| 1. |
- Afonso-Argilés, F. Javier, et al.
(författare)
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Emergency department and hospital admissions among people with dementia living at home or in nursing homes : results of the European RightTimePlaceCare project on their frequency, associated factors and costs
- 2020
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Ingår i: BMC Geriatrics. - : Springer Science and Business Media LLC. - 1471-2318. ; 20:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: Evidence is lacking on the differences between hospitalisation of people with dementia living in nursing homes and those living in the community. The objectives of this study were: 1) to describe the frequency of hospital admission among people with dementia in eight European countries living in nursing homes or in the community, 2) to examine the factors associated with hospitalisation in each setting, and 3) to evaluate the costs associated with it. Methods: The present study is a secondary data analysis of the RightTimePlaceCare European project. A cross-sectional survey was conducted with data collected from people with dementia living at home or who had been admitted to a nursing home in the last 3 months, as well as from their caregivers. Data on hospital admissions at 3 months, cognitive and functional status, neuropsychiatric symptoms, comorbidity, polypharmacy, caregiver burden, nutritional status, and falls were assessed using validated instruments. Multivariate regression models were used to investigate the factors associated with hospital admission for each setting. Costs were estimated by multiplying quantities of resources used with the unit cost of each resource and inflated to the year 2019. Results: The study sample comprised 1700 people with dementia living in the community and nursing homes. Within 3 months, 13.8 and 18.5% of people living in nursing homes and home care, respectively, experienced ≥1 hospital admission. In the nursing home setting, only polypharmacy was associated with a higher chance of hospital admission, while in the home care setting, unintentional weight loss, polypharmacy, falls, and more severe caregiver burden were associated with hospital admission. Overall, the estimated average costs per person with dementia/year among participants living in a nursing home were lower than those receiving home care. Conclusion: Admission to hospital is frequent among people with dementia, especially among those living in the community, and seems to impose a remarkable economic burden. The identification and establishment of an individualised care plan for those people with dementia with polypharmacy in nursing homes, and those with involuntary weight loss, accidental falls, polypharmacy and higher caregiver burden in the home care setting, might help preventing unnecessary hospital admissions.
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| 2. |
- Axmon, Anna, et al.
(författare)
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Access to urban green spaces and use of social services and institutional long-term care among older people in Malmö, Sweden: a longitudinal register study
- 2024
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Ingår i: BMC Geriatrics. - 1471-2318. ; 24:1
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Finding ways to prolong independence in daily life among older people would be beneficial for both individuals and society. Urban green spaces have been found to improve health, but only a few studies have evaluated the association between urban green spaces and independence in daily life. The aim of this study was to assess the long-term effect of urban green spaces on independence in daily life, using social services and support, mobility aids, and relocation to institutional long-term care as proxies, among community dwelling people 65 + years.METHODS: We identified 40 357 people 65 + years living in the city of Malmö, Sweden in 2010. Using geographical information systems (GIS), we determined the amount of urban green spaces (total, public, and quiet) within 300 m of each person's residence. All three measures were categorized based on their respective percentiles, so that the first quartile represented the 25% with the least access and the fourth quartile the 25% with the most access. In 2015 and 2019, we assessed the outcomes minor assistance (non-personal support), major assistance (personal support), and relocation into institutional long-term care. These three outcome measures were used as proxies for independence in daily life. The effect of amount of urban green spaces in 2010 on the three outcomes in 2015 and 2019, respectively, was assessed by pairwise comparing the three highest quartiles to the lowest.RESULTS: Compared to the lowest quartile, those in the highest quartile of quiet green spaces in 2010 were less likely to receive minor assistance in both 2015 and 2019. Besides this, there were no indications that any of the measures of urban green space affected independence in daily life at the five- and nine-year follow-up, respectively.CONCLUSION: Although urban green spaces are known to have positive impact on health, physical activity, and social cohesion among older people, we found no effect of total, public, or quiet green spaces on independence in daily life. This could possibly be a result of the choice of measures of urban green spaces, including spatial and temporal aspects, an inability to capture important qualitative aspects of the green spaces, or the proxy measures used to assess independence in daily life.
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| 3. |
- Bremer, Patrick, et al.
(författare)
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Informal dementia care: Consequences for caregivers' health and health care use in 8 European countries.
- 2015
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Ingår i: Health Policy. - : Elsevier BV. - 1872-6054 .- 0168-8510. ; 119:11, s. 1459-1471
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Tidskriftsartikel (refereegranskat)abstract
- Informal (dementia) care has economic consequences throughout the health care system. Whilst the health and wellbeing of the care recipient might improve, the health of the caregiver might also change, typically for the worse. Therefore, this analysis aims to examine the association between caregiving intensity and caregivers' health and health care utilization.
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| 4. |
- Brossard Saxell, Tessa, et al.
(författare)
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Facilitators for person-centred care of inpatients with dementia: A meta-synthesis of registered nurses experiences
- 2021
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Ingår i: Dementia. - : SAGE Publications. - 1741-2684 .- 1471-3012. ; 20:1, s. 188-212
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Tidskriftsartikel (refereegranskat)abstract
- Person-centred care is widely advocated when caring for people with dementia. When a person with dementia is admitted for hospital care, hospital wards are obliged to not only address the cause for admission but also provide dementia-specific care during the hospital stay. Research has shown that the delivery of person-centred care to people with dementia is often inadequate or absent in the hospital setting. Moreover, whilst registered nurses often wish to improve the in-hospital care of patients with dementia, there is evidence of experienced barriers. This study aimed to describe registered nurses’ experiences of facilitators for the delivery of person-centred care to inpatients with dementia. By way of systematic searches in the databases PubMed, CINAHL and PsycINFO, qualitative studies (n = 19) reporting registered nurses experience of caring for inpatients with dementia were identified. Relevant content was analysed using a method of thematic synthesis. Three main categories and nine subcategories were presented, internal facilitators (experience and knowledge; values and beliefs; professional identity; empathy), external facilitators (physical environment; organisational culture and structure) and facilitating actions (forming a holistic picture; establishing trust; adjusting routines and interventions). While facilitators did exist in the hospital setting, the findings indicate that care received by inpatients with dementia is dependent on individual registered nurses knowledge, personal aptitude and ability to compensate for structural flaws. In order to minimise arbitrary outcomes of care for patients with dementia, consistent organisational support in the form of educational interventions and allocation of resources is crucial.
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| 5. |
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| 6. |
- Chiatti, Carlos, et al.
