for children with ID in South Africa. The usefulness of the scales was higher for the children with ID in both countries. PmP is promising for assessing participation across different settings but psychometrical properties and clinical utility need further exploration.
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| 2. |
- Arvidsson, Patrik, et al.
(författare)
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Structural validity and internal consistency of Picture My Participation : A measure for children with disability
- 2021
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Ingår i: African Journal of Disability. - : OASIS. - 2226-7220 .- 2223-9170. ; 10
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Tidskriftsartikel (refereegranskat)abstract
- Background: Picture My Participation (PMP) intended to measure participation, defined as attendance and involvement in everyday situations, of children with disabilities, particularly in low- and middle-income settings.Objectives: To explore structural validity of PMP by identifying possible subcomponents in the attendance scale and examining internal consistency of the total score and each subcomponent.Method: A picture-supported interview was conducted with 182 children, 7–18 years, with and without intellectual disability (ID). Frequency of attendance in 20 activities was rated on a four-point Likert scale (never, seldom, sometimes and always).Results: An exploratory principal component analysis extracted four subcomponents: (1) organised activities, (2) social activities and taking care of others, (3) family life activities and 4) personal care and development activities. Internal consistency for the total scale (alpha = 0.85) and the first two subcomponents (alpha = 0.72 and 0.75) was acceptable. The two last subcomponents alpha values were 0.57 and 0.49.Conclusion: The four possible subcomponents of PMP can be used to provide information about possible domains in which participation and participation restrictions exist. This study provided further psychometric evidence about PMP as a measure of participation. The stability and the utility of these subcomponents needed further exploration.
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| 3. |
- Balton, Sadna, et al.
(författare)
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Test-retest reliability of Picture My Participation in children with intellectual disability in South Africa
- 2022
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Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa UK Limited. - 1103-8128 .- 1651-2014. ; 29:4, s. 315-324
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Tidskriftsartikel (refereegranskat)abstract
- Background Picture My Participation (PmP) is a promising instrument for measuring the participation in everyday situations of children with intellectual disability (ID), particularly in low- and middle-income countries. Aim To explore test-retest reliability of PmP by comparing two repeated measurements of children with ID in an urban context in South Africa. Methods A picture-supported interview with 31 children with ID, aged 7-17 years, was conducted twice, two weeks apart. The children rated their participation, operationalised as attendance and involvement, in 20 everyday activities. Analyses were completed for total scores, for the four subcomponents and at item level. Results Test-retest agreement at an item level for both attendance and involvement showed slight/fair agreement for most activities (Kappa = 0.01-0.40), and moderate agreement for some activities (Kappa = 0.41-0.60). Moderate agreement was shown for the total scale and at component level (ICC = 0.5-0.75), except for (firstly) attendance of and involvement in 'Family Activities' (ICC = 0.26 for attendance, 0.33 for involvement), and (secondly) involvement in 'Personal Activities' (ICC = 0.33). Conclusion The result indicates that PmP can reliably be used at component level and as a screening tool for intervention planning to identify participation and participation restrictions in children with ID.
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| 4. |
- Dada, Shakila, et al.
(författare)
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A review of interventions for children and youth with severe disabilities in inclusive education
- 2023
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Ingår i: Cogent Education. - : Taylor & Francis. - 2331-186X. ; 10:2
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Forskningsöversikt (refereegranskat)abstract
- Children with severe disabilities are often excluded from educational opportunities due to inter alia attitudinal barriers and a lack of teacher training. This scoping review paper assessed intervention studies focused on inclusive education for children with severe disabilities. It was found that a total of 13 studies met the review's inclusion criteria. The results revealed a paucity of literature and highlighted five main areas of focus in the available intervention studies. The majority of intervention studies were found to be focused on increasing engagement, reducing behaviours and improving social inclusion as outcomes. There was limited focus on studies focusing on the improvement of academic outcomes.
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| 5. |
- Dada, Shakila, et al.
