| 1. |
- Billaud Feragen, Kristin, et al.
(författare)
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Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child
- 2017
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Ingår i: Journal of Plastic Surgery and Hand Surgery. - : TAYLOR & FRANCIS LTD. - 2000-656X .- 2000-6764. ; 51:1, s. 81-87
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Tidskriftsartikel (refereegranskat)abstract
- Background and aim: Few studies have explored childrens emotional and behavioural reactions to cleft surgery and treatment-related stress. The objective was to investigate parents evaluations of appearance and treatment outcomes in their 5-year-old child with unilateral cleft lip and palate (UCLP), and their perceptions of how their child was coping with treatment, comparing this information with recorded postsurgical complications.Design: Three parallel group randomised clinical trials were undertaken as an international multicentre study by 10 cleft teams in five countries: Denmark, Finland, Sweden, Norway, and the UK.Methods: Three different surgical procedures for primary palatal repair were tested against a common procedure in the total cohort of 448 children born with a non-syndromic UCLP. A total of 356 parents completed the Scandcleft Parent Questionnaire, and 346 parents completed the Cleft Evaluation Profile.Results: The results indicated that the majority of parents were satisfied with cleft-related features of their childs appearance. Further, most children coped well with treatment according to their parents. Nevertheless, 17.5% of the children showed minor or short-term reactions after treatment experiences, and 2% had major or lasting difficulties. There were no significant relationships between parent perceptions of treatment-related problems and the occurrence of post-surgical medical complications.Conclusions: Most parents reported satisfaction with their childs appearance. However, treatment-related problems were described in some children, urging cleft centres to be aware of potential negative emotional and behavioural reactions to treatment in some young children, with a view to preventing the development of more severe treatment-related anxiety.
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| 2. |
- Feragen, Kristin, Billaud, et al.
(författare)
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Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child's cleft diagnosis
- 2017
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Ingår i: Journal of Plastic Surgery and Hand Surgery. - : Taylor & Francis. - 2000-656X .- 2000-6764. ; 51:1, s. 73-80
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Tidskriftsartikel (refereegranskat)abstract
- Background and aim:Parents of children with a cleft lip and palate may be emotionally affected by the child’s diagnosis. Their experiences and perceptions are important when evaluating the complexity of satisfactory treatment outcomes. The objective was to examine parents’ social and emotional experiences related to their child’s cleft diagnosis, and their perceptions of the child’s adjustment to living with a visible difference. Design:International multicentre study by 10 cleft teams in five countries: Denmark, Finland, Sweden, Norway, and the UK. Methods:A cohort of 448 children born with a non-syndromic UCLP were included. A total of 356 parents completed the Scandcleft Parent Questionnaire. Results:The majority of parents experienced practical and emotional support from family, friends, and health professionals. Nevertheless, parents had to cope with other people’s reactions to the cleft, experiences that were described as ranging from hurtful to neutral and/or positive. According to parents, 39% of the children had experienced cleft-related comments and/or teasing. More than half of the parents reported specific worries related to their child’s future. Conclusion:While the majority of the parents experienced positive support and coped well with the child’s diagnosis, some parents were at risk for psychological and emotional challenges that should be identified by the cleft team. To optimise outcomes and the child’s adjustment, these parents should be offered psychological support when necessary. Trial registration:ISRCTN29932826. [ABSTRACT FROM AUTHOR]
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| 3. |
- Kling, Johanna, 1986, et al.
(författare)
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Systematic review of body image measures
- 2019
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Ingår i: Presented at the National Eating Disorders Symposium, Stockholm, January 28, 2019.