(författare)
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Utilization of Formal and Informal Care by Community-Living People with Dementia : A Comparative Study between Sweden and Italy
- 2018
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Ingår i: International Journal of Environmental Research and Public Health. - : MDPI AG. - 1660-4601. ; 15:12
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Tidskriftsartikel (refereegranskat)abstract
- Background: Dementia is a public health priority with a dramatic social and economic impact on people with dementia (PwD), their caregivers and societies. The aim of this study was to contribute to the knowledge on how utilization of formal and informal care varies between Sweden and Italy. Methods: Data were retrieved from two trials: TECH@HOME (Sweden) and UP-TECH (Italy). The sample consisted of 89 Swedish and 317 Italian dyads (PwD and caregivers). Using bivariate analysis, we compared demographic characteristics and informal resource utilization. Multiple linear regression was performed to analyze factors associated with time spent on care by the informal caregivers. Results: Swedish participants utilized more frequently health care and social services. Informal caregivers in Italy spent more time in caregiving than the Swedish ones (6.3 and 3.7 h per day, respectively). Factors associated with an increased time were country of origin, PwD level of dependency, living situation, use of formal care services and occupation. Conclusions: Care and service utilization significantly varies between Sweden and Italy. The level of formal care support received by the caregivers has a significant impact on time spent on informal care. Knowledge on the factors triggering formal care resources utilization by PwD and their caregivers might further support care services planning and delivery across different countries.
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| 7. |
- Dedzoe, Justice Dey-Seshie, et al.
(författare)
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Collaborative Learning through a Virtual Community of Practice in Dementia Care Support : A Scoping Review
- 2023
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Ingår i: Healthcare. - : MDPI. - 2227-9032. ; 11:5, s. 692-692
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Forskningsöversikt (refereegranskat)abstract
- The aim of this scoping review was to identify, synthesize, and report research on reflective collaborative learning through virtual communities of practice (vCoP), which, to our knowledge, is scarce. A second aim was to identify, synthesize, and report research on the facilitators and barriers associated with resilience capacity and knowledge acquisition through vCoP. The literature was searched in PsycINFO, CINAHL, Medline, EMBASE, Scopus, and Web of Science. The Preferred Reporting Items for Systematic Reviews (PRISMA) and Meta-Analyses for Scoping Reviews (ScR) framework guided the review. Ten studies were included in the review, seven quantitative and three qualitative studies, written in English and published from January 2017 to February 2022. The data were synthesized using a numerical descriptive summary and qualitative thematic analysis. Two themes: ‘knowledge acquisition’ and ‘strengthening resilience capacity’ emerged. The literature synthesis provides evidence of a vCoP as a digital space that supports knowledge acquisition and strengthens resilience for persons with dementia, and their informal and formal caregivers. Hence, the use of vCoP seems to be useful for dementia care support. Further studies including less developed countries are, however, needed to enable generalizability of the concept of vCoP across countries.
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| 8. |
- Fänge, Agneta Malmgren, et al.
(författare)
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Care Home and Home Care Staff’s Learning during the COVID-19 Pandemic and Beliefs about Subsequent Changes in the Future : A Survey Study in Sweden, Italy, Germany and the United Kingdom
- 2022
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Ingår i: Healthcare. - Basel : MDPI. - 2227-9032. ; 10:2, s. 1-13
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to compare perceptions of learning from the COVID-19 pandemic and beliefs in subsequent changes for the future, among care home and home care staff, in four European countries. A 29-item on-line questionnaire was designed in English and later translated into Swedish, Italian, and German on the impact of the pandemic on stress and anxiety. Anonymous data from care staff respondents was collected in four countries between 07.10.2020 and the 17.12.2020: Sweden (n = 212), Italy (n = 103), Germany (n = 120), and the United Kingdom (n = 167). While care staff in all countries reported learning in multiple areas of care practice, Italy reported the highest levels of learning and the most agreement that changes will occur in the future due to the pandemic. Conversely, care staff in Germany reported low levels of learning and reported the least agreement for change in the future. While the pandemic has strained care home and home care staff practices, our study indicates that much learning of new skills and knowledge has taken place within the workforce. Our study has demonstrated the potential of cross-border collaborations and experiences for enhancing knowledge acquisition in relation to societal challenges and needs. The results could be built upon to improve future health care and care service practices.
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| 9. |
- Hallberg, Ingalill R, et al.
(författare)
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Structure of long term home and institutional care systems in Europe
- 2011
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- The aim of this part of the RightTimePlaceCare study (WP2) was to describe and analyse the European health, social care and welfare systems, advocacy and informal caregiver support systems for patients with dementia. The description and analyses covers the continuum of care from diagnosis, informal care, contributions from civic society, public home care and the intermediate forms of care, to the long-term institutionalised care, and end of life care. In a first step, the terminology was developed and meanings of different terms used in relation to dementia care were collected, analysed, defined and categorised. Thereafter the terminology was used to develop a template organised on the Y-axis as being the course of the dementia disease as described by the OECD in 2004, and on the X-axis as being the type of care provided, organised in accordance with the process of the disease from dementia screening to end of life care. In addition each country was asked to provide an overall description of the care system they offered with regard to the national directives and financing of their dementia care system. The primary source of information was written reports from different sources. Official documents, epidemiological studies and descriptions of the care system, in particular dementia care system offered in their country. In addition interviews with responsible managers, providers or the equivalent in relevant care and service organisations, with persons in consumer/user organisations, with staff, professional employees and purchasers in a municipality or another representative for a civic administrative area were recommended.
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| 10. |
- Holmstrand, Cecilia, et al.
(författare)
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Associated factors of suicidal ideation among older persons with dementia living at home in eight European countries
- 2021
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Ingår i: Aging & Mental Health. - : Informa UK Limited. - 1364-6915 .- 1360-7863. ; 25:9, s. 1730-1739
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Tidskriftsartikel (refereegranskat)abstract
- Objectives: This study aimed to investigate the occurrence of suicidal ideation and associated factors in older persons with dementia living at home in eight European countries, and its association with quality of life. Furthermore, changes in suicidal ideation over time were investigated. Methods: This cohort study (n = 1,223) was part of the European “RightTimePlaceCare” project conducted in 2010–2013. Participating countries were Estonia, Finland, France, Germany, the Netherlands, Spain, Sweden and the United Kingdom. Baseline and follow-up data were analysed using bivariate and multivariate logistic regression. Results: The occurrence of suicidal ideation in the participating countries varied between 6% and 24%. Factors significantly (p < 0.0018) associated with suicidal ideation using bivariate analysis were: nationality, depressive symptoms, delusions, hallucinations, agitation, anxiety, apathy, disinhibition, irritability, night-time behaviour disturbances, anxiolytics and anti-dementia medication. In the multivariate regression analysis, country of origin, moderate stage of the dementia, depressive and delusional symptoms, and anti-dementia medication were significantly associated with suicidal ideation (p < 0.05). Over time, suicidal ideation decreased from severe to mild or became absent in 54% of the persons with dementia. Conclusion: It is essential that professionals identify older persons with dementia and suicidal ideation and depressive and other psychological symptoms in order to give them appropriate treatment and provide relief for their informal caregivers. We emphasize the importance of identifying suicidal ideation, irrespective of depressive symptoms, and specifically of paying attention to persons with moderate dementia. Living with the informal caregiver seems to be associated with staying stable without suicidal ideation.
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| 11. |
- Karlsson, Staffan, 1959-, et al.
