| 1. |
|
|
| 2. |
- Kurz, Alexander, et al.
(författare)
-
RHAPSODY - Internet-based support for caregivers of people with young onset dementia : program design and methods of a pilot study
- 2016
-
Ingår i: International psychogeriatrics. - 1041-6102 .- 1741-203X. ; 28:12, s. 2091-2099
-
Tidskriftsartikel (refereegranskat)abstract
- Background: Young Onset Dementia (YOD), defined by first symptoms of cognitive or behavioral decline occurring before the age of 65 years, is relatively rare compared to dementia of later onset, but it is associated with diagnostic difficulty and heavy burden on affected individuals and their informal carers. Existing health and social care structures rarely meet the needs of YOD patients. Internet-based interventions are a novel format of delivering health-related education, counseling, and support to this vulnerable yet underserved group. Methods: The RHAPSODY (Research to Assess Policies and Strategies for Dementia in the Young) project is a European initiative to improve care for people with YOD by providing an internet-based information and skill-building program for family carers. The e-learning program focuses on managing problem behaviors, dealing with role change, obtaining support, and looking after oneself. It will be evaluated in a pilot study in three countries using a randomized unblinded design with a wait-list control group. Participants will be informal carers of people with dementia in Alzheimer's disease or behavioral-variant Frontotemporal degeneration with an onset before the age of 65 years. The primary outcome will be caregiving self-efficacy after 6 weeks of program use. As secondary outcomes, caregivers' stress and burden, carer health-related quality of life, caring-related knowledge, patient problem behaviors, and user satisfaction will be assessed. Program utilization will be monitored and a health-economic evaluation will also be performed. Conclusions: The RHAPSODY project will add to the evidence on the potential and limitations of a conveniently accessible, user-friendly, and comprehensive internet-based intervention as an alternative for traditional forms of counseling and support in healthcare, aiming to optimize care and support for people with YOD and their informal caregivers.
|
|
| 3. |
|
|
| 4. |
|
|
| 5. |
- Edberg, Anna-Karin, 1961-, et al.
(författare)
-
Kognitiv svikt
- 2019. - 3
-
Ingår i: Omvårdnadens grunder. - Lund : Studentlitteratur AB. - 9789144123165 ; , s. 676-704
-
Bokkapitel (övrigt vetenskapligt/konstnärligt)
|
|
| 6. |
- Edberg, Anna-Karin, et al.
(författare)
-
Kognitiv svikt
- 2019
-
Ingår i: Omvårdnadens grunder. - Lund : Studentlitteratur AB. ; :3, s. 671-706
-
Bokkapitel (övrigt vetenskapligt/konstnärligt)
|
|
| 7. |
|
|
| 8. |
|
|
| 9. |
|
|
| 10. |
|
|
| 11. |
- Edberg, Anna-Karin, et al.
(författare)
-
The development of the strain in dementia care scale (SDCS)
- 2015
-
Ingår i: International psychogeriatrics. - 1041-6102 .- 1741-203X. ; 27:12, s. 2017-2030
-
Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Though many staff gain satisfaction from working with people with dementia in residential facilities, they also experience significant stress. This is a serious issue because this in turn can affect the quality of care. There is, however, a lack of instruments to measure staff strain in the dementia-specific residential care environment, and the aim of this study, accordingly, was to develop the "Strain in Dementia Care Scale."METHODS: The instrument was developed in three steps. In the first step, items were derived from six focus group discussions with 35 nurses in the United Kingdom, Australia, and Sweden concerning their experience of strain. In the second step, a preliminary 64-item scale was distributed to 927 dementia care staff in Australia and Sweden, which, based on exploratory factor analysis, resulted in a 29-item scale. In the final step, the 29-item scale was distributed to a new sample of 346 staff in Sweden, and the results were subjected to confirmatory factor analysis.RESULTS: The final scale comprised the following 27 items producing a five-factor solution: Frustrated empathy; difficulties understanding and interpreting; balancing competing needs; balancing emotional involvement; and lack of recognition.CONCLUSIONS: The scale can be used (a) as an outcome measurement in residential care intervention studies; (b) to help residential facilities identify interventions needed to improve staff well-being, and, by extension, those they care for; and ((c) to generally make more salient the critical issue of staff strain and the importance of ameliorating it.)
|
|
| 12. |
- Edberg, Anna-Karin, et al.
