| 1. |
- Ali, Lilas, 1985-, et al.
(författare)
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Att använda internet vid datainsamling
- 2017. - 2
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Ingår i: Vetenskaplig teori och metod. - Lund : Studentlitteratur AB. - 9789144113289 ; , s. 217-232
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Bokkapitel (refereegranskat)
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| 2. |
- Ali, Lilas, 1981, et al.
(författare)
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Caring Situation, Health, Self-efficacy, and Stress in Young Informal Carers of Family and Friends with Mental Illness in Sweden
- 2015
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Ingår i: Issues in Mental Health Nursing. - New York, NY : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 36:6, s. 407-415
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Tidskriftsartikel (refereegranskat)abstract
- This study compared the caring situation, health, self-efficacy, and stress of young (16-25) informal carers (YICs) supporting a family member with mental illness with that of YICs supporting a friend. A sample of 225 carers, assigned to a family group (n = 97) or a friend group (n = 128) completed the questionnaire. It was found that the family group experiences a lower level of support and friends experienced a lower positive value of caring. No other differences in health, general self-efficacy and stress were found. YICs endure different social situations, which is why further study of the needs of YICs, especially those supporting friends, is urgently needed.
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| 3. |
- Ali, Lilas, 1981, et al.
(författare)
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Daily life for young adults who care for a person with mental illness: a qualitative study
- 2012
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Chichester : Wiley. - 1351-0126 .- 1365-2850. ; 19:7, s. 610-617
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Tidskriftsartikel (refereegranskat)abstract
- Accessible summary The burden of caring for a person with mental illness has been transferred to families and close friends. Daily life for young informal carers is unpredictable and they need to stay alert and prepared for events beyond their control. Young informal carers are concerned young adults who support a family member or friend unconditionally. Supporting a friend is related to as a great a sense of individual responsibility as supporting a family member. Abstract This study describes the daily life and management strategies of young informal carers of family members or friends with mental illness. Twelve young adults (three men and nine women; 1625 years old) in Sweden were voluntarily recruited between February and May 2008. Data collected through eight individual semi-structured interviews and one focus group interview were analysed using qualitative content analysis. The findings revealed nine subthemes that were further grouped into three main themes: showing concern, providing support and using management strategies. Participants lived in constant readiness for something unexpected to happen to the person they cared for, and their role in the relationship could change quickly from family member or friend to guardian or supervisor. Supporting a friend was considered as large a personal responsibility as supporting a family member. Their management strategies were based on individual capacities and their ability to step aside should the situation become too demanding. These young informal carers need support in caring for the mentally ill. As the internet becomes increasingly fundamental to daily life, support could be provided most effectively through person-centred web sites.
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| 4. |
- Ali, Lilas, 1981-, et al.
(författare)
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Effectiveness of Web-Based versus Folder Support Interventions for Young Informal Carers of Persons with Mental Illness : a Randomized Controlled Trial
- 2013
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Konferensbidrag (refereegranskat)abstract
- Background: Changes in psychiatric services mean more young persons have to care for a mentally ill family member or friend while they themselves are in the sensitive transition to adulthood.Objective: Compare the impact of two interventions, a web-based support and a folder support, for young persons who care for people who suffer from mental illness.Method: This study was a randomized control trial, following the CONSORT statements and eConsort support. Primary outcome variable was stress, and secondary outcome variables were caring situation, general self-efficacy, well-being, health, and quality of life of young informal carers (N=241). Data were collected in June 2010 to April 2011, with self-assessment questionnaires three times, four months apart, comparing the two interventions and also to detect changes.Results: The result showed that stress levels were high in both groups at baseline, but decreased significantly in the folder group. The folder group had significant improvement in their caring situation (also significantly different from the web group), general self-efficacy, well-being, and quality of life. The web group show significant increase in well-being.Conclusion: Young informal carers who take on the responsibility for people close to them with mental illness; suffer consequences on their own health. They live in a life-situation characterized by high stress and low well-being. This signals a need for support for these young persons.Clinical relevance: The findings in this study are uniquely valuable because of the target group and the comparison of two different interventions to support them. The non-significant differences in the data show that each intervention can be effective, and that it depends upon the individual’s preferences. This highlights the importance of adopting person-centred approach, in which young persons can themselves choose support strategy
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| 5. |
- Ali, Lilas, 1981, et al.
(författare)
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Effectiveness of web-based versus folder support interventions for young informal carers of persons with mental illness: A randomized controlled trial
- 2014
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Ingår i: Patient Education and Counseling. - Shannon, Irland : Elsevier BV. - 0738-3991 .- 1873-5134. ; 94:3, s. 362-371
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Tidskriftsartikel (refereegranskat)abstract
- Objective: Compare the impact of two interventions, a web-based support and a folder support, for young persons who care for people who suffer from mental illness. Methods: This study was a randomized control trial, following the CONSORT statements, which compared the impact of two interventions. Primary outcome variable was stress, and secondary outcome variables were caring situation, general self-efficacy, well-being, health, and quality of life of young informal carers (N= 241). Data were collected in June 2010 to April 2011, with self-assessment questionnaires, comparing the two interventions and also to detect changes. Results: The stress levels were high in both groups at baseline, but decreased in the folder group. The folder group had improvement in their caring situation (also different from the web group), general self-efficacy, well-being, and quality of life. The web group showed increase in well-being. Conclusion: Young informal carers who take on the responsibility for people close to them; suffer consequences on their own health. They live in a life-situation characterized by high stress and low well-being. This signals a need for support. Practice implications: The non-significant differences show that each intervention can be effective, and that it depends upon the individual's preferences. This highlights the importance of adopting person-centered approach, in which young persons can themselves choose support strategy. © 2013 Elsevier Ireland Ltd.
