| 1. |
- Andersson, Maria, et al.
(författare)
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External mirroring of inner chaos : Blogging as experienced by the relatives of people with cancer
- 2013
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Ingår i: International Journal of Palliative Nursing. - 1357-6321 .- 2052-286X. ; 19:1, s. 16-23
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Tidskriftsartikel (refereegranskat)abstract
- Background: Relatives of a person suffering from cancer risk being affected both physically and psychologically. Blogging has become increasingly popular as a forum for communicating experiences, but few studies have focused on what blogging about a relative's cancer journey means to the author. Aim: To illuminate relatives' experiences of blogging when a family member is in the end-of-life phase of cancer. Method: Telephone interviews were conducted with 12 people about their experiences of blogging during and after their family member's illness. The data was analysed using qualitative content analysis. Findings: Blogging facilitated everyday life, introduced the relatives to new friends with similar experiences, helped them in their grief process, and helped them to preserve memories. The negative aspects were being misunderstood and publicly criticised as well as the feeling of providing readers with 'reality show' entertainment. Conclusion: Blogging was seen as a complement to professional care that contributed to the prevention of ill health.
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| 2. |
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| 3. |
- Ek, Kristina, et al.
(författare)
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Death and caring for dying patients : exploring first-year students´descriptive experiences
- 2014
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Ingår i: International Journal of Palliative Nursing. - : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 20:10, s. 509-515
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To describe first-year nursing students' experiences of witnessing death and providing end-of-life care.Methods: This study is part of a larger longitudinal project. Interviews (n=17) were conducted with nursing students at the end of their first year of education. To analyse the interviews (lived-experience descriptions), a thematic analysis, ‘a search for meaning’ (Van Manen, 1997) was applied.Results: The results are presented within the framework of four separate themes: (1) The thought of death is more frightening than the actual experience, (2) Daring to approach the dying patient and offering something of oneself, (3) The experience of not sufficing in the face of death and (4) Being confronted with one's own feelings.Conclusion: Nursing students require continuous support and opportunity to reflect and discuss their experiences about caring for dying patients and confronting death throughout the entirety of their education. In addition, teachers and clinical supervisors need to give support using reflective practice to help students to develop confidence in their capacity for caring for dying patients.
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| 4. |
- Ekeström, ML, et al.
(författare)
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Family members' experiences of the impact of the LCP in a palliative care unit and a geriatric ward in Sweden
- 2014
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Ingår i: International journal of palliative nursing. - : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 20:8, s. 381-6
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Tidskriftsartikel (refereegranskat)abstract
- The Liverpool Care Pathway for the Dying Patient (LCP) was developed to transfer palliative care standards for the last hours or days of life, including family support, from hospice to other care settings. Aim: This study sought to explore family members' experiences of end-of-life care in a palliative care unit and in a general geriatric ward in Sweden before and after implementation of the LCP. Methods: Experiences were evaluated in relation to the goals of the LCP. Family members of patients deceased before and after implementation answered a questionnaire 3–6 months after the death. Comparisons between the samples were assessed by non-parametric tests. Results: There were significant differences concerning dialogue about existential issues that arise and about emotions and practical issues faced in bereavement. Significant improvements after the implementation of the LCP were reported in experiences regarding physicians' ability to listen to family members' concerns. Conclusion: The results suggest that using a structure such as that provided by the LCP may improve communication between physicians and the families of dying patients.
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| 5. |
- Janze, Anna, et al.
(författare)
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Preparing for palliative caregiving as a transition in the awareness of death : family carer experiences.
- 2014
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Ingår i: International Journal of Palliative Nursing. - : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 20:10, s. 494-501
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Tidskriftsartikel (refereegranskat)abstract
- AIM: The aim of this study was to explore family caregivers´ experiences from partners' stories about preparing for caregiving.METHODS: The study had a descriptive and interpretive design using qualitative interviews and qualitative content analysis.RESULTS: Preparing for caregiving was described in the two sub-themes: living in uncertainty, focusing on the present and preparing for the future; and preparing for caregiving while transitioning to new roles. One overarching theme 'preparing for caregiving in awareness of death' was seen as a common thread throughout the results. Preparing meant dealing with changes in life, living in uncertainty and transitioning to new roles.CONCLUSION: Family (partner) caregivers continuously tried to prepare in different ways in response to their partners' illness. Preparing for caregiving meant to willingly or unwillingly prepare for the dying and death of their partner and awareness about this was always present in some way, influencing the whole experience.
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| 6. |
- Johnston, Bridget, et al.
(författare)
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Evaluation of the Dignity Care Pathway for community nurses caring for people at the end of life.
