| 1. |
- Einberg, Eva-Lena, 1965-, et al.
(författare)
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Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form
- 2013
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Ingår i: Health and Quality of Life Outcomes. - London : Springer Science and Business Media LLC. - 1477-7525. ; 11
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Tidskriftsartikel (refereegranskat)abstract
- Background: It has become important to measure long-term effects and quality of life in survivors of childhood cancer. The Minneapolis- Manchester Quality of Life (MMQL) instrument has been proven to better capture the quality of life (QoL) perspective of health than other instruments. The instrument has age appropriate versions and is therefore favourable for longitudinal studies of QoL of children surviving from cancer. The aim of this study was to evaluate the psychometric properties of the Swedish version of MMQL-Youth Form and the Adolescent Form focusing on: 1) face and content validity 2) the internal consistency and 3) the test-retest reliability. Methods: The sample consisted of 950 pupils (11-16 years old) from 7 schools in the western Sweden who completed the questionnaire. For the test-retest evaluation 230 respondents completed the questionnaire two weeks later. Results: Face and content validity was supported and internal consistency was found to be acceptable for the total scale for both the MMQL-Youth Form (8-12 years of age) and the Adolescent Form (13-20 years of age). Test-retest reliability for the MMQL-Youth Form was moderate for 50% of the items and good for the remaining. For the MMQL-Adolescent Form the test-retest showed moderate or good agreement for 80% of the items and fair for 20%. Conclusions: The result indicated that the Swedish version of the MMQL-Youth Form and Adolescent Form was valid and reliable in a sample of healthy children in a Swedish context. It is recommended to test the instrument among diverse samples of children such as survivors of childhood cancer in order to validate its usefulness in research and clinical settings.
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| 2. |
- Jormfeldt, Henrika, 1966-, et al.
(författare)
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Staff's Experiences of a Person-Centered Health Education Group Intervention for People with a Persistent Mental Illness
- 2013
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Ingår i: Issues in Mental Health Nursing. - New York : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 34:7, s. 488-496
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Tidskriftsartikel (refereegranskat)abstract
- Patient education in mental health care is a conventional intervention to increase patients' knowledge about their illness and treatment. A provider-centered focus in patient education may put patients in a passive role, which can counteract their processes of recovery. There is an increasing emphasis on recovery-oriented practice, an approach that is aligned with the service user perspective, but little is known about healthcare staffs’ perspective on person-centered mental health care. A qualitative approach was used to describe staffs’ experiences of being group leaders in a person-centered health education intervention in municipal services for persons with a persistent mental illness. The analysis of staff experiences revealed three core categories: implications of division of responsibility between local authorities, awareness of facilitating factors of growth and the meaning of dialogue, forming the theme “Preconditions for person-centered care”. Further research is required to explore larger economic, political and social structures as a backdrop to person-centered mental health care, from the perspective of service users, families, health professionals and society at large.
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| 3. |
- Werkander Harstäde, Carina, et al.
(författare)
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Feelings of guilt - Experiences of next-of-kin in end-of-life care
- 2013
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Ingår i: Journal of Hospice and Palliative Nursing. - Philadelphia : Wolters Kluwer. - 1522-2179 .- 1539-0705. ; 15:1, s. 33-40
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the study was to gain a greater understanding of the experiences of guilt of the next-of-kin in end-of-life care. Seventeen next-of-kin who had lost a loved one were interviewed with a focus on possible experiences of guilt. A Gadamerian-based hermeneutic approach to interpret these experiences was used. The interpretation showed that next-of-kin’s experiences of guilt emanated from a situation where the next-of-kin had a moral view on what was the right thing to do, it could also originate from a wish to do the best possible for the dying person out of love for this person. The situation could also involve both these aspects. The way in which the situation was handled, could, if the next-of-kin felt that s/he did not fulfill her/his commitments, omitted or neglected the dying person or was the cause of something, lead to experiences of guilt. The situation of being next-of-kin in end-of-life care is complex and demanding, something that health professionals are and should be aware of. Acknowledgement of experiences of guilt can help the next-of-kin in their adaptation to the end-of-life situation as a whole and maybe also give useful tools to support next-of-kin through bereavement.
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| 4. |
- Roxberg, Åsa, 1953-, et al.
(författare)
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Where Can I Find Consolation? A Theoretical Analysis of the Meaning of Consolation as Experienced by Job in the Book of Job in the Hebrew Bible
- 2013
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Ingår i: Journal of religion and health. - New York, NY : Springer-Verlag New York. - 0022-4197 .- 1573-6571. ; 52:1, s. 114-127
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the study was to explore the meaning of consolation as experienced by Job in the Book of Job and as presented in literature and how consolation relates to suffering and care. The study’s theoretical design applied Ricoeur’s view on phenomenology and hermeneutics. The resulting themes were as follows: consolation that is present, that originates in confrontation, that keeps suffering at a distance, that does not alleviate suffering, that originates in experience from giving comfort, and that facilitates a change of perspective. The authentic and caring consolation accepts the sufferer’s incomprehensible “otherness” but however provides no answers about how to console. © 2011 Springer Science+Business Media, LLC.
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