(författare)
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Institutional care for older people with dementia in an European perspective
- 2013
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Ingår i: The Journal of Nutrition, Health & Aging. - Heidelberg : Springer. - 1279-7707 .- 1760-4788. ; 17:Suppl. 1, s. S419-S419
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Tidskriftsartikel (refereegranskat)abstract
- Introduction: Cognitive impairment has been found to be a main predictor for institutionalization. Various types of institutional care are available for persons with dementia, but knowledge is sparse about how the institution should be designed and scaled, and if it should be specialised in dementia or mixed with other older people. To explore various types of institutional care for older people with dementia in eight European countries.Method: Estonia, Finland, France, Germany, Netherlands, Spain, Sweden and UK were included in the study. A template was developed for collecting data among other areas also about various institutional care. Terminology was reviewed by experts and agreed between the countries. The template covers 50 types of care provided in relation to the dementia trajectory, from diagnosis to end of life stage. Questions about various types of institutional care were analysed. Each question covered estimation of availability, utilization and professionals involved.Results: In the description of the care system, preliminary results showed that residential home or nursing home not specifically organised for persons with dementia was the most common institution through all stages. Institutions more specialised in dementia care was less common and mostly available for those in moderate to end of life stage. The professionals were more educated in dementia in the specialised institutions compared to non specialised institutions.Conclusion: For people with dementia disease, institutions not specific for those with dementia were common in all eight countries, while institutions more specialised were available for few. On the behalf of RightTimePlaceCare consortium. http://www.righttimeplacecare.eu
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| 12. |
- Lethin, Connie, et al.
(författare)
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Demensvård i primärvården
- 2013
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Ingår i: Omvårdnad i primärvården. - 9789144076881 ; 1, s. 243-256
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Bokkapitel (populärvet., debatt m.m.)abstract
- Demens är den fjärde största folksjukdomen i Sverige och cirka 148 000 människor har någon form av demenssjukdom. Med stigande ålder hos befolkningen ökar antalet stadigt och varje år insjuknar cirka 25 000 personer. Alzheimers sjukdom och vaskulär demens samt blandformer av dessa är de vanligaste demensdiagnoserna och de utgör tillsammans 50–75 procent av all demenssjukdom. Personer med demenssjukdom möter vi överallt i vårt samhälle och framför allt inom hälso- och sjukvården. Personer med minnesproblem kan i flera år ha haft en odiagnostiserad demenssjukdom eller varit ofullständigt utredda och söker ofta primärvården på grund av andra åkommor. Hos yngre personer med demens misstas ibland symtomen för tillstånd som depression och utmattningsdepression. Tidig utredning och diagnos av demenssjukdom bör oftast utföras i primärvården och i särskilda fall inom specialistsjukvården. Detta skulle underlätta personcentrerad omvårdnad genom vårdkedjan för patienten och för de närstående. Detta kapitel beskriver basal demensutredning, utvidgad demensutredning, demenssjuksköterskan i primärvården, personcentrerad omvårdnad, samt närstående som informella vårdare. Det behandlar även övergrepp och våld mot äldre.
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| 13. |
- Lethin, Connie, et al.
(författare)
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Dementia care and service systems - a mapping system tested in nine Swedish municipalities
- 2018
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Ingår i: BMC Health Services Research. - : BioMed Central. - 1472-6963. ; 18
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundIn dementia care, it is crucial that the chain of care is adapted to the needs of people with dementia and their informal caregivers throughout the course of the disease. Assessing the existing dementia care system with regard to facilities, availability and utilization may provide useful information for ensuring that the professional dementia care and service system meets the needs of patients and their families from disease onset to end of life.MethodsThe aim of this study was to further develop and test a mapping system, and adapt it to a local context. In addition, the aim was to assess availability and utilization of care activities as well as professional providers' educational level in nine municipalities under the categories of Screening, the diagnostic procedures, and treatment; Outpatient care facilities; Institutional care and Palliative care. This cross-sectional study was conducted in April through May 2015. Data was derived from the health care and social service systems in nine rural and urban municipalities in two counties in Sweden. The mapping system covered seven categories with altogether 56 types of health care and social service activities.ResultsThe mapping system was found to be reliable with minor adaptations to the context mainly in terms of activities. Availability of care activities was common with low utilization regarding Screening, the diagnostic procedures, and treatment; Outpatient care facilities; Institutional care and Palliative care and dementia trained staff was rare. Availability and utilization of care activities and professionals' educational level was higher concerning screening, the diagnostic procedures and treatment compared with outpatient care facilities, institutional care and palliative care.ConclusionsThe mapping system enables policy makers and professionals to assess and develop health care and social service systems, to be offered proactively and on equal terms to people with dementia and their informal caregivers throughout the course of the disease. The educational level of professionals providing care and services may reveal where, in the chain of care, dementia-specific education for professionals, needs to be developed.
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| 14. |
- Lethin, Connie, et al.
(författare)
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Dementia care and service systems - A mapping system tested in nine Swedish municipalities 11 Medical and Health Sciences 1117 Public Health and Health Services
- 2018
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Ingår i: BMC Health Services Research. - : Springer Science and Business Media LLC. - 1472-6963. ; 18:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: In dementia care, it is crucial that the chain of care is adapted to the needs of people with dementia and their informal caregivers throughout the course of the disease. Assessing the existing dementia care system with regard to facilities, availability and utilization may provide useful information for ensuring that the professional dementia care and service system meets the needs of patients and their families from disease onset to end of life. Methods: The aim of this study was to further develop and test a mapping system, and adapt it to a local context. In addition, the aim was to assess availability and utilization of care activities as well as professional providers' educational level in nine municipalities under the categories of Screening, the diagnostic procedures, and treatment; Outpatient care facilities; Institutional care and Palliative care. This cross-sectional study was conducted in April through May 2015. Data was derived from the health care and social service systems in nine rural and urban municipalities in two counties in Sweden. The mapping system covered seven categories with altogether 56 types of health care and social service activities. Results: The mapping system was found to be reliable with minor adaptations to the context mainly in terms of activities. Availability of care activities was common with low utilization regarding Screening, the diagnostic procedures, and treatment; Outpatient care facilities; Institutional care and Palliative care and dementia trained staff was rare. Availability and utilization of care activities and professionals' educational level was higher concerning screening, the diagnostic procedures and treatment compared with outpatient care facilities, institutional care and palliative care. Conclusions: The mapping system enables policy makers and professionals to assess and develop health care and social service systems, to be offered proactively and on equal terms to people with dementia and their informal caregivers throughout the course of the disease. The educational level of professionals providing care and services may reveal where, in the chain of care, dementia-specific education for professionals, needs to be developed.
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| 15. |
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| 16. |
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| 17. |
- Lethin, Connie, et al.
