| 1. |
- Matérne, Marie, 1967-, et al.
(författare)
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Relatives' experiences of quality of healthcare services for adults with profound intellectual and multiple disabilities in Sweden
- 2024
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Ingår i: Journal of Intellectual & Developmental Disability. - : Taylor & Francis. - 1366-8250 .- 1469-9532.
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Tidskriftsartikel (refereegranskat)abstract
- Introduction: There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limited communication. The aim of this study was to explore experiences and perspectives of relatives regarding healthcare services for adults with PIMD.Method: Twelve semi-structured telephone interviews were conducted involving close relatives of people with PIMD: mothers (n = 7), fathers (n = 2), brothers (n = 2) and a sister (n = 1). Qualitative content analysis was used.Results: Three themes emerged from the material: (1) Holistic view and responsibility, (2) Complexity and specialisation require coordination, and (3) Specific knowledge about the individual with PIMD.Conclusions: The relatives experienced that quality of health care should be based on a holistic view incorporating special competence and coordination. They emphasised the importance of an alliance, leveraging the relatives' person-specific knowledge alongside healthcare professionals' specialist competence.
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| 2. |
- Matérne, Marie, 1967-, et al.
(författare)
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Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden
- 2022
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Ingår i: BMC Health Services Research. - : BioMed Central. - 1472-6963. ; 22:1
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: People with profound intellectual and multiple disabilities (PIMD) have combined severe intellectual and physical disability and need extensive health care support. They cannot communicate by spoken language and need around the clock support. The health care for people with PIMD is typically provided by a number of different health care services in collaboration with residential care staff and their managers. The quality of health care for people with PIMD are important due to their limited ability to communicate their needs. The aim of this study was to explore residential care staff and manager's experiences and views of health care services for adults with PIMD.METHODS: Thirteen semi-structured interviews with residential care staff (n = 7) and managers (n = 6) were conducted and analysed using qualitative content analysis.RESULTS: The informants expressed a variety of experiences, under the theme was Quality of health care is enhanced through residential care staff. The theme was comprised of four subthemes: (1) Individually tailored support promotes quality, (2) Accessibility requires adaptation and prioritization by healthcare providers, (3) Disability competence promotes quality and safety and (4) Complex collaboration conditions between the person with PIMD, residential care staff and disability health care.CONCLUSIONS: The residential care staff create quality of care in their role as representatives for adults with PIMD. The care situation is complex and requires adequate competence in the disability, the individual's needs and adaptations to ensure quality of health care. It is also important to build collaboration with other services that are involved in the care of people with PIMD.
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| 3. |
- Appelros, Peter, et al.
(författare)
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Comorbidity in Stroke-Survivors : Prevalence and Associations with Functional Outcomes and Health
- 2021
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Ingår i: Journal of Stroke & Cerebrovascular Diseases. - : Elsevier. - 1052-3057 .- 1532-8511. ; 30:10
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVES: The purpose of this study was to evaluate the prevalence and impact of stroke-related comorbidity in a community-based sample of stroke survivors. We sought to find out which types of comorbidity that were most important with respect to the patients' functional outcomes and general health.MATERIALS AND METHODS: All stroke survivors (n = 330) living in a medium-sized Swedish municipality were included. Patient records were reviewed to determine the presence of comorbidities. A selection of patient reported outcomes were used to assess subjective symptoms, functional outcomes, and general health. Logistic regression models were used to investigate the association between comorbidities, residual symptoms, and subjective symptoms on the one hand, and functional outcomes and general health on the other hand.RESULTS: Hypertension (80%) was the most common cardiovascular risk factor. Ischemic heart disease was found in 18% and congestive heart failure in 10%. Of non-cardiovascular disorders, orthopaedic diseases were commonest (30%). Psychiatric disorders and cognitive impairment were present in 11% and 12% respectively. Hemiparesis is associated with both functional outcomes and general health. Additionally, orthopedic disorders, vertigo, cognitive impairment, nicotine use, chronic pulmonary disorders, and age, are associated with different functional outcomes. Psychiatric, orthopedic and neurological disorders are related to general health. The patient-reported outcome measure "feeling of tiredness" is important for many of the outcomes, while "feeling depressed" and "having pain" are associated with general health.CONCLUSIONS: Many medical conditions, several of which have received little attention so far, are associated with functional outcome and general health in stroke survivors. If the intention is to describe comorbidity relevant to function and general health in stroke patients, disorders that hitherto have received little attention, must be considered.
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| 4. |
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| 5. |
- Appelros, Peter, et al.
