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- Bouwman, Eline, et al.
(author)
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Healthcare professionals' perceived barriers and facilitators of health behavior support provision : A qualitative study
- 2023
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In: Cancer Medicine. - : Wiley. - 2045-7634. ; 12:6, s. 7414-7426
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Journal article (peer-reviewed)abstract
- Background: Childhood cancer survivors (CCSs) have an increased risk of developing chronic health conditions. Evidence suggests that poor health behaviors further increase health risks. Healthcare professionals (HCPs) involved in survivorship care have a key role in providing health behavior support (HBS) but can feel limited in their ability to do so. This study aims to explore European HCPs perceived facilitators and barriers to providing HBS to CCSs. Methods: Five focus groups with 30 HCPs from survivorship care clinics across Europe were conducted. Topic guides were informed by the Theoretical Domains Framework (TDF) to capture domains that may influence provision of HBS. Focus groups were analyzed with thematic analysis. Transcripts were inductively coded, after which axial coding was applied to organize codes into categories. Finally, categories were mapped onto the TDF domains. Results: Nine TDF domains were identified in the data. The most commonly reported TDF domains were “Knowledge”, “Skills”, and “Environmental context and resources”. HCPs indicated that their lack of knowledge of the association between late effects and health behaviors, besides time restrictions, were barriers to HBS. Facilitators for HBS included possession of skills needed to pass on health behavior information, good clinic organization, and an established network of HCPs. Conclusions: This study identified education and training of HCPs as key opportunities to improve HBS. Survivorship care clinics should work towards establishing well-integrated structured care with internal and external networks including HBS being part of routine care. Proper understanding of facilitators and barriers should lead to better survivorship care for CCSs.
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- Bouwman, Eline, et al.
(author)
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Perceived barriers and facilitators to health behaviors in European childhood cancer survivors : A qualitative PanCareFollowUp study
- 2023
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In: Cancer Medicine. - 2045-7634. ; 12:11, s. 12749-12764
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Journal article (peer-reviewed)abstract
- Background: Healthy behaviors, that is, engaging in regular physical activities, maintaining a healthy diet, limiting alcohol consumption, and avoiding tobacco and drug use, decrease the risk of developing late adverse health conditions in childhood cancer survivors. However, childhood cancer survivors may experience barriers to adopting and maintaining healthy behaviors. This study aimed to assess these barriers and facilitators to health behavior adoption and maintenance in childhood cancer survivors. Methods: A focus group (n = 12) and semi-structured telephone interviews (n = 20) were conducted with a selected sample of European and Dutch childhood cancer survivors, respectively. The Theoretical Domains Framework (TDF) was used to inform the topic guide and analysis. Inductive thematic analysis was applied to identify categories relating to barriers and facilitators of health behavior adoption and maintenance, after which they were deductively mapped onto the TDF. Results: Ten TDF domains were identified in the data of which “Knowledge,” “Beliefs about consequences,” “Environmental context and resources,” and “Social influences” were most commonly reported. Childhood cancer survivors expressed a need for knowledge on the importance of healthy behaviors, possibly provided by healthcare professionals. They indicated physical and long-term benefits of healthy behaviors, available professional support, and a supporting and health-consciously minded work and social environment to be facilitators. Barriers were mostly related to a lack of available time and an unhealthy environment. Lastly, (social) media was perceived as both a barrier and a facilitator to healthy behaviors. Conclusion: This study has identified education and available professional support in health behaviors and the relevance of healthy behaviors for childhood cancer survivors as key opportunities for stimulating health behavior adoption in childhood cancer survivors. Incorporating health behavior support and interventions for this population should therefore be a high priority.
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- Talhouk, Reem, et al.
(author)
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A Call For Embedding Dignity In Humanitarian Technologies
- 2019
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In: 9TH INTERNATIONAL CONFERENCE ON COMMUNITIES & TECHNOLOGIES (C&T). - New York, NY, USA : ASSOC COMPUTING MACHINERY. ; , s. 1-4
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Conference paper (peer-reviewed)abstract
- Increasingly, technologies are being designed to support refugees. While HCI research has explored several aspects of refugee experiences, the importance of embedding the principle of dignity within technological designs is yet to be explored. In this paper we focus on the theme of dignity that was a prominent theme across three research projects we conducted with Syrian refugee communities in Lebanon. We show that the experiences of refugee participants are characterised by a loss of dignity, as well as by attempts to maintain dignity that may be mediated by technology. By highlighting the value given to dignity by our participants we emphasise the need for designers and HCI researchers to consider how technologies may create a space in which dignity is maintained and dignified interaction may take place.
