| 1. |
- Bousquet, Jean, et al.
(författare)
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Allergic Rhinitis and its Impact on Asthma (ARIA) Phase 4 (2018) : Change management in allergic rhinitis and asthma multimorbidity using mobile technology
- 2019
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Ingår i: Journal of Allergy and Clinical Immunology. - : Elsevier. - 0091-6749 .- 1097-6825. ; 143:3, s. 864-879
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Tidskriftsartikel (refereegranskat)abstract
- Allergic Rhinitis and its Impact on Asthma (ARIA) has evolved from a guideline by using the best approach to integrated care pathways using mobile technology in patients with allergic rhinitis (AR) and asthma multimorbidity. The proposed next phase of ARIA is change management, with the aim of providing an active and healthy life to patients with rhinitis and to those with asthma multimorbidity across the lifecycle irrespective of their sex or socioeconomic status to reduce health and social inequities incurred by the disease. ARIA has followed the 8-step model of Kotter to assess and implement the effect of rhinitis on asthma multimorbidity and to propose multimorbid guidelines. A second change management strategy is proposed by ARIA Phase 4 to increase self-medication and shared decision making in rhinitis and asthma multimorbidity. An innovation of ARIA has been the development and validation of information technology evidence-based tools (Mobile Airways Sentinel Network [MASK]) that can inform patient decisions on the basis of a self-care plan proposed by the health care professional.
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| 2. |
- Bousquet, Jean, et al.
(författare)
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ARIA digital anamorphosis : Digital transformation of health and care in airway diseases from research to practice
- 2021
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Ingår i: Allergy. European Journal of Allergy and Clinical Immunology. - : John Wiley & Sons. - 0105-4538 .- 1398-9995. ; 76:1, s. 168-190
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Forskningsöversikt (refereegranskat)abstract
- Digital anamorphosis is used to define a distorted image of health and care that may be viewed correctly using digital tools and strategies. MASK digital anamorphosis represents the process used by MASK to develop the digital transformation of health and care in rhinitis. It strengthens the ARIA change management strategy in the prevention and management of airway disease. The MASK strategy is based on validated digital tools. Using the MASK digital tool and the CARAT online enhanced clinical framework, solutions for practical steps of digital enhancement of care are proposed.
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| 3. |
- Householder, John Ethan, et al.
(författare)
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One sixth of Amazonian tree diversity is dependent on river floodplains
- 2024
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Ingår i: NATURE ECOLOGY & EVOLUTION. - 2397-334X.
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Tidskriftsartikel (refereegranskat)abstract
- Amazonia's floodplain system is the largest and most biodiverse on Earth. Although forests are crucial to the ecological integrity of floodplains, our understanding of their species composition and how this may differ from surrounding forest types is still far too limited, particularly as changing inundation regimes begin to reshape floodplain tree communities and the critical ecosystem functions they underpin. Here we address this gap by taking a spatially explicit look at Amazonia-wide patterns of tree-species turnover and ecological specialization of the region's floodplain forests. We show that the majority of Amazonian tree species can inhabit floodplains, and about a sixth of Amazonian tree diversity is ecologically specialized on floodplains. The degree of specialization in floodplain communities is driven by regional flood patterns, with the most compositionally differentiated floodplain forests located centrally within the fluvial network and contingent on the most extraordinary flood magnitudes regionally. Our results provide a spatially explicit view of ecological specialization of floodplain forest communities and expose the need for whole-basin hydrological integrity to protect the Amazon's tree diversity and its function.
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| 4. |
- Sousa-Pinto, Bernardo, et al.
(författare)
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Development and validation of combined symptom-medication scores for allergic rhinitis*
- 2022
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Ingår i: Allergy. European Journal of Allergy and Clinical Immunology. - : John Wiley & Sons. - 0105-4538 .- 1398-9995. ; 77:7, s. 2147-2162
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Tidskriftsartikel (refereegranskat)abstract
- Background: Validated combined symptom-medication scores (CSMSs) are needed to investigate the effects of allergic rhinitis treatments. This study aimed to use real-life data from the MASK-air® app to generate and validate hypothesis- and data-driven CSMSs.Methods: We used MASK-air® data to assess the concurrent validity, test-retest reliability and responsiveness of one hypothesis-driven CSMS (modified CSMS: mCSMS), one mixed hypothesis- and data-driven score (mixed score), and several data-driven CSMSs. The latter were generated with MASK-air® data following cluster analysis and regression models or factor analysis. These CSMSs were compared with scales measuring (i) the impact of rhinitis on work productivity (visual analogue scale [VAS] of work of MASK-air®, and Work Productivity and Activity Impairment: Allergy Specific [WPAI-AS]), (ii) quality-of-life (EQ-5D VAS) and (iii) control of allergic diseases (Control of Allergic Rhinitis and Asthma Test [CARAT]).Results: We assessed 317,176 days of MASK-air® use from 17,780 users aged 16-90 years, in 25 countries. The mCSMS and the factor analyses-based CSMSs displayed poorer validity and responsiveness compared to the remaining CSMSs. The latter displayed moderate-to-strong correlations with the tested comparators, high test-retest reliability and moderate-to-large responsiveness. Among data-driven CSMSs, a better performance was observed for cluster analyses-based CSMSs. High accuracy (capacity of discriminating different levels of rhinitis control) was observed for the latter (AUC-ROC = 0.904) and for the mixed CSMS (AUC-ROC = 0.820).Conclusion: The mixed CSMS and the cluster-based CSMSs presented medium-high validity, reliability and accuracy, rendering them as candidates for primary endpoints in future rhinitis trials.
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| 5. |
- ter Steege, Hans, et al.
(författare)
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Mapping density, diversity and species-richness of the Amazon tree flora
- 2023
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Ingår i: COMMUNICATIONS BIOLOGY. - 2399-3642. ; 6:1
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Tidskriftsartikel (refereegranskat)abstract
- Using 2.046 botanically-inventoried tree plots across the largest tropical forest on Earth, we mapped tree species-diversity and tree species-richness at 0.1-degree resolution, and investigated drivers for diversity and richness. Using only location, stratified by forest type, as predictor, our spatial model, to the best of our knowledge, provides the most accurate map of tree diversity in Amazonia to date, explaining approximately 70% of the tree diversity and species-richness. Large soil-forest combinations determine a significant percentage of the variation in tree species-richness and tree alpha-diversity in Amazonian forest-plots. We suggest that the size and fragmentation of these systems drive their large-scale diversity patterns and hence local diversity. A model not using location but cumulative water deficit, tree density, and temperature seasonality explains 47% of the tree species-richness in the terra-firme forest in Amazonia. Over large areas across Amazonia, residuals of this relationship are small and poorly spatially structured, suggesting that much of the residual variation may be local. The Guyana Shield area has consistently negative residuals, showing that this area has lower tree species-richness than expected by our models. We provide extensive plot meta-data, including tree density, tree alpha-diversity and tree species-richness results and gridded maps at 0.1-degree resolution. A study mapping the tree species richness in Amazonian forests shows that soil type exerts a strong effect on species richness, probably caused by the areas of these forest types. Cumulative water deficit, tree density and temperature seasonality affect species richness at a regional scale.
