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- Jaiswal, Atul, et al.
(författare)
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The International Classification of Functioning, Disability and Health (ICF) core sets for deafblindness, part II of the systematic review : linking data to the ICF categories
- 2024
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Ingår i: European Journal of Physical and Rehabilitation Medicine. - 1973-9087 .- 1973-9095.
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Forskningsöversikt (refereegranskat)abstract
- INTRODUCTION: Deafblindness, a health condition with varying combinations of hearing and vision impairment, affects functioning and social participation. In 2001, the World Health Organization (WHO) introduced the International Classification of Functioning, Disability, and Health (ICF) to examine human health and functioning. To use the ICF in clinical practice, smaller categories of ICF codes, referred to as Core Sets, were developed for specific health conditions. However, no ICF Core Set exists for deafblindness. As part of an ICF Core Set development, this paper examines the existing literature from an ICF perspective and links relevant data to the ICF categories.EVIDENCE ACQUISITION: The systematic review followed the Preferred Reporting Items for Systematic Review and Meta-Analyses (PRISMA). Articles were selected from eight scientific databases, three journals, and Google Scholar. The research team linked outcome measures and qualitative studies to ICF codes using ICF linking rules. For each measure/qualitative study's final code list, they included each code only once after eliminating any duplicates. Subsequently, a frequency analysis was conducted, and ICF categories identified in at least five studies were included in the candidate categories list.EVIDENCE SYNTHESIS: 147 articles met the eligibility criteria. Most studies were from Europe (N.=70) and North America (N.=41). 316 categories were identified in at least five studies that belong to one of four ICF components. This includes 112 categories in the body function component, 3 categories in body structure, 163 in activities and participation, and 38 in environmental factors. Additionally, 21 personal factors relating to demographics were identified. The most frequent category was listening (category d115) at 82.31%, followed by range of emotions (category b1522) at 78.91%, hearing function (category b230) at 68.03%, and assistive products and technology for communication (category e1251) at 63.27%.CONCLUSIONS: As the second part of the first four studies in developing ICF Core Sets for deafblindness, this review described the ICF categories relevant to the functioning of individuals with deafblindness. These categories inform the development of the Core Sets on deafblindness from the researcher's perspective. The final Core Sets will guide clinical practice, programs, and policies for individuals with deafblindness.
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| 2. |
- Paramasivam, Abinethaa, et al.
(författare)
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The International Classification of Functioning, Disability and Health Core Set for deafblindness. Part I : a systematic review of outcome measures
- 2023
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Ingår i: European Journal of Physical and Rehabilitation Medicine. - : Edizioni Minerva Medica. - 1973-9087 .- 1973-9095. ; 59:5, s. 615-627
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Forskningsöversikt (refereegranskat)abstract
- INTRODUCTION: The International Classification of Functioning, Disability, and Health (ICF), developed by the World Health Organization, is a classification framework that focuses on the health and functioning of people with disabilities. As part of an ICF Core Set development, four studies need to be conducted, one of which is a systematic review. This study presents part 1 of the systematic review that aims to describe the outcome measures identified in the literature related to functioning in individuals with deafblindness. EVIDENCE ACQUISITION: The research team screened articles from eight scientific databases, three journals, and Google Scholar (March 2011 to September 2022). Articles were included if they studied individuals with deafblindness aged 18 and older. Studies that examined genetics or laboratory experiments involving animals were excluded. Data were extracted into a logbook with key descriptors such as study location and design, age of study population, and instruments/outcome measures used, which were further categorized into one of the following types: 1) standardized; 2) patient-reported measures, standardized (PT-S); 3) patient-reported measures, not standardized (PT-not S); 4) health professional, reported measures, standardized (HP-S); 5) Technical measures; 6) other measures (parent-reported standardized and laboratory measures).EVIDENCE SYNTHESIS: The review included 147 studies, of which most were conducted in Europe (47.6%) and North America (27.9%). Of the 314 identified outcome measures, 57 were Standardized, 59 were Patient Reported-Standardized (PT-S), 178 were patient reported non-standardized (PT-Not S) variables, 11 were health professional reported, standardized, five were technical, and four were classified as other measures.CONCLUSIONS: Most instruments measured functioning in daily activities and the mental health of individuals with deafblindness. Three deafblind-specific instruments were identified in this study, highlighting the need for more deafblind-specific instruments to be developed and utilized in research.
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| 3. |
- Wittich, Walter, et al.
