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- Boström, Petra, 1972, et al.
(författare)
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Self-reported psychological wellbeing in adolescents: the role of intellectual/developmental disability and gender.
- 2018
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Ingår i: Journal of intellectual disability research : JIDR. - : Wiley. - 1365-2788 .- 0964-2633. ; 62:2, s. 83-93
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Tidskriftsartikel (refereegranskat)abstract
- The Wellbeing in Special Education Questionnaire was developed to assess subjective wellbeing in young persons with intellectual and developmental disabilities (ID/DD) as this perspective is rarely included in research. The present study explored how ID/DD and gender are related to self-reported wellbeing among adolescents.Students with (n=110) or without (n=110) ID/DD, aged 12-16years, completed the Wellbeing in Special Education Questionnaire. Analyses of the effects of gender and disability status on peer relations and conflict, mental health, mental ill-health, school environment and family relations were carried out.The experiences of the school environment and of positive mental health aspects did not differ between students with and without ID/DD, but those with ID/DD reported more mental health problems and less positive experiences of peer relations and family. Generally, boys reported more positive experiences of school and less mental health problems than girls.Including the subjective perspective of young persons with ID/DD through self-reports can provide essential information about wellbeing that cannot be gained from proxy ratings. The results suggest both differences and similarities in self-reported wellbeing between boys and girls with and without ID/DD and potentially also in how they perceived the concepts measured.
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| 3. |
- Buratti, Sandra, 1983, et al.
(författare)
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Do Self- and Proxy Reports of Cognitive Problems Reflect Intellectual Functioning in Children and Adolescents with Congenital Heart Defects?
- 2016
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Ingår i: Frontiers in Pediatrics. - : Frontiers Media SA. - 2296-2360. ; 4
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Tidskriftsartikel (refereegranskat)abstract
- Aim: Children with congenital heart defects (CHD) who suffer from cognitive impairments and school difficulties need to be identified as early as possible in order to set appropriate interventions in place that may enhance the school situation and quality of life for these children. Identifying children and adolescents at risk for cognitive difficulties requires specific screening tools. This study assessed such a tool - Pediatric Quality of Life Inventory Cardiac Module subscale: Cognitive Problems - to investigate whether proxy reported and self-reported cognitive problems were associated with measured intellectual functioning in children and adolescents with CHD treated with surgery or by catheter interventions. Method: The sample consisted of 184 children/adolescents aged 3, 5, 9, and 15 years. The severity of the CHD diagnoses was categorized into three groups (mild, moderate, or severe) for all age groups. For all the age groups, we collected proxy ratings of cognitive problems, and for the 5-, 9-, and 15-year-olds, we also collected self-reported cognitive problems. Intellectual functioning was measured with the Wechsler intelligence scales. The control variables were socioeconomic status and severity of diagnosis. Results: A strong association was found between the parents ratings of cognitive problems and the childrens and adolescents results on the Wechsler scales. This association was present for all ages, including the 3-year-olds. As for the self-reports, an association was only found between the 15-year-olds self-report of cognitive problems and their results on the Wechsler scales. Conclusion: To identify children with cognitive problems as early as at the age of 3 years, parent-rated Pediatrics Quality of Life subscale: Cognitive Problems can be used as a screening tool. For 15-year-olds, the self-report ratings can be used as a screening tool. We also suggest a cutoff score of 80 for both the 15-year olds as well as the proxy reports. If the score falls below 80 the child should be formally evaluated using standardized cognitive test.
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| 4. |
- Olsson, Malin Broberg, 1971, et al.
(författare)
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Depression in mothers and fathers of children with intellectual disability
- 2001
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 45:Pt 6, s. 535-43
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Tidskriftsartikel (refereegranskat)abstract
- Parental depression was assessed using the Beck Depression Inventory (BDI) in 216 families with children with autism and/or intellectual disability (ID), and in 214 control families. Mothers with children with autism had higher depression scores (mean = 11.8) than mothers of children with ID without autism (mean = 9.2), who in turn, had higher depression scores than fathers of children with autism (mean = 6.2), fathers of children with ID without autism (mean = 5.0), and control mothers (mean = 5.0) and fathers (mean = 4.1). Forty-five per cent of mothers with children with ID without autism and 50% of mothers with children with autism had elevated depression scores (BDI > 9), compared to 15-21% in the other groups. Single mothers of children with disabilities were found to be more vulnerable to severe depression than mothers living with a partner.
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| 8. |
- Olsson, Malin Broberg, 1971, et al.
(författare)
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Sense of coherence in parents of children with different developmental disabilities
- 2002
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 46:Pt 7, s. 548-59
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: The aim of the present study was to test if Antonovsky's theory of sense of coherence can facilitate understanding: (1). individual differences in psychological adaptation in parents of children with intellectual disability (ID); and (2). why parents of children with ID generally experience higher levels of stress and depression than parents of children who develop normally. METHODS: Sense of coherence (SoC) and depression were assessed using the short SoC scale (13 items) and the Beck Depression Inventory in 216 families of children with ID and/or autism, and in 213 control families. RESULTS: It is argued that: (1). parents of children with ID with low SoC are at increased risk for developing depression compared to control parents with low SoC not experiencing this stressor; and (2). the life situation of parenting a child with ID may have a negative impact on parents' SoC levels that, in turn, will make them more vulnerable to experiencing stress and depression. CONCLUSION: The SoC theory is valuable in understanding individual differences in psychological adaptation in parents of children with ID.
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| 9. |
- Olsson, Malin Broberg, 1971, et al.
