| 1. |
- Anmyr, Lena, et al.
(författare)
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Children with hearing impairment : living with cochlear implants or with hearing aids
- 2011
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Ingår i: International Journal of Pediatric Otorhinolaryngology. - Amsterdam : Elsevier. - 0165-5876 .- 1872-8464. ; 75:6, s. 844-849
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Tidskriftsartikel (refereegranskat)abstract
- Objective The aim of this study was to enhance knowledge about the life circumstances of children with cochlear implants or hearing aids, regarding daily functioning and attitude to the impairment. Methods Data were obtained from 36 children with cochlear implants and 38 children with hearing aids via study-specific questionnaires with fixed answer alternatives. The questions covered (1) usage of aids and related factors, (2) hearing in different everyday situations, (3) thoughts about the children's own hearing and others’ attitudes to it, and (4) choice of language. The data were analyzed using SPSS, and presented via the theoretical frame of the International Classification of Functioning, Disability and Health, Child and Youth version (ICF-CY). Results Children with CI and HA functioned equally well in daily life, but there were also certain differences. Symptoms from neck and shoulders were more common among children with hearing aids than among children with cochlear implants (p < .001). Children with hearing aids used their aids significantly less often than those with cochlear implants (p < .001). The participation variables showed that children with hearing aids had significantly more hearing problems in team sports (p = .033) and outdoor activities (p = .019), in comparison to children with cochlear implants. The two groups had similar thoughts regarding their own hearing, mostly considering it not to be a problem. They also did not generally think that other people found their hearing to be a problem. Conclusions Children with cochlear implants and children with hearing aids have, in some aspects, equally good functioning in everyday life situations. However, certain differences were found in dimensions of functioning, regarding neck and shoulder pain, usage of aids and sign language, and hearing problems in some activities.
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| 2. |
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| 3. |
- Anmyr, Lena, et al.
(författare)
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Parents' Stress and Coping Related to Children's Use of a Cochlear Implant : A Qualitative Study
- 2016
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Ingår i: Journal of Social Work in Disability & Rehabilitation. - 1536-710X .- 1536-7118. ; 15:2, s. 150-167
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Tidskriftsartikel (refereegranskat)abstract
- The aim was to increase understanding of parents' experiences of having a child with cochlear implant (CI) and to explore how these related to children's use of CI. Twelve parents of children, full-time users or limited users of CI, participated in the study. Qualitative content analysis showed that the parents of children who used their CI differed from the parents with limited users in how they handled stressors. Support from health care professionals was seen as insufficient. Parents need to get involved in dynamic processes, where health care resources promote parental coping.
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| 4. |
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| 5. |
- Anmyr, Lena, et al.
(författare)
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Sense of coherence, social networks, and mental health among children with a cochlear implant
- 2015
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Ingår i: International Journal of Pediatric Otorhinolaryngology. - : Elsevier BV. - 0165-5876 .- 1872-8464. ; 79:4, s. 610-615
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Tidskriftsartikel (refereegranskat)abstract
- Objective: The aim of this study was to explore the personal and social resources of children with a cochlear implant from a child's perspective. Method: This descriptive cross-sectional study included 19 children with cochlear implants, aged 9-12 years. Data was collected, using the children's sense of coherence (CSOC) scale, the Network map, and the strengths and difficulties questionnaire (SDQ). The data was analyzed using descriptive and correlation statistics. Results: Most children had a strong sense of coherence. School life was an important arena for their social network. The mental health was comparable to normal hearing children. Still, some of the children with implants had low SOC and poor mental health. High SOC and closeness of the social network, especially in school, were associated with good mental health. Conclusion: This study shows that Swedish school-aged children with cochlear implants as a group have access to personal and social resources as strong sense of coherence and social networks. Still, there are individual children with psychosocial problems who need support and treatment.
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| 6. |
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| 7. |
- Anmyr, Lena, et al.
(författare)
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Strengths and difficulties in children with cochlear implants : Comparing self-reports with reports from parents and teachers
- 2012
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Ingår i: International Journal of Pediatric Otorhinolaryngology. - : Elsevier BV. - 0165-5876 .- 1872-8464. ; 76:8, s. 1107-1112
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Tidskriftsartikel (refereegranskat)abstract
- Objective: The aim was to explore and compare how children with cochlear implants, their parents, and their teachers perceive the children's mental health in terms of emotional and behavioral strengths and difficulties.Methods: The self-report, parents', and teachers' versions of the Strengths and Difficulties Questionnaire (SDQ) were used to assess the mental health of 22 children with cochlear implants. The children's assessments were then compared to the parents' and 17 teachers' assessments. The data were analyzed using the SPSS software package.Results: Total difficulties (p = .000), emotional symptoms (p = .000), and conduct problems (p = .007) were greater according to the children than according to parents and teachers. Younger children (9 years, n = 12) reported more emotional symptoms than older children (12 and 15 years, n = 10). Almost a quarter of the children rated themselves in a way indicating mental ill-health. Parents and teachers each indicated mental ill-health for one child.Conclusions: Children with cochlear implants express greater concerns about their mental health than their parents and teachers do. This is important knowledge for adults in families, schools, and health care in order to support these children and offer treatment when needed.
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| 8. |
- Bjursten, Henrik, et al.