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- Talhouk, Reem, et al.
(author)
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Integrating Health Technologies in Health Services for Syrian Refugees in Lebanon : Qualitative Study
- 2020
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In: Journal of Medical Internet Research. - : JMIR Publications. - 1438-8871. ; 22:7
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Journal article (peer-reviewed)abstract
- Background: Lebanon currently hosts around one million Syrian refugees. There has been an increasing interest in integrating eHealth and mHealth technologies into the provision of primary health care to refugees and Lebanese citizens. Objective: We aimed to gain a deeper understanding of the potential for technology integration in primary health care provision in the context of the protracted Syrian refugee crisis in Lebanon. Methods: A total of 17 face-to-face semistructured interviews were conducted with key informants (n=8) and health care providers (n=9) involved in the provision of health care to the Syrian refugee population in Lebanon. Interviews were audio recorded and directly translated and transcribed from Arabic to English. Thematic analysis was conducted. Results: Study participants indicated that varying resources, primarily time and the availability of technologies at primary health care centers, were the main challenges for integrating technologies for the provision of health care services for refugees. This challenge is compounded by refugees being viewed by participants as a mobile population thus making primary health care centers less willing to invest in refugee health technologies. Lastly, participant views regarding the health and technology literacies of refugees varied and that was considered to be a challenge that needs to be addressed for the successful integration of refugee health technologies. Conclusions: Our findings indicate that in the context of integrating technology into the provision of health care for refugees in a low or middle income country such as Lebanon, some barriers for technology integration related to the availability of resources are similar to those found elsewhere. However, we identified participant views of refugees' health and technology literacies to be a challenge specific to the context of this refugee crisis. These challenges need to be addressed when considering refugee health technologies. This could be done by increasing the visibility of refugee capabilities and configuring refugee health technologies so that they may create spaces in which refugees are empowered within the health care system and can work toward debunking the views discovered in this study.
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- Talhouk, Reem Refaat, et al.
(author)
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Food Aid Technology : The Experience of a Syrian Refugee Community in Coping with Food Insecurity
- 2020
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In: Proceedings of the ACM on Human-Computer Interaction. - : Association for Computing Machinery (ACM). - 2573-0142. ; 4:CSCW2
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Journal article (peer-reviewed)abstract
- Over half of Syrian refugee households in Lebanon are food insecure with some reliant on an electronic voucher (e-voucher) system for food aid. The interplay between the digitisation of food aid, within the socio-technical context of refugees, and community collaborative practices is yet to be investigated. Through design engagements and interviews with refugees and shop owners we explore the experiences of a Syrian refugee community in Lebanon using the e-voucher system. We provide insights into the socio-technical environment in which the e-voucher system is dispensing aid, the information and power asymmetries experienced, refugee collaborative coping practices and how they interplay with the e-voucher system. We highlight the need for: (1) expanding refugee digital capabilities to encompass understandings of aid technologies and identifying trusted intermediaries and (2) for technologies to support in upholding humanitarian principles and mitigating power and information asymmetries. Lastly, we call for CSCW researchers and humanitarian innovators to consider how humanitarian technologies can enable refugee collaborative practices and adopt everyday security as a lens for designing aid technologies. The paper contributes to CSCW knowledge regarding the interplay between aid technologies and refugees? socio-technical contexts and practices that provides a basis for future technological designs for collaborative technologies for refugee food security.
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- Talhouk, Reem, et al.
(author)
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Refugee Food Insecurity & Technology : Surfacing Experiences of Adaptation, Navigation, Negotiation and Sharing
- 2022
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In: Computer Supported Cooperative Work. - : Springer Nature. - 0925-9724 .- 1573-7551.
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Journal article (peer-reviewed)abstract
- With the Syrian crisis still ongoing, 91% of Syrian refugee families in Lebanon do not have adequate access to safe and sufficient food. There has been a drive for technological innovation in humanitarian food assistance. To further inform such innovation, we used an Experience-Centred Design approach to gain a holistic understanding of the experiences of refugee food insecurity and how refugees envision technologies can support them. Design engagements with 13 women in an informal refugee settlement in Lebanon were conducted. The findings presented in this paper highlight that coping with food insecurity consists of experiences of adaptation, navigation, negotiation and sharing. We found that a multitude of technologies may be designed to enhance the aforementioned experiences and enable refugees to better cope with food insecurity. Through the lens of our findings, we discuss how technologies may support information sharing, the furthering of new practices and sharing of resources to support refugee food security.
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