(författare)
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Agreement between participation ratings of children with intellectual disabilities and their primary caregivers
- 2020
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Ingår i: Research in Developmental Disabilities. - : Elsevier. - 0891-4222 .- 1873-3379. ; 104
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Tidskriftsartikel (refereegranskat)abstract
- Background: Participation of children with ID it is argued must be understood in relation to the fit with the environment. Since caregivers are a vital factor within the close environment of a child with intellectual disability, their perceptions are unequivocally important.Aims: The main aim of this study is to describe the self-reported participation of children with ID and the perceptions of their primary caregivers. Both frequency of attendance and perceived importance of activity was measured with self-reported and proxy-reports.Methods & Procedures: A custom developed Picture my Participation (PmP) survey was utilised in an interview format with children with intellectual disability whilst their primary caregivers completed the survey independently.Results: Overall, the perceptions of children with intellectual disabilities and of primary caregivers showed similarities regarding attendance and activities considered important. On group level, both children and primary caregivers perceived the child to have a high level of attendance ofFormal learning in school, Family mealtime, Interacting with family and Celebrations. An overall poor agreement in perceived frequency of attendance was found. However, in child-primary cargiver-dyads poor agreement in perceived frequency of attendance was found.Conclusions: While primary caregivers and children's ratings of attendance and selection of the most important activities appeared somewhat similar, there was a noted difference, in that primary caregivers’ were uniform in their selection, whilst there was a diversity in the selection of activities amongst children.
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| 6. |
- Dada, Shakila, et al.
(författare)
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ATTITUDES TOWARDS AN UNFAMILIAR PEER WITH COMPLEX COMMUNICATION NEEDS USING AN IPAD™ WITH AAC SOFTWARE AND A COMMUNICATION BOARD : Perspectives of Adolescents with Physical Disabilities1
- 2023
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Ingår i: The Routledge Handbook of Inclusive Education for Teacher Educators: Issues, Considerations, and Strategies. - London : Taylor and Francis Inc.. ; , s. 105-120
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Bokkapitel (populärvet., debatt m.m.)abstract
- This study considered the attitudes of adolescents with physical disabilities towards an unfamiliar peer with complex communication needs who uses augmentative and alternative communication (AAC). The study aimed to determine and compare the attitudes of adolescents with physical disabilities when an unfamiliar peer used a general consumer-level mobile technology device with an AAC application (iPad™ with Proloquo2Go™) versus a low technology communication board. A non-experimental descriptive survey design was used involving 35 adolescents with physical disabilities. The participants were divided into two groups using paired randomization. Group A viewed DVD-1 showing an unfamiliar peer with complex communication needs in a scripted conversation with a communication partner using an iPad with Proloquo2Go. Group B viewed DVD-2, which showed the same interaction using a communication board. The participants completed the Communication Aid/Device Attitudinal Questionnaire (CADAQ) after watching the DVD. The results indicate the unfamiliar peer was viewed more positively by adolescents with physical disabilities when using the iPad with Proloquo2Go as compared to the communication board, with a statistically significant difference in the affective/behavioural and cognitive/belief components of the CADAQ. The use of general consumer-level mobile technologies with AAC applications should therefore be considered for use by adolescents who use AAC.
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| 7. |
- Dada, Shakila, et al.
(författare)
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Attitudes towards an unfamiliar peer with complex communication needs using an iPad with AAC software and a communication board : Perspectives of adolescents with physical disabilities 1
- 2023
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Ingår i: The Routledge Handbook of Inclusive Education for Teacher Educators. - London : Routledge Publishing. - 9781003266068 ; , s. 105-119
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Bokkapitel (refereegranskat)abstract
- This study considered the attitudes of adolescents with physical disabilities towards an unfamiliar peer with complex communication needs who uses augmentative and alternative communication (AAC). The study aimed to determine and compare the attitudes of adolescents with physical disabilities when an unfamiliar peer used a general consumer-level mobile technology device with an AAC application (iPad™ with Proloquo2Go™) versus a low technology communication board. A non-experimental descriptive survey design was used involving 35 adolescents with physical disabilities. The participants were divided into two groups using paired randomization. Group A viewed DVD-1 showing an unfamiliar peer with complex communication needs in a scripted conversation with a communication partner using an iPad with Proloquo2Go. Group B viewed DVD-2, which showed the same interaction using a communication board. The participants completed the Communication Aid/Device Attitudinal Questionnaire (CADAQ) after watching the DVD. The results indicate the unfamiliar peer was viewed more positively by adolescents with physical disabilities when using the iPad with Proloquo2Go as compared to the communication board, with a statistically significant difference in the affective/behavioural and cognitive/belief components of the CADAQ. The use of general consumer-level mobile technologies with AAC applications should therefore be considered for use by adolescents who use AAC.
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| 8. |
- Dada, Shakila, et al.