(författare)
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Once after a full moon : acute type A aortic dissection and lunar phases
- 2022
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Ingår i: Interactive Cardiovascular and Thoracic Surgery. - : Oxford University Press. - 1569-9293 .- 1569-9285. ; 34:1, s. 105-110
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVES: Acute type A aortic dissection (ATAAD) is a rare but severe condition, routinely treated with emergent cardiac surgery. Many surgeons have the notion that patients with ATAAD tend to come in clusters, but no studies have examined these observations. This investigation was undertaken to study the potential association between the lunar cycle and the incidence of ATAAD.METHODS: We collected information on 2995 patients who underwent ATAAD surgery at centres from the Nordic Consortium for Acute Type A Aortic Dissection collaboration. We cross-referenced the time of surgery with lunar phase using a case-crossover design with 2 different definitions of full moon (>99% illumination and the 7-day full moon period).RESULTS: The period when the moon was illuminated the most (99% definition) did not show any significant increase in incidence for ATAAD surgery. However, when the full moon period was compared with all other moon phases, it yielded a relative risk of 1.08 [95% confidence interval (CI) 1.00-1.17, P = 0.057] and, compared to waxing moon, only the relative risk was 1.11 (95% CI 1.01-1.23, P = 0.027). The peak incidence came 4-6 days after the moon was fully illuminated.CONCLUSIONS: This study found an overrepresentation of surgery for ATAAD during the full moon phase. The explanation for this is not known, but we speculate that sleep deprivation during full moon leads to a temporary increase in blood pressure, which in turn could trigger rupture of the aortic wall. While this finding is interesting, it needs to be corroborated and the clinical implications are debateable.
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| 9. |
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| 10. |
- Bratt, Sorosh, et al.
(författare)
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Bleeding is associated with severely impaired outcomes in surgery for acute type a aortic dissection
- 2024
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Ingår i: SCANDINAVIAN CARDIOVASCULAR JOURNAL. - 1401-7431 .- 1651-2006. ; 58:1
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Tidskriftsartikel (refereegranskat)abstract
- Background. Surgery for acute type A aortic dissection confers a risk for significant bleeding. We analyzed the impact of massive bleeding on complications after surgery for acute type A aortic dissection. Methods. Patients undergoing surgery for acute type A aortic dissection from the retrospective multicenter Nordic Consortium for Acute Type A Aortic Dissection (NORCAAD) database 2005-2014 were eligible. Massive bleeding was defined according to the Universal Definition of Perioperative Bleeding. The primary outcome measure was early mortality and secondary outcome measures were perioperative stroke, mechanical ventilation more than 48 h, new-onset dialysis, and intensive care unit stay. Propensity score matching was performed to adjust for differences in covariates. Results. Nine hundred ninety-seven patients were included, of whom 403 (40.4%) had massive bleeding. In the propensity score-matched cohort (344 pairs), patients with massive bleeding had higher 30-day mortality (17.2 versus 7.6%, p < .001), mechanical ventilation more than 48 h (52.8 versus 22.6%, p < .001), perioperative stroke (24.3 versus 14.8%, p = .002), new-onset dialysis (22.5 versus 4.9%, p < .001), and longer intensive care unit stay (6 versus 3 days, p < .001), compared with patients without massive bleeding. Risk factors for massive bleeding were previous cardiac surgery, preoperative clopidogrel or ticagrelor therapy, DeBakey type I dissection, and localized or generalized malperfusion. Conclusions. Massive bleeding in surgery for acute type A aortic dissection is associated with a markedly increased risk for severe complications as well as early death. Further improvement of surgical technique and pharmacological optimization of coagulation is paramount to possibly improve outcomes in acute type A aortic dissection repair.
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| 11. |
- Ekstedt, Mirjam, et al.
(författare)
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Health Care Professionals' Perspectives of the Experiences of Family Caregivers During In-Patient Cancer Care
- 2014
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 20:4, s. 462-486
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Tidskriftsartikel (refereegranskat)abstract
- Being a family member of a patient who is being treated in an acute care setting for cancer often involves a number of challenges. Our study describes Norwegian cancer care health professionals' perceptions of family members who served as family caregivers (FCs) and their need for support during the in-hospital cancer treatment of their ill family member. Focus group discussions were conducted with a multidisciplinary team of 24 experienced social workers, physicians, and nurses who were closely involved in the patients' in-hospital cancer treatment and care. Drawing on qualitative hermeneutic analysis, four main themes describe health professionals' perceptions of FCs during the patient's in-hospital cancer care: an asset and additional burden, infinitely strong and struggling with helplessness, being an outsider in the center of care, and being in different temporalities. We conclude that it is a challenge for health care professionals to support the family and create room for FC's needs in acute cancer care. System changes are needed in health care, so that the patient/FC dyad is viewed as a unit of care in a dual process of caregiving, which would enable FCs to be given space and inclusion in care, with their own needs simultaneously considered alongside those of the patient.
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| 12. |
- Josefsson, Cecilia, et al.
