| 1. |
- Bengtsson Tops, Anita, et al.
(författare)
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Self-reported consequences and needs for support associated with abuse in female users of psychiatric care
- 2007
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Ingår i: International Journal of Mental Health Nursing. - 1445-8330 .- 1447-0349. ; 16:1, s. 35-43
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Tidskriftsartikel (refereegranskat)abstract
- The aims of the study were to investigate the prevalence of adult abuse in female users of psychiatric care, the relationship between abuse and self-esteem and self-reported consequences of abuse, and women's self-reported needs of support. A total of 1382 women participated in the study. A self-administrated anonymous questionnaire with both closed-ended and open-ended questions was used. Quantitative data were analysed by mainly descriptive statistics and qualitative data were analysed by content analysis. Forty-six per cent (n = 638) of the women had been exposed to emotional, sexual, and/or physical abuse in adulthood. Twenty-eight per cent (n = 385) reported experiences of moderate physical abuse, 27% (n = 373) reported threats of injury, and 20% (n = 277) reported threats of being killed. Further, 19% (n = 261) reported experience of sexual violence, and 12% (n = 164) had experiences of serious physical violence. Women who had been abused rated lower self-esteem than those who were not abused. Self-reported consequences of abuse included intrapersonal problems such as poor self-esteem, fears, anxiety, and worries but also problems in social relations especially with regard to close relationships and reliance to others. To a lesser extent, disease-specific manifestations were reported. The needs of support included interventions directed to the experiences of abuse by professionals trained in the area, family interventions, self-help groups, medical care, legal support, or practical help to find new housing situations. It is concluded that female users of psychiatric care services constitute a vulnerable group with regard to abuse. To meet the women's needs, the care system has to adopt a perspective that includes personal, social, and societal factors.
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| 2. |
- Thurang, Anna, et al.
(författare)
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Women's experiences of caring when in treatment for alcohol dependency
- 2010
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Ingår i: Scandinavian Journal of Caring Sciences. - 0283-9318 .- 1471-6712. ; 24:4, s. 700-706
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Tidskriftsartikel (refereegranskat)abstract
- Despite the fact of increased levels of alcohol dependency in women and gender differences in how the disease affects men and women, the research on alcohol dependency continues to have a dominating perspective on men. The meaning of the phenomenon of caring in formal care for women with alcohol dependency is not well known. Thus, formal caregivers may find it problematic to know what is caring for women with alcohol dependency. The aim of the study was to illuminate the meaning of caring in formal care for women with alcohol dependency, as narrated by the women. The study was performed using a phenomenological-hermeneutic method. Data were collected in ten in-depth interviews with alcohol-dependent women. The themes presented are availability, being a patient and being a learner. The findings reveal that the women with alcohol dependency receiving a mandate from formal care, experience the relation between them and their caregiver as a mutual transformation. Within the mutual transformation, the participants experienced being respected as a responsible human being which renders possibilities for the women with alcohol dependency to continue in formal care even when the struggle against the disease became hard. Continual meetings with the caregiver allowed the women to gain structure in their daily life as well as allowing the women and their caregivers to develop mutual transformation, which both relieved the women's suffering and increased their experience of being involved in the care process.
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| 3. |
- Beck, Ingela, 1965-, et al.
(författare)
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Upholding an ideal image of palliative work in the face of obstacles
- 2018
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Ingår i: International Journal of Palliative Nursing. - : Mark Allen. - 1357-6321 .- 2052-286X. ; 24:12, s. 611-617
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE: Homecare workers play a pivotal role in palliative care, but research on their experiences is limited. The aim of this study was to describe how homecare workers in Sweden experience their work in palliative homecare.METHOD:This qualitative study used open-ended interviews with a purposive sample of 15 homecare workers. The data was analysed by means of qualitative content analysis.RESULTS: One main theme emerged from the analysis: upholding an ideal image of palliative work. This had four subthemes: doing good; doing their best work; feeling work satisfaction; and facing difficulties.CONCLUSION: Palliative care performed by homecare workers is demanding. Homecare workers need more practical support and would benefit from a care model that involves working with registered nurses, as a team, to provide humanistic care to dying patients and their relatives.
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| 4. |
- Bengtsson Tops, Anita, et al.