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| 6. |
- Ali, Lilas, et al.
(författare)
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eHälsa
- 2017. - 1
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Ingår i: Vårdpedagogik. - Stockholm : Liber. - 9789147112296 ; , s. 190-217
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Bokkapitel (refereegranskat)
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| 7. |
- Ali, Lilas, et al.
(författare)
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Need and Usage of Different Kind of Support among Young Informal Carers of Persons with Mental Illness
- 2014
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Konferensbidrag (refereegranskat)abstract
- Background: The high prevalence of mental illness among young person’s means that their relatives and close friends are exposed to stress by having to take on the responsibility for the support of family members or friends in difficult situations of life when suffering from mental illness. Young informal carers have shown to be exposed to a great burden in which they put their own daily tasks aside in order to stay close to the person who suffers from mental illness. Objective: Explore how young (16–25) informal carers of a person with a mental illness experience and use different kind of support, such as web-support, counseling, and group counseling, friends, family, relatives support societies, health care services etc. Method: In a mixed method approach, we first interviewed 12 young carers, and 241 completed a self-administered questionnaire. While the young carers strive to maintain control, their main support seems to be others in their lives, who often define the situation differently. Results: The carers said web-support, counseling, and group counseling might be helpful, yet very few had any professional support. The results also showed that the young informal carers’ safety net is their social network and the person who suffer from mental illness. Conclusion: Young informal carers are in need of a combination of web-based and face-to-face person-centered support, but they do not receive it. Professional support is required. Further studies about the needs of young informal carers of persons with mental illness especially those supporting friends, is necessary to gain before planning to start support interventions for them.
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| 8. |
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| 9. |
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| 10. |
- Ali, Lilas, 1981, et al.
(författare)
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Support for young informal carers of persons with mental illness : A mixed-method study
- 2013
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Ingår i: Issues in Mental Health Nursing. - New York : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 34:8, s. 611-618
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to explore how young (16-25 year old) informal carers of a person with a mental illness experience and use support. In a mixed method approach, we interviewed 12 young carers, and 241 completed a self-administered questionnaire. While the young carers strive to maintain control, their main support seems to be others in their lives, who often define the situation differently. The carers said web-support, counseling, and group counseling might be helpful, yet very few had any professional support. Young carers are greatly in need of support and it should be provided.
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| 11. |
- Ali, Lilas, et al.
(författare)
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The impact of a person-centred web-based intervention on young informal carers of people with mental illness
- 2015
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Ingår i: Abstracts: 19th International Philosophy of Nursing Society (IPONS) conference August 24-26, 2015 Karolinska Institutet, Stockholm, Sweden. - Stockholm : Karolinska Institutet. ; , s. 4-5
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Konferensbidrag (refereegranskat)abstract
- Background: Previous research show that young person’s often take responsibility and offer care and support for significant others who suffer from mental illness. This adoption of responsibility has consequences not only for the mentally ill, but also for the carer. A person-centred support approach to provide the young informal carers of what they are in need of is according to previous research essential, and in need of. As the internet becomes increasingly fundamental to young people in their daily lives, person-centred web-based interventions may be effective in supporting those caring for a person with mental illness.Objective: To analyze (according to stress, burden, quality of life, and self-efficacy) the impact of a person-centred web-based intervention (information, education, and support) for young persons who support family members or close friends with mental illness.Methods: The study design was prospective and randomized. The sample consisted of young informal carers (N = 241; 16–25 y), where N = 241 completed structured questionnaires at baseline and were allocated to person-centred web-based support (N = 121) respectively folder support (n =120) regarding available support in the society for young persons who support someone suffering from mental illness.Results: Data show that the stress levels were high in both groups at the start of the intervention, but decreased in the folder group, who also showed improvements in their caring situation (also different from the web-support group), general self-efficacy, well-being and their quality of life. The group who received person-centred web-based support showed significant increase in their well-being.Conclusion: It is of great importance to measure the stress and caring situation of young informal carers of persons with mental illness in order to understand their situation. One type of support could be person-centred web-based, however our results indicate that individuals seek support depending on their individual preferences. Since the responsibility of care has shifted from the health care services to the family and friends of the person suffering from a mental illness, more person- centred care/support interventions should be investigated for further development.
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| 12. |
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| 13. |
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| 14. |
- Andreasson, E., et al.
(författare)
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Patients treated for psychosis and their perceptions of care in compulsory treatment : basis for an action plan
- 2012
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Chichester : Wiley-Blackwell. - 1351-0126 .- 1365-2850. ; 19:1, s. 15-22
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of the study was to describe patients' conceptions and experiences of care in compulsory treatment for acute onset of psychosis. Twelve patients with experience of compulsory treatment were interviewed in 2008-2009, and phenomenographic analysis was used to analyse the data. Two descriptive categories emerged in the results: receiving needed support and perceiving respectful care. Patients perceived that coercive interventions were positive if they were given good care, if they were given the shelter they needed, if they got help with understanding and if the setting was healing. Patients felt respected if they were treated like human beings, if they were allowed to retain as much of their autonomy as possible and if they were invited to participate even though they were under compulsory treatment. The results show that it is important to prevent patients from being traumatized during compulsory treatment and to take advantage of patients' inner resources. Patients' experiences of compulsory treatment can form the basis for preparing an individual action plan for future compulsory treatment. Individual action plans could empower patients during compulsory treatment and improve their experience of care.
