| 1. |
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| 2. |
- Andréasson, Frida, et al.
(författare)
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Developing a carer identity and negotiating everyday life through social networking sites : An explorative study on identity constructions in an online Swedish carer community
- 2018
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Ingår i: Ageing & Society. - : Cambridge University Press. - 0144-686X .- 1469-1779. ; 38:11, s. 2304-2324
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Tidskriftsartikel (refereegranskat)abstract
- An overarching reason why carers do not utilise support services is that many people who perform care-giving do not necessarily self-identify as a carer. Understanding the development of carer identities is therefore crucial for the utilisation of different carer-focused health services. This study arose from the European Union-funded INNOVAGE project and aimed to describe how older carers conceptualise and understand their identity as carers on a Swedish online social forum. Theoretically the study adopts a constructionist approach and the method of netnography was applied. The findings reveal that a change in self-perception occurs in the process through which a carer role is acquired. The presence or absence of recognition for the older carers’ capacity, knowledge and life situation is seen as filtered through the needs of the care recipient, making the carer identity into an invisible self. This is not least the case when the identity is constructed in alliance with conceptual and moral obligations found within a marital discourse. Nevertheless, the opportunity for online communication may help to create a virtual space of social recognition through which different experiences attached to caring can be discussed. The significance of online communication is here understood as the possibility it presents for carers to be recognised by other carers. It is a process through which an invisible self can become visible.
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| 3. |
- Andréasson, Frida, et al.
(författare)
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Developing a carer identity and negotiating everyday life through social networking sites
- 2017
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Ingår i: Innovation in Aging. - : Oxford University Press. - 2399-5300. ; 1:Suppl_1, s. 465-466
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Research highlights that a key overarching reason why family carers do not utilize support services is that many people who perform the duties of caregiving do not necessarily self-identify as a carer. Understanding the development of carer identities may thus be understood as crucial for the utilization of different health services directed towards carers. Based on the EU funded Innovage project, this project aims to describe and analyse how older carers supporting and caring for an older person understand and socially negotiate their life situation and identity as carers on a Swedish online social forum. Theoretically the project departs from a constructionist approach and methodologically it has been inspired by a specifically designed method for studying the cultures and communities that emerge from online computer-mediated or Internet-based communications, called netnography. The results indicate that in the process through which a carer role is acquired, a significant change in self-perception occurs. The presence or absence of recognition for the older carers’ capacity, is understood as filtered through the needs of the cared for person, making the carer identity into an invisible self. At the same time, the opportunity for online communication may help to create a virtual space of social recognition through which negative and positive experiences attached to caring can be discussed. The significance of online communication is here understood as the possibility to be recognized, and feel empowered by other carers.
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| 4. |
- Herz, Marcus, et al.
(författare)
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The precariousness of asylum-seekers’ care and support : Informal care within and because of the immigration process
- 2023
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Ingår i: International Journal of Care and Caring. - : Policy Press. - 2397-8821 .- 2397-883X. ; 7:1, s. 50-66
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Tidskriftsartikel (refereegranskat)abstract
- Using ethnographic data, this article aims to analyse the provision of informal care by asylum-seekers in Sweden and how this intersects with the(ir) asylum process. The article argues that asylum-seekers are framed by the Swedish welfare system and immigration authorities as ungrievable and deportable, which not only impedes their access to formal care systems and values, but also creates a strong need for informal care. Further, it is suggested that the informal care provided by asylum-seekers should be included in current debate on informal care and its impact on people’s lives.
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| 5. |
- Herz, Marcus, 1978, et al.
(författare)
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The precariousness of asylum-seekers’ care and support: informal care within and because of the immigration process
- 2023
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Ingår i: International Journal of Care and Caring. - : POLICY PRESS. - 2397-8821 .- 2397-883X. ; 7:1
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Tidskriftsartikel (refereegranskat)abstract
- Using ethnographic data, this article aims to analyse the provision of informal care by asylum-seekers in Sweden and how this intersects with the(ir) asylum process. The article argues that asylum-seekers are framed by the Swedish welfare system and immigration authorities as ungrievable and deportable, which not only impedes their access to formal care systems and values, but also creates a strong need for informal care. Further, it is suggested that the informal care provided by asylum-seekers should be included in current debate on informal care and its impact on people’s lives.
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| 6. |
- Allemann, Hanna, et al.
(författare)
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The co-design of an online support programme with and for informal carers of people with heart failure : A methodological paper
- 2023
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Ingår i: Journal of Clinical Nursing. - : John Wiley & Sons. - 0962-1067 .- 1365-2702. ; 32:19-20, s. 7589-7604
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Tidskriftsartikel (refereegranskat)abstract
- Abstract AimTo describe the co-designing process of an online support programme with and for informal carers of people with heart failure.DesignA co-design process built on core concepts and ideas embedded in co-design methodology.Data sources Our co-design process included three phases involving 32 informal caregivers and 25 content creators; (1) Identification of topics and content through literature searches, focus group interviews and user group sessions; (2) Development of the online support programme and; (3) Refinement and finalization which included testing a paper prototype followed by testing the online version and testing and approval of the final version of the support programme.Outcomes The co-design process resulted in a support programme consisting of 15 different modules relevant to informal carers, delivered on a National Health Portal.Conclusion Co-design is an explorative process where researchers need to balance a range of potentially conflicting factors and to ensure that the end users are genuinely included in the process.Relevance to clinical practice Emphasizing equal involvement of end users (e.g. carers or patients) in the design and development of healthcare interventions aligns with contemporary ideas of person-centred care and provides a valuable learning opportunity for those involved. Furthermore, a co-designed online support programme has the capacity to be both accessible and meet end users' information and support needs, thereby optimizing their self-care abilities. Additionally, an online support programme provides the opportunity to address current challenges regarding scarce resources and the lack of healthcare personnel.Reporting methodsConsolidated criteria for reporting qualitative research (COREQ).Patient or public contributionBoth informal carers and content creators were involved in developing the support programme.
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| 9. |
- Andréasson, Frida, et al.