(författare)
-
The development of the strain in dementia care scale (SDCS)
- 2015
-
Ingår i: International Psychogeriatrics. - : Cambridge University Press. - 1041-6102 .- 1741-203X. ; 27:12, s. 2017-2030
-
Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Though many staff gain satisfaction from working with people with dementia in residential facilities, they also experience significant stress. This is a serious issue because this in turn can affect the quality of care. There is, however, a lack of instruments to measure staff strain in the dementia-specific residential care environment, and the aim of this study, accordingly, was to develop the "Strain in Dementia Care Scale." METHODS: The instrument was developed in three steps. In the first step, items were derived from six focus group discussions with 35 nurses in the United Kingdom, Australia, and Sweden concerning their experience of strain. In the second step, a preliminary 64-item scale was distributed to 927 dementia care staff in Australia and Sweden, which, based on exploratory factor analysis, resulted in a 29-item scale. In the final step, the 29-item scale was distributed to a new sample of 346 staff in Sweden, and the results were subjected to confirmatory factor analysis. RESULTS: The final scale comprised the following 27 items producing a five-factor solution: Frustrated empathy; difficulties understanding and interpreting; balancing competing needs; balancing emotional involvement; and lack of recognition. CONCLUSIONS: The scale can be used (a) as an outcome measurement in residential care intervention studies; (b) to help residential facilities identify interventions needed to improve staff well-being, and, by extension, those they care for; and ((c) to generally make more salient the critical issue of staff strain and the importance of ameliorating it.)
|
|
| 13. |
|
|
| 14. |
|
|
| 15. |
- Jones, Bridget, et al.
(författare)
-
Availability of information on young onset dementia for patients and carers in six European countries
- 2018
-
Ingår i: Patient Education and Counseling. - 0738-3991 .- 1873-5134. ; 101:1, s. 159-165
-
Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVES: To identify information available in six European countries (England, France, Germany, Netherlands, Portugal, Sweden) that addresses the specific needs of people with young onset dementia (YOD) and their carers, and identify gaps.METHODS: Search of websites of organisations with potential interest in dementia. Narrative synthesis and comparative analysis.RESULTS: 21 sources of information were identified (Netherlands 6, England 6, France 3, Germany 2, Portugal 2, Sweden 2); 11 were from voluntary sector organisations. Sources dedicated to YOD were limited (4 websites, 4 books); all other YOD information was sub-entries in generic dementia sources, difficult to locate and with limited coverage of relevant topics. Gaps related to implications of living with YOD in Germany, Portugal and Sweden.CONCLUSION: Availability of information varies among countries, some having no dedicated source and incomplete coverage of issues of importance to YOD.PRACTICAL IMPLICATIONS: Information is an important means of supporting carers; their needs change as the condition progresses. A comprehensive resource collating key information is needed so that the issues that differentiate the specific needs of people living with YOD from those of people with dementia in older age are available and easily located.
|
|
| 16. |
- Jones, Bridget, et al.
(författare)
-
Availability of information on young onset dementia for patients and carers in six European countries
- 2018
-
Ingår i: Patient Education and Counseling. - : Elsevier Ireland Ltd. - 0738-3991 .- 1873-5134. ; 101:1, s. 159-165
-
Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVES: To identify information available in six European countries (England, France, Germany, Netherlands, Portugal, Sweden) that addresses the specific needs of people with young onset dementia (YOD) and their carers, and identify gaps. METHODS: Search of websites of organisations with potential interest in dementia. Narrative synthesis and comparative analysis. RESULTS: 21 sources of information were identified (Netherlands 6, England 6, France 3, Germany 2, Portugal 2, Sweden 2); 11 were from voluntary sector organisations. Sources dedicated to YOD were limited (4 websites, 4 books); all other YOD information was sub-entries in generic dementia sources, difficult to locate and with limited coverage of relevant topics. Gaps related to implications of living with YOD in Germany, Portugal and Sweden. CONCLUSION: Availability of information varies among countries, some having no dedicated source and incomplete coverage of issues of importance to YOD. PRACTICAL IMPLICATIONS: Information is an importantmeans of supporting carers; their needs change as the condition progresses. A comprehensive resource collating key information is needed so that the issues that differentiate the specific needs of people living with YOD from those of people with dementia in older age are available and easily located.
