| 1. |
- Borgestig, Maria, et al.
(författare)
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Nya möjligheter i vardagen – ögonstyrd dator för personer med omfattande funktionsnedsättning
- 2019
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Konferensbidrag (refereegranskat)abstract
- Bakgrund/SyfteÖgonstyrd dator har potential att ge nya möjligheter för personer med omfattande funktionsnedsättning och kan vara det enda sättet för dessa att på egen hand utföra vardagsaktiviteter. Syftet med symposiet är att delge forskningsresultat och kliniska tillämpningar kring användning av ögonstyrd dator i vardagen.Metod/TillvägagångssättSymposiet består av korta presentationer (10-15 min) av fyra presentatörer: forskare, yrkesverksam arbetsterapeut samt logoped inom området. Användning av ögonstyrd dator kommer rapporteras utifrån; en interventionsstudie med longitudinell design (10 barn, omfattande funktionsnedsättning), två kvalitativa studier (föräldrars och lärares perspektiv), fallstudier med litet barn (9 månader) respektive ungdom med Rett syndrom, nationell enkätundersökning (171 användare, 4-81 år). Utvecklingsprojekt om upplägg i datorn för att erbjuda färdiga lösningar kommer också rapporteras.Resultat/Preliminärt resultatInterventionen visar att ögonstyrd dator är användbart som hjälpmedel för barn i olika åldrar och med olika diagnoser. Utifrån föräldrars och lärares perspektiv kan barnen påverka sin situation genom ögonstyrd dator vilket ger hopp inför framtiden. Fallstudierna kommer rapportera nyttan med ögonstyrd dator som tidig intervention för att gradvis lära sig utföra aktiviteter samt hur aktivt deltagande i vardagen kan påverkas. Enkätundersökningen visar på olika aspekter av användbarheten med ögonstyrd dator för personer med funktionsnedsättning. Färdiga upplägg för kommunikation, fritidsaktiviteter och lärandesituationer kommer också presenteras.Slutsats/Praktisk tillämpningSymposiet ger fördjupade kunskaper och förståelse för hur ögonstyrd dator kan bidra till och används för lek, kommunikation, skol- och arbetsuppgifter av personer med omfattande funktionsnedsättning.Deltagare på symposiet kommer få delge sina erfarenheter och delta i diskussion om hur forskningsresultat kan bidra till förståelse, möjligheter och tillämpning av ögonstyrd dator.
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| 2. |
- Hemmingsson, Helena, 1957-, et al.
(författare)
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Eye-Gaze Control Technology as Early Intervention for a Non-Verbal Young Child with High Spinal Cord Injury : A Case Report
- 2018
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Ingår i: Technologies. - : MDPI AG. - 2227-7080. ; 6:1
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Tidskriftsartikel (refereegranskat)abstract
- Assistive technology (AT) can be used as early intervention in order to reduce activity limitations in play and communication. This longitudinal case study examines eye-gaze control technology as early intervention for a young child with high spinal cord injury without the ability to make sounds. The young child was followed by repeated measures concerning performance and communication from baseline at 9 months to 26 months, and finalized at 36 months by field observations in the home setting. The results showed eye-gaze performance and frequency of use of eye-gaze control technology increased over time. Goals set at 15 months concerning learning and using the AT; naming objects and interactions with family was successfully completed at 26 months. Communicative functions regarding obtaining objects and social interaction increased from unintentional actions to purposeful choices and interactions. At 36 months, the toddler was partly independent in eye gazing, used all activities provided, and made independent choices. In conclusion, the results show that a 9-month-old child with profound motor disabilities can benefit from eye-gaze control technology in order to gradually perform activities, socially interact with family members, and make choices.
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| 4. |
- Wandin, Helena, et al.
