| 1. |
- Godskesen, Tove, et al.
(författare)
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When Nursing Care and Clinical Trials Coincide : A Qualitative Study of the Views of Nordic Oncology and Hematology Nurses on Ethical Work Challenges
- 2018
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Ingår i: Journal of Empirical Research on Human Research Ethics. - : SAGE Publications. - 1556-2646 .- 1556-2654. ; 13:5, s. 475-485
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Tidskriftsartikel (refereegranskat)abstract
- This study investigated the kinds of ethical challenges experienced by nurses in oncology and hematology when nursing care and research overlap in clinical trials, and how the nurses handle such challenges. Individual interviews with 39 nurses from Sweden, Denmark, and Finland indicated that all nurses were positive about research, considering it essential for developing the best care. Ethical challenges exist, however; the most difficult were associated with the end-of-life patients, no longer responsive to standard therapy, who eagerly volunteer for cutting-edge drug trials in the hope of gaining therapeutic benefit. Many nurses lacked systematic strategies for addressing such challenges but found support from their nursing colleagues and relied on the research protocols to guide them.
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| 2. |
- Helgesson, G, et al.
(författare)
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Misuse of Coauthorship in Medical Theses in Sweden
- 2018
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Ingår i: Journal of empirical research on human research ethics : JERHRE. - : SAGE Publications. - 1556-2654 .- 1556-2646. ; 13:4, s. 402-411
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to explore experiences of authorship issues among persons who have recently received their doctoral degree in medicine in Sweden. A survey was mailed to all who received their PhD at a medical faculty at a Swedish university the first half of 2016. Questions concerned experiences of violations of the first three authorship criteria in the Vancouver rules and of misuse of authorship order in the articles of their thesis, and the respondents’ attitudes to these matters. The questionnaire was returned by 285 respondents (68%). According to the majority (53%), the Vancouver rules were not fully respected in the articles of their thesis. A vast majority (97%) found it important that authorship issues are handled correctly, but only 19% responded that their department has a clear and consistently applied policy. We conclude that authorship guidelines are frequently disrespected at medical faculties in Sweden. The universities seem to provide limited support on authorship issues.
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| 3. |
- Hofmann, B, et al.
(författare)
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Scientific Dishonesty: A Survey of Doctoral Students at the Major Medical Faculties in Sweden and Norway
- 2015
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Ingår i: Journal of empirical research on human research ethics : JERHRE. - : SAGE Publications. - 1556-2654 .- 1556-2646. ; 10:4, s. 380-388
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Tidskriftsartikel (refereegranskat)abstract
- As we need knowledge about the prevalence of scientific dishonesty, this study investigates the knowledge of, experiences with, and attitudes toward various forms of scientific dishonesty among PhD students at the main medical faculties in Sweden and Norway. An anonymous questionnaire was distributed to all post-graduate research students attending basic PhD courses at the medical faculties in Stockholm and Oslo during the fall 2014. The responding doctoral students reported to know about various forms of scientific dishonesty from the literature, in their department, and for some also through their own experience. Some forms of scientific misconduct were considered to be acceptable by a significant minority. There was a high level of willingness to report misconduct but little awareness of relevant policies for scientific conduct.
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| 4. |
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| 5. |
- Swartling, Ulrica, et al.
(författare)
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Parental estimation of their child's increased type 1 diabetes risk during the first 2 years of participation in an international observational study : Results from the TEDDY study
- 2016
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Ingår i: Journal of Empirical Research on Human Research Ethics. - : SAGE Publications. - 1556-2646 .- 1556-2654. ; 11:2, s. 106-114
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Tidskriftsartikel (refereegranskat)abstract
- This study assessed mothers' and fathers' perception of their child's risk of getting type I diabetes (TID) during the first 2 years of their participation in The Environmental Determinants of Diabetes in the Young (TEDDY) study. TEDDY parents were informed of their child's increased genetic risk for Tl D at study inception. Parent perception of the child's risk was assessed at 3, 6, 15, and 27 months of age. In families with no history of TID, underestimation of the child's TID risk was common in mothers (>38%) and more so in fathers (>50%). The analyses indicated that parental education, country of residence, family history of TID, household crowding, ethnic minority status, and beliefs that the child's TID risk can be reduced were factors associated with parental risk perception accuracy. Even when given extensive information about their child's TID risk, parents often fail to accurately grasp the information provided. This is particularly true for fathers, families from low socioeconomic backgrounds, and those with no family history of Tl D. It is important to develop improved tools for risk communication tailored to individual family needs.
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