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Sökning: WFRF:(Svedberg Lena)

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1.
  • Björkenheim, Anna, 1980-, et al. (författare)
  • Assessment of Atrial Fibrillation–Specific Symptoms Before and 2 Years After Atrial Fibrillation Ablation : Do Patients and Physicians Differ in Their Perception of Symptom Relief?
  • 2017
  • Ingår i: JACC. - : Elsevier. - 2405-500X .- 2405-5018. ; 3:10, s. 1168-1176
  • Tidskriftsartikel (refereegranskat)abstract
    • Objectives: The aim of this study was to evaluate patient-reported and physician-assessed atrial fibrillation (AF)–related symptoms after AF ablation.Background: Success of AF ablation is usually defined as freedom from AF, although symptom relief is often patients’ desire.Methods: Symptom relief was assessed as perceived by patients using the short, validated, AF-specific symptom questionnaire AF6 and as classified by physicians using the European Heart Rhythm Association (EHRA) classification at baseline and 6, 12, and 24 months after AF ablation. Recurrence of arrhythmia was documented by continuous electrocardiographic monitoring.Results: In total, 54 patients completed the 24-month follow-up. All 6 items on the AF6, AF6 sum score, and EHRA class improved significantly over time. The greatest improvement was seen during the first 6 months after ablation, but AF6 scores showed continued improvement up to 12 months, in contrast to EHRA class. There was a low correlation between AF6 score and EHRA class, but the predictive ability was low. Both AF6 scores and EHRA class were significantly correlated with AF burden at all times after ablation. A change of >9 points in AF6 sum score corresponded to a meaningful reduction in symptom severity.Conclusion: Patient-reported and physician-assessed outcomes were both useful in assessing symptom relief after AF ablation, although patient-reported outcomes were more sensitive tools. There was also a discrepancy between patient-reported and physician-assessed outcomes after ablation. Freedom from AF and a low AF burden most often resulted in a reduction of symptoms, but symptom relief also occurred despite little effect on the arrhythmia.
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2.
  • Carlsson, Ing-Marie, 1961-, et al. (författare)
  • Creating a communication space in the healthcare context : Children’s perspective of using the eHealth service, Sisom
  • 2021
  • Ingår i: Journal of Child Health Care. - London : Sage Publications. - 1367-4935 .- 1741-2889. ; 25:1, s. 31-43
  • Tidskriftsartikel (refereegranskat)abstract
    • According to the United Nation’s Convention of the Rights of the Child, children have the right to participate in their own healthcare and make their opinions heard. The aim of this study was thus to explore the impact of using an eHealth service, Sisom, to gain the children’s perspectives during their healthcare appointments. Data were gathered through individual interviews with a purposeful sample of 16 children, aged 6–13 years old, treated for different diseases and using the eHealth service, Sisom, during their healthcare appointments. The interviews were analysed using a constructivist grounded theory. The results showed that using Sisom made children’s voice heard by creating a communication space in the healthcare setting. This meant that the children got involved in the communication, were acknowledged as an important person who could give the answers to questions and were given time. Implementing the use of Sisom is a way to make children’s needs and preferences explicitly visible for decision-making in practice and thereby supporting the further development of child-centred care in practice. © The Author(s) 2020.
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4.
  • Einberg, Eva-Lena, 1965-, et al. (författare)
  • Friendship Relations From the Perspective of Children With Experience of Cancer Treatment : A Focus Group Study With a Salutogenic Approach
  • 2015
  • Ingår i: Journal of Pediatric Oncology Nursing. - Thousand Oaks : Sage Publications. - 1043-4542 .- 1532-8457. ; 32:3, s. 153-164
  • Tidskriftsartikel (refereegranskat)abstract
    • Friendships are significant to child development and health but diseases such as cancer can interrupt the contact with friends. The purpose of this study was to describe perceptions of friendship from the perspective of children undergoing cancer treatment, in order to build knowledge that can be used in a health promotion intervention for these children. Fifteen children between 8 and 12 years of age participated in focus groups, where a mixture of informative and creative techniques were used. The focus group discussions were analyzed using qualitative content analysis. The analysis resulted in three generic categories, “Common interests and experiences,” “Mutual empathic actions.” and “Mutual trust and understanding,” incorporating seven subcategories. Based on children’s descriptions from a salutogenic perspective, friendship emerged as An equal and mutual commitment that evolves over time and with interactions face-to-face and digitally, a child perspective on friendship should be central to the development of health promotion interventions designed to support friendship relations of children treated for cancer. © 2014 by Association of Pediatric Hematology/Oncology Nurses
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5.
  • Einberg, Eva-Lena, 1965-, et al. (författare)
  • Hur gör man barn delaktiga i forsknings- och innovationsprocesser vid utveckling av digitala hälsoinnovationer
  • 2013
  • Konferensbidrag (refereegranskat)abstract
    • Att drabbas av en svår eller kronisk sjukdom under barndomen kan bidra till fysiska och psykosociala svårigheter senare i livet. Kamratstöd mellan individer som delar samma erfarenhet är en viktig främjande faktor till hälsa och välbefinnande och kan verka som en buffert mot stress och motgångar. Empirisk evidens som kan vägleda utveckling av digitala och interaktiva lösningar för kamratstöd mellan barn som drabbas av sjukdom i skolåldern är idag begränsad. Den process som presenteras här är fokuserad på att etablera metodologi för barns delaktighet i innovationsprocesser och att fånga barns bakomliggande beteenden och mål relaterat till kamratstödjande processer och hälsa. Intervjuer i fokusgrupper är en teknik som främjar barns deltagande och fångar barns perspektiv, förståelse och erfarenhet relaterat till deras hälsa. Friska barn (8-12 år) rekryterades från en lokal grundskola till fyra fokusgrupper med fyra barn i varje grupp. Barnen träffades två gånger med en intervall på 1-2 veckor. Förändringar gjordes mellan varje fokusgrupp för att anpassa strukturen på träffarna till en nivå motsvarande barnens erfarenheter, ålder och förmåga och för att fokusera diskussionerna på innovationsprocessen. En blandning av informativa och kreativa tekniker som öppna frågor, brainstorming, rita och måla och fotografering användes för att underlätta för barnen att uttrycka sig. Barnen framförde efter deltagandet att de tyckte om att delta och ville träffas igen i den här formen av grupp. Vår anpassade struktur på fokusgrupper används idag med barn med erfarenhet av svår sjukdom (cancer) för att ta fram typanvändare (Personas) i innovationsprocessen. Barnen rekryterades från Barnonkologiskt centra i Lund och Hallands sjukhus i Halmstad till fem fokusgrupper med tre barn i varje grupp. Barns delaktighet genom vår metod har förbättrat förutsättningarna att fånga barns mål och beteende och tillfört unikt material till den fortsatta designprocessen.
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6.
  • Einberg, Eva-Lena, 1965-, et al. (författare)
  • Hur gör man barn delaktiga i forsknings- och innovationsprocesser vid utveckling av digitala hälsoinnovationer
  • 2012
  • Konferensbidrag (refereegranskat)abstract
    • Att drabbas av en svår eller kronisk sjukdom under barndomen kan bidra till fysiska och psykosociala svårigheter senare i livet. Kamratstöd mellan individer som delar samma erfarenhet är en viktig främjande faktor till hälsa och välbefinnande och kan verka som en buffert mot stress och motgångar. Empirisk evidens som kan vägleda utveckling av digitala och interaktiva lösningar för kamratstöd mellan barn som drabbas av sjukdom i skolåldern är idag begränsad. Den process som presenteras här är fokuserad på att etablera metodologi för barns delaktighet i innovationsprocesser och att fånga barns bakomliggande beteenden och mål relaterat till kamratstödjande processer och hälsa. Intervjuer i fokusgrupper är en teknik som främjar barns deltagande och fångar barns perspektiv, förståelse och erfarenhet relaterat till deras hälsa. Friska barn (8-12 år) rekryterades från en lokal grundskola till fyra fokusgrupper med fyra barn i varje grupp. Barnen träffades två gånger med en intervall på 1-2 veckor. Förändringar gjordes mellan varje fokusgrupp för att anpassa strukturen på träffarna till en nivå motsvarande barnens erfarenheter, ålder och förmåga och för att fokusera diskussionerna på innovationsprocessen. En blandning av informativa och kreativa tekniker som öppna frågor, brainstorming, rita och måla och fotografering användes för att underlätta för barnen att uttrycka sig. Barnen framförde efter deltagandet att de tyckte om att delta och ville träffas igen i den här formen av grupp. Vår anpassade struktur på fokusgrupper används idag med barn med erfarenhet av svår sjukdom (cancer) för att ta fram typanvändare (Personas) i innovationsprocessen. Barnen rekryterades från Barnonkologiskt centra i Lund och Hallands sjukhus i Halmstad till fem fokusgrupper med tre barn i varje grupp. Barns delaktighet genom vår metod har förbättrat förutsättningarna att fånga barns mål och beteende och tillfört unikt material till den fortsatta designprocessen.
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7.