|
|
| 17. |
|
|
| 18. |
|
|
| 19. |
- Kurz, Alexander, et al.
(författare)
-
RHAPSODY - Internet-based support for caregivers of people with young onset dementia : program design and methods of a pilot study
- 2016
-
Ingår i: International Psychogeriatrics. - : Cambridge University Press. - 1041-6102 .- 1741-203X. ; 28:12, s. 2091-2099
-
Tidskriftsartikel (refereegranskat)abstract
- Background: Young Onset Dementia (YOD), defined by first symptoms of cognitive or behavioral decline occurring before the age of 65 years, is relatively rare compared to dementia of later onset, but it is associated with diagnostic difficulty and heavy burden on affected individuals and their informal carers. Existing health and social care structures rarely meet the needs of YOD patients. Internet-based interventions are a novel format of delivering health-related education, counseling, and support to this vulnerable yet underserved group. Methods: The RHAPSODY (Research to Assess Policies and Strategies for Dementia in the Young) project is a European initiative to improve care for people with YOD by providing an internet-based information and skill-building program for family carers. The e-learning program focuses on managing problem behaviors, dealing with role change, obtaining support, and looking after oneself. It will be evaluated in a pilot study in three countries using a randomized unblinded designwith a wait-list control group. Participants will be informal carers of people with dementia in Alzheimer's disease or behavioral-variant Frontotemporal degeneration with an onset before the age of 65 years. The primary outcome will be caregiving self-efficacy after 6 weeks of program use. As secondary outcomes, caregivers' stress and burden, carer health-related quality of life, caring-related knowledge, patient problem behaviors, and user satisfaction will be assessed. Program utilization will be monitored and a health-economic evaluation will also be performed. Conclusions: The RHAPSODY project will add to the evidence on the potential and limitations of a conveniently accessible, user-friendly, and comprehensive internet-based intervention as an alternative for traditional forms of counseling and support in healthcare, aiming to optimize care and support for people with YOD and their informal caregivers.
|
|
| 20. |
|
|
| 21. |
|
|
| 22. |
- Orrung Wallin, Anneli, et al.
(författare)
-
Job satisfaction and associated variables among nurse assistants working in residential care.
- 2012
-
Ingår i: International Psychogeriatrics. - : Cambridge University Press. - 1741-203X .- 1041-6102. ; 24:12, s. 1904-1918
-
Tidskriftsartikel (refereegranskat)abstract
- Background: While the work situation for nurse assistants in residential care is strenuous, they themselves often state that they are satisfied with their job. More knowledge is clearly needed of the interrelationship of variables associated with job satisfaction. This study aims to investigate job satisfaction and explore associated variables among nurse assistants working in residential care. Methods: A total of 225 respondents completed a questionnaire measuring general job satisfaction, satisfaction with nursing-care provision and measures concerning person-centered care, work climate, leadership, and health complaints. Job satisfaction was the outcome measure and comparisons were made among those reporting low, moderate, and high levels of job satisfaction; multiple regression analyses were used to explore associated variables. Results: The caring climate and personalized care provision were associated with general job satisfaction. High levels of satisfaction with nursing-care provision were also associated with the general work climate, organizational and environmental support, and leadership. Low job satisfaction was mainly associated with health complaints. Conclusions: Nurse assistants working in a positive work climate, caring climate, with a positive attitude to their leaders, who receive organizational and environmental support, provide person-centered care and experience a higher degree of job satisfaction. It seems essential, however, to include both general and context-specific measures when investigating job satisfaction in this field as they reveal different aspects of the nurse assistant's work situation.