(författare)
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Bioavailability of DOC in leachates, soil matrix solutions and soil water extracts from beech forest floors
- 2009
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Ingår i: Soil Biology & Biochemistry. - : Elsevier BV. - 0038-0717. ; 41:8, s. 1652-1658
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Tidskriftsartikel (refereegranskat)abstract
- The biodegradability of dissolved organic carbon (DOC) in different fractions from the forest floor was studied. Soil leachate (SI, the soil solution in macropores which is freely drained from forest floor after rainfall), the soil matrix solution (SMS, the soil solution in meso-/micropores of the soil matrix), and soil water extracts (SWE) from two different beech forest floors were compared. Zero-tension and tension lysimeters were used to collect SL and SMS, respectively. Loss of DOC (during 21 days) and respiration of CO2-C (during 7 days) were used as conventional measures of the availability of DOC. Bacterial production, measured using the leucine incorporation technique, and bacterial growth efficiency were also estimated. All methods were used to study differences in biodegradability between plots with and without ground flora (Deschampsia flexuosa or Anemone nemorosa) and different type of forest floor (with an organic (O) horizon or a mull (A) horizon). There were no differences in bioavailability of DOC from soil solutions extracted from plots with and without ground flora. The bioavailability of DOC in the different collected soil solutions varied, however. DOC in SWE was the most available, with a mean of 39% of DOC-loss in 21 days, and 18% of DOC being respired in 7 days. DOC in soil matrix solution was the least available of the soil solutions (7% respired), significantly less than DOC in soil leachate (11% respired). The methods measuring biodegradation of DOC, DOC-loss and CO2-C respiration gave similar results and were comparable to bacterial production and bacterial growth efficiency, with the exception of SWE from the O-horizon at the a flexuosa site, which had low bacterial production and bacterial growth efficiency, indicating a limitation of the bacterial growth. This study is one of the first to use bacterial production and bacterial growth efficiency for measuring bioavailability in terrestrial environments, giving an extra dimension for the process of biodegradation of DOC. (C) 2009 Elsevier Ltd. All rights reserved.
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| 10. |
- Andreasson, Frida
(författare)
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Comparison of ingrowth cores and ingrowth meshes in root studies: 3 years of data on Pinus pinaster and its understory
- 2016
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Ingår i: Trees - Structure and Function. - : Springer Science and Business Media LLC. - 0931-1890 .- 1432-2285. ; 30, s. 555-570
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Tidskriftsartikel (refereegranskat)abstract
- Key message Pine fine root biomass, live fraction and specific root length studied after collection with ingrowth cores do not correspond with those collected with ingrowth meshes. Abstract Root studies are a challenging task, yet they are primordial to improve our understanding of biogeochemical cycles in many ecosystems. Methods reducing operator time and minimizing disturbance while permitting adequate assessment of root dimensions in space and time would naturally be of great relevance. Recently, ingrowth meshes have been proposed as a valuable alternative to existing methods, deployable in remote areas and potentially yielding smaller disturbances along with a reduction in time spent per sample. In this study, we used flexible mesh material in Pinus pinaster production forests. The mesh material (pore size 6 by 6 mm) was either applied as cores (15 cm deep, 8 cm diameter) or as linear meshes (15 cm deep, 50 cm long), and left in soils for 9, 24, or 36 months. Roots were retrieved from both devices and separated over plant species (pine and understory species), diameter class and vitality (live or dead). We expected 1) improved assessment of larger diameter roots in the linear meshes due to a larger mesh surface and 2) less disturbance of the soil for the linear meshes. Results indicate that most patterns were similar between both devices and species, but the meshes resulted in lower ingrowth for all diameter classes, and the cores better reflected the standing biomass. The larger surface of the linear meshes resulted in larger disturbance and did not permit to reduce time per sample. Future research may target ingrowth meshes of reduced size and perhaps of more rigid material.
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| 11. |
- Andréasson, Frida, et al.
(författare)
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Differences in soil organic matter, extractable nutrients, and acidity in European beech (Fagus sylvatica L.) forest soils related to the presence of ground flora
- 2012
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Ingår i: Journal of Forest Research. - : Informa UK Limited. - 1341-6979 .- 1610-7403. ; 17:4, s. 333-342
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Tidskriftsartikel (refereegranskat)abstract
- Differences in soil organic matter (SOM) content, soil acidity, and soil exchangeable nutrients (NH4-N, NO3-N, Ca, K, Na, Mg) related to the presence of ground flora were studied. The study was carried out for a growing season in two different Fagus sylvatica L. forests in southern Sweden, and the differences in soil characteristics below naturally occurring patches of Deschampsia flexuosa (L.) Trin. or Anemone nemorosa L. were compared with those with no ground flora. Patches of D. flexuosa led to higher soil pH, but lower SOM, water content, base saturation, and NH4-N concentration compared with adjacent zones without D. flexuosa. The lower SOM content suggested an increased rate of decomposition which caused soil pH to increase because of release of basic cations. In the presence of A. nemorosa, pH was higher and the exchangeable acidity lower than for patches without the herb. In early spring, when A. nemorosa emerged and flowered, the NH4-N concentration was somewhat lower in the presence of the herb than when it was absent. For the evergreen grass D. flexuosa NH4-N concentrations were lower in patches with the grass later in the summer season (July). This work indicates the presence of spatial and temporal differences in nutrient circulation and decomposition on the small ground flora scale, which should be considered when studying nutrient and carbon cycles of temperate forests.
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| 12. |
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| 13. |
- Andréasson, Frida
(författare)
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Doing informal care : Identity, couplehood, social health and information and communication technologies in older people’s everyday lives
- 2021
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The aim of the thesis has been a) to analyse how informal care influences the identity of carers and care recipients, their sense of couplehood and social health, and b) to explore the use of Information and Communication Technology (ICT) in the context of informal care and the everyday lives of older people. Study I focused on how older carers conceptualised their identity as carers on a Swedish online social forum, using a netnographic methodology. The findings indicated a change in self-perception as the carer role was acquired. Carers’ capacities were filtered through the needs of the care recipient, making their carer identities into invisible selves. The findings revealed that online communication had the potential to create a virtual space of social recognition. Study II aimed to reflect on carers’ experiences of participation in a co-design process consisting of user group sessions with carers and researchers. The goal was to develop a web-based support programme for carers. The findings emphasised a need to consider carers’ lifeworlds and to develop flexible human-centred design methodologies, that are able to balance carers’ needs and ideas with proposed research outcomes. Studies III and IV utilised an ethnographic methodology. In study III, the notion of couplehood in informal care was analysed. The findings showed that in the process of becoming a carer and a care recipient previous (often gendered) responsibilities were re- negotiated and new practicalities emerged. Although these changes were understood as a natural part of family life, they nevertheless led to changes in the (power) balance between spouses, expressed in terms of a professionalised relationship and a sense of social isolation. ICT was used as a means to get a respite from caring and uphold a social connection with others. In study IV, the social implications and consequences of spousal informal care and carers and care recipients’ experiences of illness and the ill body was explored. The findings showed that the participants experienced barriers to living life as before. Thoughts about or the presence of ill and “leaking” bodies thus lead to “self-chosen” social isolation or social distancing by others. The thesis highlights that informal care needs to be understood as an identity forming practice, having a significant impact on involved parties’ sense of couplehood, their social health and that ICT can contribute to ease carers’ and care recipients’ daily life.
