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1.
  • Adolfsson, Päivi, 1956-, et al. (författare)
  • A father nevertheless : Self-confident but resigned fathers with children in foster care
  • 2023
  • Ingår i: Journal of Intellectual Disabilities. - : Sage Publications. - 1744-6295 .- 1744-6309.
  • Tidskriftsartikel (refereegranskat)abstract
    • This qualitative study aimed to explore the experiences of nine fathers with neurodevelopmental disabilities with children in foster care, including their fathering role, visits and formal and informal support. Systematic text condensation was the analysis method used. The respondents’ experience of fatherhood revealed two categories: I accept my situation and I am frustrated. Though self-confident, the fathers expressed ambivalence between acceptance and frustration with their role. The study shows that more should be done to provide adapted support for these vulnerable fathers with children in foster care, although they seldom demand such support. Social workers and professionals from the rehabilitation team within the healthcare service should be aware of gendered settings, specifically norms of masculinity. Increased efforts from the social workers may reduce the risks of detachment in parenthood because engaged and informed fathers are in the children’s best interests.
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2.
  • Adolfsson, Päivi, 1956-, et al. (författare)
  • Mothers with cognitive limitations who have children in placement benefit from intervention
  • 2021
  • Ingår i: Child & Family Social Work. - : Wiley. - 1356-7500 .- 1365-2206. ; 26:1, s. 79-88
  • Tidskriftsartikel (refereegranskat)abstract
    • Mothers with cognitive limitations who have children in placement need to be listened to and to receive help in understanding and dealing with their situation. A support programme for this group was developed in Australia and then adapted for use in a Swedish context and named 'Mamma Trots Allt' (MTA). The aim was to examine the experiences of these mothers regarding their mothering role after participation in MTA. An explorative and qualitative design was used. Inclusion criteria were mothers with cognitive limitations, a child in placement and participation in MTA. Nine mothers, eight of them from a previous study, gave their informed consent to participate. A study-specific interview guide was adapted to people with cognitive limitations. The interviews took place after the final MTA session. The qualitative analyses resulted in a description of the mothers' experiences and how they changed after MTA, resulting in an overall theme, two subthemes, four categories and 11 subcategories. MTA facilitated the mothers' maturation and broadened their earlier, stereotypic life expectations. Offering a support programme benefits not only the mother but most likely the child as well.
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3.
  • Arvidsson, Patrik, et al. (författare)
  • Evaluation of the group intervention "Let's Get Organized" for improving time management, organisational, and planning skills in people with mild intellectual disability
  • 2023
  • Ingår i: Scandinavian Journal of Occupational Therapy. - : Pharma Intelligence UK Ltd.. - 1103-8128 .- 1651-2014. ; 30:8, s. 1257-1266
  • Tidskriftsartikel (refereegranskat)abstract
    • BACKGROUND: Limited time management skills cause problems in daily life for people with mild intellectual disability (ID) and "Let's Get Organized" (LGO) is a promising manual-based occupational therapy group intervention aiming to support management skills.AIMS/OBJECTIVES: To evaluate the applicability of the Swedish version of LGO-S by i) exploring enhancements in time management skills, satisfaction with daily occupations, and aspects of executive functioning in people with time-management difficulties and mild ID, and ii) describing clinical experiences of using the LGO-S for people with mild ID.MATERIAL AND METHODS: Twenty-one adults with mild ID were included. Data were collected pre-/post-intervention and at 3- and 12-month follow-ups with: Swedish version of Assessment of Time Management Skills (ATMS-S), Satisfaction with Daily Occupation (SDO-13), and Weekly Calendar Planning Activity (WCPA-SE). There were few follow-up participants (n = 6-9).RESULTS: Significant change in time management skills that maintained at 12-months follow-ups. Significant increase in regulation of emotions at 12-month follow-up. Results at 12-months follow-up indicated sustainability in outcomes as measured by ATMS-S. A non-significant positive trend was observed in other outcomes between pre- and post-intervention.CONCLUSIONS AND SIGNIFICANCE: LGO-S seems applicable for improving skills in time management, organisation and planning also for people with mild ID.
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4.
  • Holmefur, Marie, 1968-, et al. (författare)
  • Evaluation of the "Let's Get Organized" group intervention to improve time management : protocol for a multi-centre randomised controlled trial
  • 2021
  • Ingår i: Trials. - : BioMed Central. - 1745-6215. ; 22:1
  • Tidskriftsartikel (refereegranskat)abstract
    • BACKGROUND: Time management skills are essential for living in modern society. People with mental or neurodevelopmental disorders typically have cognitive limitations, including affected time management, which might lead to poor occupational balance, low self-efficacy, and poor parental sense of competence. "Let's Get Organized" (LGO) is a recently developed manual-based group intervention to train time management skills. The aim of this trial is to evaluate the efficiency of the Swedish version of LGO (LGO-S) compared to treatment as usual (individual occupational therapy) to improve time management for adults with impaired time management skills due to mental or neurodevelopmental disorders. Furthermore, to evaluate if the intervention is a cost-effective way to improve the quality of life and time management skills of these individuals, we will conduct a health economic evaluation.METHODS: The trial will have a multi-centre, open, parallel randomised controlled design. A total of 104 adults with cognitive limitations due to mental or neurodevelopmental disorders will be recruited from open psychiatric or habilitation care units. Outcomes will be measured before and after a 10-week intervention, with a follow-up 3 months after completing the intervention. The primary outcome will be self-assessed time management skills. Secondary outcomes will be e.g. self-assessed skills in organisation and planning, regulation of emotions, satisfaction with daily occupations, occupational balance, self-efficacy, and quality-adjusted life years.DISCUSSION: A recent feasibility study has shown promising results for LGO-S, and a randomised trial will provide robust evidence for the possible efficacy of LGO-S in comparison to treatment as usual.TRIAL REGISTRATION: ClinicalTrials.gov NCT03654248 . Registered on 20 August 2018.