(författare)
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Comorbidity in stroke survivors in a medium-sized Swedish municipality
- 2023
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Ingår i: Brain Injury. - : Informa Healthcare. - 0269-9052 .- 1362-301X. ; 37:Suppl. 1, s. 135-136
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Objectives: The purpose of this study was to evaluate the prevalence and impact of stroke-related comorbidity in a community-based sample of stroke survivors. With respect to the patients’ functional outcomes and general health, we wanted to find out which types of comorbidity were most important.Materials and Methods: All stroke survivors (n = 330) living in a medium-sized Swedish municipality were included. To determine the presence of comorbidities patient records were reviewed. A selection of patient reported outcomes were used to assess subjective symptoms, functional outcomes, and general health. All patients were asked to answer a questionnaire, the Swedish Stroke Register (Riksstroke). Three questions from the questionnaire were used as additional measures of comorbidity. “Do you feel tired?,” “Do you have pain?” and “Do you feel depressed?” As outcome measures the patient reported measures from the Riksstroke questionnaire were used: * Do you still have problems after your stroke? * Have you been able to return to the life and activities you had before the stroke? * How is your mobility now? * Do you get help from someone when visiting the toilet? * Do you get help with dressing and undressing? * How do you assess your general health? Logistic regression models were used to investigate the association between comorbidities, residual symptoms, and subjective symptoms on the one hand, and functional outcomes and general health on the other hand.Results: Hypertension (80%) was the most common cardiovascular risk factor. Ischemic heart disease was found in 18% and congestive heart failure in 10%. Of non-cardiovascular disorders, orthopedic diseases were commonest (30%). Psychiatric disorders and cognitive impairment were present in 11% and 12% respectively. Logistic regression analyses found that hemiparesis was associated with both poorer functional outcomes and lower general health. Additionally, orthopedic disorders, vertigo, cognitive impairment, nicotine use, chronic pulmonary disorders, and older age, were also associated with poorer functional outcomes. Psychiatric, orthopedic and neurological disorders were associated with poorer general health. The patient-reported outcome measure “feeling of tiredness” was a predictor of both outcomes, while “feeling depressed” and “having pain” were associated with poorer general health.Conclusions: Many medical conditions, several of which have received little attention so far, are associated with poorer functional outcome and lower general health among stroke survivors. Future research into comorbidities relevant to function and general health in stroke patients could further focus on these disorders that hitherto have received little attention.
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| 6. |
- Appelros, Peter, et al.
(författare)
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Stroke prevalence in a medium-sized Swedish municipality
- 2021
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Ingår i: Acta Neurologica Scandinavica. - : Munksgaard Forlag. - 0001-6314 .- 1600-0404. ; 143:2, s. 210-216
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVES: Many patients who have had stroke survive with functional disability for years. Stroke prevalence is a fundamental measure of the impact of stroke in society. Stroke prevalence has never been evaluated in Sweden.MATERIALS & METHODS: 2019 with respect to stroke survivors (ICD-10 I60-I69) living in Kumla (population 21,738), a municipality well representative of Sweden.RESULTS: 330 individuals with stroke were found, of which 42% were women. The mean age was 74.1 years in men and 75.1 years in women. 11.5% of the patients had more than one stroke. The mean duration since the first stroke was 8.3 years. The crude prevalence per 100,000 was 1754 in men, 1281 in women and 1518 in both sexes. Adjusted to the European population, the ratio was 1570 per 100,000, and to the World population 936 per 100,000.CONCLUSIONS: In spite of a declining stroke incidence in Sweden, the stroke prevalence in Kumla, Sweden, is relatively high. Comparisons with other studies indicate that a decline in prevalence may have occurred since the early 2000s. Modern registers can support data collection, but the index stroke may have occurred almost forty years back in time.
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| 7. |
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| 8. |
- Granberg, Anette, 1965-, et al.
(författare)
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Navigating change - managers' experience of implementation processes in disability health care : a qualitative study
- 2021
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Ingår i: BMC Health Services Research. - : BioMed Central. - 1472-6963. ; 21:1
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Effective implementation processes play a central role in health care organizations and affect the care of patients. Managers are pivotal in facilitating the use of new practices, but their experience and how it affects the implementation outcome are still largely unknown. In the field of disability health care in particular, managers experiences have scarcely been investigated. Therefore, the aim of this study is to explore managers' experiences of the implementation process when transferring new practices into disability health care settings.METHODS: Semi-structured individual telephone interviews were conducted with managers at disability health care organizations in four administrative regions in central Sweden. A total of 23 managers with formal managerial responsibility from both public and private health care were strategically selected to be interviewed. The interviews were analysed using reflexive thematic analysis with an inductive approach.RESULTS: The analysis resulted in two themes about factors influencing the implementation process: firstly, Contextual factors set the agenda for what can be achieved, which highlighted aspects that hinder or enable the implementation process, such as internal and external conditions, the workplace culture, the employees and managers' attitudes and openness to change: secondly, Leadership in the winds of change, which described the challenges of balancing managerial tasks with leading the change, and the importance of a leadership that involves the participation of the employees.CONCLUSIONS: This study explored how and to what extent managers address and manage the implementation process and the many associated challenges. The findings highlight the importance of leadership support and organizational structure in order to transfer new practices into the work setting, and to encourage an organizational culture for leading change that promotes positive outcomes. We suggest that identifying strategies by focusing on contextual factors and on aspects of leadership will facilitate implementation processes.TRIAL REGISTRATION: The SWAN (Structured Water Dance Intervention) study was retrospectively registered on April 9, 2019 and is available online at ClinicalTrials.gov (ID: NCT03908801).
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| 9. |
- Granberg, Anette, 1965-, et al.
