| 1. |
- Ali, Lilas, 1985-, et al.
(författare)
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Att använda internet vid datainsamling
- 2017. - 2
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Ingår i: Vetenskaplig teori och metod. - Lund : Studentlitteratur AB. - 9789144113289 ; , s. 217-232
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Bokkapitel (refereegranskat)
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| 2. |
- Ali, Lilas, 1981, et al.
(författare)
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Caring Situation, Health, Self-efficacy, and Stress in Young Informal Carers of Family and Friends with Mental Illness in Sweden
- 2015
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Ingår i: Issues in Mental Health Nursing. - New York, NY : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 36:6, s. 407-415
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Tidskriftsartikel (refereegranskat)abstract
- This study compared the caring situation, health, self-efficacy, and stress of young (16-25) informal carers (YICs) supporting a family member with mental illness with that of YICs supporting a friend. A sample of 225 carers, assigned to a family group (n = 97) or a friend group (n = 128) completed the questionnaire. It was found that the family group experiences a lower level of support and friends experienced a lower positive value of caring. No other differences in health, general self-efficacy and stress were found. YICs endure different social situations, which is why further study of the needs of YICs, especially those supporting friends, is urgently needed.
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| 3. |
- Ali, Lilas, 1981, et al.
(författare)
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Daily life for young adults who care for a person with mental illness: a qualitative study
- 2012
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Chichester : Wiley. - 1351-0126 .- 1365-2850. ; 19:7, s. 610-617
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Tidskriftsartikel (refereegranskat)abstract
- Accessible summary The burden of caring for a person with mental illness has been transferred to families and close friends. Daily life for young informal carers is unpredictable and they need to stay alert and prepared for events beyond their control. Young informal carers are concerned young adults who support a family member or friend unconditionally. Supporting a friend is related to as a great a sense of individual responsibility as supporting a family member. Abstract This study describes the daily life and management strategies of young informal carers of family members or friends with mental illness. Twelve young adults (three men and nine women; 1625 years old) in Sweden were voluntarily recruited between February and May 2008. Data collected through eight individual semi-structured interviews and one focus group interview were analysed using qualitative content analysis. The findings revealed nine subthemes that were further grouped into three main themes: showing concern, providing support and using management strategies. Participants lived in constant readiness for something unexpected to happen to the person they cared for, and their role in the relationship could change quickly from family member or friend to guardian or supervisor. Supporting a friend was considered as large a personal responsibility as supporting a family member. Their management strategies were based on individual capacities and their ability to step aside should the situation become too demanding. These young informal carers need support in caring for the mentally ill. As the internet becomes increasingly fundamental to daily life, support could be provided most effectively through person-centred web sites.
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| 4. |
- Ali, Lilas, 1981-, et al.
(författare)
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Effectiveness of Web-Based versus Folder Support Interventions for Young Informal Carers of Persons with Mental Illness : a Randomized Controlled Trial
- 2013
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Konferensbidrag (refereegranskat)abstract
- Background: Changes in psychiatric services mean more young persons have to care for a mentally ill family member or friend while they themselves are in the sensitive transition to adulthood.Objective: Compare the impact of two interventions, a web-based support and a folder support, for young persons who care for people who suffer from mental illness.Method: This study was a randomized control trial, following the CONSORT statements and eConsort support. Primary outcome variable was stress, and secondary outcome variables were caring situation, general self-efficacy, well-being, health, and quality of life of young informal carers (N=241). Data were collected in June 2010 to April 2011, with self-assessment questionnaires three times, four months apart, comparing the two interventions and also to detect changes.Results: The result showed that stress levels were high in both groups at baseline, but decreased significantly in the folder group. The folder group had significant improvement in their caring situation (also significantly different from the web group), general self-efficacy, well-being, and quality of life. The web group show significant increase in well-being.Conclusion: Young informal carers who take on the responsibility for people close to them with mental illness; suffer consequences on their own health. They live in a life-situation characterized by high stress and low well-being. This signals a need for support for these young persons.Clinical relevance: The findings in this study are uniquely valuable because of the target group and the comparison of two different interventions to support them. The non-significant differences in the data show that each intervention can be effective, and that it depends upon the individual’s preferences. This highlights the importance of adopting person-centred approach, in which young persons can themselves choose support strategy
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| 5. |
- Ali, Lilas, 1981, et al.
(författare)
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Effectiveness of web-based versus folder support interventions for young informal carers of persons with mental illness: A randomized controlled trial
- 2014
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Ingår i: Patient Education and Counseling. - Shannon, Irland : Elsevier BV. - 0738-3991 .- 1873-5134. ; 94:3, s. 362-371
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Tidskriftsartikel (refereegranskat)abstract
- Objective: Compare the impact of two interventions, a web-based support and a folder support, for young persons who care for people who suffer from mental illness. Methods: This study was a randomized control trial, following the CONSORT statements, which compared the impact of two interventions. Primary outcome variable was stress, and secondary outcome variables were caring situation, general self-efficacy, well-being, health, and quality of life of young informal carers (N= 241). Data were collected in June 2010 to April 2011, with self-assessment questionnaires, comparing the two interventions and also to detect changes. Results: The stress levels were high in both groups at baseline, but decreased in the folder group. The folder group had improvement in their caring situation (also different from the web group), general self-efficacy, well-being, and quality of life. The web group showed increase in well-being. Conclusion: Young informal carers who take on the responsibility for people close to them; suffer consequences on their own health. They live in a life-situation characterized by high stress and low well-being. This signals a need for support. Practice implications: The non-significant differences show that each intervention can be effective, and that it depends upon the individual's preferences. This highlights the importance of adopting person-centered approach, in which young persons can themselves choose support strategy. © 2013 Elsevier Ireland Ltd.