(författare)
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The involvement matrix as a framework for involving youth with severe communication disabilities in developing health education materials
- 2022
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Ingår i: Health Expectations. - : Wiley. - 1369-6513 .- 1369-7625. ; 25:3, s. 1004-1015
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Tidskriftsartikel (refereegranskat)abstract
- Introduction: Involving youth with severe communication disabilities in health research is foregrounded in a perspective of rights and participation. Researchers aligned with a participatory and inclusive research agenda recommend that involving youth in health research should be a deliberate and well-planned process. However, limited examples exist of how researchers can facilitate the involvement of youth with severe communication disabilities in research projects.Method: The aim of this paper was to describe the application of the Involvement Matrix as a conceptual framework to guide the three phases of a research project with youth with severe communication disabilities.Results: Six youth aged 19–34 years consented to be involved in the project. All youth had a severe communication disability and used augmentative and alternative communication (AAC) to support their involvement in the research project. The Involvement Matrix provided a structure to delineate four involvement roles in three research phases: In Phase 1, youth were listeners to research information and advisors in the needs analysis. In Phase 2, as advisors and decision-makers, youth provided their opinions on selecting picture communication symbols for health materials. In Phase 3, as partners, they were copresenters at an online youth forum.Conclusion: The Involvement Matrix was used to plan and implement the involvement of youth with severe communication disabilities in codeveloping health materials for use during the COVID-19 pandemic. The Involvement Matrix can be applied together with AAC to enable meaningful involvement of youth in a health research project as listeners, advisors, decision-makers and partners.Patient or Public Contribution: This study project was codeveloped with youth with severe communication disabilities who use AAC in South Africa. A person with lived experience was involved as an advisor to the health material development process and in the drafting of the manuscript.
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| 9. |
- Johnels, Linn, 1978-, et al.
(författare)
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The effect of MultiSensory Music Drama on the interactive engagement of students with severe/profound intellectual and multiple disabilities
- 2024
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Ingår i: British Journal of Learning Disabilities. - 1354-4187 .- 1468-3156. ; 52:1, s. 150-165
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Tidskriftsartikel (refereegranskat)abstract
- Background: Interactive engagement, specifically attention and initiation, are considered important skills for facilitating development and learning in students with severe/profound intellectual and multiple disabilities. Prior research has suggested that music therapy and multisensory storytelling are two promising interventions for supporting interactive engagement in this population. However, there are no known/published studies that have investigated the effect of combining relevant elements from musical interaction and multisensory storytelling for this group of students. This study aims to determine the effect of a novel educational approach—MultiSensory Music Drama (MSMD)—on the interactive engagement of students with severe/profound intellectual and multiple disabilities.Methods: A single-case experimental design, specifically an ABAB design across three participants, was used to describe the effect of MSMD on interactive engagement when compared with a control activity. School staff members' perceptions of student interactive engagement and social validity were obtained.Findings: Coded video observations showed significantly higher levels of interactive engagement during MSMD for all three participants when compared to the control activity. Furthermore, the ratings on the interactive engagement from school staff members improved for two of the three participants. Finally, school staff members scored the social validity and perceived educational usefulness of the MSMD as very high.Conclusions: The findings provide initial evidence that MSMD may be effective in supporting the interactive engagement of some students with severe/profound intellectual and multiple disabilities.
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| 10. |
- Kyarkanaye, Thilendree, et al.
(författare)
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Collaboration in early childhood intervention services in Gauteng : caregiver perspectives
- 2017
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Ingår i: Infants and young children. - : Lippincott Williams & Wilkins. - 0896-3746 .- 1550-5081. ; 30:3, s. 238-254
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Tidskriftsartikel (refereegranskat)abstract
- A central tenant of early childhood intervention (ECI) is collaboration between professionals and the caregivers of children receiving these services. There are limited studies on caregiver perceptions of collaboration in ECI teams particularly in resource-limited countries. Sixty-four caregivers participated in this study by completing a questionnaire on their perceptions of collaboration in ECI services in South Africa. The questionnaire survey was administered in a group setting by a trained research assistant who was proficient in the Setswana language. The results revealed that caregivers have a good understanding of collaboration in ECI services. However, collaboration, in relation to family-centered practices, appeared to be undervalued by caregivers. These results are discussed and the limitations of the study as well as future recommendations are outlined.
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| 11. |
- Njabulo, Mbanda, et al.