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  • Holmefur, Marie, 1968-, et al. (författare)
  • Pilot Study of Let's Get Organized : A Group Intervention for Improving Time Management
  • 2019
  • Ingår i: American Journal of Occupational Therapy. - : American Occupational Therapy Association, Inc.. - 0272-9490 .- 1943-7676. ; 73:5
  • Tidskriftsartikel (refereegranskat)abstract
    • IMPORTANCE: There is a need for evidence-based occupational therapy interventions to enhance time management in people with time management difficulties.OBJECTIVE: To pilot test the first part of the Let's Get Organized (LGO) occupational therapy intervention in a Swedish context by exploring enhancements of time management skills, aspects of executive functioning, and satisfaction with daily occupations in people with time management difficulties because of neurodevelopmental or mental disorders.DESIGN: One-group pretest-posttest design with 3-mo follow-up.SETTING: Outpatient psychiatric and habilitation settings.PARTICIPANTS: Fifty-five people with confirmed or suspected mental or neurodevelopmental disorder and self-reported difficulties with time management in daily life.INTERVENTION: Swedish version of Let's Get Organized (LGO-S) Part 1, with structured training in the use of cognitive assistive techniques and strategies using trial-and-error learning strategies in 10 weekly group sessions of 1.5 hr.OUTCOMES AND MEASURES: Time management, organization and planning, and emotional regulation were measured with the Swedish version of the Assessment of Time Management Skills (ATMS-S). Executive functioning was measured with the Swedish version of the Weekly Calendar Planning Activity, and satisfaction with daily occupations was assessed with the Satisfaction With Daily Occupations measure.RESULTS: Participants displayed significantly improved time management, organization and planning skills, and emotional regulation, as well as satisfaction with daily occupations. Aspects of executive functioning were partly improved. ATMS-S results were sustained at 3-mo follow-up.CONCLUSION AND RELEVANCE: LGO-S Part 1 is a promising intervention for improving time management skills and satisfaction with daily occupations and should be investigated further.WHAT THIS ARTICLE ADDS: This study shows that LGO-S Part 1 is feasible for use in psychiatric and habilitation outpatient services. The results are promising for improved time management skills, organization and planning skills, and satisfaction with daily occupations and need to be confirmed in further studies.
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7.
  • Höglund, Berit, 1955-, et al. (författare)
  • Choice, Preference, and Disability
  • 2020
  • Ingår i: The Choice of Becoming a Parent. - : Springer. - 9783030356835 ; , s. 257-281
  • Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
    • Becoming a parent is an intense transition and is often seen as a highly regarded social role. However, this choice is challenging for many people with (intellectual) disabilities. This chapter will examine the history and research concerning the choice to become a parent. The focus will be on people with intellectual disability and borderline intellectual functioning. The chapter will consider choices within a relational context, exploring the role that parents, caregivers, support workers, child protection services, government, and society play in the parenting choices adults with ID make. We will describe approaches to providing education, services (including using specialized intervention and tools), and support for parenting choices.
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8.
  • Höglund, Berit, 1955-, et al. (författare)
  • Efficacy of a school-based intervention to influence attitudesabout future parenting among Swedish youth with intellectualdisability : An RCT study
  • 2023
  • Ingår i: JARID. - : John Wiley & Sons. - 1360-2322 .- 1468-3148. ; 36:5, s. 1000-1012
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: The study aim was to investigate the efficacy of an intervention designed to provide a basis for informed choices about future parenthood to special upper secondary school students with intellectual disabilities.Methods: A randomised trial with a waiting list control group was used. In total,108 special upper secondary school students with mild or moderate intellectual disabilities, age 16–21 years, provided informed consent and participated. The intervention included education using the Parenting Toolkit and a Real Care Baby simulator.The analyses included 91 students (intervention group n = 46, 24F/22M; controlgroup n = 45, 26F/19M).Results: The result showed that intervention group changed their attitudes to future parenting, from ‘do not know’ to ‘know’, significantly more than control group. The intervention increased knowledge levels in the intervention group. Conclusions: The intervention group showed increased ability to make informed choices and decisions about parenthood.
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9.
  • Janeslätt, Gunnel, 1952-, et al. (författare)
  • Advocating for parents with intellectual disabilities by mobilization of professionals
  • 2019
  • Ingår i: A Future for All.
  • Konferensbidrag (refereegranskat)abstract
    • Parents with cognitive limitations including intellectual disabilities are vulnerable and in need of adapted support. A lot is known about the consequences of cognitive limitations, and what can be done to facilitate the daily functioning for the parents and via them, for the children. Yet, social workers lack knowledge of how to adapt service and support to cognitive difficulties.Aims: The purpose was to identify ways to increase the awareness of the needs of parents with cognitive limitations at organizational and political levels in a society. Methods: Researchers from two organizations; SUF Resource center and Gillberg center in Sweden led the process. A goal directed work via meetings with different stakeholders including a research network, the National Board of Health and Welfare and at the National parliament was done. The stakeholders suggested mobilization of professionals. A big amassing conference was arranged. The program of the day was clear in the aim to advocate for the need to increase the knowledge of the needs of parents with cognitive limitations and their rights to be offered support tailored to their cognitive limitations. Results: The process of mobilizing professionals and the results will be presented at the congress
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11.
  • Janeslätt, Gunnel, 1952-, et al. (författare)
  • An Intervention using the Tool-kit ”Children – what does it involve?” and the Real-Care-Baby simulator among students with ID - a feasibility study
  • 2019
  • Ingår i: JARID. - : Wiley. - 1360-2322 .- 1468-3148. ; 32:2, s. 380-389
  • Tidskriftsartikel (refereegranskat)abstract
    • Background There is limited knowledge about how young people with intellectual disability (ID) can be facilitated in their process of deciding about parenthood. This study aimed to evaluate the feasibility of an upcoming trial to evaluate an intervention using the Toolkit ”Children – what does it involve?” and the “Real-Care-Baby” (RCB) simulator among students with ID.                                                                                                                                 Methods Six students with ID participated in an intervention with eight educational sessions and a three-day caring-session with the RCB simulator. Data were collected with questionnaires and interviews. Results The study showed that it is possible to evaluate an intervention using these instruments among students with ID in order to provide them with further insights about parenthood.                                                                                              Conclusion It is feasible to evaluate the Toolkit and the RCB in a cluster-randomized study and that such a study could add to our knowledge about possible intervention strategies regarding reproduction and parenting among students with ID.
