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- Pettersson, Ingvor, et al.
(författare)
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Lifeworld perspectives utilizing assistive devices : individuals, lived experience following a stroke
- 2007
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Ingår i: Canadian Journal of Occupational Therapy / Revue Canadienne d`Ergotèrapie. - Toronto : Canadian Association of Occupational Therapists. - 0008-4174. ; 74:1, s. 15-26
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: In lifeworld research, the individual's experience of meaning is of primary importance.PURPOSE: This paper explores how individuals post stroke who have a disability, described their personal meaning and lived experiences associated with the use of assistive devices.METHODS: A hermeneutic-phenomenological research approach was used. A conversational interview was conducted with 22 post-stroke individuals regarding their daily experiences utilizing assistive devices.RESULTS: The results showed a dual experience regarding the use of assistive devices, which is often complex and contradictory. The devices were viewed as a prerequisite for well-being and independence but at the same time, the devices gave rise to negative feelings because of the restrictions implied by their use. These dual experiences were explored in relation to the lived body, space, relations to others, and time.PRACTICE IMPLICATIONS: The results of this study will facilitate occupational therapists understanding of an individual's experiences utilizing assistive devices and their need for support with this process.
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| 2. |
- Pettersson, Ingvor, et al.
(författare)
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The value of an outdoor powered wheelchair with regard to the quality of life of persons with stroke : a follow-up study
- 2007
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Ingår i: Assistive technology. - New York, NY : Demos. - 1040-0435 .- 1949-3614. ; 19:3, s. 143-153
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Tidskriftsartikel (refereegranskat)abstract
- Evaluating the use of a powered wheelchair is of importance because of the increasing number of people with disabilities who are provided with one. The aim of this study is to describe characteristics of persons with stroke using an outdoor powered wheelchair and to evaluate the impact of the wheelchair on quality of life. A further aim is to compare the impact on quality of life in respect to age, gender, different disability characteristics, and living conditions. The 32 participants with stroke were recruited consecutively from three county council areas in Sweden. A follow-up design was applied including the EuroQol-5D questionnaires at baseline before the persons were prescribed an outdoor powered wheelchair, and after the participants had used the wheelchair for 3 to 5 months, data were collected by means of the EuroQol-5D and the Psychosocial Impact of Assistive Devices Scale (PIADS). The results indicated an improved quality of life with respect to the items competence, independence, capability, quality of life, well-being, happiness, and self-esteem on the PIADS. The usual activity dimension on the EuroQol-5D showed a significant improvement after wheelchair use. The group who drove the powered wheelchair at least once a day in the summer showed a more positive score on the total PIADS and its Competence subscale than persons who drove less. Furthermore, the group with higher rankings of the importance of the powered wheelchair scored higher on psychosocial impact than did the group with lower rankings. The conclusion is that the powered wheelchair mostly has a positive impact on the quality of life of users with stroke. Service providers should be alert, however, to the possible negative impact of a powered wheelchair on quality of life and support the user.
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| 3. |
- Widar, Marita, et al.
(författare)
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Caring and uncaring experiences as narrated by persons with long-term pain after a stroke
- 2007
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Ingår i: Scandinavian Journal of Caring Sciences. - Oxford : Blackwell. - 0283-9318 .- 1471-6712. ; 21:1, s. 41-47
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe how persons with long-term pain after a stroke experience their care. The study is part of a larger research project concerning a group persons suffering from long-term pain after a stroke. Qualitative interviews were performed with 43 persons suffering from central poststroke pain, nociceptive pain or tension-type headache after their stroke incident. Content congruence emerged among the narratives (n = 43), and therefore the most information-rich ones (n = 23) were selected for deeper investigation by means of qualitative content analysis. The results reveal the patients’ need for being respected, understood and supported, also for being given adequate time and information. Accessibility and continuity in the professional contacts and with regard to medical and physical treatment was emphasized. The participants’ narratives highlight the importance of the professionals having knowledge of pain and pain management.
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| 4. |
- Widar, Marita, et al.
(författare)
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Living with long-term pain after stroke
- 2007
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- ObjectivesThe general aim of this thesis was to classify and describe long-term pain two years after a stroke and to describe the experiences of pain, and the consequences it has on the persons’ lives.Material and methodsThe studies comprised 43 persons, 13 women and 30 men, aged 33-82 years, with pain after stroke and no other major pain conditions and able to participate in an interview and independently answer questionnaires.The studies were conducted from a multidimensional perspective on pain, combining quantitative and qualitative methods. Clinical examinations were somatic, neurological and Quantitative Sensory Testing (QST). The Pain-O-Meter, ADL staircase, Self-reported impairment, SF-36 and Hospital Anxiety and Depression Scale were used. Qualitative interviews were performed and analyzed with content analysis.ResultsThree types of pain were classified: Neuropathic (central post-stroke pain) (n=15), nociceptive/mainly shoulder pain (n=18) and tension-type headache (n=10). Pain onset, within one to six months in most of the cases was after discharge from the hospital. Continuous pain or pain almost every day was reported by nearly two-thirds. The pain was mostly described as troublesome, annoying and tiring in all groups. The rating of pain intensity revealed individual differences among the participants within the pain groups. In addition to long-term pain, the participants suffered several impairments and nearly half of them were dependent on others, and two-thirds on assistive devices. Several coping strategies were described, most often problem-focused. Their health-related quality of life was decreased, mostly related to their long-term pain and physical impairments. Their experiences of caring revealed the need of improvements in knowledge about long-term pain, attention and understanding among the professionals, and continuity in the contacts.ConclusionAll professionals need knowledge about pain conditions after stroke. Pain assessment and classification, regular follow-up and documentation are required in order to prevent unnecessary suffering. Patients need attention, understanding and continuity in contacts with professionals. Further, information and education about pain and treatment/caring interventions are required in the case of both the sufferer and next of kin.
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