| 1. |
- Hjelm, Markus, et al.
(author)
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Family members of older persons with multi-morbidity and their experiences of case managers in Sweden : an interpretive phenomenological approach
- 2015
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In: International Journal of Integrated Care. - : Igitur Publishing. - 1568-4156. ; 15
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Journal article (peer-reviewed)abstract
- Family members of older persons (75+) with multi-morbidity are likely to benefit from utilising case management services performed by case managers. However, research has not yet explored their experiences of case managers. The aim of the study was to deepen the understandning of the importance of case managers to family members of older persons (75+) with multi-morbidity. The study design was based on an interpretive phenomenological approach. Data were collected through individual interviews with 16 family members in Sweden. The interviews were analysed by means of an interpretive phenomenological approach. The findings revealed one overarching theme: "Helps to fulfil my unmet needs", based on three sub-themes: (1) "Helps me feel secure - Experiencing a trusting relationship", (2) "Confirms and strengthens me - Challenging my sense of being alone" and (3) "Being my personal guide- Increasing my competence". The findings indicate that case managers were able to fulfil unmet needs of family members. The latter recognised the importance of case managers providing them with professional services tailored to their individual needs. The findings can contribute to the improvement of case management models not only for older persons but also for their family members.
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| 2. |
- Hjelm, Markus, et al.
(author)
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The work of case managers as experienced by older persons (+75) with multi-morbidity : a focused ethnography
- 2015
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In: BMC Geriatrics. - : BioMed Central. - 1471-2318. ; 15
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Journal article (peer-reviewed)abstract
- Background Complex health systems make it difficult for older persons (75+) with multi-morbidity to achieve continuity of care. Case management could be one way to address this difficulty. Currently, there is a need to extend the knowledge regarding case management as experienced by those utilising the services, namely older persons (75+) with multi-morbidity. The study aimed to explore older persons’ (75+) with multi-morbidity experiences of case managers. Methods The study design was qualitative and used a focused ethnographic approach. Data was collected through individual interviews with 13 older persons and by participant observations with accompanying field notes, all conducted in 2012–2013. Results The data revealed four themes illustrating the older persons’ experiences of case managers: 1) Someone providing me with a trusting relationship; 2) Someone assisting me; 3) Someone who is on my side; and 4) Someone I do not need at present. Conclusions This study illustrates the importance of establishing trusting relationships between older persons and their case managers in order to truly provide assistance. The older persons valued the case managers acting as informed but unbiased facilitators. The findings could be of help in the development of case management interventions better designed for older persons with multi-morbidity.
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| 3. |
- Holst, Göran, et al.
(author)
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Signs in People with Intellectual Disabilities : Interviews with Managers and Staff on the Identification Process of Dementia.
- 2018
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In: Healthcare. - : MDPI. - 2227-9032. ; 6:3
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Journal article (peer-reviewed)abstract
- The life expectancy of people with intellectual disabilities (ID) has steadily increased, which has been accompanied by an increased risk of dementia. Staff and managers are key resources for safety diagnosis since they deliver information about people with ID behavior every day. The aim of the present study was to explore the identification process employed by staff and managers to detect signs of suspected dementia in people with an ID within intellectual disability services (ID-services). Twenty managers and 24 staff within an ID-service were interviewed and qualitative latent content analysis was applied. A model consisting of three themes on three levels of resources for the identification process of signs of suspected dementia emerged from the analysis. On the first level was the time and continuity in the care relationship, which is crucial for identifying and responding to changes in cognitive ability that indicate dementia. On the second level, the staff identify deficiencies in their own knowledge, seek support from colleagues and managers within their workplace and, on the third level, outside their workplace. Staff and managers expressed a need for early and continuous guidance and education from specialists in dementia and primary healthcare. This finding indicates an urgent need for intervention research and digital support for staff in dementia care.
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| 4. |
- Lagergren, Mårten, et al.
(author)
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Horizontal and vertical targeting : a population-based comparison of public eldercare services in urban and rural areas of Sweden
- 2016
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In: Aging Clinical and Experimental Research. - : Springer Science and Business Media LLC. - 1594-0667 .- 1720-8319. ; 28:1, s. 147-158
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Journal article (peer-reviewed)abstract
- The concepts of target efficiency can be used to assess the extent to which service provision is in line with the needs of the population. Horizontal target efficiency denotes the extent to which those deemed to need a service receive it and vertical target efficiency is the corresponding extent to which those who receive services actually need them. The aim of this study was to assess the target efficiency of the Swedish eldercare system and to establish whether target efficiencies differ in different geographical areas such as large urban, midsize urban and rural areas. Vertical efficiency was measured by studying those people who received eldercare services and was expressed as a percentage of those who received services who were functionally dependent. To measure horizontal target efficiency, data collected at baseline in the longitudinal population study SNAC (Swedish National study on Aging and Care) during the years 2001-2004 were used. The horizontal efficiency was calculated as the percentage of functionally dependent persons who received services. Functional dependency was measured as having difficulty with instrumental activities of daily living (IADL) and/or personal activities of daily living (PADL). Services included long-term municipal eldercare services (LTC). Horizontal target efficiency for the public LTC system was reasonably high in all three geographical areas, when using dependency in PADL as the measure of need (70-90 %), but efficiency was lower when the less restrictive measure of IADL dependency was used (40-50 %). In both cases, the target efficiency was markedly higher in the large urban and the rural areas than in the midsize urban areas. Vertical target efficiency showed the same pattern-it was almost 100 % in all areas for IADL dependency, but only 50-60 % for PADL dependency. Household composition differed in the areas studied as did the way public long-term care was provided to people living alone as compared to those co-habiting.