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| 6. |
- Almeida, Teresa, et al.
(författare)
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Isc1p plays a key role in hydrogen peroxide resistance and chronological lifespan through modulation of iron levels and apoptosis.
- 2008
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Ingår i: Molecular biology of the cell. - 1939-4586. ; 19:3, s. 865-76
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Tidskriftsartikel (refereegranskat)abstract
- The inositolphosphosphingolipid phospholipase C (Isc1p) of Saccharomyces cerevisiae belongs to the family of neutral sphingomyelinases that generates the bioactive sphingolipid ceramide. In this work the role of Isc1p in oxidative stress resistance and chronological lifespan was investigated. Loss of Isc1p resulted in a higher sensitivity to hydrogen peroxide that was associated with an increase in oxidative stress markers, namely intracellular oxidation, protein carbonylation, and lipid peroxidation. Microarray analysis showed that Isc1p deficiency up-regulated the iron regulon leading to increased levels of iron, which is known to catalyze the production of the highly reactive hydroxyl radicals via the Fenton reaction. In agreement, iron chelation suppressed hydrogen peroxide sensitivity of isc1Delta mutants. Cells lacking Isc1p also displayed a shortened chronological lifespan associated with oxidative stress markers and aging of parental cells was correlated with a decrease in Isc1p activity. The analysis of DNA fragmentation and caspase-like activity showed that Isc1p deficiency increased apoptotic cell death associated with oxidative stress and aging. Furthermore, deletion of Yca1p metacaspase suppressed the oxidative stress sensitivity and premature aging phenotypes of isc1Delta mutants. These results indicate that Isc1p plays an important role in the regulation of cellular redox homeostasis, through modulation of iron levels, and of apoptosis.
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| 7. |
- Bedard, Annabelle, et al.
(författare)
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Mobile technology offers novel insights into the control and treatment of allergic rhinitis : The MASK study
- 2019
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Ingår i: Journal of Allergy and Clinical Immunology. - : MOSBY-ELSEVIER. - 0091-6749 .- 1097-6825. ; 144:1, s. 135-143
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Tidskriftsartikel (refereegranskat)abstract
- Background: Mobile health can be used to generate innovative insights into optimizing treatment to improve allergic rhinitis (AR) control. Objectives: A cross-sectional real-world observational study was undertaken in 22 countries to complement a pilot study and provide novel information on medication use, disease control, and work productivity in the everyday life of patients with AR. Methods: A mobile phone app (Allergy Diary, which is freely available on Google Play and Apple stores) was used to collect the data of daily visual analogue scale (VAS) scores for (1) overall allergic symptoms; (2) nasal, ocular, and asthma symptoms; (3) work; and (4) medication use by using a treatment scroll list including all allergy medications (prescribed and over-the-counter) customized for 22 countries. The 4 most common intranasal medications containing intranasal corticosteroids and 8 oral H-1-antihistamines were studied. Results: Nine thousand one hundred twenty-two users filled in 112,054 days of VASs in 2016 and 2017. Assessment of days was informative. Control of days with rhinitis differed between no (best control), single (good control for intranasal corticosteroid-treated days), or multiple (worst control) treatments. Users with the worst control increased the range of treatments being used. The same trend was found for asthma, eye symptoms, and work productivity. Differences between oral H-1-antihistamines were found. Conclusions: This study confirms the usefulness of the Allergy Diary in accessing and assessing behavior in patients with AR. This observational study using a very simple assessment tool (VAS) on a mobile phone had the potential to answer questions previously thought infeasible.
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| 8. |
- Bousquet, J. Jean, et al.
(författare)
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Next-generation ARIA care pathways for rhinitis and asthma : a model for multimorbid chronic diseases
- 2019
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Ingår i: Clinical and Translational Allergy. - : BMC. - 2045-7022. ; 9
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Forskningsöversikt (refereegranskat)abstract
- Background: In all societies, the burden and cost of allergic and chronic respiratory diseases are increasing rapidly. Most economies are struggling to deliver modern health care effectively. There is a need to support the transformation of the health care system into integrated care with organizational health literacy.Main body: As an example for chronic disease care, MASK (Mobile Airways Sentinel NetworK), a new project of the ARIA (Allergic Rhinitis and its Impact on Asthma) initiative, and POLLAR (Impact of Air POLLution on Asthma and Rhinitis, EIT Health), in collaboration with professional and patient organizations in the field of allergy and airway diseases, are proposing real-life ICPs centred around the patient with rhinitis, and using mHealth to monitor environmental exposure. Three aspects of care pathways are being developed: (i) Patient participation, health literacy and self-care through technology-assisted "patient activation", (ii) Implementation of care pathways by pharmacists and (iii) Next-generation guidelines assessing the recommendations of GRADE guidelines in rhinitis and asthma using real-world evidence (RWE) obtained through mobile technology. The EU and global political agendas are of great importance in supporting the digital transformation of health and care, and MASK has been recognized by DG Sante as a Good Practice in the field of digitally-enabled, integrated, person-centred care.Conclusion: In 20 years, ARIA has considerably evolved from the first multimorbidity guideline in respiratory diseases to the digital transformation of health and care with a strong political involvement.
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| 9. |
- Cruz, Raquel, et al.
