| 1. |
- Almblad, Ann-Charlotte, et al.
(författare)
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Caring for the Acutely, Severely Ill Child-A Multifaceted Situation with Paradoxical Elements : Swedish Healthcare Professionals' Experiences
- 2016
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Ingår i: Journal of Pediatric Nursing. - : Elsevier BV. - 0882-5963 .- 1532-8449. ; 31:5, s. E293-E300
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: The aim of this study was to describe healthcare professionals' experience of caring for acutely, severely ill children in hospital in Sweden.Design and Methods: Five focus group interviews were conducted with nurses, nurse assistants and physicians comprising a total of 20 participants. Data were analyzed using qualitative content analysis.Results: An overall theme emerged that describes healthcare professionals' experiences as: "being in a multifaceted area of tension with paradoxical elements". The theme is based on three categories: proficiency of the individuals and the team is the fundamental base; interactions are crucial in an area of tension; and wellbeing of the individual is a balance of contradictory emotions. With maintained focus on the ill child, proficiency is the fundamental base, interactions are crucial, and moreover contradictory emotions are described.Conclusions: The interplay based on proficiency may influence the assessments and treatments of acutely, severely ill children.Practice Implications: Recognizing the multifaceted area of tension with paradoxical elements, practical teamwork exercises, a structured approach, and assessment tools could be a possible way to develop interprofessional team collaboration to improve the care of acutely, severely ill children in order to increase patient safety.
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| 2. |
- Almblad, Ann-Charlotte, 1965-, et al.
(författare)
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Implementation of Pediatric Early Warning Score : Adherence to Guidelines and Influence of Context
- 2018
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Ingår i: Journal of Pediatric Nursing. - : Elsevier BV. - 0882-5963 .- 1532-8449. ; 38, s. 33-39
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: To describe data of Pediatric Early Warning Score (PEWS) registrations and to evaluate the implementation of PEWS by examining adherence to clinical guidelines based on measured PEWS, and to relate findings to work context.DESIGN AND METHODS: PEWS, as a part of a concept called Early Detection and Treatment-Children (EDT-C) was implemented at three wards at a Children's Hospital in Sweden. Data were collected from the Electronic Patient Record (EPR) retrospectively to assess adherence to guidelines. The Alberta Context Tool (ACT) was used to assess work context among healthcare professionals (n=110) before implementation of EDT-C.RESULTS: The majority of PEWS registrations in EPR were low whereas 10% were moderate to high. Adherences to ward-specific guidelines at admission and for saturation in respiratory distress were high whereas adherence to pain assessment was low. There were significant differences in documented recommended actions between wards. Some differences in leadership and evaluation between wards were identified.CONCLUSIONS: Evaluation of PEWS implementation indicated frequent use of the tool despite most scores being low. High scores (5-9) occurred 28 times, which may indicate that patients with a high risk of clinical deterioration were identified. Documentation of the consequent recommended actions was however incomplete and there was a large variation in adherence to guidelines. Contextual factors may have an impact on adherence.PRACTICE IMPLICATIONS: EDT-C can lead to increased knowledge about early detection of deterioration, strengthen nurses as professionals, optimize treatment and teamwork and thereby increase patient safety for children treated in hospitals.
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| 3. |
- Andersson, Katarina, et al.
(författare)
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Growing as a Human Being€” : Obese Adolescents' Experiences of the Changing Body
- 2016
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Ingår i: Journal of Pediatric Nursing. - : Elsevier BV. - 0882-5963 .- 1532-8449. ; 31:1, s. e53-e62
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the presented study was to describe how obese adolescents experience themselves and their bodies and how their views changed as a result of participation in a weight loss program. A total of five adolescents were interviewed in this qualitative study. Data were analyzed by means of content analysis. One main theme emerged, “Growing as a human beingâ€, which comprised four themes based on 13 sub-themes. Being part of a weight loss program was a time of transition that led not only to weight reduction but also to a higher level of well-being and a feeling of dignity.
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| 4. |
- Anderzén-Carlsson, Agneta, 1966-
(författare)
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CHARGE syndrome : a five case study of the syndrome characteristics and health care consumption during the first year in life
- 2015
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Ingår i: Journal of Pediatric Nursing. - : Elsevier. - 0882-5963 .- 1532-8449. ; 30:1, s. 6-16
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Tidskriftsartikel (refereegranskat)abstract
- CHARGE syndrome is characterized by impaired vision and hearing, as well as physical malformations. The aim of this study is to describe the characteristics of the malformations and the health care consumption during the first year, in a Swedish sample having CHARGE syndrome. Three of the five individuals fulfilled all the traditional criteria for a clinical diagnosis of CHARGE syndrome. All infants were hospitalized from 26 to 230. days, subjected to 10-34 different diagnostic procedures and prescribed 10-28 different medications during their first year. Coordinated and individually adapted care is urged, as these infants and their families are in of need multiple health care contacts.