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| 15. |
- Anita, Johansson, 1955-
(författare)
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Ändlös omsorg och utmätt hälsa : Föräldraskapets paradoxer när ett vuxet barn har långvarig psykisk sjukdom
- 2014
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The overall aim of this thesis was to deepen knowledge of what it means to be a parent of an adult child who suffers from long-term mental illness. Data collection in studies I-III consisted of qualitative interviews with 26 parents. In study I, 16 mothers and, in study II, 10 fathers were interviewed about the way in which their everyday life was affected when an adult child suffers from long-term mental illness. Data were analysed using qualitative content analysis. In study III, the same 26 parents participated as in studies I-II. The aim of the study was to investigate parents’ conceptions of the mental health care. Data were analysed by means of the phenomenographic method. Study IV is based on questionnaires completed by 151 parents. The aim was to investigate mothers’ and fathers’ health related quality of life (HRQOL) focusing on self-rated symptoms of anxiety, depression and burden as well as their experiences of encounters with the mental health services. Data were analysed for the most part by means of non-parametric method.The mothers’ everyday life was characterized by constant preparedness to adapt their life situation to the needs of their child (I). The fathers’ inherent ongoing struggle to ensure the child’s well-being required both strength and courage. Fathers attempted to maintain a good balance in life; this balancing act depended on collaboration between those involved in the child’s life, the family, the healthcare services and other authorities (II). The parents described feeling excluded from professional care and questioned its quality and accessibility (III). Mothers’ self-rated HRQOL was lower and they were also affected by burden and mental ill health to a greater extent than the fathers (IV).The results highlight shortcomings in the interaction between parents and mental health professionals. This highlights the importance of interventions that support and strengthen cooperation between parents and mental health professionals in the care of children who suffer from mental illness.
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| 16. |
- Arvidsson, Barbro, et al.
(författare)
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Changes in the effects of process-oriented group supervision as reported by female and male nursing students : a prospective longitudinal study
- 2008
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Ingår i: Scandinavian Journal of Caring Sciences. - Oxford : Blackwell Publishing. - 0283-9318 .- 1471-6712. ; 22:3, s. 437-444
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this prospective longitudinal study was to perform a large-scale investigation over a longer period of time, to evaluate changes in the effects of process-oriented group supervision (PGS) as reported by female and male nursing students undergoing a 3-year nursing education. The study included nursing students (n = 183) who were followed during their 3-year study period in relation to their participation in PGS.Methods:A questionnaire consisting of three subscales: supportive (six items), educational (six items) and developmental (six items) as well as three items of a socio-demographic character (age, gender and previous experience of healthcare work) was used. Student’s t-test was conducted to compare the educational, supportive and developmental subscales between the first and third year.Results:Females had a significant increase in the educational subscale (p = 0.018) over the 3-year study period, while no such difference was found for the males (p = 0.733). The female students also exhibited an increase in the supportive subscale (p = 0.031) over the 3-year period, while there was no difference for the male students (p = 0.426). There was also an increase in the developmental subscale for the female students over the 3-year period (p = 0.047) but no significant difference for their male counterparts (p = 0.912). For the study group as a whole, an increased positive effect of supervision was observed in the educational subscale (p = 0.020).Conclusions:The findings have strengthened the argument for the use of PGS in nursing education. To achieve the goal of PGS, which is supportive, educational and developmental in nature, it is important to bear in mind that the supervision needs of women and men can differ. Further research should therefore map out the supervisees’ experiences and expectations of participating in a single sex group.
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| 17. |
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| 18. |
- Arvidsson, Barbro, et al.
(författare)
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Effects of process-oriented group supervision as reported by nursing students : a pilot study
- 2008
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Ingår i: Vård i Norden. - Köpenhamn : SSN [Sjuksköterskornas samarbete i Norden]. - 0107-4083 .- 1890-4238. ; 28:1, s. 26-29
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Tidskriftsartikel (refereegranskat)abstract
- One method to ensure that nursing students are better prepared for their future professional role can be to offer them process-oriented group supervision. The aim of this prospective, longitudinal pilot study was to evaluate the effects of a process-oriented group supervision programme (PGSP) comprising educational, supportive and developmental areas based on reports by nursing students undergoing a 3-year nursing education. The students (N=61) evaluated their experiences of the PGSP by means of a questionnaire, which they filled in after each study year. An independent t-test was conducted to compare the educational, supportive, and developmental areas after the first (2002), second (2003) and third year (2004) as well as over the whole 3-year study period. The result showed no significant difference in scores in the educational area. However, there was a significant increase in the supportive area (p=.03) over the 3-year period, which was especially noticeable during the first year (p=.013). There was also an increase in the developmental area over the 3-year period (p=.021) as well as during the first year (p=.024). Thus, PGSP seems to develop nursing students in their professional identity and personal growth. However, as this was a pilot study, a research implication is to perform a large-scale study over a longer period of time.
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| 19. |
- Arvidsson, Barbro, et al.
(författare)
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Process-oriented group supervision implemented during nursing education : nurses’ conceptions 1 year after their nursing degree
- 2008
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Ingår i: Journal of Nursing Management. - Oxford : Blackwell Publishing. - 0966-0429 .- 1365-2834. ; 16:7, s. 868-875
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Tidskriftsartikel (refereegranskat)abstract
- AIM: To describe the variation in how nurses conceive process-oriented group supervision, implemented during nursing education, 1 year after their nursing degree. BACKGROUND: Process-oriented group supervision can be an effective support system for helping nursing students and nurses to reflect on their activities. METHODS: A descriptive qualitative design was chosen for the study. Conceptions were collected through interviews with 18 strategically selected Swedish nurses in 2005. RESULTS: Three descriptive categories comprising seven conceptions were emerged. Supportive actions comprised: a sense of security, belonging and encouragement. Learning actions involved: sharing and reflecting while developmental actions described: enabling professional identity and facilitating personal development. CONCLUSIONS: Process-oriented group supervision has a lasting influence on nurses' development. The possibility to reflect over new stances during nursing education was a prerequisite for the provision of high-quality care. Process-oriented group supervision can make an important contribution to nursing education. IMPLICATIONS: for Nursing Management Process-oriented group supervision provides nurses with the strength to achieve resilience to stress in their work. It may lead to autonomy as well as clarity in the nurse's professional function. This indicates the need for nurse managers to organize reflective group supervision as an integral part of the nurse's work.
