| 1. |
- Abbass, Allan, et al.
(författare)
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On Paolo Migione's "What Does Brief Mean?"
- 2014
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Ingår i: Journal of the American Psychoanalytic Association. - : SAGE Publications. - 0003-0651 .- 1941-2460. ; 62:5, s. NP18-NP22
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)
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| 2. |
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| 3. |
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Against separation : experiences in early intervention for young children with disabilities in Russia and Byelorussia
- 2014
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Samlingsverk (redaktörskap) (övrigt vetenskapligt/konstnärligt)abstract
- This book is a result of a Russian-Swedish cooperation between the St Petersburg Early Intervention Institute and the Department of Social work, Ersta Sköndal University College in Stockholm. The framework of this cooperation has been a project financed by the Swedish International Development Cooperation Agency, Sida. The theme of the book is early intervention for children with disabilities, which is an advancing field of knowledge in Russia and other post-Soviet countries, rapidly catching up with clinical standards in Western Europe and the United States but still facing serious challenges from predominant clinical traditions and general attitudes towards handicapped children.The book provides examples of implementation and development of Early Intervention services in Novgorod, Archangelsk, Minsk and St Petersburg, together with theoretical contributions focusing on subjects like attachment theory, identity development, professional team work, existential and ethical aspects and communication. It also discusses possibilities and dilemmas with practitioners working as researchers in their own field.The book also brings forward some important conclusions for early intervention as a theoretical and practical field. An effective program in the field of early intervention should build on a clinical program, an educational program, knowledge achievement by means of a clinical research program and policymaking activities. We hope this book will be useful, for practitioners struggling with the complex reality related to the implementation of early intervention as well as for academics and students in this field.
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| 4. |
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Ageing with disability : a lifecourse perspective
- 2013
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Samlingsverk (redaktörskap) (refereegranskat)abstract
- This is the first book to address the issue of ageing after a long life with disability. It breaks new ground through its particular life course perspective, examining what it means to age with a physical or mental disability and what the implications are of 'becoming old' for people who have had extensive disabilities for many years. These people may have had to leave the labour market early, and the book looks at available care resources, both formal and informal. Ageing with disability challenges set ideas about successful ageing, as well as some of those about disabilities. The life course approach that is used unfolds important insights about the impact of multiple disabilities over time and on the phases of life. The book highlights the meaning of care in unexplored contexts, such as where ageing parents are caregivers or regarding mutual care in disabled couples. These are areas of knowledge which have, to date, been totally neglected.
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| 5. |
- Andersen, Rebecka, et al.
(författare)
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Svenska ideella organisationers mervärde i biståndet
- 2014
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Syftet med denna rapport är att beskriva och analysera olika aktörers uppfattningar om svenska ideella organisationers mervärde inom biståndet. Med hjälp av intervjuer med ett antal representanter för olika aktörer med kunskap och erfarenhet av det svenska biståndsarbetet och analyser av existerande dokument behandlas i denna rapport de svenska ideella organisationernas roller, särarter och mervärden inom det svenska biståndet. De empiriska resultaten visar att organisationernas roller visserligen har förändrats över tid, från att fungera som pionjärer till att mer fungera som röstbärare och organisatörer av tjänster, men att de ideella organisationerna anses vara fortsatt betydelsefulla i biståndet, även i framtiden. Särarterna framträder tydligast i jämförelser med antingen ideella organisationer i andra länder eller med företag och offentliga organisationer i Sverige, och inkluderar alltifrån organisationernas historia och folkrörelsebakgrund till den icke‐vinstdrivna profilen, organisationernas värdegrund samt förmågan att kunna agera autonomt och verka i olika kontexter. Ett antal mervärden identifieras också, till exempel den svenska kontexten och folkrörelseförankring, mångfalden i det svenska civila samhället, arbetet med demokratiska och mänskliga rättigheter, röstbärarrollen och påverkansarbetet, effektivitet till följd av lång erfarenhet och kunskap, lokal förankring och välutvecklade nätverk samt ett partnerskap där stödet sträcker sig utöver det finansiella och långsiktigheten i partnerskapen. Rapporten visar också hur det förekommer föreställningar om att särarterna och mervärdena har förändrats över tid. Det är dock oklart om de minskar eller ökar i kraft eller om det mer handlar om förändringar från en form till en annan. Avslutningsvis efterlyses ett mer nyanserat förhållningssätt till svenska ideella organisationers mervärde i biståndet.
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| 7. |
- Andreae, Christina, et al.