  • Einberg, Eva-Lena, 1965-, et al. (författare)
  • Involving children in research and innovation processes in the development of digital health promotion intervention
  • 2013
  • Konferensbidrag (refereegranskat)abstract
    • IntroductionSevere or chronic illness in childhood may contribute to physical and psychosocial problems later in life. Peer support among individuals who share the same experience is an important factor in promoting health and wellbeing and can act as a buffer against stress and adversities. Empirical evidence that could guide development of digital and interactive solutions for peer support between school-aged children affected by illness is limited.Purpose/MethodsThe process presented here is focused on establishing method- ology for children's participation in innovation processes and to capture the child's underlying behaviors and goals related to peer support processes and health. Focus group interview is a child-friendly method that promotes participation and access to children's perspectives, insights and experiences related to their health. Healthy children were recruited from a local elementary school. Focus groups were carried out in two sessions for each group with an interval of 1-2 weeks.ResultsAdjustments were made between each focus group to adapt the meeting structure to a level commensurate with the chil- dren's experience, age and abilities and to focus discussions on innovation incentives related to a digital peer support service. A mixture of informative and creative techniques such as open questions, brainstorming, drawing and painting and photog- raphy were used to assist the children to express themselves. The children were pleased to participate and wanted to meet again in this form of group.ConclusionsOur adapted focus group structure are now being used with children with experience of severe illness (cancer) to develop Personas (fictitious characters of users) in the innovation pro- cess. Children's participation through our method has improved the chances of capturing children's goals and behavior, and added unique material for the continuing design process. 
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8.
  • Einberg, Eva-Lena, 1965-, et al. (författare)
  • Participatory innovation process for development of a digital peer support service for children with cancer
  • 2012
  • Ingår i: SIOP Publication Abstracts. - Hoboken, NJ : John Wiley & Sons. ; , s. 88-88
  • Konferensbidrag (refereegranskat)abstract
    • Purpose: Surviving cancer during childhood imposes a number of difficulties later in life. Peer support has been recognised as an important contributor to health and well-being but empirical evidence that could guide development of peer support programs for school aged children is scarce. The process presented here is focused on generic exploration of children’s needs and expectations related to peer support innovations to promote health and wellbeing of children with cancer. The purpose of this study is to establish a participatory innovation process that grasps the underlying behaviours and goals of children that will affect the design of a digital peer support service.Methods: Focus group interview is a child-friendly technique that promotes participation and access to children’s perspectives, insights and experiences related to their health. Healthy children 8–12 years of age were recruited from a local elementary school. Focus groups (n = 5 groups) were carried out in two sessions for each group (n = 4 children per group) with an interval of 1–2 weeks. Adjustments were made between each focus group to adapt the meeting structure to a level commensurate with the children’s experience, age and abilities and to focus discussions on innovation incentives related to a digital peer support service.Results: The adaptation process involved adjustments of the focus group structure to match children in the selected age group and to the aims of the innovation process. A mixture of informative and creative techniques (open questions, brainstorming, drawing, photography) assisted the children in talking and expressing themselves. The children were pleased to participate and wanted to meet again in this kind of study group. The adapted focus group sessions are now being used in the research and innovation process with children (8–12 yrs) with experience of cancer treatment.Conclusion: The final focus group structure capture children’s perspectives for the design of a digital peer support service.
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10.
  • Einberg, Eva-Lena, 1965-, et al. (författare)
  • Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form
  • 2013
  • Ingår i: Health and Quality of Life Outcomes. - London : Springer Science and Business Media LLC. - 1477-7525. ; 11
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: It has become important to measure long-term effects and quality of life in survivors of childhood cancer. The Minneapolis- Manchester Quality of Life (MMQL) instrument has been proven to better capture the quality of life (QoL) perspective of health than other instruments. The instrument has age appropriate versions and is therefore favourable for longitudinal studies of QoL of children surviving from cancer. The aim of this study was to evaluate the psychometric properties of the Swedish version of MMQL-Youth Form and the Adolescent Form focusing on: 1) face and content validity 2) the internal consistency and 3) the test-retest reliability. Methods: The sample consisted of 950 pupils (11-16 years old) from 7 schools in the western Sweden who completed the questionnaire. For the test-retest evaluation 230 respondents completed the questionnaire two weeks later. Results: Face and content validity was supported and internal consistency was found to be acceptable for the total scale for both the MMQL-Youth Form (8-12 years of age) and the Adolescent Form (13-20 years of age). Test-retest reliability for the MMQL-Youth Form was moderate for 50% of the items and good for the remaining. For the MMQL-Adolescent Form the test-retest showed moderate or good agreement for 80% of the items and fair for 20%. Conclusions: The result indicated that the Swedish version of the MMQL-Youth Form and Adolescent Form was valid and reliable in a sample of healthy children in a Swedish context. It is recommended to test the instrument among diverse samples of children such as survivors of childhood cancer in order to validate its usefulness in research and clinical settings.
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11.
  • Einberg, Eva-Lena, et al. (författare)
  • 'Through my eyes' : health-promoting factors described by photographs taken by children with experience of cancer treatment
  • 2016
  • Ingår i: Child: care, health and development. - 0305-1862 .- 1365-2214. ; 42:1, s. 76-86
  • Tidskriftsartikel (refereegranskat)abstract
    • BACKGROUND:Health promotion for children with cancer should be based on the children's own needs and desires. Because there is a lack of knowledge in this area, the aim of this study was to explore what promotes health from the perspective of children with experience of cancer treatment.METHODS:Fifteen children between 8 and 12 years of age participated in focus groups with three children in each group. The children were given a camera and instructions to photograph subjects that promote their health. Focus group discussions were based on the photographs and the children's own description of those photographs. The analysis of focus group discussions and photographs was conducted using inductive content analysis.RESULTS:According to the children, health-promoting factors are defined as meaningful relationships, recreational activities and a trustful environment. Meaningful relationships include togetherness within the family, affection for pets and friendship with peers. Recreational activities include engagement in play and leisure, withdrawal for relaxation and feeling enjoyment. Trustful environment includes confidence in significant others and feeling safe.CONCLUSIONS:Knowledge from this study can contribute to health promotion interventions and quality improvements in the health care of children with experience of cancer treatment. Children's experiences with what promotes health in their everyday lives provide a better understanding of the type of support children prefer when promoting their own health.
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12.
  • Einberg, Eva-Lena, 1965-, et al. (författare)
  • 'Through my eyes' : Health-promoting factors described by photographs taken by children with experience of cancer treatment
  • 2016
  • Ingår i: Child Care Health and Development. - Chichester : Wiley. - 0305-1862 .- 1365-2214. ; 42:1, s. 76-86
  • Tidskriftsartikel (refereegranskat)abstract
    • BackgroundHealth promotion for children with cancer should be based on the children's own needs and desires. Because there is a lack of knowledge in this area, the aim of this study was to explore what promotes health from the perspective of children with experience of cancer treatment.MethodsFifteen children between 8 and 12 years of age participated in focus groups with three children in each group. The children were given a camera and instructions to photograph subjects that promote their health. Focus group discussions were based on the photographs and the children's own description of those photographs. The analysis of focus group discussions and photographs was conducted using inductive content analysis.ResultsAccording to the children, health-promoting factors are defined as meaningful relationships, recreational activities and a trustful environment. Meaningful relationships include togetherness within the family, affection for pets and friendship with peers. Recreational activities include engagement in play and leisure, withdrawal for relaxation and feeling enjoyment. Trustful environment includesconfidence in significant others and feeling safe.ConclusionsKnowledge from this study can contribute to health promotion interventions and quality improvements in the health care of children with experience of cancer treatment. Children's experiences with what promotes health in their everyday lives provide a better understanding of the type of support children prefer when promoting their own health.
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  • Enejder, Annika, 1969, et al. (författare)
  • CARS and Raman microscopy of Alzheimer's Brain Tissue
  • 2010
  • Ingår i: AIP Conference Proceedings. - : AIP. - 1551-7616 .- 0094-243X. - 9780735408180 ; 1267, s. 480-481
  • Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
    • Alzheimer’s disease (AD) is a progressive neurodegenerative disorder without cure, characterized by the presence of extracellular plaques surrounded by dystrophic neuritis. Fundamental understanding of the molecular processes involved is urgently needed in order to develop strategies to inhibit steps in the AD pathogenesis. Current understanding is that the senile plaques are composed of peptide fragments (Amyloid-β peptides) formed after the cleavage of the transmembrane protein amyloid protein precursor (APP). This knowledge relies primarily on biochemical analysis of the plaques in cell extracts together with fluorescence microscopy of tissue samples exposed to harsh preparation procedures and labeling. Thus, it is disputed to which extent the observations reported reflect the true biochemistry and morphology of AD brain tissue. By the powerful combination of Raman microspectroscopy, Coherent Anti-Stokes Raman Scattering (CARS) and 2-photon fluorescence microscopy, we show that the molecular composition of AD plaques is more complex and consequently the mechanisms behind their formation.
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15.