(författare)
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The Sukaribit Smartphone App for Better Self-Management of Type 2 Diabetes: Randomized Controlled Feasibility Study
- 2024
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Ingår i: JMIR Formative Research. - : JMIR Publications. - 2561-326X. ; 8
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Tidskriftsartikel (refereegranskat)abstract
- Background: A new app, Sukaribit, was designed to enable contact between the caregiver and the patient with the intent to improve self-care and glycemic control (hemoglobin A1c [HbA1c]).Objective: This study investigated the feasibility of the study methodology and the intervention in preparation for a larger effectiveness study.Methods: Adults with type 2 diabetes were recruited in this randomized controlled feasibility study with a mixed methods design. The intervention group (n=28) tried Sukaribit for 2 months. They were encouraged to report blood glucose levels and medications, and they received feedback from a physician. The control group (n=31) received standard care. Both groups were evaluated with pre and postmeasurements of glycemic control (HbA1c), diabetes distress, physical activity, and self-care. Feasibility was evaluated against 5 progression criteria regarding recruitment, study methods, and active participation.Results: Of the 5 progression criteria, only 2 were met or partially met. The recruitment process exceeded expectations, and data collection worked well for self-reported data but not for HbA1c measured with a home testing kit. The participants were less active than anticipated, and the effect sizes were small. Only the number of blood glucose tests per day was positively affected by the intervention, with 0.6 more tests per day in the intervention group.Conclusions: Recruitment of participants to a future fully powered study may work with minor adjustments. The collection of HbA1c using home testing constituted a major problem, and an alternative strategy is warranted. Finally, the app was not used as intended. In order to proceed with a larger study, the app and study procedures need improvement.
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| 13. |
- Kempen, Thomas, et al.
(författare)
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Assessment tool for hospital admissions related to medications : development and validation in older patients
- 2019
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Ingår i: International Journal of Clinical Pharmacy. - : SPRINGER. - 2210-7703 .- 2210-7711. ; 41:1, s. 198-206
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Tidskriftsartikel (refereegranskat)abstract
- Background: Medication-related hospital admissions (MRAs) are frequently used to measure outcomes in studies involving medication reviews. The process of identifying MRAs is subjective and time-consuming, and practical, validated alternatives are required.Objective: The aim of this study was to develop and validate a practical tool to identify MRAs. Setting Uppsala University Hospital, Sweden.Method: We reviewed existing literature on methods to identify MRAs. The tool AT-HARM10 was developed using an iterative process including content validity and feasibility testing. The tool's inter-rater reliability (IRR) and criterion-related validity (CRV) were assessed: four pairs of either final-year undergraduate or postgraduate pharmacy students applied the tool to one of two batches of 50 older patients' hospital admissions. Assessment of the same 100 admissions by two experienced clinicians acted as gold standard.Main outcome: measure Cohen's and Fleiss' kappa for IRR, and sensitivity, specificity, and positive and negative predictive value for CRV. Results AT-HARM10 consists of ten closed questions to distinguish between admissions that are unlikely to be and those that are possibly medication-related. The IRR was moderate to substantial (Cohen's kappa values were 0.45-0.75 and Fleiss' kappa values were 0.46 and 0.58). The sensitivity and specificity values were 70/86% and 74/70%, positive and negative predictive values were 73/74% and 71/83% respectively. Both AT-HARM10 and the gold standard identified approximately 50% of the admissions as MRAs.Conclusion: AT-HARM10 has been developed as a practical tool to identify MRAs and the tool is valid for use in older patients by final-year undergraduate and postgraduate pharmacy students.
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| 14. |
- Lalos, Ann, 1953-, et al.
(författare)
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Innehåll i socialt arbete i hälso- sjukvården
- 2014. - 1
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Ingår i: Socialt arbete i hälso- och sjukvård. - Stockholm : Natur och kultur. - 9789127134072 ; , s. 71-73
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 15. |
- Lalos, Ann, 1953-, et al.
(författare)
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Socialt arbete i hälso- och sjukvård : Villkor, innehåll och utmaningar
- 2014. - 1
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Bok (övrigt vetenskapligt/konstnärligt)abstract
- I Sverige bedrivs socialt arbete på flera arenor, inte minst inom hälso- och sjukvård där kuratorn har en central roll. Socialt arbete i hälso- och sjukvård är den första svenska läroboken som tar ett brett grepp om ämnet utifrån ett kritiskt förhållningssätt. Boken består av tre delar där den första belyser fältet ur historiskt, organisatoriskt, teoretiskt, juridiskt och professionellt perspektiv. I den andra delen tas kuratorns konkreta verksamhetsområde upp. Här beskrivs arbetet med särskilda patientkategorier som till exempel sjuka barn och äldre, beroendeproblematik, psykisk ohälsa, cancer, kris och sorg. Slutligen berörs specifika utmaningar, så som nya patient kategorier, etiska dilemman, krav på evidens och andra förändringar av kuratorsrollen i en telemedicinsk och globaliserad värld. Författarna till Socialt arbete i hälso- och sjukvård riktar sig främst till studerande inom socialt arbete, medicin och vård samt till kuratorer och andra yrkesverksamma inom hälso- och sjukvård, socialtjänst och social omsorg.
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| 16. |
- Lundberg, Tina, et al.
