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- Friberg, Febe, 1950, et al.
(författare)
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Fenomenologi
- 2021
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Ingår i: Kvalitativa metoder helt enkelt! (Klingberg G & Hallberg U, Red.). - Lund : Studentlitteratur. - 9789144142913 ; , s. 165-185
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Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- Fenomenologisk analys är ett arbetssätt inom kvalitativ metod som tar tydlig utgångspunkt i filosofi och utvecklats till en forskningstradition tvärs över flera discipliner och kunskapsfält. Det är ingen enhetlig tradition utan betraktas som en förgrenad rörelse. Vi kan faktiskt säga att det finns flera fenomenologier (Bengtsson 2005) och som en konsekvens finns olika sätt att genomföra fenomenologiska studier. Hur en fenomenologisk undersökning går till har utvecklats på lite olika sätt av både filosofer och de som utvecklat empiriska metoder. Gemensamt för forskare som använder någon form av fenomenologi är att ta utgångspunkt i filosofi, vilket bidrar till att klassiker fortfarande läses och tolkas. Inledningsvis kommer kapitlet att beskriva vad som kännetecknar fenomen och fenomenologi. Olika distinktioner mellan olika fenomenologiska variationer är möjliga och vi kommer därför att ge en översikt över sådana. I beskrivning av hur forskningsprocessen tillämpas tar vi utgångspunkt i en (förenklad) indelning i beskrivande och tolkande fenomenologisk metod. Avslutningsvis kommenteras förtjänster med och kritik av fenomenologisk metod.
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- Hamdan Alshehri, Hanan, et al.
(författare)
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Managerial and organisational prerequisites for the integration of palliative care in the intensive care setting: A qualitative study.
- 2021
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Ingår i: Journal of Nursing Management. - : Hindawi Limited. - 1365-2834 .- 0966-0429. ; 29:8, s. 2715-2723
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Tidskriftsartikel (refereegranskat)abstract
- To explore the association of organizational structures when integrating palliative care in intensive care units.Palliative care within intensive care settings has been widely recognized as an area requiring improvement when caring for patients and their families. Despite this, intensive care units continue to struggle to integrate palliative care.A qualitative descriptive methodology was used. Data were collected through research interviews with 15 managers and 36 health care professionals working in intensive care. The data were analysed adopting constant comparative analysis.This study provides insight into a diverse range of perspectives on organizational structure in the context of facilitation and the challenges posed. Three themes were identified: Do not resuscitate policy as a gateway to palliative care, facilitating family members to enable participation and support and barriers for palliative care in intensive care unit as a result of intensive care organization.In fostering a sustainable organizational culture and practice development in intensive care, the findings indicate the need for specific palliative care policies and implementation strategies tailored according to context.Management has a responsibility to facilitate dialogue within any multidisciplinary team regarding palliative care and, in particular, to focus on 'do not resuscitate' policies as a gateway into this conversation.
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- Holmén, Mathilda Svahn, et al.
(författare)
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Jag har också ett liv. Anhörigas upplevelse och behov av stöd vid vård av en partner med demenssjukdom
- 2021
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Ingår i: Socialmedicinsk Tidskrift. - 0037-833X. ; 98:1, s. 141-152
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Tidskriftsartikel (refereegranskat)abstract
- Syftet är att beskriva betydelsen av stöd till anhöriga för att de ska kunna hantera det dagliga livet när de lever med en partner som har demenssjuk- dom. Tio kvinnor och män intervjuades. Analysen utfördes med hjälp av kon- stant komparativ metod. Resultatet visar att anhöriga som vårdar en partner med demenssjukdom i hemmet, rör sig emellan en känsla av att livet är be- gränsat och att få möjlighet till eget liv. Dessa känslor är inte konstanta utan är en rörelse som kan gå fram och tillbaka och påverkas av flera faktorer. Om anhöriga ska ha möjlighet till ett eget liv så bör stödet från samhället vara flexibelt och anpassat till den anhörige och hens situation. Ett proaktivt förhållningssätt och tidiga insatser tidigt i sjukdomsförloppet är viktigt för att anhöriga ska kunna uppleva att de har ett eget liv. The aim is to describe the significance of providing support to family caregi- vers living with a partner diagnosed with dementia to help them manage their own daily lives. Ten partners were interviewed. The analysis was performed using the constant comparative method. Results show that family caregi- vers caring for partners with dementia in the home move between feeling life is constrained to feeling they can take charge of life. These feelings are not constant but fluctuate and can go back and forth and be influenced by various factors. To enable family caregivers to have their own lives, support should be flexible and adapted to the individual and their situation. A proac- tive approach and early intervention in the course of the illness is important for family members to feel that they have their own life.
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- Larsdotter, Cecilia, et al.
(författare)
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Tolkande beskrivning
- 2021
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Ingår i: Kvalitativa metoder helt enkelt! (Klingberg G & Hallberg U, Red.). - Lund : Studentlitteratur. - 9789144142913 ; , s. 303-324
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Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- Tolkande beskrivning är en kvalitativ metod som till stor del utvecklats på grund av framgången, och som kritik till, den bredare utvecklingen av kvalitativ metod. Metoden är utvecklad för att erbjuda en kvalitativ design anpassad för att matcha kunskapsbehov inom praktikfält. Den är uppbyggd av principer snarare än ett handfast ”kokboksrecept”. Särskilda antaganden vägleder metodologin och kriterier för kvalitet och trovärdighet finns utvecklade. Undersökningsprocessen beskrivs i termer som är snarlikt i andra kvalitativa metoder, från formulering av forskningsproblemet, utformning av forskningsdesignen, konstruktion och bearbetning av data, resultat, till slutligen rapportering. Resultatet av en undersökning genomförd med metoden formas genom ett växelspel mellan beskrivningar och tolkning av data. Metoden avser att föra samman filosofisk, teoretisk, empirisk och praktisk kunskap så att ny förståelse av det undersökta fenomenet uppnås, till nytta för klinisk praktik.