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| 6. |
- Ali, Lilas, et al.
(författare)
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eHälsa
- 2017. - 1
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Ingår i: Vårdpedagogik. - Stockholm : Liber. - 9789147112296 ; , s. 190-217
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Bokkapitel (refereegranskat)
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| 7. |
- Ali, Lilas, et al.
(författare)
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Need and Usage of Different Kind of Support among Young Informal Carers of Persons with Mental Illness
- 2014
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Konferensbidrag (refereegranskat)abstract
- Background: The high prevalence of mental illness among young person’s means that their relatives and close friends are exposed to stress by having to take on the responsibility for the support of family members or friends in difficult situations of life when suffering from mental illness. Young informal carers have shown to be exposed to a great burden in which they put their own daily tasks aside in order to stay close to the person who suffers from mental illness. Objective: Explore how young (16–25) informal carers of a person with a mental illness experience and use different kind of support, such as web-support, counseling, and group counseling, friends, family, relatives support societies, health care services etc. Method: In a mixed method approach, we first interviewed 12 young carers, and 241 completed a self-administered questionnaire. While the young carers strive to maintain control, their main support seems to be others in their lives, who often define the situation differently. Results: The carers said web-support, counseling, and group counseling might be helpful, yet very few had any professional support. The results also showed that the young informal carers’ safety net is their social network and the person who suffer from mental illness. Conclusion: Young informal carers are in need of a combination of web-based and face-to-face person-centered support, but they do not receive it. Professional support is required. Further studies about the needs of young informal carers of persons with mental illness especially those supporting friends, is necessary to gain before planning to start support interventions for them.
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| 8. |
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| 9. |
- Ali, Lilas, 1981, et al.
(författare)
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Support for young informal carers of persons with mental illness : A mixed-method study
- 2013
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Ingår i: Issues in Mental Health Nursing. - New York : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 34:8, s. 611-618
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to explore how young (16-25 year old) informal carers of a person with a mental illness experience and use support. In a mixed method approach, we interviewed 12 young carers, and 241 completed a self-administered questionnaire. While the young carers strive to maintain control, their main support seems to be others in their lives, who often define the situation differently. The carers said web-support, counseling, and group counseling might be helpful, yet very few had any professional support. Young carers are greatly in need of support and it should be provided.
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| 10. |
- Ali, Lilas, et al.
(författare)
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The impact of a person-centred web-based intervention on young informal carers of people with mental illness
- 2015
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Ingår i: Abstracts: 19th International Philosophy of Nursing Society (IPONS) conference August 24-26, 2015 Karolinska Institutet, Stockholm, Sweden. - Stockholm : Karolinska Institutet. ; , s. 4-5
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Konferensbidrag (refereegranskat)abstract
- Background: Previous research show that young person’s often take responsibility and offer care and support for significant others who suffer from mental illness. This adoption of responsibility has consequences not only for the mentally ill, but also for the carer. A person-centred support approach to provide the young informal carers of what they are in need of is according to previous research essential, and in need of. As the internet becomes increasingly fundamental to young people in their daily lives, person-centred web-based interventions may be effective in supporting those caring for a person with mental illness.Objective: To analyze (according to stress, burden, quality of life, and self-efficacy) the impact of a person-centred web-based intervention (information, education, and support) for young persons who support family members or close friends with mental illness.Methods: The study design was prospective and randomized. The sample consisted of young informal carers (N = 241; 16–25 y), where N = 241 completed structured questionnaires at baseline and were allocated to person-centred web-based support (N = 121) respectively folder support (n =120) regarding available support in the society for young persons who support someone suffering from mental illness.Results: Data show that the stress levels were high in both groups at the start of the intervention, but decreased in the folder group, who also showed improvements in their caring situation (also different from the web-support group), general self-efficacy, well-being and their quality of life. The group who received person-centred web-based support showed significant increase in their well-being.Conclusion: It is of great importance to measure the stress and caring situation of young informal carers of persons with mental illness in order to understand their situation. One type of support could be person-centred web-based, however our results indicate that individuals seek support depending on their individual preferences. Since the responsibility of care has shifted from the health care services to the family and friends of the person suffering from a mental illness, more person- centred care/support interventions should be investigated for further development.
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| 11. |
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| 12. |
- Arvidsson, Barbro, et al.
(författare)
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Process-oriented group supervision implemented during nursing education : nurses’ conceptions 1 year after their nursing degree
- 2008
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Ingår i: Journal of Nursing Management. - Oxford : Blackwell Publishing. - 0966-0429 .- 1365-2834. ; 16:7, s. 868-875
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Tidskriftsartikel (refereegranskat)abstract
- AIM: To describe the variation in how nurses conceive process-oriented group supervision, implemented during nursing education, 1 year after their nursing degree. BACKGROUND: Process-oriented group supervision can be an effective support system for helping nursing students and nurses to reflect on their activities. METHODS: A descriptive qualitative design was chosen for the study. Conceptions were collected through interviews with 18 strategically selected Swedish nurses in 2005. RESULTS: Three descriptive categories comprising seven conceptions were emerged. Supportive actions comprised: a sense of security, belonging and encouragement. Learning actions involved: sharing and reflecting while developmental actions described: enabling professional identity and facilitating personal development. CONCLUSIONS: Process-oriented group supervision has a lasting influence on nurses' development. The possibility to reflect over new stances during nursing education was a prerequisite for the provision of high-quality care. Process-oriented group supervision can make an important contribution to nursing education. IMPLICATIONS: for Nursing Management Process-oriented group supervision provides nurses with the strength to achieve resilience to stress in their work. It may lead to autonomy as well as clarity in the nurse's professional function. This indicates the need for nurse managers to organize reflective group supervision as an integral part of the nurse's work.