(författare)
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Bereavement stressors and psychosocial well-being of young adults following the loss of a parent – A cross-sectional survey
- 2018
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Ingår i: European Journal of Oncology Nursing. - : Churchill Livingstone. - 1462-3889 .- 1532-2122. ; 35, s. 33-38
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: The knowledge about young adults who have lost a parent to cancer is limited, and to reach a broader understanding about this group, this study used the Dual Process Model of Coping with Bereavement (Stroebe and Schut, 1999) as a theoretical framework. The purpose of this study was to describe loss- and restoration-oriented bereavement stressors and psychosocial wellbeing of young adults following the loss of a parent to cancer. Method: This survey used baseline data from a longitudinal study. Young adults, aged 16–28 years, who lost a parent to cancer more than two months earlier and agreed to participate in support groups held at three palliative care services in Sweden, responded to a comprehensive theory-based study-specific questionnaire. Results: Altogether, 77 young adults (64 women and 13 men) answered the questionnaire an average of five-to-eight months after the loss. Twenty percent (n = 15) had not been aware of their parent's impending death at all or only knew a few hours before the death, and 65% (n = 50) did not expect the death when it occurred. The young adults reported low self-esteem (n = 58, 76%), mild to severe anxiety (n = 55, 74%), mild to severe depression (n = 23, 31%) and low life satisfaction. Conclusion: Young adults reported overall poor psychosocial wellbeing following bereavement. The unexpectedness and unawareness of the parent's imminent death, i.e., loss-oriented bereavement stressors, might influence psychosocial wellbeing. Despite these reports, restoration-oriented stressors, such as support from family and friends, helped them to cope with the loss.
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| 17. |
- Lundberg, Tina, 1973-, et al.
(författare)
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Higher Self-Esteem Associated With Less Symptoms of Anxiety and Depression Among Young Adults After the Loss of a Parent to Cancer - A Longitudinal Study
- 2022
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Ingår i: Journal of Palliative Care. - : Sage Publications. - 0825-8597 .- 2369-5293. ; 37:2, s. 113-119
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Tidskriftsartikel (refereegranskat)abstract
- Objective: The purpose of the study was to examine associations between self-esteem and symptoms of anxiety and depression among young adults who lost a parent to cancer.Methods: Older adolescents and young adults, aged 16 to 28 years, who had lost their parent to cancer and had accepted an invitation to join a support group, completed a questionnaire 5 to 8 months after the loss and a similar questionnaire about 10 months later (follow-up). Of a total of 77 young adults who participated in the study, 56 completed both questionnaires. Self-esteem was measured with the Rosenberg Self-Esteem Scale. Symptoms of anxiety and depression were measured with the Hospital Anxiety and Depression Scale. Univariate and multiple linear regression models were used to analyze the associations.Result: Self-esteem was significantly associated with symptoms of anxiety and depression at baseline and at follow-up.Conclusion: This study reveals that self-esteem is a valuable explanatory variable, and that it is associated with both symptoms of anxiety and depression in bereavement. This new knowledge could be used to guide future support to parentally bereaved young adults.
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| 18. |
- Lundberg, Tina, 1973-, et al.
(författare)
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Poor Psychosocial Well-Being in the First Year-and-a-Half After Losing a Parent to Cancer - A Longitudinal Study Among Young Adults Participating in Support Groups
- 2020
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Ingår i: Journal of Social Work in End-of-Life & Palliative Care. - : Taylor & Francis Group. - 1552-4256 .- 1552-4264. ; 16:4, s. 330-345
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this study was to investigate variations in psychosocial well-being over time among young adults who participated in a support group after the death of a parent from cancer. Fifty-five young adults, aged 16-28 years, completed questionnaires that measured self-esteem, anxiety, depression, and life satisfaction at three time-points during the first year-and-one-half after the loss. Results indicated overall poor psychosocial well-being with few increases in psychological health over the study period, despite access to support and social networks. However, these resources may help to prevent major impairments in the participants' future lives.
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| 19. |
- Lundberg, Tina, 1973-, et al.
(författare)
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Posttraumatic Growth After Struggling With the Loss of a Parent in Young Adulthood
- 2023
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Ingår i: Omega. - : Sage Publications. - 0030-2228 .- 1541-3764.
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Tidskriftsartikel (refereegranskat)abstract
- This study aims to examine posttraumatic growth and its associations with parental bereavement among adolescents and young adults. Fifty-five young adults who had lost a parent to cancer at least 2 months earlier and were about to attend a support group at a palliative care service were recruited. Data was collected through questionnaires before support group participation, about 5-8 months after the loss and at a 6-month follow-up, about 14-18 months after the loss. The result shows that the young adults experienced posttraumatic growth, mostly in the domains Personal strength and Appreciation of life. Posttraumatic growth was associated with bereavement outcomes, especially life satisfaction, a feeling of meaning in future life and psychological health. The result is of value for health care professionals as it adds information about the importance of supporting constructive rumination to enhance the possibility to positive psychological change after a parent's death.
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| 20. |
- Lundberg, Tina, 1973-, et al.