(författare)
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The influence of contextual factors on an intervention for people with disabilities from support persons’ and health personnel's perspectives : a focus group study
- 2024
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Ingår i: Frontiers in Rehabilitation Sciences. - : Frontiers Media S.A.. - 2673-6861. ; 5
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Tidskriftsartikel (refereegranskat)abstract
- Introduction: Contextual factors influence interventions in healthcare and pose a particular challenge in interventions designed for people with profound intellectual and multiple disabilities (PIMD). Exploring support persons’ and health personnel’s experience of an intervention may improve our understanding of the influence of contextual factors. Such exploration is important for revealing areas and focus points for future implementations. Therefore, the aim of this study is to explore support persons’ and health personnel’s experience of contextual factors during involvement in an intervention for people with PIMD.Methods: This focus group study includes eight groups, comprising a total of 34 support persons and health personnel, at habilitation centres at four regions in central Sweden. Data were analysed inductively using a content analysis approach.Results: Three themes emerged from the analysis of the informants’ perspectives on the contextual factors: (1) structure and support enhances intervention feasibility; (2) an intervention’s benefit for people with PIMD increases its acceptability; and (3) being engaged and involved increases support persons’ and health personnel’s motivation. Our findings show that the implementation of an intervention for people with PIMD should focus on the recipients of the intervention in its context, forming a clear communication plan. A training programme should be provided for the recipients and providers of the intervention.Discussion: Finally, the implementation process can be facilitated by creating space for staff to contribute and by encouraging participation and ownership for everyone involved. Using a co-design strategy can enable a shared responsibility to solve the identified challenges, while contributing to the development and design of future interventions for people with disabilities.
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| 10. |
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| 11. |
- Lundqvist, Lars-Olov, 1958-, et al.
(författare)
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Risk markers for not returning to work among people with acquired brain injury
- 2019
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Konferensbidrag (refereegranskat)abstract
- BACKGROUND: Research shows that variety of factors are related to risks of not returning to work among people with acquired brain injury (ABI). In Sweden, 40% of those with ABI in working age return to work within two years after the injury, which in line with international findings. However, since countries may differ in work rehabilitation, social security systems, culture and laws, different factors may influence the possibilities of returning to work across countries.AIMS: The aim of this study was to investigate person, injury, activity and rehabilitation related risk markers for not return to work among persons with ABI in Sweden.METHODS: Retrospective data of an ABI cohort of 2008 people from the WebRehab Sweden quality register were used.RESULTS: Analyses showed that the risk ratio for not returning to work was larger for people that, among the Personal factors, were woman, born outside of Sweden, had low education level, and not having children in the household; among the injury related factors, had long (> 2 months) hospital stay, aphasia, low motor function, low cognitive function, high pain/discomfort, and high anxiety/depression; among the activity related factors, had low function in self-care, inability to perform usual activities, and had their driver´s license suspended; and finally among the rehabilitation related factors, were satisfied with treatment and having influence over their rehabilitation plan.DISCUSSION / CONCLUSION: Several factors in different areas were risk markers for not returning to work among people with ABI. This suggest that work rehabilitation and interventions, in addition to direct injury related issues, need to address personal related, activity related and rehabilitation related factors in order to increase the patient´s possibility to return to work. Influences of general and country specific factors on returning to work among people with ABI will be discussed.
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| 12. |
- Lundqvist, Lars-Olov, 1958-, et al.
(författare)
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Salivary cortisol levels and stress in adults with profound intellectual and multiple disabilities participating in the Structured Water Dance Intervention : a randomised controlled crossover trial
- 2022
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Ingår i: Scientific Reports. - : Nature Publishing Group. - 2045-2322. ; 12:1
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Tidskriftsartikel (refereegranskat)abstract
- The Structured Water Dance Intervention (SWAN) is a dance-oriented aquatic group activity directed to give opportunities for the joy of movement, relaxation, and reduced stress. This study aimed to evaluate the effects of SWAN on salivary cortisol and stress in adults with profound intellectual and multiple disabilities (PIMD). A total of 34 adults with PIMD at four habilitation centres in Sweden completed the SWAN intervention. The intervention was administered for 40 min once a week during a 12-week period. Saliva cortisol was collected in the morning and evening at baseline one week before the intervention, thrice during the intervention period, and one week after the intervention. Moreover, in connection with the SWAN sessions, the participants' level of stress was also assessed by the accompanying assistants. The results showed that salivary cortisol and participants stress decreased significantly, directly after the SWAN sessions compared with measures directly before sessions. The study demonstrates that adults with PIMD have diurnal salivary cortisol patterns consistent with those observed in adults without disability and that the SWAN reduces salivary cortisol levels and stress in people with PIMD; this justifies that SWAN could be considered in the choice of interventions to reduce stress in adults with PIMD.
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| 13. |
- Lundqvist, Lars-Olov, 1958-, et al.