(författare)
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Socioeconomic and psychological variables as risk and protective factors for parental well-being in families of children with intellectual disabilities
- 2008
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 52:12, s. 1102-1113
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Tidskriftsartikel (refereegranskat)abstract
- Background: The first aim was to estimate the extent to which differences in well-being in parents of children with and without ID in Sweden can be accounted for by differences in the presence of the risk factors; (1) Child disability (2)socioeconomic disadvantage (3) household composition (Many children to care for, low age of the target child, and single parenthood) and (4) parental characteristics (being a woman, low age and poor subjective overall health). The second aim was concerned with individual variation in well-being within the group of parents of children with ID. The aim was to estimate if protective factors such as parental personality characteristics (sense of coherence), perceived positive impact of the child and satisfaction with participation in different arenas of life explained variation in well-being in mothers and fathers of children with ID over and above that explained by the risk factors. Method: Parents of children with ID (62 mothers and 49 fathers) and control children (183 mothers and 141 fathers) completed mailed surveys on well-being, socioeconomic situation, health, sense of coherence, satisfaction with participation in different arenas of life and the child’s impact on the family. Results: The results showed that mothers of children with ID had lower levels of well-being than fathers and control parents, but the presence of a child with ID did not in itself predict poorer maternal well-being, rather differences in economic hardship, number of children and self-rated health were the strongest predictors for well-being. It was further found that 67,7 % of the mothers of children with ID scored within the high well-being group. The predictive power of the model increased significantly for both fathers and mothers when protective factors were added to the model (42 and 78% explained variance compared to 25% with only risk factors) Conclusions: Well-being of parents with a child with ID is dependant upon the interplay of risk and protective factors and research needs to address these variables simultaneously.
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| 11. |
- Olsson, Malin Broberg, 1971, et al.
(författare)
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The relation between risk, sense of coherence and well-being in parents of children with and without intellectual disabilities
- 2008
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Ingår i: Journal of Policy and Practice in Intellectual Disability. ; 5:4, s. 227-236
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Tidskriftsartikel (refereegranskat)abstract
- Aims: The purpose of the present study was to study the nature and function of the relation between level of risk, SOC and well-being, over time, in mothers and fathers of preschool children with and without intellectual disabilities. The hypothesis that SOC functions as a moderator between risk and well-being was tested. Method: Parents of children with intellectual disabilities (62 (46 at follow-up) mothers and 49 (37 at follow-up) fathers) and control parents (178 (131 at follow-up) mothers and 141 (97 at follow-up) fathers) answered self-report measures on risk factors (child behavior problems, negative impact on the family and socioeconomic situation) and sense of coherence. Well-being and Quality of life were used as outcomes and were measured at baseline and at a one-year follow-up. The hypothesis of moderation was tested conducting multiple linear regression analyses. Results: The level of well-being was moderately stable over the two time points, with parents of children with ID having lower level of well-being than control parents both initially and after one year. Well-being was also related to level of SOC and cumulative risk with parents experiencing lower SOC or more risk also reporting lower well-being. The hypothesis of SOC acting as a moderator in the relation between cumulative risk and well-being found some support in the longitudinal analyses, but only for well-being (BDI-2r) among control mothers.
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| 14. |
- Olsson, Malin Broberg, 1971, et al.
(författare)
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Well-being, involvement in paid work and division of child-care in
- 2006
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Ingår i: Journal of Intellectual Disability Research. ; 50:12, s. 963-969
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Tidskriftsartikel (refereegranskat)abstract
- Background:*The aim of the present study was to compare mothers and fathers involvement in paid work and child-care in families of children with ID and control families and to test if differences in well-being between mothers and fathers of children with ID can be explained by gender differences in involvement in paid work and child-care. *Method:* Mothers and fathers of 179 children with ID and 196 typically developing children answered mailed surveys on their involvement in paid work, child-care tasks and well-being. Only two-parent families were included *Results: *The results showed main effects for gender of the parent and presence of a child with ID on involvement in paid work and well-being. Interaction effects indicated that mothers of children with ID were more affected than fathers in their participation in paid work and well-being. Gender differences in level of involvement in paid work and child-care explained 5% of the difference in well-being between mothers and fathers of children with ID. *Conclusions: *Further research is needed on the relation between gender, involvement in paid work, child-care and well-being in families of children with ID. However the results suggest that there is a positive relation between level of participation in paid work and well-being for both mothers and fathers.
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| 15. |
- Rensfeldt Flink, Anna, 1978, et al.
(författare)
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Following children with severe or profound intellectual and multiple disabilities and their mothers through a communication intervention: single-case mixed-methods findings
- 2023
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Ingår i: International Journal of Developmental Disabilities. - : Informa UK Limited. - 2047-3869 .- 2047-3877. ; 69:6, s. 869-887
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Tidskriftsartikel (refereegranskat)abstract
- There is limited research targeting communication interventions for children with severe/profound intellectual and multiple disabilities. This study addressed outcomes from a communication course for parents of children with severe/profound intellectual and multiple disabilities and follows up on a previous publication by Rensfeldt Flink et al. (2020). Potential observable changes in the children’s and parents’ communicative behavior were studied as well as the parents’ experiences of the intervention process and the effect of the course on parent–child communication. A mixed-methods design with a case-study framework was used. Two mother–child dyads participated. Data were collected before, during, and after the course. Video-recorded repeated play interactions by the dyads were coded and analyzed for the mothers’ responsivity and use of augmentative and alternative communication and the children’s interactive engagement. Longitudinal interview data from the mothers were analyzed thematically. No clear signs of behavioral change were observed in the coded video data. However, thematic analyses showed that the mothers experienced changes to communicative behaviors. Moreover, the course affected both mothers’ reasoning about communication with their child and their child’s communicative needs. The mothers’ narratives contributed insights into how reflective processes might guide action in parent-mediated communication interventions. Implications were discussed.
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