(författare)
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The structure of Antonovsky's sense of coherence in patients with schizophrenia and its relationship to psychopathology
- 2005
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 19:3, s. 280-287
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Tidskriftsartikel (refereegranskat)abstract
- The main aim of the study was to investigate whether the three hypothesized subscales of Antonovsky's sense of coherence (SOC) scale: comprehensibility, meaningfulness and manageability, can be found when measuring SOC in a sample of patients with schizophrenia living in the community. A further aim was to study the relationship between SOC and psychopathology. The concept of SOC has been proposed to explain successful coping with life stressors. A total of 120 patients completed the SOC scale and the Brief Psychiatric Rating Scale (BPRS) was used to assess the psychopathology of the patients. The SOC scale was analysed by means of a factor analysis with a varimax rotation and the Spearman rank correlation test was used to test for associations between subscales, factors and psychiatric symptoms. A four-factor model presented the best solution and explained 48% of the total variation in SOC. The first factor, which included 12-items of the SOC scale, turned out to be the most salient factor explaining 29% of the total variation. All factors displayed some overlapping between items. Affective symptoms were negatively related to all the three subscales and the four factors of SOC, while positive symptoms were similarly related to two of the subscales and two of the factors while negative symptoms were not associated with any of the factors or subscales. The findings in this study corroborate those in studies with other patient groups and indicate that the theoretical framework of SOC should not be adopted uncritically. Furthermore, the use of the three subscales in the SOC scale in studies of patients with a severe mental illness is questioned and a further investigation of the relationship between SOC and psychopathology is proposed.
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| 5. |
- Eklund, Mona, et al.
(författare)
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The influence of temperament and character on functioning and aspects of psychological health among people with schizophrenia
- 2004
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Ingår i: European psychiatry. - : Elsevier Masson SAS. - 0924-9338 .- 1778-3585. ; 19:1, s. 34-41
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Tidskriftsartikel (refereegranskat)abstract
- Research findings that link personality factors to functioning and symptoms in schizophrenia are inconsistent, and further studies are needed within the area. The purpose of this study was to investigate how personality, as measured by the Temperament and Character Inventory (TCI), was related to demographic factors, subtypes of diagnoses, level of functioning, and aspects of psychological health, including sense of coherence, perceived control, and self-esteem, among people with schizophrenia. Subjects were 104 individuals, aged 20-55 years, in psychiatric outpatient care. The results indicated that personality was not related to subtypes of diagnoses or demographic characteristics of the respondents, but to level of functioning and all aspects of psychological health. Especially self-directedness distinguished three groups of functioning and was highly correlated with the different aspects of psychological health. The article discusses how knowledge of schizophrenic patients' personality structure might be used for tailoring psychiatric treatments. (C) 2003 Elsevier SAS. All rights reserved.
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| 6. |
- Bengtsson Tops, Anita, et al.
(författare)
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Landlords’ experiences of housing tenants suffering from severe mental illness : a Swedish empirical study
- 2014
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Ingår i: Community mental health journal. - : Springer. - 0010-3853 .- 1573-2789. ; 50:1, s. 111-119
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this Swedish study was to describe landlords' experiences of having tenants suffering from severe mental illness. Sixteen landlords working in private and public housing agencies participated in open in-depth interviews. Data were subjected to a thematic latent content analysis. The results showed that having tenants with severe mental illness entails being confronted with various difficult circumstances, ranging from mismanagement of apartments to sensitivity among neighbours as well as issues regarding provocative behaviour. It involved providing assistance that was far beyond their professional obligations and to be neglected by the community-based psychiatric service system when in need of help. In order to support landlords and to prevent evictions of individuals with severe mental illness, community-based psychiatric services need to be more pro-active in their attempts to achieve collaboration with the parties at hand.
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| 7. |
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| 8. |
- Andersen, Anna-Eva, et al.
(författare)
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Lesbian, gay and bisexual parents' experiences of nurses' attitudes in child health care : a qualitative study
- 2017
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Ingår i: Journal of Clinical Nursing. - 0962-1067 .- 1365-2702. ; 26:23-24, s. 5065-5071
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Tidskriftsartikel (refereegranskat)abstract
- AIMS AND OBJECTIVES: To describe lesbian, gay and bisexual parents' experiences of nurses' attitudes in child health care.BACKGROUND: Lesbian, gay and bisexual people are often reluctant to disclose their gender identity for fear of discrimination. This fear may lead to avoidance of healthcare for themselves or their children and may negatively affect families' health and well-being.DESIGN: A qualitative inductive design was employed.METHODS: Semi-structured interviews were conducted with 14 lesbian, gay or bisexual parents (11 mothers and 3 fathers) with child health care experiences in southern Sweden. Interviews were analysed using qualitative content analysis.RESULTS: Two themes were identified. One, a 'sense of marginalization', included lesbian, gay and bisexual parents' experiences of heteronormative attitudes among child health care nurses which led them to feel alienated and questioned as parents. Another, 'being respected for who you are', included experiences of being respected and included at child health care appointments.CONCLUSIONS: Findings paint a complex picture of lesbian, gay and bisexual parents' interactions with child health care nurses in that they experienced both positive and negative attitudes. Knowledge gaps about lesbian, gay and bisexual families within the child health care field must be filled.RELEVANCE TO CLINICAL PRACTICE: Child health care nurses should work with the entire family to provide the best care for the child; however, discrimination in health care is common and often caused by a lack of knowledge. The number of children living with same-sex parents has increased more than ten-fold since the end of the 1990s. It is therefore important to explore lesbian, gay and bisexual parents' experiences with child health care nurses' attitudes to improve quality of care.