(författare)
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A Scoping Review of Aided AAC Modeling for Individuals With Developmental Disabilities and Emergent Communication
- 2023
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Ingår i: Current Developmental Disorders Reports. - : Springer Science and Business Media Deutschland GmbH. - 2196-2987. ; 10:2, s. 123-131
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Forskningsöversikt (refereegranskat)abstract
- Purpose of Review Aided AAC modeling is an umbrella term for when communication partners model language on an aided AAC system to support an individual’s comprehension and/or communication development. This scoping review aims to provide an overview of aided AAC modeling studies targeting individuals with emergent communication and describing features and findings from these studies.Recent Findings Research on interventions that includes aided AAC modeling is growing. Recent studies cover interventions for individuals that previously were excluded, such as individuals who use alternative access methods to select symbols.Summary A search yielded 29 studies that encompassed a total of 237 participants using emergent communication. Positive outcomes from the aided AAC modeling interventions were reported in the majority of the studies. In future research, a clear description of the different components of the interventions and their expected effect on the outcome may assist in comparing the effect of different types of aided AAC modeling interventions.
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| 6. |
- Johnels, Linn, 1978-, et al.
(författare)
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The effect of MultiSensory Music Drama on the interactive engagement of students with severe/profound intellectual and multiple disabilities
- 2024
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Ingår i: British Journal of Learning Disabilities. - 1354-4187 .- 1468-3156. ; 52:1, s. 150-165
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Tidskriftsartikel (refereegranskat)abstract
- Background: Interactive engagement, specifically attention and initiation, are considered important skills for facilitating development and learning in students with severe/profound intellectual and multiple disabilities. Prior research has suggested that music therapy and multisensory storytelling are two promising interventions for supporting interactive engagement in this population. However, there are no known/published studies that have investigated the effect of combining relevant elements from musical interaction and multisensory storytelling for this group of students. This study aims to determine the effect of a novel educational approach—MultiSensory Music Drama (MSMD)—on the interactive engagement of students with severe/profound intellectual and multiple disabilities.Methods: A single-case experimental design, specifically an ABAB design across three participants, was used to describe the effect of MSMD on interactive engagement when compared with a control activity. School staff members' perceptions of student interactive engagement and social validity were obtained.Findings: Coded video observations showed significantly higher levels of interactive engagement during MSMD for all three participants when compared to the control activity. Furthermore, the ratings on the interactive engagement from school staff members improved for two of the three participants. Finally, school staff members scored the social validity and perceived educational usefulness of the MSMD as very high.Conclusions: The findings provide initial evidence that MSMD may be effective in supporting the interactive engagement of some students with severe/profound intellectual and multiple disabilities.
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| 7. |
- Klang, Nina, 1978-, et al.
(författare)
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Barn med flerfunktionsnedsättning - samspel och social inkludering : Rapport från ett samverkansprojekt
- 2019
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Vi presenterar en rapport från ett samarbetsprojekt mellan lärare från en skola i Uppsala och forskare från Uppsala och Stockholms universitet. Idén till projektet uppkom i samband med en AIMday funktionshinder, då lärarna i en grundsärskoleklass med elever med flerfunktionsnedsättning kom med frågan “Hur främjar man inkludering?” Några år innan projektet startade flyttades grundsärskolan till lokaler som är avgränsade från resten av skolan. Skolgårdarna låg inte nära varandra vilket innebar att eleverna från grundsärskolan och grundskolan inte möttes naturligt på rasterna. Organisationen förändrades också så att olika rektorer ansvarade för grundsärskolan och grundskolan. Lärarna på grundsärskolan upplevde att deras elever var isolerade och att de skulle ha glädje av mer kontakt med elever från grundskolan. För att få till stånd en förändring påbörjade de ett samarbete med förskoleklassen där eleverna från förskoleklassen besökte grundsärskoleklassen. Lärarna ville ha stöd från forskare i projektet. Ett samarbete startade och lekaktiviteter för att främja samspelet mellan barn med och utan funktionsnedsättningar prövades. Forskarna deltog som bollplank, följde lekaktiviteterna med hjälp av videoobservationer och intervjuer. Forskarna och lärarna diskuterade och dokumenterade de rutiner lärarna redan påbörjat. Projektet genomfördes med stöd från Vinnova Step-up och Forum för samverkan vid Uppsala universitet.
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| 10. |
- Townend, Gillian S, et al.