- 2012
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Ingår i: International Journal of Palliative Nursing. - : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 18:10, s. 483-9
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: People nearing the end of life fear loss of dignity, and a central tenet of palliative care is to help people die with dignity. The Dignity Care Pathway (DCP) is an intervention based on the Chochinov theoretical model of dignity care. It has four sections: a manual, a Patient Dignity Inventory, reflective questions, and care actions.METHOD: The feasibility and acceptability of the DCP were evaluated using a qualitative design with a purposive sample of community nurses. Data was collected from April to October 2010 using in-depth interviews, reflective diaries, and case studies and then analysed using framework analysis.RESULTS: The DCP was acceptable to the community nurses, helped them identify when patients were at the end of life, identified patients' key concerns, and aided nurses in providing holistic end-of-life care. It requires the nurse to have excellent communication skills. Some of the nurses found it hard to initiate a conversation on dignity-conserving care.CONCLUSION: The DCP helps nurses to deliver individualised care and psychological care, which has previously been identified as a difficult area for community nurses. All of the nurses wished to continue to use the DCP and would recommend it to others.
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| 7. |
- Karlsson, Margareta, 1958-, et al.
(författare)
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Community nurses’ experiences of ethical dilemmas in palliative care : A Swedish study
- 2010
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Ingår i: International Journal of Palliative Nursing. - London : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 16:5, s. 224-231
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Tidskriftsartikel (refereegranskat)abstract
- Aim: The aim of this study was to highlight community nurses' experiences of ethical dilemmas in palliative care.Background: There are many studies on palliative care but research on how community nurses experience ethical dilemmas in palliative home care is lacking. The ethical dilemmas to which these nurses are exposed seriously challenge their ethical competence.Method: Seven community nurses described their experiences of ethical dilemmas in palliative home care. The data was analysed by means of qualitative content analysis.Findings: The core themes that emerged were: powerlessness, frustration, and concern in relation to ethical dilemmas in palliative care. The nurses were motivated and felt responsibility for their patients' end of life, and their relatives, and took their duties seriously. They wanted to satisfy all parties; the patient, the relatives and other palliative care professionals.Conclusion: The study confirms the need for knowledge about how community nurses experience dilemmas in ethical decision-making. They have the freedom to act and the willingness to make decisions, but they lack competence and knowledge about how their colleagues' experience and deal with such issues.
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| 8. |
- Lindblad, A, et al.
(författare)
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Continuous deep sedation, physician-assisted suicide, and euthanasia in Huntington's disorder
- 2010
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Ingår i: International journal of palliative nursing. - : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 16:11, s. 527-33
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To investigate the attitudes among Swedish physicians and the general public towards continuous deep sedation (CDS) as an alternative treatment for a competent, not imminently dying patient with Huntington’s disorder requesting physician-assisted suicide (PAS) and euthanasia. Design: A questionnaire was distributed to 1200 physicians in Sweden and 1201 individuals in Stockholm. It consisted of three parts: 1) A vignette about a competent patient with Huntington’s disease requesting PAS. When no longer competent, relatives request euthanasia on behalf of the patient. Responders were asked about their attitudes towards these requests and whether CDS would be an acceptable alternative. 2) General questions about PAS and euthanasia. 3) Background variables. Results: The response rate was 56% (physicians) and 52% (general public). The majority of the general public and a fairly large proportion of physicians reported more liberal views on CDS than are expressed in current Swedish and international recommendations. Conclusion: In light of the results, we suggest that there is a need for a broader discussion about the recommendations for CDS, with a special focus on the needs of patients with progressive neurodegenerative disorders.
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| 9. |
- Lundberg, Tina, 1973-, et al.
(författare)
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The perspectives of bereaved family members on their experiences of support in palliative care
- 2013
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Ingår i: International Journal of Palliative Nursing. - : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 19:6, s. 282-288
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To explore family members’ supportive interactions in palliative care and the emotional experiences that they associate with these interactions. Methods: Qualitative individual interviews were performed with bereaved family members recruited from an urban palliative care service in Sweden. The interviews were analysed using inductive qualitative content analysis. Results: Five categories of supportive interactions with staff members were linked with emotional consequences: informational support, supportive encounters, professional focus of staff, a supportive environment, and bereavement support. Having a dialogue with family members nurtured certainty and security, supportive encounters gave a warm and comforting feeling, and bereavement support contributed to feelings of strength. Environmental factors contributed to dignity. Conclusion: Supportive interactions with staff and within a home-like environment help to build resilience if tailored to the family member’s own needs.
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| 10. |
- Olsson, Louise, et al.
(författare)
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Maintaining hope when close to death: insight from cancer patients in palliative home care
- 2010
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Ingår i: International Journal of Palliative Nursing. - London : Mark Allen group. - 1357-6321 .- 2052-286X. ; 16:12, s. 607-612
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Tidskriftsartikel (refereegranskat)abstract
- This article reports the social and psychological processes that 11 cancer patients receiving palliative home care used to keep their hope alive. Method: The patients described their ways of dealing with hope in interviews and diaries, and it was from these accounts that the processes were extracted, using a grounded theory methodology. Results: Two main processes emerged: maintaining life and preparing for death. When the patients focused on maintaining life, they tried to preserve its meaning and to communicate with others about life and death. They found it helpful to shift their focus and to involve fellow 'travellers' in their journey. To prepare for death was to take responsibility for the future and to see possibilities of living on even after death. Conclusion: This paper revealed two parallel and interdependent processes used by patients in the palliative care phase to maintain hope and respond to living close to death.
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