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| 14. |
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| 15. |
- Andréasson, Frida, et al.
(författare)
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Lifeworld in co-designing with informal carers
- 2019
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Ingår i: Journal of Enabling Technologies. - : Emerald Group Publishing Limited. - 2398-6263 .- 2398-6271. ; 13:1, s. 29-39
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Tidskriftsartikel (refereegranskat)abstract
- Purpose – The purpose of this paper is to reflect on carers’ experiences of being involved in the development of a web-based support programme for carers of people with heart failure (CPwHF), and discuss the challenges related to their involvement in the development process. The focus was on the different phases in the project as well as the methodological challenges and opportunities that occurred in the user group sessions conducted.Design/methodology/approach – This research adopt an explorative design studying a co-design process to develop an information and communication technology based support programme for and with CPwHF. Habermas’ concepts of lifeworld and system are used as a theoretical framework to analyse the co-design process employed in the study.Findings – Reflecting on the co-design approach adopted, the findings highlight the methodological challenges that arise with carer involvement and the possible tensions that occur between researchers’ ambitions to include users in the design process, and the goal of developing a product or service, in the different phases of the design process.Originality/value – Findings highlight that there is a tension between the system and lifeworld in the co-design process which are not totally compatible. The paper highlights that there is a need to develop flexible and reflexive human-centred design methodologies, able to meet carers’ needs and ideas, and at the same time balance this with proposed research outcomes.
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| 16. |
- Andreasson, Frida, et al.
(författare)
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Långsiktiga effekter av skelettjord i Sundsvall
- 2015
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Många faktorer påverkar träd som växer i urban miljö. I denna för träd ofta extrema miljö, speciellt i hårdgjorda ytor, ska dem överleva och frodas. Marken är ofta kompakterad och det är brist på syre, vatten och näring, vilka är livsnödvändiga för träden. På grund av den hårdgjorda ytan sker heller ingen ny tillförsel av organiskt material.För att förbättra förutsättningarna för trädens tillväxt och vitalitet kan man använda sig av skelettjord. I princip består en skelettjordav en större bärande fraktion av skärv (skelett) där man i hålrummen mellan den större fraktionen tillför ett substrat av växtjord. Skelettjorden ökar volymen där trädens rötter kan växa och ger rötterna bättre tillgång på syre, vatten och näring.År 1997 planterade Sundsvall stad Tilia cordata"Erecta"längsmedKöpmansgatan. En del av dessa lindar planterades i en grop med växtjord och en del planterades med tillgång 3m3skelettjord.I denna studie jämför vi storlek och vitalitet hos dessa lindar planterade med och utan skelettjord 17 år efter plantering.Efter dessa 17 år är lindarna som växt med tillgång på skelettjord något större i omkrets, högre samt har en högre, tätare och breddare kronan än lindarna som växt i traditionell planteringsgrop med växtjord. Slutsatsen är att skelettjord ger bättre levnadsförutsättningar för träd i stadsmiljö. Även med en begränsad tillgång på skelettjord, 3m3, har lindarna i Sundvall högre tillväxt och vitalitet i skelettjord än i traditionell jord.
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| 17. |
- Andréasson, Frida
(författare)
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Nutrient and Organic Matter Dynamics in Beech Forest Floors, in Relation to the Presence of Ground Flora
- 2007
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The objective of this thesis was to quantify differences between adjacent patches with and without ground flora of Deschampsia flexuosa L. Trin or Anemone nemorosa L. in two acid European beech (Fagus sylvatica L.) forest floors in south-west of Sweden. The studies included soil properties and chemistry, N mineralisation and bioavailability of dissolved organic carbon (DOC), in soil leachates (SL), soil matrix solution (SMS) and soil water extractions (SWE). The studies showed that soil properties and chemistry and N mineralisation differ between plots with and without ground flora. Whereas there were no differences in bioavailability of DOC in soil solutions from plots with and without ground flora. I found higher pH in plots with D. flexuosa and lower soil organic matter (SOM) content, water content, cation exchange capacity, base saturation and N concentration, than in plots without grass. At the A. nemorosa site, pH, and base saturation were higher in plots with ground flora than without. N mineralisation rate was lower in plots with D. flexuosa than without. Contrary, the amount of mineralised N was higher in plots with A. nemorosa than without. In June at the A. nemorosa site, the nitrogen concentrations in SL were higher in plots with A. nemorosa than without. This may be due to plant uptake or microbial immobilisation. At the D. flexuosa site mean NO3-N concentration in SL and SMS was lower in plots with grass than without. The amount of mineralised N in the soil from the A. nemorosa site was twice as high as in the soil from the D. flexuosa site, with domination of NO3-N and NH4-N respectively. These differences were probably caused by lower pH (KCl) and higher SOM content in the D. flexuosa soil than in the A. nemorosa soil. Mixing the nitrifying soil from the A. nemorosa site with the low nitrifying soil from the D. flexuosa site, induced nitrification and ammonification rate in the D. flexuosa soil, in plots with grass. These results indicate that the microorganisms are limited by C at the A. nemorosa site and N at the D. flexuosa site. SMS was more acid than the SL at both sites. Probably due to the more rapid passage of incoming rain water and hence a lower contact time and ion exchange rate with the acidic soil matrix in SL. At the D. flexuosa site, NO3-N, NH4-N, DON and PO4-P concentrations were lower in SMS than in SL, indicating plant uptake, microbial immobilisation and/or adsorption in the soil. A higher concentration of NO3-N was found in SMS than in SL at the A. nemorosa site, probably due to a higher nitrification rate in the smaller pores and/or longer contact time between soil and water and a larger population of nitrifiers. The bioavailability of DOC differed between soil solution types. DOC in SWE was the most bioavailable and DOC in SMS was the least bioavailable. These results are probably reflecting different origin of DOC in soil solutions in larger and smaller pores of the forest floor, which will influence the quality of DOC.