(författare)
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Development of consensus-based guidelines for managing communication of individuals with Rett syndrome
- 2020
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Ingår i: Augmentative and Alternative Communication. - : Taylor & Francis Group. - 0743-4618 .- 1477-3848. ; 36:2, s. 71-81
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Tidskriftsartikel (refereegranskat)abstract
- Difficulties with communication have a profound impact on the lives of individuals with Rett syndrome and their caregivers. Globally, many families report difficulty accessing appropriate and timely information and services from professionals with expertise in augmentative and alternative communication (AAC) as it pertains to Rett syndrome. To address this need, international consensus-based guidelines for managing the communication of individuals with Rett syndrome were developed by combining available evidence and lived experience with expert opinion. A two-phase Delphi survey was built on statements and recommendations extracted from a review of over 300 pieces of literature combined with survey responses from communication professionals and caregivers. All statements that reached a pre-determined threshold of >= 70% agreement were incorporated into guidelines that consist of 268 statements and recommendations relating to (a) rights of the individual; (b) beliefs and attitudes of communication partners; (c) professional knowledge and team work; (d) strategies to optimize engagement; (e) assessment; and (f) intervention (targets and goals, techniques), including the use of AAC. To date, this project is the largest of its kind, with 650 participants from 43 countries contributing to development of consensus-based guidelines for Rett syndrome.
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| 11. |
- Wandin, Helena, 1971-, et al.
(författare)
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A trained communication partner's use of responsive strategies in aided communication with three adults with Rett syndrome : A case report
- 2022
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Ingår i: Frontiers in Psychology. - : Frontiers Media S.A.. - 1664-1078. ; 13
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To explore and describe a trained communication partner’s use of responsive strategies in dyadic interaction with adults with Rett syndrome.Introduction: Responsive partner strategies facilitate social, communicative, and linguistic development. The common feature is that the communication partner responds contingently to the other’s focus of attention and interprets their acts as communicative. Research on responsive partner strategies that involves individuals with significant communication and motor disabilities remains sparse. The same applies to if, and how, the use of communication aids impacts on the partner’s use of responsive strategies.Materials and methods: A therapist, trained in responsive partner strategies and aided communication interacted during 14 sessions with each of three participants. The participants were adults with Rett syndrome. A gaze-controlled device and responsive strategies were used during all sessions. The Responsive Augmentative and Alternative Communication Style scale (RAACS) was used to assess the partner’s responsiveness. RAACS consists of 11 items including ratings of to what extent the partner is being attentive to, confirms, and expands the individual’s communication. During eight of the 14 sessions, aided AAC Modelling was also used, i.e., the communication partner pointed at symbols on the gaze-controlled device while interacting. In addition to RAACS, each time the communication partner confirmed or expanded on communication when (a) the participants used the gaze-controlled device and (b) the participants did not use the gaze-controlled device was counted. Descriptive statistics were used to present the results. Non-parametric tests were used to compare means between the two conditions and between participants.Results: Inter-rater agreement for the different RAACS items ranged from 0.73 to 0.96 and was thus found to be fair to excellent. The communication partner’s use of responsive strategies varied when communicating with different participants and the scores were higher when aided AAC modeling was used. The communication partner’s number of responses and use of responsive strategies were higher when the participants communicated through a gaze-controlled device.Conclusion: The communication partner’s use of responsive and scaffolding strategies is not a fixed construct but varies in interactions with different non-speaking persons. The same is true whether the non-speaking person uses a gaze-controlled device with digitized speech or not.
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| 13. |
- Wandin, Helena, 1971-, et al.
