| 1. |
- Altermark, Niklas
(författare)
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The ideology of neuroscience and intellectual disability: reconstituting the 'disordered' brain
- 2014
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 29:9, s. 1460-1472
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Tidskriftsartikel (refereegranskat)abstract
- During the last two or three decades, neuroscience has changed how we understand brain functioning. This shift, which is re-conceptualizing the relationship between the materiality of the brain and consciousness, is bound to have implications for intellectual disability, which is commonly seen as a condition of the brain. At present, examinations of intellectual disability that deploy techniques and concepts from neuroscience constitute a growing research field that has been welcomed in some quarters of the disability research community. The purpose of this article is to urge for caution as regards this development. I argue that the neuroscience of intellectual disability is embodying ideological propositions that need to be problematized. By theorizing the relationship between biology and politics and examining neuroscientific publications on intellectual disability, I argue that this strand of research is underpinned by a discursive division between normal and pathological, that it therefore constitutes a continuation of understanding intellectual disability as a 'disorder' and that any firm separation between the 'nature' of intellectual disability and processes of power is inherently problematic. To be able to critically approach the neuroscience of intellectual disability, it is vital that disability researchers problematize the relationship between biology and politics.
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| 2. |
- Altermark, Niklas
(författare)
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The post-institutional era : visions of history in research on intellectual disability
- 2017
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Ingår i: Disability and Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 32:9, s. 1315-1332
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Tidskriftsartikel (refereegranskat)abstract
- In this article, I address how the history of intellectual disability politics is made sense of in social scientific research and popular discourse. In particular, I discuss the construction of a narrative break between a past of institutionalisation and the present policies of citizenship. By drawing on how postcolonial theorists criticise common ideas about decolonisation, I argue that this narrative impedes our appreciation of how power has transformed, rather than disappeared, after deinstitutionalisation. Instead, I propose ‘post-institutionalisation’ as a name for the present era of intellectual disability politics, suggesting that we need to attend to continuities and discontinuities of how the group is governed; how paternalism lives on after deinstitutionalisation and how the goals of citizenship inclusion give rise to new technologies of government. I conclude the article by discussing the necessity and the dangers of involving people with intellectual disabilities in the analysis of post-institutional government.
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| 3. |
- Anderberg, Peter, et al.
(författare)
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Being there
- 2005
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 20:7, s. 719-733
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Tidskriftsartikel (refereegranskat)abstract
- This paper examines the use of the Internet as experienced by people with significant mobility/physicalimpairments who are accustomed to using computers. The study is based on interviews andfocuses on computer usage in everyday action and interaction. In many cases, the possibilities thatthe computer and Internet offer have meant not only important improvements in quality of life, butfirst-time occurrences of great personal significance. The analysis is phenomenographic, resultingin main categories and subcategories, illustrated primarily through direct quotations. The threemain categories are independence, communication, and learning.
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| 4. |
- Anderberg, Peter
(författare)
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Peer assistance for personal assistance: Analysis of online discussions about personal assistance from a Swedish web forum for disabled people
- 2007
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 22:3, s. 251-265
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Tidskriftsartikel (refereegranskat)abstract
- This paper describes and analyses a community of disabled people in Sweden that use an online forum to discuss personal assistance issues. The forum is a community of practice (CoP) that has its roots in everyday living with personal assistance. The contributions to the forum were studied over a 41/2 year period, including a total of 2755 postings from 146 persons. The levels of the CoP learning system were analysed using the FACE tool, which examines function based on attitude, control and enabling. The results indicate that a learning system was established within the CoP that made it possible for disabled people to complement, confront and counterbalance the influences of existing learning systems, theories and methods of professionals in the area of personal assistance.
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| 5. |
- Apelmo, Elisabet
(författare)
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(Dis)Abled bodies, gender, and citizenship in the Swedish sports movement
- 2012
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 27:4, s. 563-574
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this article is to examine how the Swedish Sports Organization for the Disabled (SHIF) portrays disabled people. A text analysis of two policy documents, 'Disability Sports Policy Programme' and 'Sports Objectives - A Summary of Aims and Guidelines for the Sports Movement', examines ways in which sports are supposed to affect people's bodies and contribute to society. Counter to its own aim to integrate disabled people, SHIF constructs such people as different and subordinated to able-bodied people, setting up an insurmountable boundary between the two groups.
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| 6. |
- Bahner, Julia
(författare)
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Sexual professionalism: for whom? The case of sexual facilitation in Swedish personal assistance services
- 2015
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 30:5, s. 788-801
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Tidskriftsartikel (refereegranskat)abstract
- Sexuality is a taboo subject in disability services, leading to insecurity for both service users and personnel about how to handle upcoming situations. In Sweden, there is also a lack of policy in this area, highlighting the need to study sexuality both as an individual and a political, and in this case also, depoliticized issue. A critical feminist policy analysis reveals that norms around disability, sexuality and professionalism in a particular legal, political and cultural context strongly influence the willingness to recognize disabled people’s sexual rights. The Swedish case indicates a need for increased transnational work to develop ethical, professional and non-discriminatory rights-based approaches to sexual facilitation.
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| 7. |
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| 8. |
- Barnes, Colin, et al.