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| 13. |
- Arvidsson, Barbro, et al.
(författare)
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The development of a questionnaire for evaluating process-oriented group supervision during nursing education
- 2008
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Ingår i: Nurse Education in Practice. - Amsterdam : Elsevier. - 1471-5953 .- 1873-5223. ; 8:2, s. 88-93
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Tidskriftsartikel (refereegranskat)abstract
- The benefits of process-oriented group supervision are difficult to evaluate, as the validity and reliability of the existing instruments have been questioned. The aim was to develop and test the psychometric properties of a questionnaire in order to evaluate the effects of process-oriented group supervision on nursing students during their three-year nursing education. A 55-item Process-oriented Group Supervision Questionnaire (PGSQ) with a developmental design was formulated on the basis of a literature review and the expectations of nursing students who participated in a three-year nursing education programme (N = 176). Construct validity and internal consistency reliability were tested at the end of each study year: year 1 (T1), year 2 (T2), and year 3 (T3) by means of exploratory factor analysis and Cronbach’s coefficient. An adequate explorative factor analysis (principal component analysis, varimax rotation) with an Eigenvalue >1.0 and factor loadings >0.40, reduced the questionnaire to 18 items comprising three factors labelled educative, supportive and developmental, which explained 60.2% at T1, 71.8% at T2, and 69.3% at T3 of the total cumulative variance. The corresponding Cronbach’s coefficient figures were 0.89 (T1), 0.94 (T2) and 0.93 (T3). The 18-item PGSQ is considered to be a short and useful tool due to its satisfactory validity and reliability figures.
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| 14. |
- Bernhardsdottir, Johanna, et al.
(författare)
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The experience of participation in a brief cognitive behavioral group therapy for psychologically distressed female university students
- 2014
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Malden, United States : Wiley. - 1351-0126 .- 1365-2850. ; 21:8, s. 679-686
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to elucidate the experience of participation in four sessions of cognitive behavioural group therapy for psychological distress for female university students' (n = 19), aged 22-45 years. Data were gathered with semi-structured interviews during March and April 2008 and analysed according to thematic content analysis. The results identified four themes: 'Gaining knowledge and understanding', 'Becoming more balanced and positive in thinking', 'Feeling more self-confident and in control' and 'Opportunities for practice and in-depth reflections'. Future recommendations include an increase in sessions from four to five, with one booster session to follow-up on newly acquired skills.
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| 15. |
- Brockington, Ian, et al.
(författare)
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An international position paper on mother-infant (perinatal) mental health, with guidelines for clinical practice
- 2017
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Ingår i: Archives of Women's Mental Health. - Wien : Springer. - 1434-1816 .- 1435-1102. ; 20:1, s. 113-120
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this paper is to set out informal, provisional and comprehensive but concise guidelines for mother-infant (perinatal) mental health (psychiatry), as an area of specialisation. It is informal in the sense that the authors are clinicians and researchers from many different nations, who share a common goal and vision, speaking on their own behalf and not with the backing of any authority or society. It is provisional in the expectation that it can be improved by criticism and new research findings. It is a comprehensive summary of the development of the specialty, its core knowledge and recommended investigations and interventions. It is concise (under 6,000 words, taking less than an hour to read) in order to increase readership and facilitate translation. No attempt has been made to parade the evidence for these suggestions, because the document would have been too long to translate, and for many to read. Instead, drafts were circulated for criticism by those included in the authorship, resulting in a consensus (finalised by the three principal authors), providing a framework to guide service provision, clinical practice and research. The full list of authors, from 33 nations, is given in the postscript. They include mother-infant (or parent-infant) and perinatal adult or child psychiatrists and those with a special interest; mother-infant, perinatal and forensic psychologists; psychiatric nurses; the founders of Postpartum Support International and the Association for Postnatal Illness; representatives of social work and obstetrics and the management of these services, and research scientists working in the field. © 2016 The Author(s)
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| 16. |
- Dahlqvist Jönsson, Patrik, 1974, et al.
(författare)
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Experience of living with a family member with bipolar disorder.
- 2011
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Ingår i: International journal of mental health nursing. - Richmond : Wiley. - 1447-0349 .- 1445-8330. ; 20:1, s. 29-37
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Tidskriftsartikel (refereegranskat)abstract
- Bipolar disorder (BD) is a severe illness that has a serious impact on the lives of those affected and on their families. The aim of this study was to elucidate what it means for family members to live with an adult person who has BD, with reference to their views concerning the condition of the person affected and the future. During 2005, 17 family members of people with the disorder were interviewed, and the data obtained were subjected to a qualitative content analysis. The findings showed that family members felt alone with their experiences and struggled to make sense of and to maintain normality, as their life was encroached on by the condition. Bearing the burden of responsibility and control made it difficult for family members to focus on their own future. To build hope, they needed opportunities to share their experiences with others, increased understanding of the condition, and relief from the burden they bore. This study underlines the importance of strengthening support holistically for family members living with an adult person with BD. Support and interventions concerning these families' needs have to be developed and should be provided by all mental health-care services.