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| 19. |
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| 20. |
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| 21. |
- Andréasson, Frida, et al.
(författare)
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‘The balance in our relationship has changed’ : everyday family living, couplehood and digital spaces in informal spousal care
- 2023
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Ingår i: Journal of Family Studies. - : Taylor & Francis. - 1322-9400 .- 1839-3543. ; 29:2, s. 719-737
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Tidskriftsartikel (refereegranskat)abstract
- Building on an ethnographic approach, this study aims to explore how the notion of couplehood and family life is understood and negotiated in everyday life by older carers and their spouses. Inspired by Morgan’s perspective on the doing of family life, and Hochschild’s analysis of emotion work and feeling rules, the article shows how the process of becoming a carer/care recipient creates a new life situation for couples. The findings show that gendered tasks of family life such as housework and financial responsibilities change between spouses, and new practicalities emerge. This in turn changes the power balance between the spouses and how they do couplehood. The findings also reveal how the participants’ sense of we and I are negotiated to do family life, with regards to their health, sense of moral obligation, personal autonomy, love and caregiving. A sense of social isolation is apparent, and social media, apps and online games are sometimes used to create digital spaces in which participants can maintain connections with friends and children, find solitude and regain energy by getting a temporary pause from spousal informal care. Such strategies enable couples to find balance and a sense of autonomy in their lives as a family.
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| 22. |
- Andréasson, Frida, et al.
(författare)
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The INNOVAGE-Eurocarers platform and current ICT-based services for informal carers of older people in Sweden
- 2015
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Ingår i: Irish Ageing Studies Review. - 1649-9972. ; 6:1, s. 88-88
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Tidskriftsartikel (refereegranskat)abstract
- Background: Different support services for family carers are available in Sweden through information and communication technologies (ICTs) since late 1990s, like ACTION, My Joice, IPPI, ‘The Gap’, and Carer Sweden’s online ‘Carer’s Book’. The INNOVAGE-Eurocarers platform aimed to complement the offer of web services to carers through the provision of a new tailored package.Methods: The Swedish pilot test enrolled around 50 carers through contacts with professionals working with carers in different municipalities. They could access the following web-based services: information resources; individual support via e-mail and private messages; group support via social network and forum. Periodical writing activities were asked to active users in the forum, alternating expressive writing (EW) and time management (TM) writing tasks. Periodical reminders were sent in order to increase user involvement.Results: Users were predominantly older, female carers, of which two thirds were over 65 years old. The web platform was perceived as a flexible tool, potentially accessible at any time, which gave users the possibility to exploit their experience as carers with others in similar situations. This peer exchange seemed to improve self empowerment, sense of solidarity and mutual learning. However, usage of the web platform was limited due to the low level of digital skills of some carers.Conclusions: Although results confirmed usefulness and appropriateness of implemented web services, it is fundamental to address the issue of usability and accessibility in order to ensure a wider accessibility. An option might be to offer initial digital skill training and continuous technical support for computer novices.
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| 23. |
- Andréasson, Frida, et al.
(författare)
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The use of on-line social network and services by family carers with high digital skills : The case of the Swedish sample
- 2016
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Konferensbidrag (refereegranskat)abstract
- AIMS. The InformCare platform aimed to complement the offer of already available web services to carers through the provision of a new comprehensive package.METHODS. 36 family carers were enrolled in Sweden and used the platform during the intervention. They could access the following web-based services: information resources; individual support via e-mail and private messages; group support via social network and forum. Periodical writing activities were asked to active users in the forum, alternating expressive writing (EW) and time management (TM) writing tasks.FINDINGS. Users were predominantly older, female carers, who considered the web platform as a flexible tool, potentially accessible at anytime, which could empower users and improve their sense of solidarity and mutual learning.CONCLUSIONS. Although results confirmed usefulness and appropriateness of implemented web services, some carers experienced problems in accessing and navigation, which required continuous technical support by web developers.
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| 25. |
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| 26. |
- Barbabella, Francesco, 1984-, et al.
(författare)
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A multilingual web platform supporting informal carers in 27 EU member states
- 2015
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Ingår i: Broader, bigger, better: AAL solutions for Europe. Proceedings of the 6<sup>th</sup> AAL Forum 2014. - Bucharest : UEFISCDI. - 9789730201192 ; , s. 169-172
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Konferensbidrag (refereegranskat)abstract
- Informal care is a hot topic in research and policy agendas at European and national level, since it greatly contributes to the sustainability and efficiency of national health care systems. A specific intervention – part of the wider INNOVAGE project funded by FP7 – was planned for developing and testing a new multilingual web platform for informal carers of dependent older people in the EU-27. Preliminary results of the pilot study, conducted in Italy, Germany and Sweden will be discussed. The final platform will be accessible in all official languages of the EU-27 and publicly available in spring 2015.
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| 27. |
- Barbabella, Francesco, et al.