(författare)
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Disability, Politics and Poverty in a Majority World Context
- 2010
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Ingår i: Disability & Society. - London : Taylor & Francis. - 0968-7599 .- 1360-0508. ; 25:7, s. 771-782
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Tidskriftsartikel (refereegranskat)abstract
- This paper argues that the spread of free market economics throughout the world has generated unprecedented inequalities within and between nation states. This has led to the systematic exclusion of people with perceived impairments from the mainstream of economic and community life in almost all societies, the generation of an international disabled people’s movement, and their demand for legal frameworks with which to address the multiple deprivations encountered by people viewed as ‘disabled’. It is argued that the poverty and exclusion encountered by disabled people and other oppressed groups in all societies will not be eliminated without fundamental structural change at the international level
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| 9. |
- Barron, Karin, 1949-
(författare)
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RESEARCH AND IDEOLOGY
- 1994
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Ingår i: Disability & Society. - Abingdon : Carfax Publishing. - 0968-7599 .- 1360-0508. ; 9:1, s. 93-95
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)
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| 10. |
- Barron, Karin, 1949-
(författare)
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The bumpy road to womanhood
- 1997
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Ingår i: Disability & Society. - Abingdon : Carfax Publishing. - 0968-7599 .- 1360-0508. ; 12:2, s. 223-239
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- This paper is based on a qualitative study dealing with societal constraints with regard to womanhood for physically disabled young women in Sweden. The findings show that the young women are subjected to stereotyped views on what having an impairment inv
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| 11. |
- Bengtsson, Staffan, 1970-
(författare)
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The nation’s body : disability and deviance in the writings of Adolf Hitler
- 2018
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Ingår i: Disability & Society. - : Taylor & Francis. - 0968-7599 .- 1360-0508. ; 33:3, s. 416-432
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Tidskriftsartikel (refereegranskat)abstract
- This article takes its starting point in the Nazi ideology as it appears in the writings of Adolf Hitler, and discusses how disability and the body can be understood in the context of Mein Kampf. The article underlines how disability and bodily infirmities, alongside race, featured significantly in Hitler’s demagogic message. Although the overall image of disability was related to a sense of threat–and a culture gone wrong–Mein Kampf also contains a mixed interpretation of disability as a phenomenon, in which different and opposing disability narratives took part in the construction and the image of the body as a national property.
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| 12. |
- Bertilsdotter Rosqvist, Hanna, 1976-, et al.
(författare)
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Doing it differently : emancipatory autism studies within a neurodiverse academic space
- 2019
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 34:7-8, s. 1082-1101
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Tidskriftsartikel (refereegranskat)abstract
- In the current research climate, in which many autistic and autism communities are increasingly calling for a move towards collaborative forms of research, we consider how a loosely formed epistemological community may serve to challenge 'business as usual' in the academy. Mindful of the need to move beyond theory, we use this experience to concretely consider how knowledge about autism and neurotypicality can be meaningfully (co)-produced, and made available both to the research community and also to autistic and autism communities. Here, we use our own co-production of this article to explore how autistic experience may trouble normative meanings of academic knowledge production. We also consider the limits and possibilities of a neurodiverse research collaboration to reflect on ways in which a loose epistemological space may serve to contribute to knowledge about both autism and neurotypicality, adding to debate around collaborative research.
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| 13. |
- Bertilsdotter Rosqvist, Hanna, 1976-, et al.
(författare)
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Mapping the social geographies of autism : online and off-line narratives of neuro-shared and separate spaces
- 2013
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Ingår i: Disability & Society. - : Taylor & Francis. - 0968-7599 .- 1360-0508. ; 28:3, s. 367-379
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Tidskriftsartikel (refereegranskat)abstract
- This paper draws together empirical work that has been produced by the authors in two different autistic spaces: the Swedish magazine Empowerment produced by and aimed at adults with autism, and English-speaking autistic communities online. While the two points of data collection are quite different, there are important points of commonality that enable us to explore central issues concerning autistic and neurotypical space and the meanings assigned to these in different contexts. The paper aims to introduce the notion of social geographies of autism, based on talks among adults with autism and a social movement to promote autistic identities, giving examples from our previous work that has spanned both online and off-line spaces. Key issues discussed in the paper include a focus on autistic political platforms and the carving out of both social and political spaces for people with autism. In doing so, neuro-separate and neuro-shared spaces must be negotiated.
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| 14. |
- Bertilsdotter Rosqvist, Hanna, 1976-, et al.
(författare)
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Naming ourselves, becoming neurodivergent scholars
- 2023
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508.