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| 5. |
- Angelhoff, Charlotte, medicine doktor, 1974-, et al.
(författare)
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"To Cope with Everyday Life, I Need to Sleep" - A Phenomenographic Study Exploring Sleep Loss in Parents of Children with Atopic Dermatitis.
- 2018
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Ingår i: Journal of Pediatric Nursing. - : Elsevier. - 0882-5963 .- 1532-8449. ; 43, s. E59-E65
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: The whole family is affected when a child has atopic dermatitis (AD), and parents experience sleep disruption related to the child's condition leading to physical and mental exhaustion, mood swings, loss of concentration and lower job performance. This study aimed to explore and describe perceptions of sleep in parents of children <2 years old with AD, consequences of parental sleep loss, and what strategies the parents used to manage sleep loss and to improve sleep.DESIGN AND METHODS: This qualitative interview study had an inductive and descriptive design. Twelve parents (eleven mothers and one father) participated in the study. Data analysis was performed using a phenomenographic approach.RESULTS: Three categories of description were found: Acceptance and normalization of parental sleep loss; Changed routines and behavior to compensate for sleep loss; and Support is needed to gain sleep and manage daily life.CONCLUSIONS: Sleep loss due to the child's AD affected the parents' emotional state, mood, well-being, cognitive function, ability to concentrate and take initiative, and sensitivity to stress and sound negatively. The parents managed their sleep loss mainly by changing their behavior and creating new routines, by taking me-time and through support from partners.PRACTICE IMPLICATIONS: Pediatric nurses should acknowledge sleep loss in parents of small children with AD in time to prevent negative consequences, which affect the well-being of the entire family. Advice on how to improve sleep should be given early to increase the parents' understanding, make them feel safer and strengthen them in their parenthood.
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| 6. |
- Asp, Ann, et al.
(författare)
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Transfer to adult care : experiences of young adults with congenital heart disease
- 2015
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Ingår i: Journal of Pediatric Nursing. - : Elsevier. - 0882-5963 .- 1532-8449. ; 30:5, s. e3-e10
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Tidskriftsartikel (refereegranskat)abstract
- Mer än 90 % av barn med medfödda hjärtfel överlever upp i vuxen ålder tack vare utveckling av hjärtkirurgi och medicinsk behandling. Intervjuer med 16 unga vuxna med medfödda hjärtfel i syfte att undersöka deras upplevelser av hur överföringen från barnsjukvård till vuxenvård genomfördes. Analysen identifierade fem tema: Att känna trygghet i överföringen, Att känna tillit till vården, Att förväntas bli delaktig i vården, Att ta över ansvaret för sin hälsa är en process, och Att sakna kunskap leder till osäkerhet. Sammanfattningsvis, en strukturerad och gradvis överföring är nödvändig för att få informanterna att axla ansvaret för sin egenvård.
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| 7. |
- Coyne, I., et al.
(författare)
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Centeredness in Healthcare : A Concept Synthesis of Family-centered Care, Person-centered Care and Child-centered Care
- 2018
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Ingår i: Journal of Pediatric Nursing. - : W.B. Saunders. - 0882-5963 .- 1532-8449. ; 42, s. 45-56
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Tidskriftsartikel (refereegranskat)abstract
- Background: Increasingly within healthcare, different kind of ‘centeredness’ are used to denote the focus of care which can create confusion for practitioners. Methods: A concept analysis was undertaken to identify the antecedents, attributes and relationship between family-, person-, and child-centered care. PubMed and CINAHL were searched from 2012 to 2017 and thirty-five papers were reviewed. Results: Both person- and child-centered care are focused on individuals, a symmetric relationship and the tailoring of care to individual needs while family- centered care is focused on the family as a unit of which the child is included. Person-centered care focuses on an adult person with autonomy, while the focus in child-centered care is the individual child as an own actor with rights but still close to a family. Conclusion: It appears at a conceptual level that the concepts of centeredness contain both similarities and differences. Finding ways to structure nursing and focus the care that respects a person's dignity and humanity is essential in healthcare and should be a major goal of health policy and health systems worldwide. Implications: The identification of the antecedents and attributes embedded in the concepts may help raise professionals’ awareness of the different foci and how this will influence one's practice. There is a need to recognize strengths and weaknesses of the centeredness in different settings and environments. Furthermore, it is important to know which approach to apply within different situations so that quality care is enabled for every person, child and family.