(författare)
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Novel genes and sex differences in COVID-19 severity
- 2022
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Ingår i: Human Molecular Genetics. - : Oxford University Press. - 0964-6906 .- 1460-2083. ; 31:22, s. 3789-3806
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Tidskriftsartikel (refereegranskat)abstract
- Here, we describe the results of a genome-wide study conducted in 11 939 coronavirus disease 2019 (COVID-19) positive cases with an extensive clinical information that were recruited from 34 hospitals across Spain (SCOURGE consortium). In sex-disaggregated genome-wide association studies for COVID-19 hospitalization, genome-wide significance (P < 5 × 10−8) was crossed for variants in 3p21.31 and 21q22.11 loci only among males (P = 1.3 × 10−22 and P = 8.1 × 10−12, respectively), and for variants in 9q21.32 near TLE1 only among females (P = 4.4 × 10−8). In a second phase, results were combined with an independent Spanish cohort (1598 COVID-19 cases and 1068 population controls), revealing in the overall analysis two novel risk loci in 9p13.3 and 19q13.12, with fine-mapping prioritized variants functionally associated with AQP3 (P = 2.7 × 10−8) and ARHGAP33 (P = 1.3 × 10−8), respectively. The meta-analysis of both phases with four European studies stratified by sex from the Host Genetics Initiative (HGI) confirmed the association of the 3p21.31 and 21q22.11 loci predominantly in males and replicated a recently reported variant in 11p13 (ELF5, P = 4.1 × 10−8). Six of the COVID-19 HGI discovered loci were replicated and an HGI-based genetic risk score predicted the severity strata in SCOURGE. We also found more SNP-heritability and larger heritability differences by age (<60 or ≥60 years) among males than among females. Parallel genome-wide screening of inbreeding depression in SCOURGE also showed an effect of homozygosity in COVID-19 hospitalization and severity and this effect was stronger among older males. In summary, new candidate genes for COVID-19 severity and evidence supporting genetic disparities among sexes are provided.
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| 10. |
- Luize, Bruno Garcia, et al.
(författare)
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Geography and ecology shape the phylogenetic composition of Amazonian tree communities
- 2024
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Ingår i: JOURNAL OF BIOGEOGRAPHY. - 0305-0270 .- 1365-2699.
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Tidskriftsartikel (refereegranskat)abstract
- Aim: Amazonia hosts more tree species from numerous evolutionary lineages, both young and ancient, than any other biogeographic region. Previous studies have shown that tree lineages colonized multiple edaphic environments and dispersed widely across Amazonia, leading to a hypothesis, which we test, that lineages should not be strongly associated with either geographic regions or edaphic forest types. Location: Amazonia. Taxon: Angiosperms (Magnoliids; Monocots; Eudicots). Methods: Data for the abundance of 5082 tree species in 1989 plots were combined with a mega-phylogeny. We applied evolutionary ordination to assess how phylogenetic composition varies across Amazonia. We used variation partitioning and Moran's eigenvector maps (MEM) to test and quantify the separate and joint contributions of spatial and environmental variables to explain the phylogenetic composition of plots. We tested the indicator value of lineages for geographic regions and edaphic forest types and mapped associations onto the phylogeny. Results: In the terra firme and v & aacute;rzea forest types, the phylogenetic composition varies by geographic region, but the igap & oacute; and white-sand forest types retain a unique evolutionary signature regardless of region. Overall, we find that soil chemistry, climate and topography explain 24% of the variation in phylogenetic composition, with 79% of that variation being spatially structured (R-2 = 19% overall for combined spatial/environmental effects). The phylogenetic composition also shows substantial spatial patterns not related to the environmental variables we quantified (R-2 = 28%). A greater number of lineages were significant indicators of geographic regions than forest types. Main Conclusion: Numerous tree lineages, including some ancient ones (>66 Ma), show strong associations with geographic regions and edaphic forest types of Amazonia. This shows that specialization in specific edaphic environments has played a long-standing role in the evolutionary assembly of Amazonian forests. Furthermore, many lineages, even those that have dispersed across Amazonia, dominate within a specific region, likely because of phylogenetically conserved niches for environmental conditions that are prevalent within regions.
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| 11. |
- Peripato, Vinicius, et al.
(författare)
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More than 10,000 pre-Columbian earthworks are still hidden throughout Amazonia
- 2023
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Ingår i: Science (New York, N.Y.). - 1095-9203. ; 382:6666, s. 103-109
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Tidskriftsartikel (refereegranskat)abstract
- Indigenous societies are known to have occupied the Amazon basin for more than 12,000 years, but the scale of their influence on Amazonian forests remains uncertain. We report the discovery, using LIDAR (light detection and ranging) information from across the basin, of 24 previously undetected pre-Columbian earthworks beneath the forest canopy. Modeled distribution and abundance of large-scale archaeological sites across Amazonia suggest that between 10,272 and 23,648 sites remain to be discovered and that most will be found in the southwest. We also identified 53 domesticated tree species significantly associated with earthwork occurrence probability, likely suggesting past management practices. Closed-canopy forests across Amazonia are likely to contain thousands of undiscovered archaeological sites around which pre-Columbian societies actively modified forests, a discovery that opens opportunities for better understanding the magnitude of ancient human influence on Amazonia and its current state.
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| 12. |
- Sousa-Pinto, Bernardo, et al.
(författare)
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Validity, reliability, and responsiveness of daily monitoring visual analog scales in MASK-air®
- 2021
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Ingår i: Clinical and Translational Allergy. - : John Wiley & Sons. - 2045-7022. ; 11:7
-
Forskningsöversikt (refereegranskat)abstract
- Background: MASK-air® is an app that supports allergic rhinitis patients in disease control. Users register daily allergy symptoms and their impact on activities using visual analog scales (VASs). We aimed to assess the concurrent validity, reliability, and responsiveness of these daily VASs.Methods: Daily monitoring VAS data were assessed in MASK-air® users with allergic rhinitis. Concurrent validity was assessed by correlating daily VAS values with those of the EuroQol-5 Dimensions (EQ-5D) VAS, the Control of Allergic Rhinitis and Asthma Test (CARAT) score, and the Work Productivity and Activity Impairment Allergic Specific (WPAI-AS) Questionnaire (work and activity impairment scores). Intra-rater reliability was assessed in users providing multiple daily VASs within the same day. Test–retest reliability was tested in clinically stable users, as defined by the EQ-5D VAS, CARAT, or “VAS Work” (i.e., VAS assessing the impact of allergy on work). Responsiveness was determined in users with two consecutive measurements of EQ-5D-VAS or “VAS Work” indicating clinical change.Results: A total of 17,780 MASK-air® users, with 317,176 VAS days, were assessed. Concurrent validity was moderate–high (Spearman correlation coefficient range: 0.437–0.716). Intra-rater reliability intraclass correlation coefficients (ICCs) ranged between 0.870 (VAS assessing global allergy symptoms) and 0.937 (VAS assessing allergy symptoms on sleep). Test–retest reliability ICCs ranged between 0.604 and 0.878—“VAS Work” and “VAS asthma” presented the highest ICCs. Moderate/large responsiveness effect sizes were observed—the sleep VAS was associated with lower responsiveness, while the global allergy symptoms VAS demonstrated higher responsiveness.Conclusion: In MASK-air®, daily monitoring VASs have high intra-rater reliability and moderate–high validity, reliability, and responsiveness, pointing to a reliable measure of symptom loads.