(författare)
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Development of core sets for deafblindness : an international expert survey on functioning and disability of individuals living with deafblindness using the International Classification of Functioning, Disability, and Health
- 2024
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Ingår i: European Journal of Physical and Rehabilitation Medicine. - : Edizioni Minerva Medica. - 1973-9087 .- 1973-9095. ; 60:2, s. 382-390
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: The development of International Classification of Functioning, Disability, and Health (ICF) Core Sets greatly enhances the global recognition of health conditions, thereby advancing research, education, and care provision. Aside from the work of researchers, and the viewpoint of persons with lived experience, the development of Core Sets for deafblindness needs to include the viewpoints of professionals with expertise unique to this condition.AIM: To represent the perspective of health and social service expert professionals in the development of ICF Core Sets for deafblindness.DESIGN: Cross-sectional cohort study.SETTING: Global online survey representing all six regions of the World Health Organization.POPULATION: One hundred and five professionals providing and health or social service to individuals living with deafblindness with a minimum of 2 years of work experience with this population.METHODS: An online survey was distributed through professional networks and social media for individuals working with persons living with deafblindness. Demographic items were summarized using descriptive statistics. Six open-ended questions explored the perceptions of body functions and structures that influence activities and participation, as well as environmental and personal factors that facilitate functioning. Data were linked to the ICF codes using established linking rules and procedures.RESULTS: The 2934 survey response units were linked using IFC categories. Of the 421 unique categories, 133 were used by 5% or more of respondents. Most categories within the Activities and Participation component were equally emphasized. The most frequent Environmental factors were support and relationships, services, systems, and policies, as well as and the physical environment (e.g., hearing aids or noise). Mental functions, including higher level cognitive functions, temperament and personality were frequently emphasized.CONCLUSIONS: Almost three quarters (73.3%) of the entire ICF classification categories were included in the expert survey results. This proportion emphasizes the importance of a multidimensional tool, such as the ICF, for assessing functioning and health for persons with deafblindness.CLINICAL REHABILITATION IMPACT: The representation of this professional perspective in Core Set development will improve standardized assessment and documentation, intervention planning, and facilitate interprofessional communication with the goal of improving person-centered care for persons living with deafblindness.
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| 4. |
- Wittich, Walter, et al.
(författare)
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Expert Survey for the Development of a Core Set for Deafblindness using the International Classification of Functioning, Disability, and Health
- 2023
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Ingår i: Investigative Ophthalmology and Visual Science. - : Association for Research in Vision and Ophthalmology. - 0146-0404 .- 1552-5783. ; 64:8
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Purpose: Individuals with deafblindness are a diverse group and require interdisciplinary care. To provide a universal terminology that facilitates communication among stakeholders, the World Health Organization (WHO) developed the International Classification of Functioning, Disability and Health (ICF). A sub-selection of categories, referred to as ICF Core Sets, provides a tool to describe functioning and disability in specific health conditions. As part of a multi-study process of developing a Core Set for deafblindness, we conducted an expert survey for the identification of key concepts.Methods: An international online survey gathered the opinion of professionals who worked with persons with deafblindness. Six open-ended questions addressed their perceptions on how deafblindness affects body functions and structures, activities, and participation, and how personal and environmental factors act as barriers and/or facilitators in everyday life with deafblindness. Survey responses were analysed using content analysis, and meaningful concepts were linked to the ICF codes using linking rules established by the WHO.Results: Of the 205 complete responses, 100 stratified respondents were selected across the WHO regions: Africa (n = 8), the Americas (n = 31), South-East Asia (n = 22), Europe (n = 25), Western Pacific (n = 14). Professions included optometry, ophthalmology, low vision therapy, occupational therapy, intervenor/interpreter, social work, rehabilitation counselling, O&M, and psychology, among others. The most frequent codes linked to body structures were eye, ear (s299), and nervous system (s1). Most prevalent body function codes included seeing (b210), hearing (b230), tactile perception (b1564) and touch (b265). For activity and participation, experts identified communication (d399), carrying out daily routine (d2309), and learning and applying knowledge (d199) as main concepts. Environmental variables focused on societal attitude (e460), human caused events (e235), light (240) and sounds (e250).Conclusions: The expert views that are not easily coded using the ICF were global effects of deafblindness that affect all aspects of functioning, as well as those that are progressive over time. Next, the ICF codes reported by at least 5% of the experts will be included in the list of candidate categories for an international consensus conference.
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