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| 17. |
- Dahlqvist Jönsson, Patrik, 1974-, et al.
(författare)
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Problematization of perspectives on health promotion and empowerment in mental health nursing : within the research network "MeHNuRse" and the Horatio conference, 2012
- 2014
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - Abingdon : Informa UK Limited. - 1748-2623 .- 1748-2631. ; 9, s. 22945-
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Tidskriftsartikel (refereegranskat)abstract
- Mental illness is increasing worldwide, while society's response seems to be a trend toward narrower and more specialized mental health care. This development is creating great demands on mental health nurses to include a health promotion perspective in care and support of persons with mental illness. A health promotion perspective emphasizes cooperation and communication with people who suffer from long-term mental illness, focusing on their independence and health. From a health perspective, every human being is an actor in his/her own life, with an inherent ability to make his/her own choices. However, persons who suffer from long-term mental illness are at risk of losing power and control over areas of their lives and their health. Mental health nurses are in a position to support these individuals in promoting health and in maintaining or regaining control over their lives. The emphasis of this paper is to problematize mental health nurses' responsibility to provide health-promoting nursing care in relation to empowerment by means of emancipation, self-efficacy, and self-management. We argue that mental health nurses can work from a health-promoting perspective by using these concepts and that this challenges some of the traditional ideas of health promotion in mental health nursing. The theoretical background discussions in this paper have their origin in the research network ''Mental Health Nursing Research in Scandinavia'' (MeHNuRse) and from the professional discussions developed during a 2012 workshop that included mental health nurses and researchers at the European Horatio Festival in Stockholm.
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| 18. |
- de Ruiter, Hans, et al.
(författare)
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Introducing a Future-Oriented Approach to Health-Care Technologies and Welfare Policies : An Innovative Ethics Project in Sweden
- 2020
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Ingår i: Creative Nursing. - New York, NY : Springer Publishing Company. - 1078-4535 .- 1946-1895. ; 26:1, s. e35-e39
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Tidskriftsartikel (refereegranskat)abstract
- This article is a description of a 2-year program (May 2017–April 2019) intended to introduce new approaches to addressing ethical issues resulting from the introduction of new health-care technologies and welfare policies. In contrast to the traditional retrospective approach in addressing ethical issues after they occur, this program intended to address ethical issues proactively, before they occurred. This future-focused approach is one way to better keep up with the acceleration of change that society confronts. This project introduced innovative approaches in dealing with unintended consequences and ethical issues resulting from the implementation of new health-care technologies and welfare policies in the Halland region of Sweden. © Copyright 2020 Creative Health Care Management.
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| 19. |
- de Ruiter, Hans Peter, et al.
(författare)
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The Ethical, Care, and Client-Caregiver Relationship Impacts Resulting From Introduction of Digital Communication and Surveillance Technologies in the Home Setting : Qualitative Inductive Study
- 2023
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Ingår i: JMIR Human Factors. - Toronto, ON : JMIR Publications. - 2292-9495. ; 10:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: Embedding communication and surveillance technology into the home health care setting has demonstrated the capacity for increased data efficiency, assumptions of convenience, and smart solutions to pressing problems such as caregiver shortages amid a rise in the aging population. The race to develop and implement these technologies within home care and public health nursing often leaves several ethical questions needing to be answered. Objective: The aim of this study was to understand the ethical and care implications of implementing digital communication and surveillance technologies in the home setting as perceived by health caregivers practicing in the region of Halland in Sweden with clients receiving home care services. Methods: A questionnaire was completed by 1260 home health caregivers and the written responses were evaluated by qualitative inductive content analysis. The researchers reviewed data independently and consensus was used to determine themes. Results: This study identified three main themes that illustrate ethical issues and unintended effects as perceived by caregivers of introducing digital communication and surveillance technologies in the home: (1) digital dependence vulnerability, (2) moral distress, and (3) interruptions to caregiving. This study highlights the consequences of technology developers and health systems leaders unintentionally ignoring the perspectives of caregivers who practice the intuitive artistry of providing care to other humans. Conclusions: Beyond the obtrusiveness of devices and impersonal data collection designed to emphasize health care system priorities, this study discovered a multifaceted shadow side of unintended consequences that arise from misalignment between system priorities and caregiver expertise, resulting in ethical issues. To develop communication and surveillance technologies that meet the needs of all stakeholders, it is important to involve caregivers who work with clients in the development process of new health care technology to improve both the quality of life of clients and the services offered by caregivers. © 2023 The Author(s).
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| 20. |
- Doyle, Louise, et al.
(författare)
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Preparing master-level mental health nurses to work within a wellness paradigm : Findings from the eMenthe project
- 2018
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Ingår i: International Journal of Mental Health Nursing. - Richmond, VIC : Wiley-Blackwell. - 1445-8330 .- 1447-0349. ; 27:2, s. 823-832
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Tidskriftsartikel (refereegranskat)abstract
- Mental health promotion remains an important component of mental health nursing practice. Supporting wellness at both the individual and societal levels has been identified as one of the key tenets of mental health promotion. However, the prevailing biomedical paradigm of mental health education and practice has meant that many nurses have not been equipped to incorporate a wellness perspective into their mental health practice. In the present study, we report on an exploratory study which details the knowledge, skills, and attitudes required by master-level mental health nurses to practice within a wellness paradigm from the perspective of three groups of key stakeholders: (i) service users and family members (n = 23); (ii) experienced mental health nurses (n = 49); and (iii) master-level mental health nursing students (n = 37). The findings, which were reported from individual and focus group interviews across five European countries, suggested a need to reorientate mental health nursing education to include a focus on wellness and resilience to equip mental health nurses with the skills to work within a strengths-based, rather than a deficits-based, model of mental health practice. Key challenges to working within a wellness paradigm were identified as the prevailing dominance of the biomedical model of cause and treatment of mental health problems, which focusses on symptoms, rather than the holistic functioning of the individual, and positions the person as passive in the nurse-service user relationship. © 2017 Australian College of Mental Health Nurses Inc.