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Tidskriftsartikel (refereegranskat)abstract
- In this paper we seek to restory what has been storied as "the problem of ADHD". Informed by calls for a critical ADHD studies, we explore the possibilities of ADHD collective autoethnographic storytelling. Together we (en)counter narratives of ADHD. Within our collective writing space, from our ADHD/AuDHD bodyminds, we seek to re-story our ADHD/AuDHD. We map a field of critical ADHD research within social sciences and point out problems of outsider perspectives, stressing a need for insider perspectives. Our data consist of collective authoethnographic writings about ADHD. From the data we have explored our experiences of (En)Countering ADHD narratives, and a transition process which we refer to as from "broken NT-scholars" to neurodivergent scholars, stressing the importance of ADHD:ers as independent as well as collective agents, and ADHD as epistemological standpoint within research. Attention Deficit Hyperactivity Disorder (ADHD) is commonly talked about by people without ADHD.People with ADHD (ADHDers) are important in knowledge production about ADHD.This research is based on writings about ADHD by researchers with their own experiences of ADHD.We talk about ADHD together and try to find new ways of talking about ADHD which is more matched with our own experiences of ADHD.We talk about experiences of ADHD stigma and possibilities of knowledge production about ADHD by ADHDers and groups of ADHDers.
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| 15. |
- Bertilsdotter Rosqvist, Hanna, 1976-
(författare)
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The politics of joking : narratives of humour and joking among adults with Asperger’s syndrome
- 2012
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Ingår i: Disability & Society. - : Taylor & Francis. - 0968-7599 .- 1360-0508. ; 27:2, s. 235-247
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this article is to analyse how humour and narratives about humour are used in a natural group of adults with Asperger’s syndrome. Narratives about humour and use of humour in the group are analysed from a discursive psychological perspective, informed by insights from both disability studies and critical autism studies. The setting of the research is ethnographic fieldwork in an educational setting in Sweden. In the paper, I show the use of three storylines among a natural group of people with autism (PWA) when talking about humour: the storyline of humourless PWA that dominates within Swedish society; and two alternatives, a storyline of alternative humour among PWA and another storyline in line with the social model of disability, of neurotypical humour or disabling humour. When invoking these two alternative storylines, PWA challenge both the humourlessness storyline and the lack of social accessibility within mainstream neurotypical settings.
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| 16. |
- Borg, Johan, et al.
(författare)
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The right to assistive technology: for whom, for what, and by whom?
- 2011
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 26:2, s. 151-167
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Tidskriftsartikel (refereegranskat)abstract
- Despite its facilitating role in creating opportunities for people with disabilities to exercise human rights, access to assistive technology is limited in many countries. It is therefore promising that the Convention on Rights of Persons with Disabilities (CRPD) addresses this area. The purpose of this study was to analyse the assistive technology content of the CRPD from a basic human rights perspective in order to clarify its limitations and opportunities for formulation of policies and implementation strategies. Data were collected through a content analysis of the CRPD. It is concluded that a non-discriminatory interpretation of the provisions entitles all people with disabilities to a right to demand available and affordable assistive technology. Ensuring this right is a national as well as an international responsibility.
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| 17. |
- Borgström, Åsa, 1971
(författare)
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Tensions between risk, coping and support: young people with intellectual disability in Sweden and Internet-related support
- 2023
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Ingår i: Disability and Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 38:3, s. 1-23
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Tidskriftsartikel (refereegranskat)abstract
- Young people with intellectual disability seem to be more vulnerable on the Internet than youth in general. Therefore, it is important to investigate not only their strategies for managing negative online experiences but also how they experience Internet-related support. This study applies a qualitative and interpretative approach drawing on individual and pair interviews with pupils in upper secondary special programme schools in Sweden. A thematic analysis resulted in the following themes: ‘a lesson to be learned’, ‘the important role of siblings’, ‘the dilemma of support’ and ‘negotiation of control’. With regard to negative online experiences, strategies for managing privacy, safety and risky situations are understood as problem-focused coping and efforts to manage external/internal demands. The central role of social networks is emphasised with regard to Internet-related support. It is concluded that online restrictions may discourage open dialogue. A perspective of positive risk-taking, focusing on opportunities rather than risks, is advocated. Points of interest This article investigates the participants’ perspectives in their own words. The key contribution of the paper is finding out how young people with intellectual disability in Sweden handle negative online experiences and how they experience Internet-related support. The study highlights a range of themes from lessons learned and sibling relationships to problems of support and control that reflect many social and individual characteristics. The participants use different coping strategies to handle negative online experiences. They seem to manage privacy and safety on their own and refuse control in risky situations. With regard to Internet-related support, the participants prefer turning to their social network (family and friends) rather than public authorities (teachers in school). This type of research is important because it focuses on young people with intellectual disability and their vulnerability online as well as the development opportunities for Internet-related support.
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| 18. |
- Brennan, Ciara, et al.
(författare)
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Negotiating independence, choice and autonomy : experiences of parents who coordinate personal assistance on behalf of their adult son or daughter
- 2016
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 31:5, s. 604-621
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Tidskriftsartikel (refereegranskat)abstract
- Article 19 of the UN Convention on the Rights of Persons with Disabilities requires states to provide personal assistance services. This article is based on qualitative research in Iceland, Norway and Sweden, carried out between 2012 and 2013. The overall study focused broadly on the implementation of Article 19. This article, however, reports findings based on a particular group of participants within the larger study: non-disabled parents who coordinate personal assistance schemes for their adult son or daughter. The article examines the various ways in which the parents, the majority of whom were mothers, negotiate principles of independence, choice and autonomy for their adult son or daughter who requires intensive support, including assistance with communicating. The aim is to explore, in the context of the Convention and the principles of the independent living movement, how to acknowledge and conceptualise personal assistance schemes that require another person to manage on behalf of the user.