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| 13. |
- Ahmed, A. A., et al.
(författare)
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What’s at issue : Sex, stigma, and politics in ACM publishing
- 2018
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Ingår i: Proceeding CHI EA '18 Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems. - New York, NY, USA : Association for Computing Machinery (ACM). - 9781450356206 - 9781450356213
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Konferensbidrag (refereegranskat)abstract
- Because publishing with the ACM is essentially required to advance our careers, we must examine its practices critically and constructively. To this end, we reflect on our experience working with the ACM student publication Crossroads. We encountered rigid content limitations related to sex and sexuality, preventing some contributors from foregrounding their connection to political activism, and others from publishing altogether. We explore the underlying institutional and sociopolitical problems and propose starting points for future action, including developing a transparent content approval policy and new organizations for politically-engaged computing researchers, all of which should center the leadership of marginalized individuals.
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| 14. |
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| 15. |
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| 16. |
- Almeida, Nuno A.F., et al.
(författare)
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Pressure dependent luminescence in titanium dioxide particles modified with europium ions
- 2016
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Ingår i: Sensors and actuators. B, Chemical. - : Elsevier BV. - 0925-4005 .- 1873-3077. ; 234, s. 137-144
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Tidskriftsartikel (refereegranskat)abstract
- Particles of titanium dioxide were prepared in the presence of europium ions (TiO2:Eu) by a solvothermal method and thermal annealed in air at 500 °C. The spectroscopic properties of TiO2:Eu particles were analyzed indicating that the Eu3+ ions are likely distributed at the surface or near the surface of the titanium dioxide particles. The photoluminescence analysis showed that the intraionic emission was strongly sensitive to reduced pressure conditions, as seen by its absence under vacuum conditions. The ion emission was re-established as soon as the atmosphere was restored. Additionally, the ion integrated emission intensity follows a linearly dependence with pressure in the range of 150 to 800 mbar revealing a high sensitivity to small variations in pressure, which is an unprecedented result. This innovation will allow the study of new technologies in the area of low vacuum sensors where TiO2:Eu may act as the active element of an optical sensor for a pressure device.
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| 17. |
- Almeida, Teresa, et al.
(författare)
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Bodies like yours : enquiring data privacy in FemTech
- 2022
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Konferensbidrag (refereegranskat)abstract
- The digitalisation of the reproductive body has seen a myriad of cutting-edge technologies to prioritise neglected intimate health and care topics, such as fertility and contraception. The impact of these intimate data on livelihood and society is pervasive including that privacy is critical to safeguarding security as this increasing digitalisation also produces increasingly large datasets. In this paper, we enquire the collective nature of privacy in female-oriented technologies (FemTech) to show how this ever-extending collection of data implicates many beyond the individual. We introduce a pilot study on the data collection practices of a subset of FemTech devices with fertility tracking service. We demonstrate that data is collected about the user and others, such as their immediate relationships and user groups as a whole. We suggest that it is critical we ask who is vulnerable and discuss approaches to mitigate collective harm.
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| 18. |
- Almeida, Teresa, et al.
(författare)
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Can you be a follower even when you do not follow the leader? : Yes, you can
- 2021
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Ingår i: Leadership. - : SAGE Publications. - 1742-7150 .- 1742-7169. ; 17:3, s. 336-364
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Tidskriftsartikel (refereegranskat)abstract
- In the ongoing debate in the area of critical leadership studies, the nature of leader–follower relationships is a thorny issue. The nature of followership has been questioned, especially whether followers can display resistance behaviours while maintaining their follower position. Addressing this issue requires a dialectical approach in which followers and leaders alike are primary elements in leadership co-production. Followers who face destructive leaders are of special interest when leadership is studied as a co-creational process. This context favours the emergence of a full range of behavioural profiles in which passives and colluders will illustrate the destructive leadership co-production process, and those who resist demonstrate that followers may not follow the leader and still keep a followership purpose. A two-step data analysis procedure was conducted based on the behaviour descriptions of 123 followers having a destructive leader. A qualitative analysis (i.e. content analysis) showed a set of behaviours and their antecedents that suggest three main groups of followers: resisters, obedient and mixed behaviour. Treating these data quantitatively (i.e. latent class analysis), six followers’ profiles emerged: active resistance, passive resistance, passive obedience, conflict avoidance, support and mixed. Our findings provide evidence that followers who resist may do it for the sake of the organisation. We discuss our findings in light of followership theory, whereby joining role-based and constructionist approaches allows us to argue that followers may still be followers even when they do not invariably follow their leader.
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| 19. |
- Almeida, Teresa, et al.
(författare)
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Coproducing leadership : a reason to resist destructive leaders
- 2023
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Ingår i: Leadership & Organization Development Journal. - 0143-7739 .- 1472-5347. ; 44:2, s. 189-204
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: Follower's individual differences have been receiving increased attention in studying destructive leadership because followers may enable or disable it. One of these yet under-researched features is the role of followers' leadership coproduction beliefs (a role construal) in explaining their resistance to destructive leaders. Departing from the proactive motivation theory, this paper explores the robustness of coproduction beliefs by testing its ability to predict followers' resistance to destructive leaders across four situations – abusive supervision, exploitative leadership, organization directed behaviors and laissez-faire. Design/methodology/approach: With a sample of 359 participants that answered a scenario-based survey, the present study tests the relationship between coproduction beliefs and resistance behaviors in the four mentioned groups, while controlling for alternative explanations. A multigroup analysis was conducted with PLS-SEM. Findings: Constructive resistance is always favored by coproduction beliefs independently of the leader's type of destructive behavior. Dysfunctional resistance, however, is sensitive to the leader's type of destructive behavior. Originality/value: This paper extends knowledge on the role of coproduction beliefs as an individual-based resource against destructive leaders.