(författare)
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The perspectives of bereaved family members on their experiences of support in palliative care
- 2013
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Ingår i: International Journal of Palliative Nursing. - : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 19:6, s. 282-288
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To explore family members’ supportive interactions in palliative care and the emotional experiences that they associate with these interactions. Methods: Qualitative individual interviews were performed with bereaved family members recruited from an urban palliative care service in Sweden. The interviews were analysed using inductive qualitative content analysis. Results: Five categories of supportive interactions with staff members were linked with emotional consequences: informational support, supportive encounters, professional focus of staff, a supportive environment, and bereavement support. Having a dialogue with family members nurtured certainty and security, supportive encounters gave a warm and comforting feeling, and bereavement support contributed to feelings of strength. Environmental factors contributed to dignity. Conclusion: Supportive interactions with staff and within a home-like environment help to build resilience if tailored to the family member’s own needs.
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| 21. |
- Melin Emilsson, Ulla, et al.
(författare)
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Socialt arbete och sjuka äldre
- 2014
-
Ingår i: Socialt arbete i hälso- och sjukvård - villkor, innehåll och utmaningar. - Stockholm : Natur och kultur. - 9789127134072
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Bokkapitel (refereegranskat)
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| 22. |
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| 23. |
- Nilsson, Marie I, et al.
(författare)
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Adjustment and social support at work early after breast cancer surgery and its associations with sickness absence
- 2013
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Ingår i: Psycho-Oncology. - : Wiley. - 1057-9249 .- 1099-1611. ; 22:12, s. 2755-62
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Tidskriftsartikel (refereegranskat)abstract
- INTRODUCTION: As half of the women with breast cancer are of working ages and usually survive, knowledge is needed on how to support them early regarding work-related problems caused by treatments. Most previous studies have focused on individual and disease-related factors, whereas few have focused on work-related factors such as work adjustment and social support. The aim of this study was to investigate received and perceived social support from supervisor and colleagues as well as work adjustments, and their associations with sickness absence, among women who recently had had breast cancer surgery.METHOD: Inclusion criteria were as follows: women aged 20-63 years, living in Stockholm County, treated surgically for a first diagnosis of breast cancer, literate in Swedish, without pre-surgical chemotherapy or known distant metastases. Included in the study were 605 women who worked at diagnosis and that had answered a questionnaire within eight weeks of inclusion. Descriptive statistics, univariate, and multivariable logistic regression analyses were applied to estimate odds ratios (OR) with 95% confidence intervals (CI) for the likelihood of being sickness absent.RESULTS: Most women perceived and received social support and work adjustment after breast cancer surgery. Low adjustment (OR = 2.14; 95% CI, 1.45-3.18) and less social support (OR = 1.80; 95% CI, 1.16-2.78) were significantly associated with being sickness absent. Adjusting for sociodemographics, strenuous work posture, and treatment did not attenuate these associations.CONCLUSION: Adjustment at work and social support from employer are associated with sickness absence and needs to be explored in discussions on return to work after breast cancer surgery. Copyright © 2013 John Wiley & Sons, Ltd.
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| 24. |
- Nilsson, Marie I, et al.
(författare)
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Changes in importance of work and vocational satisfaction during the 2 years after breast cancer surgery and factors associated with this
- 2016
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Ingår i: Journal of cancer survivorship. - : Springer Science and Business Media LLC. - 1932-2259 .- 1932-2267. ; 10:3, s. 564-572
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: The purpose of this study is to investigate how women, during the 2 years following breast cancer surgery, rate importance of work and vocational satisfaction, and baseline factors associated with rating over time.METHODS: A prospective cohort study of 692 women aged 20-63 included about 4 weeks after a first breast cancer surgery. Register data on treatment and data from six repeated questionnaires during a 2-year follow-up (at baseline, 4, 8, 12, 18, 24 months) were used in two-way mixed repeated analysis of variance and mixed repeated measures analysis of covariance.RESULTS: The women rated importance of work (m = 3.74; sd 0.88) (maximum 5) and vocational satisfaction (m = 4.30; sd 1.38) (maximum 6) high during the 2 years. Women with planned chemotherapy rated lower vocational satisfaction and especially so at 4 months after inclusion (F 1, 498 = 8.20; p = 0.004). Higher age, better physical, and mental/social work ability at baseline influenced rating of vocational satisfaction. Supportive colleagues was an important covariate that significantly affected ratings of importance of work as well as vocational satisfaction, i.e., women with better support rated on average higher on these outcomes. The effect of chemotherapy disappeared after including the abovementioned baseline covariates.CONCLUSIONS: Women diagnosed with breast cancer in the following 2 years rate importance of work and vocational satisfaction high, which are associated to lower work ability and social support.IMPLICATIONS FOR CANCER SURVIVORS: Work is a very important aspect in life also after a cancer diagnosis, which has to be acknowledged when discussing treatment and rehabilitation plans with women with breast cancer. Furthermore, workplace support needs to be assessed as this is an influential factor.
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| 25. |
- Nilsson, Marie I, et al.