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| 9. |
- Andersen, Anna-Eva, et al.
(författare)
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Lesbian, gay and bisexual parents' experiences of nurses' attitudes in child health care : a qualitative study
- 2017
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Ingår i: Journal of Clinical Nursing. - : Wiley-Blackwell Publishing Ltd. - 0962-1067 .- 1365-2702. ; 26:23-24, s. 5065-5071
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Tidskriftsartikel (refereegranskat)abstract
- AIMS AND OBJECTIVES: To describe lesbian, gay and bisexual parents' experiences of nurses' attitudes in child health care. BACKGROUND: Lesbian, gay and bisexual people are often reluctant to disclose their gender identity for fear of discrimination. This fear may lead to avoidance of healthcare for themselves or their children and may negatively affect families' health and well-being. DESIGN: A qualitative inductive design was employed. METHODS: Semi-structured interviews were conducted with 14 lesbian, gay or bisexual parents (11 mothers and 3 fathers) with child health care experiences in southern Sweden. Interviews were analysed using qualitative content analysis. RESULTS: Two themes were identified. One, a 'sense of marginalization', included lesbian, gay and bisexual parents' experiences of heteronormative attitudes among child health care nurses which led them to feel alienated and questioned as parents. Another, 'being respected for who you are', included experiences of being respected and includedat child health care appointments. CONCLUSIONS: Findings paint a complex picture of lesbian, gay and bisexual parents' interactions with child health care nurses in that they experienced both positive and negative attitudes. Knowledge gaps about lesbian, gay and bisexual families within the child health care field must be filled. RELEVANCE TO CLINICAL PRACTICE: Child health care nurses should work with the entire family to provide the best care for the child; however, discrimination in health care is common and often caused by a lack of knowledge. The number of children living with same-sex parents has increased more than ten-fold since the end of the 1990s. It is therefore important to explore lesbian, gay and bisexual parents' experiences with child health care nurses' attitudes to improve quality of care.
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| 10. |
- Arvidsson, Susann, et al.
(författare)
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Experiences of health-promoting self-care in people living with rheumatic diseases
- 2011
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Ingår i: Journal of Advanced Nursing. - Oxford : Wiley. - 0309-2402 .- 1365-2648. ; 67:6, s. 1264-1272
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Tidskriftsartikel (refereegranskat)abstract
- Aim This paper is a report of a study which explores and describes the meaning of the phenomenon health-promoting self-care as experienced by people living with rheumatic diseases.Background People with rheumatic diseases estimate health status as low and health belief and health status influence the self-care behaviours. Several self-care behaviours are used in the efforts to mitigate the diseases.Method The study had a descriptive phenomenological approach based on a reflective life-world perspective. Data were gathered in 2007 by unstructured open-ended interviews with 12 individuals living with rheumatic diseases.Findings The meaning of health-promoting self-care as experienced by people living with rheumatic diseases was that self-care takes place against a background of continual hope and belief to influence health in positive ways. Self-care was a way of life and implied being ready to understand and respond to signals from the body. Three inter-related constituents elucidated the experiences: dialogue, power struggle and choice. Self-care was experienced as dialogues within the body and with the immediate environment. In order to respond to signals from the body, power struggles were required to be entered when fighting the diseases. Choices were required to be made and things that were beneficial for the body were prioritized.Conclusion In this study, the meaning of health-promoting self-care as experienced by people living with rheumatic diseases was that self-care was a way of life. This meant to be ready to understand and respond to signals from the body. Self-care required dialogues, power struggles and choices.
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| 11. |
- Arvidsson, Susann, 1965-, et al.