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| 20. |
- Almeida, Teresa
(författare)
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Critical Wearables
- 2018
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)
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| 21. |
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| 22. |
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| 23. |
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| 24. |
- Almeida, Teresa
(författare)
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(e)Textile new materialities
- 2021
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Ingår i: Journal of Textile Design Research and Practice. - UK : Taylor & Francis. - 2051-1787 .- 2051-1795. ; 9:1
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Tidskriftsartikel (refereegranskat)abstract
- This paper explores the intersections within bodily materialism and future textiles by inquiring into embodied practices and materiality in care. By plac- ing the body as a site of research, it centres around con- cepts of bodily care and the body as an ecosystem, one that is always in flux and considers the fluidity of bodies and bodily fluids, such as urine, discharge, breath and sweat, as fluids with potential to design with. It looks at how bodies are acted upon by outside forces, and explore more-than-human relations as co-creators in co- habiting the space of the body and that around it. To illustrate this, the paper introduces a series of design research artefacts that take a variety of approaches to exploring the materiality of care in the everyday. First, an eTextile toolkit that aims to create bodily awareness through hands-on engagement with textile crafting tech- nology, then a biotextile harvesting toolkit that involves the raw material of the intimate body that explores DIYbio in the context of the home, and lastly a set of wearable living material-based explorations that recog- nize biomimicry and symbiotic relationships in designing for chronic stress. In embracing notions of bodily materi- alism, this paper explores the bodily abject, i.e. fluids and the more-than-human as crucial to engendering new modes of knowing in intimate and personal care through textile-based materials. The paper engages critically with textile design research and practice by placing material that embraces care as ambivalent at the forefront and thus challeng- ing traditional approaches to health and care and, importantly, the design of future textiles.
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| 25. |
- Almeida, Teresa
(författare)
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Haré lo que deseo/I Will What I Want: Women, Design, and Empowerment: diseño y empoderamiento femenino
- 2018
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Annan publikation (utställning/event) (populärvet., debatt m.m.)abstract
- El catálogo y la exposición Haré lo que deseo/I Will What I Want: Women, Design, and Empowerment: diseño y empoderamiento femenino son un concepto curatorial desarrollado por Jimena Acosta Romero y Michelle Millar Fisher. En Abril de 2017 esta exposición fue organizada para exhibirse por primera vez en Arnold and Sheila Aronson Galleries, en el Sheila C. Johnson Design Center (Parsons School of Design / The New School, Nueva York) del 11 al 23 de abril de 2017. Su segunda sede fue en MUCA-Roma, Ciudad de México (Enero 18 - Mayo 22, 2018).El catálogo y la exposición Will What I Want: Women, Design, and Empowerment / Haré lo que deseo: Diseño y empoderamiento femenino explora el complejo y contradictorio rol que ha jugado el diseño desde la mitad del siglo XX, pasando por la segunda ola feminista, hasta las intersecciones no binarias del presente. La exhibición presenta objetos, interfaces e indumentaria que ha buscado habilitar como sujetos independientes y creativos, a aquellos que tienen úteros, menstrúan o se identifican como mujer; en un mundo material en su mayoría diseñado por hombres y para hombres.Haré lo que deseo: Diseño y empoderamiento femenino invita al lector que contemple, desde su propia perspectiva, las maneras en que estos productos, interfaces e indumentaria han - a veces para bien y otras para mal - gobernado, formado, y facilitado las experiencias modernas y contemporáneas.
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| 26. |
- Almeida, Teresa, et al.
(författare)
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HCI and Intimate Care as an Agenda for Change in Women's Health
- 2016
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Ingår i: 34TH ANNUAL CHI CONFERENCE ON HUMAN FACTORS IN COMPUTING SYSTEMS, CHI 2016. - New York, NY, USA : ASSOC COMPUTING MACHINERY. ; , s. 2599-2611
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Konferensbidrag (refereegranskat)abstract
- Designing for women's healthcare remains an underexplored area of HCI, particularly outside informational systems for maternal health. Drawing on a case study of a body disruption - urinary incontinence in women - we illustrate the experience of women's health both from the perspective of the patient and the therapist. We show how knowledge, esteem and agency play crucial roles in remedial women's care practices, as well as preventative. In describing these challenges we deliberate on possible futures of women's health that take advantage of the many advances in design and technology from across the spectrum of HCI research. We show how with some care and courage HCI has the potential to transform women's experience within this setting.
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| 27. |
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| 28. |
- Almeida, Teresa, et al.
(författare)
-
On Looking at the Vagina through Labella
- 2016
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Ingår i: 34th annual chi conference on human factors in computing systems, CHI 2016. - New York, NY, USA : ASSOC COMPUTING MACHINERY. ; , s. 1810-1821
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Konferensbidrag (refereegranskat)abstract
- Women's understandings of their own intimate anatomy has been identified as critical to women's reproductive health and sexual wellbeing. However, talking about it, seeking medical help when necessary as well as examining oneself in order to 'know' oneself is complicated by social-cultural constructions of the vagina, i.e. it is something private, shameful and not to be talked about. In response to this, we designed Lobelia, an augmented system that supports intimate bodily knowledge and pelvic fitness in women. It combines a pair of underwear and a mobile phone as a tool for embodied intimate self-discovery. In this paper, we describe Labella, and its evaluation with fourteen women, aged 25-63. We show how through situated embodied perception Labella empowers 'looking'. We highlight how the simple act of augmented looking enables the construction of knowledge which ranges from establishing the 'very basics' through to a nuanced understanding of pelvic muscle structure. Finally, we highlight the role of awkwardness and humour in the design of interactions to overcome taboo.
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| 29. |
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| 30. |
- Almeida, Teresa, et al.
(författare)
-
Woman-Centered Design through Humanity, Activism, and Inclusion
- 2020
-
Ingår i: ACM Transactions on Computer-Human Interaction. - New York : ACM Digital Library. - 1073-0516 .- 1557-7325. ; 27:4
-
Tidskriftsartikel (refereegranskat)abstract
- Women account for over half of the global population, however, continue to be subject to systematic and systemic disadvantage, particularly in terms of access to health and education. At every intersection, where systemic inequality accounts for greater loss of life or limitations on full and healthy living, women are more greatly impacted by those inequalities. The design of technologies is no different, the very definition of technology is historically cast in terms of male activities, and advancements in the field are critical to improve women's quality of life. This article views HCI, a relatively new field, as well positioned to act critically in the ways that technology serve, refigure, and redefine women's bodies. Indeed, the female body remains a contested topic, a restriction to the development of women's health. On one hand, the field of women's health has attended to the medicalization of the body and therefore is to be understood through medical language and knowledge. On the other hand, the framing of issues associated with women's health and people's experiences of and within such system(s) remain problematic for many. This is visible today in, e.g., socio-cultural practices in disparate geographies or medical devices within a clinic or the home. Moreover, the biological body is part of a great unmentionable, i.e., the perils of essentialism. We contend that it is necessary, pragmatically and ethically, for HCI to turn its attention toward a woman-centered design approach. While previous research has argued for the dangers of gender-demarcated design work, we advance that designing for and with women should not be regarded as ghettoizing, but instead as critical to improving women's experiences in bodily transactions, choices, rights, and access to and in health and care. In this article, we consider how and why designing with and for woman matters. We use our design-led research as a way to speak to and illustrate alternatives to designing for and with women within HCI.