(författare)
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A scoping review of the use of visual aids in health education materials for persons with low-literacy levels
- 2021
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Ingår i: Patient Education and Counseling. - : Elsevier. - 0738-3991 .- 1873-5134. ; 104:5, s. 998-1017
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Forskningsöversikt (refereegranskat)abstract
- Objective To conduct a scoping review on the literature on visual aids in health education for persons with low-literacy.Methods A scoping review methodology was employed. Pre-defined selection criteria identified 47 studies for inclusion. Data were extracted in relation to: (a) definitions of low-literacy and health literacy, (b) population studied, (c) research country, (d) consent procedures, (e) visual aids used, (f) development of visual aids, and (g) targeted outcomes.Results Visual aids developed with persons with low-literacy demonstrated statistically significant improvements in health literacy outcomes, with benefits in medication adherence and comprehension also reported. Pictograms and videos were the most effective visual aids. Only one study adapted consent procedures for low-literacy participants.Discussion Visual aids in health education materials may benefit persons with low-literacy levels, but large gaps in the research base are evident. Experimental research in low- and middle-income countries, with a particular focus on consent for participants with low-literacy is needed.Practice implications Visual aid design needs to include stakeholders. Consent procedures and decision-making need to be specifically adapted for participants with low-literacy.
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| 12. |
- Prinsloo, Pauline, et al.
(författare)
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The application of the family of participation-related constructs (fPRC) framework to AAC intervention outcomes in children with complex communication needs : a scoping review
- 2023
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Ingår i: Augmentative and Alternative Communication. - : Taylor & Francis. - 0743-4618 .- 1477-3848.
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Forskningsöversikt (refereegranskat)abstract
- Participation is a fundamental human right, and being able to communicate is an essential component of participation in various life situations, such as at school, with peers, and in the community. Augmentative and alternative communication (AAC) interventions aim to facilitate communication and social interaction, independence, and participation in all aspects of life. The purpose of this study was to summarize and map the AAC intervention outcomes for children with complex communication needs onto the Family of Participation-Related Constructs (fPRC) framework. The scoping review identified 270 studies for inclusion, and the data gathered was extracted and mapped onto the fPRC framework. The results indicate that although many studies have reported on participation-related constructs such as activity competence and context, there is still insufficient focus on attendance and involvement, sense of self, and environment constructs. Hence, future research in the field of AAC is needed on the various constructs of participation proposed by the fPRC framework.
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| 13. |
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| 14. |
- Schlebusch, Liezl, et al.
(författare)
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Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder
- 2017
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Ingår i: Journal of autism and developmental disorders. - : Springer. - 0162-3257 .- 1573-3432. ; 47:7, s. 1966-1977
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Tidskriftsartikel (refereegranskat)abstract
- This article describes the family quality of life among families who are raising a young child with autism spectrum disorder. Survey research was conducted with 180 families of children with autism spectrum disorder who were receiving disability-related services in the Gauteng province of South Africa. The principle measure used was the Beach Center Family Quality of Life Scale to assess five subdomains: family interaction, parenting, emotional well-being, material/physical well-being, and disability-related support. Results indicated that families felt the most satisfied with disability-related support and the least satisfied with the family's emotional well-being. Family income, family type, and the severity level of autism were significantly associated with how satisfied families felt about their quality of life.
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| 15. |
- Schlebusch, Liezl, et al.
(författare)
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Participation of young people with disabilities and/or chronic conditions in low- and middle-income countries : a scoping review
- 2020
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Ingår i: Developmental Medicine & Child Neurology. - : John Wiley & Sons. - 0012-1622 .- 1469-8749. ; 62:11, s. 1259-1265
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Forskningsöversikt (refereegranskat)abstract
- AimThe purpose of this scoping review was to describe and map the literature available on the participation of young people (0–21y) with disabilities and/or chronic conditions living in low- and middle-income countries (LMICs).Method A systematic search and selection process identified 78 publications. Descriptive data were extracted using a data-charting form, and studies were mapped using the family of participation-related constructs framework.ResultsThe findings demonstrated that, although the published evidence is steadily increasing, the participation research on this vulnerable population is still either absent or very scarce in the majority of LMICs, and very little is known about the participation of children with chronic health conditions. Most studies included in this review focused on attendance or ‘being there’.InterpretationAlthough attendance is an important aspect, more needs to be done to understand children’s experiences or involvement while attending, thus capturing both dimensions of participation.
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