(författare)
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Patients' Participation as It Appears in the Nursing Documentation, When Care Is Ruled by Standardized Care Plans
- 2011
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Ingår i: ISRN Nursing. - : Hindawi Limited. - 2090-5483 .- 2090-5491. ; 2011:Article ID 707601, s. 1-7
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Tidskriftsartikel (refereegranskat)abstract
- This study aimed to describe inpatients with myocardial infarction and their participation in care as documented in the nursing records when standardized care plans are used in care. The use of standardized care plans not only has increased the quality of medical treatment but has also overlooked patients' opportunities to participate in their own care. There is a lack of knowledge about how standardized care plans influence patients' participation in nursing care. Data were collected from thirteen patients' records with diagnoses of myocardial infarction. Participation in the decision-making process and participation associated with “sharing with others” were searched for in the analysis. The analytical process was guided by content analysis. The findings were grouped into two categories: patients' intermediary participation and patients' active participation. The main results indicated that patients' intermediary participation depended on healthcare professionals' power to rule the nursing care situation.
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| 8. |
- Audulv, Åsa, 1980-, et al.
(författare)
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The influence of illness perspectives on self-management of chronic disease
- 2011
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Ingår i: Journal of Nursing and Healthcare of Chronic Illness. - Singapore : Blackwell Publishing Ltd. - 1752-9816 .- 1752-9824. ; 3:2, s. 109-118
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To explore people’s illness perspectives and related self-management of chronic disease.Background: Individuals’ illness beliefs and perspectives have been suggested to influence their self-management behaviour. However, research that has examined the influence of illness perspectives on chronic disease self-management has been largely quantitative and has focused on selected elements of self-management. How individuals’ illness perspectives influence their whole of self-management has not been investigated in depth.Method: The phenomenographic research study entailed 26 narrative interviews with Swedish adults with a variety of chronic diseases. Data were collected mostly during 2006.Results: The participants described two illness perspectives; being life-oriented meant to focus upon how to live a good life with disease, whereas a diseaseoriented illness perspective emphasised the medical and physiological aspects of disease. The participants attested to one of the two illness perspectives as a main perspective, although they shifted between the perspectives depending of context and illness experience. The participants’ illness perspectives were reflected in their understandings of self-management. Participants with a dominant life-oriented illness perspective performed self-management in order to continue living a ‘normal’ life (e.g. facilitate activity and mental well-being). When holding a disease-oriented illness perspective, self-management was focused upon controlling disease (e.g. symptom management and avoiding disease related complications).Conclusions: People with chronic illness hold a dominant illness perspective that determines how they understand and enact self-management. These perspectives 2011 Blackwell Publishing Ltd 109 are not static; instead individuals tend to shift between the perspectives under specific circumstances.Relevance to clinical practice: Health-care providers shall acknowledge that individuals’ with chronic illness shift between a life-oriented and a disease-oriented illness perspective. The results of the current study can be used by health-care providers in order to launch a dialogue in order to support individuals’ self-management.
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| 9. |
- Audulv, Åsa, et al.
(författare)
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The integration of chronic illness self-management
- 2012
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Ingår i: Qualitative Health Research. - : Sage Publications. - 1049-7323 .- 1552-7557. ; 22:3, s. 332-345
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Tidskriftsartikel (refereegranskat)abstract
- Self-management is crucial for people living with chronic diseases, but the actual process of integrating self-management has not been explored in depth. In this article, we investigate the integration of self-management into the lives of people with chronic illness. In this longitudinal study, we used an interpretive description approach. Twenty-one individuals were interviewed regularly during the first 3 years after they were diagnosed with a chronic condition. We found self-management integration to be an ongoing process that included four phases: seeking effective self-management strategies, considering costs and benefits, creating routines and plans of action, and negotiating self-management that fits one's life. The participants managed the phases according to their context, e.g., illness experience, life situation, personal beliefs, and social support. Health care providers should therefore facilitate self-management integration by providing support that is adjusted to the person's phase of self-management integration and life context.
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| 10. |
- Audulv, Åsa, et al.
(författare)
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Who's in charge? The role of responsibility attribution in self-management among people with chronic illness
- 2010
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Ingår i: Patient Education and Counseling. - : Elsevier. - 0738-3991 .- 1873-5134. ; 81:1, s. 94-100
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE: To explore how responsibility attribution influences self-management regimens among people with chronic illness.METHODS: This qualitative content analysis included 26 interviews with people living with chronic illness.RESULTS: The participants attributed responsibility to internal, external or a combination of these factors, meaning that they either assumed responsibility for self-management or considered other people or factors responsible. Internal responsibility was associated with a multifaceted self-management regimen, whereas external responsibility was related to "conventional" self-management such as taking medication, managing symptoms and lifestyle changes.CONCLUSION: How responsibility is attributed is vital for the way in which individuals perform self-management. In this study, those who attributed responsibility to external factors mainly performed recommended behaviours to control their illness. In contrast, to take charge of their illness and be an active participant in the care, individuals must take responsibility for themselves, i.e. internal responsibility.PRACTICE IMPLICATIONS: Health-care providers should acknowledge and support individuals' wishes about various levels of responsibility as well as different kinds of patient-provider relationships.
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