| 1. |
- Altermark, Niklas
(författare)
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The post-institutional era : visions of history in research on intellectual disability
- 2017
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Ingår i: Disability and Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 32:9, s. 1315-1332
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Tidskriftsartikel (refereegranskat)abstract
- In this article, I address how the history of intellectual disability politics is made sense of in social scientific research and popular discourse. In particular, I discuss the construction of a narrative break between a past of institutionalisation and the present policies of citizenship. By drawing on how postcolonial theorists criticise common ideas about decolonisation, I argue that this narrative impedes our appreciation of how power has transformed, rather than disappeared, after deinstitutionalisation. Instead, I propose ‘post-institutionalisation’ as a name for the present era of intellectual disability politics, suggesting that we need to attend to continuities and discontinuities of how the group is governed; how paternalism lives on after deinstitutionalisation and how the goals of citizenship inclusion give rise to new technologies of government. I conclude the article by discussing the necessity and the dangers of involving people with intellectual disabilities in the analysis of post-institutional government.
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| 2. |
- Bahner, Julia
(författare)
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Sexual professionalism: for whom? The case of sexual facilitation in Swedish personal assistance services
- 2015
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 30:5, s. 788-801
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Tidskriftsartikel (refereegranskat)abstract
- Sexuality is a taboo subject in disability services, leading to insecurity for both service users and personnel about how to handle upcoming situations. In Sweden, there is also a lack of policy in this area, highlighting the need to study sexuality both as an individual and a political, and in this case also, depoliticized issue. A critical feminist policy analysis reveals that norms around disability, sexuality and professionalism in a particular legal, political and cultural context strongly influence the willingness to recognize disabled people’s sexual rights. The Swedish case indicates a need for increased transnational work to develop ethical, professional and non-discriminatory rights-based approaches to sexual facilitation.
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| 3. |
- Bengtsson, Staffan, 1970-
(författare)
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The nation’s body : disability and deviance in the writings of Adolf Hitler
- 2018
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Ingår i: Disability & Society. - : Taylor & Francis. - 0968-7599 .- 1360-0508. ; 33:3, s. 416-432
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Tidskriftsartikel (refereegranskat)abstract
- This article takes its starting point in the Nazi ideology as it appears in the writings of Adolf Hitler, and discusses how disability and the body can be understood in the context of Mein Kampf. The article underlines how disability and bodily infirmities, alongside race, featured significantly in Hitler’s demagogic message. Although the overall image of disability was related to a sense of threat–and a culture gone wrong–Mein Kampf also contains a mixed interpretation of disability as a phenomenon, in which different and opposing disability narratives took part in the construction and the image of the body as a national property.
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| 4. |
- Bertilsdotter Rosqvist, Hanna, 1976-, et al.
(författare)
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Doing it differently : emancipatory autism studies within a neurodiverse academic space
- 2019
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 34:7-8, s. 1082-1101
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Tidskriftsartikel (refereegranskat)abstract
- In the current research climate, in which many autistic and autism communities are increasingly calling for a move towards collaborative forms of research, we consider how a loosely formed epistemological community may serve to challenge 'business as usual' in the academy. Mindful of the need to move beyond theory, we use this experience to concretely consider how knowledge about autism and neurotypicality can be meaningfully (co)-produced, and made available both to the research community and also to autistic and autism communities. Here, we use our own co-production of this article to explore how autistic experience may trouble normative meanings of academic knowledge production. We also consider the limits and possibilities of a neurodiverse research collaboration to reflect on ways in which a loose epistemological space may serve to contribute to knowledge about both autism and neurotypicality, adding to debate around collaborative research.
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| 5. |
- Brennan, Ciara, et al.