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13.
  • Janeslätt, Gunnel, 1952-, et al. (författare)
  • Assessment of time management skills : psychometric properties of the Swedish version
  • 2018
  • Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa UK Limited. - 1103-8128 .- 1651-2014. ; 25:3, s. 153-161
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Persons with impaired time management skills are often in need of occupational therapy. Valid and reliable instruments to assess time management and organizational skills are needed for the evaluation of intervention. The purpose of this study was to evaluate the psychometric properties of a Swedish version of the Assessment of Time Management Skills (ATMS-S) for persons with and without impaired time management skills.Method: A total of 238 persons participated in the study, of whom 94 had self-reported impaired time management skills due to mental disorders such as schizophrenic spectrum or neurodevelopmental disorders such as attention deficit/hyperactivity disorder (ADHD), autism spectrum disorder (ASD) and mild intellectual disabilities, and 144 persons had no reported impaired time management skills. Rasch analysis was used to analyze data.Results: Three subscales were detected: the time management subscale with 11 items, the organization & planning subscale with 11 items, and the subscale of regulation of emotions with 5 items, with excellent to acceptable psychometric properties. The conclusions were that: ATMS-S is a valid instrument for self-rating of time management, organization & planning and for the regulation of emotions. ATMS-S can be useful for persons with mental disorders including mild neurodevelopmental disorders.
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17.
  • Janeslätt, Gunnel, 1952-, et al. (författare)
  • Experiences of the maternal role and support in mothers with cognitive limitations who have children in placement
  • 2019
  • Ingår i: Child & Family Social Work. - : Wiley. - 1356-7500 .- 1365-2206. ; 24:4, s. 494-502
  • Tidskriftsartikel (refereegranskat)abstract
    • In Sweden, when needed, children of mothers with cognitive limitations are placed infoster homes. There is a lack of knowledge about the mothers with cognitive limitations,their experiences of their maternal role, whether they get the support neededto maintain the relationship with their children, and whether the support system isadapted to mothers with cognitive limitations. The aim was to describe the experiencesof the maternal role and support given in mothers with cognitive limitationswho have children in placement. An explorative and qualitative design was used.Eleven respondents were interviewed with support from a study‐specific guide. Amodel representing the respondents' experiences revealed one theme “Struggling,dependent and frustrated mothers,” and three categories: I am a mother, I am dependenton an incomprehensible system, and I reluctantly accept my situation. Motherswith children in placement experience a threat to their identity and experience a needto alter their maternal role. They need adapted support to understand the decisionsmade and facilitate the cooperation with child protection services and the fosterhome. Offering service adapted to their cognitive limitations could be helpful forthe struggling, dependent, and frustrated mothers.
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20.
  • Janeslätt, Gunnel, 1952-, et al. (författare)
  • Intervention in time-processing ability, daily time management and autonomy in children with intellectual disabilities aged 10-17 years - A cluster randomised trial
  • 2019
  • Ingår i: Australian Occupational Therapy Journal. - : WILEY. - 0045-0766 .- 1440-1630. ; 66:1, s. 110-120
  • Tidskriftsartikel (refereegranskat)abstract
    • Background/aim Difficulties with management of time are frequently observed in children and youth with intellectual disabilities (IDs). The aim of this study was to evaluate a new intervention programme 'My Time' to improve time-processing ability (TPA) in children with IDs aged 10-17 years (n = 61). Methods Cluster randomised and waiting-list control group design was used. Data collection included the Kit for assessment of TPA, the Time-Parent scale and a self-rating of autonomy to assess occupational performance in daily life. The method was implemented over an 8-week period. Effect size (ES) was calculated and an analysis of covariance on the individual level and a two-stage process on the cluster level. Results The estimated mean improvement in the KaTid-Child score from baseline (t1) to t2 was significantly higher in the intervention group compared to the waiting-list group, ES Cohen's d = 0.64. Conclusion The results present first evidence of the effectiveness of a new occupational therapy intervention programme ('My Time') to facilitate TPA in children with mild to moderate IDs. Children with IDs aged 10-17 years could improve their TPA at a measurable pace when given intervention. The method could complement interventions using time-assistive devices. Children with IDs should be identified to guide intervention. Further research is necessary to establish whether using the intervention programme can facilitate the development of TPA in younger children.
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22.
  • Janeslätt, Gunnel, 1952-, et al. (författare)
  • Tidsuppfattning och tidshantering i vardagen
  • 2015
  • Ingår i: Arbetsterapi för barn och ungdomar. - Lund : Studentlitteratur AB. ; , s. 259-270
  • Bokkapitel (populärvet., debatt m.m.)
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23.
  • Janeslätt, Gunnel, 1952-, et al. (författare)
  • Tools for Cognitive Accessibility, focus on visitations for parents with intellectual disabilities and children in foster care
  • 2019
  • Konferensbidrag (refereegranskat)abstract
    • Parents with intellectual disabilities have an increased risk of having their child placed in foster care. Social workers lack knowledge of cognitive functions and tool for adapting service and support to cognitive difficulties. The National Board of Health and Welfare are creating a guideline for social workers focusing on support to visitation when children are in placement.Aims: The purpose was to make current knowledge about cognitive limitations, the consequences and what tools/strategies can be used by professionals visible when offering support to parents with cognitive limitations with children in foster homes.   Methods: An information material, based on research and on clinical praxis, was structured using Universal design for learning (UDL). The Toolbox will give examples how a professional/a social worker can provide a) multiple means for engagement b) multiple means to comprehension and c) options for action and expression. Complementing the material, a description of a “typical case” getting support from a social worker who uses some of the tools.Results: The process of creating the Toolbox and the material will be presented at the congress
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24.