(författare)
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A web-based psychosocial intervention for family caregivers of older people : results from a mixed-methods study in three European countries
- 2016
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Ingår i: JMIR Research Protocols. - : JMIR Publications. - 1929-0748. ; 5:4, s. 1-16
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Tidskriftsartikel (refereegranskat)abstract
- Background: Informal caregiving is the main source of care for older people in Europe. An enormous amount of responsibility and care activity is on the shoulders of family caregivers, who might experience problems in their psychological well-being and in reconciling caregiving and their personal sphere. In order to alleviate such burden, there is increasing interest and growing research in Europe on Web-based support addressing family caregivers and their needs. However, the level of development and penetration of innovative Web-based services for caregivers is still quite low and the access to traditional face-to-face services can be problematic for logistic, availability, and quality reasons.Objective: As part of the European project INNOVAGE, a pilot study was conducted for developing and testing a Web-based psychosocial intervention aimed at empowering family caregivers of older people in Italy, Sweden, and Germany. The program offered information resources and interactive services to enable both professional and peer support.Methods: A mixed-methods, sequential explanatory design was adopted. Caregivers’ psychological well-being, perceived negative and positive aspects of caregiving, and social support received were assessed before and after the 3-month intervention. Poststudy, a subsample of users participated in focus groups to assist in the interpretation of the quantitative results.Results: A total of 94 out of 118 family caregivers (79.7%) from the three countries used the Web platform at least once. The information resources were used to different extents in each country, with Italian users having the lowest median number of visits (5, interquartile range [IQR] 2-8), whereas German users had the highest number (17, IQR 7-66) (P<.001). The interactive services most frequently accessed (more than 12 times) in all countries were the social network (29/73, 40%) and private messages (27/73, 37%). The pretest-posttest analysis revealed some changes, particularly the slight worsening of perceived positive values of caregiving (Carers of Older People in Europe [COPE] positive value subscale: P=.02) and social support received (COPE quality-of-support subscale: P=.02; Multidimensional Scale of Perceived Social Support subscale: P=.04), in all cases with small effect size (r range -.15 to -.18). Focus groups were conducted with 20 family caregivers and the content analysis of discussions identified five main themes: online social support, role awareness, caregiving activities, psychological well-being, and technical concerns. The analysis suggested the intervention was useful and appropriate, also stimulating a better self-efficacy and reappraisal of the caregivers’ role.Conclusions: The intervention seemed to contribute to the improvement of family caregivers’ awareness, efficacy, and empowerment, which in turn may lead to a better self-recognition of their own needs and improved efforts for developing and accessing coping resources. A major implication of the study was the finalization and implementation of the InformCare Web platform in 27 European countries, now publicly accessible (www.eurocarers.org/informcare).
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| 28. |
- Barbabella, Francesco, et al.
(författare)
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Design, test, and implementation of a web platform for informal caregivers of older people in Europe
- 2017
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Konferensbidrag (refereegranskat)abstract
- This contribution provides insights from one of the four social innovations of the INNOVAGE project, focused on the development of the InformCare web platform for supporting informal caregivers of older people in Europe. The platform included information resources on different topics (major diseases in older age, public care services and benefits, coping and reconciliation strategies etc.) and interactive services for professional and peer support (dedicated social network, forum, chat and videochat). The design phase was based on a consultation process involving almost 200 stakeholders and on user tests. The pilot phase was carried out as a mixed-methods study in Germany, Italy and Sweden, which recruited totally 118 caregivers who could access the InformCare platform for 3 months. Positive findings led to its refinement and implementation in 27 European countries. Today, the platform is publicly accessible (www.eurocarers.org/informcare) in 32 versions and 23 languages, with over 2,500 web pages for informal caregivers.
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| 29. |
- Barbabella, Francesco, 1984-, et al.
(författare)
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How web-based services can support family carers of older people : New ways to promote social inclusion and quality of life
- 2015
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Ingår i: Irish Ageing Studies Review. - 1649-9972. ; 6:1, s. 87-87
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Tidskriftsartikel (refereegranskat)abstract
- Background: Family carers can be negatively influenced by their situation, in terms of stress, social isolation, economic constraints and other difficulties. Web-based services addressing carers’ needs represent an efficient support. The goal of the INNOVAGE work package 3(WP3) study was to develop and test a new multilingual web platform for supporting family carers of older people, to be implemented in 27 European countries.Methods: A review of good practices and a consultation with stakeholders were conducted for identifying most appropriate types of services to be developed and tested. The prototype of web platform included information resources and interactive services for both peer and professional support. A convenient, overall sample of around 130 family carers was enrolled in three countries (Italy, Germany and Sweden) and could access services for 12-17 weeks. Data were collected through questionnaires and focus groups concerning impact onquality of life, social support, self-perception of carer’s role, as well as usability, usefulness and appropriateness of services.Results: Active users were generally satisfied with support (information, advice, counselling) provided by moderators (social workers or psychologists) and peers. Usability and appropriateness were confirmed, although some refinements were suggested and users with low digital skills often needed technical support. A portion of the sample remained inactive even if stimulation strategies were adopted.Conclusions: The pilot study confirmed the INNOVAGE Eurocarers web platform is a useful tool for family carers. Some challenges still exist for implementation in relation to digital skills required and users’ preferences on services at country level.
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| 30. |
- Barbabella, Francesco, et al.
(författare)
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The effectiveness of a web-based psycho-social intervention for family carers of older people : a multicentre pilot study
- 2016
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- AIMS. The goal of this study was to develop and test a new multilingual web platform for supporting family carers of older people by means of on-line information resources and peer and professional support.METHODS. A convenient sample of family carers was enrolled in three countries (Italy, Germany and Sweden) and could access services for 3 months. 94 family carers used the web platform. Data were collected through questionnaires and focus groups.FINDINGS. Active users were generally satisfied with support (information, advice, counselling) provided by moderators (social workers or psychologists) and peers. Usability and appropriateness were confirmed, although some refinements were suggested and users with low digital skills often needed technical support.CONCLUSIONS. The pilot study confirmed web-based support services can be a useful tool for family carers. Some challenges still exist for implementation in relation to digital skills required and users’ preferences on services at country level.
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| 31. |
- Barbabella, Francesco, 1984-, et al.
(författare)
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Usage and Usability of a Web-based Program for Family Caregivers of Older People in Three European Countries : A Mixed-Methods Evaluation
- 2018
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Ingår i: Computers, Informatics, Nursing. - : Lippincott Williams & Wilkins. - 1538-2931 .- 1538-9774. ; 36:5, s. 232-241
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Tidskriftsartikel (refereegranskat)abstract
- InformCare is a European Web platform that supports informal caregivers of older people by providing access to online information and professional and peer support. The aim of this study was to assess the usage and usability of a psychosocial Web-based program carried out in three European countries (Italy, Sweden, and Germany). A mixed-methods sequential explanatory design was adopted, comprising baseline and postintervention assessments, as well as combined thematic content analysis of results and focus group findings. A convenience sample of 118 caregivers was enrolled, of whom 94 used the services offered by the program at least once. The subsamples in the three countries used the platform in different ways, with a predominance of passive strategies (eg, seeking information and reading other people's comments) for Italian caregivers, and more active usage by Swedish and German caregivers. The usability assessment showed that the platform was perceived well by Italian and German caregivers, whereas technical problems affected the Swedish sample's experiences. Focus group data highlighted user satisfaction with the online support and reliability of the environment. Recommendations for practitioners are to ensure digital training for caregivers who have lower confidence in use of the Internet, to involve different healthcare professionals in the provision of professional support, and to adequately manage online community building.