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| 20. |
- Arvidsson, Barbro, et al.
(författare)
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The development of a questionnaire for evaluating process-oriented group supervision during nursing education
- 2008
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Ingår i: Nurse Education in Practice. - Amsterdam : Elsevier. - 1471-5953 .- 1873-5223. ; 8:2, s. 88-93
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Tidskriftsartikel (refereegranskat)abstract
- The benefits of process-oriented group supervision are difficult to evaluate, as the validity and reliability of the existing instruments have been questioned. The aim was to develop and test the psychometric properties of a questionnaire in order to evaluate the effects of process-oriented group supervision on nursing students during their three-year nursing education. A 55-item Process-oriented Group Supervision Questionnaire (PGSQ) with a developmental design was formulated on the basis of a literature review and the expectations of nursing students who participated in a three-year nursing education programme (N = 176). Construct validity and internal consistency reliability were tested at the end of each study year: year 1 (T1), year 2 (T2), and year 3 (T3) by means of exploratory factor analysis and Cronbach’s coefficient. An adequate explorative factor analysis (principal component analysis, varimax rotation) with an Eigenvalue >1.0 and factor loadings >0.40, reduced the questionnaire to 18 items comprising three factors labelled educative, supportive and developmental, which explained 60.2% at T1, 71.8% at T2, and 69.3% at T3 of the total cumulative variance. The corresponding Cronbach’s coefficient figures were 0.89 (T1), 0.94 (T2) and 0.93 (T3). The 18-item PGSQ is considered to be a short and useful tool due to its satisfactory validity and reliability figures.
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| 21. |
- Bernhardsdottir, Johanna, et al.
(författare)
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The experience of participation in a brief cognitive behavioral group therapy for psychologically distressed female university students
- 2014
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Malden, United States : Wiley. - 1351-0126 .- 1365-2850. ; 21:8, s. 679-686
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to elucidate the experience of participation in four sessions of cognitive behavioural group therapy for psychological distress for female university students' (n = 19), aged 22-45 years. Data were gathered with semi-structured interviews during March and April 2008 and analysed according to thematic content analysis. The results identified four themes: 'Gaining knowledge and understanding', 'Becoming more balanced and positive in thinking', 'Feeling more self-confident and in control' and 'Opportunities for practice and in-depth reflections'. Future recommendations include an increase in sessions from four to five, with one booster session to follow-up on newly acquired skills.
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| 22. |
- Brockington, Ian, et al.
(författare)
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An international position paper on mother-infant (perinatal) mental health, with guidelines for clinical practice
- 2017
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Ingår i: Archives of Women's Mental Health. - Wien : Springer. - 1434-1816 .- 1435-1102. ; 20:1, s. 113-120
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this paper is to set out informal, provisional and comprehensive but concise guidelines for mother-infant (perinatal) mental health (psychiatry), as an area of specialisation. It is informal in the sense that the authors are clinicians and researchers from many different nations, who share a common goal and vision, speaking on their own behalf and not with the backing of any authority or society. It is provisional in the expectation that it can be improved by criticism and new research findings. It is a comprehensive summary of the development of the specialty, its core knowledge and recommended investigations and interventions. It is concise (under 6,000 words, taking less than an hour to read) in order to increase readership and facilitate translation. No attempt has been made to parade the evidence for these suggestions, because the document would have been too long to translate, and for many to read. Instead, drafts were circulated for criticism by those included in the authorship, resulting in a consensus (finalised by the three principal authors), providing a framework to guide service provision, clinical practice and research. The full list of authors, from 33 nations, is given in the postscript. They include mother-infant (or parent-infant) and perinatal adult or child psychiatrists and those with a special interest; mother-infant, perinatal and forensic psychologists; psychiatric nurses; the founders of Postpartum Support International and the Association for Postnatal Illness; representatives of social work and obstetrics and the management of these services, and research scientists working in the field. © 2016 The Author(s)
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| 23. |
- Dahlqvist Jönsson, Patrik, 1974, et al.
(författare)
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Experience of living with a family member with bipolar disorder.
- 2011
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Ingår i: International journal of mental health nursing. - Richmond : Wiley. - 1447-0349 .- 1445-8330. ; 20:1, s. 29-37
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Tidskriftsartikel (refereegranskat)abstract
- Bipolar disorder (BD) is a severe illness that has a serious impact on the lives of those affected and on their families. The aim of this study was to elucidate what it means for family members to live with an adult person who has BD, with reference to their views concerning the condition of the person affected and the future. During 2005, 17 family members of people with the disorder were interviewed, and the data obtained were subjected to a qualitative content analysis. The findings showed that family members felt alone with their experiences and struggled to make sense of and to maintain normality, as their life was encroached on by the condition. Bearing the burden of responsibility and control made it difficult for family members to focus on their own future. To build hope, they needed opportunities to share their experiences with others, increased understanding of the condition, and relief from the burden they bore. This study underlines the importance of strengthening support holistically for family members living with an adult person with BD. Support and interventions concerning these families' needs have to be developed and should be provided by all mental health-care services.
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| 24. |
- Dahlqvist Jönsson, Patrik, 1974, et al.