(författare)
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Family caregivers experiences of formal care when caring for older persons with dementia through the stages of the disease
- 2013
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Ingår i: Abstract book. ; , s. 94-94
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Konferensbidrag (refereegranskat)abstract
- Aim: The aim of this study was to investigate family caregivers’ experiences of formal care when caring for an older person with dementia through the stages of the disease to be able to improve formal care and develop best practice.Method: A qualitative approach with focus groups interviews was chosen. The participants were family caregivers caring for older persons with dementia at home or in a nursing home. A total of 23 spouses and children took part in the study. An interview guide was used and contained questions about experiences of collaboration, communication and information with formal care. The family caregivers were also asked about improvement of formal care. The transcribed verbatim was analysed using content analysis to find the underlying meaning.Results: The result showed various themes describing family caregivers’ experiences of formal care when caring for an older person with dementia through the stages of the disease. The themes were predominating in one stage of the disease, but aroused in addition to a lower extent in other stages. “Being in an unexpected life situation with changes in roles” reflected the early stage of the disease describing the transition from being a relative to becoming a caregiver. Participants expressed that information from health care and getting knowledge was important. “Getting care resources or finding your own way” reflected the intermediate stage of the disease and the need of resources to be able to keep on caring at home. Participants experienced that collaboration and communication with municipal and health care was essential. “Being secure with formal care or struggling for security” reflected the last stage of the disease and family caregivers relation to formal care usually in a nursing home. Participants expressed that communication was important and to some degree also collaboration.Conclusion: Family caregiver´s had various experiences of formal care. From family caregivers view, formal care seems to be either supporting or troublesome when providing care to a person with dementia through the stages of the disease. On the behalf of RightTimePlaceCare consortium. http://www.righttimeplacecare.eu
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| 18. |
- Lethin, Connie, et al.
(författare)
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Family caregivers experiences of formal care when caring for persons with dementia through the process of the disease
- 2016
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 30:3, s. 526-534
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Family caregivers' experiences of formal care when caring for persons with dementia through the process of the disease is sparsely investigated.AIMS: To investigate family caregivers' experiences of formal care when caring for a person with dementia, through the stages of the disease.DESIGN: A qualitative approach with focus group interviews.METHODS: Four focus group interviews were conducted in October 2011 with 23 spouses and adult children of persons with dementia and analysed with content analysis.RESULTS: The participants' experiences of formal care when caring for a person with dementia were captured in the theme 'Family caregiving requires collaboration with formal care to get support adjusted to needs specific to the stages of dementia'. This can be broken down into the categories 'The dementia diagnosis - entry into formal care as a novice family caregiver', 'Needing expanded collaboration with formal care to continue care at home' and 'Being dependent on a nursing home and trying to maintain involvement'.CONCLUSION: Family caregiving requires collaboration with formal care to get support adjusted to the individual's needs, specific to the stages of dementia. Caregivers experience a transition process with three main turning points: the dementia diagnosis; when they realise increased need for formal care to continue caring at home; and when the person with dementia is moved into a nursing home. The interviewed caregivers experience formal care reactive to their needs and this often promoted unhealthy transitions. Formal care needs to be proactive and deliver available care and support early on in the dementia trajectory. Interventions should focus on facilitating a healthy transition for family caregivers through the trajectory of the dementia disease to ensure their well-being.
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| 19. |
- Lethin, Connie, et al.
(författare)
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Family caregivers experiences of formal care when caring for persons with dementia through the stages of the disease
- 2016
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Ingår i: Scandinavian Journal of Caring Sciences. - Chichester : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 30:3, s. 526-534
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Family caregivers' experiences of formal care when caring for persons with dementia through the process of the disease is sparsely investigated.AIMS: To investigate family caregivers' experiences of formal care when caring for a person with dementia, through the stages of the disease.DESIGN: A qualitative approach with focus group interviews.METHODS: Four focus group interviews were conducted in October 2011 with 23 spouses and adult children of persons with dementia and analysed with content analysis.RESULTS: The participants' experiences of formal care when caring for a person with dementia were captured in the theme 'Familycaregiving requires collaboration with formal care to get support adjusted to needs specific to the stages of dementia'. This can be broken down into the categories 'The dementia diagnosis - entry into formal care as a novice family caregiver', 'Needing expanded collaboration with formal care to continue care at home' and 'Being dependent on a nursing home and trying to maintain involvement'.CONCLUSION: Family caregiving requires collaboration with formal care to get support adjusted to the individual's needs, specific to the stages of dementia. Caregivers experience a transition process with three main turning points: the dementia diagnosis; when they realise increased need for formal care to continue caring at home; and when the person with dementia is moved into a nursing home. The interviewed caregivers experience formal care reactive to their needs and this often promoted unhealthy transitions. Formal careneeds to be proactive and deliver available care and support early on in the dementia trajectory. Interventions should focus on facilitating a healthy transition for family caregivers through the trajectory of the dementia disease to ensure their well-being. © 2015 Nordic College of Caring Science.
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| 20. |
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| 21. |
- Lethin, Connie, et al.
(författare)
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Formal support for informal caregivers to older persons with dementia through the course of the disease: an exploratory, cross-sectional study
- 2016
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Ingår i: BMC Geriatrics. - London : Springer Science and Business Media LLC. - 1471-2318. ; 16:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: In European countries, knowledge about availability and utilization of support for informal caregivers caring for older persons (>= 65 years) with dementia (PwD) is lacking. To be able to evaluate and develop the dementia support system for informal caregivers to PwD, a survey of European support systems and professionals involved is needed. The aim of this study was to explore support for informal caregivers to PwD in European countries. We investigated the availability and utilization of support in each of the participating countries, and the professional care providers involved, through the dementia disease. Methods: A mapping system was used in 2010-2011 to gather information about estimations of availability, utilization, and professional providers of support to informal caregivers caring for PwD. Data collected was representing each country as a whole. Results: There was high availability of counselling, caregiver support, and education from the diagnosis to the intermediate stage, with a decrease in the late to end of life stage. Utilization was low, although there was a small increase in the intermediate stage. Day care and respite care were highly available in the diagnosis to the intermediate stage, with a decrease in the late to end of life stage, but both types of care were utilized by few or no caregivers through any of the disease stages. Professionals specialized in dementia (Bachelor to Master's degree) provided counselling and education, whereas caregiver support for informal caregivers and day care, respite care, and respite care at home were provided by professionals with education ranging from upper secondary schooling to a Master's degree. Conclusions: Counselling, caregiver support, and education were highly available in European countries from diagnosis to the intermediate stage of the dementia disease, decreasing in the late/end of life stages but were rarely utilized. Countries with care systems based on national guidelines for dementia care seem to be more aware of the importance of professionals specialized in dementia care when providing support to informal caregivers. Mapping the systems of support for informal caregivers of PwD is a valuable tool for evaluating existing systems, internationally, nationally and locally for policy making.
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| 22. |
- Lethin, Connie, et al.