|
|
| 23. |
- Orrung Wallin, Anneli
(författare)
-
Job satisfaction, strain and stress of conscience among nurse assistants working in residential care for older people
- 2013
-
Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The overall aim of the thesis was to investigate and explore job satisfaction, strain and stress of conscience (SC) among nurse assistants (NAs) working in residential care for older people. The thesis had a descriptive, cross-sectional and correlational design and consisted of one paper where qualitative methodology was used and three where quantitative methodology was used. The qualitative study (I) was based on six focus group interviews with NAs (n=36) and the quantitative studies (II-IV) were based on questionnaires. A total of 225 NAs participated in studies II-III and a sub sample of these NAs (n=114) participated in study IV. All data was collected in the south of Sweden. A conventional content analysis was used for exploring the NAs’ experiences of job satisfaction (I), and descriptive and analytical statistics were used in order to investigate and explore associations of job satisfaction (II), strain/SC (III) and associated variables. In addition the psychometric properties in terms of the construct validity, data quality and reliability were investigated for the instruments used as dependent variables (IV). The results showed that the NAs’ job satisfaction and strain/SC constitute a complex web of interrelated aspects. Study I showed that the NAs’ job satisfaction was based on the encounter with the residents and their next of kin and the ability to establish significant relationships with them. They also experienced job satisfaction when they had the prerequisites to use and develop their competence and when they worked in a harmonious and inspiring environment. In studies II and III a positive caring climate was associated with high levels of job satisfaction and inversely to low levels of strain/SC. In addition the extent of personalizing care, amount of organizational and environmental support and, leadership also contributed to positive as well as negative aspects of their wellbeing. Furthermore, health complaints showed to be related to negative affectivities of work. The psychometric properties of the instruments used in studies II-IV showed varying strengths and weaknesses (IV) and further development is thus needed. In conclusion, getting the prerequisites for providing high quality care, a positive caring climate, a high extent of personalizing care, a high amount of organizational and environmental support and last but not least having leaders and managers with good leadership characteristics appears to be important for the NAs’ wellbeing at work.
|
|
| 24. |
- Orrung Wallin, Anneli, 1973-, et al.
(författare)
-
Job strain and stress of conscience among nurse assistants working in residential care
- 2015
-
Ingår i: Journal of Nursing Management. - : Wiley-Blackwell. - 0966-0429 .- 1365-2834. ; 23:3, s. 368-379
-
Tidskriftsartikel (refereegranskat)abstract
- Aim The aim was to investigate job strain and stress of conscience among nurse assistants working in residential care and to explore associations with personal and work-related aspects and health complaints. Background It is important to investigate job strain and stress of conscience, both for the well-being of the nurse assistants themselves and for the impact on the quality of care they provide. Method Questionnaires measuring job strain, stress of conscience, personal and work-related aspects and health complaints were completed by NAs (n = 225). Comparisons of high and low levels of job strain and stress of conscience and multiple linear regression analyses were performed. Result Organisational and environmental support and low education levels were associated with low levels of job strain and stress of conscience. Personalised care provision and leadership were related to stress of conscience and the caring climate was related to job strain. Conclusion There is a need for support from the managers and a supportive organisation for reducing nurse assistants work-related stress, which in turn can create a positive caring climate where the nurse assistants are able to provide high quality care. Implications for nursing management The managers' role is essential when designing supportive measures and implementing a value-system that can facilitate personalised care provision.
|
|
| 25. |
- Orrung Wallin, Anneli, et al.
