| 1. |
- Chomutare, Taridzo, et al.
(author)
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De-Identifying Swedish EHR Text Using Public Resources in the General Domain
- 2020
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In: Digital Personalized Health and Medicine. - Amsterdam : IOS Press. - 9781643680828 - 9781643680835 ; , s. 148-152
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Conference paper (peer-reviewed)abstract
- Sensitive data is normally required to develop rule-based or train machine learning-based models for de-identifying electronic health record (EHR) clinical notes; and this presents important problems for patient privacy. In this study, we add non-sensitive public datasets to EHR training data; (i) scientific medical text and (ii) Wikipedia word vectors. The data, all in Swedish, is used to train a deep learning model using recurrent neural networks. Tests on pseudonymized Swedish EHR clinical notes showed improved precision and recall from 55.62% and 80.02% with the base EHR embedding layer, to 85.01% and 87.15% when Wikipedia word vectors are added. These results suggest that non-sensitive text from the general domain can be used to train robust models for de-identifying Swedish clinical text; and this could be useful in cases where the data is both sensitive and in low-resource languages.
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| 2. |
- Despotou, George, et al.
(author)
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Localisation, Personalisation and Delivery of Best Practice Guidelines on an Integrated Care and Cure Cloud Architecture : The C3-Cloud Approach to Managing Multimorbidity
- 2020
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In: Digital Personalized Health and Medicine. - : IOS Press. - 9781643680835 - 9781643680828 ; , s. 623-627
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Conference paper (peer-reviewed)abstract
- BACKGROUND: C3-Cloud is an integrated care ICT infrastructure offering seamless patient-centered approach to managing multimorbidity, deployed in three European pilot sites. Challenge: The digital delivery of best practice guidelines unified for multimorbidity, customized to local practice, offering the capability to improve patient personalization and benefit.METHOD: C3-Cloud has adopted a co-production approach to developing unified multimorbidity guidelines, by collating and reconciling best practice guidelines for each condition. Clinical and technical teams at pilot sites and the C3-Cloud consortium worked in tandem to create the specification and technical implementation.RESULTS: C3-Cloud offers CDSS for diabetes, renal failure, depression and congenital heart failure, with over 300 rules and checks that deliver four best practice guidelines in parallel, customized for each pilot site.CONCLUSIONS: The process provided a traceable, maintainable and audited digitally delivered collated and reconciled guidelines.
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| 3. |
- Gesicho, Milka B., et al.
(author)
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Health Facility Ownership Type and Performance on HIV Indicator Data Reporting in Kenya
- 2020
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In: Digital Personalized Health and Medicine. - : IOS Press. - 9781643680828 - 9781643680835 ; , s. 1301-1302
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Conference paper (peer-reviewed)abstract
- In low- and middle-income countries, private and public facilities tend to have highly variable characteristics, which might affect their performance in meeting reporting requirements mandated by ministries of health. There is conflicting evidence on which facility type performs better across various care dimensions, and only few studies exist to evaluate relative performance around nationally-mandated indicator reporting to Ministries of Health. In this study, we evaluated the relationship between facility ownership type and performance on HIV indicator data reporting, using the case of Kenya. We conducted Mann-Whitney U tests using HIV indicator data extracted from years 2011 to 2018 for all the counties in Kenya, from the District Health Information Software 2 (DHIS2). Results from the study reveal that public facilities have statistically significant better performance compared to private facilities, with an exception of year 2017 in reporting of counselling and testing, and prevention of mother-to-child transmission indicator categories.
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| 4. |
- Gharehbaghi, Arash, et al.
(author)
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Distinguishing Septal Heart Defects from the Valvular Regurgitation Using Intelligent Phonocardiography
- 2020
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In: Digital Personalized Health and Medicine. - : IOS Press. - 9781643680828 - 9781643680835 ; 270, s. 178-182
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Conference paper (peer-reviewed)abstract
- This paper presents an original machine learning method for extracting diagnostic medical information from heart sound recordings. The method is proposed to be integrated with an intelligent phonocardiography in order to enhance diagnostic value of this technology. The method is tailored to diagnose children with heart septal defects, the pathological condition which can bring irreversible and sometimes fatal consequences to the children. The study includes 115 children referrals to an university hospital, consisting of 6 groups of the individuals: atrial septal defects (10), healthy children with innocent murmur (25), healthy children without any murmur (25), mitral regurgitation (15), tricuspid regurgitation (15), and ventricular septal defect (25). The method is trained to detect the atrial or ventricular septal defects versus the rest of the groups. Accuracy/sensitivity and the structural risk of the method is estimated to be 91.6%/88.4% and 9.89%, using the repeated random sub sampling and the A-Test method, respectively.