(författare)
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Women's reflections and actions regarding working after breast cancer surgery - a focus group study
- 2013
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Ingår i: Psycho-Oncology. - : Wiley. - 1057-9249 .- 1099-1611. ; 22:7, s. 1639-44
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: To better understand processes affecting return to work (RTW) after breast cancer, more knowledge from the perspective of sickness absentees is warranted. Still, research based on women's own reasoning and actions in RTW is very scarce. This study aims to elucidate how women with breast cancer reflect and act on work-related issues.MATERIAL AND METHODS: Thematic analyses of data from four focus group interviews with 23 women who had had breast cancer surgery in the previous 3-13 months were carried out.RESULTS: The five following themes of reflections regarding RTW were identified: 'health and functioning', 'self-esteem/integrity', 'value of work', 'relationships at work', and 'social circumstances'. These reflections were associated with the three identified themes of actions taken by the women: 'to work or to be sickness absent', 'to adjust work according to own needs or not', and 'to disclose or to hide one's cancer'. There was a distinct difference between women who experienced work as a source of well-being and those who needed a respite from work.CONCLUSION: This study adds knowledge to the process of RTW after breast cancer and focuses on factors that lead the women to an active role in this process. We point to the interplay between women's own preferences, perceived competence, outer opportunities, and the actions each woman take with regard to RTW, which need to be recognized by all stakeholders involved. Furthermore, it continues to be essential to address the specific issue of disclosure in the workplace because this may be distressing for women.
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| 26. |
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| 27. |
- Olsson, Mariann, et al.
(författare)
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Life satisfaction of women of working age shortly after breast cancer surgery
- 2017
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Ingår i: Quality of Life Research. - : Springer. - 0962-9343 .- 1573-2649. ; 26:3, s. 673-684
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: To explore, among women of working age, satisfaction with life as a whole and with different life domains, and its associations with social and health variables, shortly after breast cancer surgery.METHODS: This cross-sectional study included 605 women, aged 20-63 years, who had had breast cancer surgery with no distant metastasis, pre-surgical chemotherapy, or previous breast cancer. Associations between LiSat-11 and demographic and social factors as well as health- and treatment-related variables were analysed by multivariable logistic regression.RESULTS: Compared with Swedish reference levels, the women were, after breast cancer surgery, less satisfied with life, particularly sexual life. Women working shortly after breast cancer surgery were more often satisfied with life in provision domains compared with the reference population. Although most included variables showed associations with satisfaction, after adjustment for all significantly associated variables, only six variables-having children, being in work, having emotional and informational social support, and having good physical and emotional functioning-were positively associated with satisfaction with life as a whole. The odds ratios for satisfaction were higher in most life domains if the woman had social support and good emotional and cognitive functioning.CONCLUSIONS: One month after breast cancer surgery, satisfaction with different life domains was associated primarily with social support and health-related functioning. However, this soon after surgery, treatment-related variables showed no significant associations with life satisfaction. These results are useful for planning interventions to enhance e.g. social support and emotional as well as cognitive functioning.
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| 28. |
- Olsson, Mariann, et al.
(författare)
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Psychosocial Well-Being of Young People Who Participated in a Support Group Following the Loss of a Parent to Cancer
- 2017
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Ingår i: Journal of Social Work in End-of-Life and Palliative Care. - : Informa UK Limited. - 1552-4256 .- 1552-4264. ; 13:1, s. 44-60
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Tidskriftsartikel (refereegranskat)abstract
- Despite the evidence of unmet support needs among young people who have lost a parent to cancer, only a few support group initiatives have been reported. This observational prospective study explored the psychosocial well-being of young people who participated in support groups at a Swedish specialist palliative care setting. On three occasions, 29 participants, aged 16–28 years, answered questionnaires covering characteristics of the participants, circumstances of the losses, psychosocial well-being of the young people, and their own assessment of the support groups. The support groups attracted mostly young women who were often unprepared for the loss. The living arrangements differed between younger and older participants; however, the loss-related variables did not differ. Significant positive changes were found regarding a sense of meaning in their future life and life satisfaction. The helpfulness of the group was assessed as high/very high and the group brought a valuable fellowship with others in a similar situation. Universality and beneficial interactions were reported and strengthened psychosocial well-being developed over time. This change, according to the young people themselves, may be attributed to the group support. The findings are useful for planning interventions to support young people in bereavement in order to enhance their psychosocial well-being.
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| 29. |
- Oudin, Anna, et al.
(författare)
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Impact of national holidays and weekends on incidence of acute type A aortic dissection repair
- 2022
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Ingår i: Scientific Reports. - : Nature Publishing Group. - 2045-2322. ; 12:1
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Tidskriftsartikel (refereegranskat)abstract
- Previous studies have demonstrated that environmental and temporal factors may affect the incidence of acute type A aortic dissection (ATAAD). Here, we aimed to investigate the hypothesis that national holidays and weekends influence the incidence of surgery for ATAAD. For the period 1st of January 2005 until 31st of December 2019, we investigated a hypothesised effect of (country-specific) national holidays and weekends on the frequency of 2995 surgical repairs for ATAAD at 10 Nordic cities included in the Nordic Consortium for Acute Type A Aortic Dissection (NORCAAD) collaboration. Compared to other days, the number of ATAAD repairs were 29% (RR 0.71; 95% CI 0.54–0.94) lower on national holidays and 26% (RR 0.74; 95% CI 0.68–0.82) lower on weekends. As day of week patterns of symptom duration were assessed and the primary analyses were adjusted for period of year, our findings suggest that the reduced surgical incidence on national holidays and weekends does not seem to correspond to seasonal effects or surgery being delayed and performed on regular working days.
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| 30. |
- Petersson, Lena-Marie, et al.
(författare)
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How do women value work shortly after breast cancer surgery and are their valuations associated with being on sick leave?