(författare)
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People with Rheumatic Diseases Experiences of Health-Promoting Self-Care
- 2010
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Ingår i: Annals of the Rheumatic Diseases. - London : BMJ Books. - 0003-4967 .- 1468-2060. ; 69:Suppl. 3, s. 743-743
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Tidskriftsartikel (refereegranskat)abstract
- Background: People with rheumatic diseases estimate their health status low. The health status and health belief are influencing the choice of self-care behaviours. Self-care behaviours are common and could prevent loss of valued life activities and health. Little is known of how people with rheumatic diseases experience self-care.Objectives: To describe people with rheumatic diseases experiences of health-promoting self-care.Methods: The study had a phenomenological approach based on a reflective life-world perspective. Data were gathered by unstructured and open-ended interviews with 12 individuals with various diagnoses of rheumatic diseases.Results: For people with rheumatic diseases, self-care was a way of life and implied being ready at all times to understand and respond to signals from the lived body. Self-care was experienced as an internal dialogue within the lived body but also as an external dialogue with the immediate environment. Self-care could also be described as a power struggle where the individuals strived and forced themselves to fight the diseases and its concrete consequences. The self-care also required that choices were made. Crucial for the choices were trust in oneself and belief in one's own ability to chosen health-promoting self-care. The individual prioritised self-care that was experienced as a beneficial and/or a reward for the lived body.Conclusion: People with rheumatic diseases experienced self-care as a way of life and that it meant to be ready at all times to understand and respond to signals that the lived body sends out. Self-care required dialogue, power struggle and choice. This knowledge ads to a fuller understanding of factors that from a patient perspective are important for health when living with a chronic rheumatic disease.Disclosure of Interest: None declared
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| 12. |
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| 13. |
- Arvidsson, Susann, 1965-, et al.
(författare)
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Upplevelse av hälsobefrämjande egenvård vid reumatisk sjukdom
- 2009
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Konferensbidrag (refereegranskat)abstract
- BakgrundPersoner med reumatiska sjukdomar skattar sitt hälsostatus lågt. Hälsostatus och tron på den egna förmågan att kunna påverka hälsan påverkar i sin tur valet av egenvårdsbeteenden. Egenvårdsbeteenden är vanliga och kan förhindra försämrad hälsa och förlust av värdefull fysisk och psykisk aktivitet. Kunskaperna är små om hur personer med reumatiska sjukdomar upplever att utföra egenvård. Syftet är därmed att beskriva hur personer med reumatiska sjukdomar erfar att utföra egenvård för att nå hälsa.MetodStudien har en kvalitativ design med en fenomenlogisk ansats och en livsvärldsteoretisk grund. Data har samlats in genom ostrukturerade och öppna intervjuer med 12 personer med olika diagnostiserade reumatiska sjukdomar.ResultatPersoner med reumatiska sjukdomar upplever att egenvård är ett sätt att leva och att det innebär att ständigt vara redo för att förstå och reagera på signaler från den levda kroppen. Egenvård upplevs som en inre dialog inom den levda kroppen, men också en yttre dialog med närmiljön. Egenvård beskrivs också som en maktkamp där personen strävar efter och tvingar sig att kämpa mot sjukdomen och dess konkreta konsekvenser. Egenvården kräver också att val görs. Avgörande för valet är att personen har tillit till sig själv och tror på sin egen förmåga att välja hälsobefrämjande egenvård. Personer med reumatiska sjukdomar prioriterar egenvård som upplevs som positiv och/eller ger en belöning till den levda kroppen.SammanfattningPersoner med reumatiska sjukdomar upplever egenvård som ett sätt att leva och det innebär att vara i beredskap för att förstå och reagera på signaler som den levda kroppen sänder ut. Egenvård kräver dialog, maktkamp och val. Denna kunskap bidrar till en mer fullständig förståelse av faktorer som från ett patientperspektiv är viktiga för hälsan vid kronisk reumatisk sjukdom.
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| 14. |
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| 15. |
- Beck, Ingela, et al.
(författare)
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Upholding an ideal image of palliative work in the face of obstacles
- 2018
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Ingår i: International Journal of Palliative Nursing. - : MA Healthcare Ltd. - 1357-6321 .- 2052-286X. ; 24:12, s. 611-617
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE: Homecare workers play a pivotal role in palliative care, but research on their experiences is limited. The aim of this study was to describe how homecare workers in Sweden experience their work in palliative homecare. METHOD:This qualitative study used open-ended interviews with a purposive sample of 15 homecare workers. The data was analysed by means of qualitative content analysis. RESULTS: One main theme emerged from the analysis: upholding an ideal image of palliative work. This had four subthemes: doing good; doing their best work; feeling work satisfaction; and facing difficulties. CONCLUSION: Palliative care performed by homecare workers is demanding. Homecare workers need more practical support and would benefit from a care model that involves working with registered nurses, as a team, to provide humanistic care to dying patients and their relatives.