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| 19. |
- Danermark, Berth, 1951-, et al.
(författare)
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Social Justice : redistribution and recognition – a non-reductionist perspective on disability
- 2004
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 19:4, s. 339-353
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this article is to present some recent contributions to discussions on social justice and recognition in the context of disability research. Nancy Fraser's theory of redistribution and recognition, and her endeavour to include both a materialist and a cultural perspective in a theory of justice is examined. We also discuss Honneth's Hegelian‐informed model of recognition. Critical realism, emphasizing a non‐reductionist perspective, is briefly presented and, finally, we put forward some ideas on how to analyse and understand disability within such a framework.
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| 20. |
- Dindar, Katja, et al.
(författare)
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The construction of communicative (in)competence in autism: : a focus on methodological decisions
- 2017
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Ingår i: Disability & Society. - : Taylor & Francis Group. - 0968-7599 .- 1360-0508. ; 32:6, s. 868-891
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Tidskriftsartikel (refereegranskat)abstract
- Research on people diagnosed with autism spectrum disorder (henceforth autism) is often based upon biomedical understanding. Such understanding tends to view the characteristics related to autism diagnosis, such as the lack of or atypical use of speech, as a sign of incompetence that can be reduced as an underlying pathology of an individual. However, little research has explicitly investigated how methodological decisions in research might influence the perception of these characteristics. This paper draws on two separate research cases involving minimally verbal children with autism to examine how methodological decisions in research design, data collection, data analysis, and data interpretation influence the construction of communicative (in)competence in these children. The paper encourages researchers to carefully consider and reflect on the methodological decisions they make throughout the research process.
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| 21. |
- Dunér, Anna, 1962, et al.
(författare)
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Personal assistance from family members as an unwanted situation, an optimal solution or an additional good? The Swedish example.
- 2018
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 33:1, s. 1-19
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this article was to explore how users experienced and managed personal assistance from family members who are employed as personal assistants. Seventeen users of personal assistance provided by one or several family members, often in combination with external personal assistants, participated. Thematic qualitative interviews were conducted. The participants were between 19 and 58 years old, and were living with various impairments: mobility, sensory and/or learning disabilities. The results showed that personal assistance from family members could both promote and be a barrier to disabled people’s control over their own lives and participation in society. It became evident that the situation could have both advantages and disadvantages for both parties, which puts the focus on the interdependency between the participants and their family assistants. However, the results also points to a potential risk that the welfare state (re)passes its responsibilities back on to disabled people and their families.
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| 22. |
- Egard, Hanna, et al.
(författare)
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The digital society comes sneaking in : An emerging field and its disabling barriers
- 2023
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Ingår i: Disability & Society. - : Taylor & Francis. - 0968-7599 .- 1360-0508. ; 38:5, s. 761-775
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Tidskriftsartikel (refereegranskat)abstract
- This study examines disabled people’s everyday experience of social exclusion in relation to the rapid growth of digital technologies in everyday practices. It highlights the relationships between the growing theoretical apparatus on how society changes with new digital technologies, and theories about how this might lead to new disabling barriers in the everyday lives of disabled people. To better understand disabled people’s everyday experiences of social exclusion in the digital age, it brings together insights from two different fields: digital technology, mainly in digital social science and digital humanities; and disability studies, with a focus on the digital divide. The study draws on empirical observations, photographs and interviews with adults with various disabilities in Sweden, and analyses their everyday experiences with the help of a theoretical framework.
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| 23. |
- Erdtman, Emil, et al.
(författare)
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Research initiation based on idea-circles : from research object to co-actor
- 2012
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Ingår i: Disability & Society. - Oxfordshire, United Kingdom : Routledge. - 0968-7599 .- 1360-0508. ; 27:6, s. 879-882
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Tidskriftsartikel (refereegranskat)abstract
- This article details an evaluation of a research project based on participatory research methods organized by the Swedish Disability Federation from 2008 to 2011. In Sweden there has been a lack of productive dialogue with the traditional academic world and the question was raised whether proposals for future research would be different if disabled people formulated them. Nine idea-circles with disabled participants and invited researchers from fields of interest close to the participants produced ideas, developed out of the life experience of being a disabled person. These ideas were developed into 72 research drafts that often reflected key advocacy areas, rather than operationalized research issues. The adjustment from the familiar discourse of political struggle to discussion of research was a complicated process for many. When asked to prioritize among areas for research, the representatives from the disability movement chose areas that are not stressed in mainstream disability research in Sweden.
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| 24. |
- Eriksson, Camilla, 1986-, et al.
(författare)
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Digitalization of welfare organizations for persons with intellectual disabilities : between democratic ideals, legitimacy and institutional logics
- 2023
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508.