(författare)
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Outcomes of an educational intervention for the family of a person with bipolar disorder : a 2-year follow-up study
- 2011
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Chichester : Wiley. - 1351-0126 .- 1365-2850. ; 18:4, s. 333-341
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Tidskriftsartikel (refereegranskat)abstract
- This study aimed to analyse the outcomes of an educational intervention for family members living with a person with bipolar disorder. A longitudinal study was conducted comprising a 10-session educational intervention designed for families with members in outpatient mental health care. Thirty-four family members agreed to participate. Data were collected on five occasions, at baseline and during a 2-year follow-up through self-assessment instruments: the Carers of Older People in Europe Index, the Jalowiec Coping Scale-40, the Sense of Coherence questionnaire and the Social Adaptation Self-evaluation Scale. The results showed that the condition had a considerable negative impact on the family members as carers, but the educational intervention increased their understanding, which facilitated the management of their lives. A significant improvement in stress management was seen over time and social functioning was retained. The study showed that families living with one member with bipolar disorder benefited from the educational intervention in terms of increasing understanding of the condition and reducing stress. Mental health care needs to develop educational interventions further and offer the families support to strengthen their ability to manage with the situation.
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| 25. |
- Dahlqvist Jönsson, Patrik, 1974-, et al.
(författare)
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Problematization of perspectives on health promotion and empowerment in mental health nursing : within the research network "MeHNuRse" and the Horatio conference, 2012
- 2014
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - Abingdon : Informa UK Limited. - 1748-2623 .- 1748-2631. ; 9, s. 22945-
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Tidskriftsartikel (refereegranskat)abstract
- Mental illness is increasing worldwide, while society's response seems to be a trend toward narrower and more specialized mental health care. This development is creating great demands on mental health nurses to include a health promotion perspective in care and support of persons with mental illness. A health promotion perspective emphasizes cooperation and communication with people who suffer from long-term mental illness, focusing on their independence and health. From a health perspective, every human being is an actor in his/her own life, with an inherent ability to make his/her own choices. However, persons who suffer from long-term mental illness are at risk of losing power and control over areas of their lives and their health. Mental health nurses are in a position to support these individuals in promoting health and in maintaining or regaining control over their lives. The emphasis of this paper is to problematize mental health nurses' responsibility to provide health-promoting nursing care in relation to empowerment by means of emancipation, self-efficacy, and self-management. We argue that mental health nurses can work from a health-promoting perspective by using these concepts and that this challenges some of the traditional ideas of health promotion in mental health nursing. The theoretical background discussions in this paper have their origin in the research network ''Mental Health Nursing Research in Scandinavia'' (MeHNuRse) and from the professional discussions developed during a 2012 workshop that included mental health nurses and researchers at the European Horatio Festival in Stockholm.
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| 26. |
- de Ruiter, Hans, et al.
(författare)
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Introducing a Future-Oriented Approach to Health-Care Technologies and Welfare Policies : An Innovative Ethics Project in Sweden
- 2020
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Ingår i: Creative Nursing. - New York, NY : Springer Publishing Company. - 1078-4535 .- 1946-1895. ; 26:1, s. e35-e39
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Tidskriftsartikel (refereegranskat)abstract
- This article is a description of a 2-year program (May 2017–April 2019) intended to introduce new approaches to addressing ethical issues resulting from the introduction of new health-care technologies and welfare policies. In contrast to the traditional retrospective approach in addressing ethical issues after they occur, this program intended to address ethical issues proactively, before they occurred. This future-focused approach is one way to better keep up with the acceleration of change that society confronts. This project introduced innovative approaches in dealing with unintended consequences and ethical issues resulting from the implementation of new health-care technologies and welfare policies in the Halland region of Sweden. © Copyright 2020 Creative Health Care Management.
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| 27. |
- de Ruiter, Hans Peter, et al.
(författare)
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The Ethical, Care, and Client-Caregiver Relationship Impacts Resulting From Introduction of Digital Communication and Surveillance Technologies in the Home Setting : Qualitative Inductive Study
- 2023
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Ingår i: JMIR Human Factors. - Toronto, ON : JMIR Publications. - 2292-9495. ; 10:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: Embedding communication and surveillance technology into the home health care setting has demonstrated the capacity for increased data efficiency, assumptions of convenience, and smart solutions to pressing problems such as caregiver shortages amid a rise in the aging population. The race to develop and implement these technologies within home care and public health nursing often leaves several ethical questions needing to be answered. Objective: The aim of this study was to understand the ethical and care implications of implementing digital communication and surveillance technologies in the home setting as perceived by health caregivers practicing in the region of Halland in Sweden with clients receiving home care services. Methods: A questionnaire was completed by 1260 home health caregivers and the written responses were evaluated by qualitative inductive content analysis. The researchers reviewed data independently and consensus was used to determine themes. Results: This study identified three main themes that illustrate ethical issues and unintended effects as perceived by caregivers of introducing digital communication and surveillance technologies in the home: (1) digital dependence vulnerability, (2) moral distress, and (3) interruptions to caregiving. This study highlights the consequences of technology developers and health systems leaders unintentionally ignoring the perspectives of caregivers who practice the intuitive artistry of providing care to other humans. Conclusions: Beyond the obtrusiveness of devices and impersonal data collection designed to emphasize health care system priorities, this study discovered a multifaceted shadow side of unintended consequences that arise from misalignment between system priorities and caregiver expertise, resulting in ethical issues. To develop communication and surveillance technologies that meet the needs of all stakeholders, it is important to involve caregivers who work with clients in the development process of new health care technology to improve both the quality of life of clients and the services offered by caregivers. © 2023 The Author(s).