(författare)
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Formal support for informal caregivers to persons with dementia through the trajectory of the disease in eight European countries
- 2015
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Ingår i: Abstract Booklet. ; , s. 237-237
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Konferensbidrag (refereegranskat)abstract
- Objectives: In European countries knowledge about availability and utilisation of support for informal caregivers caring for older person with dementia (PwD) is lacking. To be able to evaluate and develop the dementia support system forinformal caregivers to a PwD, a survey of European support systems and professional providers could serve as a knowledge base and enable European countries to learn from each other.The aim was to explore support for informal caregivers to PwD in terms of availability and utilisation, and to explore professional care providers and their educational levels involved in the support for informal caregivers to PwD through the trajectory of disease across eight European countries.Methods: A mapping system aiming to explore care and service for PwD and informal caregivers in eight European countries was used (Hallberg et al., 2013) to gather information about availability, utilisation and providers of support to informal caregivers caring for PwD.Results: Counselling, caregiver support and education where the support activities that had high availability in the diagnose stage to the intermediate stage with a decrease in late to end of life stage. Utilization was low with a small increase in the intermediate stage. Day care and respite care at home had high availability in the diagnose stage to the intermediate stage with a decrease in the late to end of life stage, utilized by no one or few through all stages. Professionals specialised in dementia (Bachelor to Master degree) provided counselling, education while caregiver support for informal caregivers and day care, respite care and respite care at home as relief for informal caregivers was provided by professionals from upper secondary school to a master degree.Conclusion: Availability and utilisation of support for informal caregivers appears to be related to each countries care and support systems. Countries with National guidelines for PwD and informal caregivers seemed to be more aware about the importance of professionals specialised in dementia in the support.
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| 23. |
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| 24. |
- Lethin, Connie
(författare)
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Informal caregivers of older persons with dementia in eight European countries. Experiences, support, well-being and burden.
- 2016
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The overall aim was to investigate informal caregivers providing care for older persons with dementia (≥ 65 years of age) in eight European countries. Focus was on their experiences of formal care, access to support and factors that were associated with caregivers’ psychological well-being and burden. Caregivers’ experiences of formal care were investigated in a qualitative study with four focus groups interviews with 23 caregivers of older person with dementia living at home or in a nursing home in Sweden (Study I). The interviews were analysed with content analysis. The result of the caregivers’ experiences of formal care when caring for a person with dementia was captured in the theme ‘Family caregiving requires collaboration with formal care to get support adjusted to needs specific to the stages of dementia’. Access, i.e. availability and utilization of support including providers of the support was a quantitative, cross-sectional study conducted in eight European countries (Study II). A mapping system was used to estimate availability, utilization, and professional providers of support to caregivers caring for a person with dementia. Data was collected for each country nationally. The findings showed that counselling, caregiver support, and education were highly available in six of the participating European countries but were rarely utilized. Countries with national guidelines for dementia care seemed to be more aware of the importance of professionals specialized in dementia. In Study III and IV, factors associated with caregiver well-being and burden was investigated, prospectively with 1223 caregivers, caring for an older person with dementia living at home. The caregivers were interviewed based on questionnaires, at baseline and follow-up after three months. Logistic regression analysis was performed of factors associated with caregivers’ psychological well-being and burden at baseline and 3 months later. Factors associated with presence of psychological well-being and burden and over time were the caregivers’ experience of caregiving, the quality of care and amount of caregiving for the person with dementia.This thesis emphasize that formal care needs to be proactive and deliver available care and support early in the course of the dementia disease. Mapping the health care and social service systems is a valuable tool for evaluating existing systems, internationally, nationally and locally for policy making. Professionals should be aware about factors associated with caregivers’ well-being and burden to provide proper care and support and promote a healthy transition in the caregiving role and through the course of the dementia disease.
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| 25. |
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| 26. |
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| 27. |
- Lethin, Connie, et al.
(författare)
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Informal caregivers view of collaboration, communication and information to a person with dementia in sweden
- 2012
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Ingår i: 21st Nordic Congress of Gerontology : Dilemmas in Ageing Societies. ; , s. 191-191
-
Konferensbidrag (refereegranskat)abstract
- Background: People with dementia are often cared for by informal caregivers combined with formal care. Informal caregiver’s experiences of formal care through the trajectory of dementia are important for understanding how formal care is working and how the care can be developed.Objectives: To explore informal caregiver’s view of collabora - tion, communication and information with formal care when providing care to a person with dementia in the trajectory from diagnosis to end of life in a Swedish context.Method: Four focus groups interviews were provided with informal caregivers and persons with dementia. An interview guide was used, for discussing how communication with formal care works, the characteristics when it is working well and less well, how informal caregivers wish interaction with formal care should work and suggestions for improvement. The transcribed verbatim was analysed using latent content analysis.Results: Preliminary results showed that the participants had different experience, good or bad, from both caring for a relative in the home and caring for a relative in a nursing home. The themes appearing after analyse were: for participants contextual situation “An unwanted lifestyle with changes in roles”, for participant’s description of collaboration with professionals “Getting resources or finding your own way.” and participant’s description of the information and communication was “Either safe or struggling”.Conclusion: For informal caregivers to feel safe with care and service for the person with dementia the information is needed to be individualised and personalised through the entire trajectory.
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| 28. |
- Lethin, Connie, et al.
(författare)
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Organizational Support Experiences of Care Home and Home Care Staff in Sweden, Italy, Germany and the United Kingdom during the COVID-19 Pandemic
- 2021
-
Ingår i: Healthcare. - Basel : MDPI. - 2227-9032. ; 9:6, s. 2-16
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Tidskriftsartikel (refereegranskat)abstract
- The COVID-19 pandemic has affected care workers all over the globe, as older and more vulnerable people face a high risk of developing severe symptoms and dying from the virus infection. The aim of this study was to compare staff experiences of stress and anxiety as well as internal and external organizational support in Sweden, Italy, Germany, and the United Kingdom (UK) in order to determine how care staff were affected by the pandemic. A 29-item online questionnaire was used to collect data from care staff respondents: management (n = 136), nurses (n = 132), nursing assistants (n = 195), and other healthcare staff working in these organizations (n = 132). Stress and anxiety levels were highest in the UK and Germany, with Swedish staff showing the least stress. Internal and external support only partially explain the outcomes. Striking discrepancies between different staff groups’ assessment of organizational support as well as a lack of staff voice in the UK and Germany could be key factors in understanding staff’s stress levels during the pandemic. Structural, political, cultural, and economic factors play a significant role, not only factors within the care organization or in the immediate context.
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| 29. |
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| 30. |
- Lethin, Connie, et al.
(författare)
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Persons with Dementia Living at Home or in Nursing Homes in Nine Swedish Urban or Rural Municipalities
- 2019
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Ingår i: Healthcare. - : MDPI. - 2227-9032. ; 7:2, s. 1-13
-
Tidskriftsartikel (refereegranskat)abstract
- The methodology from the RightTimePlaceCare study of dementia care was tested locally in terms of relevance, acceptability and attrition. Comparing persons with dementia (PwDs) receiving home care (HC) with PwDs living in nursing homes (NHs), in urban versus rural areas, regarding their health conditions and informal caregiver burden was also done. Standardized measurements regarding sociodemographic, and physical and mental health was used. Questions related to legal guardianship were added. Interviews were conducted with PwDs and their caregivers in HC (n = 88) and in NHs (n = 58). Bivariate and multivariate logistic regression analysis was used. The attrition rate was higher in HC. In the bivariate regression model, for HC and NH, living at home was significantly associated with more severe neuropsychiatric symptoms (p <= 0.001) and being cared by a spouse (p = 0.008). In NH, the informal caregivers were significantly younger (p = 0.003) and living in rural areas (p = 0.007) and more often in paid work (p <= 0.001). In the multivariate regression model, informal caregivers were significantly younger (p = 0.007) when caring for a PwD in an NH and caregiver burden was significantly higher in HC and in urban areas (p = 0.043). Legal guardianship was very low. Professionals should acknowledge that PwDs in HC have more behavioural problems and caregivers in urban areas report higher caregiver burden.