  • Janeslätt, Gunnel, 1952- (författare)
  • Universal Design
  • 2019
  • Konferensbidrag (populärvet., debatt m.m.)
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26.
  • Janeslätt, Gunnel, 1952- (författare)
  • Validity in assessing time processing ability, test equating of KaTid-Child and KaTid-Youth
  • 2012
  • Ingår i: Child Care Health and Development. - : Wiley. - 0305-1862 .- 1365-2214. ; 38:3, s. 371-378
  • Tidskriftsartikel (refereegranskat)abstract
    • BACKGROUND: There is a need for instruments with acceptable psychometric properties for measuring time management/time processing ability. KaTid-Child (Swedish: Kit for assessing Time processing ability) was developed for children aged 5-10 years. To meet needs of assessing older children, KaTid-Youth was created. The aim of this study was to investigate the validity of KaTid-Youth.METHODS: This study investigates the validity of KaTid-Youth using Rasch models: partial credit and common item equating.RESULTS: Results indicate that KaTid-Youth has acceptable psychometric properties and seems to measure the same construct as KaTid-Child.CONCLUSIONS: Indications of gender differences in the sample call for further research. The results indicate that time processing ability can be seen as one construct in which time perception, orientation and management can be operationalized as different levels of complexity in time processing ability. Expressions of time processing ability differ at different ages. Thus, early intervention in time perception and time orientation may be needed to promote time management in later childhood. Professionals need to take time processing ability into consideration when meeting children who risk delayed development of daily time management.
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  • Lindstedt, Helena, 1944-, et al. (författare)
  • A father anyhow : Experiences of fathering role in fathers with intellectual disability with children in foster care.
  • 2019
  • Konferensbidrag (refereegranskat)abstract
    • Experiences of fathering role in fathers with intellectual disability with children in foster careIt is known that some mothers with intellectual disability (ID) with children in placement are in need of individual and adapted support concerning their mothering role. Knowledge if the fathers with ID need support concerning their fathering role is however lacking. The aim was to explore and describe experiences of fathering role and given support in fathers with ID who have children in foster care.MethodAn explorative and qualitative design was used. Men with ID (n=7) who had a child in placement were interviewed with help from an interview guide developed by the researchers. A systematic text condensation was used to analyse the material.ResultsThe preliminary results reveal that the fathers accept their situation and are satisfied with their fathering role. The fathers experience that they have opportunities to be employed and time to practice their own interests since the child is taken care of.ConclusionsThe fathers seem to be satisfied and do not demand adapted support as the mothers do. Given that the fathers described satisfaction in their parenting role and relationship with their child, the need for support was not identified. This research has implications for service provision, as services to fathers might look different than services to mothers with ID. However, given that it is an exploratory study with a small sample size, we need to be careful not to state that results are generalizable but can explore possible gender-specific perspectives.     
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30.
  • Persson, Ann-Christine, et al. (författare)
  • Assessing time processing ability and daily time management in persons with dementia : Psychometric properties of three instruments
  • 2023
  • Ingår i: Australian Occupational Therapy Journal. - : Wiley. - 0045-0766 .- 1440-1630. ; 70:1, s. 3-17
  • Tidskriftsartikel (refereegranskat)abstract
    • Introduction: Persons with dementia experience time-related problems, but there is a lack of instruments evaluating their time processing ability and daily time management. This study aimed to evaluate the psychometric properties of the instruments KaTid®-Senior measuring time processing ability, and Time-S© Senior and Time-Proxy© measuring daily time management for persons with dementia.Methods: Persons with dementia (n = 53) and their significant others (n = 49) participated in the study. Rasch analyses were used to evaluate the instruments' rating scale functioning; internal scale validity; person-response validity; unidimensionality; person-separation reliability; and internal consistency. Versions excluding items with poor fit to the Rasch model were also evaluated.Results: Overall, the Rasch analyses showed acceptable psychometric properties. All instruments met the criteria for unidimensionality and the reliability was good. More challenging items should be added in KaTid-Senior for better targeting of persons with mild dementia. Person-response validity issues in Time-S Senior need to be addressed.Conclusion: The instruments can validly and reliably be used to assess time processing ability and daily time management in persons with dementia in clinical research and healthcare settings. In turn, this can contribute to the development of methods to compensate for impaired time processing ability and daily time management. The assessments can also increase the possibility of early detection of impaired time processing ability and daily time management, thereby facilitating adequate timing of interventions and enhanced occupational performance.
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31.
  • Persson, Ann-Christine, et al. (författare)
  • Associations between Time Processing Ability, Daily Time Management, and Dementia Severity
  • 2022
  • Ingår i: International Journal of Environmental Research and Public Health. - : MDPI AG. - 1661-7827 .- 1660-4601. ; 19:7
  • Tidskriftsartikel (refereegranskat)abstract
    • This study investigated associations between time processing ability (TPA), daily time management (DTM), and dementia severity. Persons with dementia (PwDs) (n = 53) and their significant others (n = 49) participated in this cross-sectional study. Bivariate analyses were used to investigate associations between TPA and DTM and the dementia severity. Linear regression models were used to further predict the contribution of the subtests in the Mini Mental State Examination (MMSE) for TPA results. The results showed significant correlations between TPA and dementia severity, where visuospatial functions were the most highly correlated. TPA also showed a significant correlation to proxy-rated DTM. In addition, proxy-rated DTM was significantly correlated with dementia severity and PwDs’ own self-ratings of their DTM. Knowledge of the association between TPA, dementia severity, and visuospatial functions can enable early detection of TPA impairments. For a comprehensive assessment of TPA and DTM, objective measures should be used in combination with self-ratings and proxy-ratings. The findings can be used in clinical research and healthcare settings to develop methods to compensate for impaired TPA and support DTM in PwDs.
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32.