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| 21. |
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| 22. |
- Dunér, Anna, 1962, et al.
(författare)
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Support networks and social support for persons with psychiatric disabilities–a Swedish mixed-methods study
- 2012
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Ingår i: European Journal of Social Work. - Abingdon : Routledge. - 1369-1457 .- 1468-2664. ; 15:5, s. 712-732
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to explore the structure, interaction, and function of the support networks of women and men with psychiatric disabilities. The study took a mixed-methods approach, using quantitative (n=181) and qualitative (n=42) data from a region in southern Sweden. The quantitative results showed that the respondents received widespread support of different types and from many different sources. However, the qualitative interviews revealed that many of the interviewees did not perceive the received support as supportive. The respondents’ internal resources influenced both their ability to receive support and their perception of the support. The informal and formal support sources formed the external resources of the respondents. Our interviewees often experienced formal support as conditional support, while informal support from the family was experienced as unconditional. There was thus a gap between the structure and function of the social support. This article contributes important knowledge from the perspective of persons with psychiatric disabilities.
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| 23. |
- Elf, Mikael, 1959, et al.
(författare)
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An investigation of intended and real use of a research web health portal and its implementation
- 2014
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Ingår i: Electronic Journal of Health Informatics. - Melbourne, Victoria : Health Informatics Society of Australia (H I S A) Ltd.. - 1446-4381. ; 8:1
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Tidskriftsartikel (refereegranskat)abstract
- Participatory design (PD) projects involve prospective users as co-designers in a process where the design object emerges through several iterations. However, the result of such a process can only partly anticipate how the future real users will use the designed object. For this reason, its actual use needs to be investigated. The present study investigated the relationship between intended use and real use in two web-based health support systems in order to explore the conditions for redesign. The dependency between intended use and real use was found to be weak. Rather, the real use was dependent on 1) the context of use and 2) the needs or interest of the users. We conclude that redesign should be based on continuous use of web metrics collected in natural settings and by involving users on a recurring basis. While a web health portal must have an agenda it is important to adapt thing design to use design, why redesign in essence will become an adaptation to user needs.©Copyright of articles originally published in www.eJHI.net under the Creative Commons Attribution 3.0 License is retained by the authors.
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| 24. |
- Elf, Mikael, 1959, et al.
(författare)
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Design of Web-based Support Systems in Less Structured Contexts - the Case of Young Carers.
- 2011
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Ingår i: Medicine 2.0 Congress, Sept 17-18 2011, Stanford University, US..
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Konferensbidrag (refereegranskat)abstract
- Background It has been suggested that at least 4% in a given population of young people are young carers (YC), providing substantial support to diseased family members. Many of them have little or no help from society, partly due to societal neglect of this group and partly due to barriers for help seeking, such as shame, stigma and distrust in health and social care resources (HSCR). The group addressed in this abstract, YCs aged 16-25 and supporting someone with mental illness, may find those barriers even more constricting. Research on web-based support for this group are limited, although web-based support may have a prominent role to play in reaching and supporting them. However, web-based support systems (WBSS) are often built around an educational part and a peer-support part, while a number of recent studies of ICT-support to homeless people, at-risk teens and YCs point to additional needs not addressed in such supports. A common factor among these groups seems to be a lack of support in their life context and at the same time barriers to reach important HSCRs. Our objective is to outline a model for web-based support aiming to increase YCs' opportunities and willingness to overcome barriers in reaching HSCRs that they need. Methods Data from two qualitative studies has been used. Study one was based on interview data (N=12) and explored YCs' needs in their care situation and in relation to a hypothesized WBSS. Data was transcribed and analyzed with content analysis. Study 2 explored YCs' views (N=8) of a WBSS when acting as co-designers in a participatory design (PD) process. Five consecutive design meetings were video recorded and analyzed with content analysis. Results 1) In addition to needs of knowledge (e.g. for understanding mental illness) and needs for communication (e.g. with peers having similar experiences), YCs wanted the opportunity to meet peers in real life and to get “real-life” support. Important real-life support could be e.g. acute relief in the care situation and structured family interventions. Young carers also expressed need for greater commitment from HSCRs. 2) Young carers emphasized human qualities of the WBSS (personification), like competence and a serious attitude. They indicated the importance of commitment and sensitivity in any action on the WBSS. The website was viewed not only as a source for information, knowledge and exchange, but also as something to relate to and trust. Conclusions Localization, mediation and personification may be important properties of a WBSS aimed at YCs. A locally anchored WBSS could facilitate real-life connections between YCs (observing security issues) and would be a prerequisite in helping YCs to become familiar with HSCRs in their place of living. A dedicated staff can build relations to and explore local HSCRs and mediate these experiences on the WBSS. A personified WBSS may offer not only increased visibility, transparency and familiarity of HSCRs, but also trust and support for YCs to overcome barriers in reaching HSCRs.
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| 25. |
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| 26. |
- Elf, Mikael, 1959, et al.