(författare)
-
Job strain and stress of conscience among nurse assistants working in residential care
- 2015
-
Ingår i: Journal of Nursing Management. - : Wiley-Blackwell Publishing Ltd. - 0966-0429 .- 1365-2834. ; 23:3, s. 368-379
-
Tidskriftsartikel (refereegranskat)abstract
- Aim The aim was to investigate job strain and stress of conscience among nurse assistants working in residential care and to explore associations with personal and work-related aspects and health complaints. Background It is important to investigate job strain and stress of conscience, both for the well-being of the nurse assistants themselves and for the impact on the quality of care they provide. Method Questionnaires measuring job strain, stress of conscience, personal and work-related aspects and health complaints were completed by NAs (n = 225). Comparisons of high and low levels of job strain and stress of conscience and multiple linear regression analyses were performed. Result Organisational and environmental support and low education levels were associated with low levels of job strain and stress of conscience. Personalised care provision and leadership were related to stress of conscience and the caring climate was related to job strain. Conclusion There is a need for support from the managers and asupportive organisation for reducing nurse assistants work-related stress, which in turn can create a positive caring climate where the nurse assistants are able to provide high quality care. Implications for nursing management The managers' role is essential when designing supportive measures and implementing a value-system that can facilitate personalised care provision.
|
|
| 26. |
- Orrung Wallin, Anneli, et al.
(författare)
-
Leadership and person-centeredness – important factors of job strain and stress of conscience among nurse assistants’ working in residential care
- 2013
-
Konferensbidrag (refereegranskat)abstract
- Introduction : It is important to investigate the job strain and stress ofconscience (SC) of NAs not only for the sake of nurse assistants(NAs), but also due to the impact on the quality of care they provide.Thus, the aim of this study was to investigate job strain, SC andassociated variables among NAs working in residential care. Method :NAs (n=225) completed questionnaires, including job strain, SC andpotentially associated variables. The variables were comparedconcerning high and low job strain and SC and were explored withmultiple linear regression analyses. Results : Organisational andenvironmental support, personalised care provision and, a positivecaring climate were associated with low job strain and SC as well asNAs receiving a supportive leadership. In addition, having compulsoryschooling in comparison with upper secondary schooling wasassociated with low job strain and SC. Factors related to healthcomplaints and work-related information were associated with highjob strain and SC. Conclusion : Exploring and adopting a broaderperspective of factors which are connected to strenuous aspects ofNAs’ work situation in residential care are important for the provisionand management of nursing-care. In order to ensure the wellbeing ofNAs and in turn the quality of care, both the NAs and their leadersneed to be addressed simultaneously. Person-centeredness concernsthe actual care-provision and the care climate which need to beimplemented into the care system/care philosophy. This highlights theimportance of the leaders’ role as crucial when implementing orsustaining person-centred care in residential care for older people.
|
|
| 27. |
- Orrung Wallin, Anneli, et al.
(författare)
-
Leadership and person-centeredness – important factors of job strain and stress of conscience among nurse assistants’ working in residential care
- 2013
-
Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Introduction : It is important to investigate the job strain and stress of conscience (SC) of NAs not only for the sake of nurse assistants (NAs), but also due to the impact on the quality of care they provide. Thus, the aim of this study was to investigate job strain, SC and associated variables among NAs working in residential care. Method : NAs (n=225) completed questionnaires, including job strain, SC and potentially associated variables. The variables were compared concerning high and low job strain and SC and were explored with multiple linear regression analyses. Results : Organisational and environmental support, personalised care provision and, a positive caring climate were associated with low job strain and SC as well as NAs receiving a supportive leadership. In addition, having compulsory schooling in comparison with upper secondary schooling was associated with low job strain and SC. Factors related to health complaints and work-related information were associated with high job strain and SC. Conclusion : Exploring and adopting a broader perspective of factors which are connected to strenuous aspects of NAs’ work situation in residential care are important for the provision and management of nursing-care. In order to ensure the wellbeing of NAs and in turn the quality of care, both the NAs and their leaders need to be addressed simultaneously. Person-centeredness concerns the actual care-provision and the care climate which need to be implemented into the care system/care philosophy. This highlights the importance of the leaders’ role as crucial when implementing or sustaining person-centred care in residential care for older people.
|
|
| 28. |
- Orrung Wallin, Anneli, et al.