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- This systematic review synthesized and critically appraised measurement properties of influential body image measures. Nine measures that met the definition of an assessment of body image (i.e., an individual’s cognitive or affective evaluation of their body or appearance with a positive or negative valence’), and scored high on systematic expert priority ranking, were included. These measures were: the Body Appreciation Scales (BAS/BAS-2; Avalos, Tylka, & Wood-Barcalow, 2005; Tylka & Wood-Barcalow, 2015b); the Body Esteem Scale for Adolescents and Adults (BESAA; Mendelson, Mendelson & White, 2001); the Body Image States Scale (BISS; Cash, Fleming, Alindogan, Steadman, & Whitehead, 2002); the Body Shape Questionnaire (BSQ; Cooper, Taylor, Cooper, & Fairburn, 1987); the Centre for Appearance Research Valence Scale (CARVAL; Moss & Rosser, 2012); the Drive for Muscularity Scale (DMS; McCreary & Sasse, 2000); the Weight and Shape Concerns subscales of the Eating Disorders Examination Questionnaire (EDE-Q; Fairburn & Beglin, 1994); the Body Dissatisfaction subscale of the Eating Disorder Inventory 3 (EDI-3; Garner, 2004), and the Appearance Evaluation subscale and Body Areas Satisfaction Scale of the Multidimensional Body Relations Questionnaire (MBSRQ; Brown, Cash, & Mikulka, 1990).. Articles assessing these scales’ psychometric properties (N = 139) were evaluated for their methodological quality using the Consensus-based Standards for the selection of health Measurement Instruments (COSMIN) checklist, and a best evidence synthesis was performed. The results supported the majority of measures in terms of reliability and validity, however, suitability varied across populations, and some measurement properties were insufficiently evaluated. The measures are discussed in detail, including recommendations for their future use in research and clinical practice.
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| 4. |
- Kling, Johanna, 1986, et al.
(författare)
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Systematic review of body image measures
- 2019
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Ingår i: Body image. - : Elsevier BV. - 1740-1445. ; 30, s. 170-211
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Forskningsöversikt (refereegranskat)abstract
- This systematic review synthesizes and critically appraises measurement properties of influential body image measures. Eight measures that met the definition of an assessment of body image (i.e., an individual’s cognitive or affective evaluation of their body or appearance with a positive or negative valence), and scored high on systematic expert priority ranking, were included. These measures were: the Body Appreciation Scale (original BAS and BAS-2), the Body Esteem Scale for Adolescents and Adults, the Body Shape Questionnaire, the Centre for Appearance Research Valence Scale, the Drive for Muscularity Scale, two subscales of the Eating Disorders Examination Questionnaire, one subscale of the Eating Disorder Inventory 3, and two subscales of the Multidimensional Body Relations Questionnaire. Articles assessing these scales’ psychometric properties (N = 136) were evaluated for their methodological quality using the Consensus-based Standards for the selection of health Measurement Instruments (COSMIN) checklist, and a best evidence synthesis was performed. The results supported the majority of measures in terms of reliability and validity; however, suitability varied across populations, and some measurement properties were insufficiently evaluated. The measures are discussed in detail, including recommendations for their future use in research and clinical practice.
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| 5. |
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| 6. |
- Persson, Martin, 1971-, et al.
(författare)
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Cutting edge training : upskilling health professionals in psychological care for patients undergoing appearance-altering procedures
- 2018
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Ingår i: Journal of Aesthetic Nursing. ; 7:10, s. 522-529
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Tidskriftsartikel (refereegranskat)abstract
- The number of patients undergoing appearance-altering procedures is increasing, whether they do so as treatment for an existing condition or as an elected cosmetic procedure. Consequently, many patients experience difficulties in coming to terms with changes to their looks, or may have unrealistic expectations of the outcomes and impacts of the treatment. Despite clear evidence that psychological factors play a significant part in many aspects of cosmetic surgery, patients often have very limited or even non-existent access to psychological input as part of their treatment. Therefore, a European Union-funded consortium initiated a survey of 66 healthcare professionals (HCPs) working in the medical aesthetics sector from Bulgaria, Italy, Norway and Romania with the aim of ascertaining their views on the need to enhance psychosocial care, the need for appropriate training and the willingness of HCPs in this sector to undertake this training if available. The results show that there is a pressing need to develop high quality, evidence-based, relevant vocational educational training for those specialising in the care of patients undergoing appearance-related surgery and associated treatments.
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| 7. |
- Persson, Martin, et al.