(författare)
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The web is not enough, its a base - an explorative study of what needs a web-based support system for young carers must meet
- 2011
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Ingår i: Informatics for Health and Social Care. - London : Informa Healthcare. - 1753-8157 .- 1753-8165. ; 36:4, s. 206-219
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to gain knowledge about the specific needs that a web-based support system for young carers (YCs) must meet. Twelve young people with experience of caring for and supporting a close friend, partner or relative with mental illness (MI) were interviewed about their life situation, support needs and opinions about a hypothetical web-based support system. The transcribed interviews were analysed using content analysis. The analysed data were organised into three themes relating to support needs, each including a number of sub-themes: knowledge - understanding MI, managing the mentally ill person and self-care; communication - shared experiences, advice and feedback, and befriending; and outside involvement - acute relief, structured help and health care commitments. Web-based support for YCs may be a suitable way to meet the need for knowledge and to meet some of the needs for communication. We have outlined a concept of a geographically anchored web support to meet the need for befriending, facilitate connections to health and social care, and increase understanding and interaction between the parties involved. Further research is needed to corroborate the results.
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| 27. |
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| 28. |
- Göransson, Carina, 1967-, et al.
(författare)
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Kvalitetsutveckling inom hälso- och sjukvård
- 2006
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Ingår i: Grundläggande omvårdnad. - Stockholm : Liber. - 9789147052776 - 9147052775
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 29. |
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| 30. |
- Hedelin, Birgitta, et al.
(författare)
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Kunskap och gemenskap främjar hälsa
- 2009
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Ingår i: Nordisk Geriatrik. - Stockholm : Taylor & Francis. - 1403-2082. ; 12:1, s. 26-29
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Tidskriftsartikel (populärvet., debatt m.m.)
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| 31. |
- Hedman Ahlström, Britt, 1954, et al.
(författare)
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Children's View of a Major Depression Affecting a Parent in the Family : Children's view of parenteral depression
- 2011
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Ingår i: Issues in Mental Health Nursing. - : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 32:9, s. 560-7
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Tidskriftsartikel (refereegranskat)abstract
- This study aims to elucidate, from the children's perspective, the meaning for family life of a parent suffering a major depression disorder. Eight children and young adults were interviewed. Phenomenological-hermeneutic analysis generated two themes: (1) "Being a rescuing observer" with the subthemes, "Being attentive" and "Being considerate," and (2) "Being a frustrated observer" with the subthemes, "feeling discomfort" and "being out of it." Children's lives alternate between responsibility and loneliness as they wait for reciprocity in family life to return to normal. Children need support in order to manage their sense of responsibility and loneliness adequately
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| 32. |
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| 33. |
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| 34. |
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| 35. |
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| 36. |
- Hedman Ahlström, Britt, 1954, et al.
(författare)
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Major depression – The experiences of a family
- 2007
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Ingår i: Familien i sundhed, lidelse og omsorg – fra vugge til grav. NCCS Konference (Nordic College of Caring Science), Århus Danmark, 22-24 mars 2007.
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Konferensbidrag (refereegranskat)
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| 37. |
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| 38. |
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| 39. |
- Holmgren Melin, Karin, et al.
(författare)
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Treatment and 12-month outcome of children and adolescents with obsessive-compulsive disorder: A naturalistic study
- 2015
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Ingår i: Journal of Obsessive-Compulsive and Related Disorders. - Amsterdam : Elsevier BV. - 2211-3649 .- 2211-3657. ; 6, s. 1-6
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Tidskriftsartikel (refereegranskat)abstract
- Pediatric obsessive-compulsive disorder (OCD) is a disorder associated with distress and impairment in many domains. Moreover, there is a high risk of relapse and developing a chronic illness. Randomized-controlled trails (RCT), the gold-standard for evaluating treatments, show treatments to be efficacious, yet little is known about their generalizability and long-term durability in "usual-care" settings. The aim of the present study is to evaluate the feasibility and effectiveness of evidence-based pediatric OCD-treatments in regular practice. Participants were 109 children (aged 7-17 years) with a primary diagnosis of OCD, recruited from a specialized OCD-clinic in Sweden. Few exclusion criteria were applied. The youths were assessed at baseline, 6 and 12 months following the first assessment, using Children's Yale-Brown Obsessive Compulsive Scale and Children's OCD Impact Scale. They were treated with Cognitive Behavior Therapy, augmented with SSRI when indicated. The majority responded well to treatment i.e. were free from OCD or in remission at 12 month evaluation. Moreover, the participants psychosocial functioning significantly improved from baseline to evaluation at 6 and 12 months. (C) 2015 Elsevier Inc. All rights reserved.
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| 40. |
- Jenholt Nolbris, Margaretha, et al.