(författare)
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Negotiating independence, choice and autonomy : experiences of parents who coordinate personal assistance on behalf of their adult son or daughter
- 2016
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 31:5, s. 604-621
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Tidskriftsartikel (refereegranskat)abstract
- Article 19 of the UN Convention on the Rights of Persons with Disabilities requires states to provide personal assistance services. This article is based on qualitative research in Iceland, Norway and Sweden, carried out between 2012 and 2013. The overall study focused broadly on the implementation of Article 19. This article, however, reports findings based on a particular group of participants within the larger study: non-disabled parents who coordinate personal assistance schemes for their adult son or daughter. The article examines the various ways in which the parents, the majority of whom were mothers, negotiate principles of independence, choice and autonomy for their adult son or daughter who requires intensive support, including assistance with communicating. The aim is to explore, in the context of the Convention and the principles of the independent living movement, how to acknowledge and conceptualise personal assistance schemes that require another person to manage on behalf of the user.
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| 6. |
- Dindar, Katja, et al.
(författare)
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The construction of communicative (in)competence in autism: : a focus on methodological decisions
- 2017
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Ingår i: Disability & Society. - : Taylor & Francis Group. - 0968-7599 .- 1360-0508. ; 32:6, s. 868-891
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Tidskriftsartikel (refereegranskat)abstract
- Research on people diagnosed with autism spectrum disorder (henceforth autism) is often based upon biomedical understanding. Such understanding tends to view the characteristics related to autism diagnosis, such as the lack of or atypical use of speech, as a sign of incompetence that can be reduced as an underlying pathology of an individual. However, little research has explicitly investigated how methodological decisions in research might influence the perception of these characteristics. This paper draws on two separate research cases involving minimally verbal children with autism to examine how methodological decisions in research design, data collection, data analysis, and data interpretation influence the construction of communicative (in)competence in these children. The paper encourages researchers to carefully consider and reflect on the methodological decisions they make throughout the research process.
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| 7. |
- Dunér, Anna, 1962, et al.
(författare)
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Personal assistance from family members as an unwanted situation, an optimal solution or an additional good? The Swedish example.
- 2018
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Ingår i: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 33:1, s. 1-19
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this article was to explore how users experienced and managed personal assistance from family members who are employed as personal assistants. Seventeen users of personal assistance provided by one or several family members, often in combination with external personal assistants, participated. Thematic qualitative interviews were conducted. The participants were between 19 and 58 years old, and were living with various impairments: mobility, sensory and/or learning disabilities. The results showed that personal assistance from family members could both promote and be a barrier to disabled people’s control over their own lives and participation in society. It became evident that the situation could have both advantages and disadvantages for both parties, which puts the focus on the interdependency between the participants and their family assistants. However, the results also points to a potential risk that the welfare state (re)passes its responsibilities back on to disabled people and their families.
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| 8. |
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| 9. |
- Gillberg, Claudia, 1966-, et al.
(författare)
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Between duty and right : disabled schoolchildren and teachers’ ableist manifestations in Sweden
- 2019
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Ingår i: Disability & Society. - : Routledge. - 0968-7599 .- 1360-0508. ; 34:9-10, s. 1668-1673
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Tidskriftsartikel (refereegranskat)abstract
- In this article we discuss ableist manifestations about chronically ill and disabled schoolchildren in Sweden. On claiming their right to schooling, these children risk being excluded due to not conforming with norms while being refused alternative formats that would enable participation. They are then accused of not attending school and construed as problematic. Parents are derided as mollycoddling perpetrators by teachers who perceive themselves as superior knowers of disability and illness, polarising an already infected school debate. Alternative formats for participation are derided, claiming that certain disabilities do not exist or that parents exaggerate their children’s symptoms. We concede that teachers’ poor work environments due to underfunding and unreasonable workloads are problematic, but we are adamant that unfavourable work conditions must not entail unethical professional conduct. We hope this article will contribute to putting the situation of chronically ill and disabled schoolchildren in Sweden on the radar of Critical Disability Studies as well as in relevant fields of practice and that it might stimulate a change in public debate
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| 10. |
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