  • Persson, Ann-Christine, et al. (författare)
  • Daily time management in dementia : qualitative interviews with persons with dementia and their significant others
  • 2023
  • Ingår i: BMC Geriatrics. - : BioMed Central (BMC). - 1471-2318. ; 23:1
  • Tidskriftsartikel (refereegranskat)abstract
    • BackgroundPersons with dementia encounter time-related problems and significant others often need to provide support in daily time management and use of time assistive technology (AT). Further research has been requested on how time AT for persons with dementia affects the situation of significant others. Moreover, there are a few previous qualitative studies on the experiences of time AT by persons with dementia. This study explores the experiences of persons with dementia and significant others in daily time management and their perceptions on how time AT affects everyday life.MethodSemi-structured interviews with persons with mild to moderate dementia (n = 6) and significant others (n = 9) were conducted three months after receiving prescribed time AT. Interviews were analysed using qualitative content analysis.ResultsA main category “Support by significant others is always part of daily time management”, and three categories “Facing new challenges”, “Using strategies to handle changes”, and “Time assistive technology in daily life” illustrated that significant others provided support for daily time management in all phases of dementia. This support was often embedded in other kinds of support for emerging challenges. Support in time management was needed from an early stage in dementia, and responsibility for time management was gradually transferred to significant others. Time AT could support time orientation and were important for sharing the time management conducted by others but did not enable independent time management.ConclusionsTime-related assessments and interventions should be offered at an early stage of dementia to increase the possibility of maintaining daily time management skills. Using time AT to communicate time might increase agency and participation in daily occupations for persons with dementia. Given the central role of significant others for daily time management, the society needs to adequately support persons with dementia lacking support from significant others.
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33.
  • Persson, Ann-Christine, et al. (författare)
  • Lack of time and dependence on significant others : Occupational therapists´ experiences of prescribing time assistive technology for persons with dementia.
  • 2020
  • Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa UK Limited. - 1103-8128 .- 1651-2014. ; 27:8, s. 614-624
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: There is lack of knowledge on how occupational therapists (OTs) assess daily time management (DTM) for persons with dementia (PwDs) and on which aspects affect prescription of time assistive technology (AT).Aim: To explore OTs' experiences of assessing the need for and prescribing time AT for PwDs.Material and methods: Focus group interviews with OTs that prescribe time AT for PwDs analyzed via qualitative content analysis.Results: A main category and four categories were identified. The categories illustrated a complex and time-consuming prescription process, which was facilitated if the PwD was supported by a significant other (SO). Support from a SO was especially important during implementation and follow-up. OTs had to take individual responsibility for staying informed about time AT. Organizational limitations and time constraints were barriers for OTs striving to work according to national prescription guidelines.Conclusions and significance: High demands are made on SO's participation during the prescription process. PwDs with no support from SOs are at risk not receiving or fully benefitting from time AT. To avoid inequalities, specific forms of support need to be developed and targeted at PwDs without SOs to ensure that they have sufficient opportunities to access and use time AT.
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34.
  • Persson, Marika, et al. (författare)
  • Daily time management in children with spina bifida
  • 2017
  • Ingår i: Journal of Pediatric Rehabilitation Medicine. - 1874-5393 .- 1875-8894. ; 10:3-4, s. 295-302
  • Tidskriftsartikel (refereegranskat)abstract
    • PURPOSE: Spina bifida (SB) often results in a complex disability and can also cause cognitive dysfunction. No previous study has investigated the ability to adapt to time in children with SB. This ability is crucial for an individual's possibility to develop autonomy in life. The purpose of this study was to investigate whether children aged 10-17 with SB have lower time-processing abilities than typically-developing children, and to describe the profile of time-processing in children with SB. METHOD: Participants comprised a consecutive sample of 21 children (drawn from a geographical cohort of 45) aged 10-17 years (mean: 14 years, SD: 2 years); 13 were boys. The instruments used were KaTid-Y, Time-S, and Time-P. RESULTS: The children with SB had lower time-processing abilities than typically-developing children (52.4% under -2SD), particularly difficulties to orient to and to estimate objective time, to understand time perspectives and with time planning. They also self-rated low use of strategies to adapt to time. The parents rated their children as having extensive difficulties in daily time management. CONCLUSIONS: The low time-processing ability found in children with SB is likely to be an important contributing factor to low autonomy and independence.
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35.
  • Puthran, Reeti, et al. (författare)
  • Cross-cultural adaptation of assessments for time-related abilities of Indian older adults and evaluation of their reliability and validity
  • 2023
  • Ingår i: Scandinavian Journal of Occupational Therapy. - 1103-8128 .- 1651-2014. ; 30:7, s. 1153-1166
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Older adults may have difficulties in daily time management due to age-related or disease-related cognitive impairment. Standardised assessments for time-related abilities are currently unavailable in India.Aim: The study aimed to adapt the Kit for Assessing Time-processing Ability-Senior (KaTid-Senior) and Time-Self rating, Senior (Time-S Senior) for daily time management of Indian older adults, translate these into an Indian language, and evaluate the reliability and validity of the adapted assessments.Materials and methods: The two Swedish-origin assessments were reviewed, adapted for linguistic and cultural relevance into English, and translated into Kannada language. Older adults (n = 128) were conveniently selected, assessed with the Montreal Cognitive Assessment, and assigned to age and gender-matched groups: cognitively-impaired and cognitively-normal. Data was then collected with the adapted assessments.Results: Both adapted assessments demonstrated acceptable reliability (internal consistency) in this sample (alpha =0.89 - 0.90). The cognitively-impaired group had significantly (p < 0.001) lower scores on the assessments as compared to the cognitively-normal group. There was a strong to moderate correlation between the assessments supporting their convergent validity.Conclusions: The adapted assessments are reliable and valid in the Indian context.
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36.