(författare)
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A Global Web-based Programme about Cancer in Language Specific for Staff, a Sick Child and Their Family
- 2013
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Ingår i: Pediatric Blood & Cancer. - Hoboken, NJ : John Wiley & Sons. - 1545-5009 .- 1545-5017. ; 60:Suppl. 3, s. 185-185
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Tidskriftsartikel (refereegranskat)abstract
- Purpose/Objective: To have expert paediatric oncology nurses to inform and explain childhood cancer diagnoses, treatments, side effects, situations and feelings, by developing a web-based programme.Materials and Methods: The programme will be developed and tested in three steps. Step 1 is to develop a web portal with animated pictures of cancer themes based on the ’See Hear Do’ programme in Sweden and Norway. Step 2 is to add text and audio in several languages for each theme (such as Arabic, English, Spanish). Step 3 is to develop two informational sections on the web portal: one section for staff and for the patient and family. The staff, children and families will evaluate each section as appropriate before the programme is published on the web portal. A participatory design method is going to be used. The programme will also be offered to nurses in the International Society of Paediatric Oncology and nursing working group of the Pediatric Oncology in Developing Countries committee for translation into their native languages.Results: Expected result is that the web portal can easily be downloaded via computer, iPad or mobile and can be used twofold. Staff can use this programme for self-education and for working with the child and family. The child and family can use the web programme in various situations during the child’s cancer treatment, e.g., explaining the diagnosis to family members, schoolmates, families’ networks, during phone calls using an interpreter or for persons with a visual or auditory disability.Conclusions: Goal of the project is to globalize childhood cancer education and information with a web-based programme including pictures, text and audio in various languages. The programme is designed to consider the professional’s information and the child and family’s needs and participation. The active role of all stakeholders to ensure cultural relevance is key to this project.
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| 41. |
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| 42. |
- Johansson, Inger M., 1951, et al.
(författare)
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The experience of working on a locked acute psychiatric ward
- 2013
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Chichester : Wiley. - 1351-0126 .- 1365-2850. ; 20:4, s. 321-329
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Tidskriftsartikel (refereegranskat)abstract
- This study's aim was to elucidate health-care staff experience of working on a locked acute psychiatric ward. In many countries changes in health care has contributed to fewer beds available in inpatient care, and a concentration of patients with severe psychiatric conditions. This implies a changing work environment in acute psychiatric care. Qualitative interviews with health-care staff (n= 10) were carried out on a ward for patients with affective disorder and eating disorder in a Swedish hospital. Qualitative content analysis was used. Four themes were identified from the data: 'undergoing changes in care delivery', 'feeling a need for security and control', 'managing the demands at work' and 'feeling a sense of responsibility'. This study adds to earlier research into how a sense of responsibility can place a significant burden on health-care staff working on a locked psychiatric ward and also contribute to increased control of patients. This study also shows that relationships and power structures among health-care staff need to be addressed when organizational changes are made in care delivery. Further research is needed to reach a comprehensive understanding of care on locked acute psychiatric wards, including a development of nursing and medicine as knowledge domains in one common context. © 2012 Blackwell Publishing.
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| 43. |
- Jormfeldt, Henrika, 1966-, et al.
(författare)
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Master’s level mental health nursing competencies, a prerequisite for equal health among service users in mental health care
- 2018
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - Abingdon : Taylor & Francis. - 1748-2623 .- 1748-2631. ; 13:S1
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: This discussion paper aims to explore the need of a clarified definition of master’s level mental health nursing competencies in terms of knowledge, skills and attitudes in a European context. Mental health service users have, in spite of their right to equal overall health, higher rates of physical illness and are more likely to experience premature death than the general population. Implementation of a holistic concept of health comprising mental, physical and social aspects of health in mental health services has previously proved to be challenging. Methods: Master’s level mental health nursing competencies in recent literature are discussed and illuminated in terms of knowledge, skills and attitudes in order to enable the promotion of equal overall health among service users in mental health services. Results: The discussion show contents, values and utility of master’s level mental health nursing competencies in mental health services and contribute to reduced role ambiguity by distinguishing master’s level responsibilities from undergraduate nursing tasks and obligations of other professionals in mental health care. Conclusion: This discussion paper shapes implications for developments in master’s level mental health nursing education curricula. © 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
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| 44. |
- Josefsson, Ulrika, 1965, et al.
(författare)
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Person-centred web-based support - development through a Swedish multi-case study.
- 2013
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Ingår i: BMC medical informatics and decision making. - : Springer Science and Business Media LLC. - 1472-6947. ; 13:1
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Tidskriftsartikel (refereegranskat)abstract
- Departing from the widespread use of the internet in modern society and the emerging use of web applications in healthcare this project captures persons' needs and expectations in order to develop highly usable web recourses. The purpose of this paper is to outline a multi-case research project focused on the development and evaluation of person-centred web-based support for people with long-term illness. To support the underlying idea to move beyond the illness, we approach the development of web support from the perspective of the emergent area of person-centred care. The project aims to contribute to the ongoing development of web-based supports in health care and to the emerging field of person-centred care.Methods/designThe research design uses a meta-analytical approach through its focus on synthesizing experiences from four Swedish regional and national cases of design and use of web-based support in long-term illness. The cases include children (bladder dysfunction and urogenital malformation), young adults (living close to persons with mental illness), and two different cases of adults (women with breast cancer and childbearing women with type 1 diabetes). All of the cases are ongoing, though in different stages of design, implementation, and analysis. This, we argue, will lead to a synthesis of results on a meta-level not yet described.
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| 45. |
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| 46. |
- Karpowicz, Ewa, et al.
(författare)
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Self-esteem in patients treated for anorexia nervosa.