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Tidskriftsartikel (refereegranskat)abstract
- Information and communication technology (ICT) and digital media are less accessible for persons with intellectual disability (ID) but are important for citizenship. The aim was to conceptualize officials understanding of ICT usage among people with ID, and to analyze the possible influence of this understanding on the provision of services for people with ID. A qualitative study was conducted, using semi-structured interviews with municipal officials and politicians in the disability service area. Thematic analyses were conducted. ICT use is understood as an arena for democratization. Findings also illustrate the tension between integrity and protection as well as between legal and moral aspects of digital transformation in service provision. This understanding of digitalization is permeated by an individualized approach but conditioned by organizational issues. Disability services can be understood as undergoing digital transformation where regulative and normative elements in this area need to be harmonized to facilitate digitalization successfully. Points of interest This study examines politicians’ and officials’ perceptions of the digitalization of intellectual disability services. This is important as it influences the possibility for persons with ID to be online. Digitalization is understood to enable democratization in terms of participation in decision-making, and social activities, and to ‘be a part of society’ but the support and structure to be online are under construction. The article suggests that the process of digitalization is also about the responsibility of its provision and use, laws, and of morals, and integrity.
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| 25. |
- Galis, Vasilis, 1978-
(författare)
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Enacting disability : how can STS inform disability studies
- 2011
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Ingår i: Disability & Society. - : Routledge: Taylor and Francis Group. - 0968-7599 .- 1360-0508. ; 26:7, s. 825-838
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Tidskriftsartikel (refereegranskat)abstract
- This paper aims to discuss how science and technology studies (STS) can inform disability studies and challenge dominant approaches, such as the medical and the social models, in the ordering and representation of disability. Disability studies and STS have followed somewhat parallel paths in the history of ideas. From a positivist approach to their research objects to a strong social constructivism, both disciplines have moved to post-modern conceptualisations of science, technology and disability. In the same manner and challenging the extremes of modernism (either ordering disability as a bodily impairment or locating disability solely in society), this paper brings the conceptual vocabulary of actor-network theory (ANT) to the field of disability studies. ANT enables the ordering of disability as a simultaneous biological, material and semiotic phenomenon. Exchanges of performative agency between these elements determine the disability experience. The focus of the analysis shifts from merely defining disability as an impairment, handicap, or social construction (epistemology) to how disability is experienced and enacted in everyday practices, in policy-making, in socio-technical arenas, in the body, and in the built environment (ontology). This adoption of an ontological approach to disability allows the analysis to not only discuss how disability is done, but also to follow how disability groups and carriers of disability expertise and experience intervene in policy-making by developing ‘research in the wild’ and confronting scientific experts in different fora (ontological politics).
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| 26. |
- Gelfgren, Stefan, Docent, 1971-, et al.
(författare)
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Social media and disability advocacy organizations : caught between hopes and realities
- 2022
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Ingår i: Disability & Society. - : Taylor & Francis Group. - 0968-7599 .- 1360-0508. ; 37:7, s. 1085-1106
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Tidskriftsartikel (refereegranskat)abstract
- This article examines the role of advocacy organizations and their use of social media within the field of disability in Sweden. How do the organizations negotiate digital media, and what are the (intentional or unintentional) consequences related to the use of social media? With focus on the representatives of advocacy organizations, we study how they reflect and act in order to balance various motives, and what challenges and ambiguities that arise. On one hand, there is a perceived need to be online and communicate with members and the surrounding society. On the other hand, digital communication induces a divide between those who have the resources to take part in such communication, and those who do not – in terms of digital competence, economy, age, cognitive abilities, technical equipment and digital connection. The heterogeneity of resources and target groups inevitably challenges both the ideals of inclusion and intentions of advocacy organizations.
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| 27. |
- Germundsson, Per, et al.
(författare)
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Interagency collaboration in vocational rehabilitation for persons with mental health problems : the perspective of the service users and the professionals
- 2011
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 26:6, s. 699-713
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Tidskriftsartikel (refereegranskat)abstract
- There is an aspiration and policy within the European Union to fully involve persons with disabilities in the community; this implies an opportunity to gainful employment. A large percentage of disabled persons remain unemployed despite this policy, especially persons with mental health problems. This study aims at investigating how people with mental health problems and caseworkers in different agencies experience the vocational rehabilitation process from an interagency collaboration perspective. The study reveals a number of hindering factors portrayed and discussed in six themes – the time available for rehabilitation, management, new ways of working, absence of an actor, continuity and consensus – and also tables the implications for interagency collaboration in the field of vocational rehabilitation.
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| 28. |
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| 29. |
- Gillberg, Claudia, 1966-, et al.
(författare)
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Between duty and right : disabled schoolchildren and teachers’ ableist manifestations in Sweden
- 2019
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 34:9-10, s. 1668-1673
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Tidskriftsartikel (refereegranskat)abstract
- In this article we discuss ableist manifestations about chronically ill and disabled schoolchildren in Sweden. On claiming their right to schooling, these children risk being excluded due to not conforming with norms while being refused alternative formats that would enable participation. They are then accused of not attending school and construed as problematic. Parents are derided as mollycoddling perpetrators by teachers who perceive themselves as superior knowers of disability and illness, polarising an already infected school debate. Alternative formats for participation are derided, claiming that certain disabilities do not exist or that parents exaggerate their children’s symptoms. We concede that teachers’ poor work environments due to underfunding and unreasonable workloads are problematic, but we are adamant that unfavourable work conditions must not entail unethical professional conduct. We hope this article will contribute to putting the situation of chronically ill and disabled schoolchildren in Sweden on the radar of Critical Disability Studies as well as in relevant fields of practice and that it might stimulate a change in public debate
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| 30. |
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| 31. |
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| 32. |
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| 33. |
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| 34. |
- Göransson, Kerstin, 1955-, et al.