(författare)
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Aided language modelling, responsive communication and eye-gaze technology as communication intervention for adults with Rett syndrome : three experimental single case studies
- 2021
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Ingår i: Disability and Rehabilitation. - : Taylor & Francis. - 1748-3107 .- 1748-3115. ; 18:7, s. 1011-1025
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Tidskriftsartikel (refereegranskat)abstract
- Purpose To examine the effect of a communication intervention package on expressive communication and visual attention in individuals with Rett syndrome. Materials and methods A modified withdrawal (A-B1-A1-B2-A2) single case experimental design with a direct inter-subject replication across three participants was applied. Three women with Rett syndrome participated. The study took place over a six-week period and comprised 32 sessions with each participant. All sessions were video recorded. During the intervention the communication partner used aided language modelling on a gaze-controlled device in combination with using responsive partner strategies. Expressive communication was assessed as synthesised words per minute and unique synthesised words per minute. Visual attention was assessed as rate of focused gazes (1 s or longer) in interaction. Results An intervention effect was found on the rate of unique words for all participants. The rate of words increased for two participants when the intervention was introduced but no withdrawal effect could be seen. An intervention effect on visual attention could be seen for one participant. The intervention appeared to have social validity as reported by caregivers. Conclusion Aided language modelling (ALM), while using responsive partner strategies and a gaze-controlled device may be used with adult individuals with Rett syndrome to increase their rate of expressive communication. Detailed observational measures revealed individual learning patterns, which may provide clinically valuable insights.
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| 16. |
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| 17. |
- Wandin, Helena, 1971-, et al.
(författare)
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Communication intervention in Rett syndrome : a survey of speech language pathologists in Swedish health services
- 2015
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Ingår i: Disability and Rehabilitation. - : Informa Healthcare. - 0963-8288 .- 1464-5165. ; 37:15, s. 1324-1333
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To investigate communication intervention that speech language pathologists (SLPs) provide to people with Rett syndrome. Methods: A web-based survey targeting all Swedish SLPs working with people currently receiving support from habilitation services. Results: The SLPs reportedly followed recommended practice in the following aspects: (1) Information on communicative function was collected from several sources, including observation in well-known settings and reports from the client s social network, (2) Multimodal communication was promoted and, (3) Responsive partner strategies were largely targeted in the intervention. However, few instruments or standard procedures were used and partner instruction was given informally. Most SLPs used communication aids in the intervention and their general impression of using communication aids was positive. Further, augmentative and alternative communication (AAC) was estimated to increase and clarify communicative contributions from the person. Conclusions: Communication aids were reported to have a positive influence on communicative functions. Swedish SLP services followed best practice in several aspects, but there are areas with potential for development. Tools and best practice guidelines are needed to support SLPs in the AAC process for clients with Rett syndrome.
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| 18. |
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| 19. |
- Wandin, Helena, 1971-, et al.
(författare)
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Development of a tool to assess visual attention in Rett syndrome : a pilot study
- 2020
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Ingår i: Augmentative and Alternative Communication. - : Taylor & Francis Group. - 0743-4618 .- 1477-3848. ; 36:2, s. 118-127
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Tidskriftsartikel (refereegranskat)abstract
- This was a two-phase study that aimed to (a) develop a tool for assessing visual attention in individuals with Rett syndrome using AAC with a communication partner during naturalistic interactions in clinical settings; and (b) explore aspects of the tool's reliability, validity, and utility. The Assessment of Visual Attention in Interaction (AVAI) tool was developed to assess visual attention operationalized as focused gazes (1 s or longer) at the communication partner, an object, and a symbol set. For the study, six video-recorded interactions with nine female participants diagnosed with Rett syndrome (range: 15-52-years-old) were used to calculate intra- and inter-rater agreement, and 18 recorded interactions were analyzed to examine sensitivity to change and acceptability. There was a significant difference in the AVAI results between two conditions (with and without aided-language modeling). Inter-rater agreement ranged from moderate and strong. There was a range in scores, indicating that the AVAI could differentiate between participants. The AVAI was found to be reliable, able to detect change, and acceptable to the participants. This tool could potentially be used for evaluating interventions that utilize aided AAC.
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| 20. |
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| 21. |
- Wandin, Helena, 1971-
(författare)
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Gaze-Based Assistive Technology : Usefulness in Clinical Assessments
- 2017
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Ingår i: Harnessing the Power of Technology to Improve Lives. - : IOS Press. - 9781614997979 - 9781614997986 ; , s. 1113-1118
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Konferensbidrag (refereegranskat)abstract
- Gaze-based assistive technology was used in informal clinical assessments. Excerpts of medical journals were analyzed by directed content analysis using a model of communicative competence. The results of this pilot study indicate that gaze-based assistive technology is a useful tool in communication assessments that can generate clinically relevant information.
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