  • Randell, Eva, et al. (författare)
  • A school-based intervention can promote insights into future parenting in students with intellectual disabilities : a Swedish interview study
  • 2021
  • Ingår i: JARID. - : Wiley. - 1360-2322 .- 1468-3148. ; 34:2, s. 471-479
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Few studies have focused on how youth with intellectual disability (ID) can be facilitated in reasoning about future parenthood. This study aimed to explore an intervention using the Toolkit "Childrenwhat does it involve?" and the Real-Care-Baby (RCB) simulator among students with ID.Method: Sixteen students with ID who participated in an intervention with 13 educational sessions, with adapted knowledge and a three-day caring session with the RCB simulator, were individually interviewed after the intervention. Qualitative content analysis was used.Results: Participants reported that the intervention provided important thoughts and insights on future parenting, providing a basis for informed decisions. The ability to be responsible and have autonomy in life and in caring for a future child were described as important.Conclusion: After an intervention, with structured and adapted knowledge and experiences of the RCB simulator, students with ID reported an understanding of the importance of informed decisions about future parenthood.
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37.
  • Randell, Eva, et al. (författare)
  • The toolkit and Real-Care-Baby intervention : experiences of teachers and school staff in conducting an intervention about future parenting
  • 2023
  • Ingår i: Cogent Education. - : Taylor & Francis. - 2331-186X. ; 10:1
  • Tidskriftsartikel (refereegranskat)abstract
    • Few studies have highlighted the perceptions of teachers and school staff carrying out an intervention about future parenthood at special upper secondary schools. The aim of the study was to explore the experiences of teachers and school staff when implementing an intervention using the Toolkit “Children—what does that involve?” and the Real-Care-Baby (RCB) simulator. Four focus groups interviews were conducted 2019–2020 with 16 teachers and school staff involved in the intervention for students with intellectual disabilities. The intervention consisted of 13 lessons during school hours and caring sessions with the RCB simulator which resembles a three-month-old baby. Supportive school principals and colleagues were a prerequisite to conduct the intervention. Participants extended their teaching role with a sense of social responsibility and created a deeper relationship with the students. Through the intervention, the students gained important insights about parenting. The study shows that implementing an intervention requiresa consensus-oriented organisation of education in collaboration with motivated colleagues and supportive parents. The teachers and school staff are well suited to provide adapted knowledge of future parenting and support the students to make informed choices about adult life and parenthood. 
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38.
  • Roshanai, Afsaneh, et al. (författare)
  • Time management skills in relation to general self-efficacy and parental sense of competence in individuals with and without cognitive disabilities
  • 2019
  • Ingår i: Cogent Psychology. - : Cogent OA. - 2331-1908. ; 6:1
  • Tidskriftsartikel (refereegranskat)abstract
    • Purpose: The aim of the study was to investigate to what extent time management skills are associated with general self-efficacy and parental sense of competence, and if there are any differences between individuals with and without cognitive disabilities in these aspects.Material and Methods: The study had a comparative cross-sectional design. Totally 86 individuals with cognitive disabilities (of whom 31 were parents), and 154 without disabilities (of whom 68 were parents) were included (N = 240). The Swedish versions of the Assessment of Time Management Skills (including time management, organisation & planning, and regulation of emotion subscales), General Self-Efficacy, and Parental Sense of Competence scale (including satisfaction, efficacy, and interest subscales) were used to collect data.Results: There were significant differences (p < .001) between individuals with and without cognitive disabilities in all three subscales of Assessment of Time Management Skills and in General Self-Efficacy. Overall, individuals with a cognitive disability scored lower than persons without cognitive disabilities. A significant difference was observed between parents in all three subscales of time management skills after controlling for age and education (p < .0005). Parents with cognitive disabilities, compared to parents without cognitive disability, scored significantly lower in all measured scales, except for the interest subscale. In parents with a cognitive disability, there was a significant correlation between all three subscales of Time Management Skills and satisfaction. Among parents without a cognitive disability there was a significant correlation between time management; and organisation & planning subscales; and efficacy, and between General Self-Efficacy and time management.Conclusions: Poor time management, planning and organisational skills, as well as a deficit in regulation of emotions may have a negative impact on general self-efficacy and parental sense of competence.
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39.
  • Roshanay, Afsaneh, et al. (författare)
  • The Psychometric Properties of the Original Version of Assessment of Time Management Skills (ATMS)
  • 2022
  • Ingår i: Occupational Therapy International. - : Wiley and Hindawi. - 0966-7903 .- 1557-0703. ; 2022
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: To perform daily activities, time management and organizational skills are essential and therefore also important intervention focus in occupational therapy. To guide and evaluate intervention, valid and reliable instruments that measure time management and organization skills are necessary. The aim of this study was to evaluate the psychometric properties of the Assessment of Time Management Skills (ATMS).Methods: Eligible participants were volunteer adults from the general population who were aged between 18 and 65 years, had a good understanding of English, and were not currently involved in any training or education to improve time management. The ATMS was filled out as a computer-administered survey. Rasch measurement analysis was used to evaluate the validity and aspects of reliability of the ATMS.Results: In total, 241 adults (112 male and 129 female, mean age = 40) participated. The analysis of principal components of residuals (PCA) and the item goodness-of-fit indicated that the 30-item scale does not measure only one single trait. Three subscales, time management (11 items), organization and planning (11 items), and regulation of emotion (5 items), were detected. One item each on the 11-item subscale showed misfit, but they were kept due to high relevance. All three subscales showed excellent results on analyses of PCA, local independence, and reliability.Conclusions and Relevance: ATMS can provide valid measures of time management, organization and planning skills, and regulation of emotion in a general population and presumably also in a population with cognitive impairment. The measure is useful for occupational therapists in assessing patients' strengths and barriers in time management skills. It can also be useful in identifying the necessity of training time management skills, to guide OT intervention programs and to evaluate interventions.What This Article Adds: Knowledge about the psychometric properties and usefulness of the ATMS in English-speaking countries.
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40.