(författare)
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'They would be bullied in ordinary schools' - exploring public discourses on inclusionary schooling
- 2023
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Ingår i: Disability & Society. - : Taylor & Francis. - 0968-7599 .- 1360-0508. ; 38:2, s. 287-304
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Tidskriftsartikel (refereegranskat)abstract
- Though research on inclusive education makes up a considerable part of the special education research field, very few studies have explored how beliefs and ideas about inclusion and exclusion emerge in general media discourses of education and schooling. Using positioning theory as a theoretical framework, this paper explores public discourses on inclusionary/exclusionary schooling by analysing newspaper articles about a segregated type of school in Sweden for pupils with intellectual disability. Seventy-nine articles meeting the criteria for inclusion and published between 1 January 2010 and 31 December 2018 were identified in the two national daily newspapers of Sweden. Four general storylines and associated positions were identified. The four storylines, together and in different ways, construct a rationale for a segregated school system based on notions such as equality, equity, justice, and democracy. We argue that this rationale is embedded within a discourse that we propose calling a discourse of 'segrequality'. Points of interest Education plays an important role in the development of an inclusive society and inclusive education is a goal supported by many countries and their school systems. Even so, the percentage of pupils educated in segregated settings have increased in many countries in Europe. This article explores how Swedish news media portrays education for pupils with intellectual disability. The research found a dominant rationale where segregated educational settings are seen as essential. Four main narratives were identified. All of them, in different ways, argue for the importance of segregated education in order to give every child an education based on notions such as equality, equity, justice, and democracy. Researchers of inclusion are suggested to take a more active part in a public discussion of education as well as in policy-making on both national and local levels.
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| 35. |
- Hansson, Kristofer
(författare)
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Living chronic : Agency and expertise in the rhetoric of diabetes
- 2019
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Ingår i: Disability & Society. - : Taylor & Francis. - 0968-7599 .- 1360-0508. ; 34:2, s. 337-339
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Recension (övrigt vetenskapligt/konstnärligt)abstract
- Agency has become one of those central terms to understand both everyday practice with disability and chronic diseases, and modern healthcare in the western world. Today we see a willingness for more patient-centred care at hospitals and new technologies that give possibilities of self-care. This has become a prevailing discourse that stresses individual responsibility and autonomy, but also more participation and better accessibility for care. It is a discourse that has become a central part of the biomedical concept of patient agency. But is it possible to continue on this biomedical track of patient agency? In Living Chronic: Agency and Expertise in the Rhetoric of Diabetes, Lora Arduser goes into depth to critically review this concept and at the same time present a reconsideration of agency when living with disability and chronic diseases. Her case is the chronic disease diabetes, which is an appropriate case for studying agency.
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| 36. |
- Helldin, Rolf
(författare)
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Special Education Knowledge Seen as a Social Problem
- 2000
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Ingår i: Disability & Society. - Leeds : Taylor & Francis Ltd. - 0968-7599 .- 1360-0508. ; 15:2, s. 247-270
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Tidskriftsartikel (refereegranskat)abstract
- The article is based on a historical study aiming at analysing the historical determinants for the academic content of the special educational discipline-regarding both ideological attitudes against disability and segregation and more concrete initiatives of action-as it appeared when the expert-function of special education was established during the 1920s and 1930s in Sweden. As the determinants I consider the nineteenth, as well as the twentieth cetury's socio-ideological, educational political and educational philosophical discourses. In order to describe the tendencies in contents I have used the first Scandinavian journal in the special educational field (Hjalpskolan). I have in my discussion been inspired by Michel Foucault's analysis of subtle conditions of power, in the forms of regulations and control mechanisms between the societies 'normal' and its marginal groupings. The essence of the study is that these tendencies are socially constructed within the knowledge tradition of the swedish compulsory school system. Despite their variations they can be classified as follows: a moralizing theme, where the various scientifically coloured arguments for and against segregation are discussed. A religious 'merciful' theme; the genuine human loving compassion with 'the societies least fortunate'. Finally, the sociopolitical theme with focus on socio-economical discussion. [ABSTRACT FROM AUTHOR]
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| 37. |
- Hemmingsson, Helena, et al.
(författare)
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Students with disabilities participating in mainstream schools : policies that promote and limit teacher and therapist cooperation
- 2007
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 22:4, s. 383-398
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Tidskriftsartikel (refereegranskat)abstract
- This paper examines participatory arrangements for students with physical disabilities in mainstream education, cooperation between teachers and therapists to ensure that these arrangements are efficient and the organizational prerequisites for such cooperation. The study comprises data obtained from 14 'groups', with each group consisting of a student with physical disabilities aged 919 years, their main teacher and the relevant therapists from the local habilitation centre. Data were collected through semi-structured interviews, field observations and a review of relevant documents, including legislation. The results reveal a lack of cooperation between teacher and therapist which results in students with disabilities receiving suboptimal participatory arrangements in school. Differences in the perspectives of the teachers and therapists and in the way they act and perceive their responsibilities were anchored in institutional and societal documents and the distribution of resources. The implications for students with disabilities are discussed.