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| 5. |
- Hägglund, Maria, Lektor, 1975-, et al.
(author)
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Personalized Communication : People with Hearing Loss' Experiences of Using a National Patient Portal
- 2020
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In: Digital Personalized Health and Medicine. - : IOS Press. - 9781643680828 - 9781643680835 ; 270, s. 1031-1035
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Conference paper (peer-reviewed)abstract
- Patient portals are used as a means to facilitate communication, performing administrative tasks, or accessing one's health record. A qualitative study was therefore performed to understand how people with hearing loss experience using the Swedish national patient portal 1177.se and the patient accessible electronic health record Journalen. Data was collected through focus groups and individual interviews. Ten persons with varying degree of hearing loss, age and years of using a hearing aid participated. The data was analyzed through thematic content analysis and three themes emerged; access to written information, patient-created information and personalized communication. Although the study is limited in size, we believe that important lessons can be learned regarding the needs for personalized communication, including access to written information.
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| 6. |
- Kolstad, Markus, et al.
(author)
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Integrating Socially Assistive Robots into Japanese Nursing Care
- 2020
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In: Digital Personalized Health and Medicine. - : IOS Press. - 9781643680828 - 9781643680835 ; , s. 1323-1324
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Conference paper (peer-reviewed)abstract
- This paper presents experiences of integrating assistive robots in Japanese nursing care through semi-structured interviews and site observations at three nursing homes in Japan during the spring of 2019. The study looked at experiences with the robots Paro, Pepper, and Qoobo. The goal was to investigate and evaluate the current state of using robots in the nursing care context, firsthand experiences with intended and real use, as well as response from the elderly and nursing staff. The qualitative analysis results pointed out user satisfaction, adjusted purpose, therapeutic and entertaining effects. Potentials of robots to assist in elderly care is advantageous. Limitations currently relate to the lack of ways to fully utilized and integrate robots.
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| 7. |
- Moll, Jonas, 1982-, et al.
(author)
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On Patient Accessible Electronic Health Records and the Experienced Effect on the Work Environment of Nurses
- 2020
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In: Digital Personalized Health and Medicine. - : IOS Press. - 9781643680828 - 9781643680835 ; , s. 1021-1025
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Conference paper (peer-reviewed)abstract
- The work environment for nurses is challenging, and even though new technology has major advantages, it has often also caused new stressors and problems for nurses. When Patient Accessible Electronic Health Records (PAEHR) was introduced in Sweden, research showed that nurses were worried about possible negative effects for patients as well as on their work. However, to this date there are very few follow up studies on the more long term effects of PAEHR, despite research pointing to the fact that reactions after long term use might differ from initial experiences. In this paper we present an interview study to fill this research gap. An analysis based on interviews with physicians and nurses in Oncology care reveals three areas where nurses' work is experienced to have been affected: 1) nurses receive more questions from patients after PAEHR has been introduced, 2) nurses have changed their documentation practices and 3) the log list functionality has made nurses feel questioned. Finally, these results are discussed in relation to nurses' work environment from a sociotechnical and gender perspective.
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| 8. |
- Moll, Jonas, 1982-, et al.
(author)
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The Effect of Patient Accessible Electronic Health Records on Communication and Involvement in Care : A National Patient Survey in Sweden
- 2020
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In: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 270, s. 1056-1060, s. 1056-1060
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Journal article (peer-reviewed)abstract
- During recent years, patient accessible electronic health records (PAEHRs) have been implemented nationally in Sweden, as well as internationally, as a means of supporting patient engagement and shared decision making. Few studies have, however, investigated the long-term effects of PAEHRs on communicaiton with care professionals and involvement in care. The national survey study presented here, answered by 2587 patients in Sweden, focuses on these aspects specifically. The results show that the Swedish PAEHR system Journalen has had a positive impact on communication with care overall (84% agree or strongly agree with that communication with medical staff has improved), but only 31% agree or strongly agree with that the content of the PAEHR is discussed with care professionals. Journalen also seems to have a positive impact on involvement in care, but the results are mixed when it comes to effects on shared decision making.
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| 9. |
- Korhonen, Olli, et al.
(author)
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Service Personalization in IT-Supported Finnish Healthcare
- 2020
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In: Studies in health technology and informatics. 30th Medical Informatics Europe (MIE) Conference, Geneva, Switzerland. S. 1385-1386. - : IOS Press. - 0926-9630. - 9781643680835
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Conference paper (peer-reviewed)abstract
- This paper reports a case study on the spontaneous personalization discussions emerged from interviews with healthcare professionals when asked about their work practices and the role of information technology (IT) during consultations. We thematically analyzed the personalization elements using an existing personalization framework to provide insights on the service personalization. Our results contribute to the better design of IT solutions that can support health services' personalization.
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