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| 32. |
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| 33. |
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| 34. |
- Dangardt, Frida, 1977, et al.
(författare)
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Alcohol, pregnancy and infant health– a shared responsibility : Alcohol and Society 2020
- 2020
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Konsekvenser av exponering för alkohol i samband med graviditet • Exponering för alkohol under graviditeten är den vanligaste orsaken till förebyggbar utvecklingsstörning för barn i Sverige och i hela världen. Den uppskattas påverka 1–5 procent av alla födslar per år. • Den mest välkända konsekvensen av exponering för alkohol under fosterlivet är fetalt alkoholsyndrom (FAS), som omfattar kognitiva störningar, förändrat utseende, försämrad tillväxt och skador på det centrala nervsystemet. • Antalet nya fall av FAS i Sverige har uppskattats till cirka 0,1–0,3 procent av alla födslar, eller ca 100–300 fall per år, och för FASD till ca 1–3 procent. Samhällskostnaden för FAS i Sverige har lågt uppskattats till 14 miljarder kronor per år. • Kraftig alkoholkonsumtion är en fastslagen riskfaktor för ett flertal negativa konsekvenser, bland annat missfall, dödfödsel, för tidig födsel, försämrad fostertillväxt, låg födelsevikt och plötslig spädbarnsdöd. Även låg till måttlig alkoholkonsumtion ökar risken för vissa negativa konsekvenser. • Även om hjärnan är det organ som drabbas allvarligast av exponering för alkohol i fosterstadiet kan också missbildningar i hjärtat, njurarna, levern, matsmältningskanalen och hormonsystemet förekomma. • Effekterna av exponering för alkohol under fostertiden är större än från tobak, andra psykoaktiva ämnen och andra farliga ämnen som bly eller strålning. • Möjliga orsaksmekanismer är bland andra alkoholorsakad celldöd i hjärnan och skador på DNA i omogna manliga och kvinnliga könsceller, som kan ge ärftliga förändringar, det vill säga skador som kan föras vidare till kommande generationer. Alkohol efter förlossning • Alkohol ökar inte mjölkproduktionen och den är förknippad med att sluta amma tidigare. Alkohol framstår som en riskfaktor för plötslig spädbarnsdöd, särskilt när föräldrarna sover tillsammans med barnet. • Säker kunskap om effekter av låg alkoholkonsumtion under amningsperioden saknas. Även låg exponering för alkohol kan påverka barnets sömn och reducera mjölkproduktionen hos modern. Med tillämpning av försiktighetsprincipen bedöms det säkrast att undvika alkoholexponering under amningsperioden. För de som väljer att dricka bedöms dock risken av att dricka ett standardglas alkohol 2 timmar före amning som låg. Alkoholkonsumtion kring tiden för graviditet • Det är naturligt att tänka sig att alkohol och graviditet är ett problem som är begränsat till graviditeten och enbart berör kvinnor. Ingetdera är korrekt. Alkoholens påverkan på gravida kvinnor och deras barn har ett samband med alkoholkonsumtion både bland män och icke-gravida kvinnor i hela befolkningen. • Över 80 procent av svenska kvinnor dricker alkohol under året före graviditeten och 14 procent dricker mycket. I allmänhet är det få kvinnor som minskar sin konsumtion innan de har fått besked om att de är gravida. • Mäns alkoholkonsumtion innan graviditeten kan ge skador på fostret och möjligen också på följande generationer genom förändringar av spermiernas arvsmassa.
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| 35. |
- Efthymiou, Areti, et al.
(författare)
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Web services for Greek informal carers
- 2015
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Ingår i: Hellenic Journal of Nuclear Medicine. - : The Hellenic Society of Nuclear Medicine. - 1790-5427. ; 18, s. 51-53
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Tidskriftsartikel (refereegranskat)abstract
- The INNOVAGE project is dedicated to developing, surveying and cataloguing, social innovations for older people. Four new innovations will be developed and tested: a) social innovation for user – driven housing of older people, b) a web-platform for informal carers of older people, c) social intervention for improving obesity in old age, d) social innovation for activation of people with dementia living in long term care institutions. Italian National Institute of Health and Science on Aging (INRCA) (www.inrca.it) and Eurocarers Association (www.eurocarers.org) are the partners responsible for developing and implementing a multilingual web platform for informal carers in 27 EU Member States. An innovAge carers associations network has been established based on the Eurocarers organisations network. National organizations, members of INNOVAGE network, are responsible for developing national information and disseminating the web platform at national level. Athens Association of Alzheimer‘s Disease and Related Disorders is an official member of the INNOVAGE network and participates in the development of the Greek version of the INNOVAGE web platform. The platform will provide to end-users services such as: national information on care and support services, legal and financial information, information about the most common impairments of older people, strategies and information about coping with caregiving. Interactive services, social network, forum, chat, video conferencing tools will be also available. The Greek version of the web platform will be available in May 2015.
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| 36. |
- Engelmann, Petra, et al.