  • Sköld, Annika, et al. (författare)
  • Self-rating of daily time management in children : psychometric properties of the Time-S
  • 2017
  • Ingår i: Scandinavian Journal of Occupational Therapy. - : TAYLOR & FRANCIS LTD. - 1103-8128 .- 1651-2014. ; 24:3, s. 178-186
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Impaired ability to manage time has been shown in several diagnoses common in childhood. Impaired ability involves activities and participation domain (daily time management, DTM) and body function and structure domain (time-processing ability, TPA). DTM needs to be evaluated from an individual's own perspective. To date, there has been a lack of self-rating instruments for children that focus on DTM.Aim: The aim of this study is to describe psychometric properties of Time-S when used in children aged 10-17 years with a diagnosis of ADHD, Autism, CP or mild ID. Further, to test whether TPA correlates with self-rated DTM.Material and methods: Eighty-three children aged 10-17 years participated in the study. Rasch analysis was used to assess psychometric properties. Correlation analysis was performed between Time-S and a measure of TPA.Results: The 21 items of the Time-S questionnaire fit into a unitary construct measuring self-perceived daily management of an individual's time. A non-significant, small correlation was found between TPA and DTM.Conclusion and significance: The results indicate good psychometric properties for the questionnaire. The questionnaire is potentially useful in intervention planning and evaluation.
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41.
  • Steel, Emily, et al. (författare)
  • Drafting standards on cognitive accessibility : a global collaboration
  • 2017
  • Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 1748-3107 .- 1748-3115. ; 12:4, s. 385-389
  • Tidskriftsartikel (refereegranskat)abstract
    • Purpose: The International Organization for Standardization (ISO) is working on accessibility of products to support people with cognitive impairment. Working Group 10, within the technical committee 173 (assistive products for persons with disability) was formed in 2014 to draft standards for assistive products that support people with cognitive impairment. Method: This article explains the scope and purpose of the working group and the context for its formation, and describes the plans and process for drafting and publishing new international standards. Results: The proposed suite of standards is presented, with examples from a draft standard on daily time management. It draws on international research evidence for the effectiveness of assistive products designed to support time management in people with cognitive impairment. Examples of assistive products and their key features are provided based on domains of time as defined in the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Conclusions: The proposed standards will provide design recommendations for features and functions that increase the accessibility of products used by people with cognitive impairment. They are intended to be used by designers, manufactures, educators and services providers, to facilitate their commitment to inclusion and demonstrate their willingness to work with accessibility regulation.
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42.
  • Wallin Ahlström, Sara, et al. (författare)
  • Feasibility of an intervention to facilitate time and everyday functioning in preschoolers
  • 2022
  • Ingår i: Scandinavian Journal of Occupational Therapy. - London : Taylor & Francis Group. - 1103-8128 .- 1651-2014. ; 29:4, s. 337-352
  • Tidskriftsartikel (refereegranskat)abstract
    • Background Children in need of special support (INS) often display delays in time-processing ability (TPA) affecting everyday functioning. Typically developing (TD) children are not yet mature to use the information of a clock.Aim To investigate the feasibility of an intervention program, MyTime, to facilitate TPA and everyday functioning in pre-school children, including the subjective experiences of pre-school staff and the children.Materials and Methods The intervention sample consisted of 20 children: 4 INS and 16 TD. Intervention was given daily in 8 weeks with MyTime in the pre-school environment. Data collection procedures were evaluated and children were assessed for TPA pre- and post intervention. Everyday functioning were assessed by teachers, parents and children. Experiences of the intervention were assessed by a group interview with teachers and a Talking Mats© evaluation with children.Results MyTime worked well in pre-school and indicated an increase in the children’s TPA and everyday functioning. The program was perceived simple to use by teachers and children highlighted the importance to understand the duration of time.Conclusion The program MyTime was found to be feasible in the pre-school environment. Significance: The assessment and program design can be used to investigate intervention effectiveness in a randomised study.
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43.
  • Wallin Ahlström, Sara, et al. (författare)
  • The experiences and the meaning of using MyTime in the preschool context from the perspective of children in need of special support, 5-6 years of age
  • 2023
  • Ingår i: Child Care Health and Development. - : Wiley-Blackwell. - 0305-1862 .- 1365-2214. ; 49:6, s. 1096-1103
  • Tidskriftsartikel (refereegranskat)abstract
    • BACKGROUND: Children in need of special support often display delays in time processing ability, affecting everyday functioning. MyTime is an intervention programme for systematic training of time processing ability. To support preschool children's development of time processing ability and everyday functioning, it is necessary to include their perspectives of the MyTime intervention programme. A previous study shows that MyTime is feasible with children in the preschool setting and shows positive effects on time processing ability for older children in special schools. Yet, there is a lack of knowledge regarding how preschool children experience the intervention programme and how they understand its meaning. The aim of this study was to explore the experiences and the meaning of using MyTime from the perspective of children with informal needs of special support (INS) 5-6 years of age in the preschool context.METHODS: To explore the children's perspectives, video-recorded interviews with 21 children were analysed hermeneutically. To facilitate the interview situation with the children in need of special support, the Talking Mats© was used. Both body and spoken languages were analysed.RESULTS: The results reveal children as active participants, willing to share their experiences of using the MyTime intervention in the preschool context. The conceptualization of the children's experiences and expressions uncovers their meaning of using the MyTime intervention as to know and to understand time by doing.CONCLUSIONS: When children are given the opportunity to use concrete tools to understand and measure time, they experience themselves as active participants involved and engaged in the intervention. They reveal meaningful experiences to be able to manage time that facilitate their everyday functioning and participation in the preschool context.
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44.