  • Hutton, Katrin, 1968-, et al. (författare)
  • Self-rated mental health and socio-economic background : a study of adolescents in Sweden
  • 2014
  • Ingår i: BMC Public Health. - London : BioMed Central. - 1471-2458. ; 14:1
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Adolescents' mental health is a major public health issue. Previous research has shown that socio-economic factors contribute to the health status of adolescents. The present study explores the association between socio-economic status and self-rated mental health among adolescents.Methods: Cross sectional data from the Halmstad Youth Quality of Life cohort was collected in a town in Sweden. In all, 948 adolescents (11-13 younger age group and 14-16 older age group) participated. Information on self-rated mental health was collected from the subscale Psychological functioning in the Minneapolis Manchester Quality of Life instrument. The items were summarized into a total score and dichotomized by the mean. Indicators measuring socio-economic status (SES) were collected in a questionnaire using the Family Affluence Scale (FAS) and additional factors regarding parents' marital status and migration were added. Logistic models were used to analyze the data.Results: Girls were more likely to rate their mental health below the mean compared to boys. With regard to FAS (high, medium, low), there was a significantly increased risk of self-rated mental health below the mean among younger boys in the medium FAS score OR; 2.68 (95% CI 1.35;5.33) and among older boys in the low FAS score OR; 2.37 (1.02;5.52) compared to boys in the high FAS score. No such trend was seen among girls. For younger girls there was a significant protective association between having parents born abroad and self-rated mental health below mean OR: 0.47 (0.24;0.91).Conclusions: A complex pattern of associations between SES and self-rated mental health, divergent between age and gender groups, was shown. The total FAS score was only associated with boys' self-rated mental health in both age groups, whereas parents' migratory status influenced only the girls' self-rated mental health. Because of the different association for girls' and boys' self-rated mental health and SES, other factors than SES should also be considered when investigating and exploring the mental health of adolescents in affluent communities. © 2014 Hutton et al.; licensee BioMed Central Ltd.
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16.
  • Klintberg, Lena, et al. (författare)
  • Fabrication of a paraffin actuator using hot embossing of polycarbonate
  • 2003
  • Ingår i: Sensors and Actuators A-Physical. - 0924-4247 .- 1873-3069. ; 103:3, s. 307-316
  • Tidskriftsartikel (refereegranskat)abstract
    • In this paper a fabrication process for integrating paraffin-actuated structures in polycarbonate is outlined. A paraffin-actuated membrane with a diameter of 2.5 mm, where the volume expansion of 10–15% associated with the solid-to-liquid phase transition of paraffin is utilized, has been fabricated and evaluated. Microstructures fabricated in silicon have via an electroplated nickel mould been replicated in polycarbonate by hot embossing and the resulting structures have been sealed by thermal bonding. The bonding strength was measured by a pressurizing test, and the polycarbonate surfaces were characterized with electron spectroscopy for chemical analysis (ESCA). It was found that the bond strength increased when an oxygen plasma treatment was used prior to bonding. ESCA measurements showed a corresponding increase in oxygen content on the plasma treated surfaces. This procedure also improved the wetting properties. The contact angle between paraffin and polycarbonate decreased from 10° after embossing to about 5° after plasma treatment. The fabricated actuator had a total thickness of 1 mm and the membrane deflected about 140 μm when heating the actuator above the melting point of paraffin. Paraffin wax actuators are possible to integrate in plastic structures making them promising candidates in applications such as disposable microfluidic systems where inexpensive and robust valves and pumps are needed.
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19.
  • Lönn, Maria, Doktorand, 1981- (författare)
  • Weighted blankets as a sleep intervention for children with ADHD
  • 2024
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • BAKGRUND: Healthy sleep practices for children should be promoted as an essential part of a healthy lifestyle, with important implications for the entire family. Unhealthy sleep patterns and sleep-related problems disrupt everyday life and functioning. Sleep problems are common among children, especially those with attention deficit hyperactivity disorder (ADHD). Weighted blankets are one type of non-pharmacological intervention that has been used in health-care settings, such as occupational therapy practice. However, evidence is scarce and knowledge is lacking concerning the effects of weighted blankets on sleep and their potential benefits. Given the challenges children with ADHD face in sleep problems and emotional and behavioural regulation, weighted blankets could be a particular relevant intervention. The SLEEP project was thus designed to increase current evidence and knowledge about the use of weighted blankets as a sleep intervention for children with ADHD. AIM: The overall aim of this thesis was to investigate the impact of weighted blankets on the sleep health of children with ADHD and sleep problems.METHODS: A crossover randomised controlled trial (Study I) was conducted that included 94 children with ADHD, 6-14 years old. Children were randomly assigned to four weeks of a weighted blanket or four weeks of a lighter control blanket, followed by the other intervention. Data was collected with actigraphy (primary outcome), child- and parent-questionnaires and a daily sleep diary. The efficacy of weighted blankets was analysed with a paired t-test. An experimental longitudinal study (Study II) was carried out that involved the same 94 children, who were followed for 16 weeks. Weighted blanket-adherent vs non-adherent children were compared based on sample characteristics and changed sleep outcomes. The data collected at baseline, at 4 weeks, 8 weeks and at 16-week follow-up were analysed with mixed effect models. Weighted blanket-adherent children were further examined longitudinally (Study III) and compared from baseline to the 16-week follow-up. Parents’ ratings of children’s sleep problems were analysed using paired t-test and McNemar’s test. Furthermore, a qualitative study (Study IV) was performed in which a purposive sample of 26 children participated in individual interviews. A qualitative content analysis was performed to analyse the data.RESULTS: In Study I, weighted blankets were found to be more efficacious than the lighter control blankets, according to objectively measured sleep (increased total sleep time, increased sleep efficiency and decreased wake after sleep onset). Older children, 11-14 years old, and children with an inattentive ADHD subtype slept longer and more effectively with the weighted blanket. In Study II, weighted blanket-adherent children showed improvement, with fewer sleep problems, compared to non-adherent children. Weighted blanket-adherent children also showed a stable total sleep time compared to non-adherent children, who displayed a decrease in their total sleep time during the 16-week sleep intervention. This association was shown for the older children aged 11-14, but not for the younger children aged 6-10. Furthermore, in Study III, the parents of the Weighted blanket-adherent children reported fewer episodes of night wakings, sleep onset delay, sleep duration difficulties and daytime sleepiness. Bedtime resistance and daytime sleepiness were considered the most problematic domains at baseline, and these also showed the greatest change, according to parents’ experiences of children’s problematic sleep. In Study IV, children described that using WBs requires a commitment, improves emotional regulation, changes sleeping patterns and promotes everyday participation.CONCLUSION: The overall results of this thesis indicate that children with ADHD and sleep problems benefit from using weighted blankets. Weighted blankets could thus be an efficient sleep intervention and an important complement to standard treatment for children with ADHD and sleep problems. More research is needed to establish the effectiveness of weighted blankets in different subgroups and settings. 
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20.
  • Monachino, Michelle Sara (författare)
  • The Corporate Social Responsibility (CSR) approach as a framework for business involvement in health promotion in the welfare state
  • 2016
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • This dissertation is to be situated in the debate about the development of the contemporary Western European welfare state, its displacement of responsibilities from state to non-state societal actors and the resulting concerns vis-à-vis the optimal distribution of responsibilities. Drawing, in interdisciplinary fashion, from the fields of political sociology, political economics, welfare studies, public health policy, and management, it focuses upon the involvement of for-profit, non-state actors into a field traditionally of state competence, that of public health. In order to do so, are considered two spheres of research and practice that frame and motivate the involvement of business actors in public health in the welfare state, and that have been seldom crossed: the Corporate Social Responsibility (CSR) approach and the health promotion approach. Through the means of a qualitative policy analysis relying on a variety of methods, literature review, document analysis, case studies and participant observation, this dissertation sets out to identify the features of business involvement in health promotion through CSR, and to examine and discuss the issues arising from such involvement in the context of the Western European welfare state. Specifically, the purpose is that of participating to the clarification and discussion of the potential contributions and dilemmas CSR initiatives pose for health promotion policy and practice, as well as unveiling the limits to such contribution. The findings suggest that initiatives formulated within the CSR framework are apt to allow business actors to further contextual health promotion priorities and approaches, as well as enabling the advancing of social capital and trust building at local level. Nevertheless, such contributions were found to be partial, limited by a number of specific boundaries inherent to the way the CSR approach is configured and to the way it is applied. Boundaries are resumed in terms of: coexistent rationalities and partial understandings concerning the CSR approach; lack of awareness of business actors concerning the health promotion approach and its dimensions; positive understanding of social responsibility; and limited instruments for cross-sectoral negotiation and collaboration. On the basis of the findings, the dissertation refutes the dilemmas, presented in literature, concerning the potential for CSR initiatives to constitute a mean for the scaling back of governmental responsibilities or the divulgation of a narrow understanding of health. On the other hand, it confirms their potential instrumentality to the pursuit of opportunistic objectives, such as market differentiation and regulation avoidance. The information collected did not allow discussing the aptitude for CSR initiatives to constitute channels for the direct lobbying of political élites or the exercise of organizational control upon employees. The dissertation further warns that the selection of causes, beneficiaries, and social partners operated in absence of mechanisms of alignment with contextual priorities and of inclusion of stakeholder interest into business decision-making may lead to CSR initiatives emphasising, rather than counterbalancing, inequalities in the access to resources and opportunities for health. Ultimately, it is recommended for the term CSR to be modified as to better fit the ensemble of business actors that may engage in the approach, for instance, substituting it with the more encompassing term social responsibility of businesses, or with any other term apt to the depict the dialogic purpose of CSR.
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21.
