| 1. |
- Fredriksson, Mio, 1976-, et al.
(författare)
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Disentangling patient and public involvement inhealthcare decisions : Why the difference matters
- 2017
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Ingår i: Sociology of Health and Illness. - : Wiley. - 0141-9889 .- 1467-9566. ; 39:1, s. 95-111
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Tidskriftsartikel (refereegranskat)abstract
- Patient and public involvement has become an integral aspect of many developedhealth systems and is judged to be an essential driver for reform. However, littleattention has been paid to the distinctions between patients and the public, and theviews of patients are often seen to encompass those of the general public. Usingan ideal-type approach, we analyse crucial distinctions between patientinvolvement and public involvement using examples from Sweden and England.We highlight that patients have sectional interests as health services users incontrast to the citizen who engage as public policy agent reecting societalinterests. Patients draw on experiential knowledge and focus on output legitimacyand performance accountability, aim at typical representativeness, and a directresponsiveness to individual needs and preferences. In contrast, the publiccontributes with collective perspectives generated from diversity, centres on inputlegitimacy achieved through statistical representativeness, democraticaccountability and indirect responsiveness to general citizen preferences. Thus,using patients as proxies for the public fails to achieve intended goals and benetsof involvement. We conclude that understanding and measuring the impact ofpatient and public involvement can only develop with the application of a clearercomprehension of the differences.
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| 2. |
- Fredriksson, Mio, 1976-, et al.
(författare)
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Involvement that makes an impact on healthcare : Perceptions of the Swedish public
- 2018
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Ingår i: Scandinavian Journal of Public Health. - : SAGE Publications. - 1403-4948 .- 1651-1905. ; 46:4, s. 471-477
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Tidskriftsartikel (refereegranskat)abstract
- Aim: Participation and influence in society' is the first of 11 objective domains in Swedish public health policy. The aim of this article is to investigate the views of the Swedish general population on the impact of a range of health participation activities, and whether these views were associated with sociodemographic characteristics. Methods: The study utilizes a national representative survey of the Swedish population, aged 15 years and over (n = 1500). Results: Apart from voting in regional elections - which most of the respondents believed to be an influential way to make improvements in healthcare (74%) - respondents believed more in individual patient activities than activities associated with adopting a citizen role and acting collectively. A majority of respondents believed in the impact of replying to patient surveys (67%), making a complaint (61%), talking directly to staff (58%) or changing their healthcare provider (54%). Fewer believed in the impact of joining a patient organization (46%), taking part in a citizen council (35%) or joining a political party (34%). Beliefs in impact increased with educational attainment and decreased with age. Conclusions: The results suggest people have more confidence in the impact of participating as individual patients rather than collectively and as citizens. To ensure that activities enable participation and influence in society', complementary opportunities for collective involvement that also take into account under-represented voices such as those with a low level of education need to be developed.
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| 3. |
- Hagqvist, Emma, 1980-, et al.
(författare)
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The Same, Only Different : Doing Management in the Intersection between Work and Private Life for Men and Women in Small-scale Enterprises
- 2020
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Ingår i: Work, Employment and Society. - : SAGE Publications. - 0950-0170 .- 1469-8722. ; 34:2, s. 262-280
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this article is to elucidate how male and female managers of small-scale enterprises in Norway and Sweden relate to and experience the intersection between work and private life. A qualitative content analysis was adopted to explore interviews with 18 managers. The analysis resulted in three primary categories: conflict as a part of the deal, using management to construct balance, and management identity contributing to enrichment. A key theme that emerged was doing management. Both men and women reproduced masculine values in describing their management identities and in explaining how they enacted management. This clear identification was used to legitimate conflict, construct balance and explain the interaction between work and private life as enriching. How the managers enacted gender emerged primarily in how they related to family responsibilities and their feelings of guilt in relation to home and children.
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| 4. |
- Okkenhaug, Arne, et al.