(författare)
-
Psychometric properties concerning four instruments measuring job satisfaction, strain, and stress of conscience in a residential care context
- 2013
-
Ingår i: Archives of gerontology and geriatrics (Print). - : Elsevier. - 0167-4943 .- 1872-6976. ; 57:2, s. 162-171
-
Tidskriftsartikel (refereegranskat)abstract
- There are many instruments assessing the wellbeing of staff, but far from all have been psychometrically investigated. When evaluating supportive interventions directed toward nurse assistants in residential care, valid and reliable instruments are needed in order to detect possible changes. The aim of the study was to investigate validity in terms of data quality, construct validity, convergent and divergent validity and reliability in terms of the internal consistency and stability of the Job Satisfaction Questionnaire, the Psychosocial Aspects of Job Satisfaction, the Strain in Dementia Care Scale (SDCS), and the Stress of Conscience Questionnaire (SCQ) in a residential care context. The psychometric properties of the instruments were investigated in terms of data quality, construct validity, convergent and divergent validity and reliability, including test-retest reliability, in a residential care context with a sample consisting of nurse assistants (n=114). The four instruments responded with different psychometric-related problems such as internal missing data, floor and ceiling effects, problems with construct validity and low test-retest reliability, especially when assessed on the item level. These problems were however reduced or disappeared completely when assessed for total and factor scores. From a psychometric perspective, the SDCS seemed to stand out as the best instrument. However, it should be modified in order to reduce floor effects on item level and thereby gain sensitivity. The Job Satisfaction Questionnaire seemed to have problems both with the construct validity and test-retest reliability. The final choice of instrument must, however, be made dependent on what one intends to measure.
|
|
| 29. |
- Orrung Wallin, Anneli, et al.
(författare)
-
Psychometric properties concerning four instruments measuring job satisfaction, strain, and stress of conscience in a residential care context
- 2013
-
Ingår i: Archives of gerontology and geriatrics (Print). - : Elsevier BV. - 0167-4943 .- 1872-6976. ; 57:2, s. 162-171
-
Tidskriftsartikel (refereegranskat)abstract
- There are many instruments assessing the wellbeing of staff, but far from all have been psychometrically investigated. When evaluating supportive interventions directed toward nurse assistants in residential care, valid and reliable instruments are needed in order to detect possible changes. The aim of the study was to investigate validity in terms of data quality, construct validity, convergent and divergent validity and reliability in terms of the internal consistency and stability of the Job Satisfaction Questionnaire, the Psychosocial Aspects of Job Satisfaction, the Strain in Dementia Care Scale (SDCS), and the Stress of Conscience Questionnaire (SCQ) in a residential care context. The psychometric properties of the instruments were investigated in terms of data quality, construct validity, convergent and divergent validity and reliability, including test-retest reliability, in a residential care context with a sample consisting of nurse assistants (n=114). The four instruments responded with different psychometric-related problems such as internal missing data, floor and ceiling effects, problems with construct validity and low test-retest reliability, especially when assessed on the item level. These problems were however reduced or disappeared completely when assessed for total and factor scores. From a psychometric perspective, the SDCS seemed to stand out as the best instrument. However, it should be modified in order to reduce floor effects on item level and thereby gain sensitivity. The Job Satisfaction Questionnaire seemed to have problems both with the construct validity and test-retest reliability. The final choice of instrument must, however, be made dependent on what one intends to measure.
|
|
| 30. |
|
|
| 31. |
|
|
| 32. |
- Skovdahl, Kirsti, et al.
(författare)
-
Yngre personer med demens och deras närstående
- 2020. - 3
-
Ingår i: Att möta personer med demens. - Lund : Studentlitteratur AB. - 9789144120775 ; , s. 115-127
-
Bokkapitel (övrigt vetenskapligt/konstnärligt)
|
|
| 33. |
|
|
| 34. |
|
|
| 35. |
|
|
| 36. |
|
|
| 37. |
|
|
| 38. |
|
|