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| 8. |
- Elissa, Kawther, et al.
(författare)
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Societal Norms and Conditions and Their Influence on Daily Life in Children With Type 1 Diabetes in the West Bank in Palestine
- 2017
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Ingår i: Journal of Pediatric Nursing. - : Elsevier BV. - 0882-5963 .- 1532-8449. ; 33, s. 16-22
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Tidskriftsartikel (refereegranskat)abstract
- Purpose To explore the experiences of daily life in children with type 1 diabetes (T1D) and their parents living in the West Bank in Palestine. Design and Methods A qualitative study using thematic interviews was performed with 10 children with T1D and their parents (n = 10). Content analysis was performed with the assistance of NVIVO 10. Results The overall theme was facing the social reality of diabetes. This was underpinned by two themes: stigmatization and social constraints. Facing the social reality of diabetes described children and their parents' everyday life attempts to place themselves within the context of the disease and social context. Children and their parents described how stigmatization and social constraints impacted their daily life as a result of fear of disclosing the disease, which could affect their social status. Conclusion These findings highlighted how daily life in children with T1D and their parents was highly affected by cultural impacts, especially as stigma related to the illness affected social interactions of female and male children/adolescents. Lack of knowledge and misunderstandings about T1D in society lead to negative consequences like poorer management of diabetes, and this becomes mediated by gender. Practical Implications The findings suggest health care providers need to be aware of the cultural and social impact of T1D on children's and parents' daily life in order to meet their needs and challenges by providing appropriate interventions, strategies and support.
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| 9. |
- Enskär, Karin, et al.
(författare)
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An analytic review of clinical implications from nursing and psychosocial research within Swedish pediatric oncology
- 2015
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Ingår i: Journal of Pediatric Nursing. - Amsterdam : Elsevier. - 0882-5963 .- 1532-8449. ; 30:4, s. 550-559
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this manuscript is to analyze researchers' suggestions for clinical implications of their findings as stated in recent published articles on nursing and psychosocial research within the setting of Swedish pediatric oncology. Identified categories included staff awareness of the effects of child illness on families; systems for care improvement; provision of quality of care, education and support; and empowerment of children and families. In order to be able to realize these clinical suggestions, expanded research is needed as well as continued education and support for staff.
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| 10. |
- Gunes, Aynur, et al.
(författare)
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Heparin or Sodium Chloride for Prolonging Peripheral Intravenous Catheter Use in Children
- 2018
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Ingår i: Journal of Pediatric Nursing. - : Elsevier. - 0882-5963 .- 1532-8449. ; 43, s. E92-E99
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Forskningsöversikt (refereegranskat)abstract
- Bakgrund: Barns välbefinnande bör alltid tas i beaktande men under sjukhusvistelse upplever många barn smärta relaterat till medicinska procedurer såsom att sätta en intravenös perifer katater. För att förlänga tiden som katetern fungerar och för att undvika onödiga byten av katetern så kan den antingen bli spolad med heparin eller med koksalt. Eftersom heparin har negativa sidoeffekter så syftade denna studien till att undersöka om det finns evidens för att intermittent spolning med heparin är mer effektivt för att förlänga den verksamma tiden jämfört med spolning av koksalt. Kriterier: En systematisk litteraturstudie genomfördes som strukturerades enligt PICO. Databaserna PubMed, CINAHL, och Cochrane Library användes och valda studiedesinger var systematiska reviews och randomiserade kontrollerade dubbelblindande studier inkluderades. Studierna granskades och syntetiserades för att sedan evedensgraderas. Urval: Två systematiska reviews och fyra randomiserade kontrollerade dubbel-blindade studier inkluderades. Results: De två systematiska reviews bedömdes vara av hög kvalitet och de randomiserade kontrollerade dubbel-blindade studierna bedömdes ha medelhög kvalitet. Resultatet visade både signifikanta skillnader men även icke signifikanta skillnader avseende tiden som katetern fungerade mellan grupperna som fick heparin och de som fick koksalt. Konklusion: Vår konklusin är att heparin kanske inte är nödvändig men att guidelines inte går att utveckla. Implikationser: Eftersom heparin har negativa sidoeffekter för barn och inga signifikanta resultat entydigt visade favörer för heparin fler studier behövs för att utforma evidensbaserad vård.
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