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| 5. |
- Petersson, Suzanne, et al.
(author)
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A sisyphean task : experiences of perfectionism in patients with eating disorders
- 2017
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In: Journal of Eating Disorders. - : BioMed Central. - 2050-2974. ; 5:3, s. 1-11
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Journal article (peer-reviewed)abstract
- Background: Despite the theoretical links between eating disorders and perfectionism, the definition of perfectionismin practice is complicated. The present study explored descriptions and experiences of perfectionism described by atransdiagnostic sample of patients.Methods: In-depth, semi-structured interviews were carried out with 15 patients. The interviews were analyzed byThematic Analysis. A comparison between the patients’ scorings on the Eating Disorder Inventory-Perfectionism scalewas also performed.Results: Seven themes were found: The origins of perfectionism, Top performance, Order and self-control, A perfectbody, Looking good in the eyes of others, A double-edged coping strategy, and A Sisyphean task. The women inthis study did not emphasize weight and body as the main perfectionistic strivings. Core descriptions were instead order,self-control and top performances. All of the participants described the awareness of reaching perfectionismas impossible. Scorings of self-oriented perfectionism was significantly higher compared to socially prescribedperfectionism. No differences in the narratives related to perfectionism scores or eating disorder diagnoseswere found.Conclusions: The results showed that psychometric measures do not always capture the patients’ definitionsof perfectionism, but regarding that perfectionism serves as a means to regulate affects and may lead into anexacerbation of the eating disorder, and the development of obsessive-compulsive symptoms, it is importantto investigate the personal definitions of perfectionism.
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| 6. |
- Sjögren Forss, Katarina, et al.
(author)
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Osteoarthritis and fear of physical activity—The effect of patient education
- 2017
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In: Cogent Medicine. - : Cogent OA. - 2331-205X. ; 4:1328820
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Journal article (peer-reviewed)abstract
- Abstract: Purpose: The aim of the current study was twofold. The first aim was to investigate, from the aspects of gender, age and Body Mass Index, the prevalence of fear among individuals with osteoarthritis that their joints would be harmed if they performed physical activity. The second aim was to determine if a patient education programme might lessen this fear. Method: A total of 100 participants were enrolled in a randomised controlled study and completed measures on two occasions over the course of six months. The participants were randomised to either an intervention group or to a control group. Results: More than a quarter of the participants feared that their joints would be harmed if they performed physical activity. This was reported by significantly more men than women. Age and Body Mass Index did not seem to have any significant impact on the fear. The patient education programme for osteoarthritis reduced fear significantly (p = 0.010). Conclusions: A patient education programme appear to be one way of reducing the fear among individuals with osteoarthritis, that the joints would be harmed by physical activity.
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| 7. |
- Östlund, Britt, 1956-, et al.
(author)
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STS-inspired design to meet the challenges of modern aging : Welfare technology as a tool to promote user driven innovations or another way to keep older users hostage?
- 2015
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In: Technological forecasting & social change. - : Elsevier. - 0040-1625 .- 1873-5509. ; 93, s. 82-90
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Journal article (peer-reviewed)abstract
- Older technology users and their integration into IT society have been on the research agenda since digitalization took off. Given the attempts to develop user-driven design, it is surprising that the appearance of technologies older people are provided with, or are the target group for, have not progressed. Now another political agenda, coined as "welfare technology", is being launched in Scandinavia. It is the reminiscent of previous arguments for why demographics, welfare and the need for new business arenas should be prioritized. This paper argues that STS-inspired design can contribute to a paradigm shift that breaks this trend and instead helps to develop proactive technology that meets the needs and demands of today's senior citizens. Two cases illustrate the way the imbalance between technology and older people's influence persists over time. Another three cases with a bearing on design sciences are singled out and discussed; the selection of older subjects; the understanding of the "social" in going from the laboratory to real-life settings; and the "making of meaning" in product development. The conclusions point to the opportunity to bridge the imbalance when introducing welfare technology by introducing STS-inspired reflections on engineering and design.
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