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- Angelhoff, Charlotte, 1974-, et al.
(författare)
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Parents´ perception of circumstances influencing their own sleep when living with a child enrolled in hospital-based home care services
- 2015
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Ingår i: The Gerry Schwartz and Heather Reisman 4th International Conference on Pediatric Chronic Diseases, Disability and Human Development. - Jerusalem : Paragon Israel.
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Konferensbidrag (refereegranskat)abstract
- Background: Caring for a sick child creates great demands for the parents. Sleep is an important aspect of wellbeing and is strongly related to stress and quality of life. Caring for a child at home gives the family the opportunity to be together in a familiar environment, but includes several sleep disturbances during the night which affects the ability to handle the situation.Aim: To describe parents’ perceptions of circumstances influencing their own sleep, living with a child enrolled in Hospital-Based Home Care Services.Method: This is a phenomenographic study with an inductive, exploratory design, using semi-structured interviews with main and follow-up questions. Fifteen parents with children enrolled in Hospital-Based Home Care Services were included.Findings: The outcome space consists of four descriptive categories: s; Sleep influence mood and mood influences sleep, Support and safeness influence sleep, The child´s needs and routines influence sleep, and Me-time influences sleep.Discussion: Parents to children in Hospital-Based Home Care Services perceive their sleep differently depending on how safe they feel with the situation. Troubling thoughts, bedtime worries, anxiety and stress affect sleep negatively. Safeness is prerequisite for sleep. Shared responsibility and social support help the parents to cope with the daily life and thus facilitate sleep. The parents adjust their routines after the cild´s needs to find time for sleep and relaxation. Me-time and physical activity was perceived as important tools to improve coping and sleeping.
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| 2. |
- Angelhoff, Charlotte, 1974-, et al.
(författare)
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Perceptions of sleep by parents of children in hospital organized home-care
- 2014
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Ingår i: Programbok Barnveckan 2014, Malmö, 7-11 april, 2014. ; , s. 33-33
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Konferensbidrag (refereegranskat)abstract
- IntroductionCaring for a sick child creates great demands for the parents. Sleep is an important aspect of wellbeing and is strongly related to stress and quality of life. Caring for a child at home gives the family the opportunity to be together in a familiar environment. On the other hand it includes several sleep disturbances during the night which affects the ability to handle the situation. AimTo explore parents’ perceptions of sleep living with a child enrolled in hospital-organized home-care. MaterialFifteen parents with children enrolled in hospital-organized home-care were included. MethodInterviews with open-ended questions, analysed with a phenomenographic method. ResultsFour descriptive categories were identified; ‘Anxiety, stress and demands affects sleep negatively’, ‘When I get support I feel safe’, ‘Routines optimizes time for sleep’, and ‘Time for oneself is important for relaxation’ ConclusionSleep is important for the parents in several aspects. They are in a stressful situation with high demands both from the society and from themselves and there is often a lack of support from relatives and friends. Nurses need to acknowledge and promote parents’ sleep when they care for their sick children at home and support them in the caregiving.
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| 3. |
- Angelhoff, Charlotte, 1974-, et al.
(författare)
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Sleep of Parents Living With a Child Receiving Hospital-Based Home Care: A Phenomenographical Study.
- 2015
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Ingår i: Nursing Research. - : Lippincott-Ravn Publisher. - 0029-6562 .- 1538-9847. ; 64:5, s. 372-380
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Tidskriftsartikel (refereegranskat)abstract
- Background: Caring for an ill child at home gives the family the chance to be together in a familiar environment. However, this involves several nocturnal sleep disturbances, such as frequent awakenings and bad sleep quality, which may affect parents' ability to take care of the child and themselves.Objectives: The aim of this study was to describe parents' perceptions of circumstances influencing their own sleep when living with a child enrolled in hospital-based home care (HBHC) services.Method: This is a phenomenographical study with an inductive, exploratory design. Fifteen parents (11 mothers and 4 fathers) with children enrolled in HBHC services were interviewed. Data were analyzed to discover content-related categories describing differences in ways parents experienced sleep when caring for their children receiving HBHC.Results: Four descriptive categories were detected: sleep influences mood and mood influences sleep; support influences safeness and safeness influences sleep; the child's needs influence routines and routines influence sleep; and "me time" influences sleep.Discussion: Sleep does not affect only the parents' well-being but also the child's care. Symptoms of stress may limit the parents' capacity to meet the child's needs. Support, me time, and physical activity were perceived as essential sources for recovery and sleep. It is important for nurses to acknowledge parental sleep in the child's nursing care plan and help the parents perform self-care to promote sleep and maintain life, health, and well-being.
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| 4. |
- Edéll-Gustfsson, Ulla, et al.
(författare)
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Hindering and buffering factors for parental sleep in neonatal care. : A phenomenographic study
- 2015
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Ingår i: Disability, Chronic Disease and Human Development. - : Nova Science Publishers, Inc.. - 9781634830294
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- BackgroundParents experience many stressful situations when their newborn infant is preterm and/or sick. This affects bonding. By developing more family-centered care units with single-family rooms, parents are given the opportunity to stay and care for their newborn infant(s) twenty-four hours a day. Lack of sleep may affect the new parents’ ability to handle the situation.AimTo explore and describe how parents of preterm and/or sick infants in neonatal care perceive their sleep.Methods This is a phenomenographic study with an inductive, exploratory design. Semi-structured interviews were conducted with twelve parents of infants in neonatal care. Data was analysed to describe variations of the phenomenon.FindingsFour descriptive categories were identified within the phenomenon sleep in parents of preterm and/or sick infants in neonatal care; Impact of stress on sleep, How the environment affects sleep, Keeping the family together improves sleep, and How parents manage and prevent tiredness.ConclusionAnxiety, uncertainty and powerlessness have a negative influence on sleep. This can be decreased by continuous information, guidance, and practical support. Skin-to-skin-care is an important source for recovery, relaxation and sleep, and should be encouraged by the nurse. The parents also mentioned the importance of being together. To have a private place where they could relax and take care of themselves and their newborn infant improved sleep. It was also desirable to involve older siblings in order to decrease feelings of loneliness, sadness and isolation. Improved parental sleep in the neonatal care may help the families to cope with the situation, and facilitate problem-solving, emotional regulation, and the transition to parenthood.
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