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| 16. |
- Bengtsson Tops, Anita
(författare)
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Behov av vård och stöd
- 2014. - 2
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Ingår i: Att leva med psykisk funktionsnedsättning. - Lund : Studentlitteratur AB. - 9789144083872 ; , s. 153-170
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 17. |
- Bengtsson Tops, Anita
(författare)
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Behov av vård och stöd
- 2014
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Ingår i: Att leva med psykisk funktionsnedsättning. - Lund : Studentlitteratur AB. ; :2, s. 153-170
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 18. |
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| 19. |
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| 20. |
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| 21. |
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| 22. |
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| 23. |
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| 24. |
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| 25. |
- Bengtsson Tops, Anita
(författare)
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Ett ögonblick av queer i vården
- 2009
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Ingår i: Lambda Nordica. - 1100-2573 .- 2001-7286. ; :1, s. 43-62
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Tidskriftsartikel (refereegranskat)abstract
- A queer moment in care. Although the perspective of caring sciences propose to cover the suffering of patients as well as humanistic aspects of caring relationships its theoretical frame lacks assumptions connected gender and sexuality. From a starting point of a concrete caring situation within the context of psychiatric care this autobiographic study makes shortcomings within the theoretical frame of caring sciences obvious. The shortcomings are related to issues of instability of gender, gender performances and heteronormativity as for granted taken assumptions. The situation concerns an encounter between me as a nurse and a patient who experienced himself as both a man and a woman. By means of queer theories, aspects of what happened in the situation are interpreted. Queer theoretical concepts such as the binary heterosexual matrix, gender instability, performativity, and subversive performativity are penetrated in relation to the caring situation. It is suggested that in order to develop and complement the theoretical frame of caring sciences the perspective of queer should be used.
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| 26. |
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| 27. |
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| 28. |
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| 29. |
- Bengtsson Tops, Anita, et al.
(författare)
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Landlords experiences of tenants sufferingfrom severe mental illness
- 2013
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Ingår i: Recovery-Oriented Mental Health Services. ; , s. 194-
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Background/ObjectivesPersons suffering from severe mental illness (SMI) live – and prefer to live – independently, in either private or public apartment blocks without on-site services. Living in own apartments increase feelings of safety and well-being and function as a robust social status marker. Landlords are important actors in gaining stability and sustainability and it has been found that landlords have a plethora of preconceptions, attitudes, emotions as well as well as ethical dilemmas in offering apartments to this group of persons. Today there is a lack systematic knowledge about the role landlords have come play in providing sustainable housing for these persons. The main aim of this qualitative study was to describe landlords’ experiences of having tenant suffering from SMIMethodsSixteen landlords in various parts of Sweden participated in open in-depth interviews three years after the government proclaimed a vision zero regarding homelessness among individuals with SMI. Data was subjected to thematic latent content analysis.ResultsLandlords experienced being confronted with difficult circumstances such as mismanagement of apartments, sensitivity and provocative behaviors in relation to both tenants with SMI and neighbors. In acute situations landlords tried to collaborate with the community based psychiatric service system but were neglected. As a result and without the knowledge of how to best help they started to provide support to tenants with SMI involving going beyond professional boarders.Discussion/ConclusionThe findings give reasons to conclude that community-based psychiatric services need to be more pro-active in their collaboration with landlords. Also education interventions with a focus on how to best help tenants with SMI need to be developed and implemented.
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| 30. |
- Bengtsson Tops, Anita, et al.
(författare)
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Landlords experiences of tenants sufferingfrom severe mental illness
- 2013
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Background/Objectives Persons suffering from severe mental illness (SMI) live – and prefer to live – independently, in either private or public apartment blocks without on-site services. Living in own apartments increase feelings of safety and well-being and function as a robust social status marker. Landlords are important actors in gaining stability and sustainability and it has been found that landlords have a plethora of preconceptions, attitudes, emotions as well as well as ethical dilemmas in offering apartments to this group of persons. Today there is a lack systematic knowledge about the role landlords have come play in providing sustainable housing for these persons. The main aim of this qualitative study was to describe landlords’ experiences of having tenant suffering from SMI Methods Sixteen landlords in various parts of Sweden participated in open in-depth interviews three years after the government proclaimed a vision zero regarding homelessness among individuals with SMI. Data was subjected to thematic latent content analysis. Results Landlords experienced being confronted with difficult circumstances such as mismanagement of apartments, sensitivity and provocative behaviors in relation to both tenants with SMI and neighbors. In acute situations landlords tried to collaborate with the community based psychiatric service system but were neglected. As a result and without the knowledge of how to best help they started to provide support to tenants with SMI involving going beyond professional boarders. Discussion/Conclusion The findings give reasons to conclude that community-based psychiatric services need to be more pro-active in their collaboration with landlords. Also education interventions with a focus on how to best help tenants with SMI need to be developed and implemented.