  • Wennberg, Birgitta, et al. (författare)
  • Effectiveness of time-related interventions in children with ADHD aged 9-15 years : a randomized contolled study
  • 2018
  • Ingår i: European Child and Adolescent Psychiatry. - : Springer. - 1018-8827 .- 1435-165X. ; 27:3, s. 329-342
  • Tidskriftsartikel (refereegranskat)abstract
    • Specific problems with time and timing that affect daily routines, homework, school work, and social relations have been recognized in children with ADHD. The primary treatments for children with ADHD do not specifically focus on time-related difficulties. The aim of this randomized controlled study (RCT) was to investigate how multimodal interventions, consisting of training in time-processing ability (TPA) and compensation with time-assistive devices (TAD), affect TPA and daily time management (DTM) in children with ADHD and time difficulties, compared with only educational intervention. Thirty-eight children on stable medication for ADHD in the 9–15-year age range were randomly allocated to an intervention or a control group. The children’s TPA was measured with a structured assessment (KaTid), and the children’s DTM was rated by a parent questionnaire (Time-Parent scale) and by children’s self-reporting (Time-Self-rating). The intervention consisted of time-skill training and compensation with TAD. Data were analysed for differences in TPA and in DTM between the control and intervention groups in the 24-week follow-up. Children in the intervention group increased their TPA significantly (p = 0.019) more compared to the control group. The largest increase was in orientation to time. In addition, the parents in the intervention group rated their children’s DTM as significantly (p = 0.01) improved compared with the parents in the control group. According to the children, their DTM was not significantly changed. In conclusion, a multimodal intervention consisting of time-skill training and TAD improved TPA and DTM in children with ADHD aged 9–15 years.
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45.
  • Wennberg, Birgitta, et al. (författare)
  • Kognitivt stöd i vardagen, kapitel 21
  • 2015
  • Ingår i: Arbetsterapi för barn och ungdomar. - Lund : Studentlitteratur AB. ; , s. 271-284
  • Bokkapitel (populärvet., debatt m.m.)
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46.
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47.
  • Wennberg, Birgitta, et al. (författare)
  • Occupational performance goals and outcomes of time-related interventions for children with ADHD
  • 2021
  • Ingår i: Scandinavian Journal of Occupational Therapy. - : Taylor & Francis. - 1103-8128 .- 1651-2014. ; 28:2, s. 158-170
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Children with attention deficit hyperactivity disorder (ADHD) have difficulties with occupational performance, related to difficulties with time-processing ability.Aims: To examine the outcome of a multimodal time-related intervention designed to support children aged 9–15 years with ADHD, to achieve their occupational performance goals and improve satisfaction with occupational performance. A further aim was to compare the children’s ratings of outcome with their parents’ ratings and to analyse the occupational performance goals.Material and Methods: A pre-post design was used. Participants were 27 children, aged 9–15 years. Children and parents rated occupational performance and satisfaction at baseline and follow-up, after 24 weeks, using the Canadian Occupational Performance Measure (COPM).The intervention consisted of time-skills training and time-assistive devices (TADs). Descriptive and non-parametric statistics were used.Results: Significant improvements were found in reported performance and satisfaction. Children’s were higher than those of their parents. Most goals were about carrying out dailyroutines, knowing the duration of an activity and knowing what will happen in the near future.Conclusion and significance: The study contributes to knowledge about suitable interventionsfor children with ADHD who have time-related difficulties. Occupational therapy interventions, including TADs
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48.
  • Widehammar, Cathrine, 1969-, et al. (författare)
  • The influence of environment : Experiences of users of myoelectric arm prosthesis—a qualitative study
  • 2018
  • Ingår i: Prosthetics and Orthotics International. - : Ovid Technologies (Wolters Kluwer Health). - 0309-3646 .- 1746-1553. ; 42:1, s. 28-36
  • Tidskriftsartikel (refereegranskat)abstract
    • Background:Prostheses are used to varying degrees; however, little is known about how environmental aspects influence this use.Objectives:To describe users’ experiences of how environmental factors influence their use of a myoelectric arm prosthesis.Study design:Qualitative and descriptive.Methods:A total of 13 patients previously provided with a myoelectric prosthetic hand participated. Their age, sex, deficiency level, etiology, current prosthesis use, and experience varied. Semi-structured interviews were audiotaped, transcribed, and analyzed through inductive content analysis.Results:Four categories were created from the data: “Prosthesis function,” “Other people’s attitudes,” “Support from family and healthcare,” and “Individual’s attitude and strategies.” The overarching theme, “Various degrees of embodiment lead to different experiences of environmental barriers and facilitators,” emerged from differences in individual responses depending on whether the individual was a daily or a non-daily prosthesis user. Environmental facilitators such as support from family and healthcare and good function and fit of the prosthesis seemed to help the embodiment of the prosthesis, leading to daily use. This embodiment seemed to reduce the influence of environmental barriers, for example, climate, attitudes, and technical shortcomings.Conclusion:Embodiment of prostheses seems to reduce the impact of environmental barriers. Support and training may facilitate the embodiment of myoelectric prosthesis use.Clinical relevanceFor successful prosthetic rehabilitation, environmental factors such as support and information to the patient and their social network about the benefits of prosthesis use are important. Local access to training in myoelectric control gives more people the opportunity to adapt to prosthesis use and experience less environmental barriers.
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49.
  • Wingren, Maria, 1976-, et al. (författare)
  • One-year follow-up after the time management group intervention Let's Get Organized
  • 2022
  • Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa Healthcare. - 1103-8128 .- 1651-2014. ; 29:4, s. 305-314
  • Tidskriftsartikel (refereegranskat)abstract
    • BACKGROUND: Time management skills are essential to maintain occupations in everyday life. People with neurodevelopmental or mental disorders often experience persistent difficulties with managing time and organizing daily life, consequently, there is a need to establish interventions with sustainable results.AIM: The aim was to perform a one-year post-intervention follow-up after the intervention Let's Get Organized (LGO-S) for people with neurodevelopmental or mental disorders.METHODS: The study is a one-year follow-up of a single group pre-test-post-test design. Thirty-eight persons with difficulties in time management due to neurodevelopmental or mental disorders participated. Instruments to collect data were Assessment of Time Management Skills; Weekly Calendar Planning Activity and the Satisfaction with Daily Occupations instrument. Wilcoxons's signed-rank test was used to compare data over time.RESULTS: There were no significant differences in the participants' outcomes between post-intervention and one-year follow-up in time management skills and regulation of emotions, satisfaction with daily occupations, and global satisfaction. A significant improvement could be seen in the subscale organization and planning at the one-year follow-up compared to post-intervention.CONCLUSIONS: Improvements in time management skills, organization, and planning, regulation of emotions, and satisfaction with daily occupations after the LGO-S can be maintained in the long term.
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