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| 31. |
- Lethin, Connie, et al.
(författare)
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Predicting caregiver burden in informal caregivers caring for persons with dementia living at home – A follow-up cohort study
- 2020
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Ingår i: Dementia. - London : Sage Publications. - 1471-3012 .- 1741-2684. ; 9:3, s. 640-660
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Tidskriftsartikel (refereegranskat)abstract
- Longitudinal studies of caregiver burden when caring for persons with dementia living at home are sparse. The aim of the study was to identify factors associated with caregiver burden and predicting increased burden related to caregivers, persons with dementia and formal care. Data were collected through interviews with 1223 caregivers in eight European countries. Bivariate and multivariate regression analyses were performed. Factors associated with caregiver burden included extensive informal care provision, decreased well-being and reduced quality of life for the caregiver and reduced cognition, decreased quality of life, severe neuropsychiatric symptoms and depression in the person with dementia and caregivers’ negative experience of quality of care. Factors predicting an increased burden were diminished caregiver well-being, severe neuropsychiatric symptoms of the person with dementia and caregivers’ negative perception of quality of care. The knowledge gained in this study may be useful in developing more adequate service systems and interventions to improve dementia care. © 2018, The Author(s) 2018.
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| 32. |
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| 33. |
- Lethin, Connie, et al.
(författare)
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Prevalence of dementia diagnosis not otherwise specified in eight European countries A cross-sectional cohort study
- 2019
-
Ingår i: BMC Geriatrics. - : Springer Science and Business Media LLC. - 1471-2318. ; 19:1
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundDementia is a syndrome, with a wide range of symptoms. It is important to have a timely diagnosis during the disease course to reduce the risk of medication errors, enable future care planning for the patient and their relatives thereby optimizing quality of life (QoL). For this reason, it is important to avoid a diagnosis of dementia not otherwise specified (DNOS) and instead obtain a diagnosis that reflects the underlying pathology. The aim of this study was to investigate the prevalence and associated factors of DNOS in persons with dementia living at home or in a nursing home.MethodsThis is a cross-sectional cohort study performed in eight European countries. Persons with dementia aged ≥65 years living at home (n = 1223) or in a nursing home (n = 790) were included. Data were collected through personal interviews with questionnaires based on standardised instruments. Specific factors investigated were sociodemographic factors, cognitive function, and mental health, physical health, QoL, resource utilization and medication. Bivariate and backward stepwise multivariate regression analyses were performed.ResultsThe prevalence of DNOS in the eight participating European countries was 16% (range 1–30%) in persons living at home and 21% (range 1–43%) in persons living in a nursing home. These people are more often older compared to those with a specific dementia diagnosis. In both persons living at home and persons living in a nursing home, DNOS was associated with more severe neuropsychiatric symptoms and less use of anti-dementia medication. In addition, persons with DNOS living at home had more symptoms of depression and less use of antidepressant medication.ConclusionsThe prevalence of DNOS diagnosis is common and seems to vary between European countries. People with DNOS are more often older with more severe neuropsychiatric symptoms and receive fewer anti-dementia medication, anxiolytics and antidepressants. This would support the suggestion that a proper and specific diagnosis of dementia could help the management of their disease.
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| 34. |
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| 35. |
- Lethin, Connie, et al.
(författare)
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Psychological well-being over time among informal caregivers caring for persons with dementia living at home
- 2017
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Ingår i: Innovation in Aging. - Oxford : Oxford University Press. - 2399-5300. ; 1, s. 1381-1381
-
Tidskriftsartikel (refereegranskat)abstract
- This study investigated informal caregivers’ psychologi- cal well-being and predicted increase in psychological well- being, when caring for persons with dementia (PwDs) living at home, related to caregiver, PwD and formal care (FC) factors. This was a cohort study, at baseline and follow-up in eight European countries. Caregivers included (n=1,223) were caring for PwDs aged ≥ 65 years living at home, in risk of being institutionalized. Data was collected using standard- ized instruments. Logistic regression analysis of factors asso- ciated with caregiver psychological well-being at baseline and 3 months later was performed. Factors associated with presence of caregiver psychological well-being at baseline were positive experience of caregiving, low caregiver burden, high quality of life (QoL) for caregivers, male gender of PwD, high QoL of PwD and few neuropsychiatric symptoms for the PwD. At follow-up, caregivers with increased psychologi- cal well-being experienced quality of care (QoC) higher and were more often using dementia speci c service. Predicting factors for caregivers’ increased psychological well-being were less caregiver burden, positive experience of caregiv- ing, less supervision of the PwD and higher caregiver QoL, if PwD were male, had higher QoL and less neuropsychiat- ric symptoms. Higher QoC predicted increased caregivers’ psychological well-being. It can be concluded that informal caregiving for PwDs living at home is a complex task. Our study showed that caregivers’ psychological well-being was associated with, among other things, less caregiver burden and higher QoL. Professionals should be aware of PwD neu- ropsychiatric symptoms that might affect caregivers’ psycho- logical well-being, and provide proper care and treatment for caregivers and PwDs.
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| 36. |
- Lethin, Connie, et al.
(författare)
-
Psychological well-being over time among informal caregivers caring for persons with dementia living at home
- 2017
-
Ingår i: Aging & Mental Health. - Abingdon, Oxon : Informa UK Limited. - 1360-7863 .- 1364-6915. ; 21:11, s. 1138-1146
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Tidskriftsartikel (refereegranskat)abstract
- Objectives: To investigate informal caregivers’ psychological well-being and predicted increase in psychological well-being, when caring for persons with dementia (PwDs) living at home, related to caregiver, PwD and formal care (FC) factors. Method: A cohort study at baseline and 3 months’ follow-up in eight European countries. Caregivers included (n = 1223) were caring for PwDs aged ≥ 65 years at home. Data on caregivers, PwDs and FC were collected using standardized instruments. Regression analysis of factors associated with caregiver psychological well-being at baseline and 3 months later was performed. Results: Factors associated with caregiver psychological well-being at baseline were positive experience of caregiving, low caregiver burden, high quality of life (QoL) for caregivers, male gender of PwD, high QoL of PwD, few neuropsychiatric symptoms and depressive symptoms for the PwD. At follow-up, caregivers with increased psychological well-being experienced of quality of care (QoC) higher and were more often using dementia specific service. Predicting factors for caregivers’ increased psychological well-being were less caregiver burden, positive experience of caregiving, less supervision of the PwD and higher caregiver QoL, if PwD were male, had higher QoL and less neuropsychiatric symptoms. Furthermore, higher QoC predicted increased caregivers’ psychological well-being. Conclusion: Informal caregiving for PwDs living at home is a complex task. Our study shows that caregivers’ psychological well-being was associated with, among other things, less caregiver burden and higher QoL. Professionals should be aware of PwD neuropsychiatric symptoms that might affect caregivers’ psychological well-being, and provide proper care and treatment for caregivers and PwDs.