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| 28. |
- Djukanovic, Ingrid
(författare)
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Depression in late life-prevalence and preventive intervention
- 2017
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- BackgroundDepression in older people often goes undetected but has severe consequences on physical health, functioning and quality of life. As the aging population is growing, mental ill-health already is and will continue to be an important public health problem. There is a need for adequate strategies to meet this challenge.Aims(1) To investigate the prevalence of and the association between depressive symptoms and loneliness in relation to age and sex in a random Swedish sample in the age group 65-80 years, and to investigate to what extent those scoring ≥ 8 in the depression dimension of the Hospital Anxiety and Depression Scale (HAD) had visited health care professionals and/ or used antidepressive medication.(2) To evaluate the effect of group discussions, in which structured reminiscence and a Problem Based Method (PBM) were used, on depressive symptoms, Quality of Life (QoL) and Self-Rated Health (SRH) among older people.(3) To describe the individual´s experiences of the year before and the time after retirement.(4) To evaluate the factorial structure of the HAD in a general older population 65-80 years and to examine the possible presence of differential item functioning (DIF) related to sex.ResultMore men than women reported depressive symptoms, few were offered psychological treatment and a quarter used antidepressant medication. Depressive symptoms were associated with loneliness and this association decreased with increasing age. Participation in group discussions resulted in a decrease in depressive symptoms and an increase in QoL and SRH. Both expectations and fears were experienced the year before and the time after retirement.The psychometric evaluation of the HAD showed a two-factorial structure and invariance regarding sex.ConclusionThe result highlights the importance of detecting depressive symptoms and loneliness in older people and offer adequate treatment. Transition into retirement should receive more attention both from a health care and organizational perspective. Group discussions with structured reminiscence and PBM as a nursing intervention, seem to be a promising method to prevent depressive symptoms in older people, but further research is needed. The HAD can be recommended to assess anxiety and depression among a general population 65-80 years old.
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| 29. |
- Doyle, Louise, et al.
(författare)
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Preparing master-level mental health nurses to work within a wellness paradigm : Findings from the eMenthe project
- 2018
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Ingår i: International Journal of Mental Health Nursing. - Richmond, VIC : Wiley-Blackwell. - 1445-8330 .- 1447-0349. ; 27:2, s. 823-832
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Tidskriftsartikel (refereegranskat)abstract
- Mental health promotion remains an important component of mental health nursing practice. Supporting wellness at both the individual and societal levels has been identified as one of the key tenets of mental health promotion. However, the prevailing biomedical paradigm of mental health education and practice has meant that many nurses have not been equipped to incorporate a wellness perspective into their mental health practice. In the present study, we report on an exploratory study which details the knowledge, skills, and attitudes required by master-level mental health nurses to practice within a wellness paradigm from the perspective of three groups of key stakeholders: (i) service users and family members (n = 23); (ii) experienced mental health nurses (n = 49); and (iii) master-level mental health nursing students (n = 37). The findings, which were reported from individual and focus group interviews across five European countries, suggested a need to reorientate mental health nursing education to include a focus on wellness and resilience to equip mental health nurses with the skills to work within a strengths-based, rather than a deficits-based, model of mental health practice. Key challenges to working within a wellness paradigm were identified as the prevailing dominance of the biomedical model of cause and treatment of mental health problems, which focusses on symptoms, rather than the holistic functioning of the individual, and positions the person as passive in the nurse-service user relationship. © 2017 Australian College of Mental Health Nurses Inc.
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| 30. |
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| 31. |
- Dunér, Anna, 1962, et al.
(författare)
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Support networks and social support for persons with psychiatric disabilities–a Swedish mixed-methods study
- 2012
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Ingår i: European Journal of Social Work. - Abingdon : Routledge. - 1369-1457 .- 1468-2664. ; 15:5, s. 712-732
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to explore the structure, interaction, and function of the support networks of women and men with psychiatric disabilities. The study took a mixed-methods approach, using quantitative (n=181) and qualitative (n=42) data from a region in southern Sweden. The quantitative results showed that the respondents received widespread support of different types and from many different sources. However, the qualitative interviews revealed that many of the interviewees did not perceive the received support as supportive. The respondents’ internal resources influenced both their ability to receive support and their perception of the support. The informal and formal support sources formed the external resources of the respondents. Our interviewees often experienced formal support as conditional support, while informal support from the family was experienced as unconditional. There was thus a gap between the structure and function of the social support. This article contributes important knowledge from the perspective of persons with psychiatric disabilities.
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| 32. |
- Elf, Mikael, 1959, et al.
(författare)
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An investigation of intended and real use of a research web health portal and its implementation
- 2014
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Ingår i: Electronic Journal of Health Informatics. - Melbourne, Victoria : Health Informatics Society of Australia (H I S A) Ltd.. - 1446-4381. ; 8:1
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Tidskriftsartikel (refereegranskat)abstract
- Participatory design (PD) projects involve prospective users as co-designers in a process where the design object emerges through several iterations. However, the result of such a process can only partly anticipate how the future real users will use the designed object. For this reason, its actual use needs to be investigated. The present study investigated the relationship between intended use and real use in two web-based health support systems in order to explore the conditions for redesign. The dependency between intended use and real use was found to be weak. Rather, the real use was dependent on 1) the context of use and 2) the needs or interest of the users. We conclude that redesign should be based on continuous use of web metrics collected in natural settings and by involving users on a recurring basis. While a web health portal must have an agenda it is important to adapt thing design to use design, why redesign in essence will become an adaptation to user needs.©Copyright of articles originally published in www.eJHI.net under the Creative Commons Attribution 3.0 License is retained by the authors.
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| 33. |
- Elf, Mikael, 1959, et al.
