| 1. |
- Eriksson, Nomie, Biträdande professor, 1955-, et al.
(författare)
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Patient Empowerment and its Connection to Trust
- 2022
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Ingår i: Proceedings of the 18th International Symposium on Health Information Management Research. - Kalmar : Linnaeus University; University of Sheffield. - 9789189081093
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Konferensbidrag (refereegranskat)abstract
- Patient Empowerment (PE) allows patients to be more active in managing their own health and quality of life. The aim of this paper is to analyze how trust affects PE, in the context of healthcare information systems. An interview study was conducted concerning patients’ online access to electronic healthcare records. Results show that PE requires that patients trust the information that healthcare professionals and their electronic health record systems provide. Without trust, patients cannot control their own participation in relation to the healthcare professionals. This may result in a diminished ability to participate in the healthcare processes regarding their own care. Practical implications include acquired knowledge about and awareness of how trust influences PE, with particular emphasis on healthcare professionals. A trust model is presented that illustrates the trustor-trustee dimensions of PE. This model has both theoretical and practical implications in its illustration of how trust and PE connect.
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| 2. |
- Golay, Diane, 1992-, et al.
(författare)
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Communication Breakdowns between Nurses and IT Department : Why Hospitals Fail at Improving the Usability of Health Information Technology
- 2020
-
Ingår i: Proceedings of the 18th International Symposium on Health Information Management Research. - 9789189081093
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Konferensbidrag (refereegranskat)abstract
- Often, Health Information Technology (HIT) in hospitals consists of off the shelf systems that are configured and implemented by IT department workers. This means that these employees have a significant impact of the usability of HIT systems. Nonetheless, we currently do not know how IT department workers work. This prevents us from formulating educated recommendations aimed at improving HIT usability, known to be poor, especially from nurses’ perspective. In this paper, we hence present the results from an interview study, shedding light on 1) the communication channels that exist between nurses and IT department at a large public hospital in Sweden, and 2) the problems that undermine system-related communication between these two groups. Our findings stress the need for successful two-way communication between nurses and IT department in order to improve the usability of HIT in use.
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| 3. |
- Hammar, Tora, 1984-, et al.
(författare)
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Patients’ views on information about medications : a pharmacy-based survey focusing on their information sources and experiences of pharmacists using a clinical decision support system
- 2022
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Ingår i: Proceedings of the 18th International Symposium on Health Information Management Research (ISHIMR 2020). - : Linnaeus University Press. - 9789189081093
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Konferensbidrag (refereegranskat)abstract
- The aim of this study was to describe patients’ views on information regarding their medication with focus on their experiences with community pharmacists’ use of the clinical decision support system EES (electronic expert support system). This study was performed as a survey among patients who were collecting prescription medication at seven Swedish community pharmacies, with 281 respondents (response rate of 68%). Results show that patients receive information regarding their medication from many different sources, with differences related to age and gender. In general, most patients seemed satisfied with the information they had about their medicines, and with the information they got from pharmacists. The study also show that knowledge about how pharmacists work to improve medication safety and how they use EES is low. However, results indicate that many patients have high trust in pharmacists, expect them to check for potential drug related problems and are positive to pharmacists using EES more.
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| 4. |
- Kadhim, Duaa Abdulrazak, et al.
(författare)
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Electronic Health Records : Non-Swedish Speaking Refugee’s Perspective
- 2022
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Ingår i: Proceedings of the 18th International Symposium on Health Information Management Research. - : Linnaeus University Press. - 9789189081093
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Konferensbidrag (refereegranskat)abstract
- Electronic health record (EHR) is a ubiquitous e-health tool that includes both Electronic Medical Record (EMR) and personal health record (PHR). EHR is aimed to be a versatile digital tool that can benefit both caregivers and patients through Quick and easy access to medical information at any time from hospitals or primary care units. However, the fact that the bulk of core records, including self- service data for patients, is only available in Swedish may limit the scope, availability and feasibility of self service through EHRs access for refugee patients who are non-Swedish speakers. Research results suggest that the EHRs should be meaningful, modified, and improved based on patient’s needs, by actively involving patients in their healthcare. The issues diagnosed in this research work such as EHR an information sharing communication System, lack of Information about using EHR, language barrier a hinderance in using EHRs, EHRs as medical recommendation system, better instructions about EHRs, presenting medical information in diagnosis part in EHRs in other languages and presenting medical information in diagnosis part in EHRs by sound are very important to address non-Swedish speaking refugee patients’ needs to use and benefit from EHRs.
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| 5. |
- Rexhepi, Hanife, et al.