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| 38. |
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| 39. |
- Holmqvist, Mikael
(författare)
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Disabled People and Dirty Work
- 2009
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 24:7, s. 869-887
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Tidskriftsartikel (refereegranskat)abstract
- Based on a longitudinal case study of the work offered by a Swedish sheltered work organization that can be regarded as ‘dirty’, in the sense that it stigmatizes those people that do it, in this paper I analyze how ‘dirty work’ can be seen as an important yet so far neglected source of the social construction of disability. Specifically, the aim of the paper is to suggest how an individual can become a ‘disabled person’ by doing dirty work. By working on ‘tainted tasks’ people (irrespective of their mental or physical condition) may come to be regarded and even officially labeled as ‘disabled’, i.e. incapacitated and impaired for any ‘normal’ and ‘clean’ character of work.
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| 40. |
- Hultman, Lill, et al.
(författare)
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Maintaining professional integrity : experiences of case workers performing the assessments that determine children’s access to personal assistance
- 2018
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 33:6, s. 909-931
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Tidskriftsartikel (refereegranskat)abstract
- This qualitative study explores Swedish case workers experiences of decision making regarding disabled children's right to obtain assistance in their everyday life whereby they can live independently in the community. Data collection included seven focus-group interviews and 11 complementary individual interviews with case workers from different agencies responsible for decisions regardig access to personal assistance. Grounded theory methodology was used. Compromised professional integrity under shifting conditions emerged as a main concern and maintaing professional integrity was used as an approach to resolve it. The case workers are maintaining professional integrity by applying different strategies; struggling with division of responsibility, bureaucratizig, and justifying and protecting. The results indicate that present application of assessment criteria in combination with the utilization of precedent rulings has made it difficult for the case workers to make decisions that provide children access to assistance. Current practice raises questions about the case workers perspectives of professionalism.
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| 41. |
- Hultman, Lill, et al.
(författare)
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Making me with others-gendered meanings of youth and youthfulness among young female disabled assistance users
- 2023
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 38:9, s. 1626-1646
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Tidskriftsartikel (refereegranskat)abstract
- The paper explores how disabled girls with Personal Assistants (PA:s) in a Swedish context constitute themselves as subjects in relation to intersecting meanings of age, gender, space, time and disability. The results illuminate the importance of social spaces and social relationships for the girls’ forming their sense of selves. Similar to ablebodied girls, disabled girls’ transition into adulthood can be viewed as a yoyo-transitions, entering and exiting different adult positions several times. Unlike ablebodied girls, they enter adult positions not commonly associated with youths, such as work leadership positions in relation to adult employees, such as the adult PA. This implies that they to some extent manage their own process of becoming an adult. Our findings stress the importance of recognition and awareness of disabled girls transition to adulthood as different not pathological to nondisabled girls’, where consideration is taken both to individual needs and preferences of female assistance users.All girls need to develop their sense of themselves to become womenDisabled girls with personal assistants find it difficult to live ordinary lives as girls without the support of external personal assistantsWith the help of personal assistants disabled girls can participate in the places and with the people they choose themselvesThe relationship with the personal assistant put demands on the disabled girl to become a woman faster than abledbodied girls, in the same time it can hinder the girl’s development into a womanIt is important for practioners and policymakers to recognize the dual role of personal assistants in disabled girls lives
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| 42. |
- Hultman, Lill, et al.
(författare)
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Migration and disability narratives from an intersectional perspective : a photovoice study
- 2023
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508.
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this paper is to explore everyday life experiences of migration and disability from an intersectional perspective drawing on issues such as gender, class, and ethnicity. This is relevant because when focus is on either migration or disability, unique challenges faced by disabled migrants are neglected, leading to fragmented support and a lack of accurate knowledge. The analysis is based on retrospective data from photovoice sessions conducted within the context of a community-based project, Disabled Refugees Welcome (DRW). A secondary analysis has involved eight of the members from the original photovoice sessions as well as academics. The results are presented in a narrative thematic analysis. The findings show how the combined effects of liminality, structural violence (lack of accessible and adapted housing, lack of access to knowledge about societal resources), and multiple discrimination risks can result in permanent exclusion.
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| 43. |
- Ineland, Jens, 1972-
(författare)
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Logics and discourses in disability arts in Sweden : a neo-institutional perspective
- 2005
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Ingår i: Disability & Society. - : Routledge. - 1360-0508 .- 0968-7599. ; 20:7, s. 749-762
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Tidskriftsartikel (refereegranskat)abstract
- Theatre for and with people with intellectual disabilities has gradually become a more frequent and popular work arrangement within the municipal daily activities in Sweden. This article focuses on one of those theatres - Olla - and the aim is to analyse the institutional settings and normative environment surrounding the theatre and the way in which it relates to different institutional rules and expectations. Analytical implications will be drawn against neo-institutional theory and will show how Olla expresses both an artistic and a therapeutical logic, and that legitimacy is dependent on a loosely coupled formal structure between process and product, art and therapy. These logics are formulated within two different discourses, which leave Olla balancing between being a normalisation project or disability art which puts emphasis on the celebration of difference.