- 2009
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Ingår i: International journal of mental health nursing. - Richmond : Wiley. - 1447-0349 .- 1445-8330. ; 18:5, s. 318-25
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Tidskriftsartikel (refereegranskat)abstract
- Anorexia nervosa (AN) mainly affects girls or women between 13 and 45 years of age. According to previous studies, one of the reasons for the desire to be thin is low self-esteem. The purpose of the study was to examine the self-esteem of 38 female patients with AN between 16 and 25 years of age, before and after 3 months of treatment at a specialist ward for eating disorders in Göteborg, Sweden. A quantitative pre- and post-assessment based on two self-rating questionnaires, the Rosenberg Self-Esteem Scale (RSE-S) and three subscales (weight phobia, body dissatisfaction, and ineffectiveness) of Eating Disorder Inventory-2 (EDI-2), together with body mass index (BMI), were used in the study, which was conducted between June 2005 and March 2008. The results reveal that self-esteem, BMI, weight phobia, and body dissatisfaction improved significantly between pre- and post-treatment. The RSE-S and EDI-2 ineffectiveness correlate highly with one another, which lends support to convergent validity, and the internal consistency was high for both the RSE-S and EDI-2 ineffectiveness. The results indicate that the treatment was effective, as both patients' self-esteem and BMI increased after completed treatment, which was the primary goal of the treatment at this ward. Future studies should focus on follow up and the way self-esteem manifests itself at different points in time within an individual.
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| 47. |
- Keogh, Brian, et al.
(författare)
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Developing e-learning materials in mental health : the eMenthe Project
- 2017
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Ingår i: Mental Health Practice. - Harrow : Royal College of Nursing (RCNi). - 1465-8720 .- 2047-895X. ; 20:5, s. 36-37
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Tidskriftsartikel (refereegranskat)abstract
- This article describes a European collaborative project that developed master’s degree level e-learning materials for mental health nurses. The e-learning materials are freely available online at www.ementhe.eu
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| 48. |
- Keogh, Brian, et al.
(författare)
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Developing Master’s level eLearning material in mental health – Phase one, consulting with key stakeholders
- 2014
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Ingår i: Book of Abstracts. ; , s. 116-116
-
Konferensbidrag (refereegranskat)abstract
- Background: The need to develop education programmes for mental health nurses that are responsive to the needs of key stakeholders is essential to ensuring that mental health nursing practices remain contemporary and consistent with national and international mental health policy. To this end, a group of mental health nursing faculty from seven European countries came together to develop transferable eLearning materials for Masters Levels mental health nursing students focusing on a three of key areas; 1)recovery and social inclusion, 2) mental health promotion and prevention and 3) working with families and caregivers. This poster provides details of how the European partners will conduct the first phase of the project which is consultation with the key stakeholders (MSc Students, senior and expert mental health nurses, family and carer organisations and mental health service users).Aim and objectives: The aim of this project is to develop e-learning materials for Masters level mental health nursing education programmes based on the identified needs of key stakeholders.Methods: This research follows an action research design and this first phase will involve consultation with key stake holders using a qualitative approach. Data will be collected in three phases: 1. One focus group will be conducted with current MSc in Mental Health Nursing Students. 2. The participants (MSc Students) involved in phase one will be required to return to their areas of practice and gather information from 2 senior and expert mental health nurses using a prepared data collection template. 3. The researchers will collect data from the family carer organisations and mental health service users using telephone interviews using a prepared data collection template. This process will be repeated in all the European universities involved and will form the basis for the eLearning content.Analysis and Results: Data collection is due to start in December 2013.Recommendations: This collaborative approach to postgraduate mental health nursing education will ensure that a consistent, contemporary and needs driven eLearning package will be developed.
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| 49. |
- Keogh, Brian, et al.
(författare)
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Working with Families Affected by Mental Distress : Stakeholders' Perceptions of Mental Health Nurses Educational Needs
- 2017
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Ingår i: Issues in Mental Health Nursing. - Philadelphia, PA : Taylor & Francis. - 0161-2840 .- 1096-4673. ; 38:10, s. 822-828
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Tidskriftsartikel (refereegranskat)abstract
- Family and informal caregivers provide a substantial amount of care and support to people who experience mental health problems. The aim of this study was to explore mental health nurses', students' and service users' perceptions of the knowledge, skills and attitudes that are required by mental health nurses to work with families and carers using a qualitative methodology. Three themes emerged from the data: Knowledge of the family and how mental distress affects the family; working with the family - support and education; and valuing the role of the family. The three themes demonstrate the complexity of preparing mental health nurses to work with families and carers, and the article offers recommendations about how this might be achieved. © 2017 Taylor & Francis Group, LLC
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| 50. |
- Kilkku, Nina, et al.
(författare)
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eMenthe : a European co-operation project to enhance Master’s level education in mental health practice with eLearning materials
- 2013
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Ingår i: Horatio, European Psychiatric Nursing Congress 2013. ; , s. 152-152
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Konferensbidrag (refereegranskat)abstract
- There are wide differences in the quality and content of mental health nurse education throughout Europe. These are evident in the course structures, emphasis and specific content. This diversity between programmes creates possibilities for countries to learn from one another and to share and benefit from the diverse approaches. As the concerns and development needs regarding mental health practices are shared, it is wise to identify best practices and to share these for mutual benefit to ensure the highest quality education and practice. To this end, seven European universities from Finland, Ireland, Sweden, United Kingdom and the Netherlands have commenced a collaboration to enhance Master’s level education in mental health practice. The project’s aim is to develop eLearning materials with an action research approach in collaboration with Master’s level students from these universities and associated partners from clinical practice. eLearning materials on three central themes: recovery, mental health promotion and prevention, the role of families and caregivers will be launched for students in Master’s level and clinical practice to use. International co-operation is seen as a quality assurance process; each of the partners are highly esteemed universities with extensive experience in mental health education, research and strong links with practice. With this kind of co-operation it is possible to enhance the quality of Master’s level education in Europe in the future. Funding for the project has been applied for from the Erasmus LLP-programme. At the time of the conference the project will have commenced if the funding decision is positive.
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