- 2013
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Ingår i: Journal of occupational rehabilitation. - : Springer Science and Business Media LLC. - 1053-0487 .- 1573-3688. ; 23:3, s. 391-9
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: To investigate how working women, in different age and educational groups who have recently had breast cancer surgery, value work (in terms of importance, satisfaction, and dedication), and whether their valuations are associated with sick leave.METHOD: This cross-sectional study investigated the value of work and its relation to sickness absence among women in Sweden who had had breast cancer surgery, were aged 20-63 years, and worked before diagnosis (n = 605). A questionnaire was distributed at inclusion, about 4-8 weeks after surgery. Inferential statistics and logistic regression were used to estimate odds ratio (ORs) with 95 % confidence intervals (CIs).RESULTS: Two-thirds of the women viewed work as one of the most important things in their lives; 86 % stated that their job provided personal satisfaction; and 54 % rated their vocational situation as satisfying. Older women (≥52 years) were more vocationally satisfied (p = 0.021), as too were those with higher education (p = 0.035). Women with higher education were also more dedicated to their work (p = 0.020). Univariate analyses revealed associations of low vocational satisfaction, younger age and wanting to change profession with sickness absence. Low vocational satisfaction (OR 2.38, 95 % CI 1.66-3.41) and younger age (<52 years) (OR 1.44, 95 % CI 1.02-2.03) remained associated with sick leave in the multivariate analysis.CONCLUSIONS: Shortly after breast cancer surgery, most women valued work highly, even as one of the most important things in their lives. Accordingly, it is essential to include aspects of work early on in these patients' treatment and rehabilitation plans.
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| 31. |
- Petersson, Lena-Marie, et al.
(författare)
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Sickness absence following breast cancer surgery : a two-year follow-up cohort study
- 2018
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 32:2, s. 715-724
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Tidskriftsartikel (refereegranskat)abstract
- Rationale and aimMost women of working ages with limited breast cancer (BC) have returned to work within the first year after diagnosis. However, little is known about what is happening during this year regarding sickness absence and return to work. Also, the knowledge is very limited about the occurrence of part‐time sickness absence after BC diagnosis. Therefore, the aim of this study was to describe occurrence, extent and length of SA during a two‐year follow‐up after BC surgery and to analyse the association between being SA and type of cancer treatment.MethodsIn this prospective cohort study, 497 women responded to questionnaires about different aspects of sickness absence at six occasions during two years after primary BC surgery (at baseline and after 4, 8, 12, 18 and 24 months). Treatment information was obtained from the National breast cancer register. Multinomial logistic regression was used to calculate odds ratios (OR) for likelihood of being sickness absent more than once.ResultsTwo‐thirds of the women were sickness absent at baseline; this proportion decreased, especially during the first eight months. At 24 months, 13% were sickness absent. Of all women, 27% never reported sickness absence and 14% were sickness absent at most of the six survey times. At eight months, many had shifted from full‐ to part‐time sickness absence. Women with chemotherapy and/or advanced BC surgery had higher ORs for being sickness absent at most of the follow‐ups.ConclusionsMost women returned to work within the first eight months after BC surgery and of those sickness absent after that, most had been part‐time sickness absent. Thus, it is important to differentiate between part‐ and full‐time sickness absence in future studies. Special attention should be paid to the impact of chemotherapy and type of surgery on the likelihood of being sickness absent.
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| 32. |
- Stenberg, Una, et al.
(författare)
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Family Caregivers of Cancer Patients : Perceived Burden and Symptoms During the Early Phases of Cancer Treatment
- 2014
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Ingår i: Social work in health care. - : Informa UK Limited. - 0098-1389 .- 1541-034X. ; 53:3, s. 289-309
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Tidskriftsartikel (refereegranskat)abstract
- This study investigated levels of symptoms, caregiver burden, and changes over time in 278 family caregivers (FC) of cancer patients. FCs experienced high levels of depressive symptoms and sleep disturbance, low levels of fatigue, and low to moderate levels of caregiver burden, yet these symptoms remained relatively stable over time. Being female and not being employed were factors associated with an increased risk of symptoms and caregiver burden. The understanding evolving from this study can enhance social- and health care professionals' awareness of FCs' challenging situation and the potential impact this has on the FCs' ability to provide care to the patient.
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| 33. |
- Stenberg, Una, et al.
(författare)
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Living Close to a Person With Cancer : A Review of the International Literature and Implications for Social Work Practice
- 2014
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Ingår i: Journal of gerontological social work. - : Informa UK Limited. - 0163-4372 .- 1540-4048. ; 57:6-7, s. 531-555
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Forskningsöversikt (refereegranskat)abstract
- To help family caregivers (FCs), social workers need to understand the complexity of FC's experiences and challenges. For this systematic review, several relevant, multidisciplinary electronic databases were searched. Of 1,643 titles identified, 108 articles met the inclusion criteria and are included in this review. Various experiences, symptoms, and burden related to caregiving responsibilities are described and discussed. The understanding evolving from this study about the FC's own health risk, caregiver burden, and experiences over time can enhance a social worker's awareness of an FC's challenging situation and the potential impact this has on the FC's ability to provide care to the patient.
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| 34. |
- Stenberg, Una, et al.