  • Neher, Margit, 1959-, et al. (författare)
  • Innovation in healthcare : leadership perceptions about the innovation characteristics of artificial intelligence—a qualitative interview study with healthcare leaders in Sweden
  • 2023
  • Ingår i: Implementation Science Communications. - London : BioMed Central (BMC). - 2662-2211. ; 4
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Despite the extensive hopes and expectations for value creation resulting from the implementation of artificial intelligence (AI) applications in healthcare, research has predominantly been technology-centric rather than focused on the many changes that are required in clinical practice for the technology to be successfully implemented. The importance of leaders in the successful implementation of innovations in healthcare is well recognised, yet their perspectives on the specific innovation characteristics of AI are still unknown. The aim of this study was therefore to explore the perceptions of leaders in healthcare concerning the innovation characteristics of AI intended to be implemented into their organisation.Methods: The study had a deductive qualitative design, using constructs from the innovation domain in the Consolidated Framework for Implementation Research (CFIR). Interviews were conducted with 26 leaders in healthcare.Results: Participants perceived that AI could provide relative advantages when it came to care management, supporting clinical decisions, and the early detection of disease and risk of disease. The development of AI in the organisation itself was perceived as the main current innovation source. The evidence base behind AI technology was questioned, in relation to its transparency, potential quality improvement, and safety risks. Although the participants acknowledged AI to be superior to human action in terms of effectiveness and precision in some situations, they also expressed uncertainty about the adaptability and trialability of AI. Complexities such as the characteristics of the technology, the lack of conceptual consensus about AI, and the need for a variety of implementation strategies to accomplish transformative change in practice were identified, as were uncertainties about the costs involved in AI implementation.Conclusion: Healthcare leaders not only saw potential in the technology and its use in practice, but also felt that AI’s opacity limits its evidence strength and that complexities in relation to AI itself and its implementation influence its current use in healthcare practice. More research is needed based on actual experiences using AI applications in real-world situations and their impact on clinical practice. New theories, models, and frameworks may need to be developed to meet challenges related to the implementation of AI in healthcare. © 2023, The Author(s).
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22.
  • Nilsen, Per, 1960-, et al. (författare)
  • A Framework to Guide Implementation of AI in Health Care : Protocol for a Cocreation Research Project
  • 2023
  • Ingår i: JMIR Research Protocols. - Toronto : JMIR Publications. - 1929-0748. ; 12
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Artificial intelligence (AI) has the potential in health care to transform patient care and administrative processes, yet health care has been slow to adopt AI due to many types of barriers. Implementation science has shown the importance of structured implementation processes to overcome implementation barriers. However, there is a lack of knowledge and tools to guide such processes when implementing AI-based applications in health care.Objective: The aim of this protocol is to describe the development, testing, and evaluation of a framework, “Artificial Intelligence-Quality Implementation Framework” (AI-QIF), intended to guide decisions and activities related to the implementation of various AI-based applications in health care.Methods: The paper outlines the development of an AI implementation framework for broad use in health care based on the Quality Implementation Framework (QIF). QIF is a process model developed in implementation science. The model guides the user to consider implementation-related issues in a step-by-step design and plan and perform activities that support implementation. This framework was chosen for its adaptability, usability, broad scope, and detailed guidance concerning important activities and considerations for successful implementation. The development will proceed in 5 phases with primarily qualitative methods being used. The process starts with phase I, in which an AI-adapted version of QIF is created (AI-QIF). Phase II will produce a digital mockup of the AI-QIF. Phase III will involve the development of a prototype of the AI-QIF with an intuitive user interface. Phase IV is dedicated to usability testing of the prototype in health care environments. Phase V will focus on evaluating the usability and effectiveness of the AI-QIF. Cocreation is a guiding principle for the project and is an important aspect in 4 of the 5 development phases. The cocreation process will enable the use of both on research-based and practice-based knowledge.Results: The project is being conducted within the frame of a larger research program, with the overall objective of developing theoretically and empirically informed frameworks to support AI implementation in routine health care. The program was launched in 2021 and has carried out numerous research activities. The development of AI-QIF as a tool to guide the implementation of AI-based applications in health care will draw on knowledge and experience acquired from these activities. The framework is being developed over 2 years, from January 2023 to December 2024. It is under continuous development and refinement.Conclusions: The development of the AI implementation framework, AI-QIF, described in this study protocol aims to facilitate the implementation of AI-based applications in health care based on the premise that implementation processes benefit from being well-prepared and structured. The framework will be coproduced to enhance its relevance, validity, usefulness, and potential value for application in practice. © 2023 The Author(s).
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23.
  • Nilsen, Per, 1960-, et al. (författare)
  • Towards evidence-based practice 2.0 : leveraging artificial intelligence in healthcare
  • 2024
  • Ingår i: Frontiers in Health Services. - Lausanne : Frontiers Media S.A.. - 2813-0146. ; 4
  • Forskningsöversikt (refereegranskat)abstract
    • Background: Evidence-based practice (EBP) involves making clinical decisions based on three sources of information: evidence, clinical experience and patient preferences. Despite popularization of EBP, research has shown that there are many barriers to achieving the goals of the EBP model. The use of artificial intelligence (AI) in healthcare has been proposed as a means to improve clinical decision-making. The aim of this paper was to pinpoint key challenges pertaining to the three pillars of EBP and to investigate the potential of AI in surmounting these challenges and contributing to a more evidence-based healthcare practice. We conducted a selective review of the literature on EBP and the integration of AI in healthcare to achieve this.Challenges with the three components of EBP: Clinical decision-making in line with the EBP model presents several challenges. The availability and existence of robust evidence sometimes pose limitations due to slow generation and dissemination processes, as well as the scarcity of high-quality evidence. Direct application of evidence is not always viable because studies often involve patient groups distinct from those encountered in routine healthcare. Clinicians need to rely on their clinical experience to interpret the relevance of evidence and contextualize it within the unique needs of their patients. Moreover, clinical decision-making might be influenced by cognitive and implicit biases. Achieving patient involvement and shared decision-making between clinicians and patients remains challenging in routine healthcare practice due to factors such as low levels of health literacy among patients and their reluctance to actively participate, barriers rooted in clinicians' attitudes, scepticism towards patient knowledge and ineffective communication strategies, busy healthcare environments and limited resources.AI assistance for the three components of EBP: AI presents a promising solution to address several challenges inherent in the research process, from conducting studies, generating evidence, synthesizing findings, and disseminating crucial information to clinicians to implementing these findings into routine practice. AI systems have a distinct advantage over human clinicians in processing specific types of data and information. The use of AI has shown great promise in areas such as image analysis. AI presents promising avenues to enhance patient engagement by saving time for clinicians and has the potential to increase patient autonomy although there is a lack of research on this issue.Conclusion: This review underscores AI's potential to augment evidence-based healthcare practices, potentially marking the emergence of EBP 2.0. However, there are also uncertainties regarding how AI will contribute to a more evidence-based healthcare. Hence, empirical research is essential to validate and substantiate various aspects of AI use in healthcare. ©2024 The Authors
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24.
  • Petersson, Lena, 1968-, et al. (författare)
  • Challenges to implementing artificial intelligence in healthcare : a qualitative interview study with healthcare leaders in Sweden
  • 2022
  • Ingår i: BMC Health Services Research. - London : BioMed Central (BMC). - 1472-6963. ; 22
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Artificial intelligence (AI) for healthcare presents potential solutions to some of the challenges faced by health systems around the world. However, it is well established in implementation and innovation research that novel technologies are often resisted by healthcare leaders, which contributes to their slow and variable uptake. Although research on various stakeholders’ perspectives on AI implementation has been undertaken, very few studies have investigated leaders’ perspectives on the issue of AI implementation in healthcare. It is essential to understand the perspectives of healthcare leaders, because they have a key role in the implementation process of new technologies in healthcare. The aim of this study was to explore challenges perceived by leaders in a regional Swedish healthcare setting concerning the implementation of AI in healthcare.Methods: The study takes an explorative qualitative approach. Individual, semi-structured interviews were conducted from October 2020 to May 2021 with 26 healthcare leaders. The analysis was performed using qualitative content analysis, with an inductive approach.Results: The analysis yielded three categories, representing three types of challenge perceived to be linked with the implementation of AI in healthcare: 1) Conditions external to the healthcare system; 2) Capacity for strategic change management; 3) Transformation of healthcare professions and healthcare practice.Conclusions: In conclusion, healthcare leaders highlighted several implementation challenges in relation to AI within and beyond the healthcare system in general and their organisations in particular. The challenges comprised conditions external to the healthcare system, internal capacity for strategic change management, along with transformation of healthcare professions and healthcare practice. The results point to the need to develop implementation strategies across healthcare organisations to address challenges to AI-specific capacity building. Laws and policies are needed to regulate the design and execution of effective AI implementation strategies. There is a need to invest time and resources in implementation processes, with collaboration across healthcare, county councils, and industry partnerships. © The Author(s) 2022.
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25.