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| 31. |
- Bengtsson Tops, Anita, et al.
(författare)
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Living in supportive housing for people with serious mental illness : a paradoxical everyday life
- 2014
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Ingår i: International Journal of Mental Health Nursing. - 1445-8330 .- 1447-0349. ; 23:5, s. 409-418
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Tidskriftsartikel (refereegranskat)abstract
- Since the closure of large psychiatric institutions, various types of community-based supportive housing for people with serious mental illness (SMI) have been developed. There is currently limited knowledge about users' experiences of living in supportive housing. The aim of the present study was to describe user experiences of living in supportive housing for people with SMI. Twenty-nine people living in such facilities participated in open, qualitative interviews. Data were subjected to latent content analysis. Three main themes emerged from this analysis: (i) having a nest, which included the subthemes of a place to rest and having someone to attach to; (ii) being part of a group, with the subthemes of being brought together and a community spirit; and (iii) leading an oppressive life, including the subthemes of questioning one's identity, sense of inequality, and a life of gloom. It could be concluded that user experiences of living in supportive housing are complex and paradoxical. In order to provide supportive housing, staff need to recognize and work within social group processes, and perform continual and structural evaluations of users' social and emotional needs.
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| 32. |
- Bengtsson Tops, Anita, et al.
(författare)
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Living in supportive housing for people with serious mental illness : a paradoxical everyday life
- 2014
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Ingår i: International Journal of Mental Health Nursing. - : Wiley-Blackwell Publishing Ltd. - 1445-8330 .- 1440-0979 .- 1447-0349. ; 23:5, s. 409-418
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Tidskriftsartikel (refereegranskat)abstract
- Since the closure of large psychiatric institutions, various types of community-based supportive housing for people with serious mental illness (SMI) have been developed. There is currently limited knowledge about users' experiences of living in supportive housing. The aim of the present study was to describe user experiences of living in supportive housing for people with SMI. Twenty-nine people living in such facilities participated in open, qualitative interviews. Data were subjected to latent content analysis. Three main themes emerged from this analysis: (i) having a nest, which included the subthemes of a place to rest and having someone to attach to; (ii) being part of a group, with the subthemes of being brought together and a community spirit; and (iii) leading an oppressive life, including the subthemes of questioning one's identity, sense of inequality, and a life of gloom. It could be concluded that user experiences of living in supportive housing are complex and paradoxical. In order to provide supportive housing, staff need to recognize and work within social group processes, and perform continual and structural evaluations of users' social and emotional needs.
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| 33. |
- Bengtsson Tops, Anita, et al.
(författare)
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Mental health users' experiences of being interviewed by another user in a research project : a qualitative study
- 2010
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Ingår i: Journal of Mental Health. - 0963-8237 .- 1360-0567. ; 19:3, s. 237-242
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Although user involvement in research is an area of high priority there is a lack of knowledge about how users of the mental health system perceive participation in studies carried out by other users.AIM: The aim of the study was to describe how users experience participation in research interviews performed by other users.METHOD: A varied sample of 17 mental health users with experience of being interviewed in a research project by another user was thematically interviewed in this qualitative study. Data was subject to content analysis.RESULTS: Being interviewed by another user was a special experience including both negative and positive aspects, and took place in an atmosphere of comradeship. However, being interviewed by another user could generate feelings of insecurity. This finding indicates requirements from the informants how to perform user-involved research in the future.CONCLUSIONS: In planning for user-involved research education, it is necessary to consider training and issues related to secure ethical principals concerning the informants.
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| 34. |
- Bengtsson-Tops, Anita, 1956-, et al.
(författare)
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Psykossjuka drabbas oftare av våld
- 2012
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Ingår i: Kristianstadsbladet. - 1103-9523. ; :20/6, s. B4-
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Tidskriftsartikel (populärvet., debatt m.m.)abstract
- Män och kvinnor som drabbats av psykossjukdom utsätts i betydligt större omfattning än folk i allmänhet för hot om våld och fysiskt och sexualiserat våld ute i vårt samhälle.
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| 35. |
- Bengtsson-Tops, Anita, et al.
(författare)
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Psykossjuka drabbas oftare av våld
- 2012
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Ingår i: Kristianstadsbladet. - 1103-9523. ; :20/6
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Män och kvinnor som drabbats av psykossjukdom utsätts i betydligt större omfattning än folk i allmänhet för hot om våld och fysiskt och sexualiserat våld ute i vårt samhälle.
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| 36. |
- Bengtsson Tops, Anita
(författare)
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Severely mentally ill individuals in the community: Needs for care, quality of life and social network.