(författare)
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Structured Water Dance Intervention (SWAN) for adults with profound intellectual and multiple disabilities : study protocol
- 2020
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Ingår i: Heliyon. - : Elsevier. - 2405-8440. ; 6:7
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Tidskriftsartikel (refereegranskat)abstract
- Background: People with profound intellectual and multiple disabilities (PIMD) have a combination of severe intellectual disability, extensive physical impairment, sensory impairments and medical health problems. There is, however, a lack of evidence-based physical and health-promoting interventions for people with PIMD.Objective: Structured Water Dance Intervention (SWAN) is a new method developed to fill this gap. This paper reports a protocol for an intervention study which aims to evaluate SWAN with regard to its effects on physiological, psychological and social health-related variables as well as its cost-effectiveness and potential for implementation in health care.Methods: The evaluation of SWAN is performed in a multi-center randomized crossover study. Data is collected through cortisol measurement, physiological assessments, proxy ratings, video observations and interviews.Conclusions: This is one of few attempts to evaluate rigorously an innovative intervention for people with PIMD, a group that is rarely considered for health promotion interventions. This study will provide important information about the efficacy, cost-effectiveness and potential to implement SWAN in health care.
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| 14. |
- Matérne, Marie, 1967-, et al.
(författare)
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Change in quality of life in relation to returning to work after acquired brain injury : a population-based register study
- 2018
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Ingår i: Brain Injury. - : Taylor & Francis Group. - 0269-9052 .- 1362-301X. ; 32:13-14, s. 1731-1739
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: This study investigated changes in quality of life (QoL) in relation to return to work among patients with acquired brain injury (ABI).METHOD: The sample consisted of 1487 patients with ABI (63% men) aged 18-66 years (mean age 52) from the WebRehab Sweden national quality register database. Only patients who worked at least 50% at admission to hospital and were on full sick leave at discharge from hospital were included. QoL was measured by the EuroQol EQ-5D questionnaire.RESULTS: Patients who returned to work perceived a larger improvement in QoL from discharge to follow-up one year after injury compared to patients who had not returned to work. This difference remained after adjustment for other factors associated with improved QoL, such as having a university education, increased Extended Glasgow Outcome Scale scores and getting one's driving licence reinstated.CONCLUSION: Return to work is an important factor for change in QoL among patients with ABI, even after adjusting for other factors related to QoL. This is consistent with the hypothesis that having employment is meaningful, increases self-esteem and fosters participation in society. Thus, helping patients with ABI return to work has a positive influence on QoL.
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| 15. |
- Matérne, Marie, 1967-, et al.
(författare)
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Contribution of participation and resilience to quality of life among persons living with stroke in Sweden : a qualitative study
- 2022
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - : Taylor & Francis. - 1748-2623 .- 1748-2631. ; 17:1
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: Resilience contributes to positive adaptation after many health conditions, but little is known about its contribution to long-term recovery after stroke. This study investigated the lived experience of resilience and participation and their relationship to quality of life after stroke in Sweden.MATERIAL AND METHOD: Semi-structured telephone interviews were conducted with 19 informants (10 male, 9 female), aged from 44-89 years and between 1 and 19 years post-stroke. Stroke severity ranged from mild (n = 8), moderate (n = 9) to severe (n = 2). Interviews were analysed using content analysis.RESULTS: The analysis resulted in an overarching theme; Life with stroke has been adapted to but not accepted, built on five subthemes: 1) Adapting and adjusting life, 2) Meaningful values in life, 3) Inner resources, 4) Support and treatment from social relations, and 5) Support and treatment from external resources.CONCLUSION: Participants described a tension between adapting and accepting life after stroke. Resilience was a useful framework, highlighting the contribution of inner, social and societal resources to recovery and quality of life, both directly and as enhanced through increased participation. Important factors for adaptation are meaningful values in life, individual strategies for adaptation and support from both social relationship and the society.
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| 16. |
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| 17. |
- Matérne, Marie, 1967-, et al.
(författare)
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Hälso- och sjukvårdskuratorns funktion i rehabilitering för personer med stroke
- 2022
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Ingår i: Socialmedicinsk Tidskrift. - : Socialmedicinsk tidskrift. - 0037-833X. ; 99:1, s. 76-86
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Tidskriftsartikel (refereegranskat)abstract
- Att stödja patienter i rehabilitering efter stroke är en viktig funktion för hälso- och sjukvårdskuratorn. I denna artikel analyseras hälso- och sjukvårdskuratorns funktion utifrån ett systemteoretiskt perspektiv med stöd av patienternas erfarenheter av resiliens och livskvalitet. Intervjuer med 19 personer med stroke sekundäranalyserades tematiskt och resulterade i fem områden av betydelse för hälso- och sjukvårdskuratorns funktion. De teman som framkom på mikronivå var: trygghet och förutsägbarhet; mening och hopp. På mesonivå: socialt och formellt stöd; samordna och informera. På makronivå: kunskapsspridning och kompetens. Den legitimerade hälso- och sjukvårdskuratorn funktioner återfinns således systemteoretiskt på alla nivåer vilket innebär att de professionellt antar en helhetssyn med fokus på individen i relation till dennes situation och kontext.
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| 18. |
- Matérne, Marie, 1967-, et al.