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| 31. |
- Almeida, Teresa, et al.
(författare)
-
Woman-Centred Design
- 2018
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Ingår i: DRS 2018. - UK : Design Research Society. - 9781912294367
-
Konferensbidrag (övrigt vetenskapligt/konstnärligt)
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| 32. |
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| 33. |
- Balaam, Madeline, et al.
(författare)
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Hacking Women’s Health
- 2017
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Ingår i: CHI EA '17 Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems, Denver, Colorado, USA — May 06 - 11, 2017. - New York, NY, USA : ACM. - 9781450346566 ; , s. 476-483
-
Konferensbidrag (refereegranskat)abstract
- The aim of this two-day workshop is to bring together a nascent community of researchers to share research, ideas, methods and tools that can encourage, inspire and strengthen those of us working on digital women's health. Our workshop aims to take a pro-active stance, offering participants the opportunity to critique, design and hack existing and new women's digital health experiences. Or, in other words, to get their hands dirty. Through our hack-led event we aim to face headon issues related to digital women's health, such as taboo, power and prejudice. This workshop will address current gaps in research and practice by enabling us to develop the confidence, networks and strategies that can facilitate researchers/designers/technologists to work within this space.
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| 34. |
- Correia, Filipa, et al.
(författare)
-
More-than-human perspective on the robomorphism paradigm
- 2024
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Ingår i: HRI ’24 Companion. - : Association for Computing Machinery (ACM). - 9798400703232 ; , s. 11-19
-
Konferensbidrag (refereegranskat)abstract
- This paper proposes a posthuman perspective of the robomorphism theory. We propose to define robomorphism as the attribution of robotlike traits to non-robotic entities. Such a definition embraces the centrality of robots in two aspects. First, by assuming the target of robomorphism is not necessarily a human. Second, by considering the notion of robomorphic traits as inherently crucial to establish the robomorphism paradigm. Embracing robots as relevant non-humans in the robomorphism paradigm constitutes the more-than-human perspective of the proposed approach. The contributions of this paper are threefold. First, we propose the robomorphism paradigm by defining it and its inherent concepts, such as robomorphisation and robomorphic. Second, we discuss the broader implications of the robomorphism theory to the research community of Human-Robot Interaction, raising important new challenges. Third, we created a preliminary inventory of robomorphic traits, which were collected from a speculative workshop activity in order to start answering one of the proposed open challenges.
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| 35. |
- Geleff Nielsen, Gerd, et al.
(författare)
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Designing with the Immune System : The Abject, Bodily Fluids, and Micro(be) Interactions
- 2021
-
Ingår i: ARTECH 2021. - New York, NY, USA : Association for Computing Machinery (ACM).
-
Konferensbidrag (refereegranskat)abstract
- The immune system is built from our cells, organs, proteins and tissue, and it is the sum of the whole that defends the body against illness. In this paper, we introduce the immune system as a site to explore more- than-human design. Specifically, we address the effects of chronic stress on the immune system to explore a set of speculative wearable designs that combine the microbial basis of the human body with that of more- than-human. We reflect on the relationships within living materials and discuss symbiosis and mutualistic care when designing alternative wearable artifacts and trackers.
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| 36. |
- Gomes Marques, Inês, et al.
(författare)
-
The ADnet Bayesian belief network for alder decline : integrating empirical data and expert knowledge
- 2024
-
Ingår i: Science of the Total Environment. - : Elsevier. - 0048-9697 .- 1879-1026. ; 947
-
Tidskriftsartikel (refereegranskat)abstract
- The globalization in plant material trading has caused the emergence of invasive pests in many ecosystems, such as the alder pathogen Phytophthora ×alni in European riparian forests. Due to the ecological importance of alder to the functioning of rivers and the increasing incidence of P. ×alni-induced alder decline, effective and accessible decision tools are required to help managers and stakeholders control the disease. This study proposes a Bayesian belief network methodology to integrate diverse information on the factors affecting the survival and infection ability of P. ×alni in riparian habitats to help predict and manage disease incidence. The resulting Alder Decline Network (ADnet) management tool integrates information about alder decline from scientific literature, expert knowledge and empirical data. Expert knowledge was gathered through elicitation techniques that included 19 experts from 12 institutions and 8 countries. An original dataset was created covering 1189 European locations, from which P. ×alni occurrence was modeled based on bioclimatic variables. ADnet uncertainty was evaluated through its sensitivity to changes in states and three scenario analyses. The ADnet tool indicated that mild temperatures and high precipitation are key factors favoring pathogen survival. Flood timing, water velocity, and soil type have the strongest influence on disease incidence. ADnet can support ecosystem management decisions and knowledge transfer to address P. ×alni-induced alder decline at local or regional levels across Europe. Management actions such as avoiding the planting of potentially infected trees or removing man-made structures that increase the flooding period in disease-affected sites could decrease the incidence of alder disease in riparian forests and limit its spread. The coverage of the ADnet tool can be expanded by updating data on the pathogen's occurrence, particularly from its distributional limits. Research on the role of genetic variability in alder susceptibility and pathogen virulence may also help improve future ADnet versions.
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| 37. |
- Gonzalez-Garcia, Sara, et al.
(författare)
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Evaluating the environmental profiles of winter wheat rotation systems under different management strategies
- 2021
-
Ingår i: Science of the Total Environment. - : Elsevier BV. - 0048-9697 .- 1879-1026. ; 770
-
Tidskriftsartikel (refereegranskat)abstract
- Climate change poses a remarkable challenge to global food security, for which wheat is one of the main staple agricultural commodities. The cultivation of different varieties of winter wheat in Galicia (commercial and native) under rotation systems with potato, maize and oilseed rape was evaluated from an environmental point of view. The general approach of this study included the gathering of the inventory data of the different crops, the quantification of their environmental impacts and economic benefits, to identify the best land management system. Life Cycle Assessment (LCA) was used as environmental tool. The environmental profiles of each rotation system were reported in terms of nine impact categories. Crop rotations were analysed both per hectare and per is an element of of gross margin, so that the information can be relevant to land-management decisions. Preference ranks were established based on an environmental normalized score for both units. The results suggest that arable operations contribute decisively to the environmental profile of the rotations. The avoided mineral fertilization processes, the carbon storage in the soil when returning straw to the field, as well as the electricity production clearly influence the environmental impact of the rotations. Scenarios that include native wheat under organic management are always the environmentally preferred ones while the preferred alternate crop depends on the reference unit. Concerning the margin gross, scenarios including the native variety report the highest profits, being the potato the preferred alternate crop. Further assessment needs to be undertaken to identify differences in the results of different ways of conducting LCA, i.e. attributional vs consequential approaches.