- 2001
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- This 18-month follow-up study investigated needs for care and support, quality of life and social network in individuals with schizophrenia or a schizoaffective disorder living in the community and in contact with psychiatric services. The validity of Antonovsky's sense of coherence (SOC) measure was also examined. At baseline 120 patients were interviewed and 94 of these participated in the follow-up. The majority were unmarried, unemployed and living alone in own apartments. A majority of the patients had comprehensive needs for care and support, which to a great extent were unmet regarding company, daytime activity, physical health, psychological distress, psychotic symptoms, intimate relationship and sexual expression. In need domains such as information, sexual expression, intimate relationship, safety to self and benefits a great proportion of the patients did not received any formal or informal help. Subjective quality of life was most poor in the areas of finances and work. Objective life conditions and subjective quality of life were only weakly associated while sense of coherence, aspects of the social network, psychopathology and severity of needs showed at stronger association to quality of life. Compared to a healthy sample the patients reported a worse social network. Relatives were stated as main supportive contacts and played a vital role in providing help and support in both social and clinical domain of need. Quality of life improved, and symptoms and needs were reduced during follow-up for patients included in a new psychosis team. Patients only in contact with a psychiatrist in the team in some aspects showed a better outcome compared to patients with more extensive contacts with the team. Support was found for a construct and predictive validity of the SOC measure. The results are discussed in relation to a holistic perspective of quality of life and evidence-based community-based psychiatric services.
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| 37. |
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| 38. |
- Bengtsson Tops, Anita
(författare)
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Staff's experiences and understanding of support to abused women with mental illness
- 2008
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Objective: Several studies have reported that care and support staff has a tendency to ignore recognising violence against women with mental illness, which lead to increased feelings of stigma in these women. Today there is a lack of in-depth knowledge about factors that may influence care providers attitudes in encounters with these women. The aim of this qualitative study was to describe how staff experience and understand their everyday work with abused women with mental illness.Methods: 13 professionals who in their working practice encountered women with mental illness and experience of abuse were interviewed by means of unstructured thematic interviews. Data were analysed by using latent content analysis in order to identify categories a nd themes.Results: Participating staff found it hard to understand abuse against women with mental illness. They lack knowledge about how to handle and interpret this phenomenon and developed personal frames of interpretations and strategies for handling the women’s needs. They experienced their everyday work with these women as painful and ambiguous and made them act pragmatic mainly in a practical way that sometimes included assertive attitudes.Conclusion: Staff working with abused women with mental illness is in a vulnerable position due to lack of understanding and knowledge about the phenomenon. In such position it is at risk to adopt stigmatised attitudes against the women and thereby challenge the professionals’ occupational safety.
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| 39. |
- Bengtsson Tops, Anita, et al.
(författare)
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The prevalence of abuse in Swedish female psychiatric users, the perpetrators and places where abuse occurred
- 2005
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Ingår i: Nordic Journal of Psychiatry. - 0803-9488 .- 1502-4725. ; 59:6, s. 504-510
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Tidskriftsartikel (refereegranskat)abstract
- The aims of the study were to investigate self-reported physical, sexual, emotional and economical abuse in Swedish female users of psychiatric services, who the perpetrators were and in which places abuse occurred. An anonymous self-administrated questionnaire was answered in the waiting room of the services. The drop-out rate was 21% and n=1382 women completed the questionnaire. Fifty-three per cent of the women had been abused during childhood, 63% during adulthood and 31% during past year. Seventy-four per cent of those exposed during childhood were also exposed later in life. Women subjected to abuse reported longer contact with psychiatric care. Regardless of life period, the majority reported multiple and frequent abuse. Emotional abuse was most frequent reported in both childhood and adulthood followed by physical and sexual abuse. The reported perpetrators were mainly male persons to whom the woman had an intimate relationship. Mostly the abuse occurred in the women's own home. However, other women, strangers, acquaintances and relatives were also stated as perpetrator and abusive acts also took place in other homes, outdoors or down town. The high prevalence of abuse and its multiplicity point to the necessity for the care and support system to prioritize abuse against women with psychiatric illness.
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| 41. |
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| 43. |
- Bengtsson Tops, Anita, 1956-, et al.