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| 37. |
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| 38. |
- Lethin, Connie, et al.
(författare)
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Support needs and expectations of people living well with dementia and their informal carers in everyday life: An European study
- 2019
-
Ingår i: Social Sciences. - : MDPI AG. - 2076-0760. ; 8:7
-
Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe the needs and expectations of support within everyday life among community-dwelling people living well with an early stage dementia and their informal carers. The study employed a qualitative design. Data were collected in 2018, via four focus group interviews with, in total, 17 people with dementia and 21 informal carers, transcribed and analyzed with manifest content analysis. Needs and expectations of support among persons with dementia were expressed as the importance of “Participation in my own care,” “Attitude of the informal carers,” and “Trusting relationships with informal carers.” Informal carers’ needs and expectations of support were expressed as the importance of “Formal care and services,” “Getting out of a carer mindset,” and “Family context.” The findings from this study highlighted that persons with dementia were well aware of their cognitive impairments and tried to maintain their independence, with both formal and informal care to help remain “being themselves.” Health professionals should acknowledge persons with dementia and informal carers’ well-being, and acknowledge the importance of their needs together with an understanding of the importance of continuity of frontline carers to building trusting relationships.
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| 39. |
- Lethin, Connie, et al.
(författare)
-
Support Needs and Expectations of People Living with Dementia and Their Informal Carers in Everyday Life : A European Study
- 2019
-
Ingår i: Social Sciences. - : MDPI. - 2076-0760. ; 8:7
-
Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe the needs and expectations of support within everyday life among community-dwelling people living well with an early stage dementia and their informal carers. The study employed a qualitative design. Data were collected in 2018, via four focus group interviews with, in total, 17 people with dementia and 21 informal carers, transcribed and analyzed with manifest content analysis. Needs and expectations of support among persons with dementia were expressed as the importance of "Participation in my own care," "Attitude of the informal carers," and "Trusting relationships with informal carers." Informal carers' needs and expectations of support were expressed as the importance of "Formal care and services," "Getting out of a carer mindset," and "Family context." The findings from this study highlighted that persons with dementia were well aware of their cognitive impairments and tried to maintain their independence, with both formal and informal care to help remain "being themselves." Health professionals should acknowledge persons with dementia and informal carers' well-being, and acknowledge the importance of their needs together with an understanding of the importance of continuity of frontline carers to building trusting relationships.
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| 40. |
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| 41. |
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| 42. |
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| 43. |
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| 44. |
- Ljungberg, Tina, et al.
(författare)
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Evidence of the importance of dietary habits regarding depressive symptoms and depression
- 2020
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Ingår i: International Journal of Environmental Research and Public Health. - : MDPI AG. - 1660-4601. ; 17:5
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Forskningsöversikt (refereegranskat)abstract
- Background: Mental illness is one of the fastest rising threats to public health, of which depression and anxiety disorders are increasing the most. Research shows that diet is associated with depressive symptoms or depression (depression). Aim: This study aimed to investigate the diets impact on depression, by reviewing the scientific evidence for prevention and treatment interventions. Method: A systematic review was conducted, and narrative synthesis analysis was performed. Result: Twenty scientific articles were included in this review. The result showed that high adherence to dietary recommendations; avoiding processed foods; intake of anti-inflammatory diet; magnesium and folic acid; various fatty acids; and fish consumption had a depression. Public health professionals that work to support and motivate healthy eating habits may help prevent and treat depression based on the evidence presented in the results of this study. Further research is needed to strengthen a causal relationship and define evidence-based strategies to implement in prevention and treatment by public healthcare.
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| 45. |
- Lukic, Sandra, et al.
(författare)
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Reflexive Views of Virtual Communities of Practice among Informal and Formal Caregivers of People with a Dementia Disease
- 2024
-
Ingår i: Healthcare. - Basel : MDPI. - 2227-9032. ; 12:13, s. 1-11
-
Tidskriftsartikel (refereegranskat)abstract
- Knowledge seems to mitigate the consequences of dementia and new educational strategiesare required. This study aimed to qualitatively explore the reflexive views and experiences of virtual Communities of Practice (vCoP) among informal and formal caregivers of people with dementia and explore vCoP as a tool for learning and knowledge development. Data were collected in a sequence of virtual workshops and analyzed and synthesized using thematic analysis. For the informal caregivers, one main theme emerged: Learning and support, comprising three subthemes: Strategies for learning; Creating emotional support; and in need of professional support. Among formal caregivers, one main theme emerged: Professional development, comprising two subthemes: Sharing and gaining knowledge and Knowledge as a professional tool. vCoP and collaborative learning using an educational platform seem to support learning and professional development among informal and formal caregivers, respectively. As a collaborative, virtual activities seem to provide practical and emotional support and promote professional development; vCoP seem to have the potential to promote the resilience and sustainability of care. Further research is necessary to gain an understanding of the effects of Communities of Practice (CoP) and vCoP and their successful implementation in care practices aswell as the potential of using CoP in continuing professional development, CPD.
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| 46. |
- Malm, Joakim, et al.