(författare)
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Interaction and multimodal expressions in a water-dance intervention for adults with intellectual and multiple disabilities
- 2023
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Ingår i: Journal of Interactional Research in Communication Disorders/Equinox. - : Equinox Publishing. - 2040-5111 .- 2040-512X. ; 14:1, s. 122-153
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Tidskriftsartikel (refereegranskat)abstract
- Background: Structured water-dance intervention (SWAN) is an aquatic method customized for adults with profound intellectual and multiple disabilities (PIMD). The aims are to describe and discuss how the SWAN program intervention leader, instructors, and support persons (i.e., the staff) co-operate and facilitate interaction with participants with intellectual and multiple disabilities (IMD), and to identify expressions of emotion by the participants during a SWAN.Method: Video recordings of the interactions were analyzed based on dialogical theory and conversation analysis (CA).Results: The analysis showed that SWAN can be described as an institutional activity, on the one hand governed by an overall, pre-planned structure, and on the other hand affected by the moment-by-moment co-operation and interaction between participants and the staff as the intervention is taking place; also, how several emotional expressions by the participants are responded to by the staff.Conclusions: In interaction during the SWAN, the participants are considered as competent interaction partners, and their multimodal expressions are taken into account by the support persons, instructors, and intervention leader through adaptation to the activity.
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| 19. |
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| 20. |
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| 21. |
- Matérne, Marie, 1967-, et al.
(författare)
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Opportunities and barriers for successful return to work after acquired brain injury : A client perspective
- 2015
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Research aimThe aim of this study was to increase our knowledge about the opportunities and barriers for successfully return to work (RTW) among individuals with acquired brain injury (ABI).MethodologyAdults who have ABI were interviewed in regard to their experiences of the work rehabilitation process. The informants (5 females, 5 males) had participated in a work rehabilitation, had successfully RTW and had worked at least 50 % in at least a year after the injury. The interviews were transcribed, structured and analyzed by latent content analysis with a hermeneutic approach.Findings and conclusionsThree main themes that influenced RTW after ABI were identified: (i) individually adapted rehabilitation process, (ii) motivation for RTW and (iii) cognitive abilities and inabilities.The findings indicated that an individually adapted vocational rehabilitation (VR) process was important because the individuals with ABI involved actively in their own rehabilitation process and they required continuous support from the society, the specialists, their employers and colleagues. A moderate level of motivation for RTW was necessary to achieve the best result for RTW and it was important to achieve a balance between too high and too low motivation. Finally, a comprehensive knowledge about the cognitive abilities and inabilities of the individual after ABI helped the individuals and their employers to find compensatory strategies to handle their work tasks.One implication of the findings was the necessity of a good support system and a good VR that functions well and lasts for a longer period. When there are obstacles in the VR process, it is important to have strategies and awareness of how to proceed further.Consequently the support built for a person individually, with a balanced motivation, a high knowledge about the cognitive abilities and awareness of how to proceed further in the process will help to build a successful and sustainable RTW.
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| 22. |
- Matérne, Marie, 1967-, et al.
(författare)
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Opportunities and barriers for successful return to work after acquired brain injury : A patient perspective
- 2017
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Ingår i: Work. - Amsterdam, The Netherlands : IOS Press. - 1051-9815 .- 1875-9270. ; 56:1, s. 125-134
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Tidskriftsartikel (refereegranskat)abstract
- Background: Many people who suffer an acquired brain injury (ABI) are of working age. There are benefits, for the patient, the workplace, and society, to finding factors that facilitate successful return to work (RTW).Objective: The aim was to increase knowledge of opportunities and barriers for a successful RTW in patients with ABI.Method: Five men and five women with ABI participated. All had successfully returned to work at least 20 hours a week. Their experiences were gathered by semi-structured interviews, which were subsequently subjected to qualitative content analysis.Results: Three themes that influenced RTW were identified: individually adapted rehabilitation; motivation for RTW; and cognitive and social abilities. An individually adapted rehabilitation was judged important because the patients were involved in their own rehabilitation and required individually adapted support from rehabilitation specialists, employers, and colleagues. A moderate level of motivation for RTW was needed. Awareness of the person's cognitive and social abilities is essential, in finding compensatory strategies and adaptations.Conclusions: It seems that the vocational rehabilitation process is a balancing act in individualized planning and support, as a partnership with the employer needs to be developed, motivation needs to be generated, and awareness built of abilities that facilitate or hinder RTW.
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| 23. |
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| 24. |
- Matérne, Marie, 1967-, et al.
(författare)
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Psykosociala insatser efter förvärvad hjärnskada
- 2024
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Ingår i: Socialt och kurativt arbete med personer med funktionsnedsättning. - : Liber. - 9789147147441 ; , s. 160-176
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 25. |
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| 26. |
- Matérne, Marie, 1967-, et al.
(författare)
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Risk Markers for Not Returning to Work Among Patients with Acquired Brain Injury : A Population-Based Register Study
- 2019
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Ingår i: Journal of occupational rehabilitation. - : Springer. - 1053-0487 .- 1573-3688. ; 29:4, s. 728-739
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: The aim of this study is to investigate person-related, injury-related, activity-related and rehabilitation-related risk markers for not return to work among patients with acquired brain injury (ABI).Methods: Retrospective data from the Quality register, WebRehab Sweden, on an ABI cohort of 2008 patients, was divided into two groups: those who had returned to work (n = 690) and those who had not returned to work (n = 1318) within a year of the injury.Results: Risk ratio analyses showed that several factors were risk markers for not returning to work: personal factors, including being a woman, being born outside of Sweden, having a low education level, and not having children in the household; injury-related factors, including long hospital stay (over 2 months), aphasia, low motor function, low cognitive function, high pain/discomfort, and high anxiety/depression; activity-related factors, including low function in self-care, inability to perform usual activities, and not having a driver's license; and rehabilitation-related factors, including being dissatisfied with the rehabilitation process and the attentiveness of the staff having limited influence over the rehabilitation plan, or not having a rehabilitation plan at all. Conclusion Several factors in different aspects of life were risk markers for not returning to work among patients with ABI. This suggests that rehabilitation and interventions need to address not only direct injury-related issues, but also person-related, activity-related, and rehabilitation-related factors in order to increase the patient's opportunities to return to work.