  • Petersson, Lena, 1968-, et al. (författare)
  • Developing an ethical model for guidance the implementation of AI in healthcare
  • 2023
  • Ingår i: 10th Nordic Health Promotion Research Conference 2023. Sustainability and the impact on health and well-being. - Halmstad : Halmstad University Press. - 9789189587410 ; , s. 84-84
  • Konferensbidrag (refereegranskat)abstract
    • Background: Artificial intelligence (AI) is predicted to improve healthcare, increase efficiency, save time and resources. However, research shows an urgent need to develop guidance to ensure that the use of AI in healthcare is ethically acceptable.Purpose: To develop an ethical model to support AI implementation in practice.Methods: The study used an explorative and empirically driven qualitative design. Individual interviews were conducted with 18 healthcare professionals from two emergency departments in Sweden where the county council has developed an AI application to predict the risk for unexpected mortality within 30 days after visiting an emergency department. A deductive analysis based on ethical theory i.e virtue, deontology and consequentialism, was used.Findings: The developed model shows how the healthcare professionals use ethical reasoning in relation to the implementation of AI. In relation to virtue ethics, moral considerations in relation to the use of AI were mentioned. In relation to deontology, considerations were mentioned on actions performed based on information acquired from the technology and adherence to specific duties, roles and responsibilities. In relation to consequentialism, considerations about how to provide better resources more rapidly in an equal way and how the technology can be adjusted to each patients’ individual needs and preferences in order to support decisions, self-determination, and actions that are in the patients best interest.Conclusions: Our findings provide an ethical model demonstrating the relevance of virtue, deontology and consequentialism when AI are to be implemented in practice.
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26.
  • Petersson, Lena, 1968-, et al. (författare)
  • Ethical considerations in implementing AI for mortality prediction in the emergency department : Linking theory and practice
  • 2023
  • Ingår i: Digital Health. - London : Sage Publications. - 2055-2076. ; 9
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Artificial intelligence (AI) is predicted to be a solution for improving healthcare, increasing efficiency, and saving time and recourses. A lack of ethical principles for the use of AI in practice has been highlighted by several stakeholders due to the recent attention given to it. Research has shown an urgent need for more knowledge regarding the ethical implications of AI applications in healthcare. However, fundamental ethical principles may not be sufficient to describe ethical concerns associated with implementing AI applications.Objective: The aim of this study is twofold, (1) to use the implementation of AI applications to predict patient mortality in emergency departments as a setting to explore healthcare professionals’ perspectives on ethical issues in relation to ethical principles and (2) to develop a model to guide ethical considerations in AI implementation in healthcare based on ethical theory.Methods: Semi-structured interviews were conducted with 18 participants. The abductive approach used to analyze the empirical data consisted of four steps alternating between inductive and deductive analyses. Results: Our findings provide an ethical model demonstrating the need to address six ethical principles (autonomy, beneficence, non-maleficence, justice, explicability, and professional governance) in relation to ethical theories defined as virtue, deontology, and consequentialism when AI applications are to be implemented in clinical practice.Conclusions: Ethical aspects of AI applications are broader than the prima facie principles of medical ethics and the principle of explicability. Ethical aspects thus need to be viewed from a broader perspective to cover different situations that healthcare professionals, in general, and physicians, in particular, may face when using AI applications in clinical practice. © The Author(s) 2023.
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27.
  • Petersson, Lena, 1968-, et al. (författare)
  • Ethical Perspectives on Implementing AI to Predict Mortality Risk in Emergency Department Patients : A Qualitative Study
  • 2023
  • Ingår i: Caring is sharing - exploiting the value in data for health and innovation. - Amsterdam : IOS Press. - 9781643683881 - 9781643683898 ; , s. 676-677
  • Konferensbidrag (refereegranskat)abstract
    • Artificial intelligence (AI) is predicted to improve health care, increase efficiency and save time and recourses, especially in the context of emergency care where many critical decisions are made. Research shows the urgent need to develop principles and guidance to ensure ethical AI use in healthcare. This study aimed to explore healthcare professionals' perceptions of the ethical aspects of implementing an AI application to predict the mortality risk of patients in emergency departments. The analysis used an abductive qualitative content analysis based on the principles of medical ethics (autonomy, beneficence, non-maleficence, and justice), the principle of explicability, and the new principle of professional governance, that emerged from the analysis. In the analysis, two conflicts and/or considerations emerged tied to each ethical principle elucidating healthcare professionals' perceptions of the ethical aspects of implementing the AI application in emergency departments. The results were related to aspects of sharing information from the AI application, resources versus demands, providing equal care, using AI as a support system, trustworthiness to AI, AI-based knowledge, professional knowledge versus AI-based information, and conflict of interests in the healthcare system. © 2023 European Federation for Medical Informatics (EFMI) and IOS Press.
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28.
  • Petersson, Lena, 1968-, et al. (författare)
  • Expected values of implementing AI in healthcare – A Qualitative study
  • 2023
  • Ingår i: Nordic Health Promotion Research Conference 2023. - Halmstad.
  • Konferensbidrag (refereegranskat)abstract
    • Background: Artificial intelligence (AI) is often presented as a technology that will change healthcare and be useful inclinical work in disease prediction, diagnosis, and precision health. More knowledge is needed regarding the value of AI applications based on the perspectives of healthcare leaders to understand their roles as gatekeepers and facilitatorsfor successful implementation.The purpose of the study: To explore healthcare leaders’ perceptions of the value of AI applications in clinical work.Methods: The study had an explorative qualitative approach. Individual interviews were conducted from October2020 to May 2021 with 26 healthcare leaders with different experiences in implementing AI in clinical practice in acounty council in Sweden. Inductive qualitative content analysis was used, and eight sub-categories and threecategories emerged.Findings: The value of AI applications in clinical care was described in terms of expected benefits for patients as toolssupporting person-centered information and individualized self-management. The expected benefits for healthcareprofessionals included decision-support in diagnostics, risk assessments, and treatment recommendations but alsoproviding warning systems and second opinions in clinical work. On an organizational level, the benefits comprisedpatient safety and decision-support in prioritizing healthcare resources in and across healthcare organizations.Conclusions: The healthcare leaders perceived that AI applications would provide value on different levels inhealthcare for patients, healthcare professionals, and organizations. Across these levels, the implementation of AI cansupport person-centeredness, patient self-management, quality of care, patient safety, and resource optimization.
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29.
  • Petersson, Lena, 1968-, et al. (författare)
  • Healthcare Leaders' Perceptions of the Usefulness of AI Applications in Clinical Work : A Qualitative Study
  • 2023
  • Ingår i: Caring is sharing - exploiting the value in data for health and innovation. - Amsterdam : IOS Press. ; , s. 678-679
  • Konferensbidrag (refereegranskat)abstract
    • Artificial intelligence (AI) is often presented as a technology that changes healthcare and is useful in clinical work in disease prediction, diagnosis, treatment effectiveness, and precision health. This study aimed to explore healthcare leaders' perceptions of the usefulness of AI applications in clinical work. The study was based on qualitative content analysis. Individual interviews were conducted with 26 healthcare leaders. The usefulness of AI applications in clinical care was described in terms of expected benefits for 1) patients as supporting individualized self-management and person-centered information support tools 2) healthcare professionals in terms of providing decision-support in diagnostics, risk assessments, treatment recommendations, warning systems, and as a new colleague supporting the clinical work, and 3) organizations as providing patient safety and decision-support in prioritizing healthcare resources in organizing healthcare.
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30.
  • Petersson, Lena, 1968-, et al. (författare)
  • Implementering av AI i hälso- och sjukvården – ledares gränsarbete kan förändra professionella gränser
  • 2023
  • Konferensbidrag (refereegranskat)abstract
    • Just nu pågår en digital transformation av svensk hälso- och sjukvård och artificiell intelligens (AI) är tänkt att vara lösningen på många av de utmaningar sjukvården står inför. I en kunskapssammanställning från Myndigheten för arbetsmiljökunskap (MYNAK) (2020) om digitalisering och arbetsmiljö påtalas att den snabba tekniska utvecklingen kommer att förändra arbetsmiljö och yrkesrollers karaktär. Professionellas arbete är traditionellt omgärdat av gränser och att upprätthålla gränserna kring det egna kunskapsområdet är en grundläggande del av professionens utveckling. Digitalisering och implementering av olika former av teknik kan förändra professionella gränser och därmed generera så kallat gränsarbete (Petersson, 2020) som kan indelas i tre former; konkurrenskraftigt gränsarbete, kollaborativt gränsarbete och konfigurativt gränsarbete (Langley et al. 2019). De tre formerna av gränsarbete är ofta sammanflätade i praktiken, men konfigurativt gränsarbete kan dock beskrivas som en kraft som driver de andra två kategorierna av gränsarbete, eftersom det riktar sig emot andras aktiviteter i syfte att utforma gränser för förändring mellan grupper (Langley et al., 2019). Denna studie fokuserar på hur gränserna kring vårdprofessionernas arbete kan förändras vid implementering av AI och på vilket konfigurativt gränsarbete som aktörer på ledningsnivån i ett sjukvårdssystem förutser kommer att ske när sjukvården blir mer datadriven genom användning av AI-analyser.Vi genomförde semistrukturerade intervjuer med 26 ledare som var i en position att potentiellt påverka implementeringen och användningen av AI i en svensk region. Intervjuerna analyserades med hjälp av kvalitativ innehållsanalys. Analysen i studien fokuserar på den konfigurativa formen av gränsarbete.Sammantaget visar resultatet att ledarna beskriver olika typer av konfigurativt gränsarbete. Ledarna har makten att bedriva gränsarbete som förändrar gränserna kring vårdpersonalens arbete och de beskriver att de, medvetet eller omedvetet, vill förändra gränserna kring i första hand läkarnas arbete vid implementeringen av AI i hälso- och sjukvården.ReferenserLangley, A., Lindberg, K., Mork, B. E., Nicolini, D., Raviola, E., Walter, L. (2019). Boundary work among groups, occupations, and organization: From Cartography to process. Academy of Management Annals, 13(2): 704–736.Mynak (2020). Framtidens arbetsmiljö – trender, digitalisering och anställningsformer. 2020:3. www.mynak.se.Petersson, L. (2020). Paving the way for transparency: How eHealth technology can change boundaries in healthcare. Lund: Department of Design Sciences, Faculty of Engineering, Lund University.
