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- Ahlström, Gerd, et al.
(författare)
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Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy.
- 1996
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Ingår i: Journal of Psychosomatic Research. - 0022-3999 .- 1879-1360. ; 41:4, s. 365-376
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Tidskriftsartikel (refereegranskat)abstract
- Illness-related problems and coping were examined in 60 individuals with muscular dystrophy (MD) identified in a population survey of the county of Orebro, Sweden. In addition, the extent to which coping is related to quality of life (QoL) was investigated as was the impact of impairment and disability on the relation between coping and QoL. Emotion/appraisal-focused coping was utilized by respondents more than twice as often as problem-focused coping. High QoL was significantly correlated to "Stoic acceptance" and "Tried alternative treatment." Low QoL was associated with "Helpless/hopeless," "Anxious preoccupation," "Minimization," "Social comparison," "Establishment of control over everyday life," "Performs the task with the aid of an appliance" and "Accepts help or leaves it to others." When measures of impairment and disability were included in the analysis, the impact of these measures explained the association between coping and physical QoL by 16% to 43%.
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- Ahlström, Gerd, et al.
(författare)
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Disability and quality of life in individuals with muscular dystrophy.
- 1996
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Ingår i: Scandinavian Journal of Rehabilitation Medicine. - 0036-5505 .- 1940-2228. ; 28:3, s. 147-157
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Tidskriftsartikel (refereegranskat)abstract
- In the county of Orebro, Sweden, 32 individuals with myotonic disorders and 25 with other types of muscular dystrophy were examined. Disability was assessed with functional tests and standardized observations of muscle function (mainly based on those proposed by Dr. Brooke), a new self-administered questionnaire regarding the Activities of Daily Living (ADL) and the ADL staircase (based on Katz ADL index). The results of the different tests of disability were highly correlated. The Sickness Impact Profile and the Kaasa test were used for assessing the quality of life, and no significant differences were found between the groups of muscular dystrophy. In an explanatory factor analysis three main factors of disability were found. The factors "walk and move" and "finger function" were fair to good associated with the quality of life. This study offers an approach for research on the consequences of muscular dystrophy using established as well as new methods.
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- Ahlström, Gerd, et al.
(författare)
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Intervenering för bättre livskvalitet.
- 1997
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Ingår i: Rapport från forskningskonferensen Människa, handikapp, livsvillkor. - Örebro : Psykiatri och habilitering, Örebro läns landsting.
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Konferensbidrag (refereegranskat)
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- Dahlbom, Kathe, et al.
(författare)
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Muscular dystrophy in adults : a five-year follow-up.
- 1999
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Ingår i: Scandinavian Journal of Rehabilitation Medicine. - : Informa UK Limited. - 0036-5505 .- 1940-2228. ; 31:3, s. 178-184
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Tidskriftsartikel (refereegranskat)abstract
- The aim was to describe the natural history of adults with hereditary muscular dystrophies, including myotonic dystrophy, with respect to muscular function, ventilation and electrocardiogram. In a prospective study, 46 subjects were followed over a period of five years. In 1991 and 1996, their muscle function was assessed according to an observation scheme and their lung vital capacity was measured by spirometer. Electrocardiograms were obtained in 1991, 1993 and 1996. Deterioration of muscular function was seen with regard to both the functional muscle tests and the vital capacity. The proportion of pathological electrocardiograms increased from 38% in 1991 to 54% in 1996 in the 26 patients with myotonic dystrophy without an increase in clinically detected cardiac abnormalities. Timely examinations using standard methods can reveal medically important information on deterioration, which often passes clinically unnoticed because of the insidious progress of the diseases.
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