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| 27. |
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| 28. |
- Matérne, Marie, 1967-, et al.
(författare)
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Socialt stöd vid stroke
- 2022
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)
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| 29. |
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| 30. |
- Matérne, Marie, 1967-, et al.
(författare)
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Stroke survivors experience of quality of life, participation and resilience
- 2023
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Ingår i: Brain Injury. - : Informa Healthcare. - 0269-9052 .- 1362-301X. ; 37:Suppl. 1, s. 92-92
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Background: Within a Swedish context, the lived experience of stroke in the acute phase has been documented in a number of studies using a biopsychosocial perspective. However less is known about the challenges in the chronic long-term phase.Objective: In this study we wanted to explore the lived experience from stroke survivors in Sweden about their resilience and participation, and the relationship between these two constructs and quality of life.Materials and Method: Kumla is a medium-sized municipality in Sweden in which 330 people living with stroke were identified at the 31st December 2019. A purposive sample of 19 informants were selected based on age, gender, occupation and severity of stroke. Semi-structured telephone interviews were conducted with 10 male and 9 females. The informants were aged between 44–89 years and had lived with their stroke between 1 and 19 years. The interviews were transcribed verbatim and analyzed using qualitative content analysis.Results: The informants described how the stroke had affected their lives and that they had to ‘adapt life’ due to their stroke. They described their experience as while having found ways to cope with life after stroke, they did not accept the situation. This was captured in the material with an overarching theme; Life with stroke has been adapted to but not accepted. However, the lack of acceptance was explained by some as a resignation, that their lives had changed for good and it has to be accommodated, while others’ experience was one of still working to overcome many of the limitations that they faced. The overarching theme was linked to five sub-themes: 1) Adapting and adjusting to life, 2) Meaningful values in life, 3) Inner resources, 4) Support and treatment from social relations, and 5) Support and treatment from external resources.Conclusion: Informants explored a tension between adapting to the circumstances and accepting life after stroke. Factors associated with adaptation in life included meaningful values, the informants’ own strategies for adaptation and also support from relationship and society. Resilience strategies were useful, and the contribution of individual, social and societal resources for recovery was important. Quality of life was enhanced both directly and through increased participation.
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| 31. |
- Matérne, Marie, 1967-, et al.
(författare)
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STROKE SURVIVORS IN THE MUNICIPALITY OF KUMLA SWEDEN : PREVALENCE, CO-MORBIDITY, DISABILITY, SOCIAL SITUATION AND QUALITY OF LIFE
- 2020
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Ingår i: International Journal of Stroke. - : Wiley-Blackwell Publishing Asia. - 1747-4930 .- 1747-4949. ; 15:Suppl. 1, s. 413-413
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Background and Aims: About 25,000 people in Sweden suffer a stroke every year. Four-fifths of patients having a first-ever stroke are over 60 years of age. Stroke is the disease that causes the most hospital days in Sweden. The total costs of stroke have been estimated at SEK 18.3 billion per year. The aim of this study is to evaluate stroke survivors’ medical, functional and social situation, with focus on identifying possible improvements in rehabilitation, secondary prevention and social life.Methods: Kumla municipality in Sweden, through its mixed population, size, and location, provides an opportunity for a cross-sectional study. 274 patients living with consequences of stroke have been identified so far. Physical tests, reviews of medical records, questionnaires about demographic data, assistive technology, quality of life, fatigue and cognition will be carried through. Data will be analyzed using descriptive statistics and linear regression, to show relations between medical, functional and psychosocial variables. Patient´s experience of living with stroke will be examined with interviews.Results: Expected Results: There are few studies examining the whole population of stroke victims within an area. The results will demographically describe the patients, what rehabilitation efforts have been given, their function and activity, medical status, social situation and quality of life. The result can be used to develop rehabilitation measures and to other improvements in stroke care.Conclusions: Examining a whole stroke population, by including all living patients, may lead to more effective stroke rehabilitation and intervention studies focusing on stroke prevention and post-stroke rehabilitation.
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| 32. |
- Matérne, Marie, 1967-, et al.