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- Lundin Gurné, Frida, et al.
(författare)
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Striving to be in close proximity to the patient: An interpretive descriptive study of nursing practice from the perspectives of clinically experienced registered nurses
- 2021
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Ingår i: Nursing Inquiry. - : Wiley. - 1320-7881 .- 1440-1800. ; 28:2
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Tidskriftsartikel (refereegranskat)abstract
- © 2020 The Authors. Nursing Inquiry published by John Wiley & Sons Ltd This paper explores essential characteristics of current nursing practice from the perspectives of clinically experienced registered nurses in various fields of health care in Sweden. Nursing practice has been the subject of much debate in the past and because of its complexity as well as continuous changes in society it is important to continue the debate. A qualitative study, including 16 group interviews with altogether 74 participants, was conducted. Nursing practice was viewed as a multifaceted field. The participants struggled to define nursing but were able to describe it using concrete examples. The analysis, using interpretive description, identified current practice as essentially consisting of: ‘A practice pervaded by comprehensive responsibility’, ‘A practice that recognises a patient's unique needs’, ‘A practice based on multifaceted knowledge’ and ‘A practice that mediates between traditional values and changing demands’. Current nursing practice can be understood as striving to be in close proximity to the patient, but in tension with pervasive requirements and societal changes. Going forward, it is necessary to continue to reflect on and discuss the nature of nursing practice in an interprofessional context. Studies from primary and home care are also needed to broaden the understanding of nursing practice.
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- Nilsson, Stefan, 1972, et al.
(författare)
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Evaluating pictorial support in person-centred care for children (PicPecc) : A protocol for a crossover design study
- 2021
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Ingår i: BMJ Open. - : BMJ Publishing Group Ltd. - 2044-6055. ; 11:5
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Tidskriftsartikel (refereegranskat)abstract
- Introduction This study protocol outlines the evaluation of the pictorial support in person-centred care for children (PicPecc). PicPecc is a digital tool used by children aged 5-17 years to self-report symptoms of acute lymphoblastic leukaemia, who undergo high-dose methotrexate treatments. The design of the digital platform follows the principles of universal design using pictorial support to provide accessibility for all children regardless of communication or language challenges and thus facilitating international comparison.Methods and analysis Both effect and process evaluations will be conducted. A crossover design will be used to measure the effect/outcome, and a mixed-methods design will be used to measure the process/implementation. The primary outcome in the effect evaluation will be self-reported distress. Secondary outcomes will be stress levels monitored via neuropeptides, neurosteroids and peripheral steroids indicated in plasma blood samples; frequency of in-app estimation of high levels of distress by the children; children's use of analgesic medicine and person centeredness evaluated via the questionnaire Visual CARE Measure. For the process evaluation, qualitative interviews will be carried out with children with cancer, their legal guardians and case-related healthcare professionals. These interviews will address experiences with PicPecc in terms of feasibility and frequency of use from the child's perspective and value to the caseworker. Interview transcripts will be analysed using an interpretive description methodology.Ethics and dissemination Ethical approval was obtained from the Swedish Ethical Review Authority (reference 2019-02392; 2020-02601; 2020-06226). Children, legal guardians, healthcare professionals, policymaking and research stakeholders will be involved in all stages of the research process according to Medical Research Council's guidelines. Research findings will be presented at international cancer and paediatric conferences and published in scientific journals.Trial registration ClinicalTrials.gov; NCT04433650.
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- Norinder, Maria, et al.
(författare)
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Higher levels of unmet support needs in spouses are associated with poorer quality of life - a descriptive cross-sectional study in the context of palliative home care
- 2021
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Ingår i: BMC Palliative Care. - : BioMed Central (BMC). - 1472-684X. ; 20:1
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundFamily caregivers often report having unmet support needs when caring for someone with life-threatening illness. They are at risk for psychological distress, adverse physical symptoms and negatively affected quality of life. This study aims to explore associations between family caregivers' support needs and quality of life when caring for a spouse receiving specialized palliative home care.MethodsA descriptive cross-sectional design was used: 114 family caregivers completed the Carer Support Needs Assessment Tool (CSNAT) and the Quality of Life in Life-Threatening Illness - Family caregiver version (QOLLTI-F) and 43 of them also answered one open-ended question on thoughts about their situation. Descriptive statistics, multiple linear regression analyses, and qualitative content analysis, were used for analyses.ResultsHigher levels of unmet support needs were significantly associated with poorer quality of life. All CSNAT support domains were significantly associated with one or more quality of life domains in QOLLTI-F, with the exception of the QoL domain related to distress about the patient condition. However, family caregivers described in the open-ended question that their life was disrupted by the patient's life-threatening illness and its consequences. Family caregivers reported most the need of more support concerning knowing what to expect in the future, which they also described as worries and concerns about what the illness would mean for them and the patient further on. Lowest QoL was reported in relation to the patient's condition, and the family caregiver's own physical and emotional health.ConclusionWith a deeper understanding of the complexities of supporting family caregivers in palliative care, healthcare professionals might help to increase family caregivers' QoL by revealing their problems and concerns. Thus, tailored support is needed.
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