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| 38. |
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| 39. |
- Heinzel, Tincuta, et al.
(författare)
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Attempts, Failures, Trials and Errors. Notes on an exhibition of failed prototypes and rejected projects.
- 2019
-
Ingår i: The Design Journal. - : Routledge. - 1460-6925 .- 1756-3062. ; 22, s. 1941-1956
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Tidskriftsartikel (refereegranskat)abstract
- In this paper, we present the history, the concept and the results of " Attempts, Failures, Trials and Errors" exhibition project which was first presented in the frame of Piksel Festival in Bergen, Norway (November 2017) and later on at " Salonul de Proiecte", Bucharest, Romania (February 2018). The project aimed to incite the e-textiles artists and designers to reflect upon the way they are engaging with their failures, as well as to the way in which they use these failures to better understand the context in which they are working and to continue to experiment. Our approach reverses the common R& D constructivist methods, by using deconstruction as a process of investigation in the field of wearable technologies and e-textiles. By questioning the ideas and the concepts of failure and success, the project puts an emphasis on art's capacity to be critical, while at the same time to poetically and self-ironically address contemporary challenges and concerns.
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| 40. |
-
I Will What I Want: Women, Design, and Empowerment : eTextile Toolkit & Labella
- 2018
-
Konstnärligt arbete (utställning/event)abstract
- El catálogo y la exposición Haré lo que deseo/I Will What I Want: Women, Design, and Empowerment: diseño y empoderamiento femenino son un concepto curatorial desarrollado por Jimena Acosta Romero y Michelle Millar Fisher. En Abril de 2017 esta exposición fue organizada para exhibirse por primera vez en Arnold and Sheila Aronson Galleries, en el Sheila C. Johnson Design Center (Parsons School of Design / The New School, Nueva York) del 11 al 23 de abril de 2017. Su segunda sede fue en MUCA-Roma, Ciudad de México (Enero 18 - Mayo 22, 2018).El catálogo y la exposición Will What I Want: Women, Design, and Empowerment / Haré lo que deseo: Diseño y empoderamiento femenino explora el complejo y contradictorio rol que ha jugado el diseño desde la mitad del siglo XX, pasando por la segunda ola feminista, hasta las intersecciones no binarias del presente. La exhibición presenta objetos, interfaces e indumentaria que ha buscado habilitar como sujetos independientes y creativos, a aquellos que tienen úteros, menstrúan o se identifican como mujer; en un mundo material en su mayoría diseñado por hombres y para hombres.
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| 41. |
- Jarusriboonchai, Pradthana, et al.
(författare)
-
Understanding Children's Free Play in Primary Schools
- 2019
-
Ingår i: 9TH INTERNATIONAL CONFERENCE ON COMMUNITIES & TECHNOLOGIES (C&T). - New York, NY, USA : ASSOC COMPUTING MACHINERY. ; , s. 178-188
-
Konferensbidrag (refereegranskat)abstract
- Various technologies (e.g., tablets, toolkits, and digital toys) are used in schools. However, they are often designed to introduce new play practices for serving pre-defined learning purposes. In this study, we are interested in constructive play 'in the wild' and how technologies can be integrated more organically into the ways young school children are already playing. This paper presents 4 one-week ethnographic study in four early primary school classrooms (children aged 5-7). The aim is to gain insights in children's free play and identify design opportunities for technology serving children's constructive play. Our findings illustrate children's interactions with resources and peers during free play, which often involve imitations and dynamically change between being solitary and social. We observed that children's constructive play was often associated with other forms of play. On this basis, we suggest three design implications for technologies that support and encourage constructive play during fee play in schools.
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| 42. |
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| 43. |
- Kilias Svenningsen, Ida, et al.
(författare)
-
Embodying the Emotional Pregnancy : Design Explorations of a Prenatal Yoga Multi-Sensorial Environment
- 2020
-
Ingår i: OzCHI'20: 32nd Australian Conference on Human-Computer Interaction. - New York : Association for Computing Machinery (ACM). - 9781450389754 ; , s. 189-197
-
Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- This paper introduces the design explorations of a multi-sensorial environment focused on emotional pregnancy. We define emotional pregnancy as the psychological and mental reactions to the transitional experiences towards motherhood/becoming a parent. We draw from insights into pregnant women’s experiences and expert knowledge shared by midwives and doula to develop a sensorial experience and toolkit that combine affirmations, light, sound, movements and journaling. This is deployed within the context of a prenatal yoga setting with three women at different stages in their pregnancy. We offer insights into how a multi-sensorial approach to designing for the wholeness of pregnancy can support and empower women in their experiences of pregnancy, expand on societal understandings and foster the value of emotions during this time.
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| 44. |
- Koistinen, Ville Mikael, et al.
(författare)
-
Interlaboratory coverage test on plant food bioactive compounds and their metabolites by mass spectrometry-based untargeted metabolomics
- 2018
-
Ingår i: Metabolites. - : MDPI AG. - 2218-1989 .- 2218-1989. ; 8:3
-
Tidskriftsartikel (refereegranskat)abstract
- Bioactive compounds present in plant-based foods, and their metabolites derived from gut microbiota and endogenous metabolism, represent thousands of chemical structures of potential interest for human nutrition and health. State-of-the-art analytical methodologies, including untargeted metabolomics based on high-resolution mass spectrometry, are required for the profiling of these compounds in complex matrices, including plant food materials and biofluids. The aim of this project was to compare the analytical coverage of untargeted metabolomics methods independently developed and employed in various European platforms. In total, 56 chemical standards representing the most common classes of bioactive compounds spread over a wide chemical space were selected and analyzed by the participating platforms (n = 13) using their preferred untargeted method. The results were used to define analytical criteria for a successful analysis of plant food bioactives. Furthermore, they will serve as a basis for an optimized consensus method.
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| 45. |
- Low, Dorrain Yanwen, et al.
(författare)
-
Data sharing in PredRet for accurate prediction of retention time: Application to plant food bioactive compounds
- 2021
-
Ingår i: Food Chemistry. - : Elsevier BV. - 0308-8146 .- 1873-7072. ; 357
-
Tidskriftsartikel (refereegranskat)abstract
- Prediction of retention times (RTs) is increasingly considered in untargeted metabolomics to complement MS/MS matching for annotation of unidentified peaks. We tested the performance of PredRet (http://predret.org/) to predict RTs for plant food bioactive metabolites in a data sharing initiative containing entry sets of 29–103 compounds (totalling 467 compounds, >30 families) across 24 chromatographic systems (CSs). Between 27 and 667 predictions were obtained with a median prediction error of 0.03–0.76 min and interval width of 0.33–8.78 min. An external validation test of eight CSs showed high prediction accuracy. RT prediction was dependent on shape and type of LC gradient, and number of commonly measured compounds. Our study highlights PredRet's accuracy and ability to transpose RT data acquired from one CS to another CS. We recommend extensive RT data sharing in PredRet by the community interested in plant food bioactive metabolites to achieve a powerful community-driven open-access tool for metabolomics annotation.
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| 46. |
- Marques, Marta, et al.
(författare)
-
The Pep4p vacuolar proteinase contributes to the turnover of oxidized proteins but PEP4 overexpression is not sufficient to increase chronological lifespan in Saccharomyces cerevisiae
- 2006
-
Ingår i: Microbiology. - : Microbiology Society. - 1350-0872 .- 1465-2080. ; 152:12, s. 3595-3605
-
Tidskriftsartikel (refereegranskat)abstract
- Turnover of damaged molecules is considered to play a key role in housekeeping of cells exposed to oxidative stress, and during the progress of ageing. In this work, global changes in the transcriptome were analysed during recovery of yeast cells after H2O2 stress. Regarding induced genes, those associated with protein fate were the most significantly over-represented. In addition to genes encoding subunits of the 20S proteasome, genes related to vacuolar proteolysis (PEP4 and LAP4), protein sorting into the vacuole, and vacuolar fusion were found to be induced. The upregulation of PEP4 gene expression was associated with an increase in Pep4p activity. The induction of genes related to proteolysis was correlated with an increased protein turnover after H2O2-induced oxidation. Furthermore, protein degradation and the removal of oxidized proteins decreased in Pep4p-deficient cells. Pep4p activity also increased during chronological ageing, and cells lacking Pep4p displayed a shortened lifespan associated with higher levels of carbonylated proteins. PEP4 overexpression prevented the accumulation of oxidized proteins, but did not increase lifespan. These results indicate that Pep4p is important for protein turnover after oxidative damage; however, increased removal of oxidized proteins is not sufficient to enhance lifespan
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| 47. |
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| 48. |
- Mavroudi, Anna, et al.
(författare)
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A card game for designing activities for technology-enhanced learning in higher education
- 2022
-
Ingår i: Education and Information Technologies. - : Springer. - 1360-2357 .- 1573-7608. ; 27, s. 2367-2383
-
Tidskriftsartikel (refereegranskat)abstract
- The importance of providing mechanisms and tools that effectively support the transition from implicit to explicit representations of Learning Design has been emphasised by previous research in the field of Technology-Enhanced Learning (TEL). In addition, the benefits of Game-based learning approaches have been long documented in the educational research literature. The paper presents the design, implementation and evaluation of a card game that aims to support the design process of TEL activities in higher education. The game was tested by a group of 36 students and tutors (n = 36) in higher education during an interactive workshop. Feedback was asked by the participants using an anonymous survey. The results reveal that the participants a) are satisfied with the game process, b) appreciate the groupwork and interaction taking place, and c) believe that they used their communication and collaboration skills. The paper includes the description of the outputs of a group (i.e., the cards selected for their TEL scenario and their actual TEL scenario) to exemplify that it is possible to use the game in order to elicit or diagnose existing LD knowledge from the game participants. The paper concludes on the usefulness of the approach suggested, limitations, and plans for future work.
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| 49. |
- Mehrnezhad, Maryam, et al.
(författare)
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Caring for Intimate Data in Fertility Technologies
- 2021
-
Ingår i: Proceedings of the 2021 ACM Conference on Human Factors in Computing Systems - CHI'21. - New York, NY, USA : ACM.
-
Konferensbidrag (refereegranskat)abstract
- Fertility tracking applications are technologies that collect sensitive information about their users i.e. reproductive potential. For many, these apps are an affordable solution when trying to conceive or managing their pregnancy. However, intimate data are not only collected but also shared beyond users knowledge or consent. In this paper, we explore the privacy risks that can originate from the mismanagement, misuse, and misappropriation of intimate data, which are entwined in individual life events and in public health issues such as abortion and (in)fertility. We look at differential vulnerabilities to enquire data’s vulnerability and that of ‘data subjects’. We introduce the General Data Protection Regulation (GDPR) and how it addresses fertility data. We evaluate the privacy of 30 top ‘fertility apps’ through their privacy notices and tracking practices. Lastly, we discuss the regulations and fertility data as critical to the future design of tracking technologies and privacy rights.
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| 50. |
- Mehrnezhad, Maryam, et al.
(författare)
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"my sex-related data is more sensitive than my financial data and i want the same level of security and privacy" : user risk perceptions and protective actions in female-oriented technologies
- 2023
-
Ingår i: EuroUSEC '23. - : Association for Computing Machinery (ACM). - 9798400708145 ; , s. 1-14
-
Konferensbidrag (refereegranskat)abstract
- The digitalization of the reproductive body has engaged myriads of cutting-edge technologies in supporting people to know and tackle their intimate health. Generally understood as female technologies (aka female-oriented technologies or ‘FemTech’), these products and systems collect a wide range of intimate data which are processed, transferred, saved and shared with other parties. In this paper, we explore how the “data-hungry" nature of this industry and the lack of proper safeguarding mechanisms, standards, and regulations for vulnerable data can lead to complex harms or faint agentic potential. We adopted mixed methods in exploring users’ understanding of the security and privacy (SP) of these technologies. Our findings show that while users can speculate the range of harms and risks associated with these technologies, they are not equipped and provided with the technological skills to protect themselves against such risks. We discuss a number of approaches, including participatory threat modelling and SP by design, in the context of this work and conclude that such approaches are critical to protect users in these sensitive systems.
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