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| 44. |
- Jerlinder, Kajsa, et al.
(författare)
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Normative approaches to justice in physical education for pupils with physical disabilities : dilemmas of recognition and redistribution
- 2009
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 24:3, s. 331-342
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Tidskriftsartikel (refereegranskat)abstract
- Seeking social justice in education for pupils with disabilities creates certain dilemmas. A ‘school for all’ means that educators are faced with a dilemma where the notion of ‘disability’ is perceived as ought not to matter, but where in actual fact it seems to matter very much! This article explores ways out of this general educational dilemma using the context of physical education (PE) for pupils with physical disabilities within the compulsory school as an example. Justice theories of resource distribution and cultural recognition affect educational outcomes, where demands are for justice and equity. Fraser’s (2000/2001) notion of ‘social status’, together with a pluralistic approach to identities where personal experiences are given a place, is used to suggest a solution to the dilemma. It is concluded that a redistribution of economic resources and social recognition is necessary if social justice within PE is to become a reality.
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| 45. |
- Jonasson, Mikael, 1962-
(författare)
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The AKKA-board : Performing mobility, disability and innovation
- 2014
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Ingår i: Disability & Society. - Oxon : Routledge. - 0968-7599 .- 1360-0508. ; 29:3, s. 477-490
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Tidskriftsartikel (refereegranskat)abstract
- This study involves a mobility device with relevance for health and well-being for severely disabled persons. The purpose of this study is to examine some of the geographical, innovative and existential implications of the performance of place through mobility that the AKKA-board produces for severely disabled people. What does mobility and place mean in terms of supporting human skills that are being performed with the help of the AKKA-board? It is concluded that mobility in terms of a self-controlled movement is connected to enabling individual decision-making, independence and well-being. © 2013 Taylor & Francis.
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| 46. |
- Järkestig Berggren, Ulrika, et al.
(författare)
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Disabled students' experiences of higher education in Sweden, the Czech Republic, and the United States : a comparative institutional analysis
- 2016
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 31:3, s. 339-356
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Tidskriftsartikel (refereegranskat)abstract
- Students with disabilities face obstacles in their encounters with higher education. The aim of this study is to investigate how the institutional context shapes students' experiences of unequal opportunities in higher education. In comparing disabled students' experiences from universities in Sweden, the Czech Republic, and the United States, the study makes visible the kind of experiences that students share and how experiences differ between these countries within the global context of higher education. The study has shown that students' possibilities for equal participation are shaped by the institutional context that is based on medical diagnosis and compensation for an inaccessible education.
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| 47. |
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| 48. |
- Jönson, Håkan, et al.
(författare)
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Being an older person or a person with a disability: Are supportive policies ageist?
- 2023
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Ingår i: Disability and Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 38:1, s. 148-168
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Tidskriftsartikel (refereegranskat)abstract
- The article concerns the Swedish support system’s legal discourse, and investigates the rationale for excluding people over the age of 65 from services that younger people with disabilities may obtain. Data consist of government texts and court decisions under the Severe Disability Act about services for people over the age of 65. It was found that little in the legal discourse concerns the needs and rights of older people, and the general belief is that the Severe Disability Act is primarily intended for children, young people, and adults of working age. Othering of older people was indirectly present in three assumptions about differences in categorizations (people with disabilities vs older people with support needs), needs (active age vs not active age), and comparisons (with people without disabilities of the same age vs with others receiving eldercare).
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| 49. |
- Karlsson, Kristina, et al.
(författare)
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Democracy and dilemmas of self-determination
- 2006
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 21:2, s. 193-207
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Tidskriftsartikel (refereegranskat)abstract
- Results from analyses of interactions in 'user-centred' meetings within the Swedish rehabilitation sector are reported. Transcripts of team meetings are used to discern situations in which dilemmas of self-determination versus paternalism may possibly need to be treated when the 'user' with impairment is to exercise his/her social citizenship. The analyses illustrate how the liberal ideal of self-determination makes certain demands on the 'user'. These demands are categorised as 'physical presence', 'interpretable voice', 'purposeful voice', 'sincere voice' and 'realisable voice'. It is argued that dilemmas of self-determination are impossible to avoid completely. To deal with the complexity of implementing self-determination, it is important to try to adjust the preparations and the organisation of the meetings, increase user control of services provided, combine individualised support with collective and political action, and allow expressions of different models of democracy. The possibility of appreciating interdependence and justifying paternalistic actions also needs to be acknowledged.
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| 50. |
- Kjellberg, Anette
(författare)
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Being a citizen
- 2002
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 17:2, s. 187-203
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Tidskriftsartikel (refereegranskat)abstract
- There has been a striving in Sweden, ideologically and legally, since the 1960s to develop and extend citizenship to persons with learning disabilities. This article had the purpose to capture and describe how persons with learning disabilities conceive citizenship and opportunities to participate in the societal arena. Twenty-three persons with learning disabilities were interviewed two times. Qualitative analysis focused on three themes: areas of interest, voting and significant persons. The analysis displayed that the informants' conceptions about citizenship differed in relation to environmental contexts. Significant persons are discussed as having considerable importance when exercising citizenship.
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