(författare)
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Utvärdering av SI-verksamheten vid Lunds universitet 2022/23
- 2023
-
Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Enkelt uttryckt är Samverkansinlärning (SI) en studiecirkel kopplat till en utmanande kurs. SI leds av en senior student som utformar läraktiviteter där studenterna arbetar i grupper med att förklara och förtydliga svårt kursmaterial. Målsättningen med SI, förutom förbättrade prestationer i den aktuella kursen, är att studenterna skall utveckla goda studiestrategier och bli mer självständiga i sitt lärande. Denna rapport behandlar SI-verksamheten vid Lunds universitet under läsåret 2022/23. Målsättningen är att läsaren skall få en god bild av hur SI bedrivs vid lärosätet och hur insatsen upplevs av deltagare och studentledare. Rapporten bygger dels på kvantitativa data – SI-närvaro, samt närvaron kopplat till studenternas prestationer i SI-stödda kurser. Och dels på kvalitativa data från enkäter till deltagare och SI-ledare, dels information frän metodhandledare och SI-koordinatorer. Under läsåret 2022/23 kompletterades undervisningen i 204 kurstillfällen av SI där totalt 266 studentledare ledde SI-pass. 5200 studenter vid universitetet deltog på passen under läsåret. Medelnärvaron var 23 % och 53% av studenter med tillgång till SI provade på att besöka åtminstone ett pass. Dessa siffror betyder att SI-verksamheten vid Lunds universitet är en av de största vid lärosäten i Europa (SI finns på 75+ högre lärosäten i Europa). SI-verksamheten följer också grundläggande SI-principer på ett bra sätt enligt deltagarna. Exempelvis på så sätt att deltagarna har ett stort inflytande över agendan på SI-passen och att arbetet med att förstå utmanande kursmaterial bedrivs genom arbete och diskussion i grupp. SI-ledaren ser till att arbetet gårframåt genom att ställa frågor och uppmuntrar deltagarna att dela med sig av sina kunskaper till varandra.Studenternas drivkraft att gå på SI-passen är i huvudsak meningsorienterad genom att de vill få en bättre förståelse av ämnet och för att det är roligt att diskutera kursinnehåll med kurskamrater. Vad ger då deltagande på SI för närvarande studenter? Jämförelser av närvaro på SI och genomströmning på SI-stödd kurs antyder att chanserna att klara kursen vid ordinarie examination(er) ökar med ökad SI-närvaro. Deltagande studenter upplever dessutom i stor utsträckning att SI leder till att de bättre förstår vad som förväntas av dem i kursen, är ett effektivt stöd att ta sig fram i kursen, ökar intresset för ämnet och ger dem en djupare förståelse av kursinnehållet. Dessutom anser en stor andel av deltagarna att de utvecklar generella färdigheter såsom problemlösning, kritiskt tänkande, lagarbete och presentation av akademiskt material införandra. En betydande del av SI-deltagarna anger att de åtminstone till viss del utvecklar sitt sätt att studera och förbättrar sitt akademiska självförtroende. Lite mer än en fjärdedel av de svarande på enkäten anser att SI varit viktigt för att skaffa studiekamrater, vilket kan vara mycket betydelsefullt för att känna tillhörighet inom akademien och ge ytterligare motivation till fortsatta högre studier.De dominerande svarsteman på öppna enkätfrågor rörande vad som är bäst med SI samt vad som skiljer SI-pass från ordinarie undervisning är desamma för bägge frågorna. Det handlar om att deltagarna uppskattar diskussionen/samarbetet samt atmosfären och arbetsmiljön på passen. Vidare gillar studenterna fokus på djupare förståelse av kursinnehållet. På frågan vad man tycker kan förbättras med SI-passen anser en del av deltagarna att strukturen på passet ibland kan vara tydligare och att arbetet under passen ibland kan kännas ineffektivt.Det är roligt att konstatera att de allra flesta SI-ledarna trivs i sin roll, känner sig nöjda med sitt jobb och upplever att de gör skillnad för sina deltagare, baserat på deras enkätsvar. Dessutom utvecklar de i hög grad i olika färdigheter som kommunikation, grupphantering och ledarskap.
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| 47. |
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| 48. |
- Malmgren Fänge, Agneta, et al.
(författare)
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Satisfaction with Health Care Interventions among Community Dwelling People with Cognitive Disorders and Their Informal Caregivers—A Systematic Review
- 2020
-
Ingår i: Healthcare. - : MDPI AG. - 2227-9032. ; 8:3
-
Forskningsöversikt (refereegranskat)abstract
- Informal caregivers have a leading role when implementing health care services for people with cognitive disorders living at home. This study aims to examine the current evidence for interventions with dual satisfaction with health care services for people with cognitive disorders and their caregivers. Original papers with quantitative and mixed method designs were extracted from two databases, covering years 2009–2018. Thirty-five original papers reported on satisfaction with health care services. The International Classification of Health Interventions (ICHI) was used to classify the interventions. Most interventions had a home-based approach (80%). Reduction in caregiver depression was the outcome measure with the highest level of satisfaction. Interventions to reduce depression or increase cognitive performance in persons with cognitive disorders gave the least satisfaction. Satisfaction of both caregivers and persons with cognitive disorders increased their use of services. In the ICHI, nearly 50% of the interventions were classified as activities and participation. A limited number of interventions have a positive effect on satisfaction of both the persons with cognitive disorders and the caregiver. It is important to focus on interventions that will benefit both simultaneously. More research is needed with a clear definition of satisfaction and the use of the ICHI guidelines
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| 49. |
- Malmgren Fänge, Agneta, et al.
(författare)
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Using sensor-based technology for safety and independence – the experiences of people with dementia and their families
- 2020
-
Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 1471-6712 .- 0283-9318. ; 34:3, s. 648-657
-
Tidskriftsartikel (refereegranskat)abstract
- BackgroundThe majority of people with dementia prefer to live independently and safely in their own home cared for by their family members. Much effort has been invested in the development of technology, such as sensor‐based networks. Many challenges remain, in particular gaining more knowledge about their experiences and perceived benefits. This study aimed to explore experiences, needs and benefits with using sensor‐based technology for safety and independence in the homes of people with dementia and their family members.MethodsThis study is part of the TECH@HOME project, aiming to evaluate the effects of sensor‐based technology on independence among people with dementia and caregiver stress among their family members. This study applied an inductive, qualitative approach with semi‐structured interviews of people with dementia (n = 9) and family members (n = 21). The participants were interviewed between June and September 2018 after using the technology for at least 6 months. The interviews were analysed with manifest content analysis.ResultsOur findings highlighted that technology was considered as a precaution and a safety measure that could provide a sense of having control of the everyday life of the person with dementia. Understanding and acceptance of the technology were as important, together with the reliability of the technology. Ethical dilemmas related to the monitoring of the person with dementia in the home were also raised.ConclusionThis study provides insights into how people with dementia and family members experience and benefit from using sensor‐based technology in their own homes. The knowledge generated is essential for healthcare professionals and policymakers developing and implementing care and service systems including technology, as well as for the industry.
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| 50. |
- Maskeliunas, Rytis, et al.
(författare)
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Serious Game iDO: Towards Better Education in Dementia Care
- 2019
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Ingår i: Information. - : MDPI AG. - 2078-2489. ; 10:11, s. 1-15
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Tidskriftsartikel (refereegranskat)abstract
- We describe the iDO serious game developed during implementation of the Innovative Digital Training Opportunities on Dementia for Direct Care Workers (IDO) project. The project targets formal and informal caregivers of persons with dementia in order to improve caregiver knowledge and competences skills with a non-traditional source of training. This paper describes the steps faced to define the iDO caregiver behavior improvement model, design of game mechanics, development of game art and game characters, and implementation of gameplay. Furthermore, it aimed to assess the direct impact of the game on caregivers (n = 48) and seniors with early signs of dementia (n = 14) in Lithuania measured with the Geriatric Depression Scale (GDS) and Dementia Attitudes Scale (DAS). The caregivers’ GDS scores showed a decrease in negative answers from 13.4% (pre-game survey) to 5.2% (post-game survey). The seniors’ GDS scores showed a decrease in negative answers from 24.9% (pre-game survey) to 10.9% (post-game survey). The overall DAS scores increased from 6.07 in the pre-game survey to 6.41 in the post-game survey, statistically significant for both caregivers and seniors (p < 0.001), respectively. We conclude that the game aroused positive moods and attitudes for future caregivers of persons with dementia, indicating a more relaxed status and a decreased fear in accomplishing the caring process.
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