(författare)
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Cancer patients' information seeking behaviour related to online electronic healthcare records
- 2020
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Ingår i: Proceedings of the 18th International Symposium for Health Information Management Research. - 9789189081093 ; , s. 53-61
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Konferensbidrag (refereegranskat)abstract
- Patients' online access to their EHR together with the rapid proliferation of medical information on the Internet has changed the way patients use the information to learn about their health. It is well documented that patients often turn to the Internet to find information about their health and care. However, little is known about patients’ information seeking behaviour when using online EHRs. By using information horizons as an analytical tool this paper aims to investigate the information behaviour of cancer patients who have chosen to view their EHRs (readers) and to those who have not made that option (non-readers). Thirty interviews were conducted with patients. Based on information horizons, it seems that non-reading is associated with living in a narrower information world in comparison to readers. The findings do not suggest that the smallness would be a result of an active avoidance of information, or that it would be counterproductive for the patients.
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| 6. |
- Rexhepi, Hanife, 1984-, et al.
(författare)
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Cancer patients' information seeking behaviour related to online electronic healthcare records
- 2022
-
Ingår i: Proceedings of the 18th International Symposium on Health Information Management Research. - Kalmar : Linnaeus University; University of Sheffield. - 9789189081093
-
Konferensbidrag (refereegranskat)abstract
- Patients’ online access to their EHR together with the rapid proliferation of medical information on theInternet has changed the way patients use the information to learn about their health. It is welldocumented that patients often turn to the Internet to find information about their health and care.However, little is known about patients´ information seeking behaviour when using online EHRs. Byusing information horizons as an analytical tool this paper aims to investigate the informationbehaviour of cancer patients who have chosen to view their EHRs (readers) and to those who havenot made that option (non-readers). Thirty interviews were conducted with patients. Based oninformation horizons, it seems that non-reading is associated with living in a narrower informationworld in comparison to readers. The findings do not suggest that the smallness would be a result of anactive avoidance of information, or that it would be counterproductive for the patients.
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| 7. |
- Rexhepi, Hanife, et al.
(författare)
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Do you want to receive bad news through your patient accessible electronic health record? : A national survey on receiving bad news in an era of digital health
- 2020
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Ingår i: Proceedings of the 18th International Symposium for Health Information Management Research. - Kalmar : Linnaeus University, University of Sheffield. - 9789189081093 ; , s. 169-178
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Konferensbidrag (refereegranskat)abstract
- Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of e.g. medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden (N=2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women (p=0.001), and the same goes for those who are not working/have worked in healthcare (p=0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR.
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| 8. |
- Rexhepi, Hanife, 1984-, et al.
(författare)
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Do you want to receive bad news through your patient accessible electronic health record? : A national survey on receiving bad news in an era of digital health
- 2022
-
Ingår i: Proceedings of the 18th International Symposium on Health Information Management Research. - Kalmar : Linnaeus University; University of Sheffield. - 9789189081093
-
Konferensbidrag (refereegranskat)abstract
- Despite the fact that patient accessible electronic health records (PAEHRs) have been around for manyyears in several countries, there is a lack of research investigating patient´ preferences for receiving badnews, including through PAEHRs. Little is also known about the characteristics of the patients who preferto receive bad news through the PAEHR in terms of e.g. medical diagnosis, age and educational level.This study, based on a national patient survey in Sweden (N=2587), investigated this. Results showthat, generally, receiving bad news by reading in the PAEHR is still among the least preferred options.Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women(p=0.001), and the same goes for those who are not working/have worked in healthcare (p=0.007). Aneffect of disease groups was also found, showing that diabetes patients in particular, want to receivebad news through the PAEHR.
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| 9. |
- Stevenson-Ågren, Jean, Senior lecturer, et al.
(författare)
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Designing an App for Maternity Care : Improving Communication between Swedish Midwives and Arabic-speaking Women
- 2022
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Ingår i: Proceedings of the 18<sup>th</sup> International Symposium on Health Information Management Research. - : Linnaeus University Press. - 9789189081093
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Konferensbidrag (refereegranskat)abstract
- Good communication is essential for good healthcare. In maternity care, inadequate communication may contribute to poorer outcomes in pregnancy. A large number of Syrian, Arabic-speaking immigrants arrived in Sweden in 2015-2016. A trans-disciplinary team acted as intermediaries between midwives and a technical company to develop a Swedish-Arabic communication app for use in antenatal care. An earlier study describes the creation of the content and the development of the prototype. This paper describes the next phase of the study, i.e., testing the prototype, refining the structure and content, and development of the next version. A user-centred approach with a norm critical perspective was applied. Workshops and observations were performed for interaction between the midwives and the research group, facilitating development from a user perspective. A final version of the app was developed. Future plans are to evaluate the app and produce a Swedish-English version.
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