(författare)
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Design of Web-based Support Systems in Less Structured Contexts - the Case of Young Carers.
- 2011
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Ingår i: Medicine 2.0 Congress, Sept 17-18 2011, Stanford University, US..
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Konferensbidrag (refereegranskat)abstract
- Background It has been suggested that at least 4% in a given population of young people are young carers (YC), providing substantial support to diseased family members. Many of them have little or no help from society, partly due to societal neglect of this group and partly due to barriers for help seeking, such as shame, stigma and distrust in health and social care resources (HSCR). The group addressed in this abstract, YCs aged 16-25 and supporting someone with mental illness, may find those barriers even more constricting. Research on web-based support for this group are limited, although web-based support may have a prominent role to play in reaching and supporting them. However, web-based support systems (WBSS) are often built around an educational part and a peer-support part, while a number of recent studies of ICT-support to homeless people, at-risk teens and YCs point to additional needs not addressed in such supports. A common factor among these groups seems to be a lack of support in their life context and at the same time barriers to reach important HSCRs. Our objective is to outline a model for web-based support aiming to increase YCs' opportunities and willingness to overcome barriers in reaching HSCRs that they need. Methods Data from two qualitative studies has been used. Study one was based on interview data (N=12) and explored YCs' needs in their care situation and in relation to a hypothesized WBSS. Data was transcribed and analyzed with content analysis. Study 2 explored YCs' views (N=8) of a WBSS when acting as co-designers in a participatory design (PD) process. Five consecutive design meetings were video recorded and analyzed with content analysis. Results 1) In addition to needs of knowledge (e.g. for understanding mental illness) and needs for communication (e.g. with peers having similar experiences), YCs wanted the opportunity to meet peers in real life and to get “real-life” support. Important real-life support could be e.g. acute relief in the care situation and structured family interventions. Young carers also expressed need for greater commitment from HSCRs. 2) Young carers emphasized human qualities of the WBSS (personification), like competence and a serious attitude. They indicated the importance of commitment and sensitivity in any action on the WBSS. The website was viewed not only as a source for information, knowledge and exchange, but also as something to relate to and trust. Conclusions Localization, mediation and personification may be important properties of a WBSS aimed at YCs. A locally anchored WBSS could facilitate real-life connections between YCs (observing security issues) and would be a prerequisite in helping YCs to become familiar with HSCRs in their place of living. A dedicated staff can build relations to and explore local HSCRs and mediate these experiences on the WBSS. A personified WBSS may offer not only increased visibility, transparency and familiarity of HSCRs, but also trust and support for YCs to overcome barriers in reaching HSCRs.
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| 34. |
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| 35. |
- Elf, Mikael, 1959, et al.
(författare)
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The web is not enough, its a base - an explorative study of what needs a web-based support system for young carers must meet
- 2011
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Ingår i: Informatics for Health and Social Care. - London : Informa Healthcare. - 1753-8157 .- 1753-8165. ; 36:4, s. 206-219
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to gain knowledge about the specific needs that a web-based support system for young carers (YCs) must meet. Twelve young people with experience of caring for and supporting a close friend, partner or relative with mental illness (MI) were interviewed about their life situation, support needs and opinions about a hypothetical web-based support system. The transcribed interviews were analysed using content analysis. The analysed data were organised into three themes relating to support needs, each including a number of sub-themes: knowledge - understanding MI, managing the mentally ill person and self-care; communication - shared experiences, advice and feedback, and befriending; and outside involvement - acute relief, structured help and health care commitments. Web-based support for YCs may be a suitable way to meet the need for knowledge and to meet some of the needs for communication. We have outlined a concept of a geographically anchored web support to meet the need for befriending, facilitate connections to health and social care, and increase understanding and interaction between the parties involved. Further research is needed to corroborate the results.
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| 36. |
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| 37. |
- Ewertzon, Mats, 1956-
(författare)
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Familjemedlem till person med psykossjukdom : bemötande och utanförskap i psykiatrisk vård
- 2012
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- This thesis focused on the situation of family members of persons with psychotic illness, particular on their experience of the approach of the healthcare professionals and of their feelings of alienation regarding the professional care of their family member. A further aim was to explore how siblings who have participated in a support group for siblings experienced their situation.A questionnaire was developed that enabled the aims of this thesis to be investigated (I). Seventy family members from various parts of Sweden participated, and data were collected via the questionnaire developed in study I (II-III). Thirteen siblings who previously had participated in a support group participated in follow-up focus groups interviews (IV).The questionnaire developed was shown to be reliable and valid in these studies (I). In many cases, the participants had experienced an approach from professionals that indicated that they did not experience openness, confirmation and cooperation, and that they felt powerless and socially isolated in relation to the care. There was also found to be a certain degree of association between how the participants experienced the approach and whether they felt alienation (II). The majority of the participants considered openness, confirmation, and cooperation to be important aspects of professional’s approach. The result also identified a low level of agreement between the participants’ experience and what they considered to be significant in the professional’s approach (III). The findings revealed the complexity of being a sibling of an individual with psychotic illness. Participating in a support group for siblings can be of importance in gaining knowledge and minimizing feelings of being alone (IV).Although the psychiatric care services in Sweden have been aware of the importance of cooperating with family members, the results indicated that there is a need for further research in this area.