(författare)
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Developing a research tool to detect iatrogenic adverse events in psychiatric health care by involving service users and health professionals
- 2024
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - : Wiley. - 1351-0126 .- 1365-2850. ; 31:3, s. 405-416
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Tidskriftsartikel (refereegranskat)abstract
- What is known on the subject: Most health professionals working in psychiatric care will experience adverse events (AE) such as service user suicide or violence, during their career Norway lacks measures to capture potential iatrogenic injuries, such as risk assessment measures, to evaluate patient records for AEs in both inpatient and outpatient psychiatric clinics in hospitals. What the paper adds to existing knowledge: We have described an approach to the validation of a research tool between different national contexts; a process that went beyond language translation We have incorporated the understanding of health professionals and service users; to bring together the lifeworld of the patient with the professional definition of AEs, triggers and risk areas of AEs in a psychiatric context. The service users' experiences resulted in modifications to the tool. What are the implications for nurses: Applying the ‘Global Trigger Tool—Psychiatry’ in Norway and Sweden can help mental health nurses to prevent iatrogenic harm and reduce the occurrence of AEs through the identification of potential triggers. Implementing ‘Global Trigger Tool—Psychiatry’ might help mental health nurses to improve patient safety in Norway and Sweden. Abstract: Introduction: There is little consensus on cross-cultural and cross-national adaptation of research instruments. Aim/Question: To translate and validate a Swedish research tool (GTT-P) to detect iatrogenic adverse events in psychiatric health care by involving service users and health professionals in the process. Method: The GTT-P, designed to identify events in patient records that were triggers for adverse events, was translated to Norwegian using a cross-cultural adaptation approach. This involved two focus groups with clinical staff, one of which involved service users, and a joint discussion at a Dialogue Conference to generate consensus on the definition of the triggers of potential adverse events identifiable in patient records. Results: We highlight both the differences and commonalities in defining the nature of risks, the adverse events and the triggers of such events. The Dialogue Conference resulted in three modifications of the tool, based on service users' experiences. Service user involvement and co-production was essential for both the translation and adaptation of the research instrument. Discussion: We have described an approach to the validation of a research tool between different national contexts; a process that went beyond language translation. This approach enables a more nuanced understanding of potential risks within a psychiatric context as it engages differences in the care delivery. Applying the GTT-P in hospital-based psychiatric care might help to identify processes that need to be changed in order to promote patient safety and a safer work environment for mental health nurses. Implications for practice: When translating and validating the GTT-P from Swedish to Norwegian, we have considered the knowledge and experiences of both service users and health professionals. The application of the GTT-P can promote greater patient safety in hospital settings.
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| 5. |
- Okkenhaug, Arne, et al.
(författare)
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Mitigating risk in Norwegian psychiatric care : Identifying indicators of adverse events through Global Trigger Tool for psychiatric care
- 2019
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Ingår i: International Journal of Risk and Safety in Medicine. - : IOS Press. - 0924-6479 .- 1878-6847. ; 30:4, s. 203-216
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND:Patients treated in psychiatric care are exposed to the risk of adverse events, similar to patients treated in somatic health care. OBJECTIVES:In this article we report the findings of triggers associated with adverse events (AEs) identified by a version of the Global Trigger Tool – Psychiatry (GTT-P) adapted for Norwegian hospital-based psychiatric treatment. METHODS:The design was a retrospective analysis of a random sample of 240 patient records from a psychiatric clinic in one Norwegian hospital. Patient records were sampled from both inpatient and outpatient psychiatric clinics in hospitals serving the northern part of the county of Trøndelag, Norway. RESULTS:Our analysis was based on the identification of 32 potential triggers of adverse events. Eighteen of the triggers were significantly related to adverse events. No adverse events were identified in patient records that did not also contain triggers included in the Global Trigger Tool. CONCLUSIONS:There is a clear relationship between the presence of triggers in a patient record and the likelihood of adverse events. Particularly relevant for psychiatric patients is ‘suffering’ as a trigger and this may also be relevant to somatic care and has implications for inclusion in the GTT-P.
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