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31.
  • Petersson, Lena, 1968-, et al. (författare)
  • Implementering av AI i hälso- och sjukvården – utmaningar och möjligheter
  • 2022
  • Konferensbidrag (populärvet., debatt m.m.)abstract
    • Presentationen kommer att beskriva forskning kring implementering av AI och informationsdriven vård i samverkan mellan forskargruppen Healthcare Improvement vid Högskolan i Halmstad och flera svenska och internationella företag, kommuner samt Region Halland. Resultat från pågående studier kommer att presenteras tillsammans med en överblick av planerat arbete inom forskningsprofilen CAISR Health och företagsforskarskolan NHIRS.
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32.
  • Petersson, Lena, 1968-, et al. (författare)
  • Implementering av artificiell intelligens (AI) : Ett projekt om hur AI förändrar information och kunskapspraktiker i hälso- och sjukvården
  • 2023
  • Ingår i: Program och abstrakt. - Lund : Lunds universitet. ; , s. 53-53
  • Konferensbidrag (refereegranskat)abstract
    • Vi kommer att presentera ett nytt forskningsprojekt vid Högskolan i Halmstad med finansiering från Vetenskapsrådet, som förväntas bidra med kunskap om hur arbetets gränser i hälso- och sjukvården förändras vid implementering av artificiell intelligens (AI). Hälso- och sjukvården i Sverige brottas idag med utmaningar kring att klara av att fördela resurser där de gör mest nytta, säkerställa kvalitet i den vård som ges och att ställa om till en mer digitaliserad vård som sker i mer samproduktion mellan vårdpersonal och patienter. Ett teknikområde som förväntas kunna bidra till att lösa dessa utmaningar är AI, men forskning har visat att det finns många hinder för att lyckas med att införa och använda AI-applikationer inom hälso- och sjukvården. Hälso- och sjukvårdspersonal har en viktig roll att spela i förändringsarbete inom vården och AI-applikationer kan komma att konkurrera med det monopol på kunskap i förhållande till hälsa och behandling av sjukdomar som vårdpersonalen erhållit genom lång akademisk utbildning, träning och praktisk erfarenhet. Det övergripande syftet med forskningsprojektet ImpAI är att generera ny kunskap om implementering och användning av AI-applikationer i rutinsjukvård och hur professionella roller kan fungera som barriärer under implementeringsprocessen. Det teoretiska ramverket består av professionsteori med fokus på tillit och arbetets gränser samt implementeringsteori. Projektet bygger på olika case i form av AI-applikationer som implementeras under 2023–2024 i Region Halland, Sverige och mixad metod används vid processutvärderingen av dessa case. Resultatet kommer både att främja förståelsen för hur processer kan etableras vid införande av AI applikationer i hälso- och sjukvården och bidra med information om hur sådana processer kan bygga på hälso- och sjukvårdspersonalens kompetens och roller.
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33.
  • Petersson, Lena, 1968-, et al. (författare)
  • The implementation of AI in healthcare – implications for professional boundaries and different forms of boundary work
  • 2022
  • Konferensbidrag (refereegranskat)abstract
    • A digital transformation of Swedish healthcare is currently taking place, and artificial intelligence (AI) is meant to solve many of the healthcare sector's challenges. We conducted 26 semi-structured interviews with healthcare leaders and 18 with healthcare managers and professionals. The result shows that the leaders, healthcare managers, and healthcare professionals describe different types of boundary work in regard to the implementation of AI.
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34.
  • Saha, Rama, et al. (författare)
  • Heritability of endometriosis
  • 2015
  • Ingår i: Fertility and Sterility. - : Elsevier BV. - 0015-0282 .- 1556-5653. ; 104:4, s. 947-952
  • Tidskriftsartikel (refereegranskat)abstract
    • OBJECTIVE: To estimate the relative contribution of genetic influences and prevalence on endometriosis.DESIGN: Analysis of self-reported data from a nationwide population-based twin registry.SETTING: Not applicable.PATIENT(S): A total of 28,370 women, female monozygotic (MZ) or dizygotic (DZ) twins, who participated in either of two surveys (1998-2002 or 2005-2006).INTERVENTION(S): None.MAIN OUTCOME MEASURE(S): Self-reported endometriosis, validated by medical records.RESULT(S): A history of endometriosis was reported by 1,228 female twins. The probandwise concordance was 0.21 for MZ and 0.10 for DZ twins. Higher within-pair (tetrachoric) correlation was observed among MZ (0.47) compared with DZ (0.20) twins. The best-fitting model revealed a contribution of 47% by additive genetic factors and the remaining 53% attributed to unique environmental effects.CONCLUSION(S): Our findings suggest both genetic and unique (nonshared) environmental influences on the complex etiology of endometriosis and support the hypothesis that genes have a strong influence on phenotypic manifestations of endometriosis.
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35.
  • Strandberg, Louise, 1981, et al. (författare)
  • IL6 and IL1B polymorphisms are associated with fat mass in older men: the MrOS Study Sweden.
  • 2008
  • Ingår i: Obesity (Silver Spring, Md.). - : Wiley. - 1930-7381 .- 1930-739X. ; 16:3, s. 710-3
  • Tidskriftsartikel (refereegranskat)abstract
    • There is growing evidence that immune functions are linked to the regulation of body fat. Our studies of knockout mice indicate that both endogenous interleukin (IL)-6 and IL-1 can suppress mature-onset obesity. We now investigated whether four common polymorphisms of the IL6 and IL1 systems are associated with the fat mass measured with dual-energy X-ray absorptiometry (DXA) in elderly men (n = 3,014). The study subjects were from the Swedish part of the MrOS multicenter population study and 69-81 years of age. The IL6 -174 G>C (Minor allele frequency (MAF) = 48%) gene promoter polymorphism was associated with the primary outcome total fat mass (P = 0.006) and regional fat masses, but not with lean body mass. The IL1B -31T>C (MAF = 34%) polymorphism was also associated with total fat (P = 0.007) and regional fat masses, but not lean body mass. The IL-1 receptor antagonist (IL-1ra) gene (IL1RN) +2018 T>C (MAF = 27%) polymorphism (in linkage disequilibrium (LD) with a well-studied variable number tandem repeat of 86 base pair (bp)) and IL1B +3953 C>T (MAF = 26%) polymorphism were not associated with total fat mass. In conclusion, the IL-1 and IL-6 systems, shown to suppress mature-onset obesity in experimental animals, contain gene polymorphisms that are associated with fat, but not lean, mass in elderly men.
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36.
  • Svedberg, Gudrun, et al. (författare)
  • Disqualified in school and beyond? : School-to-work experiences of young adults without upper secondary status
  • 2013
  • Ingår i: ECER 2013.