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| 38. |
- Garmy, Pernilla, 1973-
(författare)
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Hälsopromotion i skolan : utvärdering av DISA - ett program för att förebygga depressiva symtom hos ungdomar
- 2016
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Background: DISA (Depressive Symptoms In Swedish Adolescents) is a cognitive behavioral intervention aimed at preventing stress and depressive symptoms in adolescents. It is frequently used in Swedish schools for students aged 13-15 years. DISA is commonly offered to females, but at some schools, the intervention is also offered to males. In this study, the application of the intervention for both females and males is evaluated.Aim: The overarching aim of this thesis was to explore the experience, significance, and effectiveness of the school-based intervention DISA. The specific aims were to investigate the effectiveness of depressive symptoms and self-reporting health, and costs and cost-effectiveness as well as to elucidate the experiences of adolescents and tutors.Methods: The effectiveness of DISA was investigated using method triangulation. The thesis is based on two quantitative and two qualitative studies. The quantitative studies were quasi-experimental trials with an intervention group (I, IV), and a control group (IV), with follow-up measurements obtained at 3 and 12 months after baseline. The qualitative studies were based on focus group interviews with adolescents (II) and tutors (III). The school-based cognitive behavioral prevention program DISA was presented by school health staff and teachers once per week for ten weeks. Students in grade 8 (median age: 14) participated in the intervention in study I (n=62, 52% females) and study IV (n=462, 79% females), and 486 students (46% females) were allocated to the control group (IV). Focus group interviews were conducted with 89 adolescents (II) and 22 tutors (III). The interviews were analyzed with qualitative content analysis.Findings: The intervention group decreased their self-reported depressive symptoms and improved their self-rated health more than the control group (p<0.05) at the 12-month follow-up. The majority of the adolescents rated the cognitive behavioral program as a positive experience, and the attendance rate was high. The incremental cost-effectiveness ratio was approximately USD 6,300 per quality-adjusted life year (QALY). The focus group interviews with the adolescents revealed that the students found that they developed intrapersonal strategies through DISA, such as directed thinking, improved self-confidence, stress management, and positive activities. They also gained an increased interpersonal awareness regarding trusting the group and considering others. However, structural constraints of the DISA program, such as negative framing and an emphasis on performance, were also noted. The focus group interviews with the tutors identified an overall theme of striking a balance between strictly following the manual and meeting student needs.Conclusions: The DISA program appears to be a feasible, cost-effective school-based cognitive behavioral program with high levels of student adherence and satisfaction, as well as positive mental health benefits. However, a desire for a more health-promoting approach was expressed.
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| 39. |
- Göransson, Carina, 1967-, et al.
(författare)
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Kvalitetsutveckling inom hälso- och sjukvård
- 2006
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Ingår i: Grundläggande omvårdnad. - Stockholm : Liber. - 9789147052776 - 9147052775
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 40. |
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| 41. |
- Hedberg, L, et al.
(författare)
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The importance of health for persons with psychiatric disabilities
- 2009
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Chichester : Wiley-Blackwell. - 1351-0126 .- 1365-2850. ; 16:5, s. 455-461
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Tidskriftsartikel (refereegranskat)abstract
- Persons with psychiatric disabilities often lead an isolated life, and their living conditions are usually not as good as those of other people. There are few studies that describe these individuals' own opinions of what can contribute to increased health. The aim of this study was therefore to describe the importance of health for persons with psychiatric disabilities. The study group comprised 12 persons, living in the community in west of Sweden, who were interviewed during 2005. The data were analysed by means of qualitative content analysis. The findings revealed five categories: (1) help and support in daily life; (2) being part of a social context; (3) having a meaningful daily life; (4) using resources in the right way; and (5) experiencing well-being. The result showed that interventions that promote health need to be clarified and strengthened by means of coordinated efforts from the healthcare services and the local community. In addition, persons with psychiatric disabilities should be invited and encouraged to participate in society as well as being listened to and having their needs addressed.
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| 42. |
- Hedelin, Birgitta, et al.
(författare)
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Kunskap och gemenskap främjar hälsa
- 2009
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Ingår i: Nordisk Geriatrik. - Stockholm : Taylor & Francis. - 1403-2082. ; 12:1, s. 26-29
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Tidskriftsartikel (populärvet., debatt m.m.)
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| 43. |
- Hedman Ahlström, Britt, 1954-, et al.
(författare)
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Children's view of a major depression affecting a parent in the family
- 2011
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Ingår i: Issues in Mental Health Nursing. - New York, NY : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 32:9, s. 560-567
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Tidskriftsartikel (refereegranskat)abstract
- This study aims to elucidate, from the children's perspective, the meaning for family life of a parent suffering a major depression disorder. Eight children and young adults were interviewed. Phenomenological-hermeneutic analysis generated two themes: (1) "Being a rescuing observer" with the subthemes, "Being attentive" and "Being considerate," and (2) "Being a frustrated observer" with the subthemes, "feeling discomfort" and "being out of it." Children's lives alternate between responsibility and loneliness as they wait for reciprocity in family life to return to normal. Children need support in order to manage their sense of responsibility and loneliness adequately.
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| 44. |
- Hedman Ahlström, Britt, 1954, et al.
(författare)
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Children's View of a Major Depression Affecting a Parent in the Family : Children's view of parenteral depression
- 2011
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Ingår i: Issues in Mental Health Nursing. - : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 32:9, s. 560-7
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Tidskriftsartikel (refereegranskat)abstract
- This study aims to elucidate, from the children's perspective, the meaning for family life of a parent suffering a major depression disorder. Eight children and young adults were interviewed. Phenomenological-hermeneutic analysis generated two themes: (1) "Being a rescuing observer" with the subthemes, "Being attentive" and "Being considerate," and (2) "Being a frustrated observer" with the subthemes, "feeling discomfort" and "being out of it." Children's lives alternate between responsibility and loneliness as they wait for reciprocity in family life to return to normal. Children need support in order to manage their sense of responsibility and loneliness adequately
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| 45. |
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| 46. |
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| 47. |
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| 48. |
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| 49. |
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