(författare)
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Victimization in individuals suffering from psychosis : a Swedish cross-sectional study
- 2012
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - 1351-0126 .- 1365-2850. ; 19:1, s. 23-30
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Tidskriftsartikel (refereegranskat)abstract
- The aims of the study were to investigate: (1) self-reported adulthood and last-year victimization in male and female outpatients suffering from psychosis; (2) relationships to perpetrators; (3) whether drugs or alcohol were involved in victimization situations; (4) places where victimization occurred. Patients were randomly selected from five outpatient units geared to patients with psychosis; 174 patients participated in a structured face-to-face interview. Experiences of victimization in adulthood were reported by 67%, 33% in the previous year. During adulthood 51% had been physically and 32% sexually victimized and 39% threatened. In the previous year 21% reported threats, 20% physical and 15% sexual victimization. Women reported greater exposure to physical and sexual victimization than men during adulthood and in the previous year. Strangers and acquaintances were mainly reported as perpetrators and half (55%) of those victimized in the previous year stated no involvement of alcohol or drugs. Victimization mainly occurred in the patients' own home (59%), outside downtown (34%), or in others homes (38%). The results of this study give reason to highlight the importance for research and clinical practices to adopt a broad frame of interpretation concerning victimization in patients, covering both individual and environmental factors.
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| 44. |
- Bengtsson Tops, Anita, et al.
(författare)
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Victimization in individuals suffering from psychosis : a Swedish cross-sectional study
- 2012
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - : Wiley. - 1351-0126 .- 1365-2850. ; 19:1, s. 23-30
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Tidskriftsartikel (refereegranskat)abstract
- The aims of the study were to investigate: (1) self-reported adulthood and last-year victimization in male and female outpatients suffering from psychosis; (2) relationships to perpetrators; (3) whether drugs or alcohol were involved in victimization situations; (4) places where victimization occurred. Patients were randomly selected from five outpatient units geared to patients with psychosis; 174 patients participated in a structured face-to-face interview. Experiences of victimization in adulthood were reported by 67%, 33% in the previous year. During adulthood 51% had been physically and 32% sexually victimized and 39% threatened. In the previous year 21% reported threats, 20% physical and 15% sexual victimization. Women reported greater exposure to physical and sexual victimization than men during adulthood and in the previous year. Strangers and acquaintances were mainly reported as perpetrators and half (55%) of those victimized in the previous year stated no involvement of alcohol or drugs. Victimization mainly occurred in the patients’ own home (59%), outside downtown (34%), or in others homes (38%). The results of this study give reason to highlight the importance for research and clinical practices to adopt a broad frame of interpretation concerning victimization in patients, covering both individual and environmental factors.
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| 45. |
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| 46. |
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| 47. |
- Bengtsson Tops, Anita
(författare)
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Våldsutsatthet bland kvinnor som vänder sig till psykiatrisk vård
- 2010
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Ingår i: Att fråga om våldsutsatthet som en del av anamnesen. - Uppsala : Nationellt centrum för kvinnofrid (NCK). ; , s. 159-166
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Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- Hot och våld som riktas mot kvinnor med psykisk sjukdom är vanligt förkommande i vårt samhälle i dag och medför att kvinnornas psykiska hälsa och självkänsla försämras. För att tillgodose deras behov av vård och stöd måste personal inom det samhällsbaserade vård- och stödsystemet i större utsträckning än vad som görs i dag ställa frågor om utsatthet samt informera om hjälp som finns att tillgå. Dessutom behöver personal utbildning för att bättre förstå bakomliggande orsaker till våld mot dessa kvinnor samt hur de på bästa sätt ska bemötas. För att personal ska kunna tillgodose behov hos våldsutsatta kvinnor med psykisk sjukdom måste verksamhetsledningen oavsett beslutsnivå legitimera personalens arbete med denna grupp kvinnor.
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| 48. |
- Bengtsson Tops, Anita
(författare)
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Våldsutsatthet bland kvinnor som vänder sig till psykiatrisk vård
- 2010
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Ingår i: Att fråga om våldsutsatthet som en del av anamnesen. - Uppsala : Nationellt centrum för kvinnofrid (NCK). ; , s. 159-166
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Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- Hot och våld som riktas mot kvinnor med psykisk sjukdom är vanligt förkommande i vårt samhälle i dag och medför att kvinnornas psykiska hälsa och självkänsla försämras. För att tillgodose deras behov av vård och stöd måste personal inom det samhällsbaserade vård- och stödsystemet i större utsträckning än vad som görs i dag ställa frågor om utsatthet samt informera om hjälp som finns att tillgå. Dessutom behöver personal utbildning för att bättre förstå bakomliggande orsaker till våld mot dessa kvinnor samt hur de på bästa sätt ska bemötas. För att personal ska kunna tillgodose behov hos våldsutsatta kvinnor med psykisk sjukdom måste verksamhetsledningen oavsett beslutsnivå legitimera personalens arbete med denna grupp kvinnor.
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| 49. |
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| 50. |
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