  • Konferensbidrag (refereegranskat)abstract
    • In the European countries, upper secondary qualification is identified as critical for individuals’ career development as well as a key to the progress of communities and society at large. In an European perspective, Sweden today has relatively high proportion of young people without upper secondary status when leaving upper secondary school as well as high youth unemployment rates. The restructuring of the public sector, the reduction of the Swedish welfare system and the development of the school system towards increased deregulation, decentralization and market release seems to have had a particularly negative effect on young people at risk.  In this paper the intention is to give voice to young adults without upper secondary qualifications, some of them with different kinds of disabilities, some with non-Swedish background and most of them unemployed. How do they describe their pathways in school and school-to-work (STW)-transitions? How do they describe measures intended to promote completion of school and getting a foothold in the labour market? What characterizes their horizons of action? The aim of this study is to increase the knowledge about biographical experiences of STW- transitions among young adults in their twenties without upper secondary status, focusing on their understanding of institutional processes, their experiences and individual strategies. The study is part of the research project - Troublesome transitions: School-to-work transitions of young people at risk in a longitudinal perspective - funded by the Swedish Research Council.  To analyse the young adults’ narratives about their STW-transitions a careership theory is applied, outlined by Hodkinson and Sparkes.  The theory considers the agency-structure interrelationship, and is connected to Bourdieu’s concepts of habitus, field and capital. Key concepts are routines, turning-points, field and horizon of action.Method: The study is based on interviews with 111young adults, from twenty selected Swedish municipalities (of 290). The municipalities were selected according to different types, such as urban, suburban and industrial areas, and according to more or less successful communities when it comes to the percentage of young people who have completed upper secondary school, rates of employment and proportion dependent on social welfare. Aiming at reaching a diverse group of young people at risk we did guide our gatekeepers to mediate contact in respect to: a gender mix, age around 20 and without upper secondary qualifications. Beside these general criteria, which all respondents share, we ensured that young people with non-Swedish background and young people with disabilities that participated in ordinary schools as well as special schools were included. A thematic interview guide was employed and besides these themes there was space for the young adults’ narratives and digressions. The interviews were conducted in the respondents’ hometowns in 2011 or 2012 and took around one hour to carry out. The interviews were recorded, transcribed and analyzed based on emerging themes.Expected Outcomes: The young adults display fragmentized paths, both during education and after,with many shifts and a majority seem to have experienced more turning-points than peers of the same age. Some of these turning-points can be described as forced, others as structural and yet others as self-initiated.  Many experience a turbulent time and unsafe conditions after leaving school. The most common explanation to their situation is school-failure  – something they blame themselves. The study shows in the group of young adults lacking upper secondary qualification, the type of municipality they live in has a smaller significance to their STW-transition. The patterns – troublesome education-background with lack of (proper) support at school, fragmentized transition patterns, lack of influence, alienation, absence of measures entering the labor market  and  temporary low-qualified employment – is recurring and their experiences and their horizon of action can to a larger extent be linked to background-variables such as gender, dis/ability and the accumulated capital of the family than to geographical location. By numbers, young men are more exposed. However it is the young women who express greater distress about the future. Young adults with disabilities is collectively the group that faces the greatest challenges during the establishing-phase.References: Bradley, Harriet & Devadason, Ranji (2008). Fractured transitions: Young adults' pathways into contemporary labour markets. Sociology, 42(1) 119-136. Enguita, Mariano Fernández, Luis Mena Martínez, and Jaime Riviere Gómez (2010). School Failure and Dropouts in Spain." Social Studies Collection. Retrieved from http://multimedia. lacaixa. es/lacaixa/ondemand/obrasocial/pdf/estudiossociales/vol29_en. p df  Fenton, Steve, & Dermott, Esther (2006). Fragmented careers? Winners and losers in young adult labour markets. Work, Employment & Society, 20(2) 205-221. Furlong, Andy (2006). Not a very NEET solution: representing problematic labour market transitions among early school leavers. Work, employment & society, 20 (3) 553-569. Hattam, Robert & Smyth, John (2003). ‘Not Everyone Has a Perfect Life’: becoming somebody without school. Pedagogy, Culture & Society. 11 (3), 379-398.  Hodkinson, Phil & Sparkes, Andrew C. (1997). Careership: A Sociological Theory of Career Decision Making. British Journal of Sociology of Education 18 (1), 29–44. McGrath, Brian (2009). School disengagement and ‘structural options’ Narrative illustrations on an analytical approach. Young, 17(1), 81-101. Sappa, Viviana & Bonica, Laura (2011). School-to-work transitional outcomes of a group of Italian school dropouts: Challenges for promoting social inclusion. Education + Training, 53 (7) 625-637.  Stauber, Barbara & Walther, Andreas (2006). De-standardised pathways to adulthood: European perspectives on informal learning in informal networks. Papers: Revista de sociologia, (79), 241-262. Thomson, Rachel, Holland, Janeth, Sharpe, Sue, McGrellis, Sheena, & Henderson, Sheila. (2006). Inventing adulthoods: a biographical approach to youth transitions. Sage Publications Limited. 
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37.
  • Svedberg, Gudrun, et al. (författare)
  • “Do you really want to hear me out?” : young people with varying dis/abilities about their research participation
  • 2012
  • Konferensbidrag (refereegranskat)abstract
    • Biographical research where “young people at risk” tell their story in some respect, has increased in quantity in the last two decades. Such social or educational research quite regularly pays attention to gender, ethnicity or social class. Disability is however more rarely dealt with. Maybe this has to do with the voices of disabled people not having been taken seriously in previous research as well as in society at large (cf. Munger & Mertens 2011; Rönnberg et al. 2011). Other possible reasons might be that such research is considered to involve specific methodological difficulties and is associated with rigorous ethical vetting. In this paper we explore methodological and ethical challenges and research strategies concerning interviewing young people with diverse dis/abilities. Conceptually the paper draws on arguments for involving young people in biographical research and inclusive disability research. Some arguments relate to the idea that (disadvantaged) young people should be given a voice and can contribute to knowledge about their experiences, viewpoints and circumstances (cf. Bynes & Rickards 2011; Conolly 2008). Other motives are, for example, that biographical methods may bring research, practice and policy into closer connection (Chamberlain 2002) and that multiple voices makes it possible to see difficulties not only as individual but also as structural (Atkinson 1997). In previous inclusive research focusing on methodological issues there is, however, an angle that is mainly – and paradoxically – disregarded, i.e. that young peoples’ opinions about their research participation seem to be neglected in favour of researchers’ understanding of methodological challenges and strategies. Hence, the paper aims to increase the knowledge of disabled young peoples’ views on their research participation: What are their considerations and motives for the research participation? What critical aspects of the research participation do they identify? What are their opinions on how researchers should encounter young people? Finally, the authors discuss the importance of considering respondents’ views on their research participation to decide on research strategies to encounter challenges when interviewing young people with varying dis/abilities.MethodThe results are based on two interview studies involving 47 young people and young adults living in eight Swedish municipalities, strategically selected for context diversity. A common feature of all respondents is that they have some kind of disability (chiefly learning disabilities or attention-deficit/hyperactivity disorder, ADHD), are in transitional circumstances – from school to work, starting their adult life, etc. –, and lack a diploma from upper secondary school resulting in enhanced difficulties on the labour market, no entry to tertiary education, etc. One study involves 21 young adults  (9 women and 12 men) 20-30 (on average 22) years old, registered at a public employment office as having a disability. The other study involves 28 (17 women and 11 men) final-year students (19-20 years old) at upper secondary special schools for people with intellectual disability and/or autism. The individual semi-structured interviews were conducted in the respondents’ hometown in 2011, took around one hour to carry out and were recorded (with a few exceptions). The study is part of a research project – Troublesome transitions: School-to-work transitions of young people at risk in a longitudinal perspective – funded by the Swedish Research Council.Expected OutcomesWhen asked about their research participation the young adults pay great attention to informa-tion about the participation and the researchers’ responses when verbally giving their informed consent before the interview. They have various motives for their research participation, but their most common reason is however to make their voices heard to make an impact on research and, hopefully, contribute to improving the conditions for (disadvantaged) young people. Regarding the interview situation the young disabled respondents pinpoint aspects referring to the participant-researcher interaction, i.e. the importance of understanding each other and of creating a comfortable interview alliance. They value, for example, being under-stood and appreciated with respect to their ability, health or poor circumstances at the time of the interview. Sensible approaches to in biographical studies are important, not least when involving young people with varying dis/ablities. The authors argue that researchers are re-sponsible for creating good conditions, and the present study is intended to add to the knowl-edge of such challenges and research strategies. Even though our findings show that the re-spondents pay attention to the same critical methodological aspects that the authors as well as previous research observe, the respondents’ views of those aspects are important.ReferencesAtkinson, Dorothy (1997). An Auto/Biographical Approach to Learning Disability Research. Aldershot, Ashgate. Bynes, Linda J. & Rickards, Field W. (2011). Listening to the Voices of Students With Disabilities: Can Such Voices Inform Practice? Australasian Journal of Special Education, 35:1, 25-34. Chamberlayne, Prue (2002). Conclusions: social transition and biographical work. In: Chamberlayne, Prue; Rustin, Michael & Wengraf, Tom (eds). Biogra-phy and Social Exclusion in Europe. Experiences and life journeys. Bristol: Policy Press. Conolly, Anna (2009). Challenges of Generating Qualitative Data with Socially Excluded Young People. International Journal of Social Research Methodology, 11:2, 201-214. Munger, Kelly M & Mertens, Donna M. (2011). Conducting Research with the Disability Community: A Rights-Based Approach. New Directions for Adult and Continuing Education, 132: 23-33. Rönnberg, Jerker; Classon, Elisabeth, Danermark, Berth; Karlsson, Thomas (2011). Forskning om funktionsnedsättning och funktionshinder 2002-2010 (Research about impairment and disability 2002-2010). Swedish Council for Working Life and Social Research (in Swedish).
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38.
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39.
  • Svedberg, Lena, 1958 (författare)
  • Cold feet in children with neurological disorders
  • 2009
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • These studies focused on presence of cold feet in children with neurological disorders and raised the questions: Does acupuncture affect skin temperature? Are cold feet a general symptom in children with neurological disorders? Are cold feet associated with other symptoms? What are the moods, health, and daily life experiences of these children’s parents? Study I assessed effects of acupuncture on skin temperature in children with neurological disorders. The study was of pilot character, to determine if further investigation in a larger, well-characterised group could be worthwhile. Study II analysed skin temperature variation between pre-school children with and without neurological disorders to determine if skin temperature and walking ability were correlated. Study III investigated accompanying symptoms, such as cold extremities, constipation, pain, sleeping disorders, and well-being, and their treatment to determine (i) whether cold extremities is a general problem, (ii) what symptom treatment the children had received, (iii) associations between cold extremities and gross-motor function, and (iv) associations between cold extremities and other symptoms borne by the child. Study IV described mood, health, and daily life experiences of the children’s parents to investigate (i) impact that the child’s impairments and symptoms have on the family and (ii) community services support. Study I (single subject design; each child was its own control) comprised 6 children with neurological disorders. Study II (hypothesis refinement study) comprised 25 healthy children recruited from a community pre-school and 15 children with cerebral or spinal cord disorders from Child and youth neurohabilitation in Örnsköldsvik. Studies III and IV (postal survey, descriptive hypothesis-generating studies) comprised 107 children with cerebral palsy (Study III) and parents of 106 of these (Study IV) from 8 habilitation centres in the northern region of Sweden. Conclusions: · Acupuncture may increase skin temperature in some children with neurological disorders and cold extremities. · Non-walking children with cerebral damage had significantly lower mean hand and foot skin temperature compared to healthy controls. · Of the 5 symptoms – cold extremities, pain, sleeping disorders, constipation, and impaired well-being – (i) most of the children with CP had had 1 or several symptoms for more than 1 year and (ii) symptom frequency was generally higher in non-walking children than in walkers. Of the children who had had symptoms for more than 1 year, a surprisingly large number had received no treatment for them. · Care-giving for a child with CP may affect parents’ moods, health, and daily living – especially if the child has several impairments and symptoms. Frequent parental anxiousness regarding the child’s physical and psychological health might be associated with affected parental health.