(författare)
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Needs of multimorbid heart failure patients and their carers : a qualitative interview study and the creation of personas as a basis for a blended collaborative care intervention
- 2023
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Ingår i: Frontiers in Cardiovascular Medicine. - : Frontiers Media S.A.. - 2297-055X. ; 10
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Tidskriftsartikel (refereegranskat)abstract
- Introduction: Involving patients and carers in the development of blended collaborative care (BCC) interventions for multimorbid heart failure (HF) patients is recommended but rarely practised, and research on the patient perspective is scarce. The aim of this study is to investigate patients' and carers' care-related needs and preferences to better customize a novel international BCC intervention.Methods: A qualitative study design using framework analysis was employed. The study was performed in accordance with the EQUATOR standards for reporting qualitative research (SRQR). Patients aged at least 65 years with HF and at least two other physical diseases as well as their carers completed semistructured interviews in Germany, Italy, and Denmark. Based on these interviews, personas (prototype profiles of patients and carers) were created.Results: Data from interviews with 25 patients and 17 carers were analysed. Initially, seven country-specific personas were identified, which were iteratively narrowed down to a final set of 3 personas: (a) the one who needs and wants support, (b) the one who has accepted their situation with HF and reaches out when necessary, and (c) the one who feels neglected by the health care system. Carers identifying with the last persona showed high levels of psychological stress and a high need for support.Discussion: This is the first international qualitative study on patients' and carers' needs regarding a BCC intervention using the creation of personas. Across three European countries, data from interviews were used to develop three contrasting personas. Instead of providing "one size fits all" interventions, the results indicate that BCC interventions should offer different approaches based on the needs of individual patients and carers. The personas will serve as a basis for the development of a novel BCC intervention as part of the EU project ESCAPE (Evaluation of a patient-centred biopSychosocial blended collaborative CAre Pathway for the treatment of multimorbid Elderly patients).
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| 37. |
- Fransson, Ann-Mari, et al.
(författare)
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Tillväxtökningar av biokol hos urbana träd på Herrhagsvägen
- 2014
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Många stadsträd mår dåligt idag. Orsakerna är troligen många och många olika konstruktioner har testats för att förbättra förhållandena för träden. Denna rapport beskriver en studie där vi har undersökt om biokol kan öka tillväxten och vitaliteten hos körsbär (Prunus avium'Plena') längs en väg i Enskede, Stockholm.Vi har också testat om träden kunde växa med endast sten i växtbädden. De träd som vuxit i AMA B-jord som haft en inblandning av 50% biokol fick 35% större stamomkrets, ca 20% bredare krona och längre skottillväxt. Detta beror troligen på att biokol haren stor förmåga att fördröja uppehållelsetiden av näringsämnen i växtbäddenoch att hålla vättillgängligt vatten och biokol gör att jorden får en bättre struktur.Inga skillnader i vitalitet eller vattenupptagsförmågan under en solig dag kunde upptäckas vilket visar att den här tillväxtökningen troligen beror på näringstillgången eller på den förbättrade strukturen i jorden.De träd som växte i endast sten hade lika bra tillväxt som de i AMA B-‐växtjord. En annan slutsats man kan dra är att man inte behöver vara så noga med att få ner jord i en skelettjord eller någon annan växtbäddskonstruktion eftersom trädensrötter klarar att växa i endast sten.
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| 38. |
- Gostoli, Sara, et al.
(författare)
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Healthcare needs in elderly patients with chronic heart failure in view of a personalized blended collaborative care intervention: a cross sectional study
- 2024
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Ingår i: Frontiers in Cardiovascular Medicine. - : FRONTIERS MEDIA SA. - 2297-055X. ; 11
-
Tidskriftsartikel (refereegranskat)abstract
- Introduction Few studies explored healthcare needs of elderly heart failure (HF) patients with comorbidities in view of a personalized intervention conducted by Care Managers (CM) in the framework of Blended Collaborative Care (BCC). The aims of the present study were to: (1) identify perceived healthcare needs/preferences in elderly patients with HF prior to a CM intervention; (2) investigate possible associations between healthcare needs/preferences, sociodemographic variables (age; sex) and number of comorbidities.Method Patients aged 65 years or more affected by HF with at least 2 medical comorbidities were enrolled in the study. They were assessed by structured interviewing with colored cue cards that represented six main topics including education, individual tailoring of treatment, monitoring, support, coordination, and communication, related to healthcare needs and preferences.Results Thirty-three patients (Italy = 21, Denmark = 7, Germany = 5; mean age = 75.2 +/- 7.7 years; males 63.6%) were enrolled from June 2021 to February 2022. Major identified needs included: HF information (education), patients' involvement in treatment-related management (individual tailoring of treatment), regular checks of HF symptoms (monitoring), general practitioner update by a CM about progression of symptoms and health behaviors (coordination), and telephone contacts with the CM (communication). Regarding communication modalities with a CM, males preferred phone calls (chi 2 = 6.291, p = 0.043) and mobile messaging services (chi 2 = 9.647, p = 0.008), whereas females preferred in-person meetings and a patient dashboard. No differences in needs and preferences according to age and number of comorbidities were found.Discussion The findings highlight specific healthcare needs and preferences in older HF multimorbid patients, allowing a more personalized intervention delivered by CM in the framework of BCC.
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| 39. |
- Holmbom, Matilda, et al.
(författare)
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Young Spouses' Experiences of Having a Partner With Heart Disease and Adolescents Living at Home
- 2024
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Ingår i: Health Expectations. - : John Wiley & Sons. - 1369-6513 .- 1369-7625. ; 27:4
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Tidskriftsartikel (refereegranskat)abstract
- AimTo describe the life situation of spouses having a partner with heart disease and adolescents living at home.DesignQualitative inductive design.MethodParticipants (n = 22) were included from three Scandinavian countries. Semi-structured interviews were analysed using thematic analysis with an inductive and latent approach.ResultsThree themes were derived. 'Being in spousal and parental role transition' described how daily life had been affected and parental responsibilities had been doubled due to their partner's heart disease. 'Living with unpredictability and insecurity' included how the unpredictable illness trajectory caused worries and affected the well-being of the family. 'Managing a challenging life situation' highlights how spouses coped with their partners' heart disease and adapted to a new life situation.ConclusionYoung spouses' life situation was greatly affected by their partner's heart disease, resulting in increased responsibilities and double parenthood. Having a positive attitude and mindset towards life was used as a strategy to cope with the changed life situation and find a new way of life.Implications for the Profession and/or Patient CareAll family members are affected by heart disease. Spouses needed additional professional support and guidance on how to involve the children when a parent is ill.Impacts This study highlights how young spouses, with adolescents living at home, experience their life situation. The life situation is unpredictable due to the partner's heart disease, as they must handle both caring for their partner and taking on double parenthood. Research involving family members can improve person- and family-centred care and treatment outcomes in health care and society.Reporting MethodCOREQ checklist was used preparing the manuscript.Patient or Public ContributionData collection included interviews with spouse.What Does This Paper Contribute to the Wider Global Clinical Community?By highlighting the spouses changed life situation due to heart disease and the importance of including them in health care.
