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- Berbyuk Lindström, Nataliya, 1978, et al.
(författare)
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MHealth in Pediatric Oncology Care Development of Mobile Support for Family Members of Children with Cancer in Ethiopia
- 2021
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Ingår i: ICIS 2021 TREO Talks, Dec 12-15, Austin, Texas.. - : Association for Information Systems AIS Electronic Library (AISeL) AIS Electronic Library (AISeL).
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Konferensbidrag (refereegranskat)abstract
- Cancer is a major burden in Ethiopia. The Oncology Department of Black Lion Specialized Hospital in Addis Ababa is the country’s sole specialist unit for cancer care. With a handful of oncologists, lack of resources, and a huge patient load, the work is extremely challenging. Patients, usually accompanied by family members, often wait for a long time and frequently depart without getting information or treatment (Kebede et al., 2020). Family members of children with cancer are especially vulnerable, experiencing a lack of information, support, and stigmatization, resulting in distress, depression, and anxiety (Deribe et al., 2021). In Africa, the use of mobile phones is rapidly increasing, turning mHealth applications into an accessible tool for providing opportunities to overcome disparities in access to health services and health information (Nyende, 2020). In our planned project, we aim at developing a pediatric cancer information app targeted at family members in Ethiopia. First, we will assess the information needs by interviewing parents/caregivers of children diagnosed with the most common cancer types, represented in the country. We will also interview oncologists and nurses. Next, based on the analysis of interviews, we will develop a prototype in collaboration with the staff from Black Lion Hospital, Sahlgrenska University, and RISE Institute. The prototype will be tested by family members and staff in different parts of Ethiopia. Finally, we will evaluate the test results and develop the final version of the application. The outcomes of this study will help to increase access to information about pediatric cancer, contributing to decreasing psychological problems and improving quality of life for families with children with cancer. As the number of oncology centers and health providers in Ethiopia is limited, the project will also contribute to minimizing the burden for health care providers.
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| 2. |
- Deribe, Leul, et al.
(författare)
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Family-centered care for child cancer treatment in Ethiopia—A qualitative descriptive study
- 2024
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Ingår i: Journal of Pediatric Nursing. - 0882-5963.
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Tidskriftsartikel (refereegranskat)abstract
- Background: Families are the primary source of support and strength in the care process of children with cancer. Family-centered care (FCC) is a healthcare delivery approach that considers parents as both partners and care recipients, characterized by providing care based on dignity and respect, information sharing, participation, and collaboration or partnership. Aim: This study aimed to describe the delivery of care based on the family-centered care approach at the Tikur Anbessa Specialized Hospital pediatric cancer unit. Method: An exploratory, descriptive qualitative study was conducted from March 2023 to August 2023. Eighteen participants (thirteen parents and five health care providers) were interviewed using a semi-structured interview guide. All interviews were audio-recorded, transcribed verbatim, and translated into English. The translated transcripts were used for inductive, data-driven thematic analysis. ATLAS.ti 9 software was used to assist the analysis process. Result: Two themes have emerged during the analysis. These are (1) Information sharing, and (2) Enabling and partnership. Under the information sharing theme, we described parents' understanding of child cancer, parents' information-related expectations, the process of obtaining information, adequacy of information received, and factors inhibiting information sharing. Under the enabling and partnership theme, we presented family participation in childcare, discussion among parents, parents' communication with healthcare providers and psychosocial support. Conclusion: Suboptimal implementation of family-centered care practice was identified at the pediatric oncology unit. Practice implications: The findings from this study indicate the need to strengthen the provision of child cancer-related information, improve communication, and strengthen family participation in childcare.
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| 3. |
- Deribe, Leul, et al.
(författare)
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Level of Family centered care and associated factors among parents of children with cancer at tertiary level hospital, Ethiopia
- 2024
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Ingår i: Journal of Pediatric Nursing : Nursing Care of Children and Families. - 0882-5963.
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Tidskriftsartikel (refereegranskat)abstract
- Objective To determining level and factors affecting Family Centered Care (FCC) in pediatric oncology unit of Tikur Anbessa Specialized hospital (TASH), Ethiopia. Method A cross sectional study was conducted from June to December 2022. Three hundred ninety-three parents of children with cancer were consecutively interviewed using Measure of Processes of Care (MPOC-20). Multivariable linear regression was used to identify independent predictors of FCC. Result The total MPOC 20 means was 3.71(SD = 1.04). The mean score for respectful and supportive care, coordinated and comprehensive care, enabling and partnership, providing specific information and providing general information were found to be 4.8, 4.6, 3.7, 2.3 and 2.6, respectively. Family employment (−0.33(95% CI = −0.63, −0.03; P = .029)), low family education (−0.40 (95% CI = −0.70, −0.11; P = .008)), referral cases (−0.37(95% CI = −0.59, −0.14; P = .001)), shorter time spent in hospital (−0.49(95% CI = −0.85, −0.12; P = .010)) and psychological distress (−0.01(95% CI = −0.026, −0.001; P = .028)) were associated with lower mean score of FCC. Conclusion The total FCC mean score was found to be low. From the five FCC components providing general and specific information scored the lowest mean level. Practice implications Mechanism to improve information delivery that address parents from different background and referred from other health facility should be in place in order to improve FCC level. In addition, the FCC should be designed to address parents of children with different lengths of stay.
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| 4. |
- Deribe, Leul, et al.
(författare)
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Stress and coping strategies among parents of children with cancer at Tikur Anbessa Specialized Hospital paediatric oncology unit, Ethiopia: a phenomenological study
- 2023
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Ingår i: BMJ. British Medical Journal. - : BMJ. - 0959-8146. ; 13:e065090, s. 1-13
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Tidskriftsartikel (refereegranskat)abstract
- Objective This study explores sources of stress, conditions that help reduce stress levels and coping strategies among parents of children with cancer receiving chemotherapy at Tikur Anbessa Specialized Hospital (TASH) in Ethiopia. Design A qualitative phenomenological approach was used. Setting Parents of children receiving chemotherapy at the TASH paediatric oncology unit. Participants Fifteen semistructured in-depth interviews were conducted with nine mothers and six fathers of children with cancer from November 2020 to January 2021. Results Sources of stress related to child’s health condition as the severity of the child’s illness, fear of treatment side effects and loss of body parts were identified. Parents mentioned experiencing stress arising from limited access to health facilities, long waiting times, prolonged hospital stays, lack of chemotherapy drugs, and limited or inadequate information about their child’s disease condition and treatment. Other sources of stress were insufficient social support, stigmatisation of cancer and financial problems. Conditions decreasing parents’ stress included positive changes in the child’s health, receiving cancer treatment and access to drugs. Receiving counselling from healthcare providers, getting social support and knowing someone who had a positive treatment outcome also helped reduce stress. Coping strategies used by parents were religious practices including prayer, crying, accepting the child’s condition, denial and communication with health providers. Conclusion The main causes of stress identified by parents of children with cancer in Ethiopia were the severity of their child’s illness, expectations of poor treatment outcomes, unavailability of cancer treatment services and lack of social/financial support. Measures that should be considered to reduce parents’ stress include providing psycho-oncological care for parents and improving the counselling available to parents concerning the nature of the child’s illness, its treatment, diagnostic procedures and treatment side effects. It may also be helpful to establish and strengthen family support groups and parent-to-parent communication, improve the availability of chemotherapy drugs and offer more education on coping strategies.
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