(författare)
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Structured water dance intervention for adults with profound intellectual and multiple disability : Development and description of the method
- 2022
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Ingår i: Dance Articulated. - Trondheim : NTNU Open Access Journals. - 2703-8327. ; 8:1, s. 7-26
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Tidskriftsartikel (refereegranskat)abstract
- People with profound intellectual and multiple disability (PIMD) have a combination of severe intellectual disability and extensive physical impairment, which limits their access to health-promoting enjoyable activities, such as dance. For people with PIMD to participate in dance, there is a need for adjustments and support. Thus, to bring dance and music into their everyday life, the Structured Water Dance Intervention (SWAN) was developed in Sweden. This paper aims to describe the development and methodology of SWAN. SWAN was developed from a holistic view on human existence adhering to a bio-psycho-social perspective. Hence, the key components of SWAN are experience of dance and music, adapted movements, stimulation of the senses, and interaction. In SWAN, the person with PIMD participates in the program in a warm water pool under the guidance of two instructors and in close collaboration with a support person who acts as a dance partner. We conclude that SWAN provides a meaningful activity with the potential to increase wellbeing for individuals with PIMD.
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| 33. |
- Matérne, Marie, 1967-, et al.
(författare)
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Successful return to work after acquired brain injury : support person’s perception of supporting
- 2017
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Introduction and aim:Return to work (RTW) after acquired brain injury (ABI) is a demanding process for the client and need support. This study’s aim was to understand the support person’s perception of supporting clients with ABI to a successful RTW.Method:Nine persons who acted as support persons in the vocational rehabilitation (VR) process were chosen by clients with ABI participating in a previous study. Three of the support persons had a formal mandate to support the client by the employer and six of them were characterized as providing informal support. All the support persons had different kind of work. Semi structured interviews were conducted and analyzed by latent content analysis.Findings:The analysis elicited three themes describing the support person’s perception in the assistance for the client to successfully RTW: (i) Commitment, (ii) Adaptation and (iii) Cooperation. Within each of the theme multiple mechanisms were identified, reflecting the complexity that the VR process had for the client. The mechanisms were about strategic issues, reflection and decision making. The support persons experienced that their role was extra valuable for the client in contexts where adaptation and cooperation was required. Commitment built on social relations is linked to sustainability of the support.Conclusion:Support persons play a multi-dimensional role which is important for client with ABI to successfully RTW.
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| 34. |
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| 35. |
- Matérne, Marie, 1967-, et al.
(författare)
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Successful return to work after acquired brain injury : opportunities and barriers from a patient perspective
- 2016
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Ingår i: Brain Injury. - : Taylor & Francis. - 0269-9052 .- 1362-301X. ; 30:5-6, s. 516-516
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Background: Acquired brain injury (ABI) is often a lifelong disability that entails a marked change in a person’s life. It involves biopsychosocial levels and return to work (RTW) is one of the main goals for the person. Several of those suffering an ABI are of working age. The society and the individuals are both winners if the person could get back to work and sustain working.Objective: The aim of this study was to increase knowledge about the opportunities and barriers for successful RTW among individuals with ABI.Methods: Adults who have ABI and had participated in work rehabilitation were interviewed in regard to their experiences of the process. The informants (five females, five males) had participated in work rehabilitation, had successfully RTW and had worked at least 50% in at least a year after the injury. The interviews were transcribed, structured and analysed by latent content analysis with a hermeneutic approach.Results: Three main themes that influenced RTW after ABI were identified: (i) individually adapted rehabilitation process, (ii) motivation for RTW and (iii) cognitive abilities and inabilities. The results indicate that an individually adapted vocational rehabilitation (VR) process was an important issue. The individuals with ABI actively involved in their own rehabilitation process also required continuous support from the society, the specialists, their employers and colleagues; this support has to be designed for each individual. A moderate level of motivation for RTW was necessary for the best result to RTW, in other words it was important to achieve a balance between too high and too low motivation. Finally, a comprehensive knowledge about the cognitive abilities and inabilities of the individual after ABI helped the individuals and their employers to find compensatory strategies to handle their work tasks. One implication of the findings was the necessity of a good support system and a good VR that functions well and lasts for a longer period. When there are obstacles in the VR process, it is important to have strategies and awareness of how to proceed further.Conclusions: Consequently, the support built for a person individually, with a balanced motivation, knowledge about the cognitive abilities and awareness of how to proceed further in the process will help to build a successful and sustainable RTW.
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| 36. |
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| 37. |
- Matérne, Marie, 1967-, et al.
(författare)
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Support Persons' Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden
- 2016
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Ingår i: Journal of Social Work in Disability & Rehabilitation. - : Routledge. - 1536-710X .- 1536-7118. ; 15:3-4, s. 351-369
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Tidskriftsartikel (refereegranskat)abstract
- The aim is to explore the perception of being a support person for clients with acquired brain injury undergoing vocational rehabilitation. Nine support persons, identified by clients with brain injury, were interviewed. Interviews were analyzed using qualitative content analysis, resulting in three themes for assisting the client: (i) commitment; (ii) adaptation; and (iii) cooperation. Within each theme, multiple dimensions were identified, reflecting the complexity of vocational rehabilitation following acquired brain injury. Commitment built on social relations is linked to sustainability of support. The included support persons' role was especially valuable in contexts where adaptation and cooperation were required.
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| 38. |
- Matérne, Marie, 1967-, et al.