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40.
  • Svedberg, Lena, 1958, et al. (författare)
  • Comparison of impact on mood, health, and daily living experiences of primary caregivers of walking and non-walking children with cerebral palsy and provided community services support.
  • 2010
  • Ingår i: European journal of paediatric neurology. - : Elsevier BV. - 1532-2130 .- 1090-3798. ; 14:3, s. 239-246
  • Tidskriftsartikel (refereegranskat)abstract
    • Many children with cerebral palsy (CP), especially non-walkers, were previously reported to have cold extremities, pain, sleeping disorders, constipation, and impaired well-being - besides accompanying impairments. Most children had had one or more of these symptoms for more than 1 year, and the symptoms were largely untreated. This study (1) describes mood, health, and daily life experiences of the children's parents; (2) explains impact that the child's impairments and symptoms have on the family; and (3) investigates community services support. Information in this study was gathered from parents of 106 children, ages 5-16, with CP, who lived in northern Sweden. Compared with parents of walkers, parents with non-walking children and several disorders were more frequently anxious for their children's physical and psychological health; often experienced restricted time for themselves; reported frequent daily living interferences; and stated that their health was affected due to the child's health. 10 percent of all families reported that their need of community services support was unmet. To improve health and to provide good community services support for the entire family, regular follow-up and evaluation of the child's treatment and family support are important.
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41.
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42.
  • Svedberg, Lena, 1958, et al. (författare)
  • Parental perception of cold extremities and other accompanying symptoms in children with cerebral palsy.
  • 2008
  • Ingår i: European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society. - : Elsevier BV. - 1090-3798. ; 12:2, s. 89-96
  • Tidskriftsartikel (refereegranskat)abstract
    • Cold extremities have been noted in non-walking children with cerebral damage compared with healthy controls. Whether this is a general problem in children with cerebral palsy (CP) and associated with other symptoms is unknown. This study describes accompanying symptoms such as cold extremities, constipation, pain, sleeping disorders and impaired well-being in children with CP as well as treatment the children have undergone. Associations between cold extremities and other symptoms borne by the children were analysed and discussed. From information in postal surveys received from parents of children with CP, 107 children (60 boys and 47 girls) aged 5-13 years, mean 11 years 8 months (SD 2 years 11 months), were described and analysed. Besides neurological impairments, many children had cold extremities and pain, sleeping disorders, constipation, and impaired well-being. Most children had had one or more of these symptoms for over 1 year but the symptoms were largely untreated. Non-walkers generally had more symptoms than walkers. Although pain, constipation, and sleeping disorders may have different underlying causes in children with CP, these symptoms might also be mediated or aggravated by dysfunction in the autonomic nervous system. To improve the child's well-being, early recognition and treatment of accompanying symptoms is important.
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43.
  • Svedberg, Lena, 1958, et al. (författare)
  • Skin temperature in the extremities of healthy and neurologically impaired children.
  • 2005
  • Ingår i: European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society. - : Elsevier BV. - 1090-3798. ; 9:5, s. 347-54
  • Tidskriftsartikel (refereegranskat)abstract
    • Little emphasis has been accorded to peripheral skin temperature impairments in children with neurological disorders but attention has been paid to the significance of cold extremities (autonomic failure) for well-being and quality of life in adults stroke patients. Therefore, it seems important to investigate skin temperature in children with neurological disorder, especially when their communication is impaired. In the present study, we wanted to objectively verify any skin temperature differences between pre-school children with and without neurological disorders and also ascertain if any correlation existed between skin temperature and physical activity. Skin temperatures in 25 healthy children and 15 children with cerebral or spinal cord damages were assessed using infrared radiation. The temperatures were recorded on the palm and the dorsal surface of the hands and on the sole and dorsal surface of the feet three times at 15-minute intervals over 30min. A significant lower mean skin temperature in all measurement points was seen in non-walking children with cerebral damages compared to healthy controls. Also, the mean skin temperature was significantly lower in all foot measuring points in the children with cerebral damages that were unable to walk compared to those walking. In conclusion, as cold extremities may result in impaired well-being and hypothetically may be associated with other symptoms born by the child, further investigations of thermal dysfunction and autonomic function are of importance and treatment may be warranted.
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44.
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45.
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46.
  • Svedberg, Petra, et al. (författare)
  • Support from healthcare services during transition to adulthood : experiences of young adult survivors of pediatric cancer
  • 2016
  • Ingår i: European Journal of Oncology Nursing. - 1462-3889 .- 1532-2122. ; 21, s. 105-112
  • Tidskriftsartikel (refereegranskat)abstract
    • PURPOSE:Improved survival rates of pediatric cancer have drawn attention on how to best facilitate long-term follow up and transition from pediatric to adult care. The transition process is multifactorial and necessitates the joint involvement of the patient, the family and the healthcare providers. The purpose of this study was to explore the experiences of support from healthcare services during the transition from adolescence to adulthood described by young adult survivors of pediatric cancer.METHODS:A mixed method with a convergent parallel design was used to evaluate the experiences of receiving support from healthcare services (eg pediatric oncology and pediatric clinic) during transition from adolescence to adulthood described by young adult survivors of pediatric cancer (n = 213) in a nation wide cross-sectional survey.RESULTS:A quantitative assessment of the experienced extent and satisfaction of support from healthcare services to handle physical, mental and social changes to continue life after the disease showed that a majority of the participants had received insufficient support. The qualitative analysis indicated a need for equal roles in healthcare to promote participation, a need to manage and process consequences of the disease, and a need for continuous support.CONCLUSIONS:During transition to adulthood, there's a need for a personalized care plan that takes a holistic approach towards supporting the young cancer survivor in managing life in the best way. Identifying and handling the individual needs of pediatric cancer survivors is important for providing the resources and support required to increase the likelihood of successful transition to adulthood.
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47.
  • Svedberg, Petra, 1973-, et al. (författare)
  • Support from healthcare services during transition to adulthood – Experiences of young adult survivors of pediatric cancer
  • 2016
  • Ingår i: European Journal of Oncology Nursing. - London : Elsevier. - 1462-3889 .- 1532-2122. ; 21, s. 105-112
  • Tidskriftsartikel (refereegranskat)abstract
    • Purpose: Improved survival rates of pediatric cancer have drawn attention on how to best facilitate long-term follow up and transition from pediatric to adult care. The transition process is multifactorial and necessitates the joint involvement of the patient, the family and the healthcare providers. The purpose of this study was to explore the experiences of support from healthcare services during the transition from adolescence to adulthood described by young adult survivors of pediatric cancer.Methods: A mixed method with a convergent parallel design was used to evaluate the experiences of receiving support from healthcare services (eg pediatric oncology and pediatric clinic) during transition from adolescence to adulthood described by young adult survivors of pediatric cancer (n = 213) in a nation wide cross-sectional survey.Results: A quantitative assessment of the experienced extent and satisfaction of support from healthcare services to handle physical, mental and social changes to continue life after the disease showed that a majority of the participants had received insufficient support. The qualitative analysis indicated a need for equal roles in healthcare to promote participation, a need to manage and process consequences of the disease, and a need for continuous support.Conclusions: During transition to adulthood, there's a need for a personalized care plan that takes a holistic approach towards supporting the young cancer survivor in managing life in the best way. Identifying and handling the individual needs of pediatric cancer survivors is important for providing the resources and support required to increase the likelihood of successful transition to adulthood. © 2016 Elsevier Ltd.
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48.
  • Wandin, Helena, et al. (författare)
  • A Scoping Review of Aided AAC Modeling for Individuals With Developmental Disabilities and Emergent Communication
  • 2023
  • Ingår i: Current Developmental Disorders Reports. - : Springer Science and Business Media Deutschland GmbH. - 2196-2987. ; 10:2, s. 123-131
  • Forskningsöversikt (refereegranskat)abstract
    • Purpose of Review Aided AAC modeling is an umbrella term for when communication partners model language on an aided AAC system to support an individual’s comprehension and/or communication development. This scoping review aims to provide an overview of aided AAC modeling studies targeting individuals with emergent communication and describing features and findings from these studies.Recent Findings Research on interventions that includes aided AAC modeling is growing. Recent studies cover interventions for individuals that previously were excluded, such as individuals who use alternative access methods to select symbols.Summary A search yielded 29 studies that encompassed a total of 237 participants using emergent communication. Positive outcomes from the aided AAC modeling interventions were reported in the majority of the studies. In future research, a clear description of the different components of the interventions and their expected effect on the outcome may assist in comparing the effect of different types of aided AAC modeling interventions.
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