(författare)
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Cutting edge training : upskilling health professionals in psychological care for patients undergoing appearance-altering procedures
- 2018
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Ingår i: Journal of Aesthetic Nursing. - 2050-3717. ; 7:10, s. 522-529
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Tidskriftsartikel (refereegranskat)abstract
- The number of patients undergoing appearance-altering procedures is increasing, whether they do so as treatment for an existing condition or as an elected cosmetic procedure. Consequently, many patients experience difficulties in coming to terms with changes to their looks, or may have unrealistic expectations of the outcomes and impacts of the treatment. Despite clear evidence that psychological factors play a significant part in many aspects of cosmetic surgery, patients often have very limited or even non-existent access to psychological input as part of their treatment. Therefore, a European Union-funded consortium initiated a survey of 66 healthcare professionals (HCPs) working in the medical aesthetics sector from Bulgaria, Italy, Norway and Romania with the aim of ascertaining their views on the need to enhance psychosocial care, the need for appropriate training and the willingness of HCPs in this sector to undertake this training if available. The results show that there is a pressing need to develophigh quality, evidence-based, relevant vocational educational training for those specialising in the care of patients undergoing appearance-related surgery and associated treatments.
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| 8. |
- Stiernman, Mia, et al.
(författare)
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Parental and health care professional views on psychosocial and educational outcomes in patients with cleft lip and/or cleft palate
- 2019
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Ingår i: European Journal of Plastic Surgery. - : Springer Science and Business Media LLC. - 0930-343X .- 1435-0130. ; 42:4, s. 325-336
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Tidskriftsartikel (refereegranskat)abstract
- Background: Earlier research has investigated psychosocial and educational issues in populations of patients with cleft identifying several areas of concern. The objective of this study was to investigate current beliefs and knowledge about psychosocial and educational issues in parents and health care professionals (HCP) of children with cleft lip and/or palate (CL/P). Method: Parents were interviewed concerning the view of society on people with visible differences, their child’s social life, educational progress, and information regarding psychosocial care. Interviews with HCPs concerned characteristics related with educational achievement, behavior, and social relationships. Fifteen parents of children 9 to 13 years of age with CL/P and 10 HCPs and were interviewed. Data from interviews was analyzed with thematic analysis. Results: Eight children were reported to have emotional issues related to their cleft. Eleven parents, however, did not perceive that their child was treated differently in society. HCPs expressed concerns regarding for example coping with being different, low self-esteem, shyness, disadvantage on first impression, and acceptance of themselves. A majority of the HCPs did not think patient cognition and behavioral or physical development were specifically affected. Conclusions: The results revealed that parent experience and views were diverse—from no specific problems related to the cleft, to both emotional and educational issues. The beliefs and level of knowledge in HCPs also varied. All HCPs, however, wished for more information and training regarding psychosocial issues. Level of Evidence: Level VI, Diagnostic/Qualitative study.
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| 9. |
- Stiernman, Mia, et al.
(författare)
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Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ)
- 2019
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Ingår i: European Journal of Plastic Surgery. - : Springer Science and Business Media LLC. - 0930-343X .- 1435-0130. ; 42:6, s. 583-592
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Tidskriftsartikel (refereegranskat)abstract
- Background: There has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Appearance and Speech Questionnaire (CHASQ) into eight European languages, to investigate whether levels of PRO in patients with cleft lip and/or cleft palate (CL/P) were comparable across countries and to investigate clinician experience of the instrument. Methods: The PRO measure—CHASQ—was translated into Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish and implemented with patients in the respective countries. A focus group discussion was conducted to investigate health care professional experience on the use of CHASQ in their clinics. Data was analysed in accordance with the principles of thematic analysis. Results: Analysis showed statistically significant differences between countries and groups of diagnosis in CHASQ scores. CHASQ helped clinicians gain patient information and informed on treatment decisions, broadened the clinicians’ role as caregivers and was perceived as short and easy to use. Limited time and resources in clinics were limitations in implementing the instrument. Conclusions: Translation and utilization of CHASQ facilitated international comparison and cooperation. Linguistically, valid replicas of CHASQ are now available in many European languages. Results from this study show that CHASQ may be used for collection of PRO on patient satisfaction and to spark conversation between clinicians, patients and families. Level of evidence: Not rateable.
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