(författare)
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To Live Close to a Person With Cancer : Experiences of Family Caregivers
- 2012
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Ingår i: Social work in health care. - : Informa UK Limited. - 0098-1389 .- 1541-034X. ; 43, s. S11-S11
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this study was to obtain a deeper understanding of the experiences of Family Caregivers (FC) living close to a patient with cancer. This article reports on the findings from individual interviews with 15 FCs of patients with cancer. The interview transcripts were analyzed using qualitative hermeneutic analysis. This study revealed that living close to a cancer patient over the course of his or her illness affected many aspects of FCs lives in significant ways. Their experiences can be summarized with two major themes: (1) living in an ever changing life world and (2) balancing between conflicting interests and dilemmas. This study contributed to deeper insights into FC's experiences than previously reported in the literature.
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| 35. |
- Stenberg, Una, et al.
(författare)
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To Live Close To A Person With Cancer : Experiences Of Family Caregivers
- 2012
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Ingår i: Annals of Behavioral Medicine. - New York City : Springer. - 0883-6612 .- 1532-4796. ; 43:Suppl. 1, s. S11-S11
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Tidskriftsartikel (refereegranskat)abstract
- A cancer diagnosis affects not only the patient, but also Family Caregivers (FCs) and close friends. The purpose of this study was to obtain an in-depth understanding of the experiences of FCs living close to a person with cancer. A convenience sample of 15 FCs, five men and 10 women age 35 to 77, was recruited through the Norwegian Cancer Society’special interest groups. Nine were spouses, five were sons/daughters and one was a sister. FCs participated in individual interviews using a thematic interview guide. Audio-taped interviews were transcribed and analyzed using qualitative hermeneutic analysis. Two major themes emerged from the interviews: The first theme that became apparent was that living close to a cancer patient over the course of his or her illness affected many aspects of FCs’ lives in significant ways. Most challenging were changes and disruptions in daily life, more responsibilities on the part of the FC, changes in roles, social life, in relationships and personal strength in different ways than before. The second major theme was that living close to a cancer patient is to live and work in a world of constant tension, conflicting interests and dilemmas. FCs experienced a constant need to balance different demands, needs, the known with the unknown, and to manage uncertainty and the experience of being helpless and skilled at the same time. This study contributed to deeper insights into FCs experiences than previously reported in the literature. It also became apparent that FCs could greatly benefit from support that help them fulfill their desired roles as primary source of social and emotional support for patients, while being able to maintain their own health and well-being at the same time.
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| 36. |
- Wennman-Larsen, Agneta, et al.
(författare)
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Arm morbidity and sick leave among working women shortly after breast cancer surgery
- 2013
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Ingår i: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 17:1, s. 101-6
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: There is limited knowledge about the impact of arm morbidity on sick leave in the immediate period after breast cancer surgery.PURPOSE: To determine if arm morbidity was associated with sick leave shortly after breast cancer surgery and to investigate the association between arm morbidity and sick leave, adjusted for treatment, work characteristics, co-morbidity, time since surgery, and sociodemographic factors.SAMPLE AND METHODS: Included were 511 women who within 12 weeks had had breast cancer surgery, were aged 20-63 years, had no distant metastasis, pre-surgical chemotherapy, or previous breast cancer, and worked ≥75% before breast cancer diagnosis. Percentages and odds ratios (OR) for being on sick leave were calculated, using multivariable analyses.RESULTS: Of the women, 10% reported arm morbidity, 43% had had a total axillary clearance, and 60% were on sick leave. In multivariable analysis, those with planned chemotherapy had the highest OR (4.69; 95% CI 2.97-7.41) for being on sick leave. Nevertheless, those reporting arm morbidity had the second highest OR (2.71; 1.23-5.97) which was higher than if having strenuous work postures (2.49; 1.50-4.15) or having had an axillary clearance (1.64; 1.04-2.60).CONCLUSION: Arm morbidity is an important factor for whether being on sick leave or not shortly after breast cancer surgery, even more important than type of axillary surgery or work situation. However, planned chemotherapy had the greatest impact for being on sick leave already shortly after breast cancer surgery.
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| 37. |
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| 38. |
- Wennman-Larsen, Agneta, et al.
(författare)
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Sickness absence in relation to breast and arm symptoms shortly after breast cancer surgery
- 2013
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Ingår i: Breast. - : Elsevier BV. - 0960-9776 .- 1532-3080. ; 22:5, s. 767-772
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: To determine whether and, to what extent, breast and arm symptoms are associated with sick leave (SL) shortly after breast cancer (BC) surgery, and to investigate the associations of these symptoms and different surgical procedures with SL, adjusting for age and work posture. Women (n = 511), aged 26-63 years, who worked ≥75% before a BC diagnosis, were included within 12 weeks of surgery. RESULTS: 31% reported breast symptoms and 22% arm symptoms; and, of these, 47% reported both. Having strenuous work postures increased the OR for being on SL most (OR 2.60), followed by breast symptoms (OR 2.40), more extensive axillary (OR 2.24) or breast surgery (OR 2.13), and arm symptoms (OR 2.06). CONCLUSIONS: Breast and arm symptoms are as strongly associated with being on SL as types of breast and/or axillary surgery. Early self-reported symptoms are important to consider in guidelines for SL and rehabilitation after BC surgery.
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