(författare)
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The utility of goal attainment scaling in evaluating a structured water dance intervention for adults with profound intellectual and multiple disabilities
- 2021
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Ingår i: Heliyon. - : Elsevier. - 2405-8440. ; 7:9
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Tidskriftsartikel (refereegranskat)abstract
- Background: Adults with profound intellectual and multiple disabilities (PIMD) have problems to be actively involved in essential life activities that affect their health. The aim of this study was to explore the utility of goal attainment scaling (GAS) in evaluating an intervention for adults with PIMD, and to describe how the GAS goals were set according to the International Classification of Functioning, Disability and Health (ICF) domains of body function as well as activity and participation.Method: As part of an aquatic intervention (Structured water dance), 28 adults with PIMD received GAS goals which were adapted to their individual needs and which the intervention could affect.Result: Twenty of the goals were formulated within the ICF Activity/Participation domain and eight within the Body Functions domains. On average, participants improved by 1.25 levels on the five-level GAS scales.Conclusion: GAS can be a useful tool for setting and evaluating individualized and meaningful goals, in body functions as well as in activity and participation, related to a healthpromoting activity for adults with PIMD.
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| 39. |
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| 40. |
- Matérne, Marie, 1967-
(författare)
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Återgång i arbete efter förvärvad hjärnskada : livskvalitet, möjligheter och hinder
- 2018
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- In Sweden, about 35–40 percent of people who acquire a brain injury can return to work. To be able to help people with acquired brain injury to return to work, it is important to know about experiences and factors that facilitate return to work and how they affect quality of life. The overall aim of this thesis is to investigate the opportunities and barriers for people with acquired brain injury to return to work, as well as the importance of returning to work for their quality of life. Four studies were conducted: two interview studies and two register studies, giving qualitative and quantitative data.The major finding in this thesis was that people with acquired brain injury who could return to work had high functioning in all levels of the biopsychosocial model. The opportunities increased if the return to work was individually adapted in all phases of the process and if the person was motivated and supported by support persons with commitment, cooperation and adaptation. Those who had a university education, got their driver’s license reinstated, had high motor function and could return towork showed the greatest increase in their quality of life.Return to work is a complex process for people with acquired brain injury that could be successful if they are motivated, can balance the internal and external demands to return to work, get individual adaptation, and receive committed support. Their quality of life also increased more if theywere able to return to work.
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| 41. |
- Skogsberg, Matilda, et al.
(författare)
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Health care workers' need for support from managers during the initial phase of the COVID-19 pandemic
- 2022
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Ingår i: BMC Health Services Research. - : BioMed Central (BMC). - 1472-6963. ; 22:1
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: The COVID-19 pandemic placed great pressure on health care workers and increased the risk of these workers developing mental illness. Effective leadership is essential to prevent mental illness from developing. The study aim was to investigate health care workers' perceptions of the support given by their managers, their need for such support, and their levels of anxiety during the initial phase of the COVID-19 pandemic.METHODS: An electronic study-specific questionnaire was sent to health care workers. A convergent mixed-methods design was used, in which data were analyzed with descriptive statistics, t-tests, and qualitative content analysis.RESULTS: The majority of the 1074 participants experienced support from a manager who was physically present, caring, and sensitive to their needs, who provided information, and listened to their opinions. Those who did not receive this support experienced more anxiety, and the majority of them expressed a need for this support. A minority of the participants had a manager who scheduled reflection time; few asked for this support, and it was not found to be associated with lower anxiety levels. The qualitative analysis resulted in four themes: 1) A physically present and responsive manager who provides support based on the workers' needs, 2) The workers understand their manager's tough work situation and lack of resources, 3) There is a need for clear dissemination of information and participation in organizing the work, and 4) The care of patients is carried out with good cooperation. CONCLUSIONS: The majority of the health care workers received adequate support from their managers. A manager has to be physically present, caring, and supportive to meet the workers' needs and potentially reduce anxiety levels.
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| 42. |
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| 43. |
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| 44. |
- Strandberg, Thomas, 1965-, et al.
(författare)
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Avslutning
- 2024
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Ingår i: Socialt och kurativt arbete med personer med funktionsnedsättning. - : Liber. - 9789147147441 ; , s. 193-207
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 45. |
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| 46. |
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| 47. |
- Warnicke, Camilla, 1971-, et al.
(författare)
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Sign language interpreters’ experiences of remote interpreting in light of COVID-19 in Sweden
- 2024
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Ingår i: Interpreting and Society. - : Sage Publications. - 2752-3810 .- 2752-3810. ; , s. 1-22
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Tidskriftsartikel (refereegranskat)abstract
- The COVID-19 pandemic transformed the work of sign language interpreters from mostly face-to-face assignments to remote interpreting. The overall aim of this study was to investigate the experiences of interpreters working between spoken Swedish and Swedish Sign Language (STS) during the adjustment to remote interpreting (RI) due to COVID-19. Semi-structured telephone interviews were conducted with 26 sign language interpreters and analysed with qualitative content analysis. The interpreters represented 19 of the 21 regions in Sweden. The results of the analysis revealed five themes: (a) a comparison of interpreting settings; (b) adaptability; (c) social relations and interaction; (d) technical equipment; and (e) sustainability. Within the themes’ multifaceted experiences of both positive and negative aspects from a micro to a macro level were reported. This rather new setting for interpreters is still in transformation; thus, follow-ups are necessary.
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| 48. |
- Westling, Linda, et al.
(författare)
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Min hälsa
- 2022
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Rapport (populärvet., debatt m.m.)
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