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| 40. |
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| 41. |
- Krispinsson, Mona, et al.
(författare)
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Kommunernas framtida hjälpmedelsförsörjning i Kalmar län
- 2010
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Vilka frågor bör framtida hjälpmedelsförsörjning i Kalmar län beakta?. Hjälpmedelsförsörjning är en komplex verksamhet. Olika län och kommuner i Sverige har hittat olika sätta att bedriva verksamheten. Genomgående är behovet och nödvändigheten av samverkan - samverkan mellan och inom kommunerna, mellan professioner och brukar, samverkan mellan landsting och privata aktörer.
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| 42. |
- Lamura, Giovanni, et al.
(författare)
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How new technologies support carers of older people: the Eurocarers' InformCare platform
- 2017
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Ingår i: Innovation in Aging. - : Oxford University Press. - 2399-5300. ; 1:Supplement 1
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Tidskriftsartikel (refereegranskat)abstract
- This presentation discusses how new technologies support family carers of older people with reference to the Eurocarers’ hub ‘InformCare’, the web-platform of support services for carers of older people co-funded by the European Union within the INNOVAGE project. After highlighting the status of technology-based services for carers in Europe, the main features of InformCare will be demonstrated. Tested in three European countries (Germany, Italy and Sweden), this tool provides a standardised, integrated, multilingual and culturally adapted set of on-line information and interactive services addressing carers’ needs and preferences which are available for the first time in 27 Member States. The implementation followed a pilot test with 117 carers, showing improvements in carers’ self-awareness and empowerment over a 3 month period. However, to ensure optimal benefit from InformCare, appropriate training and promotion campaigns are needed in order to overcome low digital literacy skills and lack of self-recognition characterising many carers.
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| 43. |
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| 44. |
- Moberg, Christina, et al.
(författare)
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De unga gör helt rätt när de stämmer staten
- 2022
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Ingår i: Aftonbladet. - 1103-9000.
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Tidskriftsartikel (populärvet., debatt m.m.)abstract
- 1 620 forskare och lärare i forskarvärlden: Vi ställer oss bakom Auroras klimatkrav
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| 45. |
- Papa, Roberta, et al.
(författare)
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Review and Selection of Online Resources for Carers of Frail Adults or Older People in Five European Countries : Mixed-Methods Study
- 2020
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Ingår i: JMIR mhealth and uhealth. - : JMIR Publications, Inc. - 2291-5222. ; 8:6
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Forskningsöversikt (refereegranskat)abstract
- Background: Informal carers have a crucial role in the care of older people, but they are at risk of social isolation and psychological exhaustion. Web-based services like apps and websites are increasingly used to support informal carers in addressing some of their needs and tasks, such as health monitoring of their loved ones, information and communication, and stress management. Despite the growing number of available solutions, the lack of knowledge or skills of carers about the solutions often prevent their usage. Objective: This study aimed to review and select apps and websites offering functionalities useful for informal carers of frail adults or older people in 5 European countries (Cyprus, Greece, Italy, Portugal, and Sweden). Methods: A systematic online search was conducted from January 2017 to mid-March 2017 using selected keywords, followed by an assessment based on a set of commonly agreed criteria and standardized tools. Selected resources were rated and classified in terms of scope. Focus groups with informal carers were conducted to validate the list and the classification of resources. The activities were conducted in parallel in the participating countries using common protocols and guidelines, a standardization process, and scheduled group discussions. Results: From a total of 406 eligible resources retrieved, 138 apps and 86 websites met the inclusion criteria. Half of the selected resources (109/224, 48.7%) were disease-specific, and the remaining resources included information and utilities on a variety of themes. Only 38 resources (38/224, 17.0%) were devoted specifically to carers, addressing the management of health disturbances and diseases of the care recipient and focusing primarily on neurodegenerative diseases. Focus groups with the carers showed that almost all participants had no previous knowledge of any resource specifically targeting carers, even if interest was expressed towards carer-focused resources. The main barriers for using the resources were low digital skills of the carers and reliability of health-related apps and websites. Results of the focus groups led to a new taxonomy of the resources, comprising 4 categories: carer's wellbeing, managing health and diseases of the care recipient, useful contacts, and technologies for eldercare. Conclusions: The review process allowed the identification of online resources of good quality. However, these resources are still scarce due to a lack of reliability and usability that prevent users from properly benefiting from most of the resources. The involvement of end users provided added value to the resource classification and highlighted the gap between the potential benefits from using information and communication technologies and the real use of online resources by carers.
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| 46. |
- Rotvig, Camilla, et al.
(författare)
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Renegotiating identity : A Nordic study of adolescent's experiences of living with a parent having heart disease
- 2024
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Ingår i: Journal of Advanced Nursing. - : John Wiley & Sons. - 0309-2402 .- 1365-2648.
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To explore adolescents' experiences of having a parent with heart disease.Design: This qualitative study was performed with semi-structured individual interviews.Methods: Interviews were conducted with 33 adolescents between 13 and 19 years old, who either had a mother or father with one of these diagnoses: ischemic heart disease, arrhythmia, heart failure, cardiac arrest or heart valve disease. The parent had been ill for at least 6 months and up to 5 years. The study was carried out in Denmark, Norway and Sweden between 2019 and 2022. The analysis was inspired by Reflexive Methodology.Results: Three central themes emerged: Response to parental heart disease; Growing up ahead of time; and Strategies in a changed life situation. For the adolescents, heart disease was experienced as an acute and lethal disease that put their parents' lives in danger. New routines and roles not only changed everyday life within the family but they also enhanced maturity and appreciation of life. To maintain a balance in life, the adolescents pursued normality and sought a safe space to have a normal youthful life.Conclusion: In a period known to be significant for development, life with parental heart disease appeared as a biographical disruption because adolescents renegotiated their identity to manage their new life situation.ImpactIt is important to help younger family members adapt to parental heart disease by informing them about possible reactions and supporting them in how to adapt to their new life by seeking breaks and normality.Patient or Public ContributionNo patient or public involvement.
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| 47. |
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