| 1. |
|
|
| 2. |
- Ali, Lilas, 1985-, et al.
(författare)
-
Att använda internet vid datainsamling
- 2017. - 2
-
Ingår i: Vetenskaplig teori och metod. - Lund : Studentlitteratur AB. - 9789144113289 ; , s. 217-232
-
Bokkapitel (refereegranskat)
|
|
| 3. |
|
|
| 4. |
- Ali, Lilas, 1981, et al.
(författare)
-
Caring Situation, Health, Self-efficacy, and Stress in Young Informal Carers of Family and Friends with Mental Illness in Sweden
- 2015
-
Ingår i: Issues in Mental Health Nursing. - New York, NY : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 36:6, s. 407-415
-
Tidskriftsartikel (refereegranskat)abstract
- This study compared the caring situation, health, self-efficacy, and stress of young (16-25) informal carers (YICs) supporting a family member with mental illness with that of YICs supporting a friend. A sample of 225 carers, assigned to a family group (n = 97) or a friend group (n = 128) completed the questionnaire. It was found that the family group experiences a lower level of support and friends experienced a lower positive value of caring. No other differences in health, general self-efficacy and stress were found. YICs endure different social situations, which is why further study of the needs of YICs, especially those supporting friends, is urgently needed.
|
|
| 5. |
- Ali, Lilas, et al.
(författare)
-
eHälsa
- 2017. - 1
-
Ingår i: Vårdpedagogik. - Stockholm : Liber. - 9789147112296 ; , s. 190-217
-
Bokkapitel (refereegranskat)
|
|
| 6. |
- Ali, Lilas, 1981, et al.
(författare)
-
Need of support in people with chronic obstructive pulmonary disease
- 2018
-
Ingår i: Journal of clinical nursing. - : Wiley. - 0962-1067 .- 1365-2702. ; 27:5-6
-
Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE: The aim of this study was to describe peoples' experiences and expectations of support when living with chronic obstructive pulmonary disease (COPD). METHOD: We conducted and analysed face-to-face or telephone interviews with 17 individuals (aged 44-77 years) diagnosed with COPD. The interviewer asked open-ended questions aimed at encouraging further narration, and we analysed the participants' narratives using a phenomenological hermeneutical approach. This report adheres to the COREQ guidelines. RESULTS: The overall theme suggests that people with COPD describe support as shared knowledge and experiences, based on the following subthemes; similar experiences, the need of genuine professional knowledge, self-reliance versus self-blame, and the Internet - feeling safe but uncertain. CONCLUSION: People with COPD find their strength through shared knowledge and dialogical support with others who have similar experiences and with professionals. A person-centred eHealth approach may be suitable for this group as it offers both collaboration and support. PRACTICE IMPLICATIONS: There is a demand for access to genuine professional knowledge as additional support to patients' own capabilities and needs. Patient associations were assessed as reliable sources of information and to some extent also support, but the importance of access to professional sources was also stressed. This article is protected by copyright. All rights reserved.
|
|
| 7. |
- Ali, Lilas, 1981, et al.
(författare)
-
Person-centred psychosis care in the inpatient setting:Staff experiences of an educational intervention.
- 2016
-
Ingår i: International Forum on Quality and Safety in Health Care. Gothenburg, Sweden 12-15 April 2016.
-
Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Introduction: The key component in this research project is to test and implement a person-centred psychosis care approach that leads to an active partnership between health professionals and patients. Only by transforming the relationship between the patient and the care provider from the present state of dependency into an equal partnership can we achieve a more effective care model with enhanced financial efficacy and patient self-efficacy. Person-centred psychosis care means to shift away from a model in which the patient is the passive target of a medical intervention to a model where a contractual arrangement is made involving the patient as an active part in the care and the decision-making process. The patient illness narrative is the starting point for building a collaborative, equalitarian health professional-patient partnership that confirms capacities in patients. The patient narrative is the patient´s account of his/her illness, symptoms, and the impact on life. Finally the narrative and agreed partnership needs to be documented in order to secure further care. Methods: The person centered care intervention will be implemented at all four in-patient wards at the Psychosis clinic. An implementation group has been formed and representatives from the four wards are included in this group (section leaders, heads of the wards, and senior ward psychiatrists). The implementation group makes decisions regarding the organization and content of the staff education sessions. The research process has a participatory design which is structured by the foundation pillars in the gPCC model and composes of four workshops together with 33% of the staff in the psychosis care wards, at the department of psychosis, Sahlgrenska University Hospital. All workshops focus on person-centred care and how to implement this care approach at all four in-patient wards at the Psychosis clinic. Now that the educational intervention has been completed it is in our belief that the care offered on the ward is more person-centred. This project will explore this with a simple “before” and “after” design. The primary outcome will be patient empowerment as measured by the “Making Decisions Empowerment Scale”. This scale been validated and used internationally in studies involving persons with severe mental ill-health. Results: All the participants in this project have completed the second phase of the gPCC implementation model and they have agreed on person-centred tasks to implement in their units. Our hypothesis is that persons who receive inpatient treatment after the implementation of the intervention will score higher on ratings of empowerment and consumer satisfaction than those on the “pre-intervention” wards. Further, we hypothesize that shorter hospital stays and less use of involuntary treatments will be observed on the post-intervention wards. Discussion: A person-centered care approach can increase partnership between mental health service users and providers. A basic tenant of person-centered care is that the patient is seen as a capable person who has self-respect and self-esteem. A key element in person-centred care is the dialogue between the professional and the patient, a dialogue with the person, rather than talking to (or informing) a person. The staff education package in itself provides us with an excellent opportunity for transfer of research findings into the care setting. The members of the teaching staff are used as active researchers who will incorporate results from ongoing of the teacher’s results from our ongoing clinical projects on cognition, adherence, and stigma.
|
|
| 8. |
- Ali, Lilas, et al.
(författare)
-
The impact of a person-centred web-based intervention on young informal carers of people with mental illness
- 2015
-
Ingår i: Abstracts: 19th International Philosophy of Nursing Society (IPONS) conference August 24-26, 2015 Karolinska Institutet, Stockholm, Sweden. - Stockholm : Karolinska Institutet. ; , s. 4-5
-
Konferensbidrag (refereegranskat)abstract
- Background: Previous research show that young person’s often take responsibility and offer care and support for significant others who suffer from mental illness. This adoption of responsibility has consequences not only for the mentally ill, but also for the carer. A person-centred support approach to provide the young informal carers of what they are in need of is according to previous research essential, and in need of. As the internet becomes increasingly fundamental to young people in their daily lives, person-centred web-based interventions may be effective in supporting those caring for a person with mental illness.Objective: To analyze (according to stress, burden, quality of life, and self-efficacy) the impact of a person-centred web-based intervention (information, education, and support) for young persons who support family members or close friends with mental illness.Methods: The study design was prospective and randomized. The sample consisted of young informal carers (N = 241; 16–25 y), where N = 241 completed structured questionnaires at baseline and were allocated to person-centred web-based support (N = 121) respectively folder support (n =120) regarding available support in the society for young persons who support someone suffering from mental illness.Results: Data show that the stress levels were high in both groups at the start of the intervention, but decreased in the folder group, who also showed improvements in their caring situation (also different from the web-support group), general self-efficacy, well-being and their quality of life. The group who received person-centred web-based support showed significant increase in their well-being.Conclusion: It is of great importance to measure the stress and caring situation of young informal carers of persons with mental illness in order to understand their situation. One type of support could be person-centred web-based, however our results indicate that individuals seek support depending on their individual preferences. Since the responsibility of care has shifted from the health care services to the family and friends of the person suffering from a mental illness, more person- centred care/support interventions should be investigated for further development.
|
|
| 9. |
- Allerby, Katarina, 1980, et al.
(författare)
-
Person-Centered Psychosis Care (PCPC) In An Inpatient Setting : Ward Level Data And Staff Workload
- 2019
-
Ingår i: Schizophrenia Bulletin. - : Oxford University Press. - 0586-7614 .- 1745-1701. ; 45:Supplement 2, s. S304-S304
-
Tidskriftsartikel (refereegranskat)abstract
- Background: The person-centered care approach has been little tested in inpatient settings for persons with schizophrenia. An intervention, PersonCentered Psychosis Care (PCPC), was created to increase person-centered care through an educational intervention for staff. The education had a participatory approach where participants were involved in shaping the education and creating projects aimed at care development. The PCPC intervention focused on the patient’s narrative, the creation of a partnership between the patient and staff, and on coming to an agreement between the patient and staff concerning the care. The present study aims to compare staff experienced workload and ward level data before and after implementation of the intervention.Methods: The study was carried out on 4 hospital wards (43 beds) at the Psychosis Clinic, Gothenburg, Sweden. Data was collected during a 6-month pre-intervention period, followed by an implementation period of 3 years, and finally a post intervention data collection period (9 months). During both data collection periods, one nurse per ward filled out a measure of daily subjective workload (a VAS scale with 0 indicating no burden at all and 10 indicating the highest imaginable burden). Additional ward level data (length of hospital stay, involuntary interventions, rehospitalization rates) were collected via the clinic’s electronic monitoring system.Results: The pre-intervention ratings (n=505) showed a mean subjective workload of 5.48 (SD=1.94). The post intervention workload (n=465) showed a mean of 4.51 (SD=2.08) which represents a significant reduction of experienced workload (t (968) = p <.0005). Analyses regarding length of hospital stay, involuntary interventions, and rehospitalization rates are underway and will be presented.Discussion: The findings indicate an improvement in the work environment for hospital staff and provide a quantitative result in line with staff experiences previously reported in our focus group study. The before and after design has its limitations, but the positive findings motivate further testing with a more rigorous